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Hi Baylie! You are doing such a great job with this - what a wonderful gift you are creating and providing to others. Take care - with hugs from "Tall Judi" :)
Judi Hosfeld
Carmel, IN USA - Tuesday, August 1, 2006 7:36 AM CDT

Dear Baylie,
What a beautiful young lady and inspiration you are to so many others. I read about you in a Chicago newspaper a few years ago and recently picked up a Chicago Parent paper and saw another article about you. My own daughter, who is 22, has become involved in a non-profit organization for cancer survivors because one of her very best friends was diagnosed with lymphoma and is on the road to a full recovery. I am going to buy some of your bracelets in the Chicagoland area and make sure these young women wear them and explain to all their friends who you are and what you have done for others. May the Lord continue to bless you and your family Baylie.
Nadine <mbsmom@excite.com>
Orland Park, IL USA - Saturday, July 29, 2006 9:59 AM CDT

Hi! I was wondering if you will be in Chicago next week sometime. I know you had talked about the fundraiser, but wasn't sure if that meant you would be at the RMH or if it was even close by. I will be in Chicago next week, and we hope to stay at the RMH. I thought it would be cool if we could met sometime. We will get to Chicago on tuesday, but probably not until the late afternoon/early evening. I don't know how long we will be there for. If you and Baylie are interested in meeting, please either email me or drop me a note in my guestbook! I will keep praying for Baylie!

hugs,
Cristina S.
www.caringbridge.org/visit/cristinas
Cristina S. <teenygurl88@hotmail.com>
Yelm, WA USA - Saturday, July 29, 2006 9:28 AM CDT

Hey Baylie... I hope you're feeling all right with all of this hot weather we're getting! My prayers are with you...

~Abby
www.abbyhorancharities.org
Abby
Arlington Heights, IL U.S.A. - Friday, July 28, 2006 4:10 PM CDT

Baylie,
Just to let you know, I love you very much, and I pray for you and your friends everyday.
********
I just read the current Chicago Parent, it has your interview and picture. You did a great job on the interview and the picture of you is very beautiful.
I love you!!!
Lenny Fasciana <laf1227412@aol.com>
Berwyn, IL usa - Friday, July 28, 2006 2:25 PM CDT

Hello!
Hope that you had a good time at the conference, and that you pain goes down, Baylie! That is so cool that your bracelets are in stores now!!!
Love,
Kimberly
www.caringbridge.org/visit/kimberly
Kimberly Spiroff
Richmond, VA USA - Thursday, July 27, 2006 12:24 AM CDT

Hey kiddo....I luv ya!

Feel better, Ann

www.caringbridge.org/visit/annbanfield
Ann Banfield <ann_banfield@glenbard.org>
- Thursday, July 27, 2006 12:02 AM CDT

Dear Baylie,
Just checking in on you to see how you are doing. I pray that the Lord will give you a good day today. God bless and keep you!
Tammy
Traverse City, Mi - Thursday, July 27, 2006 7:22 AM CDT

Hi Baylie, I hope you are feeling better each day and I will be praying for you. I was diagnosed on Monday wth Chairi Malformation and I am so scared. I sent a letter to your Mom for advise and help and hope I hear from ya'll soon. - In Christian Love, Regina
Regina Cash <www.rejimney02@aol,com>
Holly Lake Ranch, TX USA - Wednesday, July 26, 2006 2:41 AM CDT

Hey kiddo...just putting in my daily prayer for all of us and I thought I would leave you a little note! It got hot out today..I hope you didn't feel too bad, I thought of you and hoped your head wasn't hurting. I can't wait to see you next week...I'm very excited to get to hang out! If you need an extra set of hands to help you sell bracelets...I'm your girl! Take care sweetheart! Love ya, Ann

www.caringbridge.org/visit/annbanfield
Ann Banfield <ann_banfield@glenbard.org>
- Monday, July 24, 2006 11:14 PM CDT

Baylie! I just wanted to let you know I'm always thinking of you and how brave you are. I'm 17 years old and I have Chiari also. I first heard your story just before I went into surgery and I felt so much better after reading about you. I hope one day I get to meet you and I am going to work with Ms. Banfield (she works at my school) to help sell bracelets and more for the fundraiser. Stay strong in your journey.. your an amazing inspiration to me sweetie :)

feel free to email me if you ever want to talk to someone @
yeckubsj@comcast.net

love always,
Becky
Becky Johnson <yeckubsj@comcast.net>
Lombard, IL USA - Monday, July 24, 2006 3:55 PM CDT

Hi Baylie !! WOW !! You are an amazing & special young lady!! I want you to know that you will be in my thoughts & prayers & I will tell everyone I know about your website !! I just had decompression surgery in March for Chiari so I appreciate all you are doing!! God Bless you !! Ann Perkins Lima, OH
Ann Perkins <dahlperk@watchtv.net>
Lima, OH USA - Friday, July 21, 2006 9:22 PM CDT

I have PTC and Chiari Malformation.
Suzanne Brodeur <niddie99@hotmail.com>
Owosso, MI USA - Friday, July 21, 2006 8:28 PM CDT

Hi Baylie and Tressie

I just stopped by to thankyou for my t shirt.It came this morning and i am wearing it right now,it looks great!

I'm so sorry to hear your headaches are bad again.I don't think the hot weather helps much, esp for those of us who have shunts.

I hope your head feels better today and you can enjoy riding your bike again.That's great that you learnt to ride it without stabilizers.I am 24 and i still can't ride a bike! lol

Have a great week.

Love & (((hugs)))
Lydia xxx
www.caringbridge.org/visit/lydiablackmore
Lydia Blackmore <lydiablackmore@blueyonder.co.uk>
United Kingdom - Friday, July 21, 2006 7:32 AM CDT

Baylie!!! I hope your summer is going well! I am so excited to hear about all the great things you have done lately. YOu inspire me so much! I hope you come and visit the Strutters again. It was a blast last time. STRUTTER LOVE! 143(i love you)!

Merideth Seiler <dancer_chic1989@hotmail.com>
Kingwood!, Tx USA - Thursday, July 20, 2006 10:05 PM CDT

Baylie, Our world would be a better place if we all lived our lives like you. I saw your story on the news. We have a family right here in our neighborhood with the same condition as you, everyone but the Father. If you visit www.ftimes.com and click on photo gallery you will find the pictures. One is of the mother with children and the other is father with son. I have 2 healthy children(well young adults) and I feel very blessed. I am going to order some bracelets. Bless you and your family and I hope someday you will feel no more pain.
Carol Coffman
Frankfort, IN USA - Thursday, July 20, 2006 7:10 PM CDT

Hi there. Just wanted to let you know I received all the bracelets today! Every one is absolutely beautiful. I've been telling so many people about you and how amazing you are. I will check back again soon...

Take care,
Donna Muzzicato
Donna Muzzicato <our3ns@optonline.net>
Nutley, NJ USA - Thursday, July 20, 2006 12:54 AM CDT

Hi Tressie and Baylie,
I am sorry tp hear your headaches have returned. Alex and I say prayers for you guys every night. I understand how hard it is to watch your child enjoy being child and know that they will pay for it later. Alex does the same thing. And you know how hot it gets here in Houston! Keep your chin up like you always do and know you are thought of every day. Alex keeps Baylie's picture on our fridge. She is an inspiration to us and so many others. GOD Bless Your Family
Anna and Alex
Anna Bujan <Simplyabujan@aol.com>
La Porte, TX USA - Thursday, July 20, 2006 9:14 AM CDT

Hi Baylie!
Congrats on riding your bike without training wheels, YEAH! I'm sorry to read that your headaches are back, we all hope you feel better soon.
Stephanie and Iris
caringbridge.org/visit/iris

stephanie Hagerty <s.hagerty@insightbb.com>
bloomington, il usa - Wednesday, July 19, 2006 9:15 PM CDT

Wow...your entry has touched my heart....but then again, since the first day I read Baylie's story, she has amazed me so much that I was at a loss for words. She has done so much and is such an inspiration to so many people.

Prayers and thoughts are always coming from New Jersey.
Take care...

Donna Muzzicato
Donna Muzzicato <our3ns@optonline.net>
Nutley, NJ USA - Wednesday, July 19, 2006 9:08 PM CDT

i think baylie is a very brave and sweet girl, also very caring, i would buy several of her bracelets if i could afford it, but i did buy 2 of them, bless her heart.
kathy chaplin <kandb5256@aol.com>
greentown, indiana usa - Wednesday, July 19, 2006 7:01 PM CDT

Hi, So sorry that Baylie is not feeling well. We are thinking of you all! Much Love, Sherri & Kara

www.caringbridge.org/oh/kara

sherri <ketch16@yahoo.com>
ohio - Wednesday, July 19, 2006 6:42 PM CDT

Hi Tressie and Baylie,
I got my shirt and it's very cute! I have it on now and it fits fine. It will be a great advertisement and will raise a lot of awareness. I hope you're doing better! Jeanne
Jeanne Swack <jswack@wisc.edu>
Madison, WI USA - Wednesday, July 19, 2006 6:11 PM CDT

Baylie -
I am so sorry to hear that you are having such a rough time! I'm glad you got to have a few pain-free weeks and I pray that you will have more in the future! You're so strong and brave and I really admire you. I will be praying!

Love,
♥Kara♥ <karamel1992@yahoo.com>
- Wednesday, July 19, 2006 5:44 PM CDT

Dear Baylie,

My son, Nathaniel, was back at Comer's Children Hospital yesterday for a hernia repair. This was pretty mild compared to brain resection surgery last summer. I met a mom in the elevator whose child had just had decompression surgery with Dr. Frim and of course your name came up. We both showed each other the Baylie Owens bracelets we were wearing.

Later that day we were in the recovery room and I heard Dr. Frim's voice and it was comforting to me. Dr. Frim did Nathaniel's brain resection last summer but not this surgery yesterday. Nathaniel did have to stay overnight for monitoring due to his uncontrolled seizures.

This morning while I was in the family lounge getting a cup of coffee and a bagel I met another Mom from California whose child, Dante, had just had decompression surgery the day before. Guess what? She also had a bracelet on made by Baylie Owens.

Baylie your efforts to make people aware of Chiari are tremendous. You have gone nationwide with your story and your efforts to fundraise have been extraordinary.

You are a strong and brave girl who has touched my heart and so many others. Keep up the fight and I hope that your days can be more peaceful.

Tessie you are a warm, kind and loving mother trying to do all that you can for your child. I understand being overwhelmed with watching your child do a normal child activity only to be wiped out later. I also wish that I could wave a magic wand and make it all better but I can't all that I can do is make Nathaniel's life all that it can be and have peace knowing that I have done that.

You and Baylie are such a fantastic team and have touched so many peoples lives. Keep up the good work.

Nathaniel's website is www.caringbridge.org/il/natesdome.

Thanks again for touching my life.
Tina L. Landis <CLandis941@aol.com www.caringbridge.org/il/natesdome>
Evergreen Park, IL USA - Wednesday, July 19, 2006 4:39 PM CDT

Baylie I am so impressed by your story...It takes a big person to turn an event like this into such a positive thing. Your in my thoughts and prayers!!!
Ashley Sadler <ansadler86@aol.com>
Elizabethtown, ky USA - Wednesday, July 19, 2006 11:40 AM CDT

Baylie
I got your site from Jennifer A an wanted to come by an say hi sweetheart an that you & your family are very much in my thoughts & prayers.

PAM STURGILL www.freewebs.com/prayerbears <psturgill@bellsouth.net>
- Wednesday, July 19, 2006 8:13 AM CDT

Dear Baylie,
I am so glad that you and Ann got a chance to meet! (I am a friend of Ann's.) I hope that you are feeling better:) You are a brave and courageous young lady. My class has been making bracelets to help raise research money. We call them Baylie's Beads. We are all thinking about you.
Hugs,
Liz
Liz Martinez
glen ellyn, il usa - Wednesday, July 19, 2006 6:11 AM CDT

Hey Baylie. Just wanted to let you know that I'm praying for you.
Jennifer A from the prayer bears and ones who care <sassy_girl913@yahoo.com>
Carrolton, Texas - Wednesday, July 19, 2006 2:18 AM CDT

Baylie, this is Ann's sister, I just wanted you to know how amazing I think you are! Thank you so much for all the work you are doing to help make you guys feel better. It is so hard for us to understand how truly horrible this condition is for you guys, we can't wait for the day that you feel good every day not just now and then! Keep up your good work, we are trying to help any way that we can. Thank you for giving Ann's something to smile about even on the days that she doesn't feel like it. Love Joy
Joy Stoerger <joystoerger@yahoo.com>
Bement, IL USA - Tuesday, July 18, 2006 8:47 PM CDT

Great Work Baylie!!!
I saw you on the Fox 59 news and was so thrilled about all you are doing for Chiari research. I was diagnosed as an adult. Hang In there and keep up the great work.
Sincerely,
Bethani
Bethani <beth.davis@insightbb.com>
Lafayette, IN USA - Tuesday, July 18, 2006 8:29 PM CDT

Baylie,
I am Ann's mom and I want to thank you for helping her to overcome many dark days. You are an inspiration to all of us who have a family member with a chronic condition. We are thankful that your surgery went well and hope to see your smiling face in a magazine or TV. Keep up the good work. God's Blessings to you and your family. Connie Banfield
Connie Banfield <Cbanf51748@aol.com>
Decatur, IL USA - Tuesday, July 18, 2006 7:50 PM CDT

Baylie,

Hi there! This is Ann's sister and we want you to know that you are in our prayers! You have been such an inspiration to all of us, but especially to Ann, and we are all very grateful. We hope that you are feeling better very soon. I just love that picture of you and Ann looking so happy! Take care and keep smiling.

