Less then a week until school starts! Alison is still excited about starting. Today we had (2) different visits from the community care group that has been giving Alison her weekly physio and occ. therapy (case manager and an assessor). We are tryin' to get everything set up for Alison to have a smooth transition into school next week. We would like to first try to see if she can go until 2nd break (2/3rds of the day) but are concerned about her being 'on her own' during the first break. The case manager told us that it is common for schools to be able to support special attention to a student that needs it through many ways (ex. buddy system with older students who would play games with Alison in her classroom during the break). Keri is going to talk to the prinicipal and work out a plan. The school is small and very close with the students and teachers so we are confident it will be easy to come up with a good plan. The assessor had some great practical suggestions that will help Alison in the classroom - grip for her pencil and special sissors that are easier to operate in her weak hand. The assessor will come into Alison's classroom, watch her for awhile and then provide some suggestions to the teachers. The whole school has already been so great with her that it will be no problem. You can start to see her self confidence rising. The (2) ladies that came in today were complete strangers to Alison but after about 10' she was very comfortable with them. There was flashes of the old Alison talking about whatever was on her mind, being a clown and making us laugh. It was so great to see that part of her again. We heard back from the surgeon's office today that Alison is indeed booked in to get her port next Friday (assuming there are no emergency operations that bump her). Once the port is in we can begin Poly MVA IV treatments the following week. I also had another great phone conversation with Dr Wallace in Utah today. She is such a pleasure to talk to. Very knowledgable and experienced with brain tumors, great practical ideas, answers every question quickly with great detail and seems to be up to date on what new clinical trials are on going. She gives you a great feeling of confidence that you are working with the best there is. Some thank yous: 1) Cedarbrae parent council for the passes to go to African Lion Safari. They gave them to us at the end of the school year and we are going tomorrow for the day. 2) Mike at St Louis Bar and Grill on Northfield (great wings!!!). They had their annual golf tournement today and always donate the money they raise to a local charity. This year they are donating it directly to Alison's trust fund!! 3) Nigel from the UK. He sends us great guestbook entries on a frequent basis. It's inspiring for us (and should be for everyone) to see a person unselfishly help someone in need that he doesn't know. Just a few thoughtful words and some of your time is usually the only personal sacrifice you need to make. Very small price to pay for a big return that someone else will receive. We are so thankful to God for the many acts of kindness - big and small - that have been placed before us the last 4 months. Al
|
