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Hi there it's been so long I hope Jared is still doing good, this is Melissa Brianna Dumenigo's mom you used to post a lot on her CaringBridge site. I haven't updated the site in years, but she is still doing amazing she's now 12 and in the 6th grade. If you would like to chat or catch up you can find me on FB Melissa Cabe or trying using my email to find me mommyofone26@gmail.com Take Care
Melissa
Vancouver, WA USA - Wednesday, January 7, 2015 0:22 AM CST

thinking of you.
david Melton <DMelton321@yahoo.com>
- Tuesday, July 30, 2013 12:11 AM CDT

Thinking of you.
David Melton <DMelton321@yahoo.com>
- Saturday, March 9, 2013 2:24 PM CST

thinking of you.
David Melton <Dmelton321@yahoo.com>
- Tuesday, May 10, 2011 11:57 AM CDT

thinking of you.
David Melton <Dmelton321@yahoo.com>
- Wednesday, April 20, 2011 10:17 AM CDT

thinking of you.
david Melton <DMelton321@yahoo.com>
- Friday, October 1, 2010 11:49 AM CDT

thinking of you
David Melton <DMelton321@yahoo.com>
- Tuesday, June 22, 2010 11:13 AM CDT

Happy birthday Jared!

www.caringbridge.org/al/mamieadams
Mamie's Daddy
Huntsville, AL - Monday, June 7, 2010 9:19 PM CDT

Thinking of you.
David Melton <Dmelton321@yahoo.com>
- Tuesday, April 20, 2010 11:07 AM CDT

Dear Strayers,
I havent written you all a note, for way too long.Please
forgive me? All that matters is what
I read! My Prayers are"a given".Please know that has always Been true.
Peace,karen
Karen <rhkkane@comcast.net>
Irwin, PA ~ USA ~ - Saturday, February 13, 2010 7:50 PM CST

Thinking of you.
David Melton <DMelton321@yahoo.com>
- Saturday, February 6, 2010 3:02 PM CST

oh Connie, this is the most wonderful news one could possibly hope for for your little guy to have no evidence of the disease!
You have been truely blessed, I root for all your happiness in the world with you and your family and especially for your little man. He's such a cutie!
Heather McGowan Urban <hurban70@aol.com>
Carlisle, PA 17015 - Saturday, December 12, 2009 7:15 PM CST

Praying for you. Glad all is well at your end. Keep the faith.
David Melton <DMelton321@yahoo.com>
- Saturday, November 14, 2009 2:58 PM CST

Oh my goodness! I had lost Jared's website. Saw your comment to Donna Ludwinski (on Facebook) and finally found you again!!! (I'm sure it's been at least a year....have a new computer!)

Anyway, SO glad to see that things are going well for Jared and all of you.

Keeping you in my prayers.
Roxann <horsesetc@msn.com>
Audubon, MN USA - Friday, October 16, 2009 10:17 PM CDT

Thinking of you.
David Melton <DMelton321@yahoo.com>
- Thursday, October 15, 2009 11:39 AM CDT

Dropping in to say hello
David Melton <DMelton321@yahoo.com>
- Wednesday, September 30, 2009 2:37 PM CDT

thinking of you.
david Melton <Dmelton321@yahoo.com>
- Wednesday, September 9, 2009 2:58 PM CDT

thinking of you.
David Melton <DMelton321@yahoo.com>
- Wednesday, August 5, 2009 1:59 PM CDT

thinking of you
David Melton <DMelton321@yahoo.com>
- Saturday, July 18, 2009 1:05 PM CDT

Six years. Wow. We are right behind you coming up on 6 in September.
Congratulations. I hope you have a fun filled day on this very important anniversary~ Thinking of Kim and Dave today also. Not everyone has been as lucky as our kids. I sure hope they come up with something fast for this devastating disease! God Bless, Love, Ellen
http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Marstons Mills, Cape Cod, MA United States - Thursday, July 16, 2009 6:16 AM CDT

Way to go, Jared! You have such an amazing Mommy, but I'm sure you already knew that. Enjoy today, and every day!

Hugs & prayers -

Amy, Rick, ^^Arden^^, Grayson, & Baby Bucher #3
Amy Bucher <rabucher99@yahoo.com>
Jamison, PA USA - Wednesday, July 15, 2009 7:21 AM CDT

thinking of you
David Melton <DMelton321@yahoo.com>
- Monday, July 13, 2009 10:55 AM CDT

thinking of you.
david Melton <Dmelton321@yahoo.com>
- Tuesday, June 30, 2009 11:22 AM CDT

thinking of you Jared. www.groups.yahoo.com/group/tenderlovingprayers
David Melton <DMelton321@yahoo.com>
- Thursday, June 25, 2009 11:27 AM CDT

Happy Birthday Jared! Enjoy your summer vacation!
Love, Ellen and the kids, Scott A.-10, Kathleen, Sean and Heather-6
http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Marstons Mills, Cape Cod, MA United States - Monday, June 8, 2009 10:24 PM CDT

Happy Birthday Jared!!!!
Carolyn Wing grandma to Laura Stage IV neuroblastoma carepages.com page name LauraVDB <carolyn_wing@yahoo.com>
Carson City, MI - Monday, June 8, 2009 10:14 PM CDT

Happy birthday Jared!

I don't know how you let that mailbox get the drop on you, but I'm glad you had your helmet. Battle scars on the head are pretty cool (unless your hair covers them) but it's not worth risking a brain injury. Anyway, cuts on the scalp bleed so much that it's almost impossible to explain to your mother how they happened. (I know that from experience. What's so hard to understand about the kid who was standing on your back trying to pound a pole into the ground for a badmitten net dropping the brick? Grownups don't know how to listen, I guess.)

Praying for Tanner and his family.

www.caringbridge.org/al/mamieadams
Mamie's Daddy
Huntsville, AL USA - Sunday, June 7, 2009 10:31 PM CDT

Wow Connie I can't believe it's been so long, sorry I haven't stopped by Jared's page. He looks great, and I'm so glad he's winning his battle against NB. Brianna is still doing good as well, she's such a happy little girl. She's just finishing up Kindergarten, and she's taking ballet as well. Well anyways take care, and stop by when you can. Will be adding some new pics soon, the page sure needs it lol.
Melissa Dumenigo (Brianna's mom http://www.caringbridge.org/wa/briannamarie/) <mommyofone26@gmail.com>
Vancouver, WA USA - Thursday, May 14, 2009 1:20 PM CDT

thinking of you.
david Melton <Dmelton321@yahoo.com>
- Wednesday, April 29, 2009 2:54 PM CDT

Hello Strayer family,
I saw your link on Brandon Koontz's page and I felt I had to let you know what a special family you are. May you continue to be blessed in your fight against NB.
Dawn Ludwick <ludwickd@davie.k12.nc.us>
Mocksville, nc - Wednesday, April 8, 2009 10:40 AM CDT

Hi Strayer Family,

Thank you so much for signing Juliett's guestbook. Congratulations to JARED and your family as well! It is so awesome to hear from survivors, and they truly are!

Take care and hope to keep in touch through caringbridge...

www.caringbridge.org/la/juliett
JACKIE JOHNSTON <jjohnston826@yahoo.com>
LA - Monday, April 6, 2009 9:09 AM CDT

I am sitting here at CHOP reading the card that you guys sent. I cannot believe I am staring at the same Jared who used to love to soak me when he was in the tub! And of course the one who used to say I was his girlfriend and then, like you wrote, denied it every time. Jared you look awesome! I am so happy to see you doing so well. Mom and Dad miss you guys! Glad you are well! Please continue to keep us updated and I will check this site now that I have access. Take care!
Kim Gross <kgrossrn@aol.com>
Phila, PA - Tuesday, March 31, 2009 5:56 PM CDT

Hi Strayer family,
Just viewed your slideshow and it was very inspiring. My daughter Brinsley, is also a Stage IV Neuroblastoma survivor. She was diagnosed in February of 2003, two months before her fourth birthday. Dr. Grupp was also her doctor and treatment for her was identical to Jared's. I'm surprised we didn't meet somewhere along the way. Anyway, God Bless your family and give Jared a big hug, from another mother who worries nonstop. We are also lifting Tanner and his family up in our prayers, and pray that he too will join the list of survivors. Since we don't see Dr. Grupp on a regular basis anymore (she only follows up with her local oncologist for checkups now), I just found out about his diagnosis. We definitley want to join your team and walk in October. I tried to sign up but had some problems doing so, but will keep trying.
Becky Blair <brucebecky@comcast.net>
Howard, Pa USA - Thursday, March 26, 2009 1:55 PM CDT

Dr. Grupp is also my son Dominic's oncologist in Philly for Neuroblastoma. We have traveled back and forth from Buffalo to CHOP to be under his care many, many times. I can also say that Dr. Grupp is great and everybody give him the support he needs as he has done so much for families. My son is at the 4yr point from being diagnosed with stage 4 neuroblastoma tomorrow the 26th and we owe a lot his health to him.
Tony Tringali <atringali@roadrunner.com>
Williamsville, NY US - Wednesday, March 25, 2009 4:37 PM CDT

Thought you might like to tie in Dr. Grupp's passion for fighting neuroblastoma and honor him directly with his personal battle by contacting Alex's Lemonade. You can designate the funds to go to leukemia, and Alex's Lemonade is so directly affiliated with CHOP. Just thought it might be a perfect "connect".
randy <ranweiss@comcast.net>
- Friday, March 20, 2009 6:10 PM CDT

Hi Connie wow you are an amazing woman. I couldnt help but cry when I cliked on Jareds page tonight. What a beautiful tribute.
Caroline Dohrman <dohrman13@msn.com>
Cresco, Pa Monroe - Thursday, March 19, 2009 10:24 PM CDT

We will do everything we can to honor Dr.Grupp, he has been much more than a great doctor to our family.
Thank you for doing this.

Tanya, mom to Tara

http://www.caringbridge.org/visit/milenkovictara
Tanya Miletic <t_miletic@yahoo.com>
Philadelphia, PA USA - Thursday, March 19, 2009 10:24 PM CDT

Such a moving tribute to our great doc, Connie. We'll help in whatever way we can. Great idea!

All best,

Amy, Rick, ^^Arden^^ & Grayson
Amy Bucher
New London Township, PA USA - Thursday, March 19, 2009 7:02 AM CDT

Connie I just read your update. It was great of you to add a request for prayer for Tanner on Jareds page. Thank you so much for that. He definately needs it right now. We will find out more information on his scans tomorrow 3/18. I do know that more cancer was found however. It was a minimal amount more but still not fun to hear that kind of news. Great to hear that Jared is still in remission. Congratulations, hope to get that news in 5 years from now for the both of us. God Bless all of you!
Caroline Dohrman <dohrman13@msn.com>
- Tuesday, March 17, 2009 8:23 PM CDT

Team Strayer
Your story always gives me a lift. Thanks for continuing to update. Angela is 3 years post transplant now and is doing great. Do you worry about not worrying enough? Does it get any easier? I am so happy for you, and I agree we are the lucky few!

Team Hill
www.caringbridge.org/visit/angelahill

Angela's Mom (Holly Hill)
Winnipeg, Manitoba Canada - Tuesday, March 17, 2009 0:02 AM CDT

Congratulations! We are so happy for you guys. It was great to see you again at CHOP. Jared is growing so much! Take care and keep in touch!

www.caringbridge.org/nc/brandonk

Wendy Koontz <brandon_boogie@yahoo.com>
Cooleemee, NC I crack my self up - Thursday, March 12, 2009 5:20 PM CDT

5 years! Wonderful news. We're so happy for you. Laura www.caringbridge.org/visit/jakmortensen
Laura Mortensen <mort@stoutbytes.com>
Butte, MT USA - Thursday, March 12, 2009 3:50 PM CDT

Congratulations on clear scans today. I'm so happy! Have safe travels home and I'll talk to you soon!

Candace
www.caringbridge.org/co/benjaminmason
Candace Mason <candacemas@aol.com>
East Lansing, MI USA - Wednesday, March 11, 2009 6:17 PM CDT

Hooray, Hooray, us too! Love, Ellen
http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Cape Cod, MA United States - Tuesday, March 10, 2009 11:14 PM CDT

I found the site, it is so awesome, very informative, I am so very thankful that you got good news today. Way to show them Jared. You are an incredible family! Very inspirational. You all are very strong. God bless you all, and may he continue for always. Love, Jamie Weitoish
Jamie Weitoish <scootjw@hotmail.com>
Carlisle, PA United States - Tuesday, March 10, 2009 9:44 PM CDT

I've been thinking about you guys all day! Holding Jared up in prayer even as I type this!
Judy Richards <Djrichards@comcast.net>
Quarryville, Pa USA - Tuesday, March 10, 2009 1:58 PM CDT

We are all praying for great news from the scan. We are sending our positive energy to you!
Jen Graves Bandura
- Tuesday, March 10, 2009 6:49 AM CDT

Everytime I visit your site, I get the goose bumps and get tears in my eyes. Jared's story is such an inspiration to everyone, and I just hope and pray that Sam will be in your shoes 4 years down the road. Good luck with your last set of scans ever. I can't even imagine the feeling of elation that he has pretty much conquered this disease. Truly incredible! I wish we were going to be at the RMH only because I would love to meet you. What a journey...what a hero!
Bronwyn Philips
Bronwyn Philips <bandiphilips@yahoo.com>
Chesapeake, VA USA - Monday, March 9, 2009 3:17 PM CDT

To The Strayer family.... Please know that all of you are in our prayers that you get GREAT news from the scans Jared is having Tuesday & Wednesday. GOOD LUCK and can't wait to read a journal entry about it.
Trish Prosser <prossertrish@yahoo.com>
Carlisle, PA USA - Sunday, March 8, 2009 10:13 PM CDT

Wow Jared, you look great up there with your medal! I'll bet you are going to have many fun years of wrestling!!!
Here's to your LAST set of scans ever. We are praying for great results for you, you are one of our heroes!

Love,
Jennifer Click and Carolyn and Evan Coveney <jsclick@gmail.com>
Springfield, VA - Sunday, March 8, 2009 8:41 PM CDT

Dear Strayer family,

My name is Kevin Curry. I danced in THON 2009 just this past weekend, and I am grateful that you shared your story with me through dancer mail. Reading about your battle, and seeing how you are overcoming it gave me a strong urge to finish dancing. Your story is truly inspiring and again I thank you so much for sharing with me. I hope to dance again next year and if so I would love to meet you there or really at any of the pre-THON events throughout the year. I danced, and will always dance, for Brandon Loose. And I will always dance to find a cure for nueroblastoma and all forms of pediatric cancer. So Best of Luck in the upcoming months and may God bless your family. Dream Forward.
Kevin Curry <kmc5179@psu.edu>
State College, PA USA - Tuesday, February 24, 2009 1:35 PM CST

WoooHooo Jared!!! What a cool trophy -- you certainly are a champion! I know this is only one of many big victories in your miraculous life! Hope you celebrated that big win!
Love,
Jen, Carolyn and Evan
Jennifer Click and Carolyn and Evan Coveney <jsclick@gmail.com>
Springfield, VA - Friday, February 20, 2009 6:12 PM CST

Happy Birthday Kirsten, Have fun at THON.
Love, Ellen
http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Cape Cod, MA United States - Thursday, February 19, 2009 11:36 PM CST

Hello Jared:
My 2 yr old nephew, Andrew Krolczyk, was also diagnosed with Neuroblastoma, N-MYC amplified, unfavorable pathology (Stage 3). Andrew's horrible nightmare began August 2008 and he is currently undergoing treatment at Sloan. It was encouraging to read about you and your journey. You are such a brave, strong warrior---like all the other children facing this horrible diagnosis. I will pray for you and your continued success as well as all the other warriors.
God Bless
http://www.caringbridge.org/visit/andrewkrolczyk
Denise Mecca <sdmecca@msn.com>
Buffalo, NY - Wednesday, January 28, 2009 12:06 AM CST

Hi Connie, we may try to get down your way for the Alex's Lemonade thing this summer. We would love to see you on Cape Cod too! Great action photo of the wrestling... Wow!
God Bless, Love, Ellen
http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Tuesday, January 20, 2009 8:38 PM CST

Hey Jared and Kirsten! I am also in THON and am one of your Penn Pals! Your letter was awesome and we loved hearing all about you, Kirsten! We are really excited to hear more about you, and see you THON weekend!

Fran Roach <fcr5002@psu.edu>
Penn State, PA USA - Tuesday, January 20, 2009 9:16 AM CST

Hey Jared and Kirsten - Just wanted to say I hope to meet you guys THON weekend! I'm on the Special Events team that is Penn Pals with you, Kirsten! Thanks for the letter - we read it at our meeting last week!

See you guys in a month!? Hope so!!
Lydia Krefta
State College, PA USA - Monday, January 19, 2009 4:56 PM CST

Great job, Jared. It looks like wrestling is your thing!
I'm glad everything is going well. Thank you for checking up on us. I am thinking I should update more often.

Hope you're getting some snow.
Candace and Benjamin
www.caringbridge.org/co/benjaminmason
Candace Mason <candacemas@aol.com>
East Lansing, MI USA - Tuesday, January 13, 2009 9:59 AM CST

Way to go Jared! Congratuations on your big win! I've always known you were a tough kid. Enjoy that snow...
Katie Stone <kstone6@gmu.edu>
Washington DC, USA - Saturday, January 10, 2009 11:52 PM CST

Connie,

After your post on Lukas' site, I needed to come over and "check on you"! I think I have an answer to your question.... When do you stop worrying? I think it will be when Lukas is 85 years NED! As his grandma, I worry about him anyway. This cancer gives an added layer of concern.

Please let Jared know that he is one of my heroes! I know far too many angels, and far too few survivors. We did meet an 18-year survivor at our walk in March. That was a true blessing! And you know what? I am sure her mom still worries over everything, too!

God bless the Strayer family in 2009 and beyond.

