LUKE E. RONCO

Welcome to Luke's Web Page. Luke was diagnosed with a hypothalamic optic chiasmic pilocytic astrocytoma on May 15, 2002. Forever our lives are changed. This site is provided to keep people updated about our Luke's condition, treatment, and care. We would love to hear from you all and thanks for your continued love and prayers.
Please visit our Foundation website: www.PCFLV.org to see what we are working on to help children with cancer and their families in our area.

Journal

Friday, June 26, 2009 12:38 AM CDT

Today is the MRI and it is a little later than usual and we are still not done. Our appointment was later due to younger kids this morning, plus Luke did make another attempt to do it awake and although unsuccessful, I am proud for him trying. I think he was more upset with himself that he kept moving than I was. They just gave him GA and he is in the machine now.

Maybe next time he can do it awake...we will keep praying.

Results are next week and my plan is to just not think about it till then. He is feeling good and hasten I to say, I think he lost 1 1/2 pounds. Not much considering he fasted today but heh, every bit counts.

We are working on better eating and more activity and some days of course that is easier than others. But we have big plans at PEZAMANIA in July and Camp and lots of other fun. SO we press on and more excitement and fun ahead. Of course Luke still thinks everything is boring but that is just Luke!

The nurse at MRI calls him PEZ and he thinks that is so cute. While he was a little drunk with meds she said Luke that is why I love you and he said, RIGHT back at you!

It was so sweet.

Today I was thinking about all the MRIs we have experienced. All the days we have sat and waited holding our breath and all the good, bad and stable. It is an amazing journey although I can honestly say that 7 years later I am calm. Of course next week I will again wait to hear good, bad or stable but I think the past 7 years have helped me take it all with open ears and thought. After all, it is what it is and when we know, we make the decisions and press forward.

Lots of contact with families, those that thrive and those that lose their battle, has reminded me the journey is a long one and it is part of our life. I say brain tumor like I say pizza, we talk of meds and tests like most speak of tv and radio. Nothing surprises us much anymore and Luke has taught me to just keep moving.

We thought it amazing to hear a 3 year old speak of chemotherapy like most speak of a toy or a food. 7 years later I am still in awe to hear him tell the tech of his drug allergies, his contact allergies and what happens when "you don't read the chart". He cracks me up.

OUr kids grow up too quick but what is the choice.

Tomorrow he has a birthday party to go to and I am so happy for him. He has not spent any time with his friends since school ended and this is the perfect therapy for Luke.

More later. Fingers crossed. Calm and peaceful.

Nicole

Hospital Information:

Home Address: RONCO

Whitehall PA 18052

Links:

E-mail Author: njronco@psualum.com

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