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- your browser may not have loaded the new page. Click here to sign the guestbook. Click here to go back to the main page. hiiiiiiiiii all friends of chandka medical college larkana batch 27 dr.aurangzeb <sardaraurangzeb@yahoo.com> rawalakot azadkashmir, kashmir pakistan - Thursday, May 28, 2009 9:29 AM CDT Hi Savannah! You don't know me in person, but you know me in spirit. I am Aidan's Aunt and grew up with your mom. I wanted you to know that I think about you and you are in my prayers. You are so beautiful and from everything I know, such a wonderful person. We are blessed to have you in this world; you make it a better place where we can all understand what love truly is. Oh, and I have to tell you that you are so lucky to have your own web page!!! :-) Elaine Lucca Carfley <elcarfley@yahoo.com> Apex, NC USA - Friday, January 23, 2009 7:52 AM CST Merry Christmas darling girl! I love you! Kelly warrenton, va usa - Thursday, December 25, 2008 7:49 PM CST Hi Vannie! I just wanted to say that I miss you@!!! Angie Williams <awilliams@fcps1.org> - Monday, June 2, 2008 1:00 PM CDT Hey Vannie it's Aidan! I miss you so much! I wish I could be down there to see you guys more often. I saw your pictures and you have grown up so much. So has Levi! I can't belive he's four!!!! Oh and what's up Cam? How are you doing? I can't wait to come down there this summer possibly. If you want you can call me. You can ask your mom for my number. Cya l8ter! Aidan Whitney <intothedeepaqua@aol.com> - Tuesday, May 27, 2008 7:07 PM CDT Hi Savannah!!! It is your long lost Aunt J and I miss you so much! Your pictures are so beautiful and your smile and eyes capture my heart every time I see them. I hope everything is going well for you and I hope that I can get down there to visit you soon. I haven't seen you in so long. I love you very much, sweet angel. Take care. Give Levi, Cam, your mommy, daddy and the dogs a big hug for me!!! Aidan wants to type you a message too so I'll go for now. Love ya! Jessica Fischer - Tuesday, May 27, 2008 7:00 PM CDT I LOVE the pictures on this page. You have a great looking family! And of course a BEAUTIFUL little girl! Hugs from Indiana, Kelly & Brooklyn (2RS) Kelly Butler <kellyandcharlie@yahoo.com> Angola, IN 46703 - Wednesday, February 20, 2008 7:39 PM CST I hope all is well with your beautiful girl. All the best. Robin Brunet <robinb@start.ca> Bradford, Ontario Canada - Tuesday, January 22, 2008 7:53 AM CST ho ho ho ho ho ho ho love you girlie... grammy and pawpaw <mrsbezly@comcast.net> the plains, va usa - Wednesday, December 12, 2007 4:14 AM CST we love you savannah grammy and pawpaw <mrsbezly@comcast.net> the plains, v usa - Tuesday, November 27, 2007 10:12 AM CST Happy Belated Birthday Savanna!! All the best. Robin Brunet <robinb@start.ca> Bradford, Ontario Canada - Monday, October 22, 2007 11:15 AM CDT Hi Savannah, You are very beautiful little girl, I am a Grandma to Rebecca 7 years old with Retts, we call her Becca. I love her dearly as I know your family love you. You Angels were sent to us to give us a treasure beyond all riches, to give the gift of loving someone more that you could ever imagine. Precious girl you are as perfect as anything that God has created. Love Becca's Nana Nancy Haines <NHaines@aol.com> Lutz, Fl USA - Tuesday, October 9, 2007 11:44 PM CDT Happy Birthday Savannah (a day late)!! You are such a beautiful girl! I have a 3 year old who was diagnosed with Rett Syndrome 6 months ago. Come visit her site when you have time www.caringbridge.org/visit/darcipoppen. We vacationed in Va this summer, 1st time we have ever been there. We had a reunion in Charlottesville, stayed in Williamsburg, and went to Va Beach one day. You tell your parents to have a awesome time in Hawaii, they deserve a great vacation! Keep "shining" sweet little girl!! Peggy Poppen <dppoppen@gridcom.net> IL - Tuesday, October 9, 2007 10:34 AM CDT ![]() MyHotComments Love, Rick, Desiree, Ricky, Sammy & Hannah Nichols Gordonsville, VA USA - Monday, October 8, 2007 10:11 AM CDT [IMG]http://i165.photobucket.com/albums/u68/NSUDemonChipmunk/Happy%20Birthday/balloonsbirthdayanim.gif[/IMG]happy birthday savannah. we had a ball yesterday with you and your family at the cookout just for you. seeing how much you loved all your presents made us so happy. i am so glad you enjoyed everything and everyone! we love you and look forward to the next week with you and your brothers...see you this afternoon...hugs...[IMG]http://i165.photobucket.com/albums/u68/NSUDemonChipmunk/Happy%20Birthday/musicalbirthday.gif[/IMG][IMG]http://i170.photobucket.com/albums/u260/Lil_blue_mex_2007/Happy%20Birthday/thbirthday-12.gif[/IMG] grammy and pawpaw <mrsbezly@comcast.net> the plains, va usa - Monday, October 8, 2007 6:49 AM CDT I know we are a couple of days early, but we don't want to miss it and also want to be some of the first to wish you HAPPY BIRTHDAY!! Uncle Wes and Aunt Sue Annandale, va us - Saturday, October 6, 2007 7:45 PM CDT we love you girlie......[IMG]http://i101.photobucket.com/albums/m60/ocalaqt/4053-1.gif[/IMG] grammy and pawpaw <mrsbezly@comcast.net> the plains, va usa - Friday, September 28, 2007 7:22 AM CDT i love you so much...your new hair do is gorgeous. i know you are excited about school. i will come one day to school and eat lunch with you. you are my shining star and my inspiration. hugsssssssssssssssssssssssss grammy <mrsbezly@comcast.net> the plains, va usa - Wednesday, August 29, 2007 4:12 AM CDT hi savannah, grammy and pawpaw will be going away for a wk but we wanted you,lev,cameron to know how much we will be thinking about you and love you so much. there wont be a second that you wont be thought about with love. cant wait till our trip with you to natural bridge next mo. love you beth and chris....hugs grammy and pawpaw <mrsbezly@comcast.net> the plains, va usa - Wednesday, August 8, 2007 2:18 PM CDT Hi Savannah, Thank you so much for telling me about your website page. It is beauiful!!! You are beautiful!!! You are such a big inspiration to all people. Your beauty, grace, and strength shine through your bright blue eyes. I hope you continue to touch people with your outgoing personality and joyful spirit. Keep your head up and stay the way you are! We love you and we're cheering you all the way! Much Love and Respect, Dana Hamm Dana Hamm <danahamm007@yahoo.com> Los Angeles, CA USA - Tuesday, July 31, 2007 0:06 AM CDT Hola , tengo una niña de 5 años con Rett,llamada Hasne y la verdad me encantó ver a Savannah, es una motivación esa página para padres como nosotros, saludos. Jorge Bulos <sjorg_bulos@hotmail.com> Pachuca, Hgo. México - Tuesday, July 24, 2007 9:36 PM CDT Thank you so much for allowing Shelley and I to stand on your CaringBridge. Weloved reading and feeling The Woman in the Mirror...... by Cheryl Veenstra God Bless your family, and what a beautiful family it is. Joan Gonzales and Shelley Knight <twojhood@cs.com> Beaverton, OR USA - Saturday, July 14, 2007 3:40 PM CDT Hi Savannah~ Ricky, Sammy, and Hannah really enjoyed spending time with you guys. Sammy has been talking non-stop about all your pretty things. She thinks your a true PRINCESS!!! We hope to get together soon. We have just been so busy with doctor appointments and getting ready for school. They go back on August 13th...so not to much longer. And Hannah is suppossed to be going to preschool too. Talk with you soon!!! Hope everyone is doing well, and enjoying summer! Love, Rick, Desiree, Ricky, Sammy, and Hannah Nichols Gordonsville, Va USA - Wednesday, July 11, 2007 1:32 PM CDT first time visiter to site wishing you all the best will keep you in my prayers teresa Teresa D'Avi <tdavi97@yahoo.com> Winston Salem, NC USA - Saturday, July 7, 2007 3:31 PM CDT Hi Savannah.I hope you had a nice 4th of july.I also have a 12 yr niece that has the same thing as you.Keep smiling because you have a beatiful smile. phyllis white <Phyllann54@yahoo.com> Amherst, NY USA - Saturday, July 7, 2007 7:41 AM CDT good morning savannah....we love you so much and will miss you this wkend but next wkend we will plan something especially for you. we hope you are having a good day today and that you are feeling good. your smile lights our life everdayand we are so blessed to have you. you are our inspiration. love and lots of hugs to you. grammy and pawpaw <mrsbezly@comcast.net> the plains, va usa - Friday, July 6, 2007 3:53 AM CDT Hi Savannah! I'm sorry to hear that you did not win the contest. I will be checking later for an update. Love and hugs to you all, Sami Philippians 4:13 www.caringbridge.org/visit/sami Sami <samlloydmiller@gmail.com> Minnesota United States - Tuesday, June 12, 2007 8:11 PM CDT Savannah reminds me of a another girl that also has rets. My prayer are with her and the family. Please keep me posted on her progress. Thank you Jean Jean Westrick <Jeankay55@aol.com> Fort Wayne, In USA - Friday, June 8, 2007 5:22 PM CDT savannah its kasey from the fire queens in remington we both should have won our age divisions i belive we worked very hard!you are such a pretty girl!i would love to see you again girly!you are a very special person and could brighten anyones day! Kasey Brooke Williams <Misspageantchick@aol.com> Bealeton, va usa - Thursday, June 7, 2007 2:31 PM CDT In our eyes Savannah should have won - she is beautiful. Kasey has talked about her so much since the parade and so called crowning. It was a joke and so unfair. I love your web site. God will keep you and your family strong and his arms wrapped around you at all times. Connie Williams (Kasey) <williamscss@aol.com> Bealeton, va USA - Thursday, June 7, 2007 10:44 AM CDT Savannah is a beauty!! All the best. Robin Brunet <robinb@start.ca> Bradford, Ontario Canada - Tuesday, June 5, 2007 1:19 PM CDT Savannah is not only a PRINCESS but also an ANGEL! Hope Saturday was a fun day for her either way. Love Lisa Lisa Compton <lisamcompton@hotmail.com> Gainesville, VA USA - Monday, June 4, 2007 6:46 AM CDT good morning savannah! well, today is the day for the parade...i will be down early to help with getting you dressed. i have asked a photographer friend to come and take special pics of you to put on his web page. i will be there on sat to see you crowned as jr princess. we are so excited for you. we love you so much...see you later...hugssssssssssgrammy and pawpaw grammy and pawpaw <mrsbezly@comcast.net> the plains, va usa - Friday, June 1, 2007 3:59 AM CDT hi savannah, i hope you win princess contest at the carnival. maybe we will see you there. we love you and your family very much. we spent this day with your grammy and pawpaw. love, ethel and nelson slack ethel and nelson <mrsbezly@comcast.net> the plains, vs usa - Monday, May 28, 2007 3:14 PM CDT What a beautiful family you have. Savannah is a beautiful girl. We wonder why some have challenges and trials in life but God is full of grace and mercy and we will know the reason one day why some of us have to walk the hard road. I have a nephew who suffocated with pastic pants when he was 6 months old and has been in an institution all his life(25yrs old now he is blind and new talked or walked but we love him dearly as you do your little girl. I lost my daughter six months ago to cancer and her oldest daughter is 17 with wegeners granulomatosis and is on chemo drugs but God has never left us and is with us every day. God bless you and all your lovely family. Mary Holland Victoria, BC Canada - Friday, May 25, 2007 10:47 PM CDT Hey Vannie! i miss you!!!!!!! Angie <awilliams@fcps1.org> - Tuesday, May 22, 2007 1:19 PM CDT Hi Savannah!!! We miss you so much! We're glad to hear that you are able to go to school now. We bet you are having so much fun with your teachers and friends! We saw your latest pictures on your site and you are so beautiful, as always! Think you are looking more and more like mommy every day! We hope you will come and visit soon or that we can come down there and visit you. We wish you all the best and we love you very much!! We miss you!! Keep smiling with that gorgeous smile & those sparkling, beautiful blue eyes! Tell those wonderful brothers, mommy & daddy that we said "Hi!" and that we miss them, too! Love, Aunt J, Uncle Mike & Aidan Lititz, PA USA - Friday, May 11, 2007 9:00 AM CDT ![]() Hey you guys!! Hope all is well... one of these days we will chat again! Talk with you soon.. Jerimarie and Daphni Jo Jerimarie and Daphni Jo <irbyfam@email.com> Cle Elum, WA USA - Thursday, May 10, 2007 7:42 PM CDT Hi Savannah (and Frances)! Don't know if you remember me, but I wrote a story about you for the Fauquier Times-Democrat about two years ago. When I visited, Levi was a little baby, but Draco was just as huge! Anyway, I was just thinking about you, and decided to check up on the family on the journal. I'm so glad to hear you're all doing so well! I'm so excited that you're going back to school! I moved to San Francisco last fall and am an editor at San Francisco Magazine. You should visit California sometime. I have so much fun playing at the beach with my two dogs! Well I hope to hear from you soon. Big love to the whole family! Rebekah Stone San Francisco, CA USA - Wednesday, May 9, 2007 3:02 PM CDT I am a Special Education teacher currently preparing for a conference for a little girl with RS who will be entering our school next fall. In searching the web in an attempt to learn about RS, I discovered your site. It is really awesome! Your daughter is beautiful! Beth Hetzer Russellville, AR USA - Sunday, May 6, 2007 1:48 PM CDT ![]() ![]() Jerimarie and Daphni Jo Irby <irbyfam@eburg.com> Cle Elum, WA USA - Wednesday, April 25, 2007 9:48 AM CDT What a beautiful website! Thanks for sharing with me. I'm so happy Savannah is back in school. :) Kristy Hull (I work with Savannah's grandma.) Culpeper/Warrenton, VA USA - Wednesday, April 25, 2007 7:40 AM CDT Hi Savannah,I am so happy you are going back to school. I have a 3yr old granddaughter that also has RS and she likes to go to school. Have a super day. You and your family are in my prayers. Nana to Jadealexis Olive <craftyladybug63@yahoo.com> Grove City, Oh Franklin - Wednesday, April 25, 2007 6:06 AM CDT GOOD MORNING LOVELY SAVANNAH! WE ARE SO HAPPY THAT YOU ARE BACK IN SCHOOL WITH YOUR FRIENDS. GRAMMY ENJOYED TAKING YOU TO THE DANCE AND ALL THE FRIENDS WE MET THERE. THEY LOVE YOU SO MUCH AND LOOK FORWARD TO SEEING YOU. WE LOVE YOU SO MUCH AND ARE SO PROUD TO BE YOUR GRAMMY AND PAWPAW. WE ARE SO BLESSED TO HAVE YOU,CAMERON,LEVI IN OUR LIVES. WE WILL SEE YOU SOON. HUGGGGGGGGGGGGGGGGGGGGGS....GRAMMY,PAWPAW grammy and pawpaw <mrsbezly@comcast.net> the plains, va usa - Wednesday, April 25, 2007 3:53 AM CDT Hi Miss Savannah, You are such a beautiful little girl your mommy sure is proud of you as she should be. I have 2 grandchildren that are around your age. They are such joy to me as I know you are to your mommy and daddy. You have a great day and take care of your Mommy and Daddy. Terry