Skylar Elizabeth

imikimi - Customize Your World




Hi! My name is Skylar. When I was 4 months old I was diagnosed with spinal muscular atrophy type 1. I was given 8 months to live but I turned seven years old on June 3rd, 2007.
My Mommy decided to start this journal so you could keep up with my progress or if I am sick you could find out how I am feeling. Please drop my family a note and let them know you stopped by.



You could learn more about SMA at SMA Support

You could visit my SMA friends at Our SMA Angels

Click here to see lots of pictures of me:


Also meet my Caringbridge friends:
Jackson

Aaron

Gooch

MJ

Tabby Paige

Lily

Lance

Kalair



Have a great day,
and remember to
PRAY FOR A CURE IN 2008!!!



~In My Perfect Child
As my daughter was born, I wanted her to be perfect.
When she was a baby, I wanted her to smile and to be content
Playing with her toys.
I wanted her to be happy and to laugh continually instead
Of crying and being demanding. I wanted her to see
the beautiful side of life.
As she grew older. I wanted her to be giving instead of selfish.
I wanted her to skip the terrible twos.
I wanted her to stay innocent forever.
As she became a teenager, I wanted her to be obedient and not
Rebellious, mannerly and not mouthy. I wanted her to be gentle,
Kindhearted, and full of love.
"Oh God, give me a child like this," was often my prayer.
One day He did.
Some call her handicapped…I call her perfect!








My Daughter's Eyes~

In my daughter's eyes I am a hero
I am strong and wise and I know no fear
But the truth is plain to see, she was sent to rescue me
I see who I want to be
In my daughter's eyes

In my daughter's eyes everyone is equal
Darkness turns to light and the world is at peace
This miracle God gave to me, gives me strength when I am weak, I find
reason to believe in my daughter's eyes.

And when she wraps her hand around my finger
Oh it puts a smile in heart
Everything becomes a little clearer
I realize what life is all about

It's hanging on when your heart has had enough
It's giving more when you feel like giving up
I've seen the light, it's in my daughter's eyes

In my daughter's eyes I can see the future
A reflection of who I am and what will be
Though she'll grow and someday leave, maybe raise a family
When I'm gone I hope you see, how happy you made me
For I'll be there, In my daughter's eyes
















You're listening to: Rainbow Connection sung by Kermit










My birthday is in:









My little brother, Daniel, was diagnosed with pulmonary stenosis and long Q-T. These are conditions that affect his heart. Mommy decided to make Daniel his own CaringBridge website so he didn't have to share the girly background with me! Anyway, please visit Daniel's Website!


Daniel and me









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and let me know you came to visit me...






Aww...my baby brother is giving me a kiss!



Christmas 2006


Our family

E-mail Author: SES6300@aol.com