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TREY PATRICK DAVIS 
October, 10th 2004 - August 27th, 2006
At six months of age, on Easter Sunday, March 27th, 2005, Trey was diagnosed with two rare malignant brain tumors (one on each side) known as Choroid Plexus Carcinoma (CPC). He underwent surgery on Tuesday, March 29th, 2005 to remove one of the tumors. The entire tumor was not able to be removed and he battled the cancer by undergoing an intensive chemotherapy program that lasted more than a year. After a year of treatment for CPC, Trey was continuing to grow and develop at a normal rate despite all he had been through. However, he was still not cured of his brain tumors and was diagnosed with a second very rare cancer known as Adrenocortical Carcinoma (ACC) in March 2006. The ACC was successfully removed the same month it was discovered but came back by June. Trey passed away on Sunday, August 27th, 2006.
Journal
Wednesday, October 1, 2008 9:21 AM CDT *************************************************************************
Trey's video is back on the web. See the below link to watch.
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Originally posted Sunday, September 17th, 2006
Hello all. It has been three weeks since Trey passed away but it seems so much longer. We miss him so much in so many ways each and every day. Tonight we come here to post an update about our son, Trey Patrick Davis. We will not speak about Trey's disease, the bad hand he was dealt, or the courageous, inspirational battle he waged. We all know about the hospital stays, the surgery's, the chemo, the way Trey bounced back time after time. Granted, these things were a large part of Trey's life, but they were not who Trey was. Those things were just the circumstances that surrounded him, they definitely did not define him. Nor are we going to speak about the way we are feeling or coping. Tonight is about a little boy named Trey.....our son, a brother, a grandson, nephew, cousin and friend. So much to so many people, but most of all in his mind and our hearts just a happy, silly, playful little boy who never knew he had cancer or never knew was going to die. A little guy who got up every single morning of his life, including his last morning, with a smile on his face and a giggle. Through our updates you have all come to know Trey the cancer patient and we have given you glimpses of Trey the little boy. Tonight, we hope this update will let you see Trey as we always tried to see him........as a rough and tumble little boy. Trey may have had cancer but we always said he was so strong and healthy except for a few bad cells trying to destroy him. In the days following his passing, many friends that we have made at CHOP and through other networks spoke of Trey on their web-sites. One of our favorites came from Trevor's mom when she wrote, "Trey was such a little sweetie. He always looked like a fish out of water to me. Not that he was chubby but compared to the other onco kids he was a little football player. Where ever he would cruise to in the halls he always had a snack or was looking for one." This was Trey........healthy looking as an ox, except for a bald head and not a care in the world except where his next handful of cheerios or goldfish might be coming from. A little boy who feared nothing and charged right in head first anywhere he went. Trey was a little boy who was every bit as healthy, happy, silly and playful, if not more so, than any other 22 month old. A little boy that in his short time here touched countless lives, changed and inspired. A little boy who knew only how to love and be loved. A little boy who taught us all the importance of life. A little boy who taught us more in 22 short months than we could have ever taught him had he lived to bury us. It is our hope that in the following update, you can share in some of the beautiful memories and stories we hold so close to our hearts and get to know Trey.......... our little boy.
Teresa and I wrote this update together and it has taken us over a week. Some of the stories will be from her perspective, some from mine. We hope you enjoy.
Trey Patrick Davis was born on Sunday, October 10th, 2004 at 8:49pm weighing in at 8 lbs. 3 oz. and 21 and 1/2 inches long. From the very beginning he was just so happy and pleasant. He was always so eager to please everybody--especially his big brother. If Kellen told him to do something, Trey wouldn't hesitate for a second. During meals, Kellen and Trey sat next to each other in their high chairs and Trey would always goof around during meals and try to get Kellen to laugh. He would throw cheerios, drop things and make funny faces. He would do something silly and look at Kellen to see if it had made him laugh. He wouldn't turn his head, just slyly shift his big blue eyes in Kellen's direction while grinning from ear to ear . If Kellen was laughing........ forget about it, meal time was over. Trey would just keep doing it over and over to make his brother laugh. Kellen would be laughing too hard to eat and Trey would be too busy being the clown to eat.