Johnson (nannaof2) <nannaof2@yahoo.com> Knoxville, TN USA - Wednesday, April 25, 2007 1:43 AM CDT ![]() Hi Savannah!! Just stopping by to say HI!! Sounds like your Momma is very busy! I also wanted to say THANKS for all your help.. Loved talking with you on the phone... when things settle down let me know... I will give you a call so we can CHAT!!! Loves and tons of hugs.. Jerimarie and Daphni Jo www.caringbridge.com/wa/daphnijo ![]() ![]() Jerimarie and Daphni Jo Irby <irbyfam@eburg.com> Cle Elum, WA USA - Sunday, April 15, 2007 3:05 PM CDT happy easter savannah!! we love you so much. see you friday for a sleepover..cant wait... grammy and pawpaw <mrsbezly@comcast.net> THE PLAINS, va usa - Sunday, April 8, 2007 7:02 PM CDT Savannah, hope you and your family are going to have a wonderful Easter! Wes and Sue - Friday, April 6, 2007 4:56 PM CDT Savannah is a beautiful child. Stay strong and I will keep your family in my prayers. Adrienne Sydnor <shanienee@hotmail.com> Norfolk, VA USA - Tuesday, April 3, 2007 10:13 AM CDT Hi Savannha! I know your Grandma, Liz. She updates me on how you are doing every now and then. I have a daughter that went to Central who has 'special needs' and your Grandma( and Katie !) always took the extra time to make sure Teylor was doing ok and that she was happy! Linda Reid <jlctreid@verizon.net> Warrenton, Va USA - Thursday, March 22, 2007 8:03 PM CDT Hi Savannah, Sorry again, it's been a while, but not as long! Wow Savannah, a story about you in a magazine! That's so cool! Let me know so I can check it out. Love and hugs, Sami Sami Philppians 4:13 <samibabi@hickorytech.net> Minnesota United States - Tuesday, March 20, 2007 2:47 PM CDT hi savannah. this aunt katie! love you. you are the bright shinning star. aunt katie <kdodson@fcps1.org> unionville, va USA - Monday, March 19, 2007 2:26 PM CDT HELLO PRECIOUS SAVANNAH!ALTHOUGH WE'VE NEVER MET I SURE FEEL AS IF WE HAVE- YOR GRAMMY TALKS ABOUT YOU ALL THE TIME. SHE LOVES YOU BEYOND MEASURE! YOU AND YOUR FAMILY ARE IN MY PRAYERS. GOD BLESS YOU! ANNA (IE) GREEN <ANAGRN@AOL.COM> MARSHALL, VA USA - Monday, March 19, 2007 11:29 AM CDT Savannah-Oh how I miss your Grammy and hearing about you. Auntie Katie sent me an email recently about the article your mommy wrote for a journal of nursing magazine. I don't have to tell you how great your mommy is, because you already know that. I was so moved by the story (your story) she wrote. I knew her when she was just a girl. What a wonderful woman she has become. I know you, Cameron and Levi are so proud of her and love her so. I want you to know Savannah that I keep a picture of you on my "fridge" . Even though I do not see you often, you will always be in my thoughts and prayers-not to mention my heart. Yes, you have captured mine, too! Penny Penny Magyar <pennymagyar@yahoo.com> Jeffersonton, VA USA - Sunday, March 18, 2007 6:04 PM CDT Savanah is beautiful. This website is also informative. My prayers are with you. LaMonica <ljarvis@fcps1.org> Stafford, VA USA - Thursday, March 15, 2007 9:30 AM CDT The website is awesome! Savannah you are as beautiful as ever! Hope your doing well. Just wanted you to know that I was thinking about you. Amy Meier <queenalm1@aol.com> Remington, va - Thursday, March 15, 2007 7:22 AM CDT good morning savannah, we hope you are doing ok. we are thinking about you. we loved the story that your mommy wrote. you are so blessed to have her as your mommy and your daddy too. they work hard to make everyone aware of your life and your love. we love you all so much..hugs grammy and pawpaw <mrsbezly@comcast.net> THE PLAINS, va usa - Thursday, March 15, 2007 6:27 AM CDT GOD BLESS YOU Donny Nuckles <oldragmtn1@netzero.net> Ol Rag Mountain, va Madsion - Wednesday, March 14, 2007 5:48 PM CDT The story for the magazine is truly inspirational! Beth, you captured the journey your family as taken absolutely breathlessly! I know Liz dotes on Savannah and your family is blessed to have each other. Cristy Thorpe - Tuesday, March 13, 2007 11:38 AM CDT Hi Savannah, I was so amazed to see everything new on your site! Your mama certainly has been busy with it, she's great! Well...it's snowy here in MN to say the very least. No school today and work was closed for both of my parents! I am so sorry to hear that you have been having a tough time. I will be praying for you guys and I will check soon! Love and hugs, Sami PS: Sorry it's been so long. Sami Philippians 4:13 <samibabi@hickorytech.net> Minnesota United States - Thursday, March 1, 2007 8:07 PM CST Hi Savannah, I just wanted you to know that I'm thinking about you and hope that you are doing well. Lots of hugs and love, RuthAnn Ruth Ann Judge <missyj8374@yahoo.com> - Friday, February 23, 2007 1:35 PM CST Hi Vannie, just wanted to say what a wonderful website you have. The pics are great. We sent you hugs from Sherrell, Nie' and Noni in Ga and Charleston, SC. Jacqueline McKinzie <jmck6420@bellsouth.net> STOCKBRIDGE, GA USA - Tuesday, February 13, 2007 11:37 AM CST ![]() Hey Savannah- We hope to see you and your family this Sunday at Ricky's birthday party! We have all kinds of goodies for you. Sammy wants to put tattoos on you!!! :) Sammy and Hannah both LOVED all your old clothes your mommy sent to us!!! They have been wearing them ALL them time!!! :) Always keeping you in our thoughts and prayers! Love, Rick, Desiree, Ricky, Sammy and Hannah Nichols www.caringbridge.org/va/princesssammy Gordonsville, VA USA - Monday, February 12, 2007 8:35 AM CST WE JUST LOVE THE POEMS NAD WE WAY WAY YOU HAVE HAVE THE WEB PAGE SET UP IT'S SO NICE AND SAVANNHA'S ARE ARE BEAUITFUL JUST LIKE ALL OUR ANGELS,THERS JUST SOME THING SPECIAL ABOUT THIER BIG BRIGHT EYE'S ! WE LOVE THE SIE!DAINE & VALENTINE ANGEL LISSA SOON BE 14 LISSA,S.C. DIANE HARDEN <hARDENSANGEL@AOL.COM> PICKENS, S.C. USA - Sunday, February 11, 2007 7:27 AM CST hi savannah, i hope you are doing ok. i miss you and think about you alot. i will check with mommy and see if i can spend the nite on friday...would you like that?? hope cameron and levi are good. see you soon...hugs grammy <mrsbezly@comcast.net> THE PLAINS, va usa - Sunday, February 4, 2007 2:48 PM CST Hello Sweetheart! I hope you had a wonderful Christmas! happy new Year! ~Love ya! Kelly Fox warrenton, va usa - Wednesday, January 3, 2007 1:50 PM CST Frances, hope you, Chris and the children have the best Christmas possible. Love and miss you all. Sue & Wes - Saturday, December 23, 2006 6:23 PM CST Hey hun!! I MISS YOU!! Angie <awilliams@fcps1.org> - Tuesday, December 19, 2006 10:49 AM CST Hey guess who this is! Bubby loves you! Cameron Nichols <Ozzymarine1993@aol.com> Remington, VA USA - Friday, December 15, 2006 11:58 AM CST ![]() happy thanksgiving to our little savannah turkey~ we love you honey. i hope you eat alot of turkey today. see you soon. grammy and pawpaw <mrsbezly@adelphia.net> the plains, va usa - Thursday, November 23, 2006 7:43 AM CST gobble, gobble, gobble...i love you ![]() grammy <mrsbezly@adelphia.net> the plains, va usa - Friday, November 17, 2006 6:17 PM CST Hi, My name is Ashley and I came across your site and have read your journal entries and enjoyed learning about Savannah. I am a teachers aide for sepcail eduaction. I have a little girl in my class that has Retts. They just digonised her sometime last school year. I just love that little girl and want to find out as much as possiable (as I do with all my students and their disabilites) It broke my heart that you were having problems getting her is school. I hope that school is going well for Savannah and that everyone is your family is doing well. Thanks for sharing. Ashley P <pogcrazy@hotmail.com> - Saturday, November 4, 2006 4:35 PM CST Aw! It sounds like Savannah had a lot of fun! I'm glad she got to experience something fun. I hope Cameron's, Levi's, and Savannah's Halloween was very enjoyable! Stay well!! -Caitie Caitie <Strawberriidreams17@earthlink.net> - Wednesday, November 1, 2006 7:31 AM CST ![]() grammy and pawpaw <mrsbezly@adelphia.net> the plains, va usa - Tuesday, October 31, 2006 5:49 PM CST ![]() Love, Rick, Desiree, Ricky, Sammy, and Hannah Nichols Gordonsville, VA USA - Monday, October 30, 2006 1:03 PM CST LOVED THE INFO ABOUT FAQUIER'S NEWEST LITTLE CHEERLEADER!!!! CHELSI (age 15) HAS JOINED US IN CIVIL WAR RE-ENACTING. SINCE WE OWN A HORSE FARM, WE THOUGHT IT WOULD BE FUN TO DO THE "TARA" THING... WE DRESS AS A "PLANTATION FAMILY" INSTEAD OF A "SOLDIER FAMILY". MY HUSBAND WEARS A VEST, TIE, HAT, etc. I WEAR A BIG "HOOP" SKIRT, HAT, GLOVES, etc. CHELSI ALSO WEARS A SKIRT AND HAT, etc - MINUS THE HOOP (since she is in a cruiser chair). WE WENT TO A HALLOWEEN PARTY DRESSED AS "THE 19th CENTURY PLANTATION FAMILY" AND IT WAS A BLAST!!! CHELSI ENJOYED LOOKING AT ALL THE COSTUMES. DID SAVANNAH AND HER BROTHERS DO HALLOWEEN? I WOULD BE INTERESTED IN KNOWING WHAT OTHER RETT CHILDREN DRESSED LIKE FOR HALLOWEEN... SYNDI, SCOTT and CHELSI <syn-pic-ridingschool@msn.com> GOOCHLAND, VA USA - Monday, October 30, 2006 8:57 AM CST the picture of you and the cheerleaders is awesome. what a wonderful experience for a little girlie. we are so proud of you. love, grammy and pawpaw <mrsbezly@adelphia.net> the plains, va usa - Sunday, October 29, 2006 7:29 PM CST The pictures are terrific. Glad you enjoyed the trip. Talk to you guys soon. Wes and Sue Annandale, VA - Wednesday, October 18, 2006 2:21 PM CDT Hi guys! Your pictures from the trip are awesome!! I miss you so very much, i hope I can see you soon. Happy happy birthday sweet Savannah! I love you to pieces!! Kelly Fox Warrenton, va. usa - Tuesday, October 17, 2006 9:51 AM CDT Boy am I glad your on our side, Fauquier Falcons, we need you cheering for us! Smile and be happy! Stan Sobkowicz <ssobkowicz@fcps1.org> Midland, VA USA - Thursday, October 12, 2006 4:34 PM CDT Hey Vannie!! Just wanted to say hi and welcome our new HONORARY FALCON CHEERLEADER!!!!!! I love you baby! Miss Angie <awilliams@fcps1.org> - Thursday, October 12, 2006 4:17 PM CDT Hey Savannah!!! Just thinking about your smile and wanted to say hi!!! GO FALCONS!! (dont forget our secret! : ) Angie <awilliams@fcps1.org> - Monday, September 25, 2006 12:25 AM CDT Hi Savannah! I had so much fun working and playing with you yesterday! I will see you soon! Love, Mrs Williams Angela Williams <awilliams@fcps1.org> - Thursday, September 21, 2006 9:33 AM CDT Sorry to hear you didn't get to go on your Alaskan vacation. Bummer! Hope things can start turning around for you physically, ok, mentally too! I can so relate to your life and it always seems like we have one crisis after another. When we aren't in the middle of a crisis, we look around expecting one to happen! Crazy! I don't think we go for longer than two weeks without something going wrong. So I can relate! Hang in there! www.caringbridge.org/oh/amberheiss Tami, Amber's mom <tamiheiss@sbcglobal.net> Northwood, OH USA - Tuesday, September 5, 2006 7:18 PM CDT Frances~ HAPPY BELATED BIRTHDAY!!!!!! I know I am late.... But better let then never!!! :) We love you, and hope you had a wonderful birthday! Hope to see you all soon!!! :) Love, Rick, Desiree, Ricky, Sammy, and Hannah Nichols Gordonsville, VA USA - Tuesday, September 5, 2006 11:17 AM CDT ![]() Keeping you in my thougths and in my prayer's always. Love Brenda MY LOVING DAD'S SITE <brurka@shaw.ca> Edmonton,Alberta ![]() , - Wednesday, August 30, 2006 9:32 PM CDT
Hey Savannah~ We just wanted to stop by and say hi, and let you know we LOVE YOU very much!!!! Hannah is the only one awake with me right now. She is going crazy over Levi's picture. She keeps hollaring bevive ( I guess that's how you would spell her pronunciation of Levi) LOL We are always thinking of you guys.... Love, Rick, Desiree, Ricky, Sammy, and Hannah Nichols Gordonsville, VA USA - Friday, August 25, 2006 8:47 PM CDT Frances - hope you are doing what the doctor says and are recovering nicely. Sue and Wes Annandale,, VA USA - Thursday, August 24, 2006 11:47 AM CDT I'm just stopping by from the Giving Hope board and wanted to say what lovely children you have. I hope that Savannah's seizures will respond to a higher dosag of the medication now that she's gained weight, and I hope that you will be feeling better as well. Hopefully you'll get to reschedule your vacation and still get some much needed "down time". Denise Ward <deniward@shaw.> Winnipeg, Canada - Thursday, August 3, 2006 1:04 AM CDT sending good thoughts your way sherri and angel bradley www.caringbridge.org/wv/bradley giving hope member <redneckmom1177@hotmail.com> alderson, wv - Wednesday, August 2, 2006 7:48 PM CDT Dear Sweet Savannah, what a beautiful girl you are. I wanted to stop by to let you know that you are in my prayers. xoxoxo Love and prayers, ![]() ![]() Bridge Of Dreams Debbie and the dream team <debbie@bridgeofdreams.org > VA USA - Wednesday, August 2, 2006 2:47 PM CDT Francis , what a beautiful family you have. I want you to know that I will be thinking and praying for you and your family. Love, Karen Karen S. Perdue Plano, TX USA - Wednesday, August 2, 2006 10:44 AM CDT i just wanted to tell you frances,chris how proud i am of you both. you both are awesome parents. savannah is such a lucky child for having knowledgable parents as you both to take such wonderful care of her and her brothers. i know there are times when it gets to be too much...but know that i will be here for you as long as i can. i am honored to be a grammy to savannah,cameron,levi. savannah has touched my very soul. i have never met a child with such a deep impact on everyone who meets her. get comfort knowing that my grandchildren are privledged to have such wonderful parents. thank you for letting us be a part of your life, love, mom grammy <mrsbezly@adelphia.net> the plains, va usa - Wednesday, August 2, 2006 4:30 AM CDT Just wanted all of you to know that i was thinking about you Crystal Bell <luvbluebutterfly@aol.com> Warrenton, va 20186 - Tuesday, August 1, 2006 3:22 PM CDT We are thinking of you!!! Frances know I am here to help. You just have to let me know what you need me to do!!! :) I don't want to step on any toes... so just let me know what I can do!!! I am up for cleaning, watching the kids, taking Levi home with me, bringing dinner by.... ANYTHING!!! :) We love you guys!!! Love, Rick, Desiree, Ricky, Sammy and Hannah Nichols Gordonsville, VA USA - Monday, July 31, 2006 2:25 PM CDT I very much enjoyed meeting Mom at the hospital and hearing all about you. What a beautiful and courageous little girl you are! We wish you all the best, and we hope that Mom is doing well. Susie Brown and Rachel (who is also six) <swwbrown@hotmail.com> The Plains, VA USA - Saturday, July 29, 2006 10:07 PM CDT ![]() Hi from Emma & Madi! We hope things are going well & you are enjoying the summer! Take care. (((HUGS))) Lauren & Emma <markhamfamily@msn.com> - Wednesday, July 26, 2006 10:23 PM CDT Glad you are feeling better. The cruise sounds awesome. Be sure and tell about it. Still checking on all of you and