My Story

Alexa earned her angel wings on August 6, 2009. 

If you haven't already be sure to check out "Alexa's Journey" with our personal videos. http://www.wtol.com/Global/story.asp?S=10457897



Alexa’s Brave Journey with Brain Cancer

In early May 2006 eight year old Alexa from Clyde, Ohio started showing several odd medical symptoms, but nothing that seemed too alarming. She had several headaches, double and blurry vision, and some dizziness. Alexa's parents Warren and Wendy figured she might be having eye problems. On May 11, 2006 Alexa saw the family doctor, Jonathan Diller. After a general exam all appeared okay except for her inability to perform a heel to toe, staight line walk. Dr. Diller immediately ordered a MRI. The MRI showed a tumor in Alexa's brain. Alexa’s surgery at St. Vincent’s Hospital in Toledo was scheduled for May 12, 2006.  The tumor was in the cerebellum and it is called medulloblastoma. The tumor was removed after 4 hours of surgery and was found to be malignant.

Alexa developed delayed onset loss of speech, unsteadiness, and irritability. This syndrome is called cerebellar mutism. Alexa underwent speech, physical, and occupational therapy. She began radiation therapy on 06/12/06. On June 19 she began a small weekly dose of chemotherapy. Chemo was increased when the 6-week radiation period stopped. Radiation was completed in early Aug '06. Alexa went through 9 cycles of chemo. which ended in July 2007.

Clear MRI’s post surgery until May 2008

May 2008 MRI- The cancer is back. As Alexa calls it, this stupid cancer, will be dealt w/ via some form of chemo in combination w/ stem cell therapy. There are “drops” on her spine along with a frosting like coating of cancer cells.

August 2008 Alexa will begin her third cycle of high dose chemo soon. Stem cell harvesting will take place when cycle is complete. Stem cell harvesting and transplant will take place in Columbus.

Feb. 2009 Alexa completed the high dose chemo followed by a stem cell transplant. She was in isolation for 3 weeks in Columbus. In December Alexa had 2 & 1/2 more weeks of radiation to her spine. Next MRI is scheduled for first week in March.

March 2009 MRI- Stable

April/May 2009 Alexa had been experiencing severe leg pain and was no longer able to use her legs.  MRI- The cancer was now worsening in her spine.  There are more tumors and the coating is thicker. We search for more options.

June 2009 Alexa goes to Vermont in hopes to begin an experimental trial.  The MRI results DISQUALIFIED Alexa and we are sent home.  The MRI showed the cancer in her spine is growing and that the cancer is back in her brain.  There is one tumor in the 4th ventricle, and other spots on the brain as well as the brain stem.  No surgery, No radiation, No chemo, no answers.

June 2009 Alexa was put on an aggressive nutritional supplement plan. We continue to search for more options.

July 3rd, 2009 Alexa was very sick and complaining of an excruciating headache.  She was taken to the hospital. In the middle of the night something happened in her brain leaving her unable to communicate.

July 5th 2009 Alexa is home with Hospice care. We have been blessed with days or maybe weeks of extra time with our little hero.

August 6th, 2009 Alexa flew to Heaven on the wings of angels.

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Tammy Waugaman signed Alexa's Guestbook.

Doesn't seem like that long ago, lost my Uncle this last week end to cancer and grandmother had cancer this winter. I truly hate cancer...... I need more of those ... Read more

Candy Belanger signed Alexa's Guestbook.

Thinking of your family and remembering your beautiful Alexa with love...today and every day. ♥  Hugs, prayers & God blessings for all of you!! Read more

Pamela Matthews signed Alexa's Guestbook.

Thought of Alexa this morning.  Wished I would have prayed for you all :( but I am now...She is home...she is safe...but I know it still hurts...Pamela ... Read more

Jackie Hoppe signed Alexa's Guestbook.

Memories and support continue - Jenna had all of her articles/pictures layed out at home last evening - remembering Alexa!  :)   Thinking of all ... Read more

Joe McDonough signed Alexa's Guestbook.

Our prayers are with you, today and always.Andrew's Familywww.caringbridge.org/visit/andrewmcdonough Read more

Wendy Brown posted a new journal entry.

Dad here:Four years - sometimes it seems unreal that Alexa has been in Heaven that long.  She'd be getting geared up for her sophomore year in high school in the ... Read more

Sierra Montgomery signed Alexa's Guestbook.

Alexa is never forgotten. My thoughts and prayers are with you all today. May God hold you all close. Read more

Terri Cook signed Alexa's Guestbook.

I know I'm a dayearly. Just want you all to know that Alexa is remembered!! You & your family are in my thoughts and prayers. Read more

Linda Thomas signed Alexa's Guestbook.

Dear Warren and Wendy,Alexa is surely missed and it's hard to believe it's been four years.  Your hard work in her memory is truly inspiring, and I'm sure she is ... Read more

Shirley Andricks signed Alexa's Guestbook.

You are so right Warren! She has the most holy of holy healings. Perfect body. Perfect peace. Perfect joy!! God bless :) Read more

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