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My Story

James Avery Clark, known to family and friends as Rex, was born June 07, 2012 at Gaston Hospital to mom, Charlotte, dad, Alex and big brothers Austin and Gabe Clark. Rex weighed 7 lbs 12 oz and measured 20.5 in long. Rex's favorite thing to do is play in the water. His eyes light up and his sweet smile shines.

At Rex's eight weeks check up, August 08, 2012 the doctors discovered low muscle tone. Rex has since been diagnosed with SMA (spinal muscular atrophy), type 1. Currently, Rex and his family are thankful to be home and enjoying the precious time God has given them as a family. His condition can not be helped through medicine but only through God and prayer.

For more information,
Please also visit www.rexsride.org.


Charlotte Clark posted a new journal entry, "January 27".

I sure do miss my son! I love you my little T-Rex! Read more

Beth McCormick signed James (Rex) Avery's Guestbook.

You guys do not know me but I wanted to tell you that you are still in my prayers.I prayed for little Rex until his death almost 3 months ago .A friend of mine Patty Hope ... Read more

melisa haller signed James (Rex) Avery's Guestbook.

You guys continue to be in our daily prays. Now that you have made us aware of SMA, I've been sharing other SMA stories on FB. What a great way to bring people together ... Read more

melissa jackson signed James (Rex) Avery's Guestbook.

I miss him too. Not a day passes that I don't think of him many times. I can't comprehend how much you miss that sweet face. I pray for you, Alex, Gabe and Austin every day. Read more

James Brown signed James (Rex) Avery's Guestbook.

It's hard to believe it's been over a month without my newest grandson. I still have times when I just cry seeing his special smile in pictures or my memories. I always ... Read more

Charlotte Clark posted a new journal entry, "January 27".

I sure do miss my son! I love you my little T-Rex! Read more

Nicole Strain signed James (Rex) Avery's Guestbook.

Dear Rex, Not a day goes by that I don't think of you and how you touched my heart. I keep your picture on the front of my phone so that I can see you everyday. I miss ... Read more

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