Love,
Grandma Jena
www.caringbridge.org/visit/lukasmacdonnell
www.ANewYearOfHope.org
Jena Perkins <sgp_warrior_mom@yahoo.com>
Grand Prairie, TX USA - Sunday, January 4, 2009 3:02 AM CST

Hey Connie!!! You have every right to freak out! You are a cancer mom and unfortunately, you will never be without the fear of relapse. That's only one of the unfair things about this nasty disease. I feel your fear and understand it! You also know that scan time is coming in a few months and that is nerve wracking in itself... Remember when 3 months between scans seemed like forever?? When the fear grabs you, fight back. Mentally take yourself back to how far Jared and the entire family has come. You guys are awesome and I am especially grateful to have you in my corner as I continue my journey. Just remember, I'm here for you too and I always will be. Love ya Lady!
Kimberly Mease <kdknd@comcast.net>
Lancaster, PA USA - Friday, January 2, 2009 6:59 PM CST

Oh I am right there with you with the "freaking out". Anytime Nicholas is "off" for a few days or complains about a specific pain....IT DRIVES ME NUTS!!!!! I don't know that we will ever NOT worry about relapse but is does get easier in the day to day area....it just flairs up with any pain or lingering cold issues. I am sure Jared is fine and just suffering from the yucky bug that is going around!! Hope you all had a great Christmas and have a happy and HEALTHY 2009!!!
Love, Heather
www.caringbridge.org/nc/nicholas
Heather Black <heatherblack99@yahoo.cm>
Bolivia, nc - Wednesday, December 31, 2008 9:28 PM CST

Merry Christmas Everyone! Wow, what a generous tooth fairy you have! Don't tell my kids! I hope Santa Claus was extra good to you. God Bless, Love, Ellen and the kids..Scott A., Kathleen, Sean and Heather
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma United States - Friday, December 26, 2008 1:02 AM CST

Merry Christmas to the Strayer Family!!!!!! I hope you have a wonderful holiday season!!!

Many hugs, much hope, prayers and support too...
Karen, Kate and the Jacobs crew
Karen Hohertz-Jacobs
Prior Lake, MN - Tuesday, December 23, 2008 4:06 PM CST

Thank you so much for the lovely email. It is so wonderful to hear that Jared and your entire family are doing well. He is such a handsome young man. Stories such as yours are so inspirational. Have a healthy and happy holiday season.
Janice Heintzelman (Jared's dietitian at Hershey)
Dillsburg, PA USA - Tuesday, December 23, 2008 12:29 AM CST

Jared,

You are an inspiration to me. My grandson Lukas was diagnosed with Stage IV Neuroblastoma in NOvember 2007. He is currently NED. I am so glad to hear your wonderful story, because it keeps me hopeful for Lukas' continued good results!

May God continue to bless you, and may your family have a very blessed Christmas and a wonderful cancer-free New Year!

Love,
Grandma Jena
www.caringbridge.org/visit/lukasmacdonnell
www.ANewYearOfHope.org
Jena Perkins <sgp_warrior_mom@yahoo.com>
Grand Prairie, TX USA - Sunday, December 21, 2008 10:24 PM CST

Terrific slideshow! What an inspiring story, too. You're a beautiful and blessed family. Prayers and warm wishes coming your way from Virginia.
Merry Christmas
Bruner Family
Stafford, va 22554 - Saturday, December 20, 2008 8:15 PM CST

It was great talking to you at recent 4 Diamonds Stuff. What an inspiring place to visit. We're glad both of your kids are doing so well. We'll continue to pray for good health for your family. Take care and we'll see you at THON!
Carla Vicidomini <dcvicidomini@yahoo.com>
Lancaster, PA USA - Thursday, December 18, 2008 9:48 PM CST

Hey Connie and Strayer family,

Like Stephanie Bailey, I loved the slide show and your music choice. God has been so good and I am thankful our 2 boys are NED. I wish all kids could be so lucky, so blessed...I know we are not out of the woods yet but we are on the right path. Praise God Jared continues to do so well! I'd love to phone you sometime if it's ok...e-mail me your number and let me know a good time...b4 or after the holidays, etc. I just want ALL kids to be NED! Have a wonderful Christmas.
Kim Malarkey <kimmalarkey@yahoo.com>
- Sunday, December 14, 2008 8:24 PM CST

I love the slide show, it brought me to tears! Your Jared such a brave boy! You never know what he went through, he looks so amazing! I love the Santa pic! Glad to see you guys are doing great! Have a great Christmas!!!!
Stephanie Bailey <Bbpottstown@aol.com>
Sanatoga, PA - Wednesday, December 10, 2008 7:53 PM CST

Just checking in on you Jared and I'm glad to see you are doing well!! I was your preschool teacher, Ms. Lorie. You have such a sweet family and I hope you all have a very MERRY CHRISTMAS and I hope Santa treats you and Kirsten good (I'm sure he will!!!)
Lorie Green <green52403@embarqmail.com>
Carlisle, PA USA - Tuesday, December 9, 2008 4:39 PM CST

You're our hero, Jared, that kids with cancer can LIVE! I am thankful for that and your mom who supports all of us! Happy Thanksgiving!

Love,
Kim
Kim Malarkey <kimmalarkey@yahoo.com>
- Wednesday, November 26, 2008 8:38 PM CST

GREAT slideshow. Where the heck do you find the time! I hope Jared gets lots of ornaments on his tree! God Bless, Love, Ellen
http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma United States - Friday, November 21, 2008 2:01 AM CST

Hello Jared,
We are new to your site. So glad to hear you continue to be NED. Keep it going buddy. Our sone Nicholas just relapsed from NB Sept 29, 2008. He finished round 2 of chemo and now we have a scan this Tuesday. Come and visit Nicholas' page at www.carepages.com nicholasdefelice

Denise, Brian & Nicholas
Denise DeFelice <desiboo@comcast.net>
Malden, MA USA - Sunday, November 16, 2008 3:34 PM CST

im glad that you are cancer free and for ever we are so happy what you are doing for our kids and neuroblastoma reserch hugs from new york city www.carepages.com alyssa ramos a two time neuroblastoma survivor memorial sloan kettering nyc..
michael ramos <ls420taurus@aol.com>
queens village, ny usa - Saturday, November 15, 2008 6:18 PM CST

Hi Jared and Kirsten!!! Happy Tuesday! Oh I just love hearing about your canning weekend and seeing your pictures! It brings back such wonderful memories! Nothing like having 20 college kids for a sleepover in the basement! - so much fun! I would have to say that that was one of the best times of my life - canning weekends - to be in the company of such amazing young men and women who give of themselves - the future of our world is in good hands, isn't it? And such a fine example they set for the younger folk (well, except for cheating at Apples to Apples!!! hehehehee!). We are getting excited for THON - it's right around the corner - and we'll be staying at Dr. Radio's home again - you know you never need an invitation. Meghan will definitely be coming - Michele is working on being able to come - it's a far ride from Boston - but she doesn't want to miss it.

Joel, if you're reading this, I hope all goes well with your dad - he has a whole new team of prayer warriors storming heaven for him now.

I hope you have a wonderful rest of the week!

love, sylvia xoxo

Sylvia Pituch <smp75@msn.com>
Allentown, PA - Tuesday, November 11, 2008 5:53 AM CST

Love to see those smiling faces! It looks like you had a really successful weekend! Congratulations!!! Hard to believe its been so long since I canned... Wish we could have joined you! We will perhaps have to do breakfast at THON again this year!
Katie Stone and Nick Newell <kstone6@gmu.edu>
Washington, DC USA - Sunday, November 9, 2008 11:37 PM CST

Just checking in on the "normal" family to make sure things are going well. I love the picture!

Hugs from Jackson's Mammaw
http://www.caringbridge.org/visit/jacksonboyd

Kathie Richman
Arlington, TX - Friday, November 7, 2008 7:48 PM CST

Just wanted to say PRAISE and how wonderful it is to hear how you are NED still!! I love it!!
C.O.L.E. prayer team

Rhiann Gates
- Tuesday, November 4, 2008 9:06 PM CST

Hello Connie~
I am very tried but haning in there. Adriana erupted again last night and it was hard getting her back to sleep. Love the photo's. It's so beautiful there. Well have a great rest of your day. Thanks for checking in on us!!
DeAnna, Adriana NB stage IV, and Family <Kam_913@hotmail.com>
- Tuesday, November 4, 2008 3:16 PM CST

Connie,
AWESOME PICTURES - what a beautiful park and since I see the kids in shorts, it must have been beautiful weather too. I wanted to thank you for your kind note on Kate's page - it is a major blessing to us to have someone else rooting for NED who totally understands what we are going through.

Hugs, hope, prayers and support,
Karen, Kate and the Jacobs crew
from (surprise!) warm Minnesota - at least for today and tomorrow (and then back to snow, etc. on Thursday...)
Karen Hohertz-Jacobs
Prior Lake, MN - Sunday, November 2, 2008 8:34 PM CST

Hi Connie!
Now we've found you too! :)
Love the pumpkins - we need to get around to that sometime this week but it's also one year post-treatment scan time...so more to come on that...hopefully all good news.
Hugs, hope, prayers and support,
Karen, Kate and the Jacobs crew
Karen Hohertz-Jacobs
Prior Lake, MN - Sunday, October 26, 2008 9:34 PM CDT

Hi:
I found your page of the NB hope page on PACC....I am writing you to find out more information about your son's NB.....I have a daughter who was diagnosed with stage 2b NB in January of '07. But since the shimada was unfavorable and the n-myc amplified, she was classified high risk and has so far had almost all the treatments available. The last 2 scans came back NED and we are going in for a third follow up scan next week... but I have been looking for people who have survived NB...they are hard to find. So I was very happy to read about your son. and I was wondering about the details of his NB

You can find lots and lots of info on my daughter at
elizabethlee.wordpress.com
martha buell <mjbuell@udel.edu>
- Saturday, October 25, 2008 11:27 AM CDT

thinking of you.
David Melton <DMelton321@yahoo.com>
- Friday, October 24, 2008 1:54 PM CDT

Hi Connie,
It's been awhile since I last left a note. I hope you all are feeling better. It seems those illnesses just go from one person to the next. I'm happy Jared is out playing football and doing regular kid things.

Love,
Candace
www.caringbridge.org/co/benjaminmason
Candace Mason <candacelmason@msn.com>
East Lansing, MI USA - Friday, October 17, 2008 1:33 PM CDT

Hello Connie,
I haven't heard from you in a while so i was just checking in on you guys!! Hope you have a great weekend!
Keeping the Faith
DeAnna, Adriana and family
www.caringbridge.com/visit/adrianagunty

DEANNA LAWSON <Kam_913@hotmail.com>
- Friday, October 17, 2008 11:01 AM CDT

HI Connie, thinking of you guys as you say goodbye to your friend Brandon. Let me know what Kirsten comes up with for a plan.. Scott invented Sean's Troops, army guys that blast cancer cells. We leave army guys for kids when we go to Ronald in NY. They often have a candy dish at the desk. Scott also realized that some kids are NPO and can't have the candy, but on those days they can have toy army guys. I'm so glad that Jared continues to do well.
God Bless, Love, Ellen and the kids
http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Tuesday, October 14, 2008 0:19 AM CDT

Connie,
Thank you for sharing! Thank you for organizing the sandwich sale. Anytime you need help in the fight, please count me in!
Allison Graham <ally7769@yahoo.com>
Mountville, PA USA - Monday, October 13, 2008 7:37 AM CDT

Hi Jared!
My name is Jenna and I came across your site. You are a brave, courageous fighter and such an inspiration. You are an amazing fighter and you will be in my thoughts and prayers.
caringbridge.org/visit/champ291
Jenna <allfighterswin@gmail.com>
Kamloops, BC Canada - Friday, October 10, 2008 2:00 PM CDT

Everyone who has a child with cancer I need your help. Can you please type up a brief, one page paper telling your Childs story and how the diagnoses changed the life of the whole family.

Through a friend of a friend I am going to print each and every story and they will be hand delivered to Oprahs producer in the hopes of getting her to do a show on Childhood Cancer.

People need to know what us parents go through trying to get medications approved and treatments through the insurance company.

How sick our kids are, what one child with cancer does to the whole family, what the siblings have to go through along with what it does emotionally and financially to the family.The side effects our children have to live with the rest of their lives, the secondary cancers some of the kids will get, with no where to turn.

We are now dealing with the horrible side effects of radiation with no relief in sight for my daughter who was treated for EWING'S SARCOMA (bone cancer), but no one cares what happens to our children except the handful of others who are going down the same road as we are.

So please write your story and E-mail it to me at gonikki501@yahoo.com if you can please send a picture of before and after diagnoses if there's space on the page.

Thank you all and hopefully this will be the beginning of Gold ribbons everywhere. Please pass this on to who ever would like to participate. Please have your story in by Oct.19th.

THE GOLD RUSH!
Karen
www.carepages.com - nikkiweinberg

karen <gonikki501@yahoo.com>
- Friday, October 10, 2008 9:14 AM CDT

Connie,
Thank you so much for your notes of encouragement and condolence in Arden's guestbook. We're so saddened by the news about Brandon Loose. His family and friends are in our prayers.

I am so happy Jared continues to do well. We celebrate every child who beats this terrible disease! Wishing you all beautiful, blessed days -

All best & God bless,
Amy, Rick, ^^Arden^^ and Grayson
Amy Bucher <rabucher99@yahoo.com>
New London Twp, PA USA - Tuesday, October 7, 2008 12:55 AM CDT

IM so happy that you are cancer and for ever im new to your site but not to the neuroblastoma world as i have a 5 yr old girl that has beating neuroblastoma twice in less the 3 yrs we are so happy for your guys live life without any regreats. hugs from new york city www.carepages.com visit alyssa ramos a two time neuroblastoma survivor memorial sloan kettering ny....
Michael ramos <ls420taurus@aol.com>
queens village ny , ny usa - Monday, October 6, 2008 4:35 PM CDT

Sending you love and good wishes! Shayla's vision therapy obviously helped her - for the rest of her life. Her 3rd grade state test score just came back. She missed a perfect score out of 500 points, by 5. She continues to read grades above her grade level - VERY DIFFERENT than being below grade level and having a D in reading prior to vision therapy. I wish you all the best!!!
Angela <email@ChristiThomas.com >
Tiffin, oh - Saturday, October 4, 2008 9:28 PM CDT

I love reading the positive stories...it's so wonderful that your March scans were still clear!!! We'll be keeping you in our prayers!
Have a great time reading!! (one of my favorite things to do!!!)
-Chontell, Ray and Ryan

www.caringbridge.org/visit/ryanschrack
Chontell Guerraz <rayandtell@hotmail.com>
Mansfield Center, CT USA - Thursday, September 25, 2008 3:55 PM CDT

Hey Strayers!
Its been so long since we have talked, but I check in on you all often! I am glad you have recovered! Is there any chance that Miss Stone's first name is Kristen? My sister is teaching in that area now and my last name is Stone. Wouldnt that be an odd coincidence!?! Hopefully we can catch up soon! I too, as always, am looking forward to THON!
Katie Stone <kstone6@gmu.edu>
Burke, VA USA - Wednesday, September 24, 2008 8:42 PM CDT

Hi Connie and Jared,
I'm Sam Philip's Grammy and I've been reading your posts on Sam's blog for many months. Thanks so much for your thoughts, prayers, and words of encouragement. Today I had been feeling a little down and I decided to check out a survivor! Wow! Jared looks great and it makes me feel so good hearing about his fantastic recovery.

I'm a teacher and I loved reading about your experiences at the library and with Jared's reading problems. I agree with you completely. The one recommendation that I want to make is that YOU continue to read to both of your children everyday. Some of my best memories with my 4 children are reading long chapter books to them. As they got older and became readers themselves they would sneak the books and read ahead!
Vicki Philips <vlphilips@gmail.com>
Bakersfield, CA USA - Tuesday, September 16, 2008 9:42 PM CDT

Happy Anniversary! (week)
God Bless, Love, Ellen and the kids
http://www.caringbridge.org/ma/seanhanson-Officially 5 years event free!
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Tuesday, September 9, 2008 11:08 PM CDT

Thanks for checking in on our little man and his family. I am so thrilled for Jared. Sounds like he is NED forever! Yea!! (Can''t wait til we get there.) I bet it's great having a normal life now. CONGRATULATIONS, JARED.

Jackson's Mammaw http://www.caringbridge.org/visit/jacksonboyd

P.S. Your kids are adorable!
Kathie Richman
Arlington, TX - Thursday, September 4, 2008 9:34 PM CDT

Thanks for always thinking of us. The start of the school year is tough, but Zachary is looking forward to first grade. I can't believe how big Jared is! He is almost as tall as his sister in the photos. I'm so happy he is doing well and still remains cancer free.

Zachary also loves the Fly Guy books, and we just finished two of them this week! "Shoo Fly Guy" and "There Was an Old Lady Who Swallowed Fly Guy". They crack him up every time.

Anyway, I hope your leg is better soon. Many blessings to you and your family. We'll actually be at Dutch Wonderland, probably for the last time, next week. I'm taking Zach with his little two-year-old cousin. I had won some tickets in a raffle. Lots of love to everyone,
Aimee, mom of twins: Zachary (6) and Angel Kendall (forever 4), www.caringbridge.com/ny/kendall <aimee1@optonline.net>
Long Island, NY 11784 - Sunday, August 31, 2008 11:16 AM CDT

Hi Jared,
It sounds like you are off to a great start this school year. I also have a brother with the same name as you, but his name is spelled differently (Jerod). I've never come across another Jerod with the same spelling. I'm so happy to see how strong and well you are doing after all you went through a few years ago. You help to inspire us through all that my 5 year old son, Sam, has to go through right now. I Hope we can be where you're at in a few years. Keep reading those books! We have so many, we virtually have a library of kids books at home, but we still go to the library. Sam loves The Magic Tree House Series, The Bailey City Monsters series, Andrew Lost series, My Weird School series and the Captain Underpants series the best. Hope you continue to have a great first week at school!
Bronwyn Philips <bandiphilips@yahoo.com>
Chesapeake, VA USA - Thursday, August 28, 2008 4:06 PM CDT

Hey guys, just wanted to send a little note letting you know I'm thinking of you. I didn't realize what you have been through w/Jared. My heart goes out to your family and I will always keep your family in my prayers that you all continue to stay healthy.
Roxanne Swartz
Gardners, PA - Wednesday, August 27, 2008 12:28 AM CDT

Dear Jared,
I surely will be thinking of YOU(& Kirsten),as school begins!
2nd grade for you? ** DOUBLE WOW ** !

I know many kids,your exact age,who dont read "Chapter
books",til mid or end of 2nd grade.Does that help a tiny, little bit?
my tip: try to start everyday by saying:
~~ "YES,I CAN READ & I WILL even~~~> have FUN!" ~~
(I will simply add "reading help",to my prayer list,just for you!)

You remain a ~"Guidling Light",~for me,& many of your
"followers".

Peace,
Karen Kane
Pittsburgh,PA

"kk" <rhkkane@comcast.net>
- Sunday, August 24, 2008 0:05 AM CDT

Connie,
So good of you to sign Ryan's guestbook. Thanks for the well wishes for continued NED status. We hope he follows in Jared's footsteps! My, he is getting big and so handsome - he really looks like a football player even though the game is still a bit of a mystery - at least he did his job! Hope YOU recover quickly and that the kids enjoy school.

