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Happy Bithday to the Sweetest Girl Who ever Danced into Our Lives Mikayla Grace Harris 
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The Sweetest Princess you'd ever met Gods Gift to us for a short time a blessing we cherished everymoment of....
Beautiful Angel Princess
Mikayla Grace (Mae Mae) Harris
Born to Earth Oct. 25, 2000
Danced in Heaven Aug. 13, 2003
In The Light
A shadow of joy flickered, It's me,
I told you I wouldn't leave
My spirit is with you
my memories, my thoughts are my footprints on your heart.
I still love you.
Do not think for one momnet that you
have been abandonded
I am in the light...
In the corner,in the hall, the car
the yard, in all theese places
I stay with you...
My spirit rises every time you pray for me,
but my energycomes closer to you
Love dose not diminish,
It grows stronger..
I am the feather that finds you in the yard,
The dimmed light that grows brighter in your mind.
I place our memories for you to see,
We live in a very special way,
A way that now has it's focus changed,
I still crave you understanding and
long for the many words of prayer and good fortune for my soul,
I am in the light
As you struggle to adjust with out me,
I watch silently,
Sometimes I summones up all the strength of my new world to make you notice me,
Impressed by your grief I try to impress my love, deeper into your consciousness,
As you should,
call uot to the Heavens for help
You love sends me new found energy
I am adjusting to this new world
I am with you
I am in the light
Please don't feel bad you can't see me
Iam with you where ever you go
I protect you
Just as you protected me so many times,
Talk to me and I will find a way to answer you.
I see you with my new eyes
I am learning to help whereever you are
whereever I am needed
This can be done now because
I am in the light,
When you feel despair, reach out to me, I will come...
My love for you truly does transcend from
Heaven to Earth
Finish your life with the enthusiam and zest that you had when we where
together
in the physical sense.
You owe this to me, but more importantly you owe it to
youself,
Life countinues for the both of us
I am with you because
I love you and
I am in the light....
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Princess Kayla and Prince Connor
Unsung Lullaby
I've written you a lullaby and although it remains un sung
I dedicated it you our tiny wordless one
My precious Angel Mikayla Graceie Mae
so small so sweet
God took you to be with Jesus
God gave up his only son for forgiveness of our sins
And Now little Angel our heart will go with you as Heavens Gates you enter in
Please say Hi, to Jesus and tell him we'll do our best
To spread his love to others reassuaring them that they are blessed
And although our hearts are breaking with great sorrow and pain
Please tell him not to worry as we'll learn to smile again someday
Please tell him that we love him and and thank you for all the time we had with you
We've sent you up in person to tell him one on one
Please tell him that I'm sorry that had trouble letting you go
I'll try a little harder if the way to me he'll show
Pleasae remember our dear sweet Angel Mae Mae
Our Lives you truly blessed
God has taken your struggles and
Given you the best
He's taken you to heaven and now as you look around
We'll remember what the cost was
for all the tresures you have found
And as you now meet Jesus and sit inhis lap.
Remember we are coming and the rest of us you will meet
Down on earth you know you have you 3 brothers you know and love and a new lil sister too I know you have become a part of.
And they all love you.
The Day came to say goodbye and to let our Angel Fly free
yet we know you are with us
and this some how is all the Lords plan
We love you, Mommy, Daddy, Brothers and Sissy to
Can hardly wait to get to heaven to be with you
When we look at the stars and pick one out and name it for you
We'll never forget all the blessings you brought and how hard you fought
God will take care of you now
and he'llmeet you every need
We know that this is his plan for us ans to his will we'll heed
God has brought us all together to say goodbye on this day
He has sent you you sweet Angel
Ahead to lead the way
Always remembered, Never forgotten,
Forever treasured
You have forever left your footprint embedied in our hearts
We Love you FOREVER!!!!!
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I love this Pic of Mae Mae it alwysa has been one that melts my heart. What a Princess...
Welcome to Mikayla's Angel Page,or as her dr's and nurses liked to call her " Mae Mae Drama Princess".
All of her family at home and her family at VCH Love her and Miss her so much, for she had such a beautiful and funny little personality. "One bat of those lashes and she has you wrapped" said Dr. Barr.
God sent her to Earth with a mission to whom we may not understand now but will some day, We do know that she Graced so many lives and touched so many hearts in her own special way. She fought with all her might to beat the sickness and won so many times when she was supposed to have lost. They all said "she's going to pull a Mikayla" and she'd come home with us again. We were so blessed to have her as a daughter and she is now in Heaven for she has to fight no more and can do all she couldn't do here on earth.
