Zachary Ryan Smith

Welcome to our webpage for Zack. Our son was diagnosed in November 2003 with a rare and aggressive childhood leukemia - JMML (Juvenile Myelomonocytic Leukemia)and in October 2004 he was diagnosed with Noonan Syndrome. This webpage has been created to keep Family and Friends updated about our little one. Thank you for visiting Zack's web page...please sign his guestbook (and sign it often), we love hearing from you.

Zachary

Born: August 25, 2003

Journal

Saturday, October 25, 2008 6:04 PM CDT

Update #4

Hello,

Can you believe all this rain on the night The Phillies are supposed to play?!

Zack's only complaint today is that he is tired of having a cough. His throat is no longer sore and his voice is much stronger.

As I mentioned in the last update, we were able to cancel todays appointment if Zack was doing better, which he is, so no appointment:) The oncologist finally called back. She said that she is not worried about his counts. She contacted the cardiology department who did the MRI and she said based on what they told her about the problems he had with the contrast dye and while under anesthesia, she feels strongly that he just has an infection. We will wait until Friday to do the bloodwork as she feels that waiting 7-10 days would allow the antibiotics to work and give us a better picture. If it is an infection, his white count should go down by Friday, if it is the JMML it will only go up higher, but she doubts this is the case. Yes, I know, Halloween is Friday and yes I am making him get bloodwork done on Halloween. I know, I know, mean, mean Mommy:) Zack's class party is one hour long so we will go to CHOP after the party and be home in plenty of time to have dinner and go trick-or-treating.

Speaking of trick-or-treating...Ethan is going as Indiana Jones and Zack is going as Darth Vader. They are both really excited. They both have sealants on their teeth, so wait until they find out that any sticky, chewy candy that they get, they cannot eat it:( Guess mom and dad will gain a few extra pounds this year.

Hopefully we should have results of the MRI from the cardiologist or the endocrinologist on Monday or Tuesday. I will update again when I find out.

Our love to you all,
Beth, Nathan, Ethan, and Zack

Hospital Information:

Children's Hospital of Philadelphia
34th Street and Civic Center Boulevard
Philadelphia, PA 19104

Links:

E-mail Author: beth.smith@talk2smiths.com