Alexander Flegert
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Alec has two very rare syndromes; partial 4q trisomy syndrome and partial 7q deletion syndrome resulting from an unbalanced translocation between the two chromosomes. This has resulted in many birth defects and global developmental delays.

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  SUNDAY, AUGUST 03, 2008 08:58 PM, CDT
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Alec had and still has double ear and eye infections. He was in quite a bit of pain for about three days. He is still uncomfortable but the pain is more manageable. Sadly, like usual, any sickness that occurs strikes his poorly functioning GI tract like a freight train. He has lost quite a bit of weight and is dehydrated from not even being able to hold down sufficient Pedialyte. We will keep plugging away though and keep adding a bit more nutrients and a bit more volume to his diet daily and hopefully we will eventually get his tolerance back to normal. It is just so discouraging because no sooner do I get him to a higher level of gastric tolerance something like this always happens to set us back weeks if not months.
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EMAIL AUTHOR
mekat1@tampabay.rr.com

HOSPITAL INFORMATION
All Children's Hospital
801 6th Street South
St. Petersburg, FL 33701
United States
(727) 898-7451