God Bless, Allison
Allison Sparrow
Bloomington, IL - Tuesday, July 18, 2006 6:06 PM CDT

Hi Baylie. I did not see your news story, but my brother did and he called me to check out your website. I have a daughter who was diagnosed at 15 months after having seizures. We are lucky that we are just being monitored at Riley's Children's Hospital with Dr. Jody Smith. As many mentioned before, you are an inspiration to me and to my daughter Lauren (soon to be 4). Thank you.
Carie Johann <cariebc801@hotmail.com>
Bloomington, IN USA - Tuesday, July 18, 2006 3:47 PM CDT

Baylie and family. God Bless You beautiful child. I am a nurse who works in a Pediatric Critical care unit in Indianapolis. I saw your story on the news. What a difficult journey that this must be for you. I work with children that have problems similar if not exactly like yours. I am so sorry that you hurt so much so often. You are an inspiration to all you have come into contact with. Stay strong.
Mary Jo
- Tuesday, July 18, 2006 3:05 PM CDT

Baylie and family - I'm so sorry that you have to endure daily headaches, medications, surgeries and everything else that goes along with this likesucker. I have a friend that was just informed that she is in need of surgery for her Chiaris - she is 35, married and has two children and she is scared to death. I saw the article in People last fall and told her about your website and she frequents it and I believe that it helps her. She just called me to tell me that we need to order bracelets and I suggested that we help make them. I hope that you start feeling better soon because your childhood is one of the best times of your life. Always look to God for support. He will never fail you, even when you feel that He has. God Bless and keep up the good work raising money. Love Pam Hochstedler :o)~
Pam Hochstedler <Pam@Hochstedler.com>
Knightstown, IN USA - Tuesday, July 18, 2006 2:57 PM CDT

Hi Baylie,
I don't know you, but I'm friends with Anne and she told me about you. I just wanted to say, hang in there! I too have been dealing with health issues my whole life. Things do get better, keep strong and lean on your faith, family and friends.
Brian <bri.kenney@gmail.com>
Leesburg, VA - Tuesday, July 18, 2006 1:09 PM CDT

Hi Baylie,
I'm so sorry you're not feeling well again. I really think Dr. Frim will find an answer and that the money you raised will go to fix you, and not just the rest of us!! Stay cool--it's been awfully hot up here in Madison too.
I got a Frim appt. for mid Sept.--he's getting really booked. Jeanne
Jeanne Swack <jswack@wisc.edu>
Madison, WI USA - Tuesday, July 18, 2006 12:11 AM CDT

Baylie:

You are an inspiration to all. Keep up the good work, all of us are praying for you! God Bless you!
Maribel Alvarez <MMari59!@aol.com>
Palm BEach, FL - Tuesday, July 18, 2006 10:38 AM CDT

Hi Baylie, I hope you're feeling better. I saw you on the Indianapolis news and thought "you are a real gift from God". I have five little kids and each and every day we'll remember you in our prayers. We love you!
Kathy <jksnoe@tds.net>
Rockfield, IN 46977 - Tuesday, July 18, 2006 9:42 AM CDT

Hi Baylie -
It's Nicole From New York. I have a fabulous little "baylie sized" purse for you to carry at your fund raising event in August. I will send it soon.
I hope that you are feeling well this week!
:-), Nicole
Nicole
New York, NY - Tuesday, July 18, 2006 8:39 AM CDT

Baylie...at 7 yrs old, you are the reason i am still standing...about the time serious depression was setting in, you came along and made me realize that I had 2 choices. I could be sad and do nothing, or I could help you raise money and awareness...you changed me and I cannot thank you enough. I am so sad you feel bad, I wish it were me instead. I got to play and have fun as a kid and I would love to be able to give you at least that. Please know that you and your family are loved by many, but especially by me and if you ever need anything, even just a hug, you call me! Hang in there, you are one of the toughest people I know. Love ya, Ann

www.caringbridge.org/visit/annbanfield
Ann Banfield <ann_banfield@glenbard.org>
Lombard, Il USA - Tuesday, July 18, 2006 8:24 AM CDT

I totally agree with Cathy's comment that they "pay to play". So very true. Drew was active this weekend and enjoying swimming and playing with his cousins and after having a couple of really good low symptom weeks, the pain and tingling in the legs, headaches, and nausea returned for the past three days. His last MRI wasn't too bad so surgery is not an option for symptoms right now. Just pain killers and slowing him down. It is really hard to slow down a ten year old boy in the summertime. But if he doesn't slow down, he pays for it. That stinks. How I wish our kids could be free to just be kids...I hope Baylie bounces back symptom wise with a little down time. She's doing an awesome job of being the voice of chiari.
Rochelle Geloni
Houston, TX - Tuesday, July 18, 2006 8:21 AM CDT

Baylie,
I found your webpage from a friend who posted it on my myspace page. You will be in my prayers and thoughts. Enjoy your summer.
Julia <jewelsgem23@yahoo.com>
Finksburg, MD Carroll - Monday, July 17, 2006 10:20 PM CDT

Baylie,
My husband and I saw you on the news last night and were amazed by you and your story. You see my husband gets terrible headaches called Cluster Headaches. I hate to see him go through so much pain and do not wish that pain on anyone, especially a beautiful, innocent child such as yourself. I hope you are feeling better and I want you to know I will pray for you. Keep up the great work sweetheart. You are an amazing little girl!
Cassie D.M. Burden <cassiedmburden@yahoo.com>
Indianapolis, IN USA - Monday, July 17, 2006 7:14 PM CDT

Hi Baylie! I too have PTC. I am 31 years old and have a 6 year old little girl. Her grandmom bought a bracelet for her. Her name is Jessica. We will pray for you, will you pray for me too? I have had to have a spinal tap, and get lots of headaches too. If you need some encouragement, you can email me!
Stephanie <skraphead@comcast.net>
Telford, PA USA - Monday, July 17, 2006 11:24 AM CDT

Great Job Baylie! You are an inspiration! You are in my thoughts and prayers everyday through this tough time! Keep a smile on your face and your head up!! And always remember to follow your dreams!
Brandi Cowgill <bransbay@comcast.net>
Carmel, IN USA - Monday, July 17, 2006 8:47 AM CDT

Hi Baylie! I saw you on the news last night and again this morning. I think you are an awesome girl who is making a huge difference in many peoples lives like mine. I have Chiari too. Maybe I will be able to meet you someday since we are neighbors.
Sarah <slc2910@yahoo.com>
Fishers, IN USA - Monday, July 17, 2006 8:45 AM CDT

Hi Baylie,
I saw you on the Fox 59 news tonight. Your story is very inspirational. I also live in Carmel and I would love to help raise money for you in any way I can. If you need any extra help making bracelets let me know!
Heather
Heather Kinnaman <hmkinnaman@yahoo.com>
Carmel, IN USA - Monday, July 17, 2006 0:08 AM CDT

*Hey Baylie*,
We are so super psyched that you are finally feeling so good!!! Whitney has been so worried about you. Enjoy the rest of your summer.
Tressie,
Can't wait until Wednesday!! See you at O'Hare...
flyin...flyin...flyin... :)
Rebekah Wagenbach
www.caringbridge.org/visit/whitneyryanwagenbach

Rebekah Wagenbach <jonbekwag@chiaribracelets.com>
Tremont, IL USA - Sunday, July 16, 2006 10:51 PM CDT

I just wanted to say that I think it is wonderful all of the hard work you are doing for research for Chiari Malformations. I recently underwent surgery for my Chiari malformation and suffered complications including hydrocephalus after the surgery. In my case I did not require a shunt, the surgery so far has repaired the damage. But after going through the situation myself and being as lucky as I have been it is great to be able to suppourt something dear to my own heart and someone as inspiring as Baylie. May God continue to bless you and yours as he has mine. And thanks for all of your hard work!
-Abby
Abby <abbymarcus@hotmail.com>
Sugar Land, TX US - Sunday, July 16, 2006 4:28 PM CDT

Hi Baylie,
I'm so sorry that you have had to go through this and I have no idea what it's like but I just wanted to say Hi and God Bless.
Love, Kathy :)
Kathy Blank
Hartsburg, MO USA - Saturday, July 15, 2006 12:48 AM CDT

Hi Baylie! I hope you & your family are doing well. I really enjoy reading your website to see how you are doing. You look great & as cute as ever! Keep makin' those bracelets!

Lisa Cabrera
Cypress, Texas USA - Friday, July 14, 2006 9:33 AM CDT

Hey Baylie!!! I'm soooo glad your surgery went well! I was actually right there with ya, I got my first shunt infection and had emergency surgery on June 20th. I'm too old now for Dr. Frim to sneak me into Comer's which is sad because its a beautiful place LOL My mom and I were thinking about you guys. Mom wanted to try and find a way to meet you but I didn't want to bother you ^^; I feel bad though, I've got 70 bracelets here that I haven't mailed to you yet because of recovery being so tough this time. I promise I'll send them soon! OH! And just so you know, one of my many nurses in the adult hospital was wearing one of your bracelets ^-^ It made my day so I wanted to say thank you again for all you do. I hope I can meet you someday! Hopefully when we're both healthy though. Hang in there little one!
Samantha Heap <yumechandesu@yahoo.com>
Sycamore, IL USA - Friday, July 14, 2006 6:35 AM CDT

Hey Baylie & Tressa! It was great meeting you in Chicago -- playing scrabble at RMH was a blast. Hope your appointment went well. Ours was just fine. Nehemiah is doing great and everyone enjoyed our bracelets. Nehemiah is so COOL in his "brain surgery" shirt (with his Dr. Frim bowtie, of course). You all were so much fun -- thanks for everything and we hope to see you again soon! Keep up the good work!
The Arndt Family - Don & Julia, Ezekiel, Grace, & Nehemiah <mamarndt3@yahoo.com>
Louisville, KY USA - Friday, July 14, 2006 1:15 AM CDT

I was reading a friends site which ended up directing me here. I too had pseudotumor cerebri at age 23 and again at 31. I did not need a shunt though and no longer suffer from PTC but I have a laundry list of other diagnoses now and at age 37 I am on Social Security Disability. I am praying for you.
Amy <Aj4rn@aol.com>
York, PA USA - Friday, July 14, 2006 1:13 AM CDT

Baylie, So glad that you are doing so well sweetie!!
Love, Sherri & Kara

www.caringbridge.org/oh/kara
sherri <ketch16@yahoo.com>
ohio - Thursday, July 13, 2006 10:59 PM CDT

Hi Baylie-Uncle Sean and I are so happy you are doing much better!! We will miss seeing ya'll this summer! Take care....we love you!!
Myriam Martin <sean.myriam@yahoo.com>
Houston, TX - Thursday, July 13, 2006 12:10 AM CDT

Dear Baylie, My daughter and I ordered your bracelets and wear them all the time. They are beautiful, just like you! We tell your story to whoever asks about our bracelets. I am glad that your surgery went well and that you are feeling better! YAY! We will keep praying for you! God bless you...
A Michigan mom
Ellsworth , Mi - Wednesday, July 12, 2006 7:26 PM CDT

hey baylie my friend told me about you. you are so brave and inspiring my dad said he'll buy ur bracelets and i'm going to give them to all my friends=]! i'm keeping you in my thoughts and prayers

stay brave
<3 gabby
Gabby
houston, oh usa - Wednesday, July 12, 2006 5:06 PM CDT

Hey Baylie,
I am really happy to see that your doing alot better!!! It sounds like you had fun on Saturday riding your bike.
Your knew look on your website is really cool. I think the blue backround looks like beads.
I hope you keep feeling beter!!!!!!!!!
<3 Caity!!!!!
Caity Kramer
Kingwood, TX USA - Wednesday, July 12, 2006 10:50 AM CDT

I love the new website look! I hope you continue to feel good.

<3 Abby www.abbyhorancharities.org
Abby Horan
Arlington Heights, IL USA - Wednesday, July 12, 2006 9:40 AM CDT

Baylie I was so glad to hear that your surgery went good. I received my bracelet yesterday and haven't taken it off since. I have passed along your website to all my friend and co-workers. You stay strong and I'll forever keep you in my prayers.
Jodie McNalley
Edgerton, Oh USA - Wednesday, July 12, 2006 7:56 AM CDT

Hi Baylie & Tressie
Thankyou for signing my GB,glad you like the card! I am so pleased to hear you are feeling great and doing well.
Long may it continue.
Take care
Lydia xxx
www.caringbridge.org/visit/lydiablackmore
Lydia Blackmore
United Kingdom - Wednesday, July 12, 2006 5:56 AM CDT

Hey Baylie,
I have been thinking about you! I am your old friend who taught your sister and was hoping to have you in my class until you guys moved. Tell all hello and keep up the good work:)

Mary Wells <mary.wells@cfisd.net>
Houston, Tx USA - Tuesday, July 11, 2006 2:35 PM CDT

Hi Baylie,
You don't remember me, but I met you when you were a wee baby. You were beautiful then, and even more so now. I am so happy you are doing so well. I'd love to see you and your mom. Maybe sometime soon. Take Care and much love!
Roxanna Pollok <roxannasanford@hotmail.com>
Stafford, Tx Ft. Bend - Tuesday, July 11, 2006 11:45 AM CDT

Hi Baylie -
I'm so glad to hear that you're feeling better!
Your new website is so great. Wow - $98K! You go girl!
You are such an inspiration! I pray for your continued health and well being.
Nicole
New York, NY United States - Tuesday, July 11, 2006 11:23 AM CDT

Hey Baylie and mom...hope you're enjoying your summer up north. Texas is as hot as usual. We spend most of our time in water of some sort or another to keep cool. We might be moving house soon too, but just to Sugar Land. Drew has had a pretty good past couple of weeks. Being a 10 year old boy he is having to be discouraged from picking fist fights because the other kids always want to go straight for his head. When will he ever learn? Maybe you can talk some sense into him at Camp Chiari next month. Can't wait to see you guys again...and thanks so much for adding the link to Drew's webpage. that's so cool.
Rochelle Geloni <r_geloni@yahoo.com>
Houston, TX - Tuesday, July 11, 2006 11:13 AM CDT

I'm so glad that you are feeling better, Baylie! I think of you daily and pray for you too! Keep up the good work!

Sherri Hopman <sherrinme@sbcglobal.net>
Crown Point, IN - Monday, July 10, 2006 4:27 PM CDT

Hi! I received my braclets a couple of months ago. Thanks, they are great. I ordered them after my son was disgnosed with Chiari and then saw the article in People Magazine. We just found out that his twin sister has Chiari as well. They will be one on Thursday. You are an amazing girl to raise so much money for research. Thank you for all that you do.
Jessica Perrin <jlwilson112@hotmail.com>
OH - Monday, July 10, 2006 3:02 PM CDT

Baylie, I'm only 13. Or i would buy a bracelet, and I'm so sorry i can't but, My prayers go out to you and you're family.
I'm sooo sorry. :(
-Chelsea
Chelsea
- Monday, July 10, 2006 1:00 PM CDT

I am so proud of what you are doing and I am wanting to help you sell your bracelets.
Debra Quaco <debi_q@mail.com>
Polo, IL USA - Sunday, July 9, 2006 9:56 PM CDT

HEY BAYLIE I JUST READ ABOUT YOUR STORY AND I THANK YOU ARE ONE GREAT COURAGIOUS LITTLE GIRL I HAVE A LITTLE GIRL THAT IS 4 AND I HOPE SHE GROWS UP TO HAVE THE KIND OF COURAGE THAT YOU DO.KEEP UP THE GOOD WORK AND MAY GOD BLES YOU.
KRISTIE C <rosegreenly321@yahoo.com>
SODDY DAISY, TN - Sunday, July 9, 2006 7:49 PM CDT

HEY GURLY!!! my name is camille and i'm a kingwood strutter.I love ur braclets they are so pretty!i wear mine all the time!!! nice meetin ya at dance!!!
luv ya lots!!!

