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It'z All About Nate
Born May 13, 2002 spent 4 weeks in NICU..(Intubated 10 days, Canulla O2 3 weeks, NG Tube Fed, and TPN Fed) Fasciotomy Oct.2002 Bronchoscopy and Scar Revision Feb. 2003 Bronchoscopy and Endoscopy April 2003 Nissen Fundoplication April 2003 Bronchoscopy and Endoscopy Oct. 2003 Bronchoscopy, Endoscopy, and Colonoscopy Feb. 2004 Bronchoscopy, Tonsillectomy, Adnoidectomy, Frenulectomy March 2004 Bronchoscopy and Endoscopy October 2004 Bronchoscopy, Endoscopy, and Colonoscopy July 2005 Bronchoscopy, Endoscopy, Colonoscopy, and Removal of Optic Tumor July 2006 Endoscopy November 2006 Open Gastrostomy (Mic-Key Button placed) and 4 Hernias repaired November 2006 Endoscopy Nov. 2007 Endoscopy and Colonoscopy May 2008 DAFO Braces placed on both legs August 2008 3 Ph Probes Allergy testing 3x (twice for food and once for environmentals) 4 Chest CT’s 1 Head MRI (Found Chairi Malformation 0 ) 4 Swallow Studies Salivagram Milk Scan 2 Total Spine MRI's (Found Syringomyelia w/ a Syrinx on T2, Spinal Fluid back up from T1-T8)  Please don't forget to sign Nate's Guestbook so we will know you were here!!! Dr. Davison~October 29th Angel Heart Farm, when he can tolerate the outdoors.
Author unknown A Mother's Love is like an island In life's ocean vast and wide, A peaceful, quiet shelter From the restless, rising tide ... A Mother's Love is like a fortress And we seek protection there When the waves of tribulation Seem to drown us in despair ... A Mother's Love's a sanctuary Where our souls can find sweet rest From the struggle and the tension Of life's fast and futile quest ... A Mother's Love is like a tower Rising far above the crowd, And her smile is like the sunshine Breaking through a threatening cloud ... A Mother's Love is like a beacon Burning bright with Faith and Prayer, And through the changing scenes of life We can find a Haven There ... For A Mother's Love is fashioned After God's enduring love, It is endless and unfailing Like the love of Him above ... For God knew in His great wisdom That He couldn't be Everywhere, So He put His Little Children In a Loving Mother's Care. ~The clip below is brought to you by American Partners for Eosinophilic Disorders~ Please watch this 4 minute clip. This is the reality of EGID.   Nate and Zach at Great Wolf Lodge 2007 Nate H. c/o: Terri McCaulery 11158 Challange Dr. Bon Aqua, Tn 37025  ~Hugs and Hope~ ~Bridge of Dreams~ ~Tumbleweed Foundation~ ~Make A Child Smile~ ~Angels 2 the Heart~ I also want to give a HUGE thanks to Love Quilts and Quilting Angels for featuring him, and having his very own personlized quilts made. I will post them after they arrive and we take pictures. My Big Brother Zachary's Birthday I'm down on my knees again tonight, I'm hoping this prayer will turn out right. See, there is a boy that needs Your help. I've done all that I can do myself His mother is tired, I'm sure You can understand. Each night as he sleeps She goes in to hold his hand, And she tries Not to cry As the tears fill her eyes. Can You hear me? Am I getting through tonight? Can You see him? Can You make him feel all right? If You can hear me Let me take his place some how. See, he's not just anyone, he's my son. Sometimes late at night I watch him sleep, I dream of the boy he'd like to be. I try to be strong and see him through, But God, who he needs right now is You. Let him grow old, Live life without this fear. What would I be Living without him here? He's so tired, And he's scared Let him know that You're there. Can You hear me? Am I getting through tonight? Can You see him? Can You make him feel all right? If You can hear me Let me take his place some how. See, he's not just anyone, he's my son. Can You hear me? Am I getting through tonight? Can You see him? Can You make him feel all right? If You can hear me Let me take his place somehow. See, he's not just anyone. Can You hear me? Can You see him? Please don't leave him, He's my son.  Many of you I have never even met face to face, but I've searched you out every day. I've looked for you on the Internet, on playgrounds and in grocery stores. I've become an expert at identifying you. You are well worn. You are stronger than you ever wanted to be. Your words ring experience, experience you culled with your very heart and soul. You are compassionate beyond the expectations of this world. You are my "sisters." Yes, you and I, my friend, are sisters in a sorority. A very elite sorority. We are special. Just like any other sorority, we were chosen to be members. Some of us were invited to join immediately, some not for months or even years. Some of us even tried to refuse membership, but to no avail. We were initiated in neurologist's offices and NICU units, in obstetrician's offices, in emergency rooms, and during ultrasounds. We were initiated with somber telephone calls, consultations, evaluations, blood tests, x-rays, MRI films, and heart surgeries. All of us have one thing in common. One day things were fine. We were pregnant, or we had just given birth, or we were nursing our newborn, or we were playing with our toddler. Yes, one minute everything was fine. Then, whether it happened in an instant, as it often does, or