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Benjamin H's Web Page



Family Trip to Asheville



Welcome to Ben's webpage! We have started a page to keep family and friends across the country updated on his treatment and progress.


Ben was diagnosed in August 2003 with pre-b cell Acute Lymphocytic Leukemia on August 19, 2003. He is now off treatment!!!

September is Childhood Cancer Awareness Month. Check out the video below and see how you can help! Look for Ben's pic around the 2:22 mark.

Journal

Monday, October 15, 2007 11:57 AM CDT

Hi all!
Got past Ben's one year visit last week. Ben remains in remission!!! His WBC was a bit low from a respiratory infection, but everything else looked solid. Ben was excited to hear that he would not need another "poke" until January. Can't say that I blame him there. Not to say that I am totally at ease whenever he complains of pain, but I get less anxious as the months pass. Ben feels great and he continues to excel in school. We did find that he has auditory processing disorder after some testing done last month. I had always suspected there was something not quite right with Ben's ability to listen. Turns out my mommy tuition was right. We had him tested by an audiologist last month and he has a mild case of APD. We started speech therapy a few weeks ago to help him- I knew if we just left things they way they were, he woulod grow more frustrated with school. It seems to be going well- Ben likes the therapist and has fun with the therapy. I am so very proud of him! He had such a rough start to his life (dx. at 20 months), the fact that he is doing well is all his doing. He's a great, sweet kid.
Lily is also well- smart as a whip and loving school. She can actually write her name and loves building with Ben's magnetix. Have to say that we are enjoying the "normal" life, but I still think of those in the battle. Keeping all your kids in my prayers: Ashley, Alexia, Avalon, Sherilyn just to name a few still in the fight. Have a great fall! Lorie

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Hospital Information:

Patient Room: currently at home!

East Tennessee Children's Hospital
2018 Clinch Avenue
Knoxville, TN 37922
865-541-8000

Links:

www.lilyadoption.com   Lily's adoption page
  
  


 
 

E-mail Author: lghirsh@hotmail.com

 
 

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.
 
 
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