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Laney Elizabeth Biggs 
"And as Jesus passed by, he saw a man which was blind from his birth. And his disciples asked him, saying, Master who did sin, this man, or his parents, that he was born blind? Jesus answered, Neither hath this man sinned, nor his parents: but that the works of God should be made manifest in him." John 9:1-3
Welcome to Laney's web page. It has been provided to keep family and friends updated with Laney's progress following an Unrelated Umbilical Cord Blood Transplant at Duke University Medical Center (Oct. 16,2002). Laney was diagnosed in utero on May 9,2002 with Hurler's Syndrome, MPS I . Laney was born on August 14,2002 at 10:57 p.m. She weighed 8lbs 2.9oz and was 21 inches long. Laney arrived in Durham, NC for translpant work-up at four weeks old and received her transplant at nine weeks old.
Journal
Sunday, April 5, 2009 5:08 PM CDT Post Transplant 6yrs, 6mo
Hello to all! Please forgive me for leaving you all wondering how Miss Laney is holding up post hip surgery. It has been a little crazy in our house!
Surgery went as scheduled on Friday, March 20th. Laney's nerves had the best of her bright and early that morning, we had to report to the holding room at 6am. Surgery started around 8am and by around 10:30 we were waiting to speak with Dr. Fitch. He said from what he could see of her hips during surgery that they looked very good. She will be in a wheelchair for the next three and a half weeks, sitting no more than sixty derees, until we return on April the 28th for her check-up. They will take some x-rays to see how the hips are healing and do a physical therapy evaluation to see what type of equipment will be needed for the next phase of healing. I think she will be glad to loose the wheelchair when it comes time. Laney has been such a trooper through all of this!
As most of you know we went through the Children's Organ Transplant Association for fundraising before Laney's transplant. With the help of very special family and friends we raised over $100,000! This money has been used over the last seven years for the expenses associated with transplant. Transplant itself has a $650,000 price tag, not to mention therapies, surgeries, and medication. COTA has been wonderful to let us use Laney's account for Erin's expenses too. Right now Erin is on eight different medications that she takes up to a total of seventeen times per day. COTA informed me this past week that our funds have just about become depleated and there isn't much more room for any reimbursements. All of our expenses we have to pay for upfront, turn in a receipt, and then get reimbursed. They do not reimburse us for anything other than they girls' needs. The money is only there for medical bills (which are overwhelming), medication, and expense with return trip to Duke like lodging, etc. During Erin's transplant our health insurance paid for our apartment rent ($3,000 per month) in which we were very thankful for but they do not pay for any expenses associated with check-ups. So, if you or your friends and family would like to help us we would most graciously appreciate any donation made to our COTA account to help our daughters. We could not have financially made it thus far without the generosity of the ones who have already given their heart and help. We have been very blessed!
Any donation can be made to:
Children's Organ Transplant Association
2501 West COTA Drive
Bloomington, Indiana 47403
*They ask that "COTA for Laney B" be written in the memo space of the check.
On-line donations can be made at www.cota.org Just search for a COTA family and enter Laney's name.
Thank you, Thank you, from the bottom of our hearts!
Much love,
Beth Annne
Read Journal History
Hospital Information: John, Beth Anne, Laney, and Erin Biggs
312 Ely Rd
Bulls Gap, TN 37711
423-235-2290
Links: http://www.cancer.duke.edu/pbmt/tour/default.asp Tour the PBMTU and Rainbow Day Hospital at Duke
http://www.mpssociety.org/index.html Info about Laney's disorder
www.caringbridge.org/visit/erinbiggs Laney's baby sister's site
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