Adrian 1 YEAR and 4 MONTHS IN REMISSION!!!!!!
It’s been so long since I’ve last updated but like I’ve said before no news is good news. Adrian’s Christmas was great; we spent it at home with my sister, niece and nephew. They all had a great time, New Years was also nice but Adrian was sad to see his nauntie leave. Life got back on schedule and Adrian started preschool again, he really enjoys going and talks about how much he loves his friends. Over the Christmas break Tito helped Adrian work on his letters, in just a 2 weeks he went from scribble to writing his name clear enough to read. His teacher was very proud at how much improvement he’s shown in such a few amount of days. I also finally got rid of one of his security items, his pacifier; he grew up so much after doing that. I should have done it sooner but it was the only thing that would make all his boo boos better. I felt guilty but I knew it was time. He actually did pretty well and only asked for it a few times in the beginning.
Now the only thing we need to work on is the way he deals with being told “NO” and how to share and take turns. He’s doing ok with the sharing and taking turns although sometimes you have to ask a few times. The saying “no” however has been very difficult; even though the way he gets disciplined has never changed he still has a hard time. I’m not sure if it’s the steroids or his age. This is something that we are going to be working on when he goes to see his therapist. Last week she got to see what I mean about Adrian’s mood swings, so she suggested some things to work on at home.
Adrian is also very excited about going to a big boy school; his teacher and therapist will be working together to get Kinder Ready. Adrian’s health has been good up to this past week. He has had a terrible cough with phlegm I took him to his pediatrician and they gave him Zithromax and Robitussin DM. Hopefully this will clear up soon. This seems to be going around so try to keep your babies bundled up and away from people coughing!!! Last month we when to Children’s Oakland for his monthly visit, he had his procedure and again got sick from it. It seems like lately each time we go he gets sick. This month there was no procedure, that’s always nice…
We talked to Dr. Beach about his broviac and my concerns about him having in Kindergarten. We both pretty much agreed that it would be good to have it taken out before school starts. So in the mean time they will be practicing on administering the Vincristine through his veins on his hands. I know this will be difficult for him to cope with but we have to do it. They will be using a numbing lotion to help and if he truly has a hard time then they will consider using Atavan to calm him down but this is something they want to avoid doing. Next month they will be trying it for the first time, I requested his favorite nurse to do it for him. So we’ll see how that goes, his counts have been good and stable…. thank God. I’ve had a hard time lately I suddenly get this sense of fear come over me and I constantly check Adrian’s body for any signs of Leukemia. Not having his labs drawn every week has been difficult and I’m still not used to it. Having to wait an entire month just about kills me. It’s a huge relief once we get the results but that fear and doubt is constantly there. I wonder and hope if there will ever be a day when I will no longer feel this way. Hearing about so many children lose their lives to cancer whether it’s the same type as Adrians or not still makes me extremely sad and I pray that I will never have to be told that “there is nothing more they can do” but sadly there is that possibility, how do these parents cope with such a loss? I don’t think I could and I admire all those parents for being able to continue on.
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