Nathan Fleming, his Journey

Welcome to Nathan's website. This is the story of my son's battle with Metachromatic Leukodystrophy. Nathan had a normal life up until a few months prior to his diagnosis, January 21, 2002. Nathan, born March 14, 1986 passed April 1, 2003 after the most couragous fight for life I have ever seen. He was so brave. His life and this journey show what an incredible young man Nathan was and became. We will forever be blessed with the gift of having Nathan in our lives. He will forever live in my mind, my heart and my soul.

Nathan we will forever love you.

To learn more about Metachromatic Leukodystrohy visit http://www.mldfamily.org. Thanks for visiting and please continue to sign the guestbook when you visit. As a family we cherish the words of those that have strengthened us and supported Nathan both in his living and in his new life.

Journal

Wednesday, April 1, 2009

Nathan,

I remember so clearly the agony of having to say good bye. I remember so clearly wishing it wasn’t real. I kept thinking maybe I would wake up and it would all be a bad dream. So many times I woke up only to be reminded it was real, my first dealings of the day always disbelief. I remember wanting so badly for you to know that I did everything I could. I constantly battled with thinking somehow if I had done something different you would still be here.

Things change over time, after 6 years I have accepted what has happened. But I still long for the things I lost and I wonder sometimes what you would be like now. 23 is really hard to imagine, I see you at 17 and guess I always will. I am comforted knowing that MLD doesn’t have a grip on you. It is a cruel disease.

I remember more of the good things now, like how close we got while you were sick and how much I grew to appreciate you as a person. I remember how beautiful you were as a baby and how cute you were as a little boy. I remember how you were always searching for a treasure, a rock that sparkled or a bug, anything on the ground was game. You could run like the wind, swim like a fish and so loved being active. When you were younger, you would chat with me for hours. Later, I loved the random things you would say when no one thought you were listening. I remember watching “The Land before Time”, “ET” and “Teenage Mutant Ninja Turtles” a hundred times under the home-made blankets. And then it was “The Simpsons”, I loved to hear your laugh. I remember how proud you were to be on the first high school team to win the Texas State Championship in bowling. You were really good and I know you would have one day bowled that 300. I could go on and on.

You were one of Gods special people, those that missed knowing you, missed a lot.

I am most comforted knowing that heaven is not so far.

And thanks for reminding me with pennies. I love you always.

Hugs and kisses,
Mom

Hospital Information:

Marty and Rhonda Frachiseur
1130 Elm Brook Court
Allen, TX 75002
972-396-1048

Links:

E-mail Author: cm_rhonda@yahoo.com

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent. This information does not confirm that anyone is or was actually a patient at any facility.