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Journal

Friday, April 3, 2009 11:32 AM CDT

Where to start... OH! SORRY for the LAX in updates.. busy yes, I know excuses excuses, so here is the BIG NEWS... Hannah will turn 9 years old April 11, 2009 and on April 6th she will have her STORY told on nation cable network Discovery Health on the show Mystery Diagnosis at 10 PM. Please if anyone comes here still (I hope..) watch learn and gather information as well as help us raise awareness on Mosaic Down Syndrome.

The house is STILL under remodeling.. (TYE PENNINGTON WHERE ARE YOU? HELP!!!!!) Blake is now 17 and thinks he is 18..OH brother let me count the grays..... Hannah is doing well and will continue with her neurologist in May to try and find out what is going on with these abnormal EEG's, headaches and other 'minor' issues. I am still finishing up microbiolgy working on my nursing degree and trying to find a school to continue my clinicals with! if CCBC won't have me as a 4.0 GPA hard working student then I will go elsewhere! I will try and keep updating here however I have a facebook page so you may find me there updating instead...

Since Hannah has done so well and reached her 5 year milestone of uncomplicated remission and is now considered "cured" PTL!! I have not been as diligent in updating here. like so many before us and after us on caring bridge they have gone thorugh so many changes here and with the kids doing better and losing touch with those we followed for one reason or another (child is better, could no longer write about ordeals, sadly child earned their angel wings, just got too busy and left caring bridge etc..) I know Excuses and we all want to keep in touch good or bad we just want to let others know we are still here for them now. without caring bridge way back when Hannah was diagnosed and with my friend Kim Crisi (we went to Highschool together) I would have been lost, this community pulls together and information shared is a blessing.

I am still with my boyfriend who I went to highschool with (who knew!) we take things one day at a time. his schedule my schedule racing schedule kids schedules..... need we say more. I know excises. I come here for prayers you rally I come here for donations to my causes and again you rally, so where have I been for you... forgive my lax in updates and visits. my lists have dwindled and things have changed on my pc and the cyber world some sites have been lost and I cannot remember how to find them again.... I am a great aunt THREE times now.. OH I am getting old..er! two nephews, Eli and Chandler and a beautiful Niece "eve" evelynne Joanne (Hope I spelled it right?). OK stop for a while and let me catch my breath... trying to keep my memory straight and remember names hard time with my nieces and nephews now the great ones are coming along....

Have a Blessed Easter! Please pray for those newly diagnosed, in treatments, in remission, having a BMT or healing from one and those families who now have angels or are watching their loved ones grow their wings. and those who are in the military fighting for our freedom. Holly

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