Love,
Kim
Kim Malarkey <kimmalarkey@yahoo.com>
- Friday, August 22, 2008 4:04 PM CDT

Hello Strayer family!
Thank you for signing Alexa's guestbook and sending the prayers. I have checked on Jared many,many times and I am so glad to see him thriving and beating NB. Kristen and Jared have fun going back to school! I know your fear with football Connie, we just want them to be kids and have fun, not getting hurt while doing it! I will be sending prayers and positive thoughts on your own health, hey moms can't not get sick, we don't have the time!
Sincerely,
Stephanie mom to alexa
www.caringbridge.org/visit/alexabailey

Stephanie <Bbpottstown@aol.com>
Sanatoga, PA - Tuesday, August 19, 2008 7:59 AM CDT

Thanks for visiting Emmy's page....She is a little girl from my church. We are praying that she has the same results as your Jared......For we know that all is possible with God.

www.caringbridge.org/visit/emmyspicer

Jennifer Morgan <The_Mama_of_MaggieGrace@Hotmail.com>
Asheboro, NC United States - Sunday, August 17, 2008 8:26 PM CDT

It is wonderful to see an NB Stage IV doing so well. Connie, you signed my daughter Sarah's (www.caringbridge.org/ga/sarahw) web page a couple days ago, and I had to come visit Jared's website.
Bob Williams <subobsar@bellsouth.net>
Calhoun, GA USA - Friday, August 15, 2008 3:08 PM CDT

HI Guys, yes summer is flying by here too. I've only been swimming once! (That's crazy for Cape Cod), I'm going to have to work fast to fit it all in. Sorry about the couch time, but it sounds like your making the best of it.. Hi to the kids. Love the football pic Jared! God Bless, Love, Ellen and the kids
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Wednesday, August 13, 2008 3:11 AM CDT

Wow - Connie you rock! I love that you posted our site with the NED. Some things never get old! To answer your question, we were not on the same protocol as Jared. We did A3973... 6 chemos, 1 surgery for tumor resection at chemo 5, 1 SCT, 12 rounds radiation, 6 months accutane. Who cares as long as it continues to work!!!!! Wonderful news on Jared!
Keren Fitzgerald (www.caringbridge.org/visit/colefitzgerald) <kerenfitz@yahoo.com>
Sewell, NJ 08080 - Tuesday, August 12, 2008 8:03 PM CDT

I for one would like to se this page continue because it brings me hope. Hugs and prayers.
Carolyn Wing grandma to Laura Stage IV neuroblastoma carepage LauraVDB <carolyn_wing@yahoo.com>
Carson City, MI - Sunday, August 10, 2008 6:06 PM CDT

Thanks for stopping by Morgan's site and leaving a kind message. Sometimes people who used to read Morgan's page will ask me if I am still updating it. I always say yes but that it is really more of my children than for the public. I, too, want my kids to be able to use it to remember things we did. I hope that someday Morgan is able to go back to it and truly understand just a miracle her life is. I remember when she was first diagnosed I just wanted some proof that it is possible to survive this horrible disease. Hopefully, Jared and Morgan can inspire families who are just starting this long difficult journey.

www.caringbridge-org/nc/morganbarnes
Allison & Morgan Barnes <allisonbarnes@triad.rr.com>
Lewisville, NC - Sunday, August 10, 2008 4:20 PM CDT

It is always encouraging to see a NB survivor living life to the fullest. Jared and Jarrett seem to have a lot in common. My daughter loves school, for Jarrett school is just something to fill the time in between practices!! good luck on the football season.
Lori Tripp (caringbridge/sc/jarrett) <grallygripper@yahoo.com>
Fountian Inn, SC USA - Sunday, August 10, 2008 9:06 AM CDT

Thanks for comming to our site.I just want to say... It does give some of us great hope our children wil make it to where Jared is. It is hard to think that far sometimes but I will never give up. But I also refuse to live my life here on earth without watching my baby girl grow up and become what ever it is she chooses. Please keep in touch. Keeping the Faith DeAnna and Adriana
www.caringbridge.com/visit/adrianagunty

DeAnna, Adriana NB stage IV, and Family <Kam_913@hotmail.com>
Redmond, OR - Friday, August 8, 2008 3:21 PM CDT

Team Strayer

Thanks so much for the updates. Whenever I go to that "dark place" I check on Jared and know that it is possible to beat nb.

Angela is now 5 1/2 years old and 2 1/2 years post transplant. She is doing great. She will start grade one in Sept.

We have lost so many little friends along this journey and it is so heart breaking. I don't think my heart will ever rest, but your family sure helps me go on.

Keep up the great work all of you!

Team Hill
www.caringbridge.org/visit/angelahill

Holly Hill
Canada - Thursday, August 7, 2008 10:48 PM CDT

I saw your posting on Arden's guestbook and wanted to thank you for continuing to post. There are not as many survivor stories as there should be and I am delighted to learn how well your son is doing. Keep on posting! We love the great news!!!!
Kerrie, Mom of Cole
on cb "visit colefitzgerald"
Kerrie Fitzgerald <kerenfitz@yahoo.com>
Sewell, NJ 08080 - Thursday, August 7, 2008 10:33 PM CDT

We just wanted to stop in and say hi....we found your page through another caringbridges page. Congratulations on the scans!!
www.caringbridge.org/visit/ryanschrack
Chontell Guerraz <rayandtell@hotmail.com>
Mansfield Center, CT USA - Thursday, August 7, 2008 1:00 PM CDT

Connie,

I saw your entry in baby Jackson's guestbook. My grandson is also officially a survivor of NB! Lukas was diagnosed at 11 months as a stage 4 metastatic NB patient. I agree with Kathie, Jackson's grandmother. My only real exposure so far has been children who are undergoing treatments, who have relapsed, or who have earned their angel wings. It does my heart good to see a long-term survivor.

Best regards to your family,
Grandma Jena
www.caringbridge.org/visit/lukasmacdonnell
NED since 7/3/08!
Jena Perkins <sgp_warrior_mom@yahoo.com>
Grand Prairie, TX USA - Wednesday, August 6, 2008 11:00 PM CDT

Connie,
I was so excited to read your entry in my grandson's (http://www.caringbridge.org/visit/jacksonboyd) guestbook, and to know how long your Jared has been NED. We are less than 2 months into destroying this ugly monster, and after reading about so many relapses, it's good to hear about a positive outcome! Yes, let that boy play football. He deserves it!
Thanks for making my day.
Kathie Richman <kathiedrichman@sbcglobal.net>
Arlington, TX - Tuesday, August 5, 2008 8:17 PM CDT

CONGRATULATIONS! Thrilled that you are where you are. Sorry Ill miss you in chicago again. Someday soon! Continued blessings, Love, Ellen
http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Tuesday, July 15, 2008 10:19 PM CDT

Congratulations Jared!!! Mom, dad and Kirsten too--it really is a family disease and one that I know has made you all stronger and given you the ability to treasure each and every day! I know just how you feel Connie, even when the kids are driving me nuts bickering about nothing, I know how lucky we are.

Hope you are doing something to celebrate tonight!

Much love from another 5 year survivor family,
Jen, Carolyn & Evan
Jennifer Click and Carolyn & Evan Coveney <jsclick@gmail.com>
Springfield, VA - Tuesday, July 15, 2008 9:25 PM CDT

Hi,
I wanted to say a belated Happy 7th Birthday to Jared. I am Drew Perschon's grandmother and I also wanted to say thank you for signing Drew's guestbook. It is so comforting and encouraging to hear that Jared has been NED for so long. Drew is recovering from his 3rd transplant and we continue to pray that he will be home soon. Let's do all we can to put an end to the NB monster.
Stay Well!
Donna Criner <djcriners@sbcglobal.net>
Schererville, IN USA - Friday, June 27, 2008 10:44 AM CDT

Happy Birthday Jared (cha cha cha)!

7 years old! WOW! Time flys! Enjoy that skateboard and have a great summer swimming in the pool!

Congrats to Kirsten too! Keep on scoring!
Katie Stone <kstone6@gmu.edu>
Washington, DC USA - Monday, June 9, 2008 1:24 PM CDT

Happy birthday, Jared!

I don't know what the speed limit is for skateboards where you live. Try not to get any tickets.

Congratulations to Kirsten on her goal! What a way to end the season.

www.caringbridge.org/al/mamieadams
Mamie's Daddy <george.f.adams@us.army.mil>
Huntsville, AL USA - Sunday, June 8, 2008 10:00 PM CDT

Happy Birthday weekend Jared~
I hope you have a great time.
We are hosting an Alex's Lemonade Stand.
Connie, are you going to chicago?
Have Fun! Love, Ellen
http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Saturday, June 7, 2008 1:21 AM CDT

I really enjoyed these pictures. I would not be brave enough to jump in. Keeping you in my prayers.
Carolyn Wing grandma to Laura Stage IV neuroblastoma carepage LauraVDB <carolyn_wing@yahoo.com>
Carson City, MI - Tuesday, May 27, 2008 4:16 PM CDT

Jared,Wishing you and your family a blessed memorial day.

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
Port Orchard, wa usa - Thursday, May 22, 2008 10:49 AM CDT

Hi Jared!
My name is Jenna and I came across your site. You are a brave, courageous fighter and such an inspiration. You will be in my thoughts and prayers.
caringbridge.org/visit/champ291
Jenna <nevergiveup301@aol.com>
Kamloops, BC Canada - Tuesday, May 20, 2008 5:50 PM CDT

Hi Connie,

Thanks for the Mother's Day wishes. You are so sweet. Jared looks awesome and I noticed he's coming up on 5 years cancer free in December. Hooray! We need stories like Jared's to give us HOPE. He's a handsome dude...too bad I don't have a daughter to hook him up with! Of course, I don't think he'll have any problems getting lots of girlfriends!

Love,
Kim
Kim Malarkey <kimmalarkey@yahoo.com>
- Saturday, May 17, 2008 7:11 AM CDT

Haven't been here in awhile - please forgive.

Wanted to say thank you and wish you a HAPPY Mother's Day.

(God - you look awesome in red!)

With love and prayers,

Colleen
Colleen Kashino
- Sunday, May 11, 2008 9:15 PM CDT

Hi Strayers!

Wow, Kirsten and Jared look so good!!!

Just stopped by to check on how our fellow NB fighter is going.

Love to all
Colleen - Kaitlyn's mum
Beverley, WA Australia - Friday, May 2, 2008 6:26 AM CDT

Dear Strayers,
You guys are such an amazing family! Those pictures looked like you just cant wait until summer... they made me long for it too! I feel so bad we have lost touch a bit, but am hoping we can catch up! My sister is at Shippensburg University, so maybe sometime when I am up there I can take you out for breakfast or something! Glad to hear you are doing well! Miss you all/THON/Penn State!
Katie Stone <kstone6@gmu.edu>
Washington DC, USA - Wednesday, April 30, 2008 7:39 AM CDT

you are an amazing family and God has blessed you so. All of you will be in my prayers. God Bless You Always
Cindy
Cindy <cindydinkel@yahoo.com>
Redlands, Ca usa - Saturday, April 26, 2008 9:03 AM CDT

Jared,

You are amazing!!!! NED - I like to hear those three letters, as our 5 year old son Nicholas is NED also. He was diag. with NB June 28, 2006, 3 months after his 3rd birthday and has been NED since 10/4/06. Keep it going buddy!!

www.carepages.com nicholasdefelice

Denise, Brian & Nicholas "Nick Power"
Denise DeFelice <desiboo@comcast.net>
Malden, MA USA - Tuesday, April 22, 2008 8:41 PM CDT

Jared & Kristen,Just stopped by to say hi and to let you all know we're thinking of you.

God bless,Love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
Port Orchard, wa usa - Sunday, March 30, 2008 1:15 PM CDT

DEAR STRAYERS ~

~~~~~CONGRATULATIONS ON THIS AWESOME "NED" SCAN NEWS!~~~~

THE SCAN PHOTO IS AWESOME. AS IN: I AM FILLED WITH TRUE "AWE", SEEING JARED IN THIS MACHINE.

SO-OO-O-OOO:
JARED WILL HAVE "JUST" ONE MORE SCAN, AFTERALL. WELL,THAT MITE BE A "PROBLEM"? CAUSE, IT LOOKS TO ME, AS THOU JARED HAS GROWN SO MUCH,THAT HE JUST MITE "OUT GROW" THAT SCANNER, FOR DR GRUPPS PLAN OF: "SAME TIME,NEXT YEAR." :-)

GEZ-ZZZZ, WHEN JARED IS SCANNED, IT MUST FEEL LIKE YOU
ALL ARE GOING THRU IT,RIGHT WITH HIM. YOUR STRENGTH AS
A FAMILY, AMAZES ,AND HUMBLES ME.

~~~~~~~~ HAPPY EASTER , TO ALL OF YOU!~~~~~~~~~~

~~~ 2 "EVENTS" TO CELEBRATE TODAY ~~~

PEACE ~
KAREN KANE
(KOLTON APPLEBYS AUNT)
PS:
"NB WARRIORS": hm-mmmm, how appropriately they are so
named. I surely will keep them in my prayers.
kk <rhkkane@comcast.net>
- Sunday, March 23, 2008 5:02 PM CDT

YEA....GREAT NEWS!!! OUR THOUGHTS AND PRAYERS WERE WITH ALL OF YOU!! SO GLAD HE CONTINUES TO BE NED!! THAT IS ALWAYS SUCH A HUGE RELIEF TO HEAR THOSE WORDS!!!
TAKE CARE AND LIVE LIFE TO THE FULLEST!!
LOVE, HEATHER
www.caringbridge.org/nc/nicholas
Heather Black (Proud mom to Nicholas St. 3 NB dx 11/03 NED since 5/04) <heatherblack99@yahoo.com>
Bolivia, NC - Monday, March 17, 2008 8:32 AM CDT

Thinking of you.
David Melton <DMelton321@yahoo.com>
- Saturday, March 15, 2008 1:07 PM CDT

Dear Connie,

I coudn't be happier. I wonder what kind of man Jared will turn out to be - with such an unusually amazing mom. Can't wait to see.

Maybe we'll see you next year at CHOP. :-)

Thank you for the update!

Colleen Kashino
- Thursday, March 13, 2008 12:24 AM CDT

This is such wonderful news. Thank you so much for sending me an update. These are the kind of stories that keep us doing what we are doing. Your family is so inspirational to everyone.
Janice Heintzelman (Four Diamonds Clinical Dietitian)
Hershey, PA 17033 - Thursday, March 13, 2008 5:58 AM CDT

Just wanted you to know we're saying lots of prayers for clear scans!!

Love,
Candace, Benjamin and the rest of the crew
www.caringbridge.org/co/benjaminmason
candace mason <candacemas@aol.com>
reno, nv usa - Tuesday, March 11, 2008 6:11 PM CDT

Jared & family,Just checking in and saying hello.Praying for clear scans.

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Monday, March 10, 2008 10:04 PM CDT

DEAR STRAYERS,

~I JUST READ ABOUT THE UPCOMING SCANS FOR JARED. I COULD NOT BELEIVE MY EYES, WHEN READING THE WORDS:~"LAST SCAN"!~ WHAT AN INCREDIBLE STATEMENT !
~~ I CRIED. ~~

THE "PRE- SCAN ANXIETY",IS UNCOMPREHENSIBLE,TO ME.I HAVE A VERY HARD TIME,THINKING I COULD HANDLE ANY ASPECT OF WHAT YOU ALL HAVE BEEN THRU,LET ALONE,THIS FINAL QUEST FOR: >> FREEDOM FROM CANCER. <<<<

~~~~ I REMAIN IN "AWE",OF YOUR STRENGTH.~~~~~~

PLEASE KNOW THAT I RAISE YOUR ENTIRE FAMILY,IN DEEPEST PRAYER.I KNOW WHAT I WILL BE ASKING OF OUR LORD.

YOU ARE SO GRACIOUS TO ALSO INCLUDE OTHER CHILDREN,SOME BY NAME,THAT I WILL DEFINATELY ADD TO MY PERSONAL PRAYER LIST.

AMOUNG THOSE "OTHER CHILDREN",THAT YOU HAVE MENTIONED,IN
VARIOUS PAST UPDATES,YOU HAVE INCLUDED MY NEPHEW: KOLTON JAMES APPLEBY.FOR THAT INCLUSION,CONNIE,I THANK YOU.

~~IN HIS NAME~

KAREN KANE

"kk" <rhkkane@comcast.net>
IRWIN, PA - Friday, March 7, 2008 3:36 PM CST

Dear Connie,
I am still in awe of your strength and courage over the last five years not only as a mother, as a friend, a community organizer, and so much more. Our prayers are with you as always. I do believe the Lord will continue to smile and watch faithfully over Jared, and your family. What a reflection of your own kindness it was to have Kirsten give to others on her birthday. I'm very proud and grateful to have such a fine friend. I also will extend my prayers to all others who are struggling.....and also those who are celebrating. Love, chris
Christine Lerew <mlerew@aol.com>
Dillsburg, PA USA - Friday, March 7, 2008 9:22 AM CST

Jared: We will be praying for you during scan week. These days are very difficult and stressfull. Hugs and prayers.
Carolyn Wing/Angel_Wings grandma to Laura Stage IV neuroblastoma carepage LauraVDB <carolyn_wing@yahoo.com>
Carson City, MI - Friday, March 7, 2008 9:08 AM CST

Dear Connie -

Wow the kids are getting so big and beautiful (inside (like their mom) and out). We'll continue to keep you in our thoughts and prayers. Good luck next week.

Sincerely,

Colleen Kashino
Colleen Kashino
- Friday, March 7, 2008 8:03 AM CST

Hello Strayer Family,
Wow! Kirsten's huge heart and spirit of giving heart are amazing. The article brought me to tears. Thank you so much for remembering Saylor and Macy's birthday. It's a busy month with St. Baldricks, and two birthdays in the family. But, most importantly, we will praying for NED. I know it's a nervous time for you, but know there are lots of us out here sending extra prayers your way.

Lots of Love,
Candace
www.caringbridge.org/co/benjaminmason
Candace Mason <candacemas@aol.com>
Reno, NV - Thursday, March 6, 2008 5:56 PM CST

thinking of you.
David melton <DMelton321@yahoo.com>
- Thursday, March 6, 2008 2:24 PM CST

Thinking of you.
David Melton <DMelton321@yahoo.com>
- Saturday, March 1, 2008 1:20 PM CST

Hi - Glad you had a great time at THON - the kids work so hard to make it special. I also thought that Jared fans who aren't as familiar with the Penn State Dance Marathon (plus all the other fund raising activities done for the kids) might be WOWED to know that this year's amazing total was.....DRUM ROLL.....$6,615,318.04.
Another Penn State Thon Mom
- Wednesday, February 27, 2008 10:48 AM CST

Hello!!
That is awesome you were able to go to Penn State for THON!! That is such an incredible event! I gave to some canners but don't usually make it to the event. I remember how huge it is from when I went to Penn State. Little did I know how much childhood cancer would affect our lives in the future. Hopefully with all of the foundations and research we can beat this disease once and for all!!

