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My Story

On Monday, May 9th, 2011, Devon LaPrade, age 14, the son of Michelle DeLorenzo & David Laprade was given the devastating news that he has a rare and inoperable brain tumor. Devon was diagnosed with DIPG, Diffuse Intrinsic Pontine Glioma. This is a form of cancer which affects the pons (middle) portion of the brainstem, rendering nervous system function. Affecting primarily children, it is the rarest of pediatric brain tumors, with 150 to 200 children diagnosed annually. This type of tumor unfortunately has a poor prognosis, and there has been limited research performed. We are awaiting Devon's acceptance into a clinical trial treatment program, combined with standard radiation to improve symptoms.

       Devon attends Draper Middle School, in Rotterdam NY, where he is in 8th grade. He enjoys all sports basketball, wrestling, and baseball. He has recently played soccer for the school's modified team, #15. He is the brother of David, Gabby, Alexa, and Michael.

      Fundraising groups have been tentatively set and working underway! Michelle will be updating the site regularly with information regarding Devon's treatments.

A fund to help for medical and related expenses has been set up for the family at:

 

Sunmark Federal Credit Union

C/O Believe in #15 fund for Devon LaPrade

251 Saratoga Road

Glenville, NY 12302

 

Donations can be accepted at any Sunmark location.


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Michelle DeLorenzo posted a new journal entry.

Hello everyone, I know that it has been awhile.  Alot has happened since the last time I had a chance to post.  In August Devon started to decline in his progress.  He ... Read more

kim hunter signed Devon's Guestbook.

We are so sorry to hear of Devon's passing.  Our hearts go out to you and your family. In memory of our son Zac, we offer memory chests to families with and angel child. ... Read more

trennia hedges signed Devon's Guestbook.

Keeping you and your family in my prayers.Praying you have a blessed CHRISTmas. Read more

Stacey Knisley signed Devon's Guestbook.

I am so sorry for your tragic loss at this time. My thoughts and prayers are with you. Read more

edward Burns signed Devon's Guestbook.

Devon Fly High Fly High may you rest in peace!! Jessie sent me NEGU I'm deeply saddened to hear of you gaining your Angel wings, to Devon's family may God grant you the ... Read more

Lisa D signed Devon's Guestbook.

Jessie sent me, sending you much love Devon. I'm so sorry to learn that you have now gained your angel wings :( I'm sending love and thoughts from the UK to you and your ... Read more

Becky Veverka signed Devon's Guestbook.

May the love of God surround you in this most difficult time.  I'm sure your precious son is rejoicing in heaven and feeling no more pain.  Just know that we are keeping ... Read more

Rhonda Zink signed Devon's Guestbook.

I wanted to take a moment to let y'all know how sorry I am to hear the news about Devon ... I will NEGU keeping the family in my thoughts and in my prayers ... RsmZ ... Read more

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