My Story

Welcome to our CaringBridge site.Adrian was 3 yrs old when he was diagnosed with High Risk Pre-B Acute Lymphoblastic Leukemia. At age 5, a little over 2 years in remission...Isolated CNS Relapse 5/28/2009. So, be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook. Click below to read about how he was first diagnosed.

Journal

Friday, July 3, 2009 8:52 PM, PDT


Phase 2

Week 5

Day 5

Adrian has been doing well, aside from fevers, and finally the fevers stopped late last night. We were also moved to a room on 5-South since he is neutropenic. Drs have also continued with the antibiotics just as a preventative. So as Drs did their rounds I asked what the magic number was for us to be able to go home and Dr basically said that 1. His counts have to look like they are going up at least for three days in a row. 2. No fevers 3. Cultures continue to come back negative.

Today he is receiving his first transfusion of many to come. They decided to give him blood today and then depending on counts tomorrow he might get platelets. Adrian seems to be adapting ok with him being here and all but he hasn't ventured out of the room since he fell. He just seems to get tired easily and he is walking really slow.

The ARA-C also caused some almost pimple-like to show up around his mouth and forehead. Drs don't seem concerned about that. Although he just got one on the bottom so the resident ordered some stronger butt cream to help. It hurts him to wipe so hopefully the cream will help. It could also be the drop in counts that is causing the ones on the bottom so I just have to watch it.

Other than that all is well I guess. I really wish we were home but we can wait until Adrian's body is ready. So it all begins.....

Please continue to pray that he doesn't get any fevers and that his counts go up quickly.  

Guestbook

Guestbook signed 2 times today.


Please make sure you sign Adrian's Guestbook, as he gets older I'd like for him to read all the wonderful, thoughtful words you have all written for him.

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E-MAIL AUTHOR

sonia18_209@hotmail.com

HOSPITAL INFORMATION

Children's Hospital and Research Ctr at Oakland
Oakland, CA
United States