Lindsey Miller Burkitts Leukemia SURVIVOR The NEW CURLY HAIR!!!
SPINALFLUID 09/05/03 CLEAR!CLEAR!CLEAR!CLEAR!
BONEMARROW CLEAR!CLEAR!CLEAR!CLEAR! OFF TREATMENT!!!!!
Lindsey is doing wonderfully!
I HAVE ADDED A NEW LINK AT THE BOTTOM OF PAGE. IT IS A LINK TO TANNERS MEMORIAL BAND AT THE MARCH OF DIMES WEBSITE.
Journal
Wednesday, June 8, 2005 9:49 PM CDT
Hello to everyone,
Gosh, a long time between updates! Things have been going well. We have had a few issues arise, mysterious petichiae..mysterious fevers but every blood check has come back fine. We will be doing a platelet coagulatory to make sure they are functioning properly. Dr. Owen is so good about staying on top of things and taking every precaution. It was a true blessing he was on the floor the night Lindsey was admitted. She also failed her hearing test at school! Certain chemo meds can cause this and of course we were on those! I also found out that skull fractures can lead to hearing loss. So we got the 'ol' double whammy. These are minors things compared and we are so grateful she is doing so well.
School is almost out and the girls have done very well. Lindsey tested positive for gifted. We are keeping her at Centerville in a gifted cluster class. We feel that is the best place for her. The love and concern and the history they share with us is irreplaceable. Loren has done alot of growing up....everyone say a prayer that I surrvive! : ) Hayden is ....a true boy. Trucks, diggers, backhoes, excauvators he know them all. He loves his momma!! Daddy too...and his LoLo (Loren) and his Princess (they only thing he's ever called Lindsey).
We are staying active with Leukemia and Lymphoma society and just recently participated in Relay for Life. It was so great seeing everyone. On Monday we leave for Gold Ribbon Days in Washington DC. We will advocating for EVERYTHING concerning childrens cancer. We have such a good group of people from the clinic going. We are all very passionate about this cause.
Brian and I are doing well. We still receive messages from our little Tanner. The little dragonfly has already visisted. We have become members of a great church and Loren has been active in the youth group. I am so grateful for Brian. He is a wonderful dad and has helped me so much during the last year. Sure, he annoys the mess out of me but I wouldn't have made it without him. So a Happy Fathers Day to him.
To all of our caringbridge friends, continued love and prayers.
Lisa
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Hospital Information: Home sweet home 1820 Leedom Road Va beach VA 23464 757.502.0235
Links: http://homepage.mac.com/briscrye// family photos http://quiltsoflove.com/quilt/lindseyM/lindseyM.html Lindsey's quilt of love http://marchofdimes/prematurity/b.asp?band_id=9835 Tanners memorial band
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