My Story

Hello family and friends,

I'm not sure how I should start this, it just seems so surreal that I'm writing to you all and what I have to say to you. I'll try my best to explain what is going on with me and how serious this sudden development is.

Love you all,

Darrin and Gorp

Journal

Friday, August 15, 2008 1:17 PM, CDT


Hi everybody!!,

Just a quick update...

My youngest sister {6 years younger} is having back surgery. {man, enough with surgerys this year!!} She is doing well but, walking into Swedish Hospital again was hard for me. This is where Dr. Gold told me that the only thing they could do for me is repeated surgerys until I die. He said that Dr. Sugarbaker would give me a pie in the sky speech. {By the way, pie in the sky means utterly useless} Alot he knew!!! I'm glad I fought so hard to get to Dr. Sugarbaker. Even then I was told I'd never get to Dr. Sugarbaker...How wrong they were.

I just got off the phone with Ilse {Dr. Sugarbakers wife and RN} at lunch. I had called Ilse about some lingering surgery issues from the 4 surgery I had this year and found out what my tumor markers were before and after my MOAS.

My Ca 19.9 in Febuary was 1,100

now it's 31.

My CEA in Febuary was 205.

now it's 2.6

WOOHOO!!! Let's hope they stay that way.

Cheerio!

Darrin


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HOSPITAL INFORMATION

Meridian - K. Hovnanian Children's Hospital
1945 Route 33
Neptune, NJ 07753
United States
732.775.5500