over the course of a few weeks or months, our entire lives changed. Something wasn't quite right. Then we found ourselves mothers of children with special needs. We are united, we sisters, regardless of the diversity of our children's special needs. Some of our children undergo chemotherapy. Some need respirators and ventilators. Some are unable to talk, some are unable to walk. Some eat through feeding tubes. Some live in a different world. We do not discriminate against those mothers whose children's needs are not as "special" as our child's. We have mutual respect and empathy for all the women who walk in our shoes. We are knowledgeable. We have educated ourselves with whatever materials we could find. We know "the" specialists in the field. We know "the" neurologists, "the" hospitals, "the" wonder drugs, "the" treatments. We know "the" tests that need to be done, we know "the" degenerative and progressive diseases and we hold our breath while our children are tested for them. Without formal education, we could become board certified in neurology, endocrinology, and physiatry. We have taken on our insurance companies and school boards to get what our children need to survive, and to flourish. We have prevailed upon the State to include augmentative communication devices in special education classes and mainstream schools for our children with cerebral palsy. We have labored to prove to insurance companies the medical necessity of gait trainers and other adaptive equipment for our children with spinal cord defects. We have sued municipalities to have our children properly classified so they could receive education and evaluation commensurate with their diagnosis. We have learned to deal with the rest of the world, even if that means walking away from it. We have tolerated scorn in supermarkets during "tantrums" and gritted our teeth while discipline was advocated by the person behind us in line. We have tolerated insane suggestions and home remedies from well-meaning strangers. We have tolerated mothers of children without special needs complaining about chicken pox and ear infections. We have learned that many of our closest friends can't understand what it's like to be in our sorority, and don't even want to try. We have our own personal copies of Emily Perl Kingsley's "A Trip To Holland" and Erma Bombeck's "The Special Mother." We keep them by our bedside and read and reread them during our toughest hours. We have coped with holidays. We have found ways to get our physically handicapped children to the neighbors' front doors on Halloween, and we have found ways to help our deaf children form the words, "trick or treat." We have accepted that our children with sensory dysfunction will never wear velvet or lace on Christmas. We have painted a canvas of lights and a blazing Yule log with our words for our blind children. We have pureed turkey on Thanksgiving. We have bought white chocolate bunnies for Easter. And all the while, we have tried to create a festive atmosphere for the rest of our family. We've gotten up every morning since our journey began wondering how we'd make it through another day, and gone to bed every evening not sure how we did it. We've mourned the fact that we never got to relax and sip red wine in Italy. We've mourned the fact that our trip to Holland has required much more baggage than we ever imagined when we first visited the travel agent. And we've mourned because we left for the airport without most of the things we needed for the trip. But we, sisters, we keep the faith always. We never stop believing. Our love for our special children and our belief in all that they will achieve in life knows no bounds. We dream of them scoring touchdowns and extra points and home runs. We visualize them running sprints and marathons. We dream of them planting vegetable seeds, riding horses and chopping down trees. We hear their angelic voices singing Christmas carols. We see their palettes smeared with watercolors, and their fingers flying over ivory keys in a concert hall. We are amazed at the grace of their pirouettes. We never, never stop believing in all they will accomplish as they pass through this world. But in the meantime, my sisters, the most important thing we do, is hold tight to their little hands as together, we special mothers and our special children, reach for the stars. By Maureen K. Higgins  ~Tennessee Aquarium~ ~Chattanooga Choo-Choo~ ~Creative Discovery Museum~ ~Nate's Day Out With Thomas 9/11/2005~ ~Orange Beach, AL 2005~ By Sue Stuyvesant, Parents Where are the parents? They are on the phone to doctors and hospitals and fighting with insurance companies, wading through the red tape in order that their child's medical needs can be properly addressed. They are buried under a mountain of paperwork and medical bills, trying to make sense of a system that seems designed to confuse and intimidate all but the very savvy. Where are the parents? They are at home, diapering their 15 year old son, or trying to lift their 100 lb. daughter onto the toilet. They are spending an hour at each meal to feed a child who cannot chew, or laboriously and carefully feeding their child through a g-tube. They are administering medications, changing