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Help ensure no one has to face life’s most difficult journeys alone by honoring Alex and Lauren with a donation to help CaringBridge reach our $1 million goal!

My Story

Welcome to our journey.  Both Alex and Lauren have Mitochondrial disease.  We do not know what the future holds but we make the most of everyday.  We are so thankful to our family and friends for laughing, crying and just being there for us.  Remember "Faith makes things possible...not easy"  Here is our life.....

 

 

For those of you that don't yet know Alex, he was born April 18, 2003. He is a spunky kid full of life. He was diagnosed with mitochondrial disease Complex I defect at age 3. He has symptoms from birth. At this point his main problems are: severe GI dysmotility. He has a G-J tube and is TPN dependent. He has chronic constipation as well as gastroparesis. He is lactose intolerant and has pancreatic insufficiency. He wears BiPap for central apnea and CO2 retention and supplemental oxyen for increased endurance. He has what is believed to be central neuropathy causing tingling in his fingers and toes. He has autonomic dysfunction that causes a variety of problems including heat and cold intolerance and blood pressure instability. He has some hyptonia and gets PT and OT weekly. He gets tired very easily. He has difficulties with sensory integration and processing. He attends a normal kindergaten with a private RN. Alex is a joy to be around and anyone who meets him quickly falls in love.

Lauren was born October 7, 2007 at 35 weeks. She has an abnormal brain MRI and has some mild developemental delays. Her biggest delay is in her speech. She suffers regressios in her speech with illness and anesthesia. She has significant reflux and had a nissen fundoplication and G-tube placed at 4 months old. She is the opposite of Alex is the pooping department. She dumps meaning her food moves through her too quickly. She has difficulty maintaining and gaining weight. She ahs some autonomic dysfunction as well. She has difficulty maintaining proper fluid balance and becomes dehydrated very quickly. She also gets swollen very quicly as well. She is heat and cold intolerate. She receives PT, OT and speech. She is just too cute for words.

Mitochondrial disease is devastating. The energy producers in his cells are not functioning properly leading to cell death. Cell death causes the organs not to function properly. Mitochondrial disease is a progressive and often life-threatening disease and there is no cure. Go to www.umdf.org for more info.

My husband and I are truly thankful for our children. It is hard not knowing what the future for them holds. We do know that each day with the kids is a gift in which we intend to truly enjoy. Thank you for visiting their site!

Please pray for all those who are researching this disease as hopefully they will find a cure in time.

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Katie Lindemann posted a new journal entry, "Home....".

We are home. It was to the point where they weren't doing anything that we couldn't do at home. They are both snuggled in their own beds and sleeping soundly.  This mamma ... Read more

Carmen Richardson signed Alex and Lauren's Guestbook.

Wishing you all well. Thank you for sharing your children's lives with me. I need to do better and journal more on my page. Your reading give me courage. Again thank you ... Read more

Katie Lindemann posted a new journal entry, "Flu x 2".

We are the proud parents of two kids with confirmed cases of flu B in April! This season was suppose to be over. Both kids are doing well minus their fevers. We are lucky. ... Read more

Katie Lindemann posted a new journal entry, "The Flu.....".

Well we all thought flu season was over. Not quite.  Alex was admitted t oday with high fevers (103+)  which have turned out to be Flu B.  Flu in normal children is ... Read more

Katie Lindemann added a new photo.

Katie Lindemann added a new photo.

Barbara Raab signed Alex and Lauren's Guestbook.

God Katie - no matter how often I tell you this I need to say it again.  You and your entire family are amazing and an inspiration to me.  Remember we are three trees ... Read more

Priscilla Flanagan signed Alex and Lauren's Guestbook.

Your post really touched my heart.  Thank you for sharing it.  I am praying for all of you. God is really using you and your children in more ways than you can imagine. Read more

Julie Sems signed Alex and Lauren's Guestbook.

I don't know how you do it, Katie, but you do. Everytime I read your journal entries, I am in awe of your strength and faith. Know that you and your family are in my ... Read more

Katie Lindemann posted a new journal entry, "Walking a tightrope......".

Life is a lot like walking a tightrope.  I think we all have several tightropes that we walk on a daily basis.  There are emotional tightropes, and physical ... Read more

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