In addition to being a clown, Trey was as rough and ready as any little boy. He never seemed to fear anything. Loud noises, the dark, strange faces. Whatever it was Trey charged right in head first. Some may say he didn't know any better, but Trey was a smart little guy and he knew, he just wasn't afraid. We've seen him take some tough spills, spills that would send any other 22 month old running for Mommy with tears streaming down their faces. Not Trey, he would just pop back up and try to catch up. The one thing that will always stand out in my mind is how he loved to rough house and seemed to like getting knocked down. I think getting knocked down rough housing was just another chance for Trey to show us how tough he was when he would bounce back up. Every night when Trey was home from the hospital and Mommy was getting him ready for bed (whether it was a bath night or not), Daddy and Kellen always took the time to wrestle on the bed. Trey would throw a fit while Mommy tried to get him in his pajamas because he just had to get up on that bed and wrestle. Once he was in his pj's he would climb up on the bed, right into the fray and start throwing himself around. I can't even count how many times Kellen landed on him and Trey would just laugh--not just any laugh, a big belly laugh. He would crawl over to me and slap at my chest and then throw himself in the opposite direction and wait for me to grab him and give him a little toss or a tickle. He was so ticklish. Sometimes Mommy would even join in the fun and all four of us would be up on that bed roughing each other up and acting like real tough guys. It never occurred to me at the time but when I think back on it now, there was only one real tough guy up on that bed and he had the scars to prove it. Kellen and I will continue to wrestle on the bed at night and continue to act like tough guys..............hopefully we'll make Trey proud.
Trey loved water. He loved to play at the sink with cups. Put him on a chair in front of the sink with the water running and a few cups and he would stay there as long as you would let him. He would just fill up his cups and dump them out. We usually let him play until the mess was out of hand. He would wind up soaking wet with water all over the countertops and floor. Mom-Mom and Pop-Pop and Uncle Robbie's pool were always a great time and he loved the baby pool and sprinkler out back of our house. He hated to be pulled away from the sink, out of the pool, or away from the sprinkler. Myrtle Beach.........well Trey would just walk right out into the water. He didn't care about the waves. He would get knocked down, go under, get pulled out and try it again and again and again. He thought he could go out as far as Kellen on his own. When we got to the beach he would take off running straight for the water, he had to be the first one in!!! He always loved bath time as well. He loved to play in the tub with all his bathtub toys and would put up a good fight when it was time to get out. Once he was out, he either wanted to get up on that bed and wrestle or he would make a break for it and run around upstairs trying to avoid being captured. He would always find his way into the tent we had set up in Kellen's room. Once he was in there he thought he was safe. He usually was because he and Kellen would start playing some impromptu game and it wasn't in our hearts to break it up. He always loved to be chased. He would get a real kick out of being told, "I'm gonna get you.' He would take off and if you didn't catch him and rough him up soon enough for his liking, he would stop and look back all full of smiles waiting to be caught.
He was so full of love. He always wanted to give hugs and be hugged. Our most endearing moments were probably right before bedtime when he was being rocked and snuggled. Every night we would read him stories and he would sit so quietly and look at all the pictures and he would point to so many different things in his books with his little finger. He wouldn't let you move on until you acknowledged whatever he was pointing at. I think at those times he would have just been happy to be rocked and snuggled for the rest of his days. At those moments, Trey made you forget about everything else in the world. Those were the most special times--when it was just you and Trey and not a care in the world.
Trey loved to play. Despite all he had been through he was never at a loss for energy. He would play nonstop. Trucks, cars, anything with a ball, spoons, cups, anything he could get his hands on was used as a toy. Probably the best memory we will ever have is after dinner Trey and Kellen would always play chase. Trey hadn't really begun to speak that much yet but he did have some words down like John Deere. But his favorite thing to yell was "Dat way!!" This is what he would yell playing chase with Kellen. He would wait for Kellen to tell him which way to run and Kellen would usually point and say, "That way Trey." So Trey would point and yell, "Dat way!!" and take off laughing while his brother chased him. Some nights it got really silly with them both wearing Eagles or Phillies helmets or John Deere and Packers winter time hats--even in the summer. They always had the best time together playing "Dat way!!" He loved going on amusement park rides too--down Myrtle Beach or at Dutch Wonderland. He feared no ride. He ran from ride to ride and would get mad when he had to wait in line and throw his binky. He never stopped smiling when he was on a ride.
Since Trey hadn't begun talking that much yet he had his own words for things. He called his binky his "a dee" and his blanky his "a bree." He always loved having those two things. He loved rubbing the silky edges of his "a bree" with his fingers. Being the silly little guy he was, he loved peek-a-boo and hide and seek. He would often put his "a bree" on his head and walk around having no idea where he was going. He would pull it off and would be smiling from ear to ear like he was playing a trick on you and was hiding. Like any little guy, he thought if he couldn't see you, then you couldn't see him. He had no idea we could all see the silly little guy in the middle of the room with his "a bree" on his head. Hide and seek was pretty fun too. He would run into a room, slam the door shut and wait for you to come get him. He couldn't open the door so he would wait patiently on the other side for you to come. And it never failed, you would open the door and there he would be smiling up at you laughing like he had been hiding there for hours.