Kirsten - Happy Belated Birthday!! We share the same birthday...I won't tell you how old I am though :)

I check in on you guys often but haven't signed the guestbook in awhile. I'm glad to hear all is going well for all of you!

Take Care,
Melissa Appleby <appl2003@rcn.com / www.caringbridge.org/pa/koltonappleby>
Easton, pa USA - Wednesday, February 27, 2008 7:26 AM CST

Hey Jared.........do I know you??!! hehehehee!!! You are just too cute! And I love seeing you full of all of that energy! Kirsten - you are just growing up - what a beautiful young lady you are. And dearest Connie! Now there is one fun mom who is just so in to her kids! It was wonderful seeing all of you....if only for that short time, it just touches my heart - you are all so special. Thank you. Glad that you got back safe and sound. We had to head out right after family hour, but Michele, Meghan and Patrick stayed and they texted us a picture with the total. Just amazing!

Maybe we should plan to get together in between THON - do you ever go to Knoebels??

Sending much love your way. ~ sylvia

Sylvia Pituch <smp75@msn.com>
Allentown, PA - Tuesday, February 26, 2008 3:47 PM CST

thinking of you. www.groups.yahoo.com/group/tenderlovingprayers
David Melton <DMelton321@yahoo.com>
- Tuesday, February 26, 2008 11:43 AM CST

Happy Birthday, Kirsten! Sounds like your family is doing great. So happy to hear that Jared is doing well and having fun with Wrestling. Bailey and Cameron have a Hockey Tournament in Santa Rose, Ca this coming weekend. We will all go and cheer them on. Bailey will have his 6 month scans and testing on Feb 25-27. Pray for clean scans!
Blessings to all,
Bailey's Nonny and Papa
Christy and Tim Smith <csmithnonny@charter.net>
Genoa, NV USA - Tuesday, February 12, 2008 9:28 PM CST

Happy Birthday, Kirsten! I can't wait to read all about the party. We're getting our notes of thanks and encouragement off for the wonderful people who participate in THON. We hope it's as big a success as last year.

Lots of love,
Candace Mason
www.caringbridge.org/co/benjaminmason
Candace Mason <candacemas@aol.com>
Reno, NV USA - Thursday, February 7, 2008 1:10 PM CST

Hello-I was on Ylaria webpages and seen you in the guestbook. My 5 month old grandson Isaac was diagnosed a little before Christmas with stage IV of neuroblastoma. It is good to see that there is hope out there. I am so glad your son is doing well. You can visit my grandson webpage at www.carepages.com and his name is isaacpinon. I will add your son to my prayers. May the love of Jesus engulf you with His mighty power. Your sister in Christ-Carol
Carol Henderson <sweetmonicaiam@hotmail.com>
Bakersfield, ca usa - Thursday, January 31, 2008 9:46 PM CST

Hi Jared and Kirsten! Happy Sunday! We are getting soooo excited for THON! Our cousin Rachel Walla and our friend Patrick Kochanasz will also be dancing this year! In case you want to send mail to them, their #'s are

Rachel Walla #16B

Patrick Kochanasz #137B
210 HUB
University Park PA 16802

Thanks!

I hope we can get together again this year. Michele will be coming from Boston and Meghan from Maryland! Connie, if you have any "car" situations, remember to call us!!! : )

See you soon!!! love, sylvia
Sylvia <smp75@msn.com>
Allentown, PA - Sunday, January 27, 2008 10:34 AM CST

Stopping by to say hello, the kids sure are growing up! Congrats to Jared re: wrestling and the Kirsten too re: her bday idea, I can't wait to hear how it all works out...
God Bless, (we scan in feb.)
Love, Ellen
http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Wednesday, January 23, 2008 9:57 PM CST

Jared and Kirsten, you and your family are amazing! What an inspiration - thank you! I needed to read your story because its not often you come across awesome kids such as yourselves who have beaten cancer and are pursuing life to its fullest. I love the athleticism in your family and only hope that one day we will be there too. I am mother to Ylaria Carrasco-Cazares who was diagnosed in June of '07. My plan to visit as many NB family sites as I come across to give words of hope and encouragement. What I'm finding moreso is that the pages are giving me hope and encouragement! My prayers are with you and your family as you continue to pursue life's adventures and kick NB's butt! Thank you for sharing your story on this page and good luck in everything you do! Sincerely, Belen Carrasco, mother to Ylaria Carrasco-Cazares; www.caringbridge.org/visit/ylaria.
Belen Carrasco <chicana_reader@yahoo.com>
Bakersfield, CA USA - Monday, January 14, 2008 10:59 PM CST

Jared,
Your dad and I are so proud of you and how well you are doing. You are an awesome little guy. Great job on your wrestling win this weekend. Keep up the good work.

Hugs to you from us. We love you.
mom and dad <tinkerbell53@netzero.net>
Boiling Springs, PA - Monday, January 14, 2008 5:57 AM CST

We just want to wish you all a very happy and HEALTHY New Year. I hope there's a big celebration at your house to kick in 2008.

Lots of love,
The Masons
Candace, Russ, Macy, Benjamin and Saylor
www.caringbridge.org/co/benjaminmason
Candace Mason <candacemas@aol.com>
Reno, NV USA - Monday, December 31, 2007 11:27 AM CST

Christian Glitter by www.christianglitter.com

Hoping the new year brings you joy and continued good health!
Robin and Dustin
www.caringbridge.org/visit/dustineckert

Robin Eckert <reckert1@aol.com>
Carlisle, PA USA - Saturday, December 29, 2007 10:41 AM CST

Merry Christmas! Thanks for sending the kids a "tree." I still don't know how to do that! Please remind them to go to bed early. You can track Santa at www.noradsanta.org
Have fun!
Love, Ellen, Scott A., Kathleen, Sean and Heather
http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Monday, December 24, 2007 5:48 AM CST

I stumbled across your page tonight. I have a 4 year old granddaughter with Stage IV neuroblastoma. She is on carepages.com page name LauraVDB. I belong to Angel_Wings prayer group and I pray your family has a Merry Christmas.
Carolyn Wing/Angel_Wings <carolyn_wing@yahoo.com>
Carson City, MI - Sunday, December 23, 2007 6:06 PM CST

Hello Strayers!!! Happy Tuesday! Gosh, seeing the pictures of the Penn State THON group having a sleepover at your home brought back such wonderful memories. We really missed not having canners stay here this year. We actually tried to "adopt" a group, but I guess they all had a place to go. : ( I was driving to NJ this last canning weekend and I just happened to be wearing my THON sweatshirt. It was so cool...."Hey, she's wearing a THON sweatshirt!!"...there was no need to explain to me what THON means! I know this is a hectic time for those students...with finals, and before you know it crunch time for THON weekend. Our prayers are with all of them.

I had to giggle at the "picking of the Christmas tree" story. I know I don't have to tell you to treasure all of that bickering over which tree to cut down. : ) This was the first year that neither of the girls were with us. We made the best of it...as soon as we pulled in to the Christmas tree farm I took a picture with my phone of the hundreds of trees and sent it with a text to each of the girls..."WHICH ONE???" ...later sent a picture of the one we chose...their response?...."Beautiful"..."Looks good"...it was sort of like they were there, but.... THAT'S NOT THE RESPONSE I WANTED! I WANTED THEM TO ARGUE OVER IT! heheheee! What did we do before all of this technology??!

I better get back to putting the rest of the ornaments on this tree....we've only been doing that since LAST Saturday!

Counting the days til THON....and hope we'll be able to meet there again. love, sylvia xoxo

Sylvia Pituch <smp75@msn.com>
Allentown, PA - Tuesday, December 18, 2007 10:11 PM CST

The Masons
Candace, Russ, Macy, Benjamin and Saylor
www.caringbridge.org/co/benjaminmason
Candace Mason <5_masons@sbcglobal.net>
Reno, NV USA - Wednesday, November 21, 2007 5:24 PM CST

Hi All,
Just stopping by to say hi and to let you know we are thinking about you. Good luck with your Lunch for Life fundraising and have a great Thanksgiving!
Deb Maher <coins4kidscancer@aol.com>
www.coins4kids.org, - Sunday, November 18, 2007 9:17 PM CST

Thanks, Connie, for everything you said and for your outreach to all of us, angel parents included, parents like us whose child failed every treatment and passed away. I really appreciate your remembering us, it meant so much to me. Sincerely, Mara Stiles
mother of neuroblastoma angel Laura (October 27, 1994-December 22, 2006)
treated at Memorial Sloan Kettering, NY and Children's Hospital of Philadelphia
http://www.caringbridge.org/visit/laurastiles
Mara Stiles <ozman1@optonline.net >
Boonton Township, NJ - Friday, November 16, 2007 8:19 PM CST

Thanks, Connie, for everything you said and for your outreach to all of us, angel parents included, parents like us whose child failed every treatment and passed away. I really appreciate your remembering us, it meant so much to me. Sincerely, Mara Stiles
mother of neuroblastoma angel Laura (Ocotber 27, 1994-December 22, 2006)
treated at Memorial Sloan Kettering, NY and Children's Hospital of Philadelphia
http://www.caringbridge.org/visit/laurastiles
Mara Stiles <ozman1@optonline.net >
Boonton Township, NJ - Friday, November 16, 2007 8:18 PM CST

Connie,
Thank you for all you said in this post. I could not have said it better myself. Thank you for remembering us. Not just my family, but all the families, those who lost, those still fighting, and those who continue to do well. I know one person who has done what you refuse to do, sticking your head in the sand and forgetting everything that has happened. Thank you!!!!
Jamie
Jamie Eager <cjmssb@ptd.net>
Ephrata, PA USA - Tuesday, November 13, 2007 7:48 PM CST

Glad to see all is going well!! I have to say since I swam competively for YEARS that I am sad he stopped swimming...but GO GET EM in wrestling!!! Jared,I am sure you will do great!!
I know what you mean about not a week going by you don;t have SOME thought to NB. Nicholas' dx was this month 4 years ago and we happen to be up at Duke for his eye surgery this past week (ended up being the 9th and his dx was the 7th of 03) So here I was at Duke 4 years later for a simple eye surgery and I was miserable!!!! All the thoughts and emotions come rushing back and while he is this active, healthy boy NOW..what he had to go through then. THen I got thinking of all the kids we had met there during treatment who aren't with us any longer!! SUCKS!!!! But I do have to say I don't think about it NEARLY as much as I used to...it is getting easier the farther out he goes!!
Hope all continues to go well and that you enjoy your Thanksgiving!!!

www.caringbridge.org/nc/nicholas
Heather (proud mom to Nicholas St 3 NB dx 11/03 NED 5/04) <heatherblack99@yahoo.com>
Bolivia, NC - Monday, November 12, 2007 8:34 PM CST

Happy Halloween!
Love, Ellen and the kids
http://www.caringbridge.org/ma/seanhanson
http://www.loneliesthour.org
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Wednesday, October 31, 2007 9:31 PM CDT

Connie,
I was just checking up on you guys, you are so busy. I can't wait till we can get together sometime.

Love ya,

Jamie Eager <cjmssb@ptd.net>
Ephrata, PA USA - Sunday, October 28, 2007 7:38 PM CDT

Jared,Just stopping by to say hello and wishing you a happy fall

God bless,love & hugs Linn, Ariel & Daniel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Saturday, October 6, 2007 9:53 PM CDT

Wow! Sounds like your evenings are busy. I'm happy to check in and find eveyone happy and healthy.

Love,
Candace and Benjamin
www.caringbridge.org/co/benjaminmason
Candace Mason <candacemas@aol.com>
Reno, NV USA - Thursday, September 27, 2007 6:33 PM CDT

Jared,Just stopping by to say hi and to let you know we are thinking of you.

God bless,love & hugs,Linn & Daniel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Saturday, September 22, 2007 8:47 PM CDT

HELLO STRAYERS~

I HAVENT DRPPED A NOTE FOR WAY TOO LONG. BUT I DO READ, AND FOLLOW YOUR JOURNEY.

SO MUCH KEEPS HAPPENING IN YOUR LIVES.
****MOST IMPORTANT:TERRIFIC SCAN NEWS AND CONTINUED
**** GOOD HEALTH FOR JARED *****

JARED, YOU ARE REALLY ~~~ 6 ! WOW!
CONGRATULATIONS!

(~~YUP,WAY TOO LONG ON THAT SCHOOL BUS!-YUK!~~~)

PEACE,
KAREN KANE
(KOLTON APPLEBY'S AUNT)
karen <RHKKANE@ COMCAST.NET>
PITTSBURGH, PA STEELER COUNTRY! - Thursday, September 20, 2007 3:20 PM CDT

I found your site on my nephews (Bailey Johnson) CB page.
Awesome news on the ONE year scans. I LOVE hearing and seeig NED. Keep up the good work and I will continue to keep you and your family in my prayers.
Crystal Johnson <cjlsv@yahoo.com>
Pleasant Hill, CA - Monday, September 17, 2007 0:43 AM CDT

Hi! Hey, I'm glad that the kiddos are enjoying school! Michaela was very chatty too! It must be the extra special kids that are chatty, mom!!!
LOVE YA,

Kimberly Mease <kimmea@peoplepc.com>
Lancaster, PA USA - Sunday, September 16, 2007 10:09 AM CDT

Hi Guys, boy the kids are growing up! Scott gets bus-sick too as we have the same situation here. I didn't even get the bus pass this year. I'll wait until I need it. Today is 4 yrs. since Sean was dx. We celebrated (still being healthy) at an Alex's Lemonade Stand. Have fun in school kids! God Bless, Love, Ellen
http://www.caringbridge.org/ma/seanhanson
http://www.loneliesthour.org
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Sunday, September 9, 2007 10:52 PM CDT

Jared,Just stopping by to say hi and hope you have a wonderful week.

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Saturday, September 8, 2007 10:18 PM CDT

It is so good to hear that you are doing so well...I wish you all the BEST! Hope that you enjoy school and have a FUN year!
We on the other hand was not so lucky with our son and his out come with NB. After 2 yrs. our little Kody was called to be one of God's Angels and he flew away to Heaven on July 29,2007. www.caringbridge.org/visit/kodycannon
I wish your family all the prayers that you can get!
BEST of luck!
Kody's mom- Kristi
Kristi Cannon <clcannon93@yahoo.com>
La Grande, OR USA - Thursday, September 6, 2007 3:33 PM CDT

Glad to hear school is off to a great start! Kirsten sounds just like Carolyn in the "chatty" department--I think it is just girls that age! Hope you are able to work the bus ride out for Jared--Carolyn also has stomach aches on long car rides (actually, anything over 20 mins.) I think all of our kids have stomach problems, but that's a small price pay. Happy Fall!
Love,
Jennifer Click and Carolyn & Evan Coveney <jsclick@gmail.com>
Springfield, VA - Thursday, September 6, 2007 11:43 AM CDT

Great to hear that you had so much fun at the beach. We are all so blessed to have our kids well and having fun. Bailey and Cameron start school on Tues. and can't wait. Hopefully they will remember some of the things they learned last year!!! Can't believe that Bailey will be in third grade and Cameron in first. I' sure that Jared will do great.
God Bless,
Christy and Tim Smith
caringbridge.org/nv/baileyaustinjohnson
Bailey's Nonny and Papa <csmithnonny@charter.net>
Genoa, NV USA - Sunday, September 2, 2007 9:41 AM CDT

Hello Strayers! Where did the summer go??!! I hope you have a great weekend and a wonderful start to the school year. Our home is going to be rather quiet....Michele is going to grad school in Boston - we drive her up there on Sunday....and Meghan got a job in Washington DC. Did I tell you that Meghan brought a dog home when she graduated? A pit bull!!!....Kiela (as in TeQUILA) is such a sweetie and gentle as a lamb....well Meghan finally found a place to rent that will allow her to have a pit bull, so she'll be taking Kiela back with her this weekend. I told her we're going to have to have shared custody because I've become very attached! Before you know it THON weekend will be here. Can't wait to see you again. xoxo love, sylvia

Sylvia <smp75@msn.com>
- Wednesday, August 29, 2007 10:25 PM CDT

God has his way of making sure we know he is looking out for us. I was trying to show my husband Scott a different caring page and your page came up!!! My grand daughter Laura was diagnosed with Stage IV Neuroblastoma May 16, 2007. I pray we will be able to say NED in the future. I will pray for you and your family.
Carolyn Wing <carolyn_wing@yahoo.com>
Carson City, MI USA - Friday, August 24, 2007 9:47 AM CDT

Jared,Just stopping by to give you some cyber hugs.

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Monday, August 13, 2007 7:03 PM CDT

Hey Connie, I couldn't help but chuckle when you said not to worry that you will get Jared all he needs to succeed... I have no doubt in that whatsoever! You are an awesome mom! I may have told you this, but my boys needed alot of extra help, especially with reading, last year. Just like you and Jared, my sons don't learn from me. We barely get through homework, but by the end of the school year, they were reading above grade level. Hang in there. Hopefully, you will learn that his difficulties won't hinder him much at all.
Enjoy the rest of your summer!
Kim Mease <kimmea@peoplepc.com>
Lancaster, PA USA - Monday, August 13, 2007 9:51 AM CDT

Connie,
I'm sorry about the loss of your Grandma. I thought I had posted earlier and find I hadn't. She sounded like one amazing woman!

Love this picture of the kids enjoying summer the way they should! Good luck with the school issues, we just finished more neuropsych testing with Carolyn yesterday. Very frustrating to have to jump through all of these hoops to get the schools here in VA to do what they are legally required to do! Here is a good website to get information on the special ed issues http://www.wrightslaw.com, hope it will help you understand the process etc. I wish I had found it before I went to Carolyn's first IEP meeting!

Well, enjoy these last two weeks of summer--sure seems like it has flown by this year!
Love to all,

Jennifer Click and Carolyn & Evan Coveney <jsclick@gmail.com>
Springfield, VA - Saturday, August 11, 2007 7:47 AM CDT

Hi, love the pic of those happy smiling kids. Hope your enjoying summer! God Bless, Love, Ellen
http://www.caringbridge.org/ma/seanhanson
http://www.loneliesthour.org
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Saturday, August 11, 2007 0:04 AM CDT

Dear Connie,
I'm so sorry about the loss of your granmother. She sounds like a wonderful woman who will be greatly missed.