Camille Falbaum <camo200@aim.com>
Houston, tx - Saturday, July 8, 2006 9:56 PM CDT

I read the article in PEOPLE magazine while I was at the doctor's office and was truly inspired by your story! Your parents have so much to be proud of because you truly are an inspiration to millions of girls out there! Congrats on the success of your bracelets, and I hope that you continue to sell more!
Stefanie Kochtubajda
Edmonton, AB Canada - Saturday, July 8, 2006 8:24 PM CDT

Glad you are doing well . I hear that Kara is having surgery again . Hugs
Roz from ASAP
Iowa - Saturday, July 8, 2006 4:16 PM CDT

Dear Precious Angel, I just found your site and you are a true inspiration! Keep up the wonderful work. My little girl Jeanna (5) was decompressed 2 years ago but struggles with the ACM issues everyday. You are in our thoughts and prayers! You are an angel !!
Anna M Grcich <annamgrcich@hotmail.com>
Bull Shoals, AR USA - Saturday, July 8, 2006 0:13 AM CDT

I love your site!!! I'm keeping you in my thoughts and prayers!!
Love, Casey
www.caringbridge.org/visit/casey
www.caringbridge.org/visit/jacksonmansfield

Casey
- Friday, July 7, 2006 4:38 PM CDT

The best thing that happened to me today was the great big hug I got from you at clinic! I was so happy to see us both feeling so good! Thank you for brightening my day. I cannot wait to see you again in August! Love ya, Ann
Ann Banfield <ann_banfield@glenbard.org>
Lombard, Il USA - Thursday, July 6, 2006 10:52 PM CDT

glad the surgery went fine.take care.keep up the good work you are doing
jane <janemartin01@comcast.net>
berwyn, il usa - Thursday, July 6, 2006 11:48 AM CDT

Glad to hear that you are doing very well! I hope that your headaches and all those nasty things stay away! FEEL BETTER!
Love,
Kimberly
www.caringbridge.org/visit/kimberly
Kimberly Spiroff <helpasap@comcast.net>
Richmond, Virginia USA - Thursday, July 6, 2006 11:37 AM CDT

im glad to see your doing better. My cousins said you visited their dance class in kingwood, teaxs
julie
downingtown, pa usa - Wednesday, July 5, 2006 12:49 AM CDT

Hey Baylie!
Ok, so you don't know me, but I think you sorta know Paige S. since you went to visit the strutters and all. But yes. Anyways, you are an amazing girl and you are very inspiring! I mean, your just so awesome! I don't know what to say. Paige said you recently had surgery, so i just wanted to leave a get well soon kind of message thing. Yeah. You are one kewl kid!!! Stick to what your are doing, because its really outstanding! I will keep you in my prayers, and God bless!!! Have a MARVELOUS day!!!! <3
Chelsea
- Tuesday, July 4, 2006 11:20 PM CDT

Happy Fourth, Baylie! Guess what? We had a big parade in our town, today!! There were so many people there, and there was lotsa candy!! Our town also had a big fireworks show tonight... it was marvelous! Do ya'll do fireworks where you live? We can't, unless it's sponsored by the city, because it's illegal. =[ I am very very very glad to hear you are feeling much better... hopefully good enough to come visit the Kingwood Strutters? =]

Strutter love to you!!!
Paige <><
Paige Sullivan =] <paige@paigesullivan.com>
K-Wood, TX! USA - Tuesday, July 4, 2006 11:03 PM CDT

Hi Sweetie:
So glad to hear that you had your surgery and things are looking a little brighter for you. Tell your Mom to give you a hug from all of us. We hope things continue to improve every day.

The Webbs
Faith Webb <chiarimom@optonline.net>
Clifton, NJ USA - Tuesday, July 4, 2006 10:58 PM CDT

Hi Baylie: I do hope and pray that you are feeling better. I was 55 years old when the dr. told me I had a chiari Malformation. He also said my fourth ventricle did not close when my Mom was pregnant with me. And I had a 12 in. long syrnix in my spinal cord. Gosh!! I thought I was a perfect baby, and they just now tell me. I'm really old . A grandmother with three beautiful grandchildren. Bo is 12 , Ali is 8 and Shaylee is 4. I love them soooo much. I just saw the article in April People magazine. I am so thankful that you were able to raise that much money for this terrible and most painful disease. I had surgery June o5
then a shunt NOv. 05. I had to quit work but now I get to see my grandkids much more. Love to you
Granny Doe
Gloria L. Alexander
Texarkana, Tx USA - Tuesday, July 4, 2006 9:32 PM CDT

Happy 4th of July Owens Family! I hope you all had a great weekend! I am SO glad to hear Baylie is feeling better...gives me hope it will be a "quick fix" for Riley as well!

HUGS from Rachel, Kurt, Alex and Riley
www.caringbridge.org/visit/rileyjohnson
Rachel Johnson <smiley_rileys_mom@yahoo.com>
Lake in the Hills, - Tuesday, July 4, 2006 6:07 PM CDT

Diana <Diana893@gmail.com>
Dallas, TX - Tuesday, July 4, 2006 12:33 AM CDT

hi baylie! hey i don't know if you read these yourself or whatnot, but, anyhow, i hope someone gives you access to this, 'cause this is strictly personal, lol. anyhows, you recall kat, right? ya, this is her email friend from california, cherry. i hope everything's going as well as it can for you! my best regards!
Cherry <sweetplumeria22@yahoo.com>
LA county, CA US - Tuesday, July 4, 2006 0:40 AM CDT

i read your story, baylie and you are such a brave little girl. I am really proud of you!! God bless you and may he grant you with good luck!
Cierra
- Monday, July 3, 2006 6:11 PM CDT

Hi Baylie!

I just thought I'd drop in to say hello and that I'm thinking about you!!! I hope you have a wonderful holiday!!!

Strutter Love!
Paige =]
Paige Sullivan =] <paige@paigesullivan.com>
K-Wood, Texas USA - Sunday, July 2, 2006 7:45 PM CDT

Hey Baylie, Ben and I are so glad to hear that ur surgery went well....we have been beading braclets! Take care! Clare and Ben Wineman
Cindy Wineman
Houston, - Sunday, July 2, 2006 12:11 AM CDT

hey baylie! i'm glad you're doing good! i still remember you dancing in a circle at staceys dance studio and everybody fallowed you! it was so much fun! i hope you can come back to visit us! we all are thinking about you and praying for you! have a wonderful day!
love and prayers
Shelby Rushing
- Saturday, July 1, 2006 8:42 PM CDT

Baylie-

I just came back from visiting my grandparents in Carmel. I was hoping I would see you and would have a chance to say hi,but I didn't see you. I am glad you did well in your surgery.I love your shirts, I would have bought one but, I was on vacation we she was taking orders. I hope you keep on feeling well.Talk to you soon!

Ashlyn
Kingwood, TX - Saturday, July 1, 2006 4:52 PM CDT

You're one special girl, Baylie! The American Legion Post 489 in Yorkville, IL. is wishing you well and can't wait to meet you August 4th-6th. Anyone that wants to come out to meet her is welcome. Email me at mobay85@aol.com for info.
GO BAYLIE!
Danny Brown <mobay85@aol.com>
Montgomery, IL USA - Saturday, July 1, 2006 4:44 PM CDT

*Baylie*,
We hope you're feeling better, and they have found out what is causing all of your pain. Whitney wanted me to tell you hello and get better soon.(she's so bossy :) ) Hang in there guys!!!
The Wagenbach's~ Jon, Rebekah, Nichole, Whitney(ACM), Jordan & Ryan(ACM)
www.caringbridge.org/visit/whitneyryanwagenbach
Rebekah Wagenbach <jonbekwag@chiaribracelets.com>
Tremont, IL USA - Friday, June 30, 2006 10:49 PM CDT

Hey Baylie...still thinking about you and praying that your pain will stop. If I could make it go away I would...my family and friends were so excited that I finally got to meet you. They knew how much it meant for me to get to give you a hug and thank you for all that you are doing to make both our lives and all the others who suffer from these disorders, better! Try to focus on the things that make you smile, like warm summer days, a big bowl of ice cream, and playing with your friends! Take care, Ann
Ann Banfield <ann_banfield@glenbard.org>
lombard, IL USA - Friday, June 30, 2006 9:13 PM CDT

I was reading through People magazine when I ran across the article. What Baylie is doing is awesome. I was diagnosed with Chiari when I was in 4th grade. I had surgery to fix it in 2003. I feel 100% better and am hoping to spread awareness on Chiari. Let me know if there is anything I can do to help!
Micah Kiernan <robert.kiernan@mnsu.edu>
Alton, IA 51003 - Tuesday, May 9, 2006 4:32 PM CDT

Hello Baylie
Beading is a new hobby for me and i LOVE it, so was really touched when i came upon your site. What an inspiration you are! Take care, lil Angel :-}
Lots of love,
T-
Teresa Syverson <2ndchance@hometownsolutions.net>
Morris, MN USA - Tuesday, May 9, 2006 2:31 PM CDT

Praying for you,
Barb, John, Shawn,
Shannon, & Colleen
www.caringbridge.org/page/shannon

Barb
- Tuesday, May 9, 2006 1:25 PM CDT

Dear Baylie: if it was not for story in people magazine I would not have found Dr. Frim for my 16 year daughter who also has a chiari and a syringomyelia. The doctors in Tucson said she should just live her life in pain. I did not read the first story, but the update. I pray Dr. Frim can help my daughter, she has lost the feeling in her left hand,headaches,shoulder pain,neck pain, and she feels her left leg go numb and can not use it, she has missed a lot of school. Baylie I pray you get better and live out all of your dreams!!! Thanks so much. Vicki and Samantha Bergquist
Vicki Bergquist <vberguist@cox.net>
Tucson, az usa - Tuesday, May 9, 2006 11:29 AM CDT

Hi Baylie! I received the braclettes today, and they are so cute. I am giving them to my neice. You are one very special little girl. God bless you!
Niki Mussotto
Merced, Ca USA - Monday, May 8, 2006 5:49 PM CDT

Dear Baylie,
My sister, Bailey, had ACM and we love what youa re doing. Good luck in your already strong going organization.
Jordan Schreiber
jordanschreiber@msn.com
Jordan Schreiber <jordanschreiber@msn.com>
Jackson Hole, WY United States - Monday, May 8, 2006 10:31 AM CDT

Way to go! You are going to be a household name before you know it. That is so exciting about Washington DC, the Memphis Belle, and the air show. Good luck with everything and I hope your new medicine continues to keep working.
Stephanie and Iris Hagerty
www.caringbridge.org/visit/iris
stephanie Hagerty <s.hagerty@insightbb.com>
bloomington, il usa - Sunday, May 7, 2006 11:08 PM CDT

I received the bracelet thank you. I am glad to hear that delivery is slow because of so many order. GREAT!!!!!!!!!! I will email your website link to all my friends so that they can join in your cause. Keep it up!!!!!!!!!
Alemarie Vazquez <avazquez2@dadeschools.net>
Coral Gables (Miami), FL USA - Sunday, May 7, 2006 0:23 AM CDT

Hi Bayle,

Just received my Braclets today...Thank You so much, I love them..and will think of you when wearing them. And Pray for a cure. Thanks for all you do you are wonderful!!

Lots of Love,
Carole Duncan (San Diego Calif)
Carole Duncan <carole@sdjga.org>
San Diego , CA - Saturday, May 6, 2006 2:54 PM CDT

Baylie, that is AWESOME, I have just found out that I have Chiari type I, I am 33, my Mother and Brother also had it, and they are going to give my 3 children MRI's to test them. They are calling it Clustering, since so many people in my family has had it. Keep up the good work, this world needs many more BAYLIE'S in it. I do hope someday they find away to cure it. I totally refuse to have the surgery, due to personal complications with my brother's surgery. Until they find another way if not in my life time, I will continue to hope and pray they find a way besides surgery to fix the problem, I will continue to support the cause, that has affected very few of us, and my 8 year old daughter said it best, "Mommy the reason God let you and so few people have it is because he only wanted the best to deal with something like that". My thoughts and prayers are with you. Keep doing what your doing and God will Bless you even more.
Karen Thompson <wllrobison@pldi.net>
lindsay, ok usa - Saturday, May 6, 2006 0:43 AM CDT

Hi Baylie,
I think it's great what your doing and I can't wait to to get my bracelet. Good luck with all you do. I will keep you in my prayers.
Amanda Bishop
Mapleville, RI United States - Friday, May 5, 2006 8:28 PM CDT

Hey just wanted to stop in and say Hi and see how things were going. We love keeping up on all you do, you are a real inspiration to us all.
Amy and Sydney
www.caringbridge.org/visit/sydssite

Amy Pertell <amypertell@yahoo.com>
- Friday, May 5, 2006 1:56 PM CDT

Baylie, I have a great deal of awe for all that you are doing. The bracelts are lovely and I am going to buy two of them. I also will email my friends to visit your web site and to buy the lovely bracelets.
Sheila Millstone <sheilarmillstone@hotmail.com>
Revere, MA US - Thursday, May 4, 2006 7:33 PM CDT

Hi Baylie,
My daughter, Jade, also has Chiari and she has Syringomyelia. She is now 6, she was diagnosed when she was 4. You are an inspiration to us! Keep up the good work! We sincerely hope you are feeling well.

