Welcome to Dylan's world. This web page was made to help keep friends and family informed on how Dylan is doing.

Dylan was diagnosed 12/99 (age 3) with an inoperable glioma brain tumor. It is in the cerebellum, brain stem, cervical and thorasic cord.

Dylan has survived many years of treatment. Brain biopsy, port implant, several chemotherapies, extensive brain and spinal cord radiation, steroids, blood transfusions, plasma transfusion, respitory arrest, tracheostomy, g-tube and many more uncomfortable test and procedures. Nothing we tried stopped his aggresive tumor from growing.

In January 2002, the doctors told us there wasn't anything else they could offer Dylan. They sent us home on Hospice with a prognosis of 2 weeks to 2 months.

I didn't know what to do, I was not ready to give up the fight and neither was Dylan. We prayed and prayed and prayed...Then God answered our prayers. We met a family, who son had a Difussed Pontine Glioma. They had their son on an alternative medication called Protocel, and he is doing very well.

What did we have to lose? Let me tell you what we have gained. Dylan has been steroid free for 1 year, we have had 4 "stable MRI's" and 2 MRI's with shrinkage. The only time we go to the hospital now is for MRI's and check-ups. We have not had an over nighter in over a year.

I wish I knew about Protocel before I put my son through all that damaging chemo and radiation.

If this is your 1st time visiting our site or your 100th time, please sign our guest book and let us know you were her checking on us. Dylan really enjoys having me read everybody's kind words. Thank you.

The family can be contacted at the address and phone number below.

THE HOLY ALPHABET
A lthough things are not perfect
B ecause of trial or pain
C ontinue in thanksgiving
D o not begin to blame
E ven when the times are hard
F ierce winds are bound to blow
G od is forever able
H old on to what you know
I magine life without His love
J oy would cease to be
K eep thanking Him for all the things
L ove imparts to thee
M ove out of "Camp Complaining"
N o weapon that is known
O n earth can yield the power
P raise can do alone
Q uit looking at the future
R edeem the time at hand
S tart every day with worship
T o "thank" is a command
U ntil we see Him coming
V ictorious in the sky
W e'll run the race with gratitude
X alting God most high
Y es, there'll be good times and yes some will be bad, but...
Z ion waits in glory...where none are ever sad!