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Welcome to our Child Web Page. It


has been provided to keep people updated about our Child.
Sydney is currently undergoing treatment for stage 4 neuroblastoma at Childrens Hospital in Knoxville TN.


"I WANT TO LEAVE MY MARK ON THIS WORLD. I WILL NOT ALLOW IT TO LEAVE ITS MARK ON ME."



Our goal is to not just survive this horrible disease, but to become better people because of it. Please pray for us while we take this journey.


"The past is over and done and has no power over me. I can begin to be free in this moment. Today's thoughts create my future. I am in charge. I now take my power back. I am safe and I am free."
Louise Hay



















"Character cannot be developed in ease and quiet. Only through experience of trial and suffering can the soul be strengthened, vision cleared, ambition inspired, and success achieved" ~ Helen Keller
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To tell Sydneys story I must first start at the begining.

Our beginig starts with Mike and I.. How we were born in the same hospital just a week apart.. Me on July 4th 1973 and him on July 11th 1973. We joke and say that it was love at first site but we knew we were too young. I had to stay in the hospital with my twin brother for a week because I we were early, so we just met in passing..
We met again as fate had planned just a few months after we graduated from high school.. Me Williamson School and him in a neighboring school in Matewan Wv.
We have had our ups and downs but have managed to hold it together all these years..
I always knew I wanted alot of kids.. I am one of 5 myself.. I always just wanted these little babies to love and protect..
We were pregnant before we were married in 1993 and I had a miscarriage.. that just broke my heart.. Who knew just how many more heartbreaks I would soon have trying to have these wonderful little souls I love so dearly..
We welcomed our first little darling girl into our lives on April 27th 1997..She was redheaded and full of fire and the absolute loves of our lives!!!
We were a little scared but ever soo excited to learn that we were to be parents again when Baillie was still really little..
Sweet, little Abigail was born on Sept 1 1998 just 17 months after Baillie was born... She hard black hair like her daddy and was beautiful..She was also born too soon at just 29 weeks...
She was just too sick.. She weighed in at 2lbs 13 1/2 ounces.. She only lived for 15 days..
I thought I would never survive.. This little soul that took my breath away, I loved her so much..
Mike was soo afraid to have another child.. but I knew in my heart that another sweet little girl was meant to be for us...
Sweet Sydney was born on November 26th 2000 weighing in at 2lbs 14ozs and 12 weeks early..
I thought I would just die.. I blamed myself.. What did I do? This was all my fault.. My need to have another child.. Knowing that I could deliver early again.. Knowing what happened to sweet Abby.. But still..... I saw something in her... This little fighting spirit.. this will to survive, like nothing I have ever seen before..
I just knew this sweet girl was going to be alright...
She did wonderfully... Not requiring a ventilater... Just staying 7 weeks in the NICU... I brought her home at 7 weeks old weighing 4lbs 10ozs.. She even nursed for almost a year, which I was told just wouldnt happen... Not for my little girl.. she was a fighter..
Things went along perfectly until Sydney was 17months old and we noticed her eyes shaking and her hands shaking and she quit walking..
To make a very long and very emotionally painful story short, we didn't know what was wrong with our sweet girl until she was 3 months from being 4 years old and she was diagnosed with stage 4 Neuroblastoma.. It had spread everywhere.. Almost 100% bone marrow, pelvis, legs, lymph nodes, huge tumor on adrenal gland.. we were devestated.. hurt, confused.. thought my world had come to an end.. How could this be??
After all these years of begging and pleading for someone to tell me what was wrong with her.... and then this???? this horrible blow?? This awful disease that only carried a 20% chance of surviving 5 years?? How could this be??
But it could be... and it was... and somehow we survived 16 months of hard treatment... 6 rounds of hard chemo, 11 hours surgery to remove primary tumor, stem cell transplant, radiation and 6 months of accutane to hoepfully keep it from coming back...
We really thought we had beat this monster... Living life... loving life.. appreciating everyday.. but never forgetting where we were....or just what this diseas was capable of..
Almost 2 years to the day of her stem cell transplant, we were again hit with a blow that i'm still not quite sure how my heart survived..
Our sweet baby had relapsed.. On her skull and pelvis.. Oh God.... how could this be?? Didn't you know that all i've ever wanted was these babies?? What have I done so wrong??
Somehow we have again survived these horrible blows and are fighting for the life of our sweet sweet girl..
We tried the Hu14.18 Il2 antibody but only got 1 day of first round and half dose of second round due to high liver enzymes.. Her disease then progressed.. More on skull.. more on pelvis.. now almost 70% on the bone marrow biopsy...
We started topotecan/cytoxin.. We did 2 rounds and then heard about some wonderufl parents who have gotten together with a wonderful Dr. in Vermont who is trying desperately to fix these kids.. We can do the same chemo but add another drug to it called Nifurtimox..
This drug is used to treat Chagas Disease.. A little girl with relapse Neuroblastoma had gotten this disease from a blood transfusion and was given Nifurtimox to treat it and her cancer went away!!
Anyway, I can't say exactly how it all came about from there.. but I do know that I am forever grateful. Go to MagicWater.org and see the wonderful dads who are paving the way for our kids!!!
And this is where I will leave off.. The fight is on.... we are never giving up.. we are strong... and we are here......

Journal

Sunday, October 19, 2008 6:21 PM CDT

Ok, i've been putting this off for a long time but I think I am moving Sydney's page....

i got really carried away and added a ton of my own stuff but when it takes minutes for me to even open it, then I know we have a problem..

I'v added so much stuff that I wouldn't even know where to start in deleting all of it...

I thought i'd just make a carepages and print out all of this caringbridge so she can read when she is older...

the new one is at www.carepages.com under sydneymarie.....


sooooooo....... I will post updates about scans tomorrow after we get home from clinic.....

I know what I think they are just from the little I know when I look at them, but will wait until we get final report....

I will update on the new carepage...

thanks to all who think about us and pray for us....

with love

rhonda




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Links:

http://www.angelfire.com/sd2/sydneymarie/tn   LINK TO MORE PICTURES
http://http://bloggingforchristi.blogspot.com/   please help raise money for our kids!!!!!


 
 

E-mail Author: rhondadud73@yahoo.com

 
 

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.
 
 
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