Lisa Lewis <playball@hereintown.net>
Cumberland, MD USA - Wednesday, May 3, 2006 12:08 AM CDT

Hi Baylie, I too have chiari mal. I was diagnosed ablut 10 years ago. THE DOCTORS thought I had MS. After many MRI's a different prognosis was given. I had surgery and a shunt was put in. I still have high pressure in my upper ventricles but no pain. I am still having trouble walking sometimes. I am 55 years old and my surgery was in 1996. Stay positive and enjoy yourself. It could be worse.
Linda Woodworth <clarkew00@earthlink.net>
Sterling , Ks USA - Wednesday, May 3, 2006 9:03 AM CDT

I saw the article in the People magazine recently and think you are doing a great job for the cause!!! I will keep you in my prayers!
Becky Clayton <bclayton@apuinc.com>
Amarillo, TX USA - Wednesday, May 3, 2006 8:56 AM CDT

Hi Baylie and family,
I had never heard of chiari until my oldest son was injured in a wrestling practice which caused temporary paralysis in February 2006. After seeing a doctor, I picked up the People magazine and it had your article in it. I was shocked to hear others have this condition. He had surgery on April 21st and all went very well. He will be returning to school on May 8th. I think it is awesome all the hard work you have put into raising money to help research of Chiari. I will be ordering your bracelets to help you out. I also bought a print from Kara. Thanks again.

Sandy Wilson <cwilsonfamily@yahoo.com>
Leander, TX - Tuesday, May 2, 2006 9:58 PM CDT

Dear Baylie,

Andi's dad brought us 2 of your beautiful braclets. I hope your research finds a cure for CM.

I hope you feel better!

Emily and Olivia Brown
Emily and Olivia Brown <joevbrown@yahoo.com>
Tinton Falls, NJ USA - Tuesday, May 2, 2006 5:00 PM CDT

This is so great what your doing I love this idea. your changing people perspective of kids right there
chelsea <jeffjaguar11@sbcglobal.net>
toleds, ohio us - Tuesday, May 2, 2006 3:13 PM CDT

Hi Baylie-
My daughter also named Bayley just had Chiari surgery on April 24th. She is 7 yrs. old and from the best I can tell from your pictures, has about the same hair color as you too. Imagine that! She is doing okay. She still does not have all her energy back and has some pain and nausea sometimes too. We are going to order a bracelet for Bayley to wear!
Melissa Saville <mel67saville@comcast.net>
Commerce, Mi USA - Tuesday, May 2, 2006 11:40 AM CDT

Dear Baylie

I was just thinking about you this morning!! I hope that you are doing well. All of us in Kingwood are looking forward to your visit in June!!

Love,
Andi
Andi <danenberga@hotmail.com>
Kingwood, TX United States - Tuesday, May 2, 2006 10:52 AM CDT

Hi Baylie, I found your website! That is so awesome! My niece, Bayley, is 7 years old and just had surgery for chiari last Monday, April 24th. Bayley lives outside of Detroit, MIchigan. She went home today and is doing well. I sent her your website, it will make her feel good to see someone like her dealing with the same stuff! You are an awesome little girl and we plan to order bracelets for our family! Best wishes!
Allyson <aman71@bellsouth.net>
Coral Springs, FL USA - Monday, May 1, 2006 7:58 PM CDT

HI Baylee, my niece, also named Bayley, just had surgery in Michigan for Chiari malformation. I heard about you throught a friend who read an article in a paper in Florida and wanted to find out more about the bracelets you make. Thanks!
Allyson Mancini <aman71@bellsouth.net>
Coral Springs, Fl USA - Monday, May 1, 2006 7:51 PM CDT

Hi Baylie,
My name is Alicia and I live in Tennessee. I have a daughter named Emma and she is also 7 years old. She has Chiari Malformation Type I, hydrocephalus and aquaductal stenosis. She has a VP shunt. When she gets home from school, I'm going to show her your website. I read about you today at the dentist's office and couldn't wait to get home and look at your site. I'm going to email your mom and order some braclets. We'll be so proud to have them and will show them off to everyone we know and encourage them to buy braclets from you. You are an incredible and very special young lady. An angel here on earth is what you are!! I know your mom and dad couldn't be any prouder of you. Thank you for all that you do to bring attention to Chiari. You are an inspiration!!!
Alicia Georgiou <aageorgiou@bellsouth.net>
Goodlettsville, TN - Monday, May 1, 2006 1:33 PM CDT

THANK YOU FOR ALL YOUR WONDERFUL WORK. SOMEDAY LIFE WILL BE EASIER FOR THOSE OF US WHO SUFFER WITH CHIARI AND YOU WILL HAVE BEEN A PART OF MAKING IT EASIER.
SHANNON <SHANHARD@AOL.COM>
GIBRALTAR, MI UNITED STATES - Monday, May 1, 2006 1:48 AM CDT

Baylie, you sound like an amazing little girl. I hope all goes well for you and your family. I think your idea of making braclets to raise money is a really neat idea!!! I'm going to order braclets from you and give them to family/friends for christmas this year. GOOD LUCK TO YOU!!!!!!!
Stacie Hahn <hahns49@yahoo.com>
Rosholt, WI USA - Sunday, April 30, 2006 8:58 PM CDT

Baylie, I'm glad you are doing well. You are an inspiration! :)
molly
Pittsburgh, Pa USA - Friday, April 28, 2006 8:40 AM CDT

Hope you have a great day. You are an incredible little girl. You don't live far from us. So I hope you enjoy the nice weather today.

www.caringbridge.org/visit/gabrieljesus

Autumn <angelic_rose_51999@yahoo.com>
Frankfort, IN - Friday, April 28, 2006 8:06 AM CDT

I have a 3 month old grandson Aidan Thomas who was born completely healthy. I am very grateful and would like to buy bracelets on his behalf.
Robin Skilliter <robinsk@verizon.net>
Glendora, CA Los Angeles - Thursday, April 27, 2006 7:30 PM CDT

Hey,

My name is Clinton Wilson and I just got my surgery done and it went well. Now I'm at my house and I can't go back to scholl until another two weeks. So, my mom actually went to my school and got all the work from my teachers and my language arts teahcer assigned me a research project. For my project I have to pick a topic that I am interested in and I also have to write a paper and include pictures. I have decided to do my project on Chiari Malformation and I was wondering if I could use some of your pictures in my project. If I can do you mind if I use some of your pictures off your website or could you send me some pictures of you in general or whenever. I would really appreciate it if I could use them but if not then it's ok, Well I'll talk to you later.

Clinton Wilson <clint_wilson12@yahoo.com>
Leander, TX United States - Thursday, April 27, 2006 5:15 PM CDT

Hi Baylie hope you are doing well that must've been so coool in Texas . I have given some of the nurses in my hospital your bracelets as over here it is such a rare condition. Take care loads of hugs xoxoxo Megan and Mairead www.caringbridge.org/visit/meganreynolds
Mairead and Megan Reynolds <mackreyn@msn.com>
Belfast, N.Ireland - Thursday, April 27, 2006 8:57 AM CDT

Baylie, Just wanted you to know that we are thinking of you sweetie! Tell mom we said, "hi"!! Love, Sherri & Kara

www.caringbridge.org/oh/kara
sherri <ketch16@yahoo.com>
ohio - Wednesday, April 26, 2006 3:55 PM CDT

Hi Baylie, I read about you in a magazine article. You are such a pretty young girl. My 20 year old son was found to have ACM1 in Nov.2000(age:15). He had surgery at Childrens Hospital in Washington, DC. He also has other health issues. So we take one day at a time. Thanks for what you are doing.
Lisa Ibanez <lisaibanez540@hotmail.com>
Gaithersburg, MD Montgomery - Wednesday, April 26, 2006 10:09 AM CDT

HI!hope you are having a good week.Ordered 2 of your bracelets and am waiting to give them to my daughter,who just had her tonsils removed.Take care.keep up the good work.love jane
jane <janemartin01@comcast.net>
berwyn, IL USA - Tuesday, April 25, 2006 5:41 PM CDT

youre so awesome
naomi and zac grattan <naomi.vasquez1@us.army.mil>
colorado springs, co usa - Tuesday, April 25, 2006 5:01 PM CDT

Hi There, I just wanted to tell you what a brave little girl you are, i have a seven year old boy and think of you often now and admire you and what you have accomplished. WAY TO GO....
Candice Clark <jacobsons@ij.net>
Saint Petersburg, FL USA - Tuesday, April 25, 2006 5:16 AM CDT

I LOVE YOUR IDEAS. I HAVE AN 8 YEAR OLD SON THAT HAD SURGERY FOR THIS ON MARCH 22,2006. HE IS DOING WELL. I AM VERY SURPRISED THAT THIS IS SO COMMON AND NOT MORE RESEARCH DONE AND TALKED ABOUT MORE. THANKS TO YOU PEOPLE WILL KNOW MORE ABOUT IT. THANK YOU, MICHELLE

MICHELLE BYRD <MBYRD@ETMC.ORG>
ATHENS, TX USA - Monday, April 24, 2006 10:39 AM CDT

Hi,
I am eight years old and i also have chiari Type I. I am going to have surgury so I won't get headaches anymore.
Kaitlyn Marie Rabinovitz <krabbi8@comcast.net>
Avon, ma usa - Saturday, April 22, 2006 12:23 AM CDT

Hi Baylie! I thought this picture was cute, yet ironic. I hope you have a good weekend and your Easter was fun!
Strutter Love!

Love and hugs <><
Paige
Paige Sullivan : ) <paige@paigesullivan.com>
K-Wood, Texas USA - Saturday, April 22, 2006 0:37 AM CDT

Dear Baylie, I just received my bracelets in the mail and wanted to thank you for sending them to me. I will wear them proudly and will tell everyone your story. Best wishes...angela christina
angela christina <harmony_98@hotmail.com>
angola, ny usa - Friday, April 21, 2006 6:02 PM CDT

Hi, Baylie! I have a little niece named Baylie, too! I think that you are one very beautiful, loving little girl. I felt so proud of you when I read about what you are doing to raise money to find a cure for this disease that you have! And your bracelets are so very beautiful!
Your Mommy and Daddy must be so VERY proud of you, honey.
Keep up the good work. God loves you and so do I! And you will always have my prayers to find a cure for your disease. You are truly an inspiration to me!
I love you, sweetie!
Sue Hall <shallca@prodigy.net>
Placerville, CA United States - Friday, April 21, 2006 1:16 PM CDT

You are a very brave little girl. I was 27 when I was diagnosed with Chairi 1 Malformation and this only happened because I had to be rushed to the hospital because the headaches got so bad. To be your age and be so brave is amazing. You encourage us all to be brave.
Leah Morgan <leah1stxmom@hotmail.com>
Indianapolis, IN USA - Friday, April 21, 2006 2:18 AM CDT

Baylie,
You are a very courageous young lady. I admire you for your positive attitude although you've been through a lot. Good luck and my prayers are wiht you and your family.
Tammy Dunn <destinyivanna4me@yahoo.com>
Lexington, VA USA - Thursday, April 20, 2006 6:24 PM CDT

Fantastic idea Baylie! You a great kid and keep up the good work.
Raquel De Forest <djdeforest@cox.net>
Henderson, NV United States - Thursday, April 20, 2006 10:59 AM CDT

Hi Baylie! I know it's not Halloween...

but we can pretend, can't we?!
These dogs are very funny looking!
Strutter Love!!!

Love and hugs <><
Paige

Paige Sullivan : ) <paige@paigesullivan.com>
K-Wood, tx USA - Wednesday, April 19, 2006 8:52 PM CDT

i love your site :O) please visit this free chat http://www.dateoase.de
Julia19suess <julii@uni.de>
Los angeles, - Wednesday, April 19, 2006 7:42 PM CDT

I really think what Baylie is doing is great. Keep up the great work and I am praying for you.
Alicia Bartolo <bartoloa@uni.edu>
Algona, IA USA - Wednesday, April 19, 2006 6:51 PM CDT

Dear Baylie,
Happy Spring! Congratulations on your efforts to raise funds for Chiari Malformation research and to provide awareness for this condition. One of my four daughters was
diagnosed with Chiari 2 years ago (at age 13) and is now doing well after surgery to repair severe scoliosis last year. I plan to buy a bracelet for all of us to wear in support of your wonderful work. Our love and prayers are with you and your family.
Natalie Mook <Natalie55Mom4RN@hotmail.com>
Franklin, PA USA - Tuesday, April 18, 2006 10:01 PM CDT

Hi baylie i hope you had a trffecit Easter!!!!!!!
Whitney allen <iolahwalker@erthlink.net>
kingwood, TX united states - Tuesday, April 18, 2006 6:51 PM CDT

Baylie...After reading an article about you in People Magazine I had to get out of bed where I have been resting since back surgery last Thursday. It's 1am on Tues and I can't sleep so I'm reading an article about you. You have the most angelic smile and face. When I hear of any selfless act from man, woman or child it makes me want to be a better person. Tonight I will say a prayer for you that God will keep you safe and give you strength to continue your amazing quest to find a cure. Sometimes it only takes one voice to make a huge difference in so many lives.
You have that voice!!!
A BIG hug from my heart to you!
Dawn Gundy
Dawn Gundy <dawngundy@yahoo.com>
Roseburg, OR USA - Tuesday, April 18, 2006 3:10 AM CDT

Baylie, What a terrific kid you must be!!!!! I LOVE your idea about making bracelets and remember making them a few years ago with my own daughter and her friends. They always seemed so pretty and fun. Best of luck to you and sending lots of hugs from all of us here!!!
Kathy
williamsburg, va usa - Monday, April 17, 2006 6:58 PM CDT

Great job, Baylie!!! The world needs more selfless people
like you!
Karin Gilfoy <Roohouse@sbcglobal.net>
Simi Valley, CA USA - Monday, April 17, 2006 1:47 AM CDT

I hope you had a Happy Easter!!

Merideth Seiler <dancer_chic1989@hotmail.com>
- Sunday, April 16, 2006 10:52 PM CDT

God must have decided we needed an Angel here on Earth and sent you. What a delightful spirit you have. May God Bless and keep you well. You are an inspiration to each and everyone of us. You are in my prayers.
Janis Levin <BummiesMooMoo@aol.com>
Dearbprn, MI United States - Sunday, April 16, 2006 8:46 PM CDT

Happy Easter!!!
I hope you had a great day.
Feel better!
~Camila :-)
www.caringbridge.org/visit/camilakennedy
Camila Kennedy <ckennedy@grandecom.net>
Austin, Texas USA - Sunday, April 16, 2006 7:30 PM CDT

God bless you, Baylie--what a very special girl you are and an inspiration to so many.