Like we had said earlier, Trey was always just so eager to help and please everyone. If he was done with a toy or didn't want to play with one that was out, he would put it exactly where it belonged. He was better at cleaning up at 18 months than Kellen is today. He would also always want to help Kellen out when he was on the potty. He would go into the bathroom and bring Kellen toys while he was sitting on the potty. He wound up putting a lot of those toys in the toilet somehow instead of giving them to Kellen. He also always tried to make sure Kellen had toilet paper and would often unroll an entire roll before either one of us could get to him. Whenever Kellen was in timeout, Trey would try and go keep him company. Kellen would yell, "I can't play Trey, I'm in timeout!" But Trey would sit right down next to his big brother. Such a good hearted little guy, he had a heart of gold. He just always wanted everyone to be happy, smiling just like him.
It was impossible to get any "house work" done when Trey was around. When he was awake, it was play time!! So many times we would try to clean up or vacuum and failed because Trey would always suck you back into some game or playing with some toy. If you ever tried to vacuum with him in the room he would shut the vacuum off. When you turned around to see what had happened, there would be Trey standing there smiling, again thinking he had played the best trick in the world on you. He also loved his blue, orange and silver Nike sneakers. We always made it a habit of taking our shoes off when we came into the house to cut down on dirt and germs so the house would be cleaner when Trey had low counts. But if anyone ever did slip into the house with his or her shoes on, Trey would make a run for his and had to have them on so he could show them off to whomever was visiting. Even mention the basement and he would go running for the basement door because the basement meant two things.......his swing and basketball. We have a swing hanging from our basement ceiling and Trey would spend hours in it. By far his favorite toy and his favorite thing in the world. He also always loved to pick up the basketballs down there and try to shoot them at the hoop like Kellen. I don"t think he ever made one on his own but that never stopped him from trying. He loved to dance to his favorite song, "Toot, Toot, Chugga, Chugga Big Red Car" or any Wiggles song. He loved to play with legos and blocks and any tower you would build he would send it crashing to the ground. He would wait for you to build it nice and high and when he thought it was high enough he would knock it down. Just another one of his tricks.
We could go on for hours and pages. We know what we've written here will never do Trey justice. Trey's last hours where spent asleep with Mommy and Daddy holding him and telling one another Trey stories. We laughed, we cried but in the end, Trey always brings a smile to our faces. That alone would be enough for him--a silly little guy with the purest heart you will ever find. Trey never stopped smiling when he was on an amusement park ride. Well to him, life must have been a beautiful ride--because he never stopped smiling. As we said earlier, in his mind and our hearts, he had no idea his life was different or extraordinary. We will try to never ask ourselves "what if?" or "what would it be like today?" What would Trey be like today on his 16th birthday? What if Trey were going to the prom today or graduating today or getting his first hit or making his first basket. This may be easier said than done but we will always cherish Trey's memory, look back on who he was, not what he could have been. He was just a little boy with big, bright blue eyes and loads and loads of heart and energy enjoying every single moment of his 22 months and 17 days. He was a beautiful little boy in every way. A little boy who never stopped smiling, laughing and loving. We will always miss our little Trey Babe, we will always love him and he will forever be in our hearts.
Please stop by the photo album to see some new pictures of Trey and stay tuned as we are going to try to make Trey's video accessible through this site. We want to take the opportunity to thank everyone for all they have done for us. It would be impossible to name everyone so we won't. You will never know how much all the kindness, compassion, and concern has meant to us. We thank you all from the bottom of our hearts. And we ask one last thing of you all. Please do not forget about Trey and the lessons he has taught us all. Please do not forget that every day a new child is diagnosed with cancer. Never forget the battle that Trey fought and so many others are fighting now. In Trey's memory, please continue to support childhood cancer research, not just this year but for all the years to come until a cure can be found and another child doesn't have to miss out on a beautiful lifetime ahead of them. Please honor Trey and make him a part of the cure. Please continue to pray for all the little ones battling for their lives.
With Love,
The Davis Family
Read Journal History
Hospital Information: Children's Hospital of Philadelphia (CHOP)
34th Street and Civic Center Boulevard
Philadelphia, PA 19104
215-590-1000
Links: http://www.caringbridge.org/fl/easton Our buddy down in FLA who is also battling CPC.
http://www.caringbridge.org/md/taliapleasant Little Talia in Maryland with the same tumors as Trey.
http://vimeo.com/22898712 Trey's video. Turn up your volume and enjoy. 15 minutes long.
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