First Annual Pediatric Brain Tumor Sibling Day

Kyle Daniel Kerpan Foundation

The Kyle Daniel Kerpan Foundation is named for, and has been formed in memory of our son, Kyle. Kyle battled brain tumors and related disease symptoms from diagnosis at age 2 until he lost his battle at the age of 11. During the time of his diagnosis, my husband, myself and Kyle's twin sister Tessa fought that battle along with him. What we learned from personal experience in working with Kyle and other patients, families and friends of patients and the medical community shapes this foundation and the activities that will be its focus. Our goal is to take what we have learned and, working with others, use this knowledge and experience to enrich and enhance the quality of life of other pediatric brain tumor patients and their families.

My dream is that someday Kyle's foundation will provide a supportive, calming nurturing place where children with brain tumors and their parents and siblings can come to find respite, resources and programs to reduce stress and enhance their quality of life. A place where they can be accepted just the way they are; free of all the constraints and all the unknowns they are forced to live with.

The Kyle Daniel Kerpan Foundation has 501(c)(3)tax-exempt approval from the IRS. Contributions are deductible under Section 170 of the Internal Revenue Code.

Donations can be mailed to:
Kyle Daniel Kerpan Foundation
826 Pine Tree Rd.
Lafayette Hill, Pa. 19444

Feel peace,
Joan




www.kylespeace.org

Journal

Monday, May 9, 2011 8:07 AM CDT

Today we honor our “other” children. We marvel at their strength, their silent acceptance of the life they have been given. We pray they will understand. We mourn each precious moment we are apart and cherish each one together. We love them more than life itself and worry each time we are unable to tell them. It is the blessing of their lives that sustains us.

wear their favorite colors today and light a candle tonight for each other...

Read Journal History

Hospital Information:

In Peace and Calm

Links:

E-mail Author: kerpana@verizon.net

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.