Alexander Scogins's Journal
Dive Dive Dive
Written Dec 11, 2013 1:01pm by Chris ScoginsSo, Alex started his hyperbaric treatment on Monday and it went off without a hitch. He dove to a depth equivalent to 40 feet below water and breathed 100% oxygen for 90 minutes. I went in with him for the first time and it was a piece of cake. Apparently we were the first pair of people to go into a monoplace chamber. The chamber is really designed for 1 person but we fit with a little room to spare. He has also started home bound schooling again which seems to be going well. His walking is stabilized at the moment but we hope that will improve with this hyperbaric treatment. He is still on high dose steroids which make him an eating maniac. Unfortunately he has also put on a great deal of weight in a short period of time. That was not really the way we wanted him to gain weight. He has a very chipmunkish appearance right now. We are hoping to eventually completly come off of the steroids.
Written Dec 3, 2013 10:42am by Chris ScoginsJust a quick update for all of you Alex fans. I received a call last week from the Hyperbaric Center and they did get Alex approved for 20 treatments initially. As long as it shows progress they should approve up to 60 total, but he may not need that. He was supposed to start the treatments on Monday but he had an ear infection over the weekend so we had to delay a week.I have spoken with several families across the country and they all have said that it has helped radionecrosis. Well, we will see how much it helps Alex.Please keep him in your prayers.
Written Nov 22, 2013 3:18pm by Chris ScoginsWell Alex's motor function issues have stabilized for the moment but the steriods have made him into an eating machine. He tries to eat all of the time so we have had to put the breaks on things. He complains about being hungry but we just have to keep him to a feeding schedule. He has gained over 10 lbs in the past 1.5 weeks, so he is looking chubby and even has a belly. That isn't a good thing because the steroids have some negative long term side effects.
We are working on getting him enrolled in a therapy called "Hyberbaric Oxygen Therapy" to help slow or potentially reverse the necrosis. We have an appointment with Dr. Faulkner at the Craig Center at St. Thomas Hospital next Monday for our consultation. If we can get insurance to approve things then he will start the week after Thanksgiving. Note, I said IF we can get insurance to approve. They seem to be dragging their feet. It isn't on the approved list but it isn't on the not approved list. It is in a grey area of so called legitimacy. If approved, they will put him in a hyperbaric chamber and pressurize it with 100% oxygen for 90 minutes, 5 days per week for 3 months. They call it diving, just like a submarine. That is the way that I have been explaining it to Alex. Well keep your fingers crossed that it will approved. Take care and keep the prayers coming.