Our prayers are with you!
Shirley and Tom <sbalgaard@yahoo.com>
Duluth, MN USA - Sunday, April 16, 2006 4:24 PM CDT

Hosted by Sparkle Tags
*Hey Owen Family*,
Just wanted to drop by and wish you a Happy Easter! Can't wait to see you guys next weekend!
~The Wagenbach's~ Jon, Rebekah, Nichole, Whitney, Jordan, & Ryan

www.caringbridge.org/visit/whitneyryanwagenbach
www.chiaribracelets.com

Rebekah Wagenbach <jonbekwag@chiaribracelets.com>
Tremont, Illinois USA - Saturday, April 15, 2006 10:14 PM CDT

Happy Easter Baylie! I hope you have a good one!! Strutters cannot wait for you to come bople can become aware of the disease so that children like my daughter Shana will not have to suffer for so long you will be a great success, but how wonderful if a cure could be found.
Patty Beers <pattybeers@earthlink.net>
Los Gatos, CA USA - Monday, April 3, 2006 12:58 AM CDT

Hi Baylie,
I was so happy to read of your efforts to inform the world of chiari Malformation. My grandson was diagnosed with Chiari when he was 5 and had succesful surgery at Duke Children's Hospital.We had to travel there to locate Dr. George , a wonderful doctor that is very knowledgable about Chiari. I will be ordering bracelets. Keep up the fabulous work, you are making a difference.
Nancy Padgett <dkpinc1@comcast.net>
Ponte Vedra Beach, FL US - Monday, April 3, 2006 12:10 AM CDT

Hi Baylie -Just ordered bracelets for Mother's Day Gifts. Good luck to you. My God-daughter Emily has Chiari and I know that you have helped her. God Bless
Juli Flynn <Flynnbjbe@comcast.net>
Levittown, PA USA - Monday, April 3, 2006 12:01 AM CDT

hi, baylie, my name is linda. my son jonny was diagnosed with a chiari malformation when he was 3yrs old. he had a decompression and has been fine since. he is now 10. i read about you in people magazine (just a letter in the mailbag section) i am going to tell jon about you and maybe he will write you too. i am proud of you and your accomplishments!!!
linda moore <brlk@adelphia.net>
painesville, oh 44077 - Monday, April 3, 2006 10:51 AM CDT

For all your bravery and courage I offer you the greatest hope for the future
sandra colombini <sandirocks@aol.com>
elmwood park, NJ United States - Monday, April 3, 2006 8:18 AM CDT

Way cool! Famous already at such a young age! Thanks for being such an inspiration for EVERYONE! Keep up the great work....I have tons of blue beads and would love to help for the cause.

Cheers
Shelly, Sean and Daniel
caringbridge.org/visit/rawlinsboys <mom24wildboys@sbcglobal.net>
Glendale, CA - Monday, April 3, 2006 1:53 AM CDT

hello there! you are such an inspiration! my son , who is 3 1/2 was diagnosed with chiari in 2005.. has not had to have any surgery yet, they are keeping a close eye on him though... he has not had any major problems with it so far.. I am always looking for any info that can help.. and this site is very helpful.. thanks you! I will be praying for you and your family:-)
jennifer holm <jennylynn_95037@yahoo.com>
reno, nv usa - Sunday, April 2, 2006 11:56 PM CDT

Hi Tressie and Baylie,
Thought I'd stop by and see how you were doing. Congrats on another People article! By the time you're 10, you'll already have a star on Hollywood Blvd :) My girls and I think of you often and they admire all you do. Hope you enjoy your spring break. Don't spend all your time on making bracelets tho!
Love your chiari buddies,
Michele, Kayla, Kendall and Morgan
www.caringbridge.org/or/michele
Michele Bowers
Salem, OR USA - Sunday, April 2, 2006 11:23 PM CDT

Hey Baylie I will meet you on Wenesday. I CAN"T WAIR UNTIL THEN!!! I will see you soon Haley.
Haley <kalass@kingwoodcable.net>
- Sunday, April 2, 2006 10:01 PM CDT

I will be meeting you on Wednesday at stacys dance studio home of the kingwood strutters. If you see me I'm the one in the big camo pants. Hope you have a great time when you come. God bless you.
Kate
kingwood, tx usa - Sunday, April 2, 2006 9:01 PM CDT

baylie- i read your story and started to cry. I LOVE U~!
sophia <gila728@sunburstcreative.com>
nj usa - Sunday, April 2, 2006 8:37 PM CDT

Hi Baylie! You are a smart, brave girl. You are an inspiration to all children that they can make a big difference in their own lives and in the lives of others. Best wishes for continued good health and happiness!
Jody Venturoni
Plano, TX USA - Sunday, April 2, 2006 7:44 PM CDT

Hay Baylie!!

I am also one of the many Kingwood Strutters and I have one of your braclets, and planning to buy more when they come in. I love mine! I wear it every day. You are really really good at making them! I couldn't believe it when I was told that you were making all of these. I would say that every girl at the studio has at least one.((lots of us have more)) It is really cool seeing all the braclets around Kingwood. We all love you and are praying for you. Keep on going girl. Love you!
Talley McSwain <curlyNcrazy@aim.com>
Kingwood, TX USA - Sunday, April 2, 2006 5:12 PM CDT

Hey,Baylie
This is Blair! I am another strutter expecting you! I can't wait for you to visit us! You are the cutest thing eva!I already have 2 bracelets from you and guess what i am buying more because they are soooooooooooo adorable :)!!! :-) Just to give you a heads up i am going to spoil you like the princess you are!I CAN'T WAIT any longer for you to get here!see ya lata alligator! then you say In a while crocadile sorry i always do that w/ my mommy!
Blair Trahan
Kingwood, Texas USA - Sunday, April 2, 2006 3:24 PM CDT

Hi All!
My sister and I just ordered some bracelets. We both have Chiari, I was diagnosed when I was 20 and she was diagnosed at the age of 26. We both have had successful decompressions, thank goodness! My journey with Chiari was relatively smooth, I was diagnosed and had surgery within 2 months. For my sister the road was not quite as smooth, she was diagnosed, but it took years to find a surgeon to do her surgery. There is so much left to learn about Chiari and peoples experiences are so varied.
I commend you for your work. I will be forwarding this link to all of my friends.
Thanks again from your friends in Wisconsin,

Gabbi and Randi
Gabbi Hruska <gjhruska@comcast.net>
Prescott, WI USA - Sunday, April 2, 2006 1:12 PM CDT

You are an incredible little girl. I will be proud to purchase 6 bracelets from you...one for each member of my family!
Heather L-St. Louis, MO
(and Steve, Hope, Katy, Gracie & Josh)
Heather Limoges
Florissant, MO USA - Sunday, April 2, 2006 1:07 PM CDT

Thoughts and prayers are with you and your family.
Karen
Bakersfield, CA USA - Sunday, April 2, 2006 10:40 AM CDT

I learned about you, Baylie, and your cause at a bead store in Canton, Ohio. I stopped and made 3 bracelets that were donated for you to sell. I would love to continue to help in some way. With my prayers ~
God Bless,

Carol Lillich <cslstamper@neo.rr.com>
Stow, OH USA - Sunday, April 2, 2006 9:34 AM CDT

Keep thinking positive!
Sharon Rodriguez <raggedy_ann12@hotmail.com>
Lake Havasu City, AZ USA - Saturday, April 1, 2006 8:02 PM CST

I am one of your biggest fans *_^!!!
Son Phan <jerryson18@yahoo.com>
Elyria, OH US-Vietnam - Saturday, April 1, 2006 7:26 PM CST

AMAZING child, i bow to you.you lead us by example an bring a sense of hope and goodness..i shall wear your bracelets with pride,honor and serenity for YOU ...much love and peace..
Lynne A Shalhoub <lashalhoub@aol.com>
Worcester, Ma. USA - Saturday, April 1, 2006 6:57 PM CST

I have been praying for you. I hope you get better and that you have fun making all of those beautiful bracelets.
Christ's Love,
Emily
Emily <starwarsknowitall101@gmail.com>
- Saturday, April 1, 2006 6:57 PM CST

You are amazing - I will wear your braclets with honor and hope for all. Thank you for your courage!
Lesli J. Hanson <leslihanson@gmail.com>
Wichita, KS US - Saturday, April 1, 2006 6:42 PM CST

keep fighting and have HOPE. your an angel
tatam hudson <theualgirl@hotmail.com>
saugus, ma usa - Saturday, April 1, 2006 5:51 PM CST

This is soo cool if you read this ! You are a one of a kind leader for all of us!
Lauren Levenhagen
Huntsville, AL U.S.A. - Saturday, April 1, 2006 5:50 PM CST

I congratulate you on your determination and success. Keep up the good work
Cynterria Bradley <cynterria@hotmail.com>
Wilmington, nc usa - Saturday, April 1, 2006 5:43 PM CST

This is soooooo cool!!!! I hope you raise a lot of money!!!!
Caroline
- Saturday, April 1, 2006 4:27 PM CST

Hey Baylie!
I'm from the Kingwood Strutters and I just wanted you to know that I am so excited to have you come next wednesday! I can't wait to hang out with you and have you watch some of the team dances. Can't wait!!

love Kayla Carlson
Kayla Carlson
Kingwood, TX USA - Saturday, April 1, 2006 2:05 PM CST

Baylie, hi my name is Heaven mizell from baytown, tx... i just wanted to say that you are one brave girl... i have the same thing you have...but i have only had to have one surgery when i was around 8 years old... i never really have heard about other stores and about other ppl who have the same thing i do...I have gone throw and read your story in Peoples Mag. and just wanted to try and find you some how on here... and tell you thank you for all you have done to raise money to find a cure... bellow i have entered my e-mail.. if there is a way that i could help in anyway possible, just e mail me!!!

God Bless!!,

Heaven E Mizell
Heaven Mizell <marinerebel89@yahoo.com>
Baytown, Tx U.S - Saturday, April 1, 2006 11:34 AM CST

Hi Baylie. Wow there are a lot of messages on here. I guess you are popular. I am part of the Kingwood Strutters. I am going to buy at least four of your bracelets. They are selling so fast it is hard to get your hands on one. This is great how you sell bracelets. Everyone here at strutters has at least one maybe six!!! You are amazing!! E-mail me anytime because I would LOVE to hear from you. YOU ROCK BAYLIE!!!!!!!!!!!!~Haley Kalass~
Haley Kalass <kalass@kingwoodcable.net>
Kingwood , TX - Saturday, April 1, 2006 10:06 AM CST

Hey Baylie! I think you are a pretty amazing girl! I here you are coming to meet the Kingwood Strutters next Wed.! How exciting! I love your braclets and would love to get one! Keep up your great work! God Bless You!
Kellie <fairydust982@yahoo.com>
Kingwood, Tx - Saturday, April 1, 2006 10:05 AM CST

Hi Bailey! I think you are an amazing girl! I hope i can get one of your bracelets! I am from kingwood strutters and i can't wait until you come to see us next week! We love you so much! God Bless You!!
Sarah <livlikuweredyin7@yahoo.com>
Kindwood, TX usa - Saturday, April 1, 2006 9:40 AM CST

Hi Bailey. Our names are James and Alyssa. We think that your doing a really good job with making all these bracelets and raising so much money! Your a very caring little girl and you inspire us. Please keep up the good work. We hope you and your doctor find a cure soon. FEEL BETTER!
Sincerly,
James and Alyssa
Alyssa (12 yrs old) and James (5 yrs old)
- Saturday, April 1, 2006 9:16 AM CST

Wow now I can sign!!! I love reading all your entires in my book...right now post surgery you can imagine how unattractive I feel and to here beautiful comments from Baylie and you really lighten my day!
I hope Baylie continues to feel abit better each time!!! Hugs all around!
Kira <sapphire_violet@hotmail.com>
Australia - Saturday, April 1, 2006 0:47 AM CST

Dear Baylie,
Your hope and spirit are such an inspiration to me. I had no knowledge of Chiari Malformation until I picked up the latest People Magazine. Your braclets are a great way to spread the word about a terrible disease. I wish you luck with your continued sucess.
Holly Prill <Hprill@cox.net>
Norman, OK United States - Friday, March 31, 2006 9:21 PM CST

Baylie, you are a beautiful little girl. I will be proud to wear your bracelet and will pass the word on to everyone I know. You are in my thoughts.
Corene Milano <mcdrew03@yahoo.com>
Lake Grove, NY USA - Friday, March 31, 2006 9:07 PM CST

Dear Baylie, I went to my 8 year old check up and had no idea I had a severe case of scoliosis. They referred me to many other doctors and after my MRI I found out that I had Chiari malformation. I had my surgery last March and I am all better. I still have to wear a brace for my scoliosis but my brain is better. I hope yours is too.
-Mikayla Lawrence
Mikayla Lawrence <micky182@comcast.net>
Olympia, Wa USA - Friday, March 31, 2006 8:38 PM CST

Hey Baylie,
Its another crazy strutter! :) I e-mailed Oprah yesterday, but i sent it to the wrong place. Woopsies!! Oh well she will probably still get it. or at least i hope so!! i hope you had a great day to day, i sure did!!
:):):) keep on smiling:)
Leah Stivala
Kingwood, tx USA - Friday, March 31, 2006 8:15 PM CST

Hey Baylie,
It's Alexandra from the Kingwood Strutters! I am so excited about you coming next week.I love your bracelets!!! They are the cutest things!!! I hope you have a great fun time in Kingwood!!!
Lots of LUV!
***Alexandra***
Alexandra <JAWSLewis@aol.com>
Kingwood, TX - Friday, March 31, 2006 6:09 PM CST

Hi, Baylie! I saw some information about you while reading a magazine in the doctor's office. I am ordering some bracelets and will be passing your website along to my family and friends. I'm so very, very sorry for the pain that you have because of your headaches, but I hope that sometimes someway it takes away a little bit of the pain while you're making your beautiful bracelets. You are so very special! Your smile truly inspires me!
With love and admiration,
Rosemary and family
Rosemary Kessler <happy822@optonline.net>
Sayville, NY USA - Friday, March 31, 2006 6:01 PM CST

you are SO cute!!!!!!!!!!!!!! cant wait till you come!!!!!!!!!!
Shelby <awesomeinpink94@yahoo.com>
Kingwood , Tx U.S.A - Friday, March 31, 2006 5:46 PM CST

