Alexander Scogins's Journal
Written Jan 18, 2014 11:13pm by Chris Scogins
So, we got the results of Alex's MRI on Friday and it was positive news. First and foremost, there is still no signs of a relapse tumor, YIPEEEEE. Second, the hyperbaric treatment appears to be working. There is reduction in all of the necrosis and no new necrosis. You know what they say, no necrosis is good necrosis. Yea, I did just make a real cheesy joke. He has about 2 weeks of treatment remaining so hopefully we will continue to see improvement. The good thing about this improvement is that it is supposed to be permanent. He could still develop necrosis down the road but we won't think about that. The treatment and prayers are doing what they are supposed to be doing. Thanks for all of the support.
Dive Dive Dive
Written Dec 11, 2013 1:01pm by Chris ScoginsSo, Alex started his hyperbaric treatment on Monday and it went off without a hitch. He dove to a depth equivalent to 40 feet below water and breathed 100% oxygen for 90 minutes. I went in with him for the first time and it was a piece of cake. Apparently we were the first pair of people to go into a monoplace chamber. The chamber is really designed for 1 person but we fit with a little room to spare. He has also started home bound schooling again which seems to be going well. His walking is stabilized at the moment but we hope that will improve with this hyperbaric treatment. He is still on high dose steroids which make him an eating maniac. Unfortunately he has also put on a great deal of weight in a short period of time. That was not really the way we wanted him to gain weight. He has a very chipmunkish appearance right now. We are hoping to eventually completly come off of the steroids.
Written Dec 3, 2013 10:42am by Chris ScoginsJust a quick update for all of you Alex fans. I received a call last week from the Hyperbaric Center and they did get Alex approved for 20 treatments initially. As long as it shows progress they should approve up to 60 total, but he may not need that. He was supposed to start the treatments on Monday but he had an ear infection over the weekend so we had to delay a week.I have spoken with several families across the country and they all have said that it has helped radionecrosis. Well, we will see how much it helps Alex.Please keep him in your prayers.