With love,
Candace
www.caringbridge.org/co/benjaminmason
candace mason <candacemas@aol.com>
reno, nv usa - Monday, July 30, 2007 3:16 PM CDT

I'm sorry for the loss of your sweet grandmother. She sounds like wonderful woman. I am glad she is finally at peace. I am glad to hear that Jared continues to do well. I don't write so often now, but you are often in my thoughts.
Aimee, mom to ^^Kendall^^ and Zachary, www.caringbridge.com/ny/kendall <aimee1@optonline.net>
Long Island, NY USA - Sunday, July 29, 2007 9:35 AM CDT

Hi Jared!
Glad to hear that you're doing ok! :)

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

joanne <joanne173@gmail.com>
Singapore, Singapore - Wednesday, July 25, 2007 10:11 PM CDT

We are new to your page and I just finished reading your journey. Jared, what a very strong, brave young man you are and so very lucky you have a wonderful supportive family. We are so very happy you are healthy today! Congratulations! Please know we will be thinking of you and hoping for your continued good health. We actually live close to each other, small world!
www.caringbridge.org/visit/dustineckert

Robin Eckert <reckert1@aol.com>
Carlisle, PA USA - Wednesday, July 25, 2007 4:56 PM CDT

Congratulations on the 4 year mark!!
Melissa Appleby <appl2003@rcn.com / www.caringbridge.org/pa/koltonappleby>
Easton, pa - Thursday, July 19, 2007 7:51 AM CDT

Hello dear Strayers Family!
It has been so long since I last time signed your BG, but believe I check on Jared very often. I'm so glad he is doing so great and staying healthy.

Know it is to late, but wish you HAPPY 6th BIRTHDAY JARED!!!
Can't believe how quick you you are growing. ;-)

Hope you have wonderful summer (loved your vacation pics). Take care.

www.caringbridge.org/ny/aarons

Nina (and the S. gang) <sel_nina@yahoo.com>
South Finland, Europe (at the moment) - Monday, July 16, 2007 2:44 PM CDT

Hi Connie, maybe you girls will plan a trip to Cape Cod one day! Sorry we missed you. It sounds like you are having a great summer. The babysitter thing is a huge problem, take it from me! I'm still trying to figure out how to work and take care of the 4 kids alone. UGH! I'm glad you are having a fun summer! God Bless, Love, Ellen
http://www.caringbridge.org/ma/seanhanson
http://www.loneliesthour.org
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Monday, July 16, 2007 2:33 AM CDT

Hi, Jared!

Sorry I missed your birthday.

I know today marks four long, scary years for you and your family, but NED since December 2003 is really wonderful!

www.caringbridge.org/al/mamieadams
Mamie's Daddy <george.f.adams@us.army.mil>
Huntsville, AL USA - Sunday, July 15, 2007 7:05 PM CDT

Hi there Connie,
I know it's been a long time, I'm so glad Jared is doing good. Brianna is doing wonderful, she has her scans in August. If everything goes okay she will be moving to scans every year, which will be so nice. Brianna's daddy and I divorced on June 19th, and her daddy and his girlfriend just had a baby on the 28th. Brianna now has a little brother, life is pretty good. Take care and we wish you all the best, good bless.
Melissa Dumenigo http://www.caringbridge.org/wa/briannamarie <mommyofone26@gmail.com>
Vancouver, WA USA - Friday, July 13, 2007 3:57 PM CDT

Connie,
Hope things are going okay with you. I missed you in Chicago and miss the updates too. Let us know what's up when you get a minute.
Much love,
Jennifer Click and Carolyn & Evan Coveney <jsclick@gmail.com>
Springfield, VA - Saturday, July 7, 2007 8:23 AM CDT

Keeping Grandma in our prayers. Looks like Jared had an awesome birthday party.

Melissa and hailee
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@nc.rr.com>
westend, nc usa - Wednesday, June 27, 2007 7:04 PM CDT

Jared & family,We hope you all have a wonderful 4th and wonderful summer.

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Tuesday, June 26, 2007 12:04 AM CDT

HAPPY BIRTHDAY JARED,We just stopped by to say hi and hope you and your family are having a terrific summer!

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Sunday, June 17, 2007 2:34 PM CDT

I hope you had a very happy birthday Jared, and I wish for many many more!
Aimee, www.caringbridge.com/ny/kendall <aimee1@optonline.net>
Long Island, NY USA - Sunday, June 10, 2007 7:42 PM CDT

Hope you had a WONDERFUL birthday party, Jared!! 6 years old...wow!! I hope your fort got finished and that you had alot of fun playing in it. YOu will have to have your mom put up some pics for us to see it!!!
Again....HAPPY 6th BIRTHDAY!!!
Oh and have a great summer!! Our last day of school was yesterday also!! WOO HOO!!

www.caringbridge.org/nc/nicholas
Heather Black (mom to Nicholas NED since 5/04 <heatherblack99@yahoo.com>
Bolivia, NC - Saturday, June 9, 2007 9:17 PM CDT

HAPPY BIRTHDAY JARED!!!! Gosh, 6 yrs old! I probably won't even recognize you next year at THON! : ) I hope you have a wonderful day!

I'd love to know how your followers put those cool pictures, etc...in their post. : )

Hope you all have a wonderful weekend and Jared, I hope this is your best birthday yet! love, sylvia xoxox

(Hi Kirsten!)

Sylvia <smp75@msn.com>
Allentown, PA - Thursday, June 7, 2007 9:39 PM CDT

Happy Birthday, Jared! Six years old is a big deal. I can't wait to read about your party.

Love,
Candace
www.caringbridge.org/co/benjaminmason
Candace Mason <candacemas@aol.com>
Reno, NV USA - Tuesday, June 5, 2007 3:48 PM CDT

Hello All!!
It sounds like you have been having as great time and planning for more wonderful memories this summer. I hope everything goes well with your work schedule and summer vacation. It sounds like a great plan!

HAPPY 6TH BIRTHDAY JARED!!!!! May you have a wonderful birthday, summer, and terrific year to follow!!! You deserve it!!

Take Care,
Melissa Appleby <appl2003@rcn.com / www.caringbridge.org/pa/koltonappleby>
Easton, pa - Monday, June 4, 2007 10:11 AM CDT

Jared,Just stopping by to say hello.
God bless,love & hugs,Linn,

Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Saturday, May 26, 2007 11:24 PM CDT

Wow! Cool family picture. Sorry the vacation had to end. I like that leisurely lifestyle too. It sounds like summer is going to be loaded with fun activities. It's always fun to read about the good times you have.

Love,
Candace
www.caringbridge.org/co/benjaminmason
Candace Mason <candacemas@aol.com>
Reno, NV USA - Friday, May 25, 2007 7:08 PM CDT

Hey Connie,
Just stopped by to check on you guys. Love the picture. I'm still jealous, you should have snuck me along. Anyway, glad things are going well. Love to you all.

Jamie Eager <cjmssb@ptd.net>
Ephrata, PA USA - Friday, May 18, 2007 7:43 PM CDT

Hi Connie! I'm glad you all had a great vacation!! You are so wise to grab all the gusto you can! Love ya all!

Kim Mease <kimmea@peoplepc.com>
Lancaster, PA USA - Wednesday, May 16, 2007 6:15 PM CDT

So glad to hear that all is well and that you had such a good time on your vacation. Happy Mother's day! We are so blessed.
Christy and Tim Smith
ccaringbridge.org/nv/baileyaustinjohnson
Bailey's Nonny and Papa <csmithnonny@charter.net>
Genoa, NV USA - Monday, May 14, 2007 8:29 AM CDT

Happy Mother's Day Connie!
Glad you guys had such a great trip! Once again you've expressed my own feelings so well--we know how life can change in an instant, that's why it's so important to live each day to the fullest. You should be proud that you and Mike are doing a great job of that with the kids.
Love to all,
Jennifer Click and Carolyn & Evan Coveney <jsclick@gmail.com>
Springfield, VA - Sunday, May 13, 2007 9:22 PM CDT

HAPPY MOTHER'S DAY!

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Sunday, May 13, 2007 8:23 PM CDT

Happy Mother's Day Connie!!
Melissa Appleby <appl2003@rcn.com / www.caringbridge.org/pa/koltonappleby>
Easton, PA - Sunday, May 13, 2007 12:59 AM CDT

With Much Love
Miss Shannon & Miss Samantha "Froggy" <humphity@gmail.com>
- Sunday, May 13, 2007 9:01 AM CDT

Hello!!
It is so awesome seeing the kids playing sports, isn't it? Kolton has started playing soccer and it is so cute. Your pics of Jared in his uniform are adorable!!

Have a great vacation!!
Take Care,
Melissa Appleby <appl2003@rcn.com / www.caringbridge.org/pa/koltonappleby>
Easton, PA - Wednesday, May 2, 2007 7:33 AM CDT

Jared,
Sorry you are feeling so yucky! There seem to be a lot of viruses going around lately, hopefully whatever you have will be over soon so you can have a GREAT vacation! We are looking forward to seeing the pictures!
Jennifer Click and Carolyn & Evan Coveney <jsclick@gmail.com>
Springfield, VA - Saturday, April 28, 2007 7:04 AM CDT

Oh Jared! I will be praying that you feel better soon. There are so many viruses going around lately.

Our THON DVD arrived yesterday and guess what??? Kirsten, you're a star! : )

Talk to you soon! love, sylvia

Sylvia <smp75@msn.com>
Allentown, PA - Thursday, April 26, 2007 9:17 PM CDT

I hope Jared gets feeling better soon! And, I hope the rest of the family doesn't get the bug. I will keep checking back to see how he is doing.

Take care!
Candace and Benjamin
www.caringbridge.org/co/benjaminmason
candace mason <candacemas@aol.com>
reno, nv usa - Thursday, April 26, 2007 8:54 PM CDT

Great Picture!
God Bless, Love, Ellen
http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Friday, April 20, 2007 0:34 AM CDT

I hope you all had a wonderful Easter! Those eggs you painted are BEAUTIFUL! Michele and Meghan even stayed in last night and made pysanky eggs - you create a design on the egg, etch it with bees wax using a very fine "needle" of sorts, and then dipping the egg in to the first color, etching more with the wax, dip into the next color, etc. The did such a nice job! : )

Great job in school Kirsten and Jared! Kirsten, you're a girl after my own heart! : )

Have a great week! love, sylvia

Sylvia <smp75@msn.com>
Allentown, PA - Sunday, April 8, 2007 11:41 PM CDT

Wonderful to hear good news!! Congratulations, Jared.
I will be thinking of you and your family and praying for continued good news. God Bless you Jared.
Carol Baker Gilmore, Angel grandmother to Erin Edwards, 1999-2006 <carol@mokancomm.net>
Louisburg, KS USA - Sunday, April 8, 2007 7:48 PM CDT

With Much Love
Miss Shannon & My Baby Bunny <humphity@gmail.com>
- Sunday, April 8, 2007 8:09 AM CDT

Happy Easter Strayers!

With love and prayers,

Colleen

Colleen Kashino
- Saturday, April 7, 2007 9:37 PM CDT

Happy Easter to all! Hope you have a wonderful holiday filled with family time, egg hunts, and of course lots of chocolate!
Katie Stone <kps159@psu.edu>
State College, PA - Friday, April 6, 2007 9:14 AM CDT

Connie,
Thanks for signing Ry's guestbook. It's always nice to hear from you. You encourage so many of us and it helps!Glad Jared is doing and looking so great. May God bless you always!

Love,
Kim and Henry
Kim Malarkey <kimmalarkey@yahoo.com>
- Thursday, April 5, 2007 2:12 PM CDT

Easter greetings Jared,

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Sunday, April 1, 2007 11:00 PM CDT

Hello Strayers!
So happy to read about the clean scans. Way to go, Jared! We were thinking of you during scans and saying lots of prayers. Love the hats, by the way.

Lots of hugs!
Candace and the rest of the Masons
www.caringbridge.org/co/benjaminmason
Candace Mason <candacemas@aol.com>
Reno, NV USA - Monday, March 19, 2007 6:06 PM CDT

Hi Strayers-

Sorry we didn't get to really meet at the Ronald McDonald House, but it was great to see Jared looking so fantastic. Good work Jared! Hopefully we'll catch up another time.

And nice crazy hats in the picture. Ruby was scandalized when I put one one. Just said, "Daddy!" and rolled her eyes. She's five. It's not going to get better, is it?

Best-
David, Sara, Ruby and Ethan
David Elbert <elbert@jhu.edu>
Baltimore, MD USA - Sunday, March 18, 2007 5:02 PM CDT

Awesome news on your results, buddy! We're VERY happy for you!!

With Much Love
Irish Sammi & her Irish Mommy <humphity@gmail.com>
- Saturday, March 17, 2007 11:46 AM CDT

YEA Jared!!!! Not that we expected anything less than NED, but it's always nice to get the official word!
Hope you have a great weekend planned after the stress of this week!
Love to all,
Jennifer Click and Carolyn & Evan Coveney <jsclick@gmail.com>
Springfield, VA - Friday, March 16, 2007 8:19 AM CDT

YEAH!!! I am so glad to read the great news!! I am also glad you were able to squeeze in some fun while you were there!

:) Kerri Zamzow www.caringbridge.org/visit/jacktodd
Kerri Zamzow <j.k.zamzow@verizon.net>
- Thursday, March 15, 2007 5:01 PM CDT

WONDERFUL....TERRIFIC....FABULOUS....FANTASTIC...okay..I guess that says it all. We are so happy that Jared continues to do well and remains NED!! Those 3 words are ALWAYS such a relief to hear!!
Glad you had a safe trip and had fun at the zoo!!
Take care!!!

www.caringbridge.org/nc/nicholas
Heather (mom to Nicholas Stage 3 Neuroblastoma NED since 5/04) <heatherblack99@yahoo.com>
Bolivia, NC - Thursday, March 15, 2007 11:48 AM CDT

Glad to hear all scas went great again. Oh what a relieve.
Take care.
Nina & Ronnie <sel_nina@yahoo.com>
Trabuco Canyon, CA - Thursday, March 15, 2007 11:30 AM CDT

HOORAY, HOORAY, HOORAY!!! I'm so happy to hear NED!! What wonderful news!!! Congratulations!!

Take Care,
Melissa Appleby <appl2003@rcn.com / www.caringbridge.org/pa/koltonappleby>
Easton, PA - Thursday, March 15, 2007 7:47 AM CDT

Dear Connie,

Caught your post about your visit to CHOP - hoping for the best for your Jared. The photos of the hike are beautiful. Looks like you are having some great weather. I don't get around on line much anymore with working full time, but I do think of you guys often.

Take care!
With Love and Prayers,
Colleen
Colleen Kashino
- Wednesday, March 14, 2007 12:42 AM CDT

Sending positive thoughts for negative scans as you head into the MIBG scanner this morning. Looking forward to reading that happy post about continued NED!
Love,
Jennifer Click and Carolyn & Evan Coveney <jsclick@gmail.com>
Springfield, VA - Wednesday, March 14, 2007 9:14 AM CDT

We await your words of NED and pray for good results of Jared's testing. Keeping you all in our prayers,
Christy and Tim Smith
caringbridge.org/nv/baileyaustinjohnson
Bailey's Nonny and Papa <csmithnonny@charter.net>
Genoa, NV USA - Tuesday, March 13, 2007 4:31 PM CDT

Hello! It's great hearing how well all of you are doing. I love reading your entries. I check in often but don't aways get a chance to sign the guestbook.

Good luck today and tomorrow at CHOP. I'm looking forward to hearing NED!! Our thoughts and prayers will be with you!
Take Care,
Melissa Appleby <appl2003@rcn.com / www.caringbridge.org/pa/koltonappleby>
Easton, PA - Tuesday, March 13, 2007 7:50 AM CDT

Go Jared! Expecting great things with you Buddy--like NED always!!!!!!!!!!!!!!!!

Blessings and prayers for perfect health!
Donna Ludwinski <ludfarm@arvig.net>
Park Rapids, MN - Monday, March 12, 2007 3:41 PM CDT

Connie,
I will see you tomorrow at CHOP. I wrote down your schedule of appointments and we will find you. Brandon is excited cause he will have someone to play with. He is going to bring his dominos along so they can build stuff. Praying for clean scans and continued NED. We love you guys. See you soon.

Jamie Eager <cjmssb@ptd.net>
Ephrata , PA USA - Monday, March 12, 2007 9:46 AM CDT

Hey guys,
Have a safe trip to CHOP and we will be thinking and praying for NED once again! Make sure you let us know when you hear the great news!!
Take care!!
Heather Black (Mom to Nicholas Neuroblastoma III NED since 5/04) www.caringbridge.org/nc/nicholas <heatherblack99@yahoo.com>
Bolivia, NC - Monday, March 12, 2007 6:37 AM CDT

Hello Strayers! The pictures are beautiful! Connie, seeing how far up you climbed, now I can understand how you hurdled that fence illegally at THON! hehehehee!!!

Praying ever so hard for your safe travel and nothing but good news. love, sylvia

Sylvia Pituch <smp75@msn.com>
Allentown, PA - Sunday, March 11, 2007 9:43 PM CDT

Just dropping by to let you know we're praying for clean scans next week. I'll keep checking in to see if you have updated Jared's website. Love they hair, by the way!

Lots of hugs and positive thoughts and prayers coming your way.

Candace
wwww.caringbridge.org/co/benjaminmason
Candace Mason <candacemas@aol.com>
Reno, NV USA - Wednesday, March 7, 2007 1:44 PM CST

Wow those THON pictures are great! You look like you had the BEST time!!

Kids Cancer Crusade
Jennifer <kidscancercrusade@yahoo.com>
- Sunday, March 4, 2007 11:03 AM CST

Hey guys !!! It's Jason from THON :)

I just wanted to say hi and see how everything is going. Things at Penn State certainly have not slowed down since THON. Last weekend, I went to Atlanta to visit Georgia Tech's grad school. Not a bad way to escape the 30 degree temperatures if you ask me - haha. Anyways, keep in touch and I will be seeing you all soon !!!

P.S. Keep checking the mail in the next few days...

Always,
Jason
Jason Stine <jss338@psu.edu>
State College, PA - Wednesday, February 28, 2007 11:43 PM CST

Hello Strayers! Well Kirsten, I'm feelin' for you...I guess I'm getting too old to be pulling those all nighters at THON...I have an ear infection, sinusitis, and bronchitis. YUK! Hoping the antibiotics kick in soon. : )

Crazy hair day sounds like fun! Did I ever tell you about the time Meghan's preschool had "backwards day"...she had an absolute melt down saying how "stupid" that was. Til this day she still does not like change! I think something like crazy hair day would have gone a little smoother. : )

Connie, you should have called us when you were stuck! You could have joined the sleep over party at the Radio house where we were staying. I hope it won't happen next year, but if it does, please, do not hesitate to call us!

Hope you all have a good rest of the week. I'm hoping all the snow will disappear with the rising temps and liquid sunshine! Sending lots of love your way! ~ Sylvia

HAPPY BELATED BIRTHDAY THON DANCER LIZ! Hope you caught up on your sleep!

Sylvia Pituch <smp75@msn.com>
Allentown, PA - Wednesday, February 28, 2007 6:50 PM CST

Hi Connie,
This is Elizabeth's mom from THON. I hope all has been well. It was great meeting you, Jared and Kirsten. It was an amazing weekend at THON. If you ever come to Philadelphia, please let us know. Elizabeth will be back home in May so we would love seeing the family. Please keep in touch.

