My Story

Alexa was our 4-year-old little girl who was diagnosed with stage IV neuroblastoma on December 12, 2005. She had several rounds of chemo, 2 MIBG therapies and a BM transplant. All unsuccessful. We spent 21 months on experimental therapies to prolong her life as long as possible. On June 25, 2008 she passed away in our arms from an infection. Now she is our angel.

Alexa was our 4-year-old little girl who was diagnosed with neuroblastoma stage IV on December 12, 2005. Alexa received protocol treatment at the Children's Medical Center of Dallas until May of 2006 when it was determined that her cancer was not responding. In July we took her to CHOP in Philadelphia to take part in a clinical study involving MIBG therapy and a bone marrow transplant to try to save her life. Sadly it did not work and the cancer had spread. She was not expected to live past Christmas. In January, we discovered she had a delayed reaction to the treatment, so we tried a Phase II clinical trial involving humanized anti-body therapy. Alexa had a major allergic reaction to the medicine, so we were unable to continue the treatment. We took her back to CHOP for another MIBG therapy and then spent 10 months on a phase II clinical trial oral chemo called ABT-751. In May 2008 she started having fevers and on June 25, 2008 she passed away in our arms in the ICU at Children's in Dallas from an unidentified infection in her lungs. We found out later it had also spread to her liver and her kidneys had lost so much oxygen they were almost in failure as well. There was nothing we could have done. I guess it was her time to go, but I would give anything to have her back.

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crys aigner posted a new journal entry.

Thank you for coming to visit Alexa's Angel journal. This is the story of my very bright, talented, beautiful, strong and courageous little girl. She was full of life and ... Read more

crys aigner posted a new journal entry.

Thank you for coming to visit Alexa's Angel journal. This is the story of my very bright, talented, beautiful, strong and courageous little girl. She was full of life and ... Read more

crys aigner posted a new journal entry.

Yesterday was beautiful. Everything was perfect, as it should be for a princess. The church was filled with pink flowers in honor of our girl. We had a table set up with ... Read more

crys aigner posted a new journal entry.

Zack told me this morning that I had misspelled several words in my last entry. A mistake I hate to make as I am a spelling perfectionist, but that is what my brain is ... Read more

crys aigner posted a new journal entry.

I posted all new pictures and a couple new videos of Alexa's last days. This is the last picture taken of her smiling. It is with her doctor, Dr. Niece. As many of you may ... Read more

crys aigner posted a new journal entry.

We spent a nice quiet night sleeping, waking intermittently to expect Alexa to be standing there by our bedside wanting us to lift her up and put her between us on ... Read more

crys aigner posted a new journal entry.

When I was little I dreamed about all the things I wanted to be when I grew up. I was sure I was going to be famous. I was going to sing on Broadway and light up the big ... Read more

crys aigner posted a new journal entry.

This is Derek, posting for Crys and Zack. Alexa went to heaven at 11:20 AM, in the embrace of her Mommy and her Daddy. Read more

crys aigner posted a new journal entry.

As the day progressed she got worse and worse. She is running oxygen levels at 77 which will eventually kill her. We have to do something.The plan is to turn her all the ... Read more

crys aigner posted a new journal entry.

Alexa is tolerating the turning well. Well-ish I would say. Her stats would be scary for any normally healthy person but for her they are good. She takes about an hour to ... Read more

crys aigner posted a new journal entry.

Around 2am Alexa's stats started to drop. A rush of people and she recovered faster this time. She didn't dip down near as bad as last night so we were relieved about ... Read more

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