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My Story

Welcome to our CaringBridge site. It has been created to keep friends and family updated about our loved one.

My Story is the introduction to our CaringBridge site.

Be sure to read the latest in the journal, view the photo gallery, and drop us a line in the guestbook.



Our daughter Brooklyn Ann was born on December 9, 2002 she was our 1st child and was 3 days late and 8.11lb's Big and healthy we thought. The nurse heard a murmur and the Dr. said no she heard wrong there is nothing wrong with your daughter. So we took her home. She was 9 days old when she turned gray and let out an adult cry. I called that Dr. and at 6:15 at night we went to his office. He then tells us she might have an infection and we should take her to the hospital. He told my husband to take us because we would be faster than an ambulance. By the time we made it to the hospital 20 min's latter she had crashed. There were 13 people around my baby shaving her hair and working on her. We were moved to the private room where they told us she prob. will not make it. But a there was a dr. that was able to run a line through her umbilical cord to her heart and keep her stable so we could fly her to Ga. children’s hospital.
She had 3 open heart surgeries by 8 months old, she was tube feed for the 1st year due to her left vocal cord that was paralyzed from the heart surgeries. She is now eight and even though we were told that her mitral valve would last till she was 60 years old it is now failing. She has been at a severe rate for 4 years now. Her body is doing well with a sick heart so the drs will not fix her until the body starts to fail. They need to put a mechanical mitral valve in her that will have to be replaced around her late teen years. She is also due to have her cadavers valve replaced to a bigger one as she grows. As of now her cadaver valve is from a 6 month old.
Brooklyn is sleeping 13-15 hours a day. She has a learning disability but other than that she is running and playing with her friends, you would not know she is waiting for her 4th OHS if you saw her on the streets. Brooklyn sees double vision so wears prism glasses when reading and her left ear is not connected to the brain which means background noises causes her to not hear well at all so she uses an FM system. Brooklyn has had 2 non related heart surgeries in the last 2 years also. She is one tough girl! Steven and I know how blessed we are to have her each day and we are grateful for everyday she is with us. My prayers go out daily to all of the families who have lost a child to CHD<3<3<3
Steven & Alison McGough

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Alison McGough 311 Patricia posted a new journal entry.

It's hard to believe Brooklyn my beautiful little artist is 10 years old! Tomorrow she goes for yet another echo.... I wonder many does this make? 60, 80, 100??? There's ... Read more

Alison McGough 311 Patricia posted a new journal entry.

It's hard to believe Brooklyn my beautiful little artist is 10 years old! Tomorrow she goes for yet another echo.... I wonder many does this make? 60, 80, 100??? There's ... Read more

Alison McGough 311 Patricia posted a new journal entry.

Yesterday at work (The Blake at Malbis) we had a Healthy Heart fundraiser for Hope 4 Tiny Hearts. We raised $1,000.00! We served a free lunch, had Dr. Trice, a local ... Read more

Alison McGough 311 Patricia posted a new journal entry, "Update long awaited!".

Wow its been a long time since I last updated! Brooklyn has had 2 non related heart surgreies in the last year &amp; a half, one was an EEG and a biposy they found ... Read more

Jenna Fowler signed Brooklyn Ann's Guestbook.

Hi Brooklyn My name is Jenna and I came across your site. U are a beautiful, precious gift, and special earthly angel.  U are a courageous, strong and determined ... Read more

Gwen Kimbro signed Brooklyn Ann's Guestbook.

Hi Brooklyn, I think you are a beautiful young lady and enjoyed reading all the ways you help hearts. Best wishes in all you do! Read more

Mary Atherton signed Brooklyn Ann's Guestbook.

Loved reading Brooklyn Ann's story!  Wow...she has come so far!  I love her bows!!!  Our family will be praying for her!  She is a beautiful little girl!  All the ... Read more

Steven Fugate signed Brooklyn Ann's Guestbook.

It's great to to see Bam and the rest of the kids getting all of this support. Sounds like they all have done a great job......especially Brooklyn..........what a kid !!!! Read more

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