Arlene <peabrain4ever@verizon.net>
Philadelphia, pa usa - Wednesday, February 28, 2007 11:58 AM CST

Hi Strayers!!! Connie, it was so nice seeing you at THON! What an amazing weekend it was. I LOVE Jared's wild hair! That is a neat idea. Well i hope everything is still going well. Talk to you soon! :-)
Michele Pituch <RedQT4Life@msn.com>
Allentown, PA - Wednesday, February 28, 2007 10:52 AM CST

Connie,
I was so happy to see you at THON. I wish we lived closer together so we could visit more. Anyway we will be at CHOP on the 13th. ALL DAY LONG!!! He has to have bloodwork done every 2 hrs that day. Where will you be??

I wish I could have been there for family hour. I would have loved to share that with you and everyone else, it is actually one of my favorite parts of THON. Unfortunately, two of my children were throwing up so we had to cut our weekend short. But next year we will be standing side by side with our boys between us. Shawna said hi and it was nice seeing you again.

Love you
Jamie

Love you
Jamie Eager <cjmssb@ptd.net>
Ephrata, PA USA - Saturday, February 24, 2007 5:01 PM CST

Yes, what an amazing event, isn't it? If anyone has the opportunity to visit State College in February, please, make THON part of your "vacation". We do not have a child with cancer, but my best friend died of cancer when we were 13 yrs old. THON holds a special place in our hearts because of what they do. When our daughter became involved as a student we were blessed to become more involved. I still have goose bumps. I don't know how those students do it...I made it to hour 38 and crashed for a few before going back. THANK YOU PENN STATE FOR ALL THAT YOU DO! You may never know all of the lives that you touch.

Jared, we just had to giggle when we heard mom being paged! Guess mom and I were gabbing too much! hehehee!!! .... lost parents! What is a child to do???!!!! Connie, it was great watching you hike it over that fence!!! : )

Have a great week. I think I'll try to get some sleep now. I've been so wound up since getting home, just thinking about all of the emotions of the weekend. Talk to you soon. love, sylvia

Sylvia Pituch <smp75@msn.com>
Allentown, PA - Wednesday, February 21, 2007 2:37 PM CST

It was nice meeting you all at breakfast on Sunday. I had a lot of fun and only wish that we could have met earlier in the weekend. I apologize if Tom and I got Jared a little too riled up. Your story is a great inspiration to me and taut me a lot about myself and what is going on in the world around me. so I thank you for that and wish you the best!!!
Nick Newell <Irishwolf2003@aol.com>
Turnersville, NJ 08012 - Tuesday, February 20, 2007 1:00 PM CST

Sounds like Thon was a wild adventure this year! Wow! God Bless, Glad you got home safely!
Love, Ellen
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Monday, February 19, 2007 11:50 PM CST

Happy Valentine's Day Strayer Family!

Only two more days!!!! Meghan's morale team won a spot to do the Line Dance on stage........at 545 Sunday morning!!!! You'll be there, right??? heheee!!!...and then we can do grilled stickies at the diner for breakfast!

love, sylvia

FTK GO BLUdacri$!!

Sylvia Pituch <smp75@msn.com>
Allentown, PA - Wednesday, February 14, 2007 6:03 PM CST

Jared & Kristen,HAPPY VALENTINE'S DAY!

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Wednesday, February 14, 2007 5:07 PM CST

HAPPY VALENTINES DAY TO ALL!

www.caringbridge.org/visit/navadaharleighzlotnicki
Lori Zlotnicki(^angel Navada's^) mom <blueyetigger@verizon.net>
- Wednesday, February 14, 2007 4:20 PM CST

Happy Valentine's Day!!!

With Much Love
Miss Samantha Therese & her Mommy <humphity@gmail.com>
- Wednesday, February 14, 2007 2:15 PM CST

Oh wow Kristen!
Your birthday party sounds like it was fantastic!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

Joanne <joanne173@gmail.com>
Singapore, Singapore - Sunday, February 11, 2007 10:51 PM CST

B - R - A - V - E or

S - A - I - N - T ????!!!!!!!

What a good family Kirsten has! HAPPY BIRTHDAY KIRSTEN!!!!
We are so looking forward to being able to see you again this coming weekend at THON. Meghan's morale team is BLUdacri$. We'll be arriving around 11AM Friday morning and getting our traditional wimpie burgers at Babies! Can't wait! This is going to be interesting having it at Bryce Jordan - we had things down to a science at REC Hall with the house being only two blocks away. Connie, we're staying at the home catty corner from the Nittany Lion Inn - Victor will have the THON flag flying out front. Not sure if you have our cell phone # ....Where are you staying? Our cousins from Maryland will be joining us again....Sara has to do a project on sleep depravation....what better place to do that!!!

Have a great week and we'll see you soon! love, sylvia

sylvia <smp75@msn.com>
allentown, PA - Sunday, February 11, 2007 10:33 AM CST

Happy Birthday Kirsten!
Connie, you are braver than me--14 girls?!?!?!?! Hope you have some ear plugs to take the edge off the squealing! A friend and I noticed years ago that a roomful of girls is actually LOUDER than a roomful of boys! I'm with Candace--hope you get a nice long nap on Saturday!
Love,
Jennifer Click and Carolyn & Evan Coveney <jsclick@gmail.com>
Springfield, VA - Friday, February 9, 2007 8:49 AM CST

Wow! Sounds like you are going to have your hands full this weekend. I hope there will be lots of pictures. I wish you lots of luck and a big nap on Saturday. A very happy birthday to Kirsten.

Lots of hugs,
Candace
www.caringbridge.org/co/benjaminmason
Candace Mason <Candacemas@aol.com>
Reno, NV USA - Thursday, February 8, 2007 6:19 PM CST

It looks like you had a blast! What I wouldnt do for some warm weather! It looked so beautiful! THON is so soon! Cant wait to see you guys!
Katie Stone
State College, PA - Sunday, February 4, 2007 11:54 AM CST

Hi!!! Welcome home! I'm glad you had a good time on vacation, even if you are orange~ :p
The kids look awesome and swimming sounds like so much fun! Dave and I have been bowling twice with the kids and have been really enjoying them! But swimming, wow, that sounds like heaven! Take care and I'll talk to you soon!
Love ya!
Kim Mease <kimmea@peoplepc.com>
Lancaster , PA USA - Saturday, February 3, 2007 8:56 PM CST

vacation sounds wonderful, i hope you enjoyed it.
Love the pictures of the kids.
Melissa and hailee
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@nc.rr.com>
westend, n usa - Saturday, February 3, 2007 6:27 PM CST

Just wanted to say hello and make a donation. You guys are in our thoughts.
Joe Amy Abby Jake and one on the way (Josh) <Coleelectric@comcast.net>
- Thursday, February 1, 2007 7:47 PM CST

I hope you're having a great time on your trip!
Linda - www.caringbridge.org/sc/christopher <chrisnbreemom@yahoo.com>
Charleston, sc - Thursday, February 1, 2007 7:36 AM CST

Hi Jared!!
I hope you have a great trip! Can't wait to hear all about it.

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

Joanne <joanne173@gmail.com>
Singapore, Singapore - Monday, January 29, 2007 4:53 AM CST

Connie,
I am so jealous. It is cold here. I can't wait to see you at THON. It is only 19 days away. Where are you staying? Let me know so we can catch up.

Love to you all,
Jamie
www.caringbridge.org/pa/brandonloose
Jamie Eager <cjmssb@ptd.net>
Ephrata, PA USA - Sunday, January 28, 2007 7:09 PM CST

Hello Strayers (or should I say Hello Mon!)
Just wanted to drop you a short note to let you know that we enjoyed meeting you in Jamaica! It is a really small world. I mean what are the chances that we just happened to sit beside each other on the beach - not to mention that the subject of NB came up...

It was really nice of you to already reach out to our nephew. Your story is great to hear and gives us all hope! My brother and wife really appreciated hearing all about it when I talked to them.

Sorry our vacations didn't ovelap longer as I am sure we would have had a great time with each other. We had such a wonderful time overall that we will definitely be going back - so maybe we will see you again (since it is such a small world!)

Hope you had a great time and that you both relaxed, had a lot of fun, and brought home a great tan! :)
Richard and Lynn
Richard Runde <rrunde@carolina.rr.com>
Charlotte, NC USA - Sunday, January 28, 2007 4:26 PM CST

Hey Strayers! Just stopping byt to say hello & that ive been thinking of you guys. guess what?? LESS THAN ONE MONTH TIL THON!!!! I am soooo excited. Connie, i hope you have a wonderful time in Jamaica. We will be going to Jamaica in October, so you will have to let us know how it is!

Talk to you soon & SEE YOU IN 30 DAYS!!
Michele Pituch <RedQT4Life@msn.com>
Allentown, PA - Wednesday, January 17, 2007 12:08 AM CST

Connie,
So glad Jared continues to be NED. His story inspires us! Have fun on vacation and give Dr. Jekyl and Mr. Hyde a hug from us!

Kim
Kim Malarkey <kimmalarkey@yahoo.com>
- Tuesday, January 16, 2007 2:48 PM CST

Jared,Just stopping by to say hi and to let you know we are thinking of you.

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Tuesday, January 16, 2007 10:35 AM CST

Hi Guys, Have fun on your vacation! It sounds great! You deserve it! Mom and Dad need time too! I'm sure the kids will be spoiled rotten when you get home. God Bless, Love, Ellen
http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Tuesday, January 16, 2007 7:24 AM CST

HI Connie!
Happy New Year!! I'm glad to hear all is well with your family. I had to laugh at your entry about Jared's mood changes....so funny how I can relate. I guess it's the age. Kolton has his mood swings too.

I'm very happy for you that you and Mike are going away together soon!! I hope you have a wonderful and well deserved vacation!!

Take Care,
Melissa Appleby <appl2003@rcn.com / www.caringbridge.org/pa/koltonappleby>
Easton, pa - Monday, January 15, 2007 11:56 AM CST

Just stopping by to say "Happy New Year!". What a beautiful picture of the kids on your homepage. Sounds like you had a great Christmas. I hope Kristen is feeling better by now. We are fighting bronchitis in our family. Both of my younger two, Mary Claire and Thomas, are on antibiotics right now. Thomas had clean scans again in December. He doesn't go back to UCSF until June. As of this month, he has been NED for 2 years. As you know, it feels so good to have come this far. Wishing all of you all the best in 2007! Have a great trip to Jamaica...

Theresa Gasman (Thomas' mom www.caringbridge.org/ca/thomas )
Theresa Flynn Gasman <flynngasman@snowcrest.net>
Redding, CA - Sunday, January 14, 2007 0:54 AM CST

Hope the New year has started off well for all of you!! Have a great time on your trip...I'm jealous!!
Take care!!
Heather Black (Mom to Nicholas NB Stage 3..NED since 5/04) www.caringbridge.org/nc/nicholas <heatherblack99@yahoo.com>
- Saturday, January 13, 2007 7:57 AM CST

They kids look great! And so grown up! Enjoy your vacation - you both deserve it.

Happy New Year
Linda Kee - www.caringbridge.org/sc/christopher <chrisnbreemom@yahoo.com>
Charleston, SC - Friday, January 12, 2007 6:44 AM CST

Hello Strayers!

Glad all of you had a nice Christmas! Kirsten and Jared look so happy and healthy. What a blessing! I hope you have a wonderful time in Jamaica. We're still working on a vacation sans the kids, but with the new one coming in March, I am pretty sure it will be down the road a bit. In any event, I hope you two have a great time and I'm sure Jared and Kirsten will love having Grandma spoil them for a week!

Lots of hugs,
Candace
www.caringbridge.org/co/benjaminmason
Candace Mason <candacemas@aol.com>
Reno, NV USA - Sunday, January 7, 2007 7:47 PM CST

Jared,Just stopping by to wish you all a wonderful New Year!

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Sunday, January 7, 2007 5:15 PM CST

Dear Jared ~
It is officially Jan 1, 2007 ! What a journey
for you, to arrive at this date, while continuing with your
good health news !
It is unimaginable,to me,where you all "were", New Years
Eve,4 years ago.

~~ to Connie: your New Years Eve request :"prayers for others", facing health challenges,is one request that I continue to honor daily: some days minute by minute ~

HAPPY NEW YEARS EVE AND DAY: ~~ CELEBRATE ~

and..yes, the Steelers did win their final game played on New Years Eve! (whew ~`!)

lv,
karen
(aunt to kolton j.appleby)
KarenKane <rhkkane@comcast.net>
Irwin, PA Steeler Country ! - Monday, January 1, 2007 0:56 AM CST

Wishing you a happy and healthy 2007 and beyond.

Love from Kaitlyn <ozi_gal@hotmail.com>
Beverley, WA Australia - Sunday, December 31, 2006 2:10 AM CST

Hey Strayers! GREAT pics from Christmas! I'm glad to see Santa stopped by your house too. After the new year, its only a few more weeks til THON!!! so exciting. Santa brought me a new THON necklace - its a diamond and on each side it says "courage, wisdom, honesty, strength" i cant wait til Feb!

Enjoy your new years & hope to see u soon! :-)
Michele Pituch <RedQT4Life@msn.com>
Allentown, PA - Thursday, December 28, 2006 0:40 AM CST

I hope you all had a wonderful Christmas!!! I didn't get a chance to wish you one BEFORE Christmas!!! Jared and Kristin...I hope Santa was good to you both!!
Thinking of you...take care!!!
Heather Black and NICHOLAS (Neuroblastoma NED since 5/04 <heatherblack99@yahoo.com>
Bolivia, NC - Tuesday, December 26, 2006 8:49 PM CST

Merry Christmas Strayers!

With Love and Prayers,

Scott, Colleen, Janie & Thomas Kashino
Colleen Kashino
- Monday, December 25, 2006 0:36 AM CST

DEAR MIKE, CONNIE, JARED AND KRISTEN,

~~ I WISH YOU ALL A VERY MERRY CHRISTMAS! ~ ~

I HAD QUITE ALOT OF "HOMEWORK" TO READ IN YOUR PAST JOURNALS.
WHEW, ALWAYS SOMETHING HAPPENING.

I LOVE YOUR CHRISTMAS WEB PAGE AND PHOTOS OF YOUR 2 PRECIOUS CHILDREN.

I READ, CONNIE, WHAT YOU HAD WRITTEN SO BEAUTFULLY, AND POWERFULLY,
ABOUT CHILDREN( OF COURSE PARENTS) WHO ARE FOREVER FACING CHALLENGES GOING THRU TREATMENTS, AND THOSE THAT DONT MAKE IT THRU.
THE REMINDERS NEED TO HAPPEN. CONGRATS, CONNIE ON TAKING THAT LEAP TO REMIND US ALL.

AND KEEP US ALL POSTED ABOUT JAREDS HAIR: GOOD FOR YOU PUTTING HIS PHOTO ON THE WEB: MAYBE SOMEONE (?) WILL
HAVE AN ANSWER FOR YOU. WOULDNT THAT BE NICE?

YOU ARE A PRECIOUS AND GIVING FAMILY.

SINCERELY,
KAREN (Kolton Applebys aunt!)
Karen Kane <RHKKANE@COMCAST.NET>
IRWIN, PA STEELER COUNTRY ! - Monday, December 25, 2006 0:03 AM CST

Happy Holidays from my family to yours, praying you have a wonderful holiday

hailee

melissa <angels4hailee@nc.rr.com>
west end, nc usa - Sunday, December 24, 2006 1:51 PM CST

Nina, Tem, Ronnie & Elias <sel_nina@yahoo.com>
Trabuco Canyon, CA - Saturday, December 23, 2006 2:52 PM CST

Wishing Jared and family and Merry Christmas and a Happy New year!

www.caringbridge.org/visit/navadaharleighzlotnicki
Lori Zlotnicki(^angel Navada's^) mom <blueyetigger@verizon.net>
- Thursday, December 21, 2006 5:29 PM CST

Wow, what a Lunch for Life tree You guys have! How very cool! Thanks for adding an ornament to Sean's! Love the photo's!
God Bless, Love, Ellen
http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Thursday, December 21, 2006 4:47 AM CST

Cute pics!! They are both VERY photogenic!! I have to laugh cuz last year Nicholas and Jared had the same Christmas outfit from Gymboree and this year I ALMOST got Hannah the dress Kristin is wearing. But she opted for a black and red dress.
I hope the kids both feel better SOON! Christmas wouldn't be fun if you were sick!! We are all just getting over a yucky cold too.
Have fun making cookies and enjoy the time off school.

Heather Black and NICHOLAS (Neuroblastoma NED since 5/04 <heatherblack99@yahoo.com>
Bolivia, NC - Wednesday, December 20, 2006 8:34 AM CST

What absolutely gorgeous pictures! Thank you for sharing!!

With Much Love

My Little Elf & Her Mommy <humphity@gmail.com>
***Only 6 More Days!!!*** - Tuesday, December 19, 2006 5:43 PM CST

Happy Holidays!
God Bless, Love, Ellen
http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Sunday, December 17, 2006 1:22 AM CST

ahhh we did the flu shot also took four nurses to hold bugs down... yikes...
praying you get answers about the hair.

hailee

melissa <angels4hailee@nc.rr.com>
west end, nc usa - Saturday, December 16, 2006 7:54 PM CST

Jared & family,Just stopping by to say hi and to see if you're all getting ready for Christmas.We hope you're enjoying the season.Remember Jesus is the reason for the season.

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Monday, December 11, 2006 4:26 PM CST

so sorry we havent been on in forever, just went thru a very stressful long distant move and our phone just came on.

Love the pictures. sending prayers.
love melissa and hailee
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@cox.net>
westend, nc usa - Tuesday, December 5, 2006 6:34 PM CST

Hey Jared!
All the best with the fundraising! And I love the puppy story!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

Joanne <joanne173@gmail.com>
Singapore, Singapore - Sunday, December 3, 2006 9:28 PM CST

Wow, your entry hits me right where I live! I know there are people who feel the same way about our family: "Carolyn is better now, get over it." They just cannot understand. As one of the mother of one of the lucky THIRTY PERCENT of stage iv nb survivors, I feel it is my responsibility to do what I can to raise awareness and funding for research, not only to help the children who will come after mine in treatment, but to honor the MANY, MANY children we have lost. IMHO, your passion and priorities are in the right place. Keep up your wonderful work and good luck with the sandwich sale!
Love to all,
Jennifer Click and Carolyn & Evan Coveney <jsclick@gmail.com>
Springfield, VA - Wednesday, November 29, 2006 8:31 AM CST

Happy Thanksgiving Strayers!!! I hope you had a great day and enjoy some great weather this weekend.
Aimee, mom to Kendall and Zachary, www.caringbridge.com/ny/kendall <aimee1@optonline.net>
Long Island, NY USA - Saturday, November 25, 2006 4:04 PM CST

Dear Connie and Family -

Wanted to wish you all a Happy Thanksgiving! I have been too busy since back to work and now rarely get the time to sign the guestbooks of those I keep up with. Sorry to have been unable to let you know how much I think of you and your family. I hope it was a wonderful day.

