Fisher's Caringbridge Page

Thank-you for visiting Fisher’s Caringbridge Page!
Fisher is a 10 year old little boy who has neurofibromatosis (NF). NF is a genetic disorder that causes tumors to grow on nerve endings. Fisher has tumors growing inside his brainstem, his spinal cord and his optic nerves. He also has numerous hamartomas throughout his brain. When he was a bit younger, he went through a 66 week chemotherapy protocol. Since then the tumors have remained stable. For the most part, Fisher is your typical little boy. He loves to watch his cartoons on Cartoon Network. He loves playing his video games. His favorite toys are his Legos, Bionicles and Star Wars toys. He loves to watch football with his mom, (Go Dallas!!) His favorite singers are Chris Daughtry, David Cook, Little Big Town and Keith Urban. Keith Urban is his all time favorite. During chemo, Fisher would sing his “on chemo” song, “Who Wouldn’t Want to be Me?”.
Since being off chemo, his “off chemo” song is “Days Go By”. Fisher lives each and everyday to the absolute fullest.
We have closed down Fisher’s PO Box, since the cards and post cards have stopped coming. Thank you all who sent him stuff, he loved getting things from all over the world.
If you have a chance, please sign his guestbook. He loves reading all the entries!!




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Journal

Friday, August 22, 2008 7:28 AM CDT

Hello everyone. Fisher had his visit to the brain tumor clinic this week. First the really good news, all his tumors are stable! We are so thankful that they are still stable. We are concerned about Fisher because the doctors seem to think he has autism. I don't know if that is the way to put it. But, that is the best way I know how. They think he is high functioning. He has an appointment on Monday. I do have to say, that after talking with the social worker and the doctor at the clinic, I do understand more about Fisher and where he is coming from. When it was mentioned that he needed to see a doctor that will help him, he was so happy. He face lit up, and he told the SW that he thought it was a good idea. So, in additon to the NF, ADHD, OCD and brain tumors, he now has this to handle too. But it will be okay because, I firmly believe that God's Grace is sufficient and He will get us through this. I probably will be blogging more though. I will need a way to vent.

Hospital Information:

Patient Room: Right Next to Mommy!!

Home Sweet Home!!
Bugging Big Brothers!!
Chesapeake, Va
000-0000

Links:

E-mail Author: oshelrina@aol.com