There is no school on Thursday October 9 2008. That day is Aiden's 3rd birthday. So our family will celebrate that day together. We still have sports that night...but during the day...there is no school. There are different things we do now because of our son.
Some are personal/private. I was asked this past year to join the board of directors of a 501c3 started by another CDH family. It is the Parker Reese Foundation. www.theparkerreesefoundation.com
Parker died of CDH the summer after Aiden (summer of 2006). I was truly shocked I just assumed Parker would live. Her parents had the most beautiful nursery prepared for her-how could she not go home?- I met her mom thru an online community that supports families affected by CDH (expecting/surviving/nonsurviving)
The most amazing things are going on in our foundation. In May the Parker House was donated to be used by families while facing CDH at either UNC Chapel Hill or at Duke University Medical Center both in NC. (http://www.theparkerreesefoundation.com/parkershouse.html)
Scott and I both lived in Raleigh NC before we were married-and actually Raleigh is where we met..and we've been to Duke and Chapel Hill. I hope to add more about what the Foundation and whats been accomplished.
I read the next part in another blog and its appropriate...sometimes people say things that to me make no sense. I think of Aiden everyday...it doesnt seem that long ago. I can still see Megan and Justin at 3 years old (Justin had just become a big brother before his 3rd birthday). He seemed to be such a big boy then! Alot happens in 3 years....
The Brave Little Soul By John Alessi Not too long ago in Heaven there was a little soul who took wonder in observing the world. He especially enjoyed the love he saw there and often expressed this joy with God. One day however the little soul was sad, for on this day he saw suffering in the world. He approached God and sadly asked, “Why do bad things happen; why is there suffering in the world?” God paused for a moment and replied, "Little soul, do not be sad, for the suffering you see, unlocks the love in people’s hearts.” The little soul was confused. “What do you mean,” he asked.” God replied, “Have you not noticed the goodness and love that is the offspring of that suffering? Look at how people come together, drop their differences and show their love and compassion for those who suffer. All their other motivations disappear and they become motivated by love alone.” The little soul began to understand and listened attentively as God continued, “The suffering soul unlocks the love in people’s hearts much like the sun and the rain unlock the flower within the seed. I created everyone with endless love in their heart, but unfortunately most people keep it locked up and hardly share it with anyone. They are afraid to let their love shine freely, because they are afraid of being hurt. But a suffering soul unlocks that love. I tell you this - it is the greatest miracle of all. Many souls have bravely chosen to go into the world and suffer - to unlock this love – to create this miracle - for the good of all humanity." Just then the little soul got a wonderful idea and could hardly contain himself. With his wings fluttering, bouncing up and down, the little soul excitedly replied, "I am brave; let me go! I would like to go into the world and suffer so that I can unlock the goodness and love in people’s hearts! I want to create that miracle!" God smiled and said, "You are a brave soul I know, and thus I will grant your request. But even though you are very brave you will not be able to do this alone. I have known since the beginning of time that you would ask for this and so I have carefully selected many souls to care for you on your journey. Those souls will help you create your miracle; however they will also share in your suffering. Two of these souls are most special and will care for you, help you and suffer along with you, far beyond the others. They have already chosen a name for you.” God and the brave little soul shared a smile, and then embraced. In parting, God said, “Do not forget little soul that I will be with you always. Although you have agreed to bear the pain, you will do so through my strength. And if the time should come when you feel that you have suffered enough, just say the word, think the thought, and you will be healed.” Thus at that moment the brave little soul was born into the world, and through his suffering and God’s strength, he unlocked the goodness and love in people’s hearts. For so many people dropped their differences and came together to show their love. Priorities became properly aligned. People gave from their hearts. Those that were always too busy found time. Many began new spiritual journeys – some regained lost faith – many came back to God. Parents hugged their children tighter. Friends and family grew closer. Old friends got together and new friendships were made. Distant family reunited, and every family spent more time together. Everyone prayed. Peace and love reigned. Lives changed forever. It was good. The world was a better place. The miracle had happened. God was pleased.
