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JACOB ANDREW PRATER 
Because this just MAY reach someone that can help locate a missing child and it certainly can't hurt, I have added an AMBER alert bar to this page...CHECK IT OUT!!
Welcome to Jake's web page!! Jake is the youngest of three children and is 8 1/2 years old .This page was designed to keep friends and family informed of his progress following VERY lengthy treatment( 5+ YRS )for JMML-JUVENILE MYLEOMONOCYTIC LEUKEMIA(and currently CHRONIC GRAFT VS. HOST DISEASE ). He has endured BOTH a bone marrow transplant, that took place on April 9,1999 at Texas Children's Hospital in Houston ,Texas AND a Stem Cell transplant(essentially the same procedure as BMT ) that took place on Sept. 25, 2000 at Texas Children's Hospital , as well. The second transplant was needed because of incomplete remission or "relapse" immediately following the first horrific transplant(as per day +101 bone marrow aspiration results).
JMML (formerly known as JCML) is an extremely rare form of a HORRIBLE disease called Leukemia, IT IS A BLOOD CANCER. It is poorly understood,therefore, hard to treat and the prognosis is grim. Jacob has lost several online friends ( angel links below) to JMML's terror...all are under 6 yrs. old .
While WE are hopeful for a future that's MUCH more bright than the past , we must NEVER forget the lessons we've learned .We must never forget the people who have supported us and shaped our future.... for if we do, their journeys/efforts would be in vain. The children below are FAR braver and wiser than anyone would imagine. We can learn ALOT from them...So, stay awhile , click a link below and say a prayer for these and unfortunately, those like them ,that will endure the inevitable in seek of a brighter tomorrow. Please scroll to and read the very first entry of "past journal entries" section below to find out how Jake was diagnosed with JMML at only 4 months old! THANKS FOR VISITING!!!
Here are links to other JMML DIAGNOSED KIDS:
LUKE (REMISSION.. 2+ YRS )
***ANGEL COLBY (6-12-03)
**** ANGEL LIBBIE ( 4-9-04 )
CINDY (REMISSION...2+ YRS !!)
KAYLI (REMISSION...1+ YRS!!)
BRIAN (REMISSION ..5 YRS!!)
******ANGEL CONNOR S. ( Sept. 03 )
ZACHARY (REMISSION 3+ YRS.)
*** ANGEL RILEY(June 03)
******ANGEL JAY (Oct.03)
**** ANGEL CONOR F.( Feb 04 )
SHANNA (DOING WELL AFTER TRANSPLANT)
******* ANGEL DYLAN( Feb 04 )
**DUSTIN (DOING FAIRLY WELL AFTER TRANSPLANT)
DANIEL( ONGOING GRAFT VS.HOST ISSUES)
JORDAN G.( DESPERATELY NEEDS PRAYER... ON THIRD TRANSPLANT)
TONY ( IN REMISSION !!)
GRANT
OUR BUDDY ETHAN
Journal
Monday, June 4, 2007 Hi all,
I'm going to post a quick update here ,just to let you know Jacob is doing pretty well these days .... Although, we are just getting by , after a recent " relapse scare " . Thankfully it was just a scare and actually turned out to be a strep infection that was misdiagnosised as a viral infection for about a week . So, after spending all night at the ER for high fever and my cell phone getting ruined by the X ray equipment at 1 in the morning ...ughhh ( does the choas ever end ? ) The blood counts came back idicating a viral infection AGAIN , they sent us home to wait it out , then got a call from Jake's Peditrician , who took cultures last week that came back positive for strep !!Thank GOD , finally a reason for the 102- 105 degree temperature he has had for the past 7-10 days !! We picked up an antibotic and should now be well on the way to recovering. I am still giving Motrin , periodically to keep mthe fever down but he seems to be feling alot better . I wonder if I'll get any sleep though because he has slept about 3 hours today .
Jake just finished first grade !!! He made really good grades , mostly A's with a couple of B's all year long !!! I am really proud of him obviously. He continues to struggle with his eyes (severe dry eye, due to radiation etc ) but is otherwise really healthy .
His broher is 21 rs old and in drafting school . Sister(donor)is 17 yrs old and about to start a new job.
Our family can certainly use prayer , good vibes whatever .. our unity was lost and it has been very difficult for some of us to adjust etc...
Jacob goes back to Houston for all his annual visit stuff in August . He will be 7 yrs. remission (post BMT #2 in september) but we like to get it all out of the way before the new school year begins .. I thank God Jacob is doing so well , hang in there newly diagnosed parents ... the road is long and hard but well worth the effort .
I'll try to post new pictures soon Michelle (:
Thanks for checking
Danette
Read Journal History
Hospital Information: WE ARE HOME ..Treatments were performed by:
TEXAS CHILDREN'S HOSPITAL
HOUSTON,TEXAS
832-824-2099 (INFO LINE OPERATOR)
Links: http://www.infobiogen.fr/services/chromcancer/Anomalies/JCMLID1099.html LEARN MORE ABOUT JCMML DISEASE
http://www.caringbridge.com/page/gooch GOOCH'S PAGE
http://www.geocities.com/baby_jake1998 Jake's first web site
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E-mail Author: dprater@earthlink.net
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