hoping things continue to go well. www.caringbridge.org/oh/amberheiss Tami, Amber's mom <tamiheiss@sbcglobal.net> Northwood, OH USA - Tuesday, July 25, 2006 9:34 PM CDT ![]() grammy <mrsbezly@adelphia.net> the plains, va usa - Wednesday, July 19, 2006 5:23 AM CDT ![]() grammy and pawpaw <mrsbezly@adelphia.net> the plains, va usa - Sunday, July 9, 2006 5:31 AM CDT Savannah, Hello angel I hope that you had a good 4th of July. Hopefully you and your family are doing good. Hope to hear some updates soon on how you are doing on your pump Angel Hugs and Kisses Charity and Skylar rs Charity <madvamp78@yahoo.com> Lakeland, FL USA - Saturday, July 8, 2006 7:34 PM CDT Have a happy and safe 4th of July. Love to you all. Wes and Sue Sue Annandale, va usa - Monday, July 3, 2006 5:36 PM CDT ![]() grammy and pawpaw <mrsbezly@adelphia.net> the plains, va usa - Sunday, July 2, 2006 11:13 AM CDT ![]() grammy and pawpaw <mrsbezly@adelphia.net> the plains, va usa - Wednesday, June 28, 2006 4:29 AM CDT I had never heard of Rett syndrome until today. I will add you to my prayer list and a chain of prayers will go out to Savannah and her family. May the Lord be with you and bless you in the ways you so richly deserve. "Lord I pray that you bless this family and this precious child with your bountiful love. Give them the strength to carry on each day and pray for guidance when things get tough. We ask these things in your precious name Amen." Deborah <PPOOH1157@yahoo.com> San Marcos , Tx United States - Monday, June 19, 2006 3:02 PM CDT ![]() grammy and pawpaw <mrsbezly@adelphia.net> the plains, va usa - Wednesday, June 14, 2006 6:42 PM CDT Hope things are going well. Glad to hear about the insulin pump & how well it's going. Praying for continued good news for miss Savannah! Enjoy your vacation, to say you both deserve it is an understatement!!!!! Hope you're having a good week. Take care. (((HUGS))) Lauren & Emma <markhamfamily@msn.com> - Tuesday, June 13, 2006 5:14 PM CDT I was unable to post yesterday since I was at your house!!!! Cameron~ ![]() Hope you had a great birthday!!! As for everyone else at the Nichols household~ We had a great time yesterday!!! Thanks for inviting us. We will all have to get together again real soon! Rick, Desiree, Ricky, Sammy, and Hannah Nichols www.caringbridge.org/va/princesssammy Gordonsville, VA USA - Monday, June 5, 2006 8:07 PM CDT Happy Birthday to you, Happy Birthday to you, Happy Birthday to Cameron, Happy Birthday to you! Hope you had a fun day! Lots of hugs! PS: F - You guys are taking my dream vacation! Have a fantastic time! Carole <cmfranklyn@yahoo.com> Springfield, VA - Monday, June 5, 2006 8:53 AM CDT stopping in to say hi and i love you so much ![]() grammy <mrsbezly@adelphia.net> the plains, v usa - Monday, May 29, 2006 9:18 AM CDT You guys are thought of frequently. Hope everyone is doing better. Sue Annandale, VA - Thursday, May 25, 2006 5:27 PM CDT love you so muchgrammy <mrsbezly@adelphia.net> the plains, va usa - Thursday, May 25, 2006 6:59 AM CDT Hey guys, what have you all been up to? Hope all is well your way. Frances~ Let me know if you want to meet one evening to go to the movies in Culpeper, or just to walk around Wal-Mart. HUGS, ![]() www.caringbridge.org/va/princesssammy Rick, Desiree, Ricky, Sammy, and Hannah Nichols Gordonsville, VA USA - Tuesday, May 23, 2006 8:14 PM CDT ![]() grammy and pawpaw <mrsbezly@adelphia.net> the plains, va usa - Friday, May 19, 2006 3:54 AM CDT I hope everyone is on the mend and feeling better. Sending good thoughts. Teri P. Giving Hope, - Thursday, May 18, 2006 1:42 AM CDT Just stopping in to say hi. Tina & Lance <lancejrmommy@comcast.net> - Wednesday, May 17, 2006 10:06 PM CDT Hope you are all feeling better soon!!! Ellen and Sammi Robertson www.caringbridge.org/mi/sammijean <Scanmom@hotmail.com> Wyandotte, mi - Wednesday, May 17, 2006 8:27 PM CDT I hope things are better at your house and everyone is over their sickness. XOXOXO Love and prayers, Bridge Of Dreams Debbie from Bridge Of Dreams and Giving Hope <debbie@bridgeofdreams.org> VA USA - Wednesday, May 17, 2006 7:36 PM CDT LOVE YOU...YOU ARE ALWAYS IN MY HEART ![]() GRAMMY <mrsbezly@adelphia.net> THE PLAINS, VA USA - Wednesday, May 17, 2006 3:58 AM CDT ![]() LETTING YOU KNOW THAT YOUR THOUGHT OF ON MOTHER'S DAY.KEEPING YOU IN MY THOUGHTS AND IN MY PRAYER'S ALWAYS. LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca~~THE PRAYER BEARS~~> EDMONTON ,ALBERTA , - Sunday, May 14, 2006 10:32 PM CDT
![]() Hey Frances~ Hope your day is special!!! You deserve it!!! You are a wonderful mother, and friend. I am honored to know you. Rick, Desiree, Ricky, Sammy, and Hannah Nichols www.caringbridge.org/va/princesssammy Gordonsville, VA USA - Saturday, May 13, 2006 5:55 PM CDT good morning savannah...we love you... ![]() grammy and pawpaw <mrsbezly@adelphia.net> the plains, va usa - Thursday, May 11, 2006 3:51 AM CDT Hi Savannah ~ Stopping by to say hello. Hope you are doing better. Heres an angel for you... she looks like the one on your main page.. loves Daphni and Jerimarie www.caringbridge.com/wa/daphnijo Jerimarie and Daphni <irbys@nwinfo.net> Cle Elum, WA - Wednesday, May 10, 2006 3:59 PM CDT Hey~ How are things going? Haven't heard from you all in awhile (and haven't seen you on the computer) Hope all is well. Thinking of you all Rick, Desiree, Ricky, Sammy, and Hannah Nichols www.caringbridge.org/va/princesssammy Gordonsville, VA USA - Wednesday, May 10, 2006 2:12 PM CDT I love you!!! ![]() grammy <mrsbezly@adelphia.net> the plains, va usa - Wednesday, May 10, 2006 4:17 AM CDT Hope everything is going well for you. Just wanted to say Hi. www.caringbridge.org/oh/amberheiss Tami, Amber's mom <tamiheiss@sbcglobal.net> Northwood, OH USA - Tuesday, May 9, 2006 9:26 PM CDT we are thinking about you...huggs to our little savannah ![]() grammy <mrsbezly@adelphia.net> the plains, va usa - Monday, May 8, 2006 5:51 PM CDT Hey Guys!!! Hope all is going well your way. Hopefully next weekend we will make it to the skating rink. It was a busy weekend for everyone. Frances~ I really enjoyed spending Sunday with you. It was nice chatting and just hanging out together. Sammy has been talking non-stop about you and your "baby"!!! LOL I am gonna try and get the kids glamour shots and t-ball pictures out in the mail tomorrow. Rick, Desiree, Ricky, Sammy, and Hannah Nichols Gordonsville, VA USA - Monday, May 1, 2006 7:58 PM CDT Stopping in to say HI!!! Hope to see you on Sunday at the skating rink!!! :) Ricky, Sammy, and Hannah say HI!!! Rick, Desiree, Ricky, Sammy, and Hannah Gordonsville, VA USA - Friday, April 28, 2006 4:13 PM CDT SEE YOU ON FRIDAY FOR A FUN WEEKEND WITH US!! ![]() grammy and pawpaw <mrsbezly@adelphia.net> THE PLAINS, VA usa - Thursday, April 27, 2006 4:22 AM CDT ![]() Hi Savannah! I hope you are having a good week. We think of you often & pray for you each night. Take care. (((HUGS))) Lauren & Emma <markhamfamily@msn.com> - Wednesday, April 26, 2006 7:44 PM CDT grammy <mrsbezly@adelphia.net> THE PLAINS, VA USA - Saturday, April 22, 2006 11:33 AM CDT ![]() Wishing you all a wonderful Easter!!! Rick, Desiree, Ricky, Sammy, and Hannah Nichols www.caringbridge.org/va/princesssammy Gordonsville, VA USA - Sunday, April 16, 2006 8:19 AM CDT ![]() Keeping you in my thoughts and in my prayer's always.Sorry you are not feeling well I'm also sorry for the loss of your grandfather. LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca~~THE PRAYER BEARS~~> EDMONTON ![]() , - Saturday, April 15, 2006 9:03 PM CDT
![]() Hosted by Sparkle Tags Sorry to hear that Savannah and Levi have been sick! NO FUN! I understand what you mean by being sick over and over. For some reason it keeps happening to me and I really am getting quite sick of it! ARG! Anyway, I just wanted to stop by with a friendly "hey" and let you know that you are always in my thoughts and prayers. Hope you have a wonderful and blessed Easter, looking forward to another update soon (hopefully good news, huh). Love, hugs, and blessings, Sami CHRIST IS RISEN! CHRIST IS RISEN, INDEED! ALLELUIA! Sami www.caringbridge.org/visit/samimiller, "I can do all things through Christ who strengthens me"-Philippians 4:13 <samibabi@hickorytech.net> Mankato, Minnesota United States - Friday, April 14, 2006 4:45 PM CDT Hope everyone is feeling better. Just wanted to wish you all (C,F,C,S and L) a very HAPPY EASTER. Wes and Sue Annandale, VA - Friday, April 14, 2006 4:09 PM CDT ![]() Stopping in to say HI!!! Rick, Desiree, Ricky, Sammy, and Hannah Nichols Gordonsville, VA USA - Thursday, April 13, 2006 12:35 AM CDT Boy you sure have had your share of illnesses! Doesn't it feel so great to have the infection gone from your body? Hope you and everyone else can stay well for awhile. ![]() www.caringbridge.org/oh/amberheiss Tami, Amber's mom <tamiheiss@sbcglobal.net> Northwood, OH USA - Tuesday, April 11, 2006 7:45 PM CDT i love you!!!!!!!!!!! ![]() grammy <mrsbezly@adelphia.net> the plains, va usa - Tuesday, April 11, 2006 6:08 AM CDT Glad to hear everyone is finally getting well. Sorry to hear about all that you've gone through & glad that seems resolved! Have a good week! (((HUGS))) Lauren & Emma <markhamfamily@msn.com> - Monday, April 10, 2006 8:49 AM CDT we are thinking about you..huggs savannah and her cousin emma ![]() grammy and pawpaw <mrsbezly@adelphia.net> the plains, va usa - Monday, April 10, 2006 3:58 AM CDT Hi sweetums!!! I hope you are feeling much better!!!! Loves yas!! Kelly Belly butt culpeper, va usa - Friday, April 7, 2006 10:09 AM CDT ![]() grammy <mrsbezly@adelphia.net> the plains, va usa - Friday, April 7, 2006 6:12 AM CDT ![]() Always thinking of you all... Rick, Desiree, Ricky, Sammy, and Hannah Nichols www.caringbridge.org/va/princesssammy <rickysammyhannah@aol.com> Gordonsville, VA USA - Wednesday, April 5, 2006 12:30 AM CDT i am so sorry that you are sick. we love you! ![]() grammy <mrsbezly@adelphia.net> the plains, va usa - Wednesday, April 5, 2006 4:17 AM CDT ![]() Keeping you in my thoughts and in my prayer's always. LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca> EDMONTON ![]() , - Tuesday, March 28, 2006 0:28 AM CST
![]() We are always thinking of you all. Hope you have a wonderful week filled with tons of love, laughter, family and friends!!! Love, Ricky, Sammy and Hannah www.caringbridge.org/va/princesssammy Rick, Desiree, Ricky, Sammy, and Hannah Nichols Gordonsville, VA USA - Monday, March 27, 2006 2:42 PM CST Hi Savannah, I'm a friend of your cousin Sammy I just thought I'd stop by and say Hi. www.caringbridge.org/canada/ashlee Ashlee <mwccamper@yahoo.ca> North Bay, On Canada - Saturday, March 25, 2006 5:52 PM CST ![]() Have a great weekend! Love & Bunny Kisses, Emma The Markham Family <markhamfamily@msn.com> - Friday, March 24, 2006 4:59 PM CST YOU ARE OUR SUNSHINE!! WE LOVE YOU!! ![]() grammy and pawpaw <mrsbezly@adelphia.net> the plains, va usa - Thursday, March 23, 2006 7:12 AM CST happy st pattys day savannah!! i love you so very much. see you soon..huggs http://tinypic.com/view/?pic=rksgfmhttp://i2.tinypic.com/rksgfm.jpggrammy <mrsbezly@adelphia.net> the plains, va usa - Friday, March 17, 2006 4:11 AM CST ![]() Rick, Desiree, Ricky, Sammy, and Hannah Nichols <rickysammyhannah@aol.com> Gordonsville , VA USA - Thursday, March 16, 2006 11:45 AM CST hi savannah, grammy and pawpaw are sending their love to you. we hope you are doing ok.we will be seeing you real soon. grammy and pawpaw <mrsbezly@adelphia.net> the plains, va usa - Tuesday, March 14, 2006 6:37 PM CST ![]() Thinking of you! Shay & Chayce Prayer Bears, SOEW, & Giving Hope Chayce's Mission <eeneedscure@yahoo.com > Davison, MI - Thursday, March 9, 2006 6:58 AM CST ![]() What wonderful pictures! Your family is absolutely beautiful! Savannah is looking so grown up--time flies!! Hope things are going well. You are in our prayers. Take care. (((HUGS))) Lauren & Emma <markhamfamilY@msn.com> - Tuesday, March 7, 2006 3:46 PM CST hi honey! we hope you are doing ok. did mommy tell you that we got a white bunny to keep here for you? her name is PRINCESS in honor of you! i will try and send a pic later. have a good day at school and remember we love you very much grammy and pawpaw <mrsbezly@adelphia.net> the plains, va usa - Tuesday, March 7, 2006 4:00 AM CST Hope your week has been off to a great start, and everyone is feeling well! Love the pictures, Savannah you are as beautiful as ever!!! And Cameron & Levi you all are very handsome!!! Rick, Desiree, Ricky, Sammy, and Hannah Nichols - Wednesday, March 1, 2006 4:37 PM CST The photos are beautiful! All the best. Robin Brunet <robinb@neptune.on.ca> Bradford, Ontario Canada - Wednesday, March 1, 2006 2:49 PM CST Hi! Sorry I haven't been by lately, things have been crazy around here. I had to shut down my old page and make a new one so if I didn't send you the link or password please e-mail me. I am always thinking of you and praying for you! Love, hugs, and blessings always, Sami <samibabi@hickorytech.net> Mankato, Minnesota United States - Saturday, February 25, 2006 4:11 PM CST This is truly a beautiful tribute to your daughter. I have a granddaughter, Angela, 9RS. Thanks for sharing....hugs, sherry Sherry Karaim <sak6@cornell.edu> Newark Valley, NY USA - Sunday, February 19, 2006 11:02 AM CST ![]() ![]() LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca> EDMONTON,ALBERTA/CANADA, - Wednesday, February 15, 2006 2:15 AM CST To a sweet, sweet friend... ![]() Love & Bear Hugs too, Emma xoxo Lauren & Emma <markhamfamily@msn.com> - Tuesday, February 14, 2006 4:37 PM CST ![]() Hope your day is filled with tons of XOXOXOXOXOXOXO Rick, Desiree, Ricky, Sammy, and Hannah Nichols - Tuesday, February 14, 2006 8:21 AM CST happy valentines day savannah, hope you are doing ok..we love you!! [IMG]http://i1.tinypic.com/nqd24x.gif[/IMG]http://tinypic.com/view/?pic=nqd24xhttp://i1.tinypic.com/nqd24x.gifgrammy <mrsbezly@adelphia.net> the plains, va usa - Tuesday, February 14, 2006 5:51 AM CST Hope all is going well with you guys! ![]() www.caringbridge.org/oh/amberheiss Tami, Amber's mom <tamiheiss@sbcglobal.net> Northwood, OH USA - Friday, February 10, 2006 6:14 PM CST ![]() Hope you have a fun day! Love, Emma Lauren & Emma <markhamfamily@msn.com> - Thursday, February 9, 2006 1:46 PM CST ![]() Hugs & Love from Emma Lauren & Emma <markhamfamily@msn.com> - Tuesday, February 7, 2006 10:17 PM CST Thank you for sharing your life story with me. I am learning more everyday. Keep smiling. Karen Johnson <johnsonkarenp@aol.com> Culpeper, va 22713 - Tuesday, February 7, 2006 4:21 PM CST Hope Savannah can stay well. Just wanted to check in and say Hi. www.caringbridge.org/oh/amberheiss Tami, Amber's mom <tamiheiss@sbcglobal.net> Northwood, OH USA - Thursday, February 2, 2006 10:07 PM CST Savannah, What a strong big girl you seem to be. I also have a little girl named Savannah that is having her medical challenges. We will keep you in our prayes. Stay strong little one. Pete www.caringbridge.org/fl/savannah