We want to say a special Thank you to all of our friends and family and our Vanderbilt family of Mikayla's Dr. Heidi who always took extra special care of her, and held her and rocked her and Dr. Taylor who held our hand and Kayla's so many days and to Dr. Barr and Dr. Merrik who always called her their little Princess. To Dr. Huck whom she could always seem to make laugh when he was in a hurry and she'could always make scratch his head and say Hummm. And to Jade: thank you for helping her and helping us to know that she did like her belly and Ms. Pat You taught us so much and always had faith in us and were always there when we needed you. WE LOVE YOU! Dr Steelman who took a special liking to Kayla and Dr. Haziski and Dr Peitche who helped her and helped us and believed in us and helped us make a tough decison and talked to us like parent to parent not paitent to paitent. And to Dr. Summars: an extra special thanks for helping us find the right answers to help Mae Mae. To her Nurses: Toni you loved her so much and to Shara and Sara and Christie and Tatum and Cow girl whom fought for what was right for her Sam, whom could always make her laugh and Dinise who said "Here's Miss Drama herself" she'd only do good for you. She was the little one who loves her Peep. and to Jerrad whom helped us understand this equipment stuff you all always said she needed the caddie and you where right. To Mrs Linda and Addelle whom loved her and always knew she was in good hands with them and Linda and all our little boy talks and To all the child life staff and to her Special Friend Mimmie, And you Always made sure Our Princess was always treated like a princess .Mrs. Rae Rae I hope you know just how much you mean to us, Mae Mae loved you so much and you always believed she could we love you and all of y'all at foundations and Susan Tuck you always made sure she had all the equipment she needed to do all she could thank you.
To Our Family We love you and Thank you so much Na Nu and Pa. We couldn't have done alot of things for her if it werent for your love for her! Thank you and we love you! Muner You did so much for me and her so many days at the hospital with us hours and hous on end You Love her So very much and and Alice Thanks for all the shoulders to cry on and strength you gave me and I hope you have great memories of our precious gal. Nanny, Sissy and Steph, thanks for all you do and did for her and the boys it helped more than you will ever know. And Mr. Robert and Catherine , thanks for all the prayers and i Know the long nights worring all together in that hospital and holding our hand and being there with us again and then again that last night. We love you and have such a deep respct for you . thank you. Lita you know how much you mean , and you held my hand and Miss Mae MAes also and taught me so very much more than you'll ever know, and Bobby and Willy, for being there of all of us but ecspeacilly for Mae MAe's daddy. We love ya'lland Kim you know your my bestest bud and Rita, Lisa and April,yall are the best there are no other words, that can say it we love you all so much, Namoi and Dan, we love you both and thank you for all you did for us and lil MAe Mae,for she is truly Willie's gardian Angel now.. Dennis and Kelly and we love yall and Stephen and Lauri you'll alwas be in our heats our Babies are the best of angel Buddiesthey where all connted more than we knew and connected us all.i don't know how we could get thought all of this and that we did with out yall. We miss our Little girl so much and would do anything to have her back with us but we do know now she can now fly with thoese special wings and a halo of gold. To Live with out her is to live without a peice of my heart. She will know watch down over us all and the exta special fewand guide us to get us through each day.She was always a angel , but while on earth she hid her wings.. I love you sweet baby girl You'll always me my Mae Mae.
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Mikayla's dx's
 35week premiee
HIE (Hypoxix Inchemic encelophloly)
Hypotonic CP
SMA Type1 (Spinial Musclar Atrophy)
Pineal Brian tumor
(the tumor and brain damage, and SMA cuused these thing)
Chronic reflux
Eplipsy (seziure Disorder)
Diabetes Insipus
hypothyrioism
Low Body Tempture
Adreal crises
Growth Hormne Defenincy
Chronic Lung Disese
Had Trach put in Jan 03 tried without Vent but did so much better with it so we came home with the ventalatior.
O2 and Ventalatior dependent
G-tube feeds
Latex allery
Milk allergy soy/corn allergy
Fed Mediadcal Food , formula
Elecare
after many many tries at differnt thing
TPN dependent for 6 months
Got EI services who got us PT and Ot for her and had In home nursing for 8-12 hrs a day
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Please take a moment a watch our Slide show Of Mikayla and her family and Heavenly Angel Buddies and EarthAngel Buddies. We Love you all.
