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We've been getting a lot of emails lately I'm not sure why.  Maybe with ICAS coming up next week or the Christmas season but I just haven't been able to answer them.  Honestly I just don't know what to say.  We are going through the hardest time we have ever had since all this began.  The past few months being in and out of hospitals and everyone being sick has really taken a toll on all of us.  Alan really needs nursing care, aides to help dressing, bathing, toileting and a physical therapist to keep him stretched and moving.  Unfortunately I am the only one to do this and I am burnt to the core.  I'm having to hire help but it's extremely expensive.  

I don't know what the answers are but i just ask that you keep our family in your prayers while we make some incredibly difficult decisions.   And please don't think I'm ignoring you.  Sometimes it's just hard to answer the phone or emails because it's really painful to talk about things.  

This paralysis has taken so much away from our marriage and I just wish I could be more of wife than a caretaker but at the end of the day I'm doing the best that I can do and raise our two precious children and take care of Alan.  The biggest thing we are trying to do is keep the normalcy in our house, especially with this Christmas season upon us.  

We are going to miss so many of you next week at ICAS and wish you all the best for a successful and fun convention.  Enjoy every minute it, except the booth drawing, sorry John, that's just hard to get excited for so early in the morning!  :)  We miss you all so much and we thank you all  for all of your prayers.

Love and blessings,
Jen

"Surely God is my salvation; I will trust and not be afraid. The Lord, the Lord, is my strength and my song; he has become my salvation. With joy you will draw water from the wells of salvation." Isaiah 12:2