I had a good "map" of the beginning of AJ's story written in here, however, CaringBridge changed, and my "map" had been too long. I've been asked to rewrite it.
In 2007, AJ had been "off". After months of being sick, and the local medical professional not finding anything, AJ was rushed to the E.R. AJ was admitted. They, at first, assumed it was Gerd. After watching, we found that AJ would complain of severe head and neck pain. When we brought this to the attention to the Doctor, and he ordered a CT scan. That is when they found the mass in AJ's brain. We were transferred to the local Children's Hospital for an in depth MRI. This MRI showed that AJ had cancer. It started in his brain, the main site being 8 cm in size. However, it spread through the lining of AJ's brain, down his spine and creating a rather large tumor on his tailbone. We were told we were going to be transferred to Children's Hospital of Philadelphia, and needed surgery in 3 days time.
From there, AJ had a very successful Brain Tumor Resection, and was started, shortly after, on Radiation and Physical, Occupational and Speech Therapies. AJ had to relearn EVERYTHING!
He went thru very intensive radiation and chemotherapy. In Febuary 2008, AJ was "labeled" NED...No Evidence of Disease.
After completion of treatment, we have moved to the Fort Campbell, KY area, where AJ is now followed by St. Jude and Vanderbilt Hospitals.
If you would like more details, please feel free to send an email to AJ's mom, at the email link to the right of the page.
Thank you, for your interest, support and prayers!
Today is AJ's 11 month Angelversary. It's hard to believe that time has gone by as quickly as it did. This time, last year, I called a meeting to pursue the DNR. This time last year, I was still hugging and kissing and snuggling my Moo. This time last year, I could hear AJ say that he loved his daddy, sissy and me. This time last year, AJ asked to go home to be with his kitty and dog...but he still wanted to fight. I miss everything about my baby boy. His beautiful heart. His giggle. His hugs. His duck lip kisses. I miss holding his hand. I miss his jokes and pranks. I miss being corrected, when I did something wrong. I miss his spirit, his will, his strength and his love. I am very blessed, having had the pleasure of calling him my son. And as much as I miss him, I am thankful that AJ is free of the pain and torture that made up half of this short life. Our family has been very blessed, having all of you praying, loving and supporting us. Thank you for following AJ's journey.