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Allison’s Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about Allison's progress.

My Story describes Allison's journey up to her diagnosis of biliary atresia.


Be sure to read the latest updates in the journal, view the photo gallery, and drop us a line in the guestbook. The links page offers more info on biliary atresia and organ donation.



Allison was born at Andrews AFB, MD in July of 2006. On November 1st we took her to the doctor because we thought she looked jaundiced. After an initial blood test, Allison was admitted to Walter/> Reed/> Army/> Medical/> Center/>/> for further observation. After many more tests over 10 days she was transferred to Georgetown/> University/> Hospital/>/> where Allison underwent laparoscopic surgery and was eventually diagnosed with a liver disease called biliary atresia. This is a rare disease that effects 1 in 15,000 infants and Allison will need a liver transplant within the year. She currently takes vitamins and several medications to help reduce her ascites (fluid in the abdomen). She sees the gastrointestinal doctors at Walter Reed weekly and then Dr. Kaufman at Georgetown monthly. As of December 2006 Allison was listed with the United Network for Organ Sharing (UNOS). On February 28, 2007 Allison received a liver transplant. She received a split liver. The liver of an 18 year old boy was donated to a young woman named Maggie Catherwood. The doctors at Georgetown asked Maggie if she would be willing to donate part of the liver to Allison. She immediately said yes and the bond between them began. Today, Allison and Maggie are living proof in the miracle of organ donation. Please take the time to sign up to become an organ donor. You can be someone's hero. We have two!Thank you to everyone for your love and support during this trying time in our lives. We love you all!

Latest Journal Update

Update 2016

Next month Allison celebrates her 9th Liverversary! She is now 9 1/2 years old and is a normal little girl. She is in Girl Scouts, plays piano, and loves being with her friends. Since her transplant she has had a shunt placed and continues to have her issues with portal hypertension. So far these are manageable issues and we couldn't be happier with her health. We still promote Organ Donor Awareness and have been  honored to hear several times that people have signed up to be a hero because of the gift of life Allison received. Thank you all for your continued support.

Love,
Terri

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Comments

3 Comments

Tya Boyden
By Tya and Ericka
Allison, you are truly a miracle walking. It has been such a blessing to see you grow into such a beautiful young lady. Happy Liverversary to you. ❤️ Tya and the tall girl
Barbara Roberson
By The Roberson Family: Barbara, Kevin, Joshua, Logan, Jacob, and Lucian
What an amazing journey and testament to courage and perseverance! Allison you have grown up to become a beautiful, courageous and inspiring young girl! We are so happy for you! Congratulations on your milestone and may you and your family continue to enjoy a rich and fulfilling life.
Linda Brazel
By Linda Brazel
Growing up strong and beautiful! It has been such a joy to experience this miracle with you! Allison, Aunt Linda loves you to the moon and back!!!!