Remember Me this Way
Every now and then
We find a special friend
Who never lets us down
Who understands it all,
Rushes out each time you fall,
Your the best frien that I've found
I know you can't stay
But part of you will never go away
You heart will stay always
I'll make a wish for you
And hope it will come true
That life will just be kind
To such a gentel mind
If you lose your way
Think back on yesterday
Remember Me this way
Remember Me this way...
I don't need eyes to see
The love you bring to me
No matter where I go
I know that you'll be there
$ EVER a part of me
You everwhere
I'll always care
I'll make a wish for you
And hope it will come true
That life will just be kind
To such a gentel mind
If you lose your way
Think back on yesterday
Remember Me this way
Remember ME this way
I'll be right behind your sholder
watching over you
I'll be standing beside you in all you do
and I wont ever leave
As long as you belive
you just belive
Remember me this way
This way...
Mae Mae’s banner made with love by the Big Brave Banner Site
Please take a moment a visit her smile quilt here
www.sqlovingmemories.com/mikaylah.html
if the link will not work put in in your browser bar its woth a moment of your time turn on your spaekers thanks so much...
www.geocities.com/angelmomfriends5/kayla1.html
www.sqlovingmemories.com/mikaylah.html
www.our-sma-angels.com
www.kaylenfoundation.org
www.vanderbiltchildrens.com
www.kidsneedprayer.net
www.brightonline.org/id_definitions.html
A Great Place that Helped us find out alpt to Help Our Lil Mae Mae with her HIE and CP
www.angelfire.com/folk/hie
A Great HIE Suppot SITe With Kiddoes there
with this link please put this National Childrens Memorial Day is every 2nd Sunday in December at & pm so everone light a candel in all time zones so as candels in thoes times zones go out other are lit and it make a 24 hr light of remembeance around the Globe..
www.compassionarefriends.org
www.tcfnashville.org
www.jdrf.org
My Daddy and our Lille Mikayla had this diease and we want a cure for oue best Buddie Abby S.
www.diabetesinsipidus.org
Please help them find a cure from this it was a rare compation from Mikaylas dieases she had
Memories of Mae Mae
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Journal
Monday, October 22, 2007 9:19 PM CDT Hello,
to all our CB Frends and Family whom have walked this journey with us that have lived this journey with us this we still live ever day of our live as long as we are on this earth from the time we had Mae Mae with us till the day we set her free to Fly and recive hre pink wink wings and halo of gold.
As we miss her griever her remember her and her precious Angel buddies that went before her and thoes she took by the hand and showed the way to the feet of the Loed of Peace and Happiness. and for thoese she still watches over each and everyday,
Mikayla Grace Harris a very special little girl,
My sweet princess in every way as i looked into thoese Big beautiful Blue eyes the day i met her I knew she would do great thing but I knew never just how great they where till afterward.
My road without her is so very hard I know i conplin but then I think how hard she had it and she was only a baby and she fought so hard till the endand I do belive if we would have asked her to keep fighting she would have but it would have been for us not for her as a Baeutiful Loving dr told us that night "we are now doing to her and not for her" and when she told us this it hurt so so bad and I didnt want to do anything to her that wasnt in her best intrest that wouldn't help her live a better life ,this hurt to hear so bad this meant there was no more to do she didn't need to fight for another day all she needed was her mommy's arms and the Peace of Jesus to give her the ultamite healing to bee free her new birthday.
I relive these 2 days in my head every day, her birthday and the night we said good night till we meet again in that beautiful place of peace.
I love you Mae Mae and Miss you with every fiber of my being
You will never be forgotten this I promise will will always keep you precious memories alive.
This is the last entry on the Caringbridge journel I feel as though I need do this.I will print every page of this and make this part of your celerbration of your Life Book I am makeing for you.
So id all our CB Friends and Family may sign the guest book It will mean so very much to have your words of Mae Mae here
Thank you so very much and we will keep you all in our every prayer
With Gods Peace and Love
into everyday
April, Mimmie and the Boys
Read Journal History
Hospital Information: Patient Room: PICU/ the cloud that has a pink lining she was all princess Vanderbilt Childrens Hospital PICU and from Mommys arms to the arms of Jesus.
Nashville, Tn 37212 from here to Heaven
Links: http://www.caringbridge.org/tn/peanut Connor's page Mae Mae's buddie
www.geocities.com/angelmomfriends5/kayla1.html Mikayla memorial page music and photos
www.caringbridge.org/tn/mimmie Mikayla's new little sister's page, Mimmie Gracelyn
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