With love and prayers,

Colleen
www.caringbridge.org/visit/janie
Colleen M. Kashino
- Friday, November 24, 2006 5:31 AM CST

Hey Strayer family,
We hope you had a happy Thanksgiving and that you got to spend it surrounded by family! We had a wonderful Thanksgiving too. I am also thankful that our boys remain cancer free!! That is such a blessing in itself!!
Have a great weekend and enjoy the holiday season!!!

Heather Black and <heatherblack99@yahoo.com>
Bolivia, nc - Thursday, November 23, 2006 7:10 PM CST

Jared,Wishing you and your family a very blessed Thanksgiving.

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Sunday, November 19, 2006 7:55 PM CST

How very scary! I hope Angel will be alright--good thing you were right on top of it and got her to the vet quickly. Hopefully you will have one more thing to be thankful for next week.
Love,
Jennifer Click and Carolyn & Evan Coveney <jsclick@gmail.com>
Springfield, VA - Tuesday, November 14, 2006 8:51 AM CST

Hello!
Our prayers are with Angel. It's a shame puppies have to taste everything. At least you knew that she ate it. Our puppy ate something poisonous and we didn't know what it was. He had to stay in the animal hospital for 2 days on iv fluids and meds. It was so sad.

I scheduled Kolton's next scans yesterday for the end of this month. We will be going the 28th for the injection and 29 for the scan. Please keep Kolton in your prayers for continued NED.

I'm glad everyone else in the family is doing well and we will keep Angel in our prayers.
Take Care,
Melissa Appleby <appl2003@rcn.com / www.caringbridge.org/pa/koltonappleby>
Easton, pa - Tuesday, November 14, 2006 8:27 AM CST

Hi Jared!
AWESOME pictures!!! :)

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

Joanne <joanne173@gmail.com>
Singapore, Singapore - Sunday, November 12, 2006 10:06 PM CST

I still stop in several times a week to check and see how things are going. The kids ARE getting big....and it's wonderful that they are so wonderfully healthy!

I continue to keep you in my prayers.

A prayer warrior from N. Minnesota,
Roxann <horsesetc@msn.com>
Audubon, MN USA - Sunday, November 12, 2006 8:44 PM CST

Hey Strayers! HAPPY 100 DAYS TIL THON!!! :-D i'm SO excited for it to be in the BJC this year...this past weekend Meg's morale team came canning at our house and we raised over $4000.00!!! it was awesome. glad to see things are going well - talk to u soon :-)
Michele Pituch <RedQT4Life@msn.com>
ALLENTOWN, PA - Wednesday, November 8, 2006 7:25 AM CST

Hi everyone!
Just stopped by. Graet to hear you are all fine. Nice autumn pics.
I'm still thinking of you lot, even thought I'm not signing your guestbook so often, but I visit your site regulary.
Take care.

www.caringbridge.org/ny/aarons

Nina <sel_nina@yahoo.com>
Trabuco Canyon, CA - Tuesday, November 7, 2006 2:31 PM CST

Hi Jared,
I hope everything is going well for you, our time we spent together at THON was one of the best experiences of my life. Stay strong and good things will always come of it.
Ian McKelvey <imm117@psu.edu>
State College, PA - Sunday, November 5, 2006 12:07 AM CST

Hi Mike, Connie, Kirsten and Jared,
I am so happy for all of you. I am so glad that things worked out...they always do, you know. I really enjoyed reading the journal and feel so blessed to have had the opportunity to have met you guys. I will always have a place in my heart for your family and I believe that we cross each others paths for a purpose.
God bless each of you and take care!
Tory Shannon
Tory St. Shannon <Toryst@comcast.net>
ShermansDale, PA 17090 - Friday, November 3, 2006 7:47 PM CST

I had to sign the guestbook as my first time by, thank you Mike & Connie for sharing. A special "hi" to Jared & Kirsten, it's been awhile since I've seen you guys but I think of you often. I'm thrilled to see Jared is healthy and from the sound of things both are doing well in their new school and their new home, keep up the good work!
John Shannon Jr. <john.shannon@jgr.com>
ShermansDale, Pa USA - Friday, November 3, 2006 8:56 AM CST

Happy Birthday, belated :o( though it may be... I hope you had a great day!!
Halloween sounds like tons of fun in your neck of the woods!! Love the pix!!

Kimberly Mease <akakaysma@gmail.com>
Lancaster, PA USA - Monday, October 30, 2006 9:55 AM CST

Hey Jared!
Sounds like you had a great halloween party!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

Joanne <joanne173@gmail.com>
Singapore, Singapore - Monday, October 30, 2006 2:04 AM CST

Hi There, what a handsome picture of Jared, Wow! They both look very crazy for crazy hair day! I hope you have a Fun Halloween! God Bless, Love, Ellen
Ellen Hanson <ehanson89@aol.com>
Marstons Mills, Cape Cod, Ma - Sunday, October 29, 2006 6:14 PM CST

Now that looks like fun! I say it should be crazy hair day more often! Very cute pictures. I hope the kids have a great Halloween!
Aimee, mom to Kendall and Zachary, www.caringbridge.com/ny/kendall <aimee1@optonline.net>
Long Island, NY USA - Sunday, October 29, 2006 10:46 AM CST

stopping by to say thinking of you! Hope you had a great weekend!

www.caringbridge.org/visit/navadaharleighzlotnicki
Lori Zlotnicki(^angel Navada's^) mom <blueyetigger@verizon.net>
- Sunday, October 29, 2006 9:53 AM CST

Jared too cute,Just stopping by to say hi and to wish you a happy day.

Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Friday, October 27, 2006 0:48 AM CDT

Happy Birthday, Mike! I'm glad to hear everything is going well and everyone is enjoying the fall weather. Hope the new puppy is learning the bathroom rules at your house. We considered getting another dog, but have decided a new baby, a toddler, a tween and a cat are too much right now. Perhaps when all the humans are potty-trained.

Love,
Candace
www.caringbridge.org/co/benjaminmason
Candace Mason <candacemas@aol.com>
Reno, NV USA - Wednesday, October 25, 2006 11:26 PM CDT

Hey Guys! Just checking in to say hello! Glad you are having fun with all the fun fall activities. What are you guys going to be for Halloween? Nicholas is a NASCAR driver.....not my choice!! He is sooo excited about it!
Good luck swimming! It is great exercise! I swam competitivly for years and if there was a decent team around here, I would get my kids on it...but there isn't!!
Have a great week!!
Heather Black and NICHOLAS (Neuroblastoma NED since 5/04 <heatherblack99@yahoo.com>
Bolivia, nc - Monday, October 23, 2006 12:44 AM CDT

Jared,Just stopping by to say hi and wishing you a happy fall.

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Sunday, October 22, 2006 1:54 AM CDT

We found your caringbridge through Christopher's page in SC. We also have a son, Jarrett, who was dxed with NB in 2004. We were amazed at how much the two boys looked alike. From your journal entry they must have simiular personalities - strongwilled. Hopefully, that strongwilled determination will help to keep them NED forever.
Lori Tripp caringbridge/sc/jarrett <grallygripper@yahoo.com>
Fountain Inn, SC - Tuesday, October 17, 2006 7:26 PM CDT

You guys are forever busy.. I'm in awe!!

I love to come and visit to see what the Strayer team have been up to.

GO JARED!!

Love Colleen - Kaitlyn's mum
Beverley, WA Australia - Tuesday, October 17, 2006 7:47 AM CDT

How exciting that Kirsten's team is doing so well!

I'll be honest at first I thought you were nuts about the ghost in that picture *smiles*, but by golly I saw it too! Didn't take me long either!

Jennifer <kidscancercrusade@yahoo.com>
- Friday, October 13, 2006 11:19 PM CDT

Hey Connie,
I just read Colleen's message below and ditto to that! You are an amazing source of support and give real meaning to the Bible verse that says to encourage one another. We are so happy that Jared and your whole family are doing well. God Bless!

Kim
Kim Malarkey <kimmalarkey@yahoo.com>
- Friday, October 13, 2006 9:55 PM CDT

Hi Connie -

You are such a tremendous source of encouragement I want to thank you for your support then, now and always! I feel so guilty when you keep such a close eye on so many fighters and I can't thank you often enough. I hope everything is going well with you all and you guys have a nice weekend planned.

I had as difficult a time seeing the ghost as I had seeing the nut in the tree - but I definitely think I saw the nut! And what a beautiful tree!

With love and prayers,

Colleen

Colleen M. Kashino
- Friday, October 13, 2006 7:07 AM CDT

Bullies Suck....
Loved the pictures, the new puppy is so cute.. Hailee got a new one too.. he is named little bits.. we put pics of him and her taking a bath together.. How are you guys liking your new house? we leave in 8 days for NC we cant wait...
Praying all is going well and no ghost....

love melissa and hailee
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@cox.net>
cavecreek, az usa - Sunday, October 8, 2006 11:35 PM CDT

I think Jared will be just fine and will handle the bullies in his own way. He fought the biggest bully of all (NB) and won! What is a little push or black eye to him? I do agree that martial arts would be a great idea. We'll be doing that shortly too. Kirsten looks soooo happy as a cheerleader! What a great photo. You are right, she does smile all over!

Hope the kids are having a great time at school!
Aimee, mom to Kendall (dx5/04) and Zachary, www.caringbridge.com/ny/kendall <aimee1@optonline.net>
Long Island, NY USA - Saturday, October 7, 2006 7:26 AM CDT

Hi my name is Abra and my son Nate also has NB. I read about you all the time here and when your mom posts to the NB archives. I am so elated to hear that you are still NED. I will be praying that you stay that way. You are an amazing little boy!!!!!
Abra mommy to Nate (and Mikey, Shelby, And Kinsey) www.caringbridge.org/wa/natemckean
Abra McKean <kristoform@hotmail.com>
Silverdale, WA USA - Friday, October 6, 2006 9:52 PM CDT

Hey Jared,
You're way too awesome to hit the other kid huh? lol... Take care!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

Joanne <joanne173@gmail.com>
Singapore, Singapore - Wednesday, October 4, 2006 10:42 PM CDT

Jared,Just stopping by to let you know we are thinking of you.Happy Fall Y'all.

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Tuesday, October 3, 2006 1:24 AM CDT

Hi Connie,
Well, I agree with you on the hitting issue. I have told Macy she has my permission to stand up for herself. When she was in first grade I received a call from the school because she had hit a 5th grade boy and made him cry. I asked to speak to Macy and she told me the reason she hit the boy was because he hit her friend and knocked the girl's glasses off her face. I then relayed the whole story to the principal and he was apologizing to us. Macy, like Jared, isn't a person who hits, but I'm glad I told her she could stand up for herself. She hasn't had any problems since then. Good luck!

All my best,
Candace
www.caringbridge.org/co/benjaminmason
candace mason <candacemas@aol.com>
reno, nv usa - Monday, October 2, 2006 6:31 PM CDT

Hi Connie,
I absolutely loved your entry... we are going through the same thing with our puppy. He was doing very well with housebreaking, except for excited peeing :) But then this past week he ate something poisonous(we think possibly a mushroom outside) and he had to be in the animal hospital for 2 nights on iv fluids and meds for his pancreatitis. He's been having more accidents since we brought him home. We'll get there though.

Jared & Kirsten, Congratulations on learning to ride your bikes!! That's awesome! Kolton started learning this summer, but is still using the training wheels.

I wish you all the best with housebreaking your puppy.

Take Care,
Melissa Appleby <appl2003@rcn.com / www.caringbridge.org/pa/koltonappleby>
Easton, pa - Sunday, October 1, 2006 4:36 PM CDT

LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON ,ALBERTA

, - Sunday, October 1, 2006 4:21 PM CDT

Sorry about the puppy perils, but Jared looks GREAT! God Bless, Love, Ellen

http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Saturday, September 30, 2006 1:26 AM CDT

Connie,

I sooooo know what you mean about puppies! Charley is 10 months old and will go outside and pee right away, then run in the house, run upstairs and poop! The joys of potty training! Actually he is driving me crazy right now getting in to EVERYTHING and tearing EVERYTHING up! Doggy school seems to help some, but we have a LONG way to go! Jared looks so happy and healthy! It is so neat to see that! Thanks for continuing to check in on Bailey!

Love from Tahoe,

Kelly www.caringbridge.org/nv/baileyaustinjohnson <mom2baycam@charter.net>
South Lake Tahoe, CA - Thursday, September 28, 2006 8:41 PM CDT

GOOD JOB ON THE BIKE SWEETY.

LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON ,ALBERTA

, - Wednesday, September 27, 2006 7:55 PM CDT

Hi Connie -

Wow - two peddlers in such a short time. Big kids you got there. Nice photos too. I hope the new job is going well and you are all having a nice September.

Thanks for all of your endless support. Knowing other people in my shoes really makes a difference. You are a large part of that, and I always want you to know how much I appreciate it.

With love and prayers,

Colleen

Colleen M. Kashino <ckashino@adelphia.net>
- Tuesday, September 26, 2006 9:10 PM CDT

Hi Jared, wow what a big boy you are on youre bike. Sorry havnt signed for a while but do check in on you. Glad to hear that youre doing so well. I will pop back soon Lots of love Betha nd Megan
MEGANS PAGE <bethhughes30@tesco.net>
croydon, surrey, uk - Tuesday, September 26, 2006 2:09 PM CDT

Connie,
Wow Jared can really go on his bike. I am so proud of him. Kiersten too!! They all grow up so fast. I remember the first time I met Jared. In the waiting room at HMC. He was fighting with Greg. He sure has grown since then. Love to you all.

Jamie <jamieeager@yahoo.com>
Ephrata, PA USA - Tuesday, September 26, 2006 10:37 AM CDT

I was thinking that was just what you need... all that energy on wheels! It is great to see! He really has grown so much in the last year.
Aimee, mom to Kendall and Zachary, www.caringbridge.com/ny/kendall <aimee1@optonline.net>
Long Island, NY USA - Saturday, September 23, 2006 8:26 AM CDT

Hi Jared!
Those are awesome photos. I'm glad that you got to meet so many people during your visit.

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

Joanne <joanne173@gmail.com>
Singapore, Singapore - Wednesday, September 20, 2006 4:18 AM CDT

Dear Connie,

With such a sad day for all today I wanted you to know that I thought of you and Jared - and it made me happy. Thank you for giving so much of you and him to us all.

With much love and gratitude -

Colleen
Colleen M. Kashinoc
- Tuesday, September 19, 2006 9:37 PM CDT

Hi Connie, Jared & Kendall look so darn cute!! I am so happy that Jared is doing so wonderful. Thanks for always caring!!! My heart is breaking for the Thomas family.
I'm glad I got to meet Angela & Christi.
God bless, Gisele
Gisele Shatto <jngranch@verizon.net>
Middleburg, Pa US - Tuesday, September 19, 2006 6:28 PM CDT

YEAH! Clean scans! What great news. Hope all of you are having a huge celebration this weekend. We're doing the happy dance here!

Love,
Candace Mason
www.caringbridge.org/co/benjaminmason
candace mason <candacemas@aol.com>
reno, nv usa - Sunday, September 17, 2006 10:37 AM CDT

Hi, I'm so glad that the news on your end is good, and that you got to meet some of "our" friends from the list there. I've met Laura and her family twice, and the Thomas's at Chicago. Hope to meet you guys one day too, maybe at Chicago next year. Jared is just adorable!
God Bless, Love, Ellen
http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Saturday, September 16, 2006 11:34 PM CDT

Hi Connie-

Jumped over to Jared's site today after I checked on my little friend Ryan. Great Photos, but a very sad post. Still, if enough people read, I am sure the cause will mover faster for it, with you right there at the front. I just wanted to say thank you for having the courage to put all the sadness on Jared's page.

I hope your weekend is nice.

With love and prayers,

Colleen

Colleen M. Kashino
- Saturday, September 16, 2006 7:23 AM CDT

We are so glad that you once again had clear scans!! That is so great!! NED is a great thing to hear!!! Connie and Mike....you can both breathe now!! The stress before scans is awful but it is great when it all just GOES away with great results!!
Hope school is going great for both of you kiddos!! Have a great and relaxing weekend!!
Take care and thinking of you!!
Heather Black and NICHOLAS (Neuroblastoma NED since 5/04 <heatherblack99@yahoo.com>
Bolivia, nc - Friday, September 15, 2006 10:13 PM CDT

So glad to hear the great news about Jared's scans.

www.caringbridge.org/pa/danielcooper
Barbara Cooper <barbe2700@yahoo.com>
Havertown, PA - Friday, September 15, 2006 6:27 PM CDT

GREAT NEWS!!!
Tracey Marshall (www.caringbridge.org/pa/alyssamarshall) <tlmmgm@aol.com>
- Friday, September 15, 2006 1:06 PM CDT

Glad you got good news on your scans!!! We are having ours on monday!!!! Dont you just hate scan time???

take care

www.caringbridge.org/tn/sydneymarie
Rhonda Dudley <rhondadud@comcast.net>
Knoxville, Tn - Friday, September 15, 2006 12:47 AM CDT

HIP HIP HOOOOOOOOORAYYYYYYYYY! Glad all was clear!

Love from Tahoe
Kelly www.caringbridge.org/nv/baileyaustinjohnson <mom2baycam@charter.net>
Lake Tahoe, CA USA - Thursday, September 14, 2006 9:17 AM CDT

Hi Connie,

Thank heaven for a clean check for Jared. He is someone who gives us all hope in a time when so many of our warriors and their families are struggling. We are all in pain over it and news like this helps us get through the day. Thanks for the quick update, Connie - I for one needed it.

With Love and Prayers,

Colleen

Colleen M. Kashino
- Thursday, September 14, 2006 5:39 AM CDT

Wonderful news!
Nina <sel_nina@yahoo.com>
Trabuco Canyon, CA - Thursday, September 14, 2006 1:53 AM CDT

Thank God for negative scans! Thank you for being so nice. We had a great time, despite it all.
Aimee, mom to Kendall (dx5/04) and Zachary, www.caringbridge.com/ny/kendall <aimee1@optonline.net>
Long Island, NY USA - Wednesday, September 13, 2006 11:32 PM CDT

Hey Jared and Connie,

Glad to hear all tests are OK so far. Pray for good results from MIBG as well. Take care.

wwww.caringbridge.org/ny/aarons

Nina <sel_nina@yahoo.com>
Trabuco Canyon, CA - Wednesday, September 13, 2006 11:28 AM CDT

Hi Connie -

Thought of you and Jared today. How nice to check in here and see that the CT was clear. Praying for normal MIBG uptake and a safe ride home for you two.