Baylie, I am 38 years old and was diagnosed with Chiari Malformation in 2001. I had the brain surgery and it helped for about one year. Since then, I have had headaches very often and now I am getting them every day. I also have been taking Topomax for about three years but this week my Dr. also has taken me off it because of the side effects. I understand what you are going through with the pain and I will pray for you every day. No one should have to suffer with headaches like this ever. I would love to hear from your mother and maybe get some better information about this disease. I will include my e-mail address so she can write. God Bless You! You are a brave girl and keep up the great work with the bracelets!
krael9@aol.com
Kim Lizotte <krael9@aol.com>
Harrisville, RI - Friday, March 31, 2006 5:39 PM CST

hi you are a realy cute little girl i have a disease that affects my back called scoliosis check out my website at www.caringbridge.org/visit/helencox
Helen Cox <hlcox@cox.net>
- Friday, March 31, 2006 4:17 PM CST

Baylie you are so brave. I have three girls that would love to help you make bracelets. We live in Knoxville, TN and wish that we lived closer so we could have a slumber party with you too! I will email your Mommy and give her our information. But before we go we want to tell you to stay strong and know that we are praying for you. Talk to you soon!!
Rebecca Gill <Rebeccag@in10sity.net>
Knoxville, TN USA - Friday, March 31, 2006 1:49 PM CST

Baylie,

I am stocking up on the braclets! I haven't seen anyone where these yet (I'm from Boston and now live in Miami) but give me a few months and everyone on the east cost will be having them on!! I was way older than you were when i went through surgery (17) almost 6 years ago- I think what your doing is fabulous and you are going be a very successful adult :-) keep on going!
Amanda George <AmandaSGeorge@yahoo.com>
Hanover, MA - Friday, March 31, 2006 1:34 PM CST

Hey Baylie,
sry my last comment was accidentally added twice!

love christine
Christine Spragins <dancemania1990@aol.com>
Kingwood, TX U.S. - Friday, March 31, 2006 8:43 AM CST

Hey Baylie,
This is Chrisitne from Kingwood Strutters. I bought 5 of your bracelets they are so cute. You are very talented. Some of my friends are buying some too.I think that it is soo cool how you are coming to our studio next week i am soo excited to meet you! I hope that you enjoy our studio. i heard that you live in Indiana. I used to live there for 4 years. Well i cant wait to see you!
Christine Spragins <dancemania1990@aol.com>
kigwood, TX USA - Friday, March 31, 2006 8:41 AM CST

Hey Baylie,
This is Chrisitne from Kingwood Strutters. I bought 5 of your bracelets they are so cute. You are very talented. Some of my friends are buying some too.I think that it is soo cool how you are coming to our studio next week i am soo excited to meet you! I hope that you enjoy our studio. i heard that you live in Indiana. I used to live there for 4 years. Well i cant wait to see you!
Christine <dancemania1990@aol.com>
kigwood, TX USA - Friday, March 31, 2006 8:40 AM CST

Hey Baylie is Caity again (from the Strutters). I was visiting your website and realised that the little scrolly thing (if that makes sense) is pink. I just think that is so cool!!! My friends and I always have on the bracelets that you made. We wear them every day!!!!! I just cam't wait 'till you come next Wednsday!!!!!! Keep up the hard work!
Strutter luv, Caity K
Caity Kramer <mwcekramer@cebridge.net>
Kingwood, TX U.S. - Friday, March 31, 2006 7:36 AM CST

Baylie,
Wow. I just can't believe that you are 6 years old and you make all these bracelettes, plus, you deal with all the symptoms of your diesease and the stress involved. These past few weeks that Ms. Andi has been telling us about you, you have been my inspiration! Everyday, as soon as I get out of bed, my day usually and generally starts with moaning, groaning, and complaining; then I will look down at my wrist and see my bracelettes! They constantly shine, and jingle, and make noise: a constant reminder of YOU! I think about how brave, determined, sweet and caring you are, and I say, "I want to be like Baylie!" Your bracelettes not only make money to try and find a cure for your diesease, but they make evryone so happy! My bracelettes put me in a great frame of mind... and my friends, too! Now, my friends all want to buy bracelettes! Everyone is so fascinated by the work you do: When I tell someone about you, they say, "Omigoodness! She's so little... and she does all that?! WOW! I need a bracelette!!" You may be little, but everyone agrees you have a huge heart. <3

You are such a happy girl, and I just can't wait to meet you on April 5th with the rest of the Kingwood Strutters! You should visit the Strutter website to get to know where you are going: www.kingwoodstrutters.com. I love my four bracelettes, and I wear them all the time!!! Even though most Strutters are at least 5-7 years older than you, Baylie, you are OUR BIGGEST ROLE MODEL! So::: Please keep up the good work, and know that the Strutters are your biggest supporters and friends!!! Ms. Andi absolutley adores you, and speaks very highley of you!! We love you so much!!

Please send me an email sometime and tell me how you are doing! I would absolutley LOVE to hear from you!! You are in my thoughts and prayers.
Love and hugs <><
Paige, 13.
Paige Sullivan : ) <paige@paigesullivan.com>
K-Wood, tx USA - Thursday, March 30, 2006 10:16 PM CST

It is Alyssa and Amy Wilson and we both agree that you are an amazing, thoughtful, and brave little girl! We are both strutters and can't wait to meet you! We will keep you in our prayers. Can't wait till April 5! We love you! Alyssa and Amy
Amy and Alyssa Wilson
Kingwood, Texas - Thursday, March 30, 2006 9:09 PM CST

Baylie its me again, I am one of the strutters too. I can't wait to see you on April 5! My family and I can't wait to buy some of your beautiful bracelets! I love you! Amy Wilson
Amy Wilson <AmyWilson@cebridgeconnections.net>
Kingwood, Texas - Thursday, March 30, 2006 9:00 PM CST

Baylie, you are an amazing and thoughtful little girl! I con not wait to meet you on wendsday. I will be buying one of your bracelets soon. 70,000 is a lot of money! I love you! Amy Wilson
Amy Wilson <AmyWilson@cebridgeconnections.net>
Houston, Texas - Thursday, March 30, 2006 8:51 PM CST

Hey Girly, this is one of the strutter girls. I am so happy that you're coming on April 5 to visit us. I think your braceletes are so cute. You're in our prayers Baylie. Well I guess i will see you on Wednesday.
Sarah Miscisin <Kickovergirl@aol.com>
Kingwood, Tx U.S.A. - Thursday, March 30, 2006 8:33 PM CST

I read the news on Tuoitre.com.vn and know aboout Baylie. I can tell you that the Newspaper post the right news.
Blessing Baylie and we wish you strengh.
Nha Le Hoan <lehoannha@yahoo.com>
Ho Chi Minh, Viet Nam - Thursday, March 30, 2006 6:33 PM CST

Hey Girl!! This is one of those Strutter girls...Im sooo excited to see you next week at our studio!!! I absolutly LOVE your bracelets they are just the cutest things!! i have bot one so far but im gonna buy another one!!! Well I will see ya next week!!
-Elly
Elly Gibson <fruitymonster4@yahoo.com>
Kingwood, TX US - Thursday, March 30, 2006 6:02 PM CST

Hey! I am one of the million of Strutters that have been on your website. You are in for some great surprises. I would tell you but that would ruin the surprise. I just got done sending a e-mail to Oprah requesting for you to be on her show. I don't have a bracelet yet because the studio ran out, but I am buying one. That is a good thing because if people are buying them you have more money to give. Everyone at the studio has maybe four each. I admire how you put a blue bead on because of your middle name and because you were born a blue moon. BAYLIE ROCKS!!!! YOU ARE A SUPER STAR! I will be posting notes everyday. Haleye moon. BAYLIE ROCKS!!!! YOU ARE A SUPER STAR! I will be posting notes everyday. Haley Kalass
Haley Kalass <kalass@kingwoodcable.net>
Kingwood, TX - Thursday, March 30, 2006 5:23 PM CST

Hey Baylie,
I'm one of the Kingwood Strutters that you are going to see soon.I love your bracelets. Everyone on my dance team has one.All of the bracelets are so unique in their own way.I can't wait to see you.You are going to have soooooooo much fun at Stacey's dance studio.Remember, don't let anything stand in the way of your dream.I am 11 years old,but I look up to you [a 6 year old]because you are so strong and never give up.I hope you get to be on the Oprah show. When you do we will all be watching.You rock Baylie.Email me soon.
Strutter love,
Samantha Wells
Samantha Wells <skittlez579@aol.com>
Kingwood, Tx USA - Thursday, March 30, 2006 5:05 PM CST

Hey Baylie,
I am a dancer for Strutters and I can not wait till you come and see us. I also love your bracelets they are so cute. See ya Next week!
Your Friend, Madison
Madison
- Thursday, March 30, 2006 4:50 PM CST

hey Baylie!!

I think you are a really inspiring little girl. you are a bright star in a shining sky. I think that you bring hope to everyone. I couldn't stop thinking about you all day!! I think you are on every Strutters mind!! I can't wait to meet you!!!I am bringing my camera so be ready to SMILE!!!
Leah Stivala <dancinfool@earthlink.net>
Kingwood, tx USA - Thursday, March 30, 2006 4:28 PM CST

Hey Baylie this is Allyson Axum again I was thinking about you all day at school. Also I again love your website and that your coming to our studio and watch us dance!!!

Allyson Axum <maxum@Kingwoodcable.net>
Kingwood, Tx U.S.A. - Thursday, March 30, 2006 3:24 PM CST

Hi guys! Just wanted you to know that we are thinking of you! Love, Sherri & Kara

www.caringbridge.org/oh/kara
sherri <ketch16@yahoo.com>
ohio - Thursday, March 30, 2006 8:58 AM CST

Hey Baylie!!
I am on the Strutters dance team I can't wait to meet you next week! I love your bracelets, they are so cute!!! I will see you Wednesday, can't wait!!
Leah Stivala
Kingwood, Tx USA - Thursday, March 30, 2006 7:43 AM CST

Hey Baylie! I am on the Strutter dance team, and can not wait to get to meet you next Wednsday. We are all so excited! I got one of your bracelets over the weekend. It is so pretty!!! I hope you have fun when you come to our studio!
luv ya always! Caity Kramer
Caity Kramer <mwcekramer@cebridge.net>
Kingwood, TX United States - Thursday, March 30, 2006 7:24 AM CST

Hi Baylie this is Allyson Axum.I am a Strutter and I`m in Mrs. Andi`s class for dance!! I love what you`re doing with the bracelets!!! I hope people find a cure for your disease soon. I can Not wait to see you Wednesday and to show you our hip-hop. Keep up the good work and keep your head up high. I am praying for you. Love Allyson Axum!
Allyson Axum <maxum@kingwoodcable.net>
Kingwood, Tx U.S.A. - Wednesday, March 29, 2006 11:02 PM CST

hey baylie,i am a dancer from strutters.you have such a heart and you are a shining star in everyones eyes. i can't wait till show you what our studio looks like and are dances it is going to be a very exiciting day for all of us.can't wait to see you girl!!!you rock keep on making those bracelets!!!luv u,alyssa scherr
alyssa scherr <loris@kingwoodcable.com>
kingwood, tx united states of america - Wednesday, March 29, 2006 10:15 PM CST

hi Baylie I'm Abbie and i'm a dancer at staceys dance studio. I love your braclets I have 1 and my mom has 1.I cant want till wednesday.See you then.
Love,
Abbie
Abbie Pinson <kcpinson@kingwoodcable.net>
Kingwood, TX United States - Wednesday, March 29, 2006 9:43 PM CST

Hey girllie I cant wait for wendsday to come and we get to show you our dances at Stacey dance studio your bracelets are so cute! I am praying for you! 143 strutter love!(the co. at staceys)
love you,
Mariah!
Mariah
kingwood, - Wednesday, March 29, 2006 8:03 PM CST

Hey Baylie,
I am Caitlin Coulter and I dance for the Kingwood Strutters. You are such a brave girl. I hope your dream comes true and you get to be on the Opra show. I can't wait to see you at Stacey's Dance Studio! I hope you feel better!
Love,
Caitlin Coulter
Caitlin Coulter <184caitlin@earthlink.net>
Kingwood, Tx - Wednesday, March 29, 2006 6:49 PM CST

Hello sweetie, My name is Lori, I am 37 years old and have 2 small children, 6 and 3. I was diagnosed with Chiari last June. I considered surgery, but as a single mom my children need me and so will have to wait until they are older. I'm proud of you, Chiari is no fun but at least I know that my symptoms are from a real disease and not just, well, all in my head. No pun intended. Take care and I will check up on you from time to time via your webpage.
Lori Gonzalez <lorigon3@yahoo.com>
Gaylord, MI USA - Wednesday, March 29, 2006 3:26 PM CST

Hello Baylie and Family

Thank you for your efforts to help so many. The work and love and generosity has been spread to so many, it gives me faith in humanity again.
My wife, Andi, is constantly updating me on how "baylie and family" are doing. And the look on her face as she talks about it...well I have to say thank you as well.
All of humanity and our society has been bettered by your life.
Thank you
Randy H <r_haddox@hotmail.com>
Humble, Tx - Tuesday, March 28, 2006 11:43 PM CST

Hi! My name is Traci and my daughter is 6 years old. She was diagnosed this year with a craniopherengioma. It is a tumor in the brain near the pituitary gland. She has had one surgery followed by Proton Radiation. My daughters dance at Stacey's and I read about you in an email. I am touched and amazed at the goodness that is coming out of your difficult situation. I am inspired by your cause and would love to reach out in some way to help others like my daughter. You should be on Oprah and I will email her next!! God Bless you and your family!!
Traci <mntferris@earthlink.net>
Kingwood, Tx. USA - Tuesday, March 28, 2006 11:04 PM CST

hey its ivey again!

i cant wait to see you at staceys dance studio!!

i wish the best for you!!!

hugs&&andkises&
Ivey Hansen <iveyleigh@hotmail.com>
Kingwood, TX USA - Tuesday, March 28, 2006 10:03 PM CST

Hey Baylie!

i got one of your braclets today! its so beautiful!

The One thing i hope everyday is that you would get better!

