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All About Emma
Welcome to Emma's website. We have created this to help everyone stay up-to-date with Emma & her many journeys.
Emma has a smile that melts your heart. She's very shy...but if you give her time, she'll flash you the cutest smile! She is a tough little chickie...in fact, her sister's nickname for her is "Little Tough." We don't know where Madi got that name for her, but it surely fits Emma!!
Emma has been through quite a bit, and continues to come out stronger after each hurdle & amazes everyone! She has come so far, and has done so much quicker than anyone ever imagined. She still faces physical health problems, growth issues, and developmental disabilities—and we continue to face each challenge with great hope. Our greatest desire for Emma in her life is to be happy. We strive every day for that.
We keep this website up to inform all of our friends & family on Emma and how she (& our family) is doing. We’ve also come to know many other families through this site, and we are so grateful for their kindness & friendship. We hope that, in addition to updating family & friends, we are able to educate and inform others. We, as a family, have changed a lot over these past 3 years. Our wish is that others may be touched by what we have learned, and will join us as we strive for acceptance of children and people, regardless of their diagnosis, disability, or other differences. Underneath all the labels, behaviors, and health issues, our daughter is a just that—our daughter. And, on some days, she’d even say she’s a princess too!
To learn all about Emma's journey so far, click here.
We have gathered some links here which may be helpful as you read Emma’s page. For more information, please click:
Static Encephalopathy, Autism, Sensory Processing Disorder, Speech Apraxia, PDD, and Seizures.
Also, we use these acronyms:
ST=Speech Therapy, OT=Occupational Therapy or SI=Sensory Integration, PT=Physical Therapy, SPD=Sensory Processing Disorder
And,
“Tubie” & “mickey” are the words we use for Emma’s feeding tube & gbutton.
Check out Emma's adorable quilt!
Emma Byrne
Born: May 12, 2004 Weight: 6 lbs, 6 oz Length: 18 inches 
Remember that happiness is a way of travel - not a destination.
R.M. Goodman
*HUGS* TOTAL!
give Emma more *HUGS*
Get hugs of your own
Please visit Eli’s Angels
Please say a prayer today for the many children & families affected by metabolic & mitochondrial disorders. Some of our dearest friends that we have made on this journey battle these disorders everyday.
Please visit my buddy, Caden!
A dream is a wish your heart makes when you're fast asleep. In dreams you will lose your heartaches. Whatever you wish for, you keep. Have faith in your dreams, and someday, your rainbow will come smiling through.
~ Cinderella
Thank you to all our family & friends for their continued support & prayers. We appreciate all you do, & the love you've shown to our Emma & Madison more than words could ever express. From the bottom of our hearts, thank you!  These are a few of my favorite things:    Emma’s theme song…and a few others we enjoy!
Click to play!
Who's to say
What's impossible
Well they forgot
This world keeps spinning
And with each new day
I can feel a change in everything
And as the surface breaks reflections fade
But in some ways they remain the same
And as my mind begins to spread its wings
There's no stopping curiosity
I want to turn the whole thing upside down
I'll find the things they say just can't be found
I'll share this love I find with everyone
We'll sing and dance to Mother Nature's songs
I don't want this feeling to go away
Who's to say
I can't do everything
Well I can try
And as I roll along I begin to find
Things aren't always just what they seem
I want to turn the whole thing upside down
I'll find the things they say just can't be found
I'll share this love I find with everyone
We'll sing and dance to Mother Nature's songs
This world keeps spinning and there's no time to waste
Well it all keeps spinning spinning round and round and
Upside down
Who's to say what's impossible and can't be found
I don't want this feeling to go away...
Please sign our guestbook!
Journal
Tuesday, May 6, 2008 5:08 PM CDT Before I forget, I started a blog for our family: http://themarkhams.blogspot.com/
I will update there more frequently, on all that's going on with the family (and of course, plenty of updates about Emma!). I looked into it, and Blogger is easier to post, I can write entries from my Blackberry, and it's easier to put pictures on. I'm going to keep the CB page up and running. It's neat to read, and to see the pix of Emma & how much she's grown. I may continue to update medical stuff here as well. We'll see.
Emma saw the neurologist on Friday. He went over the different medications (seizure), and we decided to try Keppra. It will take 4 weeks to get to the full dose. So long as all goes well, on week 5, we'll begin to wean her off of Trileptal. We're hoping this will give her better seizure coverage--so that even when she's sick, she won't seize. Her Trileptal was very high (42) following the last one, so her dose cannot be increased. Her sleep issues are back--which good be a sign of some seizure activity OR just normal for Emma (common in kids w/ same issues). Please pray that this transition goes smoothly, no side effects, & that the medicine is effective. I'm posting some pix up on the blog. Thanks for stopping by! :)
Read Journal History
Links: http://www.autismarts.com/index.html Autism Arts
www.plotkindesigns.com/tynietoes Tynie Toes by Plotkin Designs
www.eparent.com Exceptional Parent--lots of great info & resources
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