Pete Harvey <hrvy@msn.com> Jacksonville, FL - Thursday, February 2, 2006 8:50 PM CST Popping in to let you know that I was thinking of Savannah. I think of her often and hope she's doing well. All the best, she's always in my thoughts and prayers. Robin Brunet <robinb@neptune.on.ca> Bradford, Ontario Canada - Tuesday, January 31, 2006 2:51 PM CST ![]() Thinking of you.... Rick, Desiree, Ricky, Sammy, and Hannah <rickysammyhannah@aol.com> - Tuesday, January 31, 2006 8:22 AM CST ![]() ![]() LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Sunday, January 29, 2006 10:17 PM CST hope you are feeling better! http://i1.tinypic.com/mm5t8j.gif [IMG]http://i1.tinypic.com/mm5t8j.gif[/IMG]http://tinypic.com/view/?pic=mm5t8jgrammy <mrsbezly@adelphia.net> the plains, va usa - Thursday, January 26, 2006 8:06 PM CST We think of you often and hope that today is a good day.We love you.Love, Aunt Missy,Abby and Emma Melissa Baker <2treasuresofmyheart@netscape.com> Front Royal, va usa - Thursday, January 26, 2006 1:56 PM CST ![]() Always thinking of you all.... Rick, Desiree, Ricky, Sammy, and Hannah <rickysammyhannah@aol.com> - Wednesday, January 25, 2006 7:01 PM CST hi savannah! i will be down for a sleepover on friday nite..i love you http://i1.tinypic.com/mhdkb8.jpg IMG]http://i1.tinypic.com/mhdkb8.jpg[/IMG]http://tinypic.com/view/?pic=mhdkb8grammy <mrsbezly@adelphia.net> the plains, va usa - Monday, January 23, 2006 7:16 AM CST Hi guys! Thanks for the update. I hope you are doing well. I know the story with RS and the battle with sickness. Can't even tell you how many times they kept Ash home from school because it was too cold or she was sick. She gets sick too easily, but that's the thing with Rett Syndrome. Other than that, I have finals tomorrow and had them earlier today as well. I'm hoping to go to bed soon but I wanted to spend a little time "catching up" on CB news. Hope to hear from you soon. Love, hugs, and blessings, Sami www.caringbridge.org/visit/samibabi <samibabi@hickorytech.net> Mankato, Minnesota United States - Thursday, January 19, 2006 7:29 PM CST Just checking in to see how you guys are doing! Hope everythings good. Nikki, Mikaela, and Skylar B www.caringbridge.org/oh/skylarbaker <nd6780@peoplepc.com> Toledo, oh usa - Tuesday, January 17, 2006 8:28 PM CST ![]() LOVE ALWAYS BRENDA MY LOVING DAD <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Monday, January 16, 2006 8:04 PM CST good morning savannah! i hope you are feeling better. i miss you. i will be seeing you on friday..ok? love you honey, grammy <mrsbezly@adelphia.net> the plains, va usa - Thursday, January 12, 2006 4:03 AM CST ![]() Stopping in to say HI!!! Rick, Desiree, Ricky, Sammy, and Hannah <rickysammyhannah@aol.com> - Tuesday, January 3, 2006 4:48 PM CST Wishing you a wonderful New Year filled with tons of love, laughter, family & friends.... Always thinking of you all.... Rick, Desiree, Ricky, Sammy, and Hannah Nichols <rickysammyhannah@aol.com> - Saturday, December 31, 2005 7:24 PM CST ![]() www.caringbridge.org/oh/amberheiss Tami, Amber's mom <tamiheiss@sbcglobal.net> Northwood, OH USA - Thursday, December 29, 2005 8:58 PM CST Hope you all had a wonderful Christmas. It was really nice all of us together on Christmas Eve. And thanks a bunch for all the presents. We greatly appreciated them!! Wishing you a Happy New Year filled with lots of love, fun, and medically uneventful! Rick, Desiree, Ricky, Sammy, and Hannah Nichols <rickysammyhannah@aol.com> - Monday, December 26, 2005 6:13 PM CST ![]() MY CHRISTMAS ANGEL LOVE ALWAYS BRENDA <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Sunday, December 25, 2005 8:39 PM CST MERRY CHRISTMAS SAVANNAH AND FAMILY...WE LOVE YOU SO MUCH!! http://tinypic.com/j65vr5.gif ![]() [IMG]http://tinypic.com/j65vr5.gif[/IMG]http://tinypic.com/view/?pic=j65vr5 GRAMMY AND PAWPAW <MRSBEZLY@AOL.COM > THE PLAINS, VA USA - Sunday, December 25, 2005 12:00 AM CST Sami <samibabi@hickorytech.net> Mankato, Minneosta United States - Friday, December 23, 2005 4:58 PM CST ![]() Rick, Desiree, Ricky, Sammy, and Hannah Nichols <rickysammyhannah@aol.com> - Thursday, December 22, 2005 1:11 PM CST I love the Jersey. Alyssa has the same Chiefs one! We live in Kansas City. Merry Christmas! Hope all your holiday wishes come true.(and u get ur house cleaned-:)) www.caringbridge.org/ks/alyssadarrah shannon stoiber <shaystoiber@sbcglobal.net > Leawood , KS usa - Wednesday, December 21, 2005 11:58 PM CST ![]() Sami <samibabi@hickorytech.net> Mankato, Minnesota United States - Wednesday, December 21, 2005 10:05 PM CST ![]() Rick, Desiree, Ricky, Sammy, and Hannah Nichols <rickysammyhannah@aol.com> - Wednesday, December 21, 2005 10:36 AM CST Keeping ya in my thoughts and prayers. Sorry you're having a bump in life, but remember, this too shall pass, and you'll be a stronger person for it! I'm not sure what area of VA you are in, but there is another child with Rhett's in Moneta, VA. I had never heard of another child with it until I saw your site. HUGS TO ALL!! Janice S. from FOA Bedford, Va usa - Wednesday, December 21, 2005 2:32 AM CST ![]() Thinking of you all.... Rick, Desiree, Ricky, Sammy, and Hannah Nichols <rickysammyhannah@aol.com> - Sunday, December 18, 2005 10:46 AM CST Wishing you all the best during the Holiday Season and always! Thinking of you and praying for you as well. Love, hugs, and blessings, Sami <samibabi@hickorytech.net> Mankato, Minnesota United States - Saturday, December 17, 2005 10:37 PM CST Hello Savannah, I wanted to stop by to let you know that you are in my prayers. Have a Merry Christmas! XOXOXO love and prayers, Bridge Of Dreams Debbie and the Dream team <debbie@bridgeofdreams.org> VA USA - Saturday, December 17, 2005 10:07 PM CST Hi guys! Sorry to hear that you have been through so much after your surgery. but, I'm glad to hear that Savannah is liking school. I also know lots of sign language. When I worked in Lifeskills I would learn signs to better communicate with them. I also learn signs because of working with children. Babies can learns signs before they can talk! But anyway, I hope you are doing well. Praying for you always! Love, hugs, and Blessings Sami www.caringbridge.org/visit/samibabi <samibabi@hickorytech.net> Mankato, Minnesota United States - Friday, December 16, 2005 10:28 PM CST Bless your heart! I will keep you and your family in my prayers. Rachel Virginia Beach, VA USA - Friday, December 16, 2005 8:31 AM CST Glad your back is getting better. We also know sign language and use it with our two year old too. Amber isn't able to sign anything but "more" and is now nodding "yes". I'm afraid she doesn't have enough use of her hands to learn any more. That is great you all are learning sign language. It can really come in handy when you want to sign something to your family and no one else knows what you're saying. I find myself signing "thank you" to the kids all the time to remind them to say it. Make your kids help you clean the house, even the youngest. We make it a family project all the time. It's the only way I can keep it semi-clean. Take Care. ![]() www.caringbridge.org/oh/amberheiss Tami, Amber's mom <tamiheiss@sbcglobal.net> Northwood, OH USA - Thursday, December 15, 2005 8:49 PM CST Sammy's mom Desiree told me about your site - we belong to the same internet community. I'm so sorry for all your troubles. I know about back pain and I can't imagine dealing with small children while trying to recover. Forget about picking up the house and concentrate on feeling better. Remember the Dr. Seuss quote on your site -it's true (and I love it by the way.) Sending good thoughts for a pain free recovery. Teri Olympia , WA - Thursday, December 15, 2005 5:19 PM CST May things get better in you home. I will be praying for your entire family. May you have very happy holidays. Love, Karen Karen S. Perdue Plano, TX USA - Thursday, December 15, 2005 2:08 PM CST ![]() Just stopping in to say Hi! Rick, Desiree, Ricky, Sammy, and Hannah <rickysammyhannah@aol.com> - Thursday, December 15, 2005 12:35 AM CST Sorry you had such a hard time after your surgury. The signing sounds great though. Keep it up! Mellisa (CaringCrew & FOA) - Thursday, December 15, 2005 8:13 AM CST Hello there! So sorry you are having to deal with so much after surgery. The way you are being treated is just not right. I do hope things get better. But, I am happy that your back does feel better than it did. please take care of yourself, wish someone else would help. I am happy your little angel is doing good. she is so pretty! with love and prayers, ![]() ![]() Bridge Of Dreams Charlotte and the Dream Team <charlotte@bridgeofdreams.org> TN USA - Thursday, December 15, 2005 7:49 AM CST I'm glad you're beginning to feel some relief from the back pain--it sounds like you've had such a rough time of things. I wouldn't worry too much about the house, although that's easier said than done! I think as women and moms we want the house to look just so, especially for the holidays. If you guys are all together and feeling well, that's the most important thing of all. It[s great that everyone's learning signing at your house; not only can you communicate with Savannah but I'm sure it'll come in handy in the future. I hope you continue to feel better each day. Denise Ward <deniward@shaw.ca> Winnipeg, Canada - Wednesday, December 14, 2005 8:23 PM CST Checkin' in to see how Savannah's doing, hope things are good. www.caringbridge.org/oh/skylarbaker Nikki and Skylar <nd6780@peoplepc.com> Toledo, oh usa - Monday, December 12, 2005 6:14 PM CST ![]() Rick, Desiree, Ricky, Sammy, and Hannah <rickysammyhannah@aol.com> - Monday, December 12, 2005 1:05 PM CST ![]() I know it's been like forever since I've visited you. I have just been so busy. But I think of you always. LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Monday, December 12, 2005 11:51 AM CST ![]() It's beginning to look a lot like Christmas!!! Isn't the snow beautiful!!! Hope to see you all over the Christmas holiday!!! Love, Rick, Desiree, Ricky, Sammy, and Hannah Nichols www.caringbridge.org/va/princesssammy <rickysammyhannah@aol.com> - Tuesday, December 6, 2005 10:34 AM CST Hello Friend... Sending You Bear Hugs from Emma! Thinking of Savannah & your entire family, hope things are going well. Take care. Lauren & Emma <markhamfamily@msn.com> - Monday, December 5, 2005 8:42 PM CST ![]() Always thinking of you all.... love, Rick, Desiree, Ricky, Sammy, and Hannah <rickysammyhannah@aol.com> Gordonsville, VA USA - Friday, December 2, 2005 5:46 PM CST hi savannah...i miss you so much! i hope you are doing ok. pawpaw said you was happy on thanksgiving. i thought of you alot when i was in nyc and connecticut. i hope mommy is doing better. i will be picking you up this friday. love you bunches... http://tinypic.com/hwh85z.gif [IMG]http://tinypic.com/hwh85z.gif[/IMG]http://tinypic.com/view/?pic=hwh85zgrammy <mrsbezly@aol.com> the plains, va usa - Monday, November 28, 2005 7:24 AM CST Hi. My name is Sami. I am 14 years old, and I have lots of health problems. (See my page for a full list) I have scoliosis, asthma, and depression just to name a few. I heard about Savannah and I had to check her page. She is such a pretty Rett Angel. I have a friend with RS and lots of CB friends who have RS as well. You are in my thoughts and prayers, I'm glad to have met a new friend! Love, hugs, and blessings, Sami Sami <samibabi@hickorytech.net> Mankato, MN United States - Sunday, November 27, 2005 5:12 PM CST ![]() Love, Rick, Desiree, Ricky, Sammy, and Hannah www.caringbridge.org/va/princesssammy <rickysammyhannah@aol.com> - Thursday, November 24, 2005 5:39 PM CST ![]() Sending your family Thanksgiving wishes. Have a great holiday! Thinking of you today & always. Love, The Markham FamilyHoping your surgery went well & your recovery is going smooth. Praying the cold germs stay away from y'all for a while! Thinking of Savannah often. Take care. (((HUGS))) Lauren & Emma <markhamfamily@msn.com> - Wednesday, November 23, 2005 4:06 PM CST savannah, i miss you so much! i hope you all enjoy a wonderful thanksgiving day with your pawpaw. take care of him. i love you all so much. http://tinypic.com/hrd9nc.jpg http://tinypic.com/view/?pic=hrd9ncgrammy <mrsbezly@aol.com> the plains, va usa - Wednesday, November 23, 2005 10:14 AM CST ![]() Thinking of you all today.... Desiree, Rick, Sammy, Ricky, and Hannah Nichols <rickysammyhannah@aol.com> Gordonsville, VA USA - Tuesday, November 22, 2005 12:20 AM CST ![]() Debbie Fields Murphy, NC Tuberous Sclerosis Assn. (Olivia's Grace http://groups.msn.com/OliviasGrace) http://www3.caringbridge.org/nc/catherine_nicole/ (Tuberous Sclerosis Chat Room) http://health.groups.yahoo.com/group/debbifmurphy/) <TuberousSclerosis@earthlink.net> Snow Hill, NC USA - Sunday, November 20, 2005 4:34 AM CST Just stopping in to say hi. Tina & Lance <lancejrmommy@comcast.net> - Thursday, November 17, 2005 12:15 AM CST Frances, I just saw Desiree's message about your surgery. Hope everything went well and you have a speedy recovery. HUGS. Lois (FOA) NJ - Thursday, November 17, 2005 9:35 AM CST Praying that your surgery was a success. And praying for Savannah, I hope things get better at school. Love and prayers, XOXOXO Bridge Of Dreams Debbie and the Dream team <debbie@bridgeofdreams.org> VA USA - Wednesday, November 16, 2005 7:27 PM CST ![]() desiree nichols princess sammy's mommy <rickysammyhannah@aol.com> gordonsville, va - Wednesday, November 16, 2005 4:07 PM CST I hope everything goes well with mommy's surgery. Skylar sends "sloppy" kisses to you both! I'm so glad you can go to school again, I know Skylar LOVES school! www.caringbridge.org/oh/skylarbaker Nikki and Skylar <nd6780@peoplepc.com> Toledo, oh usa - Wednesday, November 16, 2005 4:01 PM CST I hope your surgery goes well and that you have someone to take good care of you once you are home. My husband had similar surgery and was immediately better because his nerve pain from his back was gone. Hope your recovery goes as well as his did. Also on a side note, shouldn't the school district have a nurse to provide the care your daughter needs while she is at school. I know it is easier in the immediate that you do things for her yourself, but the school will figure it all out and your daughter will love being there. Best of luck to your family. Kristin <mandtjsmom@yahoo.com> WA - Wednesday, November 16, 2005 1:13 PM CST Francis, Prayers for a successful surgery and smooth recovery! We were just talking about you the other night when my husband threatened to make chili and I told him only if we were bringing it to you guys :) Lots of hugs, Carole (FOA/AOE) <cmfranklyn@yahoo.com> Springfield, VA - Wednesday, November 16, 2005 11:50 AM CST In my thoughts and prayers! I do hope your surgery makes you feel much better. I know it is so frustrating to live in constant pain, and not be able to do the things you want to. Your kids are beautiful! This is my first visit here, it is so nice