catheters and switching oxygen tanks. Where are the parents? They are sitting, bleary eyed and exhausted, in hospital emergency rooms, waiting for tests results to come back and wondering, "Is this the time when my child doesn't pull through?" They are sitting patiently in hospital rooms as their child recovers from yet another surgery to lengthen hamstrings or straighten backs or repair a faulty internal organ. They are waiting in long lines in county clinics because no insurance company will touch their child. Where are the parents? They are sleeping in shifts because their child won't sleep more than 2 or 3 hours a night, and must constantly be watched, lest he do himself, or another member of the family, harm. They are sitting at home with their child because family and friends are either too intimidated or too unwilling to help with child care and the state agencies that are designed to help are suffering cut backs of their own. Where are the parents? They are trying to spend time with their non-disabled children, as they try to make up for the extra time and effort that is critical to keeping their disabled child alive. They are struggling to keep a marriage together, because adversity does not always bring you closer. They are working 2 and sometime 3 jobs in order to keep up with the extra expenses. And sometimes they are a single parent struggling to do it all by themselves. Where are the parents? They are trying to survive in a society that pays lip service to helping those in need, as long as it doesn't cost them anything. They are trying to patch their broken dreams together so that they might have some sort of normal life for their children and their families. They are busy, trying to survive.   Zach does get kinda sick sometimes, he has GERD, Asthma, and he's allergic to Egg. Mom says Walmart donuts make him sick. He's a great big brother and he loves me, and he always watches out for me. So I guess I'm proud of him, as long as he will share his Playstation (Mom gave me his Gamecube **giggle** and wrestlers.  Mommy getting Nate to sleep during Storytime at Great Wolf Lodge   When I was young, I'd often say, I'd like to be a mom someday While playing with my baby doll, I thought that jobs not hard at all I'd have a baby, maybe two, a girl in pink...a boy in blue Well I grew up and sure enough, The baby that was sent to me, was born with disabilities At first I'm frightened through and through, there's much to learn to care for you This wasn't in my plans at all, when I was young and played with dolls Your mind and body were so weak, you might not ever walk or speak So much special care required, I'm often scared and often tired As months and years go slowly by, I smile a lot but sometimes cry To watch you grow and not complain, though you endure your share of pain Oh, how I'd hold you and I'd pray, that you'd be healed and whole someday But I knew that was not to be, not physically or mentally And so I taught you best I could, your progress has it's up and downs , But then one day I realized, as I gazed into your loving eyes That I had learned so much from you, determination...courage too A love so unconditional, it floods my soul and always will I'm proud to say I gave you birth, for you're an angel here on earth. written by Pansy  Top Sites Vote For It'z All About Nate at Kancer Kidz Top Site List and Forum! Top Sites       By Erma Bombeck Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. Did you ever wonder how mothers of children with life threatening illnesses are chosen? Somehow, I visualize God hovering over Earth selecting His instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger. "Armstrong, Beth, son, patron saint Matthew. Forrest, Marjorie, daughter, patron saint Cecilia. Rutledge, Carrie, twins, patron saint Gerard." Finally, He passes a name to an angel and says, "Give her a child with special needs." The angel is curious. "Why this one God? She's so happy." "Exactly" smiles God, "Could I give a child with special needs to a mother who does not know laughter? That would be cruel." "But, does she have patience?" asks the angel. "I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she will handle it." "I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has it's own world. She has to make it live in her world an that's not going to be easy." "But, Lord, I don't think she believes in you." No matter, I can fix that. This one is perfect. She has just enough selfishness." The angel gasps -"Selfishness? is that a virtue?" God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take anything her child does for granted. She will never consider a single step ordinary. I will permit her to see clearly the things I see...ignorance, cruelty, prejudice...and allow her to rise above them." She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side." "And what about her patron Saint?" asks the angel. His pen poised in mid-air. God smiles, "A mirror will suffice." Journal Sunday, November 15, 2009 12:53 PM CST I swear I will update real soon!! Its been FOREVER Hospital Information:
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E-mail Author: luvourkids2002@yahoo.com |
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