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Welcome to Jenn's Website!
It has been provided to keep people updated on what's happening in my life.
At the young age of 18 months old, I was diagnosed with Juvenile Dermatomyositis with Calcinosis. It is a very rare disease thought to be auto-immune and is a form of muscular dystrophy. Some of the symptoms include: progressive muscle weakness, active inflammation of the muscles, muscle pain, muscle atrophy, muscle contractures, fever, rash, fatigue, malaise, irritability, weight loss, difficulty swallowing due to weak muscles, joint pain and inflammation, calcium deposits under the skin (calcinosis), vasculitic ulcers, slowed growth, and mouth ulcers. We keep finding out about more, but that is enough!
Only 5,000 people in the U.S. have JDM. Because it is so rare there is little research being done. There are no set treatment protocols. They just try different combinations of the same (older) drugs to hopefully get a good response.
I've been in this battle for 24 years. While is hasn't always been sweet rose gardens, I believe in my heart that God has put me on this path for a purpose and I'm trying my best to fulfill His perfect plan. Although this has been a bumpy road, my story is not one of tragedy and loss. My story is one of hope and faith. I have come to realize that God is bigger than any illness or prognosis. I have witnessed countless miracles over the past 5 years, and though I don’t know what tomorrow will bring, I continue to trust in God’s plan for my future. My body may be weaker, but my faith has been strengthened by everything that I’ve been through, and now I know that trials are not enemies of faith, but opportunities to prove God’s faithfulness.
Currently there is no cure.
If you think you might have it, read some of the links below and consult a doctor immediately - it is a very misdiagnosed illness.
Also, if you wouldn't mind, please sign my guest book when you visit, so that I know this site is beneficial to people. Thanks and God Bless everyone.
My Girls: Laura, Kasuen, and Nati
CLOSE-UP: Kasuen and I
Scott, Laura, Kasuen and Clayton: Christmas Party 2005
Alpha Omicron Girls: Huong, Nathalie, and Stina
So so sweet: Megan and Emi
My Fire Fighters, My Heroes
Amanda and Betsy (and Emrie)
Just Us Girls: Summer Party 2006
On Board: Lauren and I
Women of the Family
My Cousins
SMUSH Thanksgiving 2004: Those were the days
 
Jenn’s banner made with love by the Big Brave Banner Site
Journal
Tuesday, August 7, 2007 4:04 PM CDT I promise I'll update ya'll soon!
Read Journal History
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