to get to know ya! ![]() ![]() Bridge Of Dreams Charlotte and the DreamTeam <charlotte@bridgeofdreams.org> tn usa - Wednesday, November 16, 2005 9:01 AM CST Frances, I hope your surgery makes you feel so much better. I love the name Savannah!!!! Ellen and Sammi Robertson www.caringbridge.org/mi/sammijean <Scanmom@hotmail.com> Wyandottem, mi - Wednesday, November 16, 2005 8:46 AM CST Praying for all of you! I'm here if you need help with the school issues. Been there done that. My oldest son has Tuberous Sclerosis that caused seizures, autism, etc... See www.tsalliance.org for more info. ![]() ![]() Debbie Fields Murphy, NC Tuberous Sclerosis Assn. (Olivia's Grace http://groups.msn.com/OliviasGrace) http://www3.caringbridge.org/nc/catherine_nicole/ (Tuberous Sclerosis Chat Room) http://health.groups.yahoo.com/group/debbifmurphy/) <TuberousSclerosis@earthlink.net> Snow Hill, NC USA - Tuesday, November 15, 2005 11:36 PM CST Praying for a trouble free surgury and a speedy recovery. Mellisa My Loving Brother Caring Crew, - Tuesday, November 15, 2005 2:04 PM CST Frances, praying for a successful surgery tomorrow and a speedy recovery. Please keep us posted when you can. God bless. Suzanne/Olivia's Grace Dallas, TX - Tuesday, November 15, 2005 1:52 PM CST ![]() I will be thinking of you tomorrow. Hope all goes well with your surgery. Keep us posted when you have a chance. Love, Rick, Desiree, Ricky, Sammy and Hannah Desiree Nichols <rickysammyhannah@Aol.com> Gordonsville, VA USA - Tuesday, November 15, 2005 12:42 AM CST Praying for your surgery to be sucessful. Dawn Austin - Tuesday, November 15, 2005 12:28 AM CST Frances, I will be praying for you during your surgery. I will also keep your entire family in my thoughts and prayers. Love, Karen Karen S. Perdue Plano, TX USA - Tuesday, November 15, 2005 12:27 AM CST Praying for your surgery to be sucessful. Dawn Austin - Tuesday, November 15, 2005 12:27 AM CST First time signing your guestbook. Just wanted to let you know that you will be in my thoughts on the 16th. My fiancee had back surgery almost a year ago and he is feeling 100%. Sorry to hear that you have to keep repeating yourself to the school. Jessie <jpetersen@tcco.com> Bremerton, WA - Tuesday, November 15, 2005 12:05 AM CST good morning savannah, sending love from us to you!! http://tinypic.com/fnz7go.jpg [IMG]http://tinypic.com/fnz7go.jpg[/IMG]http://tinypic.com/view/?pic=fnz7gogrammy and pawpaw <mrsbezly@aol.com> the plains, va usa - Monday, November 14, 2005 7:16 AM CST ![]() Desiree Nichols (Sammy's mommy) www.caringbridge.org/va/princesssammy <rickysammyhannah@aol.com> Gordonsville , VA USA - Friday, November 11, 2005 3:00 PM CST lookie at what i found! this is the doll you want santa to bring you. isnt she beautiful? love and huggs http://tinypic.com/flamgw.jpg [IMG]http://tinypic.com/flamgw.jpg[/IMG]http://tinypic.com/view/?pic=flamgwgrammy <mrsbezly@aol.com> the plains, va usa - Friday, November 11, 2005 12:14 AM CST Hi, Savannah. I learned about you from Amber Heiss. You are a beautiful little girl. I'm so sorry you weren't able to start school right on time. I will be sure and pray for you and your family. God can and will help when it seems like no one else cares or is listening. God always listens. He love you too! Linda Holland, OH - Thursday, November 10, 2005 1:22 PM CST sending love and huggies to you savannah.... http://tinypic.com/fjj2tx.png [IMG]http://tinypic.com/fjj2tx.png[/IMG]http://tinypic.com/view/?pic=fjj2txgrammy and pawpaw <mrsbezly@aol.com> the plains, va usa - Wednesday, November 9, 2005 6:02 AM CST You need a BIG (((HUG))) and a pat on the back. Anyone in your situation would be overwhelmed. I wish there was something I could do. I will pray for you and your family, and most especially beautiful Savannah. Cindy <deb8able@aol.com> VA - Monday, November 7, 2005 12:00 AM CST thank you savannah, for a most happy weekend....we did enjoy your company!! love you http://tinypic.com/fedhza.jpg [IMG]http://tinypic.com/fedhza.jpg[/IMG]http://tinypic.com/view/?pic=fedhzagrammy and pawpaw <mrsbezly@aol.com> the plains, va usa - Monday, November 7, 2005 10:48 AM CST Hugs to you. Savannah is beautiful. I cannot imagine having to deal with all her medical problems - she is very fortunate to have a mommy who is so dedicated to her. Barb NE - Sunday, November 6, 2005 4:15 PM CST Greetings to you from Winnie The Pooh with lots of hugs and best wishes too! ~*~Benji's page~*~ <zello2@cableone.net> Ocean Springs, Ms - Sunday, November 6, 2005 12:26 AM CST I just read your post. It made me cry because I know how hard things can be for everyone. I am sorry to hear all that, things will get better. I understand your feelings of being alone. If I didn't have the families I have met on the Rettnett-i would of really been lost. I hope you and her get to feeling better soon. We (RS mommies) have to stay strong and continue to advocate for our daughters-even when life becomes exhausting. I will check up on you guys soon. Hang in there! www.caringbridge.org/ks/alyssadarrah shannon <shaystoiber@sbcglobal.net> leawood , ks usa - Saturday, November 5, 2005 1:29 AM CST I have just read your story and it has bought tears to my eye's. The world should have more Mums like you. lynda_koalabearhugs Ipswich, Qld Australia - Tuesday, November 1, 2005 11:15 PM CST ![]() love rick desiree and the kids <rickysammyhannah@aol.com> gordonsville, va - Monday, October 31, 2005 7:24 PM CST BOOOOOOOOOOO....LOTS OF HUGS AND LOVE, Link: http://tinypic.com/f2k4gm.gif Tag: ![]() Img: [IMG]http://tinypic.com/f2k4gm[/IMG] Url: http://tinypic.com/view/?pic=f2k4gm GRAMMY AND PAWPAW <mrsbezly@aol.com> the plains, va usa - Monday, October 31, 2005 5:01 AM CST ![]() LOVE ALWAYS BRENDA My Loving Dad's Site <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Sunday, October 30, 2005 11:32 PM CST I'm so sorry to hear about Savannah. My Sky has a lot of medical issues too, fortunately not as bad as Savannah, but your update made me cry, I feel for you guys and know a lot about what you're feeling. I hope things get better for her soon, and she can go and enjoy school. www.caringbridge.org/oh/skylarbaker Nikki, Mikaela, and Skylar B <nd6780@peoplepc.com> toledo, oh usa - Saturday, October 29, 2005 9:10 AM CDT I'm so sorry that things have been so tough. Congratulations on being such an advocate for your child. It's terrible that you have to do that, both with the medical community and the school, but isn't Savannah lucky to have you to do it? Don't you wish you had an advocate of your own, too? Good luck with your appointments, too. I hope you soon find some answers or help for your chronic pain. Linda Irving, TX - Friday, October 28, 2005 4:43 PM CDT So happy you have updated your webpage. We have checked on you often and have hoped everything is ok. Gosh, that stinks about not getting to go to school and being sick and everything else that is going on with you guys. Hang in there and keep plugging along. Things will get better! www.caringbridge.org/oh/amberheiss Tami, Amber's mom <tamiheiss@sbcglobal.net> Northwood, OH USA - Thursday, October 27, 2005 7:00 PM CDT Hi there beautiful Savannah! I work with your Grammy. She makes me smile and I make her smile. Smiles are wonderful! Please come to our school and visit us soon. You are a special little angel, sweetie. Kathy <kathy6754@hotmail.com> - Thursday, October 27, 2005 5:49 PM CDT savannah, sending an angel to watch over you..we love you so much Link: http://tinypic.com/f08bdl.gif Tag: ![]() Img: [IMG]http://tinypic.com/f08bdl[/IMG] Url: http://tinypic.com/view/?pic=f08bdl grammy and pawpaw <mrsbezly@aol.com> the plains, va usa - Tuesday, October 25, 2005 5:28 PM CDT Love the picture of the grandparents. Hope you are all doing well. Rox <brmichael@aol.com> - Tuesday, October 25, 2005 4:44 PM CDT Hi guys! Just checking on all of you and Savannah too :) Sorry things are rough right now. I'll keep you all in my prayers. Lots of hugs! Carole (FOA/AOE) <cmfranklyn@yahoo.com> Springfield, VA - Tuesday, October 25, 2005 3:02 PM CDT HI SAVANNAH, WE HOPE YOU ARE FEELING BETTER AND HAVE A GOOD DAY AT SCHOOL ON MONDAY! HUGS Link: http://tinypic.com/ev2y6d.jpg Tag: ![]() Img: [IMG]http://tinypic.com/ev2y6d[/IMG] Url: http://tinypic.com/view/?pic=ev2y6d GRAMMY AND PAWPAW <MRSBEZLY@AOL.COM> THE PLAINS, VA USA - Sunday, October 23, 2005 6:24 PM CDT ![]() Hugs from Emma!! Have a great day!! Lauren & Emma <markhamfamily@msn.com> - Monday, October 17, 2005 8:22 PM CDT ![]() Have faith in your dreams and someday Your rainbow will come shining through. No matter how your heart is grieving , If you keep believing, The dream that you wish will come true. --Cinderella Hi from Emma's Big Sis Madi!! Madi & Lauren <markhamfamily@msn.com> - Thursday, October 13, 2005 4:14 PM CDT ![]() LOVE ALWAYS BRENDA My Loving Dad's Site <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Thursday, October 13, 2005 1:55 PM CDT If God Brings you to it He will bring you through it. God Bless and grant you courage , patience and love It was nice to have met you today at the gift shop at Children's Hospital YOu are in my thoughts and Prayers. dale dodson <daledd@comcast.net> richmond, va usa - Tuesday, October 11, 2005 3:48 PM CDT Hello to Mom,Dad,Savannah & siblings. I just ran across your website and all I can say is that I was blessed to do so. I am a nurse who cares for a young lady named Baylee who also has RS... These children are truly angels. May God Bless you all and be your strength daily. Much love to the whole family, J.Barrasso Joy <Tntinak@aol.com> Eglin AFB, FL 32542 - Monday, October 10, 2005 4:32 PM CDT ![]() Hi Savannah! We hope you had a SUPER day!! Happy 6th Birthday!! (((HUGS))) Lauren & Emma <markhamfamily@msn.com> - Sunday, October 9, 2005 10:16 AM CDT A BIG HAPPY BIRTHDAY TO YOU SAVANNAH. WE LOVE YOU SO MUCH. HOPE YOU HAVE A HAPPY, FUN FILLED DAY. PAW PAW....GRAMMY <mrsbezly@aol.com> THE PLAINS, VA USA - Saturday, October 8, 2005 12:49 AM CDT Emma Love, Emma You are in our prayers. (((HUGS))) Lauren & Emma <markhamfamily@msn.com> - Tuesday, October 4, 2005 9:10 PM CDT see you tomorrow savannah!! we can hardly wait....love and hugs grammy and pawpaw <mrsbezly@aol.com> the plains, va usa - Thursday, September 29, 2005 6:33 PM CDT You all are always in our thoughts and prayers... Rick, Desiree & Kids <rickysammyhannah@aol.com> Gordosnville, VA USA - Wednesday, September 28, 2005 9:37 AM CDT Thinking of you all. rox goldvien, va usa - Friday, September 23, 2005 4:34 PM CDT Just Tinkin' About You! ![]() Love & Pixie Dust, Emma I have been thinking about Savannah a lot lately, hoping you are all doing well. Keeping your entire family in our prayers. Take care. (((HUGS))) Lauren & Emma <markhamfamily@msn.com> - Sunday, September 18, 2005 9:31 PM CDT We check on you often. Hope everything is ok. We are anxious to hear what is going on in your life. Take care. www.caringbridge.org/oh/amberheiss Tami, Amber's mom <tamiheiss@sbcglobal.net> Northwood, OH USA - Sunday, September 18, 2005 5:25 PM CDT ![]() Ricky, Sammy, and Hannah <rickysammyhannah@aol.com> Gordonsville, VA USA - Monday, September 12, 2005 10:32 AM CDT hi savannah, thinking about you this morning! have a good day. we love you so much. be a good girlie for mommy today. huggs grammy and pawpaw <mrsbezly@aol.com> the plains, va usa - Friday, September 9, 2005 4:25 AM CDT ![]() Hi Savannah & Family! We hope you all are doing well. We have been thinking of you all. Sending hugs & smiles your way! Take care. Lauren & Emma <markhamfamily@msn.com> - Wednesday, August 31, 2005 5:58 PM CDT GOOD MORNING SAVANNAH...GUESS WHAT? GRAMMY WENT CLOTHES SHOPPING FOR YOU AND GOT YOU SOME PRETTY COOL SCHOOL CLOTHES!! I WANT YOU TO LOOK IN STYLE WHEN YOU START YOUR NEW SCHOOL! I ALSO GOT YOU SOME PRETTY BOWS FOR YOU HAIR...I HOPE YOU ARE FEELING OK. YOU ARE A RAY OF SUNSHINE IN MY LIFE AND WE LOVE YOU SO MUCH. HUGGS...GRAMMY AND PAW PAW GRAMMY AND PAWPAW <MRSBEZLY@AOL.COM> THE PLAINS, VA USA - Wednesday, August 24, 2005 5:12 AM CDT ![]() BRENDA My Loving Dad's Site <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Monday, August 22, 2005 12:07 AM CDT Hi Savannah and Family ~ Our thoughts and prayers go out to you. We too are living with an angel... Daphni Jo was diagnosed with RS last December. We will check back often to see how your family is doing. Take care, The Irbys http://www3.caringbridge.org/wa/daphnijo/ Jerimarie Irby <irbys@nwinfo.net> Cle Elum, WA USA - Saturday, August 20, 2005 8:46 PM CDT Hi Savannah & family! Hope things are going a bit smoother these past few weeks. You've been in our thoughts & prayers. Emma is hopefully on her way to getting rid of that icky infection she's been fighting. We were going to wait until our Sept appt with the neuro for the Rett test...but now that she has a PICC line, we may do it this or next week. Take care. (((HUGS))) Lauren & Emma <markhamfamily@msn.com> - Tuesday, August 9, 2005 4:42 PM CDT ![]() BRENDA My Loving Dad's Site <brurka@shaw.ca> EDMONTON,ALBERTA CANADA, - Tuesday, July 19, 2005 12:19 AM CDT HEY SAVANNAH...GRAMMY AND PAW PAW ARE HERE IN PENNSYLVANIA..WE HAVE BEEN HERE SINCE LAST SATURDAY. WE WILL BE COMMING HOME ON FRIDAY. WE MISS YOU ALL SO MUCH. THINKING ABOUT YOU ALL THE TIME WHILE WE ARE HERE. I WANT TO TAKE YOU TO THE FAUQUIER FAIR ON SATURDAY. WE WILL HAVE LOTS OF FUN TOGETHER. SEE YOU THEN...LOVE AND HUGGS FROM GRAMMY AND PAW PAW GRAMMY AND PAW PAW <MRSBEZLY@AOL.COM> THE PLAINS, VA USA - Wednesday, July 13, 2005 1:15 PM CDT I got your CB link from amber's. My daughter also has RS. Cute page. Stay positive. alyssa www.caringbridge.org/ks/alyssadarrah shannon stoiber <shaystoiber@sbcglobal.net> leawood , ks usa - Monday, July 11, 2005 1:01 AM CDT Your always in our thoughts and prayers.... Ricky, Sammy, and Hannah <rickysammyhannah@aol.com> Gordonsville, VA USA - Wednesday, June 29, 2005 8:41 AM CDT Hope all is going okay with you all! prayers and hugs, as always! Carole <cmfranklyn@yahoo.com> Springfield, VA - Tuesday, June 28, 2005 3:20 PM CDT ![]() ![]() EDMONTON,ALBERTA CANADA, - Monday, June 27, 2005 8:49 PM CDT good morning savannah!! good luck with your dr appt today...paw paw and i are thinking about you...i will be down on friday afternoon to pick you up...we love you so much... grammy <mrsbezly@aol.com> the plains, va usa - Tuesday, June 21, 2005 5:03 AM CDT ![]() Emma Lauren & Emma <markhamfamily@msn.com> - Monday, June 13, 2005 10:45 AM CDT I read this in another childs caringbridge journal.... ~In My Perfect Child As my daughter was born, I wanted her to be perfect. When she was a baby, I wanted her to smile and to be content Playing with her toys. I wanted her to be happy and to laugh continually instead Of crying and being demanding. I wanted her to see the beautiful side of life. As she grew older. I wanted her to be giving instead of selfish. I wanted her to skip the terrible twos. I wanted her to stay innocent forever. As she became a teenager, I wanted