143 (i love you),

Ivey Hansen

Ivey Hansen <iveyleigh@hotmail.com>
Houston, tx USA - Tuesday, March 28, 2006 9:56 PM CST

Baylie...hi i am Morgan another dancer fom the kingwood strutters, you are such a great little girl, what you have done is amazing, God Bless You
Love,Morgan
morgan Hahn <Micknick11@yahoo.com>
Kingwood, Texas USA - Tuesday, March 28, 2006 9:42 PM CST

Keeping you in my thoughts and in my prayer's always
LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca ~THE PRAYER BEARS~>
EDMONTON

, - Tuesday, March 28, 2006 9:10 PM CST

Hi Baylie,

My name is Melissa and I was diagnosed with Arnold Chari type two when I was 16 years old. I had surgery when I was 17 and I have been doing well ever since. I just want to tell you that I think you are doing a great job raising money to help fight this. I have a daughter that is seven and thankfully she doesn't have the same problem as us. I wish you and your family the best of luck. You will be in my prayers. I plan on getting one of your braclets for me and my daughter Ashley.
Melissa <m7898@aol.com>
CT USA - Tuesday, March 28, 2006 8:14 PM CST

Hey Baylie,
I heard your story and was excited to meet you on April 5th. You are a true hero and I hope that you can get on Oprah. I will send my requests. I hope I get a chance to buy one of your braclets. Love, Haley
Haley <kalass@kingwoodcable.net>
- Tuesday, March 28, 2006 6:13 PM CST

Hello Baylie,
I hear that you have a dream of being on the Oprah Show. Ms Andi has passed this information to us at Stacey's Dance Studio and I know we will do all that we can to see that this dream comes true. I also hear that you will be visiting us at the studio next week & my daughters & I can't wait to meet you. We have also bought some of your braceletts and are waiting to get more when they come to the Studio. You have found a great new friend in Ms. Andi & I know she will continue to get the message out about your illness. You are in our prayers every day.
Pamela Morgan <jsmpam1@yahoo.com>
Kingwood, tx - Tuesday, March 28, 2006 4:40 PM CST

I wanted to stop in and say hi and thanks for stopping and visiting Syds site. I have been keeping up with everything you have done and I am so impressed with all you have done to help all of our little ones, keep up the good work. Your a true inspiration to us all.
Amy and Sydney
www.caringbridge.org/visit/sydssite
Illinois
Amy Pertell <amypertell@yahoo.com>
- Tuesday, March 28, 2006 2:43 PM CST

Greetings from Oak Ridge Tennessee.
My daughter in Humble Texas told me about you and I sure do hope you get to the Oprah show.
Baylie - you are one special little girl. You are making lemonade out of the lemons life has tossed your way.

Susan St. James on Oprah a few weeks back talking about the loss of her son and she said two things that will stick with me forever (and I think you're a shining example of both).

She said people asked if she was bitter and angry with God about the accident (that took her son) and she said no. She said "we are not human beings having a spirtual experience -- we are spiritual beings having a human experience."

Best wishes to you, little angel.

Julie Miller
- Tuesday, March 28, 2006 12:04 AM CST

Hi, I have a daughter named Bailee. She will turn 7 on the 21 of April. I want you to know that you are a true inspiration & you have a very giving & caring heart. You are one of God's true angles. God Bless You
M'lissa Wilkinson <mlissa@mlissawilkinson.com>
Houston, TX USA - Tuesday, March 28, 2006 11:47 AM CST

Baylie,
WOW, you are such an amazing and brave little girl! We wish you all the best and look forward to your visit to Stacey's Dance Studio. (Can't wait to purchase some of your beautiful bracelets as well!)
Teri, Amy, Ashley and Alyssa Wilson <teriwilson@kingwoodcable.net>
Kingwood, TX USA - Tuesday, March 28, 2006 11:45 AM CST

Baylie - what a wonderful way to show a purpose in life! To share hope and love with others is SO commendable. Keep looking up. My daughter and I look forward to seeing you when you visit Stacey's Dance Studio.
Susan and Cayley <kwkents@aol.com>
Kingwood, TX USA - Tuesday, March 28, 2006 11:16 AM CST

Hi Baylie -
I was thinking about you today. Just wanted to send a note to say I hope you are feeling well and enjoying the spring weather (hopefully you're getting some of that by now).

Be well,
Nicole
Nicole Goetz
New York, NY USA - Tuesday, March 28, 2006 11:00 AM CST

Hi Baylie,I've admired your energy and your soul. I wish you healthy and happiness forever.
Glad to hear the good news from you.

BichDai <bichdai03@yahoo.com>
Hochiminh, Vietnam - Tuesday, March 28, 2006 3:24 AM CST

Hi Baylie me and my sister wish you better and hope everything goes well we have bought 4 bracletes so far and are buying more anytime now.We cant wait to see you at are dance studio, Stacey Dance Studio where Miss. Andi teaches!
Kiana, Blake and Chloe <xxroxibrunettexx@hotmail.com >
kingwood , tx Unitied States of America - Monday, March 27, 2006 7:06 AM CST

Hi Baylie
"all my family love u, all my friends love U and I love U too" thats all i wanna say with U. U re a great little girl and U re a great little angel.We do love U.
Sandrine Ngo <SandrineNgo@yahoo.com>
- Sunday, March 26, 2006 7:51 AM CST

HI BAYLIE...I READ ABOUT U IN PEOPLE MAGAZINE AND WAS TOUCHED....SO TOUCHED I DECIDED TO PURCHASE A FEW OF YOUR BRACELETS!
KIZZY COKLEY <CARAMELSHUGGAR@YAHOO.COM>
SEFFNER, FL USA - Saturday, March 25, 2006 5:25 PM CST

Hi Baylie =]
I read an article about you on "Tuoi Tre"(a local newspaper in Viet Nam )
I really admire what u've done sweetie :) U re doing a great job ! And god will always bless you since u re such a great little girl . No matter what happens , remember to live strong and smile ( you know ur smiley is really beautiful <3 )
I would love to have ur bracelet >.< They look soo cute !!!!!!! I would buy it to support you if we even have them here :( but i guess not ... that sucks !
Much love from this Vietnamese girl to ya <3 * Muahz *

This is my fav teddy bear =] it will give u some lucks in this life !
Tram Mai <snakegurlz89@hotmail.com>
Ho Chi Minh , Viet Nam - Saturday, March 25, 2006 3:54 AM CST

Hi Bailie, my name is Molly. I am the sister of Ryan, who has the same illness as you. He has Chiari malformation. I really hope he can live pain free someday, so I want ot help you raise money. Today at shool, my principle said he wants to help raise and donate money to you so you can give it to Doctor Frim for the research. He offered to possibly donate $1000 plus, we will have other fundraising events going on to hopefully make that higher. I know $1000 sounds little compared to how much you have already raised, but I figure every little bit will help. Anyway... I'm glad you are caring about others and are doing this, because I dream you and many others will live pain free someday.
Molly
pittsburgh, pa usa - Friday, March 24, 2006 2:45 PM CST

HI BAYLIE, I CAN'T WAIT TO SEE YOU ALL NEXT WEEK!!!! I SURE
DO MISS YOU. I LOVE YOU SOOOOO MUCH. WE ARE GOING TO HAVE SO
MUCH FUN. SEE YOU SOON.
LOVE AND KISS, KISS, KISSES GRANNY
GRANNY <willoughby44@hotmail.com>
JERSEY VILLAGE, TX USA - Friday, March 24, 2006 2:30 PM CST

Baylie--
We found your website today and we are excited about helping you. We are going to make different craft projects and sell them at our school. All the money we make is going to be sent to YOU!!!! We are proud of you and think you are a SMART girl!!!
Ms. Cunningham's and Mrs. Soward's 1st grade classes- RICE Elementary <Julie.B.Cunningham@tylerisd.org>
Tyler, TX USA - Friday, March 24, 2006 10:53 AM CST

Hi Baylie,

WOW...You are a amazing little girl and Im sure you will grow up to be even a more amazing woman !!

You are a inspiration Baylie, you sure made me take a step back and look at life today...!!

Well done and keep it up..!!
Chelsea Purvis <chelsea@demon.net>
Leigh-on-sea, essex United Kingdom - Friday, March 24, 2006 6:41 AM CST

Hi Baylie,
I read an article about you on Tuoi Tre (The Youth) local newspaper today and your story made me so touched. What you are doing is great! I have a daughter of 42 months old. I will tell my daughter about you. I want to buy bracelets from you too.
Oodles of love.
Vo Phuong Mai <thiensonco@hcm.vnn.vn>
Ho Chi Minh City, Vietnam - Friday, March 24, 2006 2:15 AM CST

Hello Baylie,
I will always pray for you to get well soon. Wish you be happy and get strong by what you are doing. It was much meanfull.
Love you baby.
From VietNam
Le Da Thao <ledathao@hotmail.com>
- Thursday, March 23, 2006 10:40 PM CST

I am interested in ordering some bracelets from you. I will be praying for you, Baylie!!!
Jane Gray <janeg0812@yahoo.com>
Madison, Il USA - Thursday, March 23, 2006 8:08 PM CST

Hello Baylie and family! I live in Cypress, Texas - apparently not too far from where you used to live in Jersey Village. I first read about you in a free magazine we receive in the mail called "Neighborhood Family Guide for Northwest Houston". I saved the article because I wanted to look at your website. Before I had a chance to do that I saw the article about you in "People Magazine". Wow, you are a celebrity! I looked at some of your guest books entries and noticed people from all over the world are writing to you.

Today I finally took the time to look at your website. I think it looks fantastic. I read the journal your mom has written about you. I felt so sad every time she mentioned your pain. But then I felt happy every time she wrote about your donations to Dr. Frim!

I think you are a VERY brave girl and I will keep you in my prayers from now on. I look forward to visiting your website again to find out how you are doing.

Thank you for teaching me about Chiari and Psuedotumor. Now all I have to do is learn how to pronounce the words!

I have 3 daughters who like jewelry. I am going to order bracelets for them (and maybe splurge for one for myself too!). I look forward to receiving them.

Good luck and stay brave. I think your mom seems like a great mom and she works hard to help you. I am sending good thoughts for you, your mom and all your family.
Roxann Tucker
Cypress, TX USA - Thursday, March 23, 2006 5:31 PM CST

hi baylie! its me lauren coats. I cant wait to see you over your spring break!
Lauren Coats <jomar@houston.rr.com>
houston, TX United States - Thursday, March 23, 2006 4:21 PM CST

Hi Baylie, We're sorry you had more pain last week. Calvin's not doing too good either. Are you still freezing in Indiana or is it warming up yet??? Hopefully the snow is gone for good. Tell those sisters hello. Hugs, Cathy
www.caringbridge.org/oh/calvinp

Cathy Poznik <Pozes89@aol.com>
- Thursday, March 23, 2006 12:48 AM CST

nice and good for info
maga mgbada <ma_mugu041@yahoo.fr>
ikj, la nigeria - Thursday, March 23, 2006 10:56 AM CST

Hi Baylie and Tressie
I hope you guys are doing okay.
Thinking of you.Lydia xxx
www.caringbridge.org/visit/lydiablackmore
Lydia Blackmore
England - Thursday, March 23, 2006 9:16 AM CST

Baylie, You are an AWESOME little girl. TRULY an Angel!! i am happy to hear of you and your amazing good works for the horrible disease you have. God bless your heart and make more of your days without pain.
A Great Admirer, Linda Michiels
Linda Michiels <lindam128@sbcglobal.net>
Brookfield, IL 60513 - Wednesday, March 22, 2006 8:06 PM CST

Hi Baylie and Tressie! WOW Baylie $70,000.00 you go girl!!!!! Whoo Hooo!!!

Sorry to hear that Baylie is still having a lot of pain! I would tell Baylie I think all the Lepruchans (sp) have gone to visit Philip www.caringbridge.org/visit/philipsworld for his last day of chemo.

Give everyone a BIG hug from Riley, Alex and thier mommy
Rachel Johnson <smiley_rileys_mom@yahoo.com>
Lake in the Hills, IL - Wednesday, March 22, 2006 6:18 PM CST

Hi Baylie
I heard about you from a friend of mine who has some of your braclets. They are really pretty and I hope to order some when I have some spare money. I hope that you are having a better week than last week. I have two little girls 4 1/2 and 2 and I pray that they will be as strong willed and loving as you. We are adding you to our prayer list tonight at church. I know that God is watching out for you and using you to help others with the same illness. Someday there will be a cure for this. And with the way that you are raising money it might be very soon. Keep smiling.
Laura <ljlooman@stuaf.umass.edu>
Shelburne, Ma 01370 - Wednesday, March 22, 2006 3:22 PM CST

Hi Owen family!
Glad to hear the girls got some snow for their first year in the frozen north!!!
Baylie, everyday when I talk to God I ask him to make you feel better. Sometimes when you are very quiet you can hear him answer your prayers, find a quiet place away from Cydni and try talking to him.
We love you a lot. Janet, Bob,Daniel
Janet Hutcheson <gator@duo-county.com>
Columbia, KY - Wednesday, March 22, 2006 1:09 PM CST

Thank you so much for visiting me often while I was in hospital...my sister read everything out to me and it was great while in ICU! You guys have done so well I need to order more bracelts!!! Huge hugs your way!
www.caringbridge.org/visit/kiram
Kira <sapphire_violet@hotmail.com>
Australia - Wednesday, March 22, 2006 4:25 AM CST

Hello from Lebanon, today is Mother's day here in Lebanon, so Happy Mother's day to your mom.
Take care
www.caringbridge.org/visit/kaitlyns

guardian angel <angegardienangegardien@hotmail.com>
- Tuesday, March 21, 2006 1:38 PM CST

I hope this week is a better week. If you read my journal, I had a rough day on St. Patty's day and at one point thought I was in Greenland. I am glad that holiday is over too!!

