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My Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Allison's progress.

My Story describes Allison's journey up to her diagnosis of biliary atresia.


Be sure to read the latest updates in the journal, view the photo gallery, and drop us a line in the guestbook. The links page offers more info on biliary atresia and organ donation.



Allison was born at Andrews AFB, MD in July of 2006. On November 1st we took her to the doctor because we thought she looked jaundiced. After an initial blood test, Allison was admitted to Walter Reed Army Medical Center for further observation. After many more tests over 10 days she was transferred to Georgetown University Hospital where Allison underwent laparoscopic surgery and was eventually diagnosed with a liver disease called biliary atresia. This is a rare disease that effects 1 in 15,000 infants and Allison will need a liver transplant within the year. She currently takes vitamins and several medications to help reduce her ascites (fluid in the abdomen). She sees the gastrointestinal doctors at Walter Reed weekly and then Dr. Kaufman at Georgetown monthly. As of December 2006 Allison was listed with the United Network for Organ Sharing (UNOS). On February 28, 2007 Allison received a liver transplant. She received a split liver. The liver of an 18 year old boy was donated to a young woman named Maggie Catherwood. The doctors at Georgetown asked Maggie if she would be willing to donate part of the liver to Allison. She immediately said yes and the bond between them began. Today, Allison and Maggie are living proof in the miracle of organ donation. Please take the time to sign up to become an organ donor. You can be someone's hero. We have two!Thank you to everyone for your love and support during this trying time in our lives. We love you all!


Journal

Notifications

Feb 28, 2011 12:02pm

Four years ago today our Allison received the gift of Life!  We thank her donor angel, Robby, his family and Allison's liver sister, Maggie.  Everyday we hear news of people committing horrible acts and we rarely hear of the wonderful acts of kindness.  Today remember that there are selfless people in this world who are willing to put aside their own needs and help others.  The world is still full of good people and we are blessed to have a few in our lives.  Thank you! 

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Healthcare Facility

Georgetown University Hospital
3800 Reservoir Road NW
Washington, DC 20007
United States