her to be obedient and not Rebellious, mannerly and not mouthy. I wanted her to be gentle, Kindhearted, and full of love. "Oh God, give me a child like this," was often my prayer. One day He did. Some call her handicapped…I call her perfect! Love, Rick, Desiree, Ricky, Sammy, & Hannah <rickysammyhannah@aol.com> - Friday, June 10, 2005 9:52 PM CDT I am sorry to hear about the problems you are having with your back/leg. I sure hope that the injections help a lot. I was really sick about two months ago and my Dr insisted that I needed "less stress, and more rest". HA! Who is going to take care of the kids then? I hope you feel better soon. Sara and ~Emily~ <waffle13@sbcglobal.net> Southern California, - Thursday, June 9, 2005 5:14 PM CDT Hi Savannah, I'm one of your Mommy's old friends and I just saw your website. You look so beautiful and full of love. Keep smiling for your Mommy, she needs it. You and your family are in my prayers. Lisa Compton <lisamcompton@hotmail.com> Gainesville, VA USA - Wednesday, June 8, 2005 5:47 PM CDT Hi there! I am on Rettnet and decided to check out your site. Savannah is absolutely beautiful, and I hope that things get better for her soon. Hang in there! We will be thinking of her! My daughter is Kylie, she is almost 7 and she has Rett too. We are also friends with Amber and Tami (we met on the internet and then at last year's IRSA conference). I am so amazed that you guys can handle your lives AND keep your websites updated too. You are doing an awesome job! Kristen Hawkins <Khawk195@comcast.net> Lansing, MI - Saturday, June 4, 2005 9:59 PM CDT Hi there. I got your link from the Yahoo group. Just wanted to say I hope the news thing went well & I think it's awesome that you are doing that, to spread the word on Rett Syndrome. As we are researching it as a possible dx for Emma, I am amazed at the lack of knowledge and information there is on it--or that so much of what we do find is all science jargon that takes us hours to figure out! Thankfully I know Baylor is doing their big studies. Savannah is so beautiful, give her some hugs from Emma. Take care. Lauren & family <markhamfamily@msn.com> - Friday, June 3, 2005 10:21 AM CDT I've been hearing that people can't get into my guestbook I fixed it now .Thinking of you always. EDMONTON,ALBERTA CANADA, - Wednesday, June 1, 2005 7:42 PM CDT I am so sorry to hear of all the troubles you have had lately. I've been having health issues myself, and I can relate to how hard it is when you have a child with special needs. Sometimes I feel like I'm going to simply collapse. Hang in there ... and know that strangers in Southern California are thinking of you and Savannah. Sara and ~Emily~ <waffle13@sbcglobal.net> Southern California, - Saturday, May 28, 2005 10:51 PM CDT hi savannah, omg..you are going to be on tv!! how exciting is that??? you smile pretty for the cameras as you always do in life...i can hardly wait to see you...i will pick you up after work on friday...if i can get you in the car from that swelled head you get by being on tv!! ha ha....love grammy and paw paw grammy <mrsbezly@aol.com> the plains, va usa - Wednesday, May 25, 2005 8:20 AM CDT EDMONTON,ALBERTA CANADA, - Wednesday, May 25, 2005 2:31 AM CDT Always thinking of you.... Ricky, Sammy, Hannah <rickysammyhannah@aol.com> Gordonsville, VA USA - Monday, May 23, 2005 7:50 PM CDT So sorry to hear the troubles you have had lately. We have checked in on you often. Take care. www.caringbridge.org/oh/amberheiss Tami and Amber Heiss <tamiheiss@sbcglobal.net> Northwood, OH USA - Tuesday, May 17, 2005 9:27 PM CDT good morning savannah ....oh how i miss you! i worked last saturday..and didnt get a chance to see you..but this friday after work ..i will be there to pick you up to spend the weekend with us...i can hardly wait! you light up my life honey....see you soon...grammy grammy <mrsbezly@aol.com> the plains, va fauquier - Tuesday, May 17, 2005 6:02 AM CDT Edmonton,Alberta Canada, - Wednesday, May 11, 2005 10:56 AM CDT Wishing you a terrific Mother's Day filled with tons of love, laughter, and family! Sammy, Ricky, and Hannah <rickysammyhannah@aol.com> Gordonsville, Q USA - Sunday, May 8, 2005 2:56 PM CDT hi savannah, i'm up late and i know i have not signed in in along time, but ido read your updates all the time.you are getting so tall, and twice as beautiful!!!! i love you so very much honey. tell mommy i love her too. write later love nana sherry nichols <sherry0418@msn.com> warrenton, va - Saturday, May 7, 2005 1:44 AM CDT hi savannah, i hope you are being a good girlie! we are thinking about you. we miss you so much. i hope big bubbie and baby bubby are being real good to you too. i know you are always good to them. paw paw and i send our love and kisses to you. love you bunches grammy and paw paw <mrsbezly@aol.com> the plains, va usa - Tuesday, May 3, 2005 6:07 PM CDT Just wanted to let you know we were thinking about you! Sammy, Ricky, and Hannah <rickysammyhannah@aol.com> Gordonsville, VA USA - Sunday, May 1, 2005 10:30 PM CDT hi savannah...i am sorry i couldnt make it down on sat. i had the stomach virus and was sick all day and night. i feel a little better now. i didnt want to make you all sick. i miss you so much. i hope you had a good weekend. grammy loves you.....huggs grammy <mrsbezly@aol.com> the plains, va usa - Sunday, May 1, 2005 11:43 AM CDT Dropping by to let you all know that I am thinking of you! My prayers are with you. xoxo Amy *FoA/Ra* <afulcher@localnet.com> PA - Thursday, April 28, 2005 8:17 AM CDT Hi Savannah and family! Although you do not know me, I wanted to let you know what an impact you have had on me and how helpful your story has been for a recent school paper I chose to write and present on Rett Syndrome. I am hoping to spread the awareness of this upsetting disorder to my fellow peers on not only the importance of Rett Syndrome, but how to handle students with special needs as these in a classroom. We are all future teachers in the waiting, and your story has opened my eyes tremendously! Thank you for being an inspiration, and take care! Shelby <smottern@ycp.edu> Gettysburg, PA USA - Wednesday, April 20, 2005 7:20 PM CDT I was thinking about you all...thought I would check in with ya, and see how things are going!!! Hope all is going well with you cutie!!! Haven't seen an update lately... Poor mommy....never has time... I hope you know how great your mommy is!!!! She is a great women....with a HUGE heart.. Love ya guys, Rick, Desiree, Ricky, Sammy, and Hannah Desiree <rickysammyhannah@aol.com> Gordonsville, VA USA - Monday, April 18, 2005 8:37 PM CDT GOOD MORNING SAVANNAH! I ENJOYED SPENDING THE NIGHT WITH YOU ON FRIDAY..YOUR BED IS SOOOO SOFT! I WILL PICK YOU UP ON FRIDAY....BE A GOOD GIRL. LOVE YOU BUNCHES, GRAMMY GRAMMY <MRSBEZLY@AOL.COM> THE PLAINS, VA USA - Tuesday, April 12, 2005 3:58 AM CDT just wanted to say hi, and let you know that i'm thinking about you. Cori and steven had a nice time visiting with you yesterday. Hugs and Kisses Aunt Crissy Crystal Bell Warrenton, Va USA - Sunday, April 10, 2005 2:08 AM CDT I hope you are doing better in the days to come. You are such an angel. The Lord is watching over you and your special soul. I will pray everyday for you and your family. Carisa Hurt, Va USA - Friday, April 1, 2005 3:26 PM CST Hope all is well with you. Still checking in to see how you are doing. www.caringbridge.org/oh/amberheiss Tami Heiss <tamiheiss@sbcglobal.net> Northwood, OH USA - Thursday, March 31, 2005 4:29 PM CST Hi sweetie pie! I haven't seen you in too long for pete's sake! Kisses!! Love ya--Kelly Kelly Gray culpeper, va usa - Tuesday, March 29, 2005 10:18 AM CST Happy Easter Savannah! Angela Griner aka Calvin's Mom <nick11951@yahoo.com> Pearson, GA USA - Sunday, March 27, 2005 12:42 AM CST Sammy <rickysammyhannah@aol.com> Gordonsville, VA USA - Friday, March 25, 2005 2:08 PM CST Just wanted to let you know that beautiful Savannah is in my daily thoughts and prayers. ![]() Angela- -HEATHER GRACE Ma - Thursday, March 24, 2005 1:45 PM CST HAPPY ST. PATRICKS DAY! HOPE YOUR WEARING GREEN!! LOVE YA SO MUCH! Sammy, Ricky, and Hannah Bear! <rickysammyhannah@aol.com> Gordonsville, VA USA - Thursday, March 17, 2005 1:09 PM CST HAPPY ST PATTYS DAY SAVANNAH!! LOVE AND HUGGS, GRAMMY AND PAW PAW LIZ <mrsbezly@aol.com> THE PLAINS, VA USA - Thursday, March 17, 2005 11:40 AM CST Hi Savannah! Hope that the seizures will ease up on you real soon. Thinking of you! ![]() ~Joanne’s Corner~ ![]() With love, Joanne and the Dream Team ~Bridge of Dreams ~ Joanne <joanne173@gmail.com> - Monday, March 14, 2005 1:48 AM CST Just happen to come across your web page, have not spoken to you people as yet and am going through similar events and am lately in and out of hospital with my little Angel Kirsty Raasch, I just feel that this terrible Syndrome is getting the better of her. Give your beautiful little Angel a big hug from little Kirsty (Sunny South Africa.) March 12th 2005 Carol Raasch <kirotech@mweb.co.za> Durban, South Africa - Saturday, March 12, 2005 10:17 AM CST Still checking in on you and seeing how you are doing. Hope the seizures go away real soon. Tami and Amber www.caringbridge.org/oh/amberheiss Tami Heiss <tamiheiss@sbcglobal.net> Northwood, OH USA - Friday, March 11, 2005 9:39 PM CST You odn't know me but I just wanted to say hi and let you know that I am praying for you. I hope today was a better day for you than yesterday and that tomorrow is even better than that. Jennifer <charay913@yahoo.com> Wichita Falls, Texas - Thursday, March 10, 2005 6:46 PM CST hi sweetie! this is grammy checking in on you. i hope you are feeling better and the seizures are gone! i miss you but hope to be down to sit with you on friday night. thinking about you. sending love and lots of huggs...grammy(: grammy <mrsbezly@aol.com> the plains, va usa - Wednesday, March 9, 2005 6:55 PM CST Love, Sammy <rickysammyhannah@aol.com> Gordonsville, VA USA - Monday, March 7, 2005 9:31 PM CST Just checking in on Savannah! Keeping you and her in our prayers :) Carole (DC Metro FoA/RA board) <cmfranklyn@yahoo.com> Springfield, VA - Sunday, March 6, 2005 5:04 PM CST Savannah is in my prayers! Tina & Lance www.caringbridge.org/md/lance <lneonkia@comcast.net> - Wednesday, March 2, 2005 4:44 PM CST Just found your website and wanted to say hi! How are you guys doing? Hope everything is going ok! ![]() ~Joanne’s Corner~ ![]() ~Bridge of Dreams ~ Joanne <joanne173@gmail.com> - Wednesday, March 2, 2005 9:55 AM CST Hi Angel! We have heard so many sweet things about you from your Mom. We are walking with her and your Aunts in the TNT marathon. We loved your website and you'll stay in our prayers~Donna & Natasha Natasha Chance <anchance1@msn.com> Louisa, VA USA - Monday, February 28, 2005 2:59 PM CST I am so glad that you are all feeling better. You are always in my prayers and thoughts. I love you beautiful smile. Love Charity & Skylar www.caringbridge.org/fl/skylarann Charity Proffitt <madvamp78@yahoo.com> Lakeland, fl usa - Friday, February 25, 2005 8:49 PM CST (((HUGS))) Sammy <rickysammyhannah@aol.com> - Friday, February 25, 2005 9:46 AM CST hi savannah...i am sitting here thinking about you and missing you so much.....i love you honey even though i am not there physically...i am there in my heart...i love your hair cut....i love you...so much ....missing you this weekend....grammy grammy <mrsbezly@aol.com> the plains, va usa - Saturday, February 19, 2005 3:56 PM CST Just checking in on you guys! Wow! You have had quite a few weeks. Glad you are both getting back to normal. www.caringbridge.org/oh/amberheiss Tami Heiss <tamiheiss@sbcglobal.net> Northwood, OH USA - Thursday, February 17, 2005 8:39 PM CST Sammy <rickysammyhannah@aol.com> Gordonsville, VA USA - Monday, February 14, 2005 8:23 AM CST Savannah~ you are such a special person to me! I can not tell you how I enjoy being your teacher! This year has been tough, (you had to stay at home and not go to school) but the best part is how well I have gotten to know your mom and be a part of your home! Beth~ a speical thanks to you you will never know the lessons of love~ you, Chris, Savannah and the boys have taught me! I maybe Savannah's teacher but you all have taught me more about life and love than you will ever know! Get well soon! ~ Kara Kara Creasy <creasykc@comcast.net> ARlington, VA USA - Monday, February 7, 2005 2:39 PM CST In my thoughts and prayers Savannah!! Hope you are feeling better soon! :) Kim 'Friends of Allie/Raise Awareness' <jessesmom1972@yahoo.com> Las Vegas , NV USA - Sunday, February 6, 2005 4:27 PM CST Savannah, I am sorry you are all feeling bad. I hope you get better and can get back home soon. This has to be a stressful time for all of you. Please know you are in our prayers and we are holding your family up. Tarah ~friends of Allie and Raise Awareness~ www3.caringbridge.org/tx/colbytr <tarah@aol.com> Austin, TX - Sunday, February 6, 2005 1:42 PM CST Savannah, I hope you and your Mommy are feeling better soon, Sammy's mommy told me about you and how special you are. Please know you are in our thoughts and prayers, Lyn Wyatt www.caringbridge.org/nj/justinw Lyn Wyatt <ddog117@comcast.net> stratford, nj usa - Sunday, February 6, 2005 11:20 AM CST Savannah, I hope you and your Mommy feel better soon. ![]() ![]() ![]() ![]() Dana Sanford ~*~Friends of Allie/Raise Awareness~*~ <Aunty.Dana@Gmail.com> Spring Arbor, Mi - Sunday, February 6, 2005 1:05 AM CST Savannah, Little angel, YOU ARE GORGEOUS!!! I hope that you get to feeling better soon! Same for your momma! Blessings in the Lord, Amy Amy <sea_angel73@gobigwest.com> Meridian, ID USA - Saturday, February 5, 2005 10:48 PM CST Oh sweet Savannah, I am so sorry your stuck in the hospital with the flu and seizures again, I hope they go away fast. Poor lil pumpkin, and without mommy to boot! (((mega hugs))) I will be praying for both you and your mom to get better soon so you two can be together again. Shannon NY - Saturday, February 5, 2005 10:08 PM CST I am so sorry to hear all of you are sick! I pray it will pass quickly.... keep smiling cutie poo!!! We love you... Rick, Desiree, Ricky roo, Sammy, & Hannah bear <rickysammyhannah@aol.com> Gordonsville, VA USA - Saturday, February 5, 2005 8:57 AM CST Another beauty queen! If only our angels could participate in Miss Universe ... sending hugz and love from a Moroccan family living in Belgium. (Rania 8 rs) Guerti family <guerta@europe.stortek.com> Antwerpen, belgium - Tuesday, February 1, 2005 3:50 AM CST Savannah is beautiful! I am so thrilled each time I get to read about her and her photos. I worked with Savannah's grandmother at Brumfield Elementary. I now live in Utah. My prayers are with you sweet Savannah and your family. Sue Davis <sue_davis@byu.edu> Riverton, UT 84065 - Monday, January 31, 2005 8:56 AM CST Dear friend I'm very happy that things are not going so bad Beatriz also wakes very early each morning but i'm already accustomed to that I whish you and your princess all the best Pls tell your daughter that someone in Portugal loves her and pray for her everyday Paula Neves mum of Beatriz <P.Neves@jfhillebrand.com> matosinhos, Portugal - Monday, January 31, 2005 4:43 AM CST Your a beautiful girl! Danni (another Rett angel) Danni, Ellen & Chris <ayerbugs@aol.com> Concord, NH - Sunday, January 30, 2005 8:23 PM CST Hi gorgeous!! I'm so very happy that the seizures are leaving you alone! Many kisses, hugs and loves!!