AJ and Phyllis <mydaughterhasEG@comcast.net>
Galloway (outside Atlantic City), NJ - Tuesday, March 21, 2006 8:03 AM CST

hey bailey,
my name is brynn.i got your website in a magazine and wanted to buy a bracelet. i am 12 years old. for my 13th birthday party, im telling everyone to bring ten dollars to donate to this cause. i am also donating money to people affected by genocide. 225 dollars will be coming your way.although i do not know any one with your condition, i still feel like i need to order one of these bracelets and donate. i have been telling my school about you and your website. a lot of them are donating 20 dollars at my party and others only 10.ok well i just wanted to say hi and you can be counting on my donation.
ttyl bailey,
brynn
brynn
- Monday, March 20, 2006 4:29 PM CST

Hello from Lebanon, thank you for signing Kaitlyn's guestbook,the purpose of the bracelets we are doing are two: first the girls who have cancer that are admitted into the hospital will pass time with their families doing them and when they leave they keep all the materials in the hospitals for other girls, that way they won't feel bored, the other one is when we sell them the money will go to Chance organization that helps kids with cancer to afford their treatments, we also do activities and this summer we will organize the first camp for kids with cancer. the first bracelet that will be done, we will send it to you for free because we got the idea for you and we want to honor you.
We are thinking for things boys can do if you have ideas we welcome them gladly.
Take care and God bless you.
guardian angel <angegardienangegardien@hotmail.com>
www.caringbridge.org/visit/kaitlyns, lebanon - Monday, March 20, 2006 12:46 AM CST

Hi Baylie,
I hope that you are feeling better. I wanted to tell you that I just received my bracelet and I love it! I wear it all the time.
Danielle
Danielle Hixon
Keymar, MD USA - Monday, March 20, 2006 9:23 AM CST

Baylie, Congratulations on the great work you are doing! I hope you have a good week and your headaches get much better real soon. My daughter, (who is now 31) has ACM also. She was diagnosed when she was 16 and had two decompression surgeries. She has done well and has 3 children of her own now. I pray your future will be a happy pain free. She gets overheated really fast too. It is always interesting to know how others are doing who share the same problems. Take heart...you are a beautiful little girl doing a wonderful job!
Brenda McClary <bkm@htc.net>
Dupo, IL USA - Monday, March 20, 2006 8:33 AM CST

Hi Baylie

thanks for the bracelet...everyone asks me what about it. I have sent them to your site...hopefully they will be buying for the cause!

We have found that storms really mess with Daniel's head as well as lack of sleep. He is still only on the basic tylenol/motrin things. Thankfully the do help right now. Hope you are feeling better soon!

Thank you for all you do with your bracelets~

Shelly, Daniel and Sean
caringbridge.org/visit/rawlinsboys <mom24wildboys@sbcglobal.net>
Glendale, CA - Monday, March 20, 2006 1:06 AM CST

Hello from Lebanon, i am sory that you were in pain last week, hope you are feeling better now.
Well Here in Lebanon, girls who have cancer are doing bracelets when they enter the hospital, neckless and other stuff and we will sell them and the money will go to an organization called Chance (Children Against Cancer)
i hope you don't mind.
Take care and God bless you
guardian angel <angegardienangegardien@hotmail.com>
www.caringbridge.org/visit/kaitlyns, - Sunday, March 19, 2006 4:01 PM CST

Hi Baylie
I'm sorry to hear you had a lot of pain last week.I hope you have a better one this week.
Thinking of you.Lydia xxx
www.caringbridge.org/visi/lydiablackmore
Lydia Blackmore <lydiablackmore@blueyonder.co.uk>
England - Sunday, March 19, 2006 7:44 AM CST

Baylie, You are a very brave little girl and I think what you are doing is wonderful. Keep up the good work. I can't wait to get my bracelets and spread the word about your cause. Best wishes, luck & health.
Jennifer Sampiere
North Port, Fl USA - Saturday, March 18, 2006 10:49 AM CST

baylie...i am praying for you, sweetie. keep up the good work on your bracelets! love, jil
jil manning <anjiltoes@aol.com>
goleta, ca usa - Friday, March 17, 2006 8:31 PM CST

I hope you get well soon and I hope the money helps you get through this disease!!! Good LUck
<3 ali
ali
- Friday, March 17, 2006 6:13 PM CST

*Hello again!*
I messed up on the link for the kids caringbridge site, so here it is. www.caringbridge.org/visit/whitneyryanwagenbach
(Remember what I said about my computer knowledge) :)

Rebekah
Rebekah Wagenbach <jonbekwag@chiaribracelets.com>
Tremont, Illinois USA - Friday, March 17, 2006 4:24 PM CST

*Hey Guys!*
I hope everything is going well and you survived the weekend. It's been a week and we're just getting caught up on sleep :) Tressie, Jon & Dad said "good luck" trying to beat them in aggravation...we definitely have to beat them next time...no going easy on them anymore! Have a great weekend!

*The Wagenbach*~ Jon, Rebekah, Nichole, Whitney, Jordan, & Ryan

http://www.caringbridge.org/cb/inputSiteName.do;jsessionid=D0875F4D06E63F4E9BD2218B4D513B24

http://www.chiaribracelets.com/
Rebekah Wagenbach <jonbekwag@chiaribracelets.com>
Tremont, Illinois USA - Friday, March 17, 2006 4:03 PM CST

Baylie, Tressie and Family,
Thanks for stopping by and checking in on Kedrick! He sends Hugs and Kisses to his shunt buddy :) He wanted to wear my braclet this morning. We have been busy again making braclets. Hope you are feeling well. Talk to you soon.
OXOX
The Sosenheimer Family
Rick, Heather, Markee,Drake, Kedrick and Hunter
www.caringbridge.org/visit/thesosenheimerboys
Heather Sosenheimer <hsosenheimer@msn.com>
Fort Wayne, In USA - Friday, March 17, 2006 2:16 PM CST

Hi Baylie
I just thought i would pop in and say hello.I hope you are doing okay.
Thinking of you.Lydia xxx
www.caringbridge.org/visit/lydiablackmore
Lydia Blackmore <lydiablackmore@blueyonder.co.uk>
England - Friday, March 17, 2006 1:17 PM CST

Hi Baylie, We just received your bracelets and we love them !!! Thanks so much for making a special one for Matthew. He was so excited about it. Julia and Matthew couldn't wait to show off their bracelets at school today. You are an inspiration !! keep up the good work you are doing for Chiari research.

Love,
The Stephens Family,
Andrea, Wendell, Julia, and Matthew.
Andr04ens@us.pwc.com-->
Saugus, MA 01906 - Friday, March 17, 2006 12:08 AM CST

Thanks so much for visiting Preston's website and signing his guestbook and leading me to your website. Wow! You are such an inspiration and absolutely beautiful! I hope that you begin feeling better soon. Know that through your smile and bracelets you are touching so many peoples' lives. I admire you and your mom and will continue to check on you.
Christine & Preston Williams
www.caringbridge.org/visit/prestonwilliams
Christine Williams <cboudr8@aol.com>
Gonzales, LA USA - Friday, March 17, 2006 2:15 AM CST

You are a true inspiration! I pray for you and your family. I wish there were more people who would get involved with this research.
Danita Tulk
Wichita, KS USA - Thursday, March 16, 2006 1:33 PM CST

I LOVE YOUR SITE.ITS COOL
mgbada south <onyeocha@yahoo.com>
SOUTH, SOUTH SOUTH - Thursday, March 16, 2006 12:51 AM CST

Annie <penguini1982@yahoo.com>
Rochester, MA United States - Wednesday, March 15, 2006 6:32 PM CST

Hi, Baylie!
Sorry that we did not check up on you sooner. We watched your news video and that is too cool what you are doing! We hope that you are feeling well and keep up the awesome work!
caringbridge.org/visit/julie
Caitlin and Julie
London, ONT Canada - Wednesday, March 15, 2006 12:41 AM CST

Dear Baylie,
I just wanted to tell you your struggle is very touching and I think you are a very brave girl. I heard about this disease from a friend in Nova Scotia whose husband has just been diagnosed, and I can't believe the little press it gets. Have you thought about contacting Oprah Winfrey, since she's in Chicago where your doctor is? I'm sure she'd do something to help your cause, even if it was to just bring the worlds attention to it. I wish you health and peace, little warrior, and you're in my thoughts.
Amanda Bigeau & family (Rileigh & Landen) <arbesharah@lycos.com>
Ottawa, ON Canada - Wednesday, March 15, 2006 1:18 AM CST

Baylie,
You and your mom are such a great team! I am so proud to be a part of the "chiari family", because of kids like you :) You make me want to keep going, even when it's not easy! All 3 of my girls were just diagnosed too, so it's been a hard road. We love you, Baylie!
Michele, Kayla, Kendall, and Morgan
www.caringbridge.org/or/michele
Michele Bowers
Salem, OR USA - Wednesday, March 15, 2006 1:08 AM CST

Hi Tressie and Baylie!
AWESOME!!! You two ladies are powerhouses! Lish just loves seeing Baylie...her best friend as she says:) Looks like Lish is making her way to Dr. Frim soon too..UGH!

Have been very sick, I go into surgery at Loyloa Univ tomorrow. Will be in about a week if Im lucky and will get a hold of you guys as soon as Im up to it.
Much love and many hugs!
Patty N Lisha
Patty N Lisha <christliebnews@comcast.net>
Plainfield, IL USA - Tuesday, March 14, 2006 5:59 PM CST

Wow! $70,000!! I am so proud of you Baylie.
That is amazing! You are inspiration.
I hope you are feeling better.
Nicole
New York, NY USA - Tuesday, March 14, 2006 1:15 PM CST

Just stopping by to let you know that you are in my thoughts and in my prayer's always.
Sorry it's been awhile since I have been here.Doing alot of running around with the kids and it's been snowing here all week but finally it's starting to melt.I just want to see the sun again.Have a good day and I will be back again really soon.

HAPPY ST.PATRICKS DAY

LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON,ALBERTA/CANADA, - Tuesday, March 14, 2006 3:21 AM CST

Hi, Baylie and Tressie!

Thanks for checking in on me! I really appreciate it, and I am so very fortunate to have you as my friends!

I should be ready to send you another batch of bracelets in the next week or so. I'll e-mail you, Tressie, to get your new address.

Hope your zipperhead bear is doing well, Baylie, and that you are doing even better! I am sooooo proud of you for everything you have accomplished...I can't wait to see what the future holds! You and Kara were wonderful in your interviews/news story...such pretty, poised and powerful advocates for Chiari!

(((((Proud to be your friend HUGS)))))

Love ya-

Lisa :)

www.caringbridge.org/visit/zipperheadlisa

Lisa Reuter-Clarke
Raleigh, NC - Monday, March 13, 2006 9:41 PM CST

Hi Baylie,
WOW - that was one big check. What a good job your doing. Lot's of hugs to you, Cathy
Cathy Poznik <Pozes89@aol.com>
Twinsburg, OH USA - Monday, March 13, 2006 9:44 AM CST

HI Baylie, Everyone here says HI and we miss you
Hope you are feeling good...
That was alot of money you gave to Dr Frim. that was really cool, Well we will see you soon....
Sean, Myriam, Chico ,Maggie and Autumn....
The Martin Family <smartin2026@houston.rr.com>
Jersey Village, TX 77040 - Sunday, March 12, 2006 9:55 PM CST

Hey Baylie!
I saw your interview. WOW 70,000 dollars!!! WOW!!!!! GOOD JOB!! Keep up the great work!
I am thinking of you!
www.caringbridge.org/visit/julianne

Julianne <julzabul@aim.com>
Weymouth, ma usa - Sunday, March 12, 2006 2:30 PM CST

Hi megan just want to wish you a happy 3rd birthday loads of love trisha john xxxxxxxxxx
John and trisha <seccombe99@hotmail.com>
london, england - Sunday, March 12, 2006 10:23 AM CST

Wow Baylie! You are such a wonderful little lady. I am so proud of you. I miss seeing you at school everyday. Hope your new home and school is wonderful! Love You!
Stacey Koelsch
Cypress, TX USA - Sunday, March 12, 2006 10:17 AM CST

Dear Baylie,
You are such a brave and strong little girl. I admire what you are doing. I just ordered 5 bracelets for me & my family. I can't wait to pass along your story to others. Keep up the good work!
Cathleen Mancine <trtl33@sbcglobal.net>
Chicago, IL USA - Sunday, March 12, 2006 7:45 AM CST

Dear Bailey,
I also have ACM I (12mm)and never know how I'll feel day to day. I really admire you and what you are doing for ACM research. $70K and counting, that is amazing!
Sange Paungam <Thdoy2@aol.com>
Plainfield, IL USA - Saturday, March 11, 2006 9:52 PM CST

Hi Baylie! I too have Chiari and am herniated 7mm with some symptoms. I am so in awe of your remarkable attitude to help others with this disease! You truly are a grace from god and an uplifting spirit! Much love to you and your family.
Danielle Tobias <deeschmee36@hotmail.com>
Boston, NY USA - Saturday, March 11, 2006 5:39 PM CST

Hi Tressie and Baylie,
I'm totally amazed at that new check. I watched the video and teared up. I'm going to Europe for next week to a conference, but after that I'm ready to make bracelets. Thankks for helping all of us!!!
Love, Jeanne
Jeanne Swack <jswack@wisc.edu>
Madison, WI USA - Saturday, March 11, 2006 5:31 PM CST

Hello to a wonderful little Artist! My name is Melodie and I want to tell you about a fantastic way to sell MORE of your bracelets! Check out Etsy.com it is a great site that I belong to as an artist too. You could list your bracelets there with the help of your Mom & Dad! It only cost .10 cents per item per-month for 6 months to list them. If you have any questions...e-mail me!
Melodie Ustich <Melzn2art@comcast.net>
Antioch, Il USA - Saturday, March 11, 2006 1:24 PM CST

Hosted by Sparkle Tags

*Baylie*,
You are one cool kitten!!! Great job with the $70,000.00!
Love The Wagenbach's
Rebekah Wagenbach <jonbekwag@chiaribracelets.com>
Tremont, Illinois USA - Saturday, March 11, 2006 0:20 AM CST

Hi Baylie!
I am 19 years old, and have Chiari Malformation type 2. I want to thank you for all you have done for patients with this disease, and because of you, Dr. Frim is closer and closer to finding a cure for all of us! You are a true
inspiration!
Jamie McClaskey <jdmcclaskey@yahoo.com>
Darlington, IN USA - Friday, March 10, 2006 8:20 PM CST

Hello Baylie
Wow! you are a now!! I saw the video.Keep up the good work, you are doing a great job!
I hope your headaches get better with the Topamax.
Thinking of you.Lydia xxx
www.caringbridge.org/visit/lydiablackmore
Lydia Blackmore <lydiablackmore@blueyonder.co.uk>
England - Friday, March 10, 2006 7:05 PM CST

i hope and pray that they find a cure for baylie's illness. i don't know much about her illness but i'm sure that god will always be with her and her family.
debbie heine <bakerygirl1@yahoo.com>
McHenry, il USA - Friday, March 10, 2006 6:10 PM CST

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