WATCH ME AS I GROW

Welcome to Karleys Web Page. It has been provided to keep people updated about our little one.

Karley Mackenzie White

Born: April 21, 2000

"A little angel sent from heaven" Gods very special child

Journal

Tuesday, April 21, 2009 6:19 AM CDT

HAPPY "9TH" BIRTHDAY TO MY LITTLE ANGEL "KARLEY". Today is Karleys 9th Birthday. She is a very strong, brave and beautiful little girl. Karley was dianosed with Congenital Central Hypoventilation Syndrome and Hirschsprungs disease 9 years ago. Since then she has also been diagnosed with Autism, Crohns, Hypoglycemia and Elhers Danzlos Syndrome. Karley is very bright. Although she talks very little during the day, she is able to read, tell time, add and subtract, count money, match and work the computer and play the piano by ear. Karley has spent ALOT of time in the hospitals...She has many specialist. But through all of this she still manages to smile every morning when she wakes up. She loves Hannah Montana, DVD's, The Wii (Mario Cart) and especially her computer. Karley has had the same day nurse for 9 years who loves her like her own. Karley will be having a Birthday Party this weekend a little late because she has been sick. Please keep Karley in your prayers. Karley has been having difficulty coming off ventilator since November. Karley will be seen by her Pulmonologist and Neurologist to find out why she is having difficulty with ETCO2's. I will update her pictures this weekend after her birthday party.

Hospital Information:

Johnston Willis Hospital

Chesterfield, Virginia

E-mail Author: ckarley@netzero.net

---

 

Your gift will help millions of people stay connected with friends and loved ones during challenging times.

---

 

This page has been viewed 7065 times.

Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.