--K Kelly Gray <fairietears@myway.com> culpeper, va usa - Sunday, January 30, 2005 5:50 PM CST I enjoyed the web site, I wish that I knew how to make one for my little Maiya 2.5yrs RS T158M. Savannah has a great smile, what a pritty girl! Scott Novitsky <smlm@comcast.net> Grand Rapids, MI USA - Sunday, January 30, 2005 5:23 PM CST Francis, you've put together a webpage worthy of an angel. I can see why beautiful Samantha chose each member of her family, puppies included. We wish you all great Love and comfort. Misha and I send our best to your sister and Sammy too. Kristin and Misha (R.S. 1968 - 2002) <themoonstone@earthlink.net> Fairhope, AL USA - Sunday, January 30, 2005 3:12 PM CST What a beautiful little girl! You all are in our thoughts and prayers. Caitlin Jackson/ 6rs and Family <caitlin5@ctc.net> kannapolis, nc usa - Sunday, January 30, 2005 2:05 PM CST Just wanted to let you know we were thinking about you!!!! And did you know you have a great mommy!!! She is going to walk 26.2 miles with me!!! I think she is pretty darn awesome!!!! We love you cutie pie!!! Keep smiling! Rick, Desiree, Ricky roo, Sammy, and Hannah bear <rickysammyhannah@aol.com> Gordonsville, VA USA - Saturday, January 29, 2005 9:12 PM CST Sammy <rickysammyhannah@aol.com> Gordonsville, VA USA - Monday, January 17, 2005 1:26 PM CST Hey Savannah: Just checking in on you...Actually I saw you last night! But you were sleeping!!! I am so glad that your medicene is finally making things a little less tramatic for you! We love you..... And hope to see you soon!!!! Love, Rick, Desiree, Ricky roo, Sammy, & Hannah Bear!!! Desiree <rickysammyhannah@aol.com> Gordonsville, VA USA - Saturday, January 15, 2005 2:02 PM CST Love reading about your life Savannah. I hope Amber and you can meet some day. Hang in there! www.caringbridge.org/oh/amberheiss Tami Heiss <tamiheiss@sbcglobal.net> Northwood, OH USA - Wednesday, January 12, 2005 11:45 AM CST Yeah Savannah! Glad to hear you're feeling a little better - we're keeping you in our thoughts and prayers. Keep smiling! Carole and family Carole Franklyn <cmfranklyn@yahoo.com> Springfield, VA - Tuesday, January 11, 2005 2:59 PM CST She is a very beautiful girl. God Bless her and your family. I will keep you all in my prayers. Just remember to look into the heavens and smile. He is watching. Dayna Stevenson <shortiedee@sbcglobal.net> Gary, IN 46406 - Monday, January 10, 2005 6:11 PM CST I just learned of this terrible condition today. May God bless you, Savannah, for all the joy you bring to those who have the pleasure of knowing you. Paula Fitzemeyer <PPagan56@aol.com> Ruther Glen, VA United States - Monday, January 10, 2005 6:09 PM CST good morning savannah...thinking about you this morning and wishing you a day of smiles...i had a great visit with you on sat nite and sunday morning..so glad you are a bit better and smiling again...grammy and pawpaw send you their love...huggssssssssss grammy and pawpaw <MRSBEZLY@AOL.COM> THE PLAINS, va - Monday, January 10, 2005 5:55 AM CST Sending you wishes for some rest and comfort for your little girl. I hope she is smiling again soon. Liz from *~Friends of Allie~*(formerly Allie's Angels) <queenliz@shaw.ca> Victoria, BC, - Thursday, January 6, 2005 8:22 PM CST I am so sorry Savannah is going through this. She is a beautiful child. She is in my prayers. I hope the med increase helps get the seizures under control soon. God Bless your family. Karen(FOA) <karen0801@aol.com> McKinney, TX - Tuesday, January 4, 2005 9:40 AM CST good morning savannah...grammy and pawpaw are thinking about you and send their love to you...sure hope you will be feeling much better soon....i wish i was there with you...hang in there honey...huggs..grammy and pawpaw grammy and pawpaw <MRSBEZLY@AOL.COM> THE PLAINS, va - Tuesday, January 4, 2005 6:17 AM CST She will be in my prayers. Tina and Lance www.caringbridge.org/md/lance <lneonkia@comcast.net> - Monday, January 3, 2005 8:44 PM CST Just wanted to check in on your website again. I hope things are getting better for you all. I pray you find an end to Savannah's seizures. Tami Heiss <tamiheiss@sbcglobal.net> Northwood, OH USA - Monday, January 3, 2005 3:32 PM CST Hi Savannah... Just checking in to see how things are going! I hope this New Year is filled with lots of love, family, and laughter... And hopefully medically uneventful. We love you so much, and are very proud to have you in our family! Keep smiling cutie pie! Desiree Nichols <rickysammyhannah@aol.com> Gordonsville, VA USA - Sunday, January 2, 2005 8:47 PM CST good morning savannah,mommy,daddy,cameron,levi...there is nothing we wont do for you...we are always here no matter what to help you all when u need us...savannah i wish we could take away all the hurt in you little life...you are a precious and strong girlie..we cherish you so much...and our precious daughter frances..you will never know how we admire and love you...you are what being a mother is all about....and chris...such a wonderful father and son.....thank you for allowing us to love our precious grandkids...grammy will be down to sit with savannah so you all can get a little rest.....love you all so much..hi cameron and levi!! huggs....pawpaw and grammy grammy and pawpaw <mrsbezly@aol.com> the plains, va usa - Friday, December 31, 2004 7:58 AM CST Savannah, You are in my thoughts and prayers sweetie, I hope the meds kick in quickly! Shannon ~*~Friends of Allie ~*~ - Thursday, December 30, 2004 12:47 AM CST She will be in my prayers. I hope the seizures get under control. Love the poem on the first page. Tina-www.caringbridge.org/md/lance <lneonkia@comcast.net> - Thursday, December 30, 2004 12:36 AM CST I hope everything is getting under control with the seizures. I will continue to pray for your family!!! Hugs and prayers! Renee ~~~Friends of Allies~~~ <mpsrds76@hotmail.com> - Thursday, December 30, 2004 12:27 AM CST I am so sorry that your Christmas was a rough one! I hope it gets better!Your Mom told me that sometimes when you come out of a seizure that you will smile, and once again your strength and bravery, goodness and light have touched my heart.You have such a special soul, I love you honey, I hope to see you soon--K Kelly Gray <fairietears@myway.com> warrenton, va usa - Tuesday, December 28, 2004 9:56 AM CST Hey Savannah... Only one more night and santa will be here!! Are you getting excitied yet??? I am!! Hope to see you over the holidays cutie pie! Just wanted to wish you a very Merry Christmas, and Happy New Year...filled with lots of family, love, laughter, food, and presents too! Love, Rick, Desiree, Ricky roo, Sammy, and Hannah bear! Desiree Nichols <rickysammyhannah@aol.com> Gordonsville, VA USA - Thursday, December 23, 2004 11:12 PM CST HI SAVANNAH,LEVI,CAMERON..MERRY CHRISTMAS!! WE WILL COME TO SEE YOU ON CHRISTMAS EVE BEFORE SANTA...WE HOPE SANTA WILL BRING YOU LOTS OF GOODIES! WE KNOW HE WILL...LOVE YOU ALL SO MUCH...GRAMMY AND PAW PAW GRAMMY...PAWPAW <MRSBEZLY@AOL.COM> THE PLAINS, VA USA - Thursday, December 23, 2004 9:01 AM CST hi savannah...thank you for keeping grammy and paw paw entertained this past weekend..we had fun as always..we are thinking about you ...love you ...grammy and pawpaw grammy and paw paw <mrsbezly@aol.com> the plains, va usa - Monday, December 20, 2004 7:49 PM CST Hello Savannah, you are a beautiful angel. i will be keeping you and your family in my thoughts and prayers. Love Charity and Skylar Proffitt rs t158m Charity Proffitt <madvamp78@yahoo.com> lakeland, fl usa - Friday, December 17, 2004 3:23 PM CST hi Savannah... We went and saw the Childhood Cancer Awarness tree last night in D.C. It was so beautiful. It was covered in gold ribbons. We saw Sammy's name a bunch of times just looking at eye level. We all need to get together and go down there. I am sure you would love it. Plus there was so many other neat Christmas things we saw along the way. I hope all is going well for ya girly girl. Keep smiling...and be good! Santa is watching!!! Ya... he's watching that little Levi too! Everytime he gets you...Santa will bring one more present just for you!!! Love, Rick, Desiree, Ricky roo, Sammy, and Hannah Bear Desiree Nichols <rickysammyhannah@aol.com> Gordonsville, VA USA - Sunday, December 12, 2004 11:18 PM CST good morning savannah....grammy and paw paw send you their love....do u want to go see santa? let grammy know....thinking about you ...hope you have a great day!! grammy and paw paw <mrsbezly@aol.com> the plains, va usa - Thursday, December 9, 2004 4:17 AM CST Hello gorgeous!! I've been lazy and haven't checked your site lately, your Mom was good enough to remind me to last night!!!I'll check back more often! I hope to see you soon! I'll bring the kids and that will distract Levi for a few seconds at least so he won't be picking on ya! haha. That's his job, he's your brother. They all do that, it's their nature.Boys!! I was sorry to hear you haven't been well, Levi and Mommy too! Blow kisses at them for me and have Mommy kiss you! Love ya!! Kelly Gray <fairietears@myway.com> warrenton, Va Usa - Monday, December 6, 2004 9:00 AM CST Hi Savannah, I heard about you from your cousin Sammy and wanted to come a say hi. Have a great day. Dana Sanford ♥.•:*¨¨*:•.Friends of Allie♥.•:*¨¨*:•. <Aunty.Dana@gmail.com> Spring Arbor, MI - Saturday, December 4, 2004 9:54 PM CST Savannah is absolutely adorable. I will keep her in my prayers. Tina www.caringbridge.org/md/lance <lneonkia@comcast.net> - Saturday, December 4, 2004 4:25 PM CST Hi Savannah, what a pretty little girl you are..I hope you have a nice Christmas, get lots of goodies !! You take care now, and be good..Cathy ^Friends Of Allie^ <sister_2@hotmail.com> Weatherford, Tx USA - Saturday, December 4, 2004 12:24 AM CST What a pretty little girl. And I have learned of yet another horrible disease. Many good wishes to you all for a memoriable holiday season. Cindy Aldrich(www.caringbridge.org/il/elliott <elliottsmama@comcast.net> - Saturday, December 4, 2004 9:55 AM CST What a beautiful girl you are, Savannah!! God bless, Susan ~Friends of Allie~ Susan Bernhardt <dshszb5@yahoo.com> Zimmerman, MN - Saturday, December 4, 2004 9:03 AM CST Love your web page. I am learning alot from it. Thanks Frances for being such a great help in getting ours up and running. Savannah is gorgeous. caringbridge.org/oh/amberheiss Tami Heiss <tamiheiss@sbcglobal.net> Toledo, OH USA - Friday, December 3, 2004 8:28 PM CST Hi! I'm not sure what to say. I always feel stupid when I comment, but here goes.... Lets say I admire your mom Savannah. I have absolutely no clue how she deals w/ all she does on a daily basis and keeps her sanity. Savannah, You are a beautiful little girl and bring joy to all you touch. love, Great Aunt Dorothy Dorothy Heiston <lighinthesky042@aol.com> Naples, Fl USA - Wednesday, December 1, 2004 5:34 PM CST Hi Savannah and the rest of the Nichols family in Virginia. I miss you all a lot. I hope everything goes well for you during the Christmas holiday. I hope to hear from you sometime. I will keep checking up on the site perodically. I love you! Caitie H. <ThIsThEnd_666@aol.com> naples, Florida United States - Wednesday, December 1, 2004 2:38 PM CST Savannah- Hi, darlin'. I'm sure glad your Grammy sent me your website. She loves you very much and is so proud of you. I know you love her, too. So do I. And I love you, too. I sure miss seeing you and your Grammy. I'm not at Brumfield anymore. Grammy tells me you're not there anymore, either. You know everyone there still loves you very much. Perhaps you will be able to return to Brumfield some day. In the meantime, you keep on smiling. I'll keep you and your family in my thoughts and prayers. How wonderful that, through this website, you have people from all over the world praying for you and sharing a bit of your life. Penny Magyar Jeffersonton, VA USA - Tuesday, November 30, 2004 8:50 PM CST Hope you guys are feeling better!! Melissa (Sammy's Birthday Angel) <littlemp@gmail.com> Jonesboro, LA USA - Monday, November 29, 2004 4:19 PM CST Hi Savannah, My name is Jenna and I came across your website through Sammy's. You are a real inspiration and fighter in life. You are beautiful on the inside and on the outside. You have a very beautiful smile. You are in my thoughts and prayers. Jenna www.caringbridge.org/canada/jenna Jenna <hockeykid@telus.net> Kamloops, BC Canada - Sunday, November 28, 2004 11:44 PM CST Sammy, Ricky, and Hannah Nichols <rickysammyhannah@aol.com> Gordonsville, VA USA - Saturday, November 27, 2004 10:22 PM CST Hi Savanna, We found your website from your cousin Sammy's. You are such a cutie too! We hope you had a nice Thanksgiving with your family. I hope you have fun with your brothers, especially little Levi. I have a little brother too! Keep smiling! Love, Katarina and Amy Hausman <amyholli1@yahoo.com> Naperville, IL - Friday, November 26, 2004 11:19 PM CST Just wanted to tell you guys "Happy Thanksgiving" I hope you all had a great day, with lots of good food. Vannie: you give your mommy and daddy many things to be thankful for! Keep smiling cutie.. Everyone loves ya! Love, Rick, Desiree, Ricky roo, Sammy, and Hannah Desiree Nichols <rickysammyhannah@aol.com> Gordonsville, VA USA - Thursday, November 25, 2004 6:36 PM CST Hi! I came across your webpage from a link from Sammy's site. I see that cuteness definitely runs in the family!! I hope you have a wonderful Thanksgiving!! Melissa ~Friends of Allie~ <littlemp@gmail.com> Jonesboro, LA USA - Wednesday, November 24, 2004 7:44 AM CST Hey beautiful! Those pictures are great. Hope your doctors visit tomorrow goes good. Hopefully we will all get together over the Thanksgiving holiday!! We miss you. Sammy and Ricky are always asking when we get to come over again!!! They love you so much! Desiree Nichols <rickysammyhannah@aol.com> Gordonsville, VA USA - Monday, November 22, 2004 10:21 PM CST Hi Savannah, You are so pretty with your big blue beautiful eyes...just like your Grandma's. Keep smiling because when you smile, everyone smiles. Bless you and your family. Amy Meier Remington, Va Fauquier - Monday, November 22, 2004 8:21 AM CST Savannah, You are such an inspiration to us all. We keep your picture on the fridge and Kelley talks of you often. She enjoyed getting to meet you and play. We pray for you and your family endlessly. Keep smiling you beautiful little girl and maybe Kelley will get to see you on another visit. Gary, Leanne, Mark and Kelley Slack <auntyea@aol.com> Archdale, NC USA - Sunday, November 21, 2004 