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Aden’s Story

It was Easter Sunday 2008 and Aden our youngest of five and only a month from his golden birthday didnt want to eat his favorite ham, more urgently he had a yellowish tint that developed around his eyes....On Saturday nite March 29th we discovered Aden - only 4 years old had Cancer.

Aden endured three years and three months of chemotherapy which ended in July 2011. He had a complete remission.

In October of 2013 Aden was complaining of headaches and backaches. A scan of his blood showed a reduced platlet count. Because of his history the clinic decided to do a bone marrow biopsy. On November 19th 2013 we discovered his cancer / acute lymphoblastic leukemia had returned isolated in his bone marrow.

Team Aden is led by his mom Lorelie along with dad Mike Sr. His sisters
Alexa, Allie and Alea and his brother Mike Jr. Along with his niece Audree Sky and her dad Zach (roni) and grandma Ethel in Illinois - uncle David Anthony in Illinois and Uncle Steve and Aunt Sue and cousins Kyle and Ryley. Please post your comments!!!!! 

Our motto "we beat it once we can do it again!"



Latest Journal Update

Children's Hospital - long day

We had a full day w Aden in Denver today. Met w Dr Maloney (no baloney Maloney as Lori calls her). She was really concerned about Adens back lump after examining him and sent us to radiology and ultrasound. Amazingly its a lump of fat - no tumor - no leak - no nothing. It's especially weird but he just developed a pocket of fat in a unusual space. Unreal but we are thankful it's nothing. As I said to Lori "were owed some nothing's after having years of something's"....his headaches are probably being caused by the chemo.




Chemistry:


Wbc 2,500


Platlets 211k


Hemo 13.7




She made no chemo changes stating "he's just too high risk"....we are going to medicate him with zyprexa the day before we give him the huge methotrexate dose every week (weds). She feels he's not tolerating it well but again refused to back anything off.




Aden also had a leg scan - he walks poorly and she wanted to rule out a vascular necrosis. He doesn't have that but he does have osteopenia - which is the precursor to osteoporosis. This is thinning of the bone mass / in Adens case caused by 5 years of high dose steroids. Again, doesn't want to pull back the steroids but wants to watch the scans every 3-6 months on his legs.
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Comments

2 Comments

Theresa Koene
By Theresa n Phil Koenes n Cottier kids
Glad re it's just fat/
Amy way to combat with extra calcium 👍
Bless his heart
Julie Romano
By Julie Romano
Poor little guy! Glad the lump is just fat - but it's still weird. Steroids! UGH!!!