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Welcome to Lizzie's Page 
Lizzie and Matt, StJude, 2003 sadly, we lost Matt 04/08 Lizzie is a 7 year Germinoma Brain tumor survivor. She underwent surgery for biopsy at Johns Hopkins Hospital, in Baltimore MD, with Dr Jon Weingart, in Feb of 2001. Lizzie had 5 rounds of chemo in Norfolk at Childrens Hospital of the Kings Daughters throughout several months of 2001, struggling through many bouts of infection, blood transfusions, and an agressive fungus..she had clean scans for several months, however unfortunately relapsed in April of 2002...after consultation in New York, we ended up at St Jude Childrens Research Hospital, in Memphis, Tennessee, with Dr Thomas Merchant and completed Cranio-spinal radiation in the summer months of 2002. Lizzie now has clean scans, and Dr Merchant has not had a germinoma "fail", so, we do not plan to be the first. This summer, 2008, marks Lizzies six year out of treatment year..what an unexpected relief.. This journal is about our family, our strength, and is a testament to our several years of a new life...one of knowing what matters and is meaningful. Our lives are oddly blessed...Our children...Rebecca(and her fiance Mike), Julia, Vic and Lizzie are all touched by this journey, and the strength shown here is everyones.
Journal
Tuesday, July 15, 2008 4:31 PM CDT HEY EVERYONE, HOW ARE YOU ALL DOING? I HOPE GREAT. IM DOING WELL TOO. SORRY I HAVE NOT UPDATED IN A WHILE, I HAVE BEEN SO BUSY. MY MOM AND I GOT HOME FROM MAINE SUNDAY EVENING. WE HAD A REALLY GOOD TIME. CAMP WAS A LOT OF FUN. I MET A TON OF DIFFERENT PEOPLE, AND EVERYONE WAS REALY NICE. I THINK I PROBABLY WILL GO BACK NEXT YEAR. AFTER CAMP A FRIEND OF OURS, NANCY NOYES PICK US UP AND WE SPENT THE WEEKEND AT HER HOUSE. WE HAD A GREAT TIME THERE TOO. SOMETHING VERY EXCITING HAPPENED BEFORE CAMP, THAT I MIGHT HACVE ALREADY TOLD YOU ALL ABOUT. MY OLDEST SISTER BECCA GOT ENGAGED. IT WAS A HUGE SURPRISE TO ALL OF US. WE ARE VERY EXCITED.WELL THATS ALL THAT IS GOING ON HERE. THANK YOU SO MUCH FOR READING MY PAGE. I WILL UPDATE LATER ON.
LIZZIE
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Hospital Information: Patient Room: none St. Jude Childrens Research Hospital in Memphis, TENN. Virginia please leave journal message..I will answer
Links: St Jude Childrens Research Hospital http://www.pediatricbraintumors@yahoogroups.com an online support group for families with ped. brain tumors..offers info,support and lots of opinions! Way too large a group..
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