8:29 PM CST Savannah, You are a beautiful girl! I love your eyes.. but, then again all of the Rett Angels I have meet have such beautiful eyes.. they say eyes are the well to the soul and I think that is true.. that is why Rett Angels have such beautiful eyes.. because you have such beautiful souls.. I have a Rett Angel myself.. her name is Kimberly I hope you and your family have a very happy Thanksgiving.. After meeting you I have yet another reason to give Thanks.. Phil Davis <rettdad@retangels.org> Trussville, AL USA - Sunday, November 21, 2004 11:10 AM CST Greetings from South Dakota! Happy Thanksgiving! Becky and Ashlyn ^friends of allie^ <beckjo70@hotmail.com> Mitchell, Sd - Sunday, November 21, 2004 9:45 AM CST hi mommy and daddy, i am having fun at grammys and pawpaws house...we are playing with my toys and i am chilling on grammys lap as she types this to you. we are going to watch shrek 2 today. i miss you so much. love savannah savannah lee-ann nichols <mrsbezly@aol.com> remington, va - Saturday, November 20, 2004 10:20 AM CST Hi Savannah, I have 2 daughter's with Rett Syndrome. You are a very strong little girl. My daughter's are Stephanie LeAnn 9, and Destiny Nicole 6. They have also been through a lot, and i know it takes a Very couragious little girl to go through it. Me and my daughters are from Kentucky. We have been giving a possible diagnosis of Retts, but are still going through test, they are unable to say for sure as of now. We do have a Dr. appt. in Indiana Tues. and hope to get some answers. Thanks for sharing your story with us. Regina Lear <reginaalear@yahoo.com> Greenville, ky - Saturday, November 20, 2004 8:40 AM CST Hi Savannah, You are beautiful. I have a daughter with Rett Syndrome and she is 2 years old. Your mommy did a great job with this site. I hope to meet you at a conference some day. If you come to California call us. 707-539-8911 Britt Van Giesen Britt Van Giesen <brittvg@yahoo.com> Santa Rosa, CA USA - Friday, November 19, 2004 5:01 PM CST My granddaughter has Retts. her name is Amber Heiss. Maybe you known her. She has taught us much too. Thank you for sharing Savannah's story. She is truly beautiful. One of God's special children Bonnie Ferguson Toledo, OH USA - Friday, November 19, 2004 2:07 PM CST Iam mother of one rett girl with 7 years,we are from Portugal and Beatriz it is her name is sending you a big kiss and we whish you all the best Savanah looks like a little princess just like Beatriz Ana Paula Paias Couto Neves <P.Neves@jfhillebrand.com> Matosinhos, Portugal - Friday, November 19, 2004 8:40 AM CST I Would like to take part of this lovely guestbook Ana Paula Paias Couto Neves <P.Neves@jfhillebrand.com> Matosinhos, Portugal - Friday, November 19, 2004 8:35 AM CST i just want you to know that you are a beautiful young angel from god. i have a daughter with rett and she is precious to a bunch of people in her life, she is 17 yrs. old.may god bless you and your family, he sure has blessed mine. debra debra gordon blackshear, ga usa - Friday, November 19, 2004 8:22 AM CST God bless all of our children with Retts Syndrome. Our dauhgter Kennedy, age 3,was diagnosed this year on January 22nd. Since then our life has not been the same. She, like you daughter, always smiles and has brought great joy to our family and friends. This year we hope to mobolize our efforts and have the first of many fund raisers here in Pittsburgh for IRSA funding for research - Circle of Angels. You web site is lovely. I would like to do something similar for Kennedy. David Freudenrich <dfreudenrich@MaguireGroup.com> Pittsburgh, Pa USA - Friday, November 19, 2004 8:20 AM CST Savannah,I'm so glad that you have this wonderful web page.Your pictures are gorgeous,and heart warming.To know you is my blessing,you have tought me to appreciate the small things in life.Wishing you well,Love You,Aunt Missy and Abygail. Melissa Baker <kitkatabycat@netscape.com> Front Royal, va usa - Thursday, November 18, 2004 5:45 PM CST Hi Savannah, sweetheart. My name is Linda and your Grandma and I are friends. She tells me how much she loves you. She also sends pictures of you. You're a beautiful girl. You're big blue eyes makes me want to trade my green eyes with you. :-) I am praying very hard that God makes you better. I know that you are His Angel and He loves you very very much. You keep smiling and something wonderful will happen for you. Be a good girl and listen to mommy. I have a big hug for you. HUGGGGGGGGGGGGGGGGGGGGGGGGGGGGG It was so nice to be able to write to you. I will write again real soon. Love, Linda Linda Blais <LindsyBee128@aol.com> Acushnet, MA USA - Thursday, November 18, 2004 4:49 PM CST Hey Miss Vannie: We were just checking in on you.... I hope everything is going good! Your in our thought and prayers. We love ya! Rick, Desiree, Ricky roo, and Hannah Desiree Nichols <rickysammyhannah@aol.com> Gordonsville, VA USA - Thursday, November 18, 2004 12:49 AM CST Hi Savannah. My name is Christine and I live very far away in New Zealand. I have 2 beautiful girls called Lauren (11 months) and Erin (4 years) and they have beautiful smiles just like you. I just wanted to say hello and tell you how gorgeous you are. Christine <cap@paradise.net.nz> Wellington, New Zealand - Wednesday, November 17, 2004 7:42 PM CST Hi Savannah and Family~ I just got youe link from a friend and wanted to sign your guestbook and let you know that Im saying a special prayer for you here in Georgia!! Keep smiling princess.. Stacy Lowther *friends of Allie* <ksl0122@bellsouth.net> Cumming, georgia - Wednesday, November 17, 2004 4:41 PM CST hi savannah, you are so beautiful. peepaw&i were just talking about you. i love your new page. mommy has some very nice poems for you ,and very cute pics of you!! you have such beautiful blue eyes.i'll sign in again later. we love you very,very much. love nana & peepaw sherry & jim nichols <sherry0418@msn.com> warrenton, va usa - Wednesday, November 17, 2004 3:55 PM CST savannah, i have known you since you was born. your eyes and smile make me happy that i know you. you are and will always will be the brightess of all morning stars..love you...aunt katie katie dodson <kdodson@fcps1.org> uninionville, va - Wednesday, November 17, 2004 2:06 PM CST What a beautiful daughter you have! She sounds like a very precious child. She and her brothers and parents will be in my thoughts. Fiona (from Friends of Allie www.scotthousehold.com) <finarda@yahoo.com> Ottawa, ON Canada - Wednesday, November 17, 2004 11:53 AM CST I recently learned of the continuing situation with Savannah and my heart completely goes out to Savannah and her family. Our prayers are with her daily. Love, Bruce & Inci Bruce & Inci <behale@btinternet.com> Harrogate, United Kingdom - Tuesday, November 16, 2004 2:49 PM CST I just learned of your beautiful Savannah today. What a true blessing she is. Thinking of you today and I hope that you guys have a great week! Kristel Hanlon (Friends of Allie) <khanlon@idontwanttotravel.com> McKinney, TX - Tuesday, November 16, 2004 10:02 AM CST Hi Savannah, I live in Georgia and I think you have the most beautiful smile and gorgeous blue eyes! You are a lucky little girl to have such a loving and supportive family! You will always be God's little angel. Have fun with your brothers and your special grammy! Love, Miss Nancy Nancy Parsons <jorjagal48@aol.com> Macon, GA USA - Tuesday, November 16, 2004 10:02 AM CST Savannah, WE miss seeing you here at Brumfield but Your Grandma keeps us laughing. She is a joy to us and know she is for you as well. Better still WE all know that you are a joy to her. Janie Mosby Warrenton , VA USA - Tuesday, November 16, 2004 9:07 AM CST I Miss you! Your bright smile always made my day. I am glad I have a place to see your bright face. I love you. Ms. Kim Kim Lindsey <Klindsey@fcps1.org> Warrenton, va USA - Tuesday, November 16, 2004 7:17 AM CST You and your family continue to inspire me everyday. Thank you for keeping in touch and sharing your beautiful little girl's journey. We keep you and yours in our thoughts and prayers. Jackie Mann <jandkmann@worldnet.att.net> Caledonia, MI 49316 - Monday, November 15, 2004 9:47 PM CST What a precious, beautiful girl you are Savannah! I love your eyes and smile. I wish you and your family the very best. You sound like a very corageous, loving family and my family will keep you all in our thoughts and prayers. Stephanie Hamilton Borchers ("Friends of Allie") <stephanie.borchers@jud.ca.gov> Fresno, CA - Monday, November 15, 2004 9:09 PM CST What a beautiful little girl you have. I will be praying for your little girl and for strength for your family. ![]() Terri Bodine^^Friends of Allie^^ www.scotthousehold.com <terrib@nightowl.net> Imperial , MO - Monday, November 15, 2004 8:29 PM CST This is just great... What a beautiful site and a beautiful little girl. I have saved this in my favorites and look at it a few times since I got it the other day. Savannah is very precious. Thank u for sending this to me. Peg Cote <Sheba7mom@aol.com> Alton, Maine United States - Monday, November 15, 2004 8:08 PM CST Savannah is just beautiful. I'm sure she is a wonderful big sister to Levi. Your family is in my thoughts and prayers! Angie Dotson - Friends of Allie <adotson@chum.net> Earlysville, VA USA - Monday, November 15, 2004 7:55 PM CST That Smile you have is so touching you give us all Blessing by just looking at your smile, God Loves you and so do I. Darlene Marsh Brightwood, VA - Monday, November 15, 2004 5:52 PM CST Savannah, I pray for you every day. God must love your family lots to give them such a special little girl to love and care for. Your Grandma Liz is a special & lovely lady and she loves you very much. I'm sure you know that. Lucy Walbroehl Warrenton, VA - Monday, November 15, 2004 5:14 PM CST you looks so adorable and so veyr happy love you carol <edhammers1@aol.com> - Monday, November 15, 2004 3:42 PM CST SHE BRING A SMILE TO MY FACE JUST TO THINK OR HER AND SHE HAS TOUCH ME IN AMNY WAYS THANKS TORII KERNS <TKERNS@FCPS1.ORG> rAPPAHANNOCK ACADMEY, VA USA - Monday, November 15, 2004 10:33 AM CST Savannah my love, you truly are a treasure. You've touched so many lives with your beauty and grace. Gracefullness isn't something you would attribute to Rett's, but, I would attribute it to you.Every smile you give is with an ease that belies this terrible disease. I can never express to you how much you have touched my life. Jealousy, dishonesty and petty thoughts could never take hold in my heart after knowing you. Your mom has done such a great job taking care of you, and showing us all how special you both are, and I love you to pieces!!! Kelly Gray <fairietears@hotmail.com> Warrenton, Va USA - Monday, November 15, 2004 9:22 AM CST Savannah - your smile has touched our family like no other! We love you. Come back down to Grandma Katie's and see the goats again. John & Carrie Dodson (and Khota, Austin and Luke) Harrisonburg, Va USA - Monday, November 15, 2004 8:47 AM CST Thank you to everyone who has viewed Miss Vannie's webpage and to those of you who have left comments. Savannah has loved me reading them to her. You are all such wonderful people. Savannah has alot of important new appointments coming up and we will update the web page as warranted. All of our love John and Frances Nichols Mommy and Daddy <Dragonbluedreams@AOL.com> Remington, VA USA - Monday, November 15, 2004 8:41 AM CST Savannah, You have the most beautiful smile and dancing eyes that I have ever seen. You are a blessing to your family. Deb Anderson <anderson325@verizon.net> Warrenton, VA USA - Monday, November 15, 2004 7:06 AM CST Savannah - One of your greatest blessings is your wonderful grandma, and I know you are one of hers. You are so special to all of us here at Grandma's work. Keep on smiling, sweetie. Maggie Ward <maggieward@fcps1.org> Warrenton, VA USA - Monday, November 15, 2004 7:03 AM CST Hi Savannah, Did you know that's one of my favorite names? When I was little, I used to watch a movie called Savannah Smiles and ever since then, I have loved that name. You are a beautiful little girl and I can tell you light up your Mommy & Daddy's world. God bless you and keep you, precious one! Sonja Woods ^Friends of Allie^ <mom2joel@yahoo.com> St. Louis, MO USA - Sunday, November 14, 2004 11:33 PM CST Hi Savannah! I'm here to send well wishes to you! I have a 4 year old little boy named Matt, he has autism. I'll continue to come back to your site often! Ann **Friends of Allie** www.caringbridge.org/mn/matt <mommytomatt@aol.com> Fridley, MN USA - Sunday, November 14, 2004 8:42 PM CST Savannah is adorable! I found her page through a group I am priveleged to be a manager of called "Friends of Allie". Thank you for sharing your daughter with us. I will check back often for updates. Terri Klemmer <That_80z_girl@yahoo.com> Monroe, WA USA - Sunday, November 14, 2004 6:54 PM CST My families Prayers and HEART FELT thoughts are with you all. Love, the Ladds Barb <ArnsBarb@aol.com> Anderson, IN Madison - Sunday, November 14, 2004 9:05 AM CST THIS WEB SITE IS BEAUTIFUL AS IS SAVANNAH.. I'VE KNOWN YOUR "GRAMMY" FOR MANY YEARS AND SHE IS ALWAYS SENDING PICTURES AND UPDATES ON YOU..SHE IS SO PROUD OF YOU AND I FEEL FROM HER I HAVE KNOWN YOU SINCE YOU WERE BORN.. MAY GOD ALWAYS BE WITH YOU AND MAY YOU ALWAYS HAVE AN ANGEL IN YOUR POCKET............. ARLENE BAMFORD <BDMJNANA@AOL.COM> BROCKTON, MA USA - Sunday, November 14, 2004 8:54 AM CST our darling granddaughter savannah, we read your webpage with tears, smiles..knowing you is like having an angel with us all the time...we are so blessed to have savannah in our lives...the smile that can brighten up any room and lighten any heart ...savannah has taught us how to take each day with love and laughter...once you meet savannah..you can never forget her...words cannot express what she means to us...we cherish and look forward to the weekends that you spend with us.....love you so much...grammy and paw paw elizabeth and benny moore <mrsbezly@aol.com> the plains, va usa - Sunday, November 14, 2004 8:17 AM CST Hey Savannah: You website is beautiful. Mommy did such a great job!!! Those pictures are gorgeous! I am sooo jealous!!! :) Just want you to know we think about you all the time.. And are blessed to have you in our family! You keep smiling!!! Love, Rick, Desiree, Ricky Roo, Sammy, and Hannah Desiree Nichols <rickysammyhannah@aol.com> Gordonsville, VA USA - Saturday, November 13, 2004 8:46 PM CST What a nice website. I think I will do one for my daughter who also has Rett Syndrome. I have met Savannah, and I must say she is far more beautiful in person than the photo shows. Her family is wonderful and strong. Her older brother is a big help in caring for her. Hang in there, "Savannah's Family!! (SYNDI & CHELSI) Syndi Pickney-Blunk <syn-pic-ridingschool@msn.com> Columbia, VA USA - Saturday, November 13, 2004 8:15 PM CST | |||||||||||
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