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My Story

It was Easter Sunday 2008 and Aden our youngest of five and only a month from his golden birthday didnt want to eat his favorite ham, more urgently he had a yellowish tint that developed around his eyes....On Saturday nite March 29th we discovered Aden - only 4 years old had Cancer.

Aden endured three years and three months of chemotherapy which ended in July 2011. He had a complete remission.

In October of 2013 Aden was complaining of headaches and backaches. A scan of his blood showed a reduced platlet count. Because of his history the clinic decided to do a bone marrow biopsy. On November 19th 2013 we discovered his cancer / acute lymphoblastic leukemia had returned isolated in his bone marrow.

Team Aden is led by his mom Lorelie along with dad Mike Sr. His sisters
Alexa, Allie and Alea and his brother Mike Jr. Along with his niece Audree Sky and her dad Zach (roni) and grandma Ethel in Illinois - uncle David Anthony in Illinois and Uncle Steve and Aunt Sue and cousins Kyle and Ryley. Please post your comments!!!!! 

Our motto "we beat it once we can do it again!"



Feed

Mike Knar posted a new journal entry, "Dr Hunger".

Had a lengthy conversation with Dr Hunger covering Adens care ahead....He said the team was pleasantly surprised but shocked with the zero MRD result. The feeling was that ... Read more

Mike Knar posted a new journal entry, "What's next now?".

A colleague of mine asked "so what's all this mean now with a negative mrd?"Well Aden still has about two years of scheduled chemotherapy yet to go under the relapse ... Read more

Mike Knar posted a new journal entry, "MRD explained....by St Jude's".

Q: What is minimal residual disease?A: It’s the presence of leukemic cells in numbers so small that they can’t be detected microscopically. Although microscopic ... Read more

Mike Knar posted a new journal entry, "That was a great, weird night".

We get the call from Denver on Adens mrd being zero and then we discover out eldest daughter is rushed to the hospital with heart problems an hour later - everything is ... Read more

Mike Knar posted a new journal entry, "Alexa discharged".

Stable and sent home to see her doctor on Monday. They want to better catch the issue on a heart monitor. Read more

Mike Knar posted a new journal entry, "Bump in road now with Alexa".

So Alexa was telling me earlier she was having weird chest pains...I told her based on her history to immediately go in and have an EKG done. She went at 5p today and was ... Read more

Mike Knar posted a new journal entry, "More on the ZERO".

I think even Dr Maloney who called me tonight with the results was shocked. It is not a normal occurrence to get a zero 8 months into an intensity on a relapsed ... Read more

Mike Knar posted a new journal entry, "The MRD is IN!".

Too many people crying......will give more later.0.00000000000000Unbelievable!!!!!!!!!' Read more

Mike Knar posted a new journal entry, "Some news from Children's..".

From Dr Kelly Maloney this morning...."Bone marrow is M1-no evidence of leukemia cancer blasts on morphology.  We are still awaiting MRD."Again the MRD is the gold ... Read more

Mike Knar posted a new journal entry, "Methotrexate".

When they did the biopsy yesterday they also did a lumbar spinal puncture - where the check the spinal fluid for cancer cells AND THEN inject a small amount of ... Read more

Mike Knar posted a new journal entry, "Waiting game has started".

Biopsy and lumbar puncture / uneventful. They gave Aden a bit too much twilight and had to support him with oxygen - he was really knocked out then outta nowhere - boom he ... Read more

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