With love and prayers,

Colleen

Colleen M. Kashino
- Tuesday, September 12, 2006 11:22 PM CDT

Glad to hear everything went well today...will check in tomorrow. You'll be in my thoughts and prayres.

Take Care,

Melissa Appleby <appl2003@rcn.com / www.caringbridge.org/pa/koltonappleby>
Easton, pa - Tuesday, September 12, 2006 8:27 PM CDT

Hi there!
Just stopped by to let you know we are thinking of you and praying for clear scans.
And Happy Anniversary Connie and Mike.
Love your new puppy.

Take care.

www.caringbridge.org/ny/aarons

Nina <sel_nina@yahoo.com>
Trabuco Canyon, CA - Monday, September 11, 2006 1:32 PM CDT

Keeping you in our thoughts for safe travels and great scans.
Much love,
Jennifer Click and Carolyn & Evan Coveney <jsclick@gmail.com>
Springfield, VA - Sunday, September 10, 2006 10:05 PM CDT

Oh boy a new puppy!!! How is your other dog liking Angel? I bet you both are having a great time with her!!
Have a safe trip to CHOP and we will be praying for great scans!! I am sure all will go well and you will hear those 4 lovely words.....NO EVIDENCE OF DISEASE.....once again!! Jared....hope you are a big brave boy and be good for those scans!!
Connie and Mike....scan time well....sucks....and I am sure your nerves (if you are anything like me) are going crazy. But know Jared has TONS of prayers being said for him for clear scans!! We are thinking of you and let us know how he did!!
Take care and stay strong!!
Heather Black and NICHOLAS (Neuroblastoma NED since 5/04 <heatherblack99@yahoo.com>
Boliva, nc - Sunday, September 10, 2006 9:16 PM CDT

Hi, Great photo, I'll be thinking of you and praying, and please give the Thomas team a hug from us.
God Bless, Love, Ellen
http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Saturday, September 9, 2006 11:03 PM CDT

Connie,
I'll be saying extra prayers for clean scans. I know they're stressful even when you feel that everything is okay. Try to have a great weekend despite the stress. Please give the Thomas Team hugs from us if you see them.

Love,
Candace
www.caringbridge.org/co/benjaminmason
candace mason <candacemas@aol.com>
reno, nv usa - Friday, September 8, 2006 6:16 PM CDT

Love the beautiful pictures. Will keep your family in my thoughts next weeks with your upcoming scans! Continued good health!
Tracey Marshall (www.caringbridge.org/pa/alyssamarshall) <tlmmgm@aol.com>
- Thursday, September 7, 2006 8:01 PM CDT

Love the pictures. Chris also likes to put underwear on his head to make us laugh. Hope that you're adjusting well to night shift. Jared is in my prayers for wonderful clean scans next week
Linda Kee - www.caringbridge.org/sc/christopher <chrisnbreemom@yahoo.com>
Charleston, SC - Thursday, September 7, 2006 6:56 AM CDT

Connie,
You do look very beautiful. Now that you're on the night shift, Kirsten can do your hair for work every night! Jared looks especially handsome with underpants on his head. Benjamin likes to wear them around his neck. Go figure. I hope all of you are having a great week!

Love,
Candace
www.caringbridge.org/co/benjaminmason
candace mason <candacemas@aol.com>
reno, nv usa - Wednesday, September 6, 2006 6:18 PM CDT

Hello Jared,

You are very cute. I also have a 5 year old Jared. His birthday is July 5, 2001. You are a very brave boy and I hope your upcoming scans are clear. Then you will be that much closer to being cured. Take care sweety!

Love,

Vicki Fields (Jayden's Mommy)

www.caringbridge.org/visit/jayden

Vicki Fields <jarjaysmom@aol.com>
Louisville, KY US - Tuesday, September 5, 2006 3:20 AM CDT

I wanted to wish you happy first day of school, but ours must start later than yours. That's OK though, sounds like you had a very exciting day anyway. We'll be thinking of you and praying for you during next week's scans.
Aimee, mom to Kendall (dx5/04) and Zachary, www.caringbridge.com/ny/kendall <aimee1@optonline.net>
Long Island, NY USA - Monday, September 4, 2006 10:46 PM CDT

Hi, my name is Kim Booth and I am the mother to Chandler Booth who was diagnosed with nb on July 17, 2003 in Atlanta , GA. Chandler was 14 months old at that time. He was also on the same protocol as your son (ANBLOOP 1, I think it was?) Chandler is also doing well....they have never given us the NED title but he sure looks and acts great. I just wanted to write to you to let you know about another child that was dx so close to yours and is doing so well. Congrats on a healthy, beautiful boy and girl! Chandler also has a caringbridge site...www.caringbridge.org/ga/chandlerbooth Hope you will read about us. I found you through Dustin Cobb's site.
Kim Booth www.caringbridge.org/ga/chandlerbooth <kbooth@colquitt.k12.ga.us>
Moultrie, GA - Monday, September 4, 2006 8:52 PM CDT

love the hairdos, my brothers use to run around with undies on their heads...
have a great weekend.
Melissa and hailee
http://www.caringbridge.org/az/hailee

melissa <angels4hailee@cox.net>
cavecreek, az usa - Monday, September 4, 2006 8:19 PM CDT

Love the hair dos! Just beautiful, I'm glad all seems to be going so well for you.. Thinking of you.

www.caringbridge.org/visit/navadaharleighzlotnicki
Lori Zlotnicki(^angel Navada's^) mom <blueyetigger@verizon.net>
- Monday, September 4, 2006 6:18 PM CDT

Dear Connie -

I LOVE the picture with your new hairdo! I am so glad you posted it because it is always so much better than having to imagine how beautiful you looked!

I was also very comforted by you telling us all that you were not sad that Jared was going off to school on his first day. Janie starts Pre-K this coming week and I am more excited than anything. I have been feeling guilty about that. I am sure you know what I mean.

Good luck with your first day of work today. It will be a tiring few weeks for you I guess, while you change your internal clock. Maybe not so bad since you elected to change your shift for wonderful reasons. Still I hope the transition is not too hard.

Take care!

With love and prayers,

Colleen K.
Colleen M. Kashino
- Sunday, September 3, 2006 6:47 AM CDT

I love the pics of the kids getting on the bus for the first day of school!!!...too cute!!! Well stressful scan time is also coming for us we are at CHOP this week Wed. and Thurs for MIBG injecton and then scan and then back for follow-up with Dr.Grupp on the following Tues I think at 12:30...i have to check my trusty calendar...i know you guys are in Philly soon also maybe we can hook up...take care guys as always we are praying for NED forever for your Jared!!!Sincerely, Steph www.caringbridge.org/visit/alexabailey

Stephanie Bailey <Bbpottstown@aol.com>
Sanatoga, Pa - Friday, September 1, 2006 7:40 PM CDT

Hi Connie,
Wow! Your kids look great and so very happy to be going to school. I'm glad Jared is standing up for himself. But most of all I'm happy they had such a great first day of school.

Love,
Candace
www.caringbridge.org/co/benjaminmason
candace mason <candacemas@aol.com>
reno, nv usa - Thursday, August 31, 2006 10:42 PM CDT

Hi Jared!
I hope you're enjoying school! :) GReat 1st day photo!

With love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW

Joanne <joanne173@gmail.com>
Singapore, Singapore - Thursday, August 31, 2006 10:30 AM CDT

Hi Connie, just wanted to drop in and say hello. Great picture of the first day of school!! I haven't been posting as much in the group, I have been just trying to take it easy. Glad Jared is doing so great!! yeah!!!
Gisele Shatto <jngranch@verizon.net>
Middleburg, Pa US - Wednesday, August 30, 2006 12:43 AM CDT

Connie,
So glad the kids had a great first day of school. They look so cute. I am glad Jared didn't take any guff from a potential bully. After all he has been through he shouldn't have to deal with a bully. Kirsten looks great and she sounds like a real social butterfly.
We think of you often, until we talk again
Love to you all,

Jamie Eager <cjmssb@ptd.net>
Ephrata, PA USA - Wednesday, August 30, 2006 12:26 AM CDT

Hey guys! I'm glad to see everyone had a great first day of school!
its hard to believe summer is over already :-(
hope all is well!!
Michele Pituch <RedQT4Life@msn.com>
ALLENTOWN, PA - Wednesday, August 30, 2006 11:14 AM CDT

Hi Connie,
I'm glad to hear the kids like school. I love your story about Jared on the bus!! Kolton starts preschool next week and I'm nervous because he's not shy at all and very stubborn and really sticks up for himself....so I'm hoping I don't get any phone calls!! LOL!!!

I'll be thinking of all of you as Jared's scans are coming soon. I'm sure everything will go well as usual...he looks great!!

Take Care,
Melissa Appleby <appl2003@rcn.com / www.caringbridge.org/pa/koltonappleby>
Easton, pa - Wednesday, August 30, 2006 8:38 AM CDT

Jared,Happy Back to school!Just stopping by to let you know we're thinking of you.

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Tuesday, August 29, 2006 10:57 AM CDT

Hi everyone!

It has been a long time since I visited your page and I'm really sorry :)
Jared I'm impressed - you will be the best one this year at school, believe me. Hope everything is OK with your family, will try to read your old entries later. We are so glad you love your new house. What about testing, isn't Jared's time comming up soon or did you have your scans at the we were away???? Sorry, I do not have any idea.
Take care everyone. Talk to you soon again. have a great weekend.

www.caringbridge.org/ny/aarons

Nina, Tem, Ronnie and the little Eli <sel_nina@yahoo.com>
Still in Europe - Saturday, August 26, 2006 8:45 AM CDT

Hi Connie -

Just catching up with your last few posts - I am so glad you are finished with all of the house business and I hope that all is settling down once and for all with your new one! It looks lovely and like a very comforting place to be. I had to laugh when I read what you wrote about Kirsten and the laundry shoot. I know lots of grown up girls who would just love to have one of those!!! You know, she really got me thinking......I want a laundry shoot too!!!!

Good luck with the new school start!

With love and prayers,

Colleen

Gl
Colleen M. Kashino <ckashino@adelphia.net>
Lake View, NY - Saturday, August 26, 2006 6:14 AM CDT

Keeping you in my thougths and in my prayer's always.

Love Brenda MY LOVING DAD'S SITE <brurka@shaw.ca>
Edmonton,Alberta/Canada, - Saturday, August 26, 2006 2:20 AM CDT

Oh Connie....I just have to smile every time reading your stories! I can just see them going around taking that border off the wall! I don't mean to giggle....but.... you really do make my night when I stop by to check on you!

Kirsten, I'm so happy that there will be a familiar face in your classroom! And Jared, you write your name very well! Good job!

I'm just a little jealous...I always said that when we moved I wanted to get a trampoline....well, we've been here three years.....and there is still that nice big open space in our yard just waiting to be filled. Not so sure the neighbors would enjoy watching ME jumping on it, but I know I'd have fun! : )

Next weekend we'll be heading up to Penn State for the first game. I'm soooo excited! Actually, I don't go for the football...I go for the tailgate! We usually have about 30-50 kids stopping by for something to nibble on. We really do have a good time. I'm also getting very psyched for THON....fundraising starts October 1st....just around the corner! I'm hoping that we'll be able to host the canners again this year. We had so much fun with them last year. Neat, neat group of kids, aren't they Connie?

Well I better clear the dinner table. Hope you have a great weekend! love, sylvia

Sylvia Pituch <smp75@msn.com>
Allentown, PA - Friday, August 25, 2006 6:36 PM CDT

I'm glad Kirsten is very happy with how school worked out this year! Having friends in your class is always a great surprise and comfort!

Jennifer <kidscancercrusade@yahoo.com>
- Tuesday, August 22, 2006 7:39 PM CDT

Hi Jared
My name is Jenna and I came across your website. You are a fighter and an inspiration. You are in my thoughts and prayers. I hope you enjoy school, it sounds like it's going to be lots of fun.
www.caringbridge.org/canada/jenna
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Monday, August 21, 2006 0:24 AM CDT

Hello!
It's great to hear how well everything is going! I'm happy for you that your move is over and things seem to be settling down. That's awesome that the kids are excited to go to school. Kolton starts preschool on Sept. 6th. He's excited now, but we'll see after he starts :) It's exciting for me but also sad to see my baby starting school.
I hope you enjoy the last week or so of the summer!
Take Care,
Melissa Appleby <appl2003@rcn.com / www.caringbridge.org/pa/koltonappleby>
Easton, pa - Sunday, August 20, 2006 9:14 PM CDT

Hi Jared!

I am so glad you like your new house!!!!!
You are SUCH a cutie--keep up the good work staying healthy!!!!!

Here's hoping for an awesome year of SCHOOL!!!!!

Love and prayers,
Donna Ludwinski <ludfarm@arvig.net>
Park Rapids, MN - Saturday, August 19, 2006 5:40 PM CDT

So happy that Jared had such a good time at school. Cameron will start kindergarten this year also. He can't wait. Thank you for signing Bailey's page. His tests were good and I'm sure Kelly will update soon. They stayed down in SF for some fun at the Santa Cruz Boardwalk for Bailey's 5 year Bone Marrow Birthday. Have a happy rest of the summer.
Christy and Tim Smith
Bailey's Nonny and Papa <csmithnonny@charter.net>
Genoa, NV USA - Thursday, August 17, 2006 10:48 PM CDT

That is fantastic that Jared adjusted so well to his class surroundings, and that his school had such a day! My kids never had that introductory day...I think that's fantastic. And you're right Connie, it will be good for Jared to socialize and meet friends....my kids are into their second day of school...getting up for the older two at 5:45am has not been an easy transition...Dave gets up around 7:30 so that's not too bad. You all have a great weekend and enjoy the last couple weeks until school starts!
Kathy
caringbridge.org/fl/david
kathy <joy2jak@adelphia.net>
boynton beach, fl usa - Thursday, August 17, 2006 7:54 AM CDT

G'DAY JARED, SORRY I HAVE NOT STOPPED IN FOR A WHILE BUT BEEN A BIT SICK. SOUNDS LIKE A GREAT NEW HOUSE YOU HAVE. I AM GLAD YOU ARE DOING SO GREAT AND STOMPED ON THE NB MONSTER AND YOU ARE OUT BEING A KID. KEEP THAT BIG SMILE ON THE DILE (face) MATE AND I SEND YOU LOTS OF MY STRENGTH AND COURAGE AND HEAPS OF BIG BIG BIG KOALA HUGS FROM THE LAND DOWN UNDER AND ME (JAY)

www.jaysjourney.org
....Neuroblastoma Survivor...., AUSTRALIA - Wednesday, August 16, 2006 9:23 PM CDT

Glad to hear you are getting settled in the new house. It is always an adventure to move! I am sure you will find LOTS of fun things going down the laundry shoot...hopefully just not a kid!!
Hope you all have a wonderful remainder of the summer. Ours ends next week...the 25th. But the kids are getting excited to get back to school. We are going to head up to Rehobeth Beach, DE for one last weekend trip before school starts!!
Glad all is well!!
Heather Black and NICHOLAS (Neuroblastoma NED since 5/04 <heatherblack99@yahoo.com>
Bolivia, nc - Wednesday, August 16, 2006 9:13 PM CDT

Connie - Jared looks fabulous! He'll be NED for 3 years this December - WOW - What a milestone! We will be at CHOP the whole month of September so e-mail us when you're there. We'd love a visit! You're great to support so many kids with NB.

Your friends,
Kim and Henry
Kim Malarkey <kimmalarkey@yahoo.com>
- Wednesday, August 16, 2006 6:20 PM CDT

What a cool house! I am so happy the move has gone well and the kids are enjoying their new home. How's mom holding up with all the unpacking? It doesn't seem possible that summer is almost over, does it?

Lots of hugs,
Candace
www.caringbridge.org/co/benjaminmason
Candace Mason <candacemas@aol.com>
Reno, NV USA - Wednesday, August 16, 2006 9:25 AM CDT

Hi, the pool looks great!!! I'm glad that everyone is well. God Bless, Love, Ellen

http://www.caringbridge.org/ma/seanhanson
Ellen Hanson <ehanson89@aol.com>
Cape Cod, Ma - Monday, August 14, 2006 6:41 PM CDT

Jared,We hope you have a wonderful week and enjoy the rest of the summer.

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
Port Orchard, wa usa - Monday, August 14, 2006 3:14 AM CDT

love the new house, it reminds me of ours to be ours is yellow and on lots of land like yours we also have no neighbors on either side or behind just in front of us, i promise to post pictures if we ever get moved....
enjoy the pool that is what i will miss we wont have one, but there is a community pool down the road.

Hosted by Sparkle Tags
hailee and i are just stopping by to say we are thinking of you.
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@cox.net>
cavecreek, au usa - Saturday, August 12, 2006 11:28 PM CDT

What an adorable little man! I came to Jared's site from another and I'm so glad I did! I will add him to my prayer list and pray he stays well and continues to be a happy little guy! Your new house is great, I love the privacy bushes around the pool and the big backyard! I used to live in Berwyn, PA.....moved down south 17 years ago with my first child and almost forget what it's like to have nobody practically on top of you! Hope you get all the glitches straightened out and you all enjoy your new home and neighborhood!
Kathy
caringbridge.org/fl/david
kathy <joy2jak@adelphia.net>
boynton beach, fl usa - Saturday, August 12, 2006 7:39 PM CDT

Just stopping by to check in. The new house looks great. It's nice that you feel so "at home" already. Good luck with the organizing and upacking, and the new job!

Thomas and I went to UCSF for scans this week. Everything looked clear on the preliminary reports. We should get the final reports today, along with his VMA results. It's always a relief to get through the scans with a good outcome. Thomas starts preschool in one week. I'll be updating his page soon!
Take care...
www.caringbridge.org/ca/thomas
Theresa Flynn Gasman <flynngasman@snowcrest.net>
Redding, CA - Friday, August 11, 2006 10:56 AM CDT

HI Connie!!! I love the new old house! It looks like mine, kinda, just you have a pool and nice landscaping! and I don't lol!!
Hope the new job works out great!! Love ya!

Kimberly Mease <kdknd@totalusa.net>
Lancaster, PA USA - Thursday, August 10, 2006 9:08 AM CDT

Connie,
Hope unpacking your house is going well. I hope you will post pictures. How are Kirsten and Jared liking your new home?

Love,
Candace
www.caringbridge.org/co/benjaminmason
candace mason <candacemas@aol.com>
reno, nv usa - Wednesday, August 9, 2006 11:13 AM CDT

Dear Connie -

I see you have your computer unpacked! :-)

Thanks for the update. I have been thinking of you. Hope things are settled down well enough soon!

With love and prayers,

Colleen
Colleen M. Kashino
- Wednesday, August 9, 2006 6:58 AM CDT

Ahhh, moving. I am from a long line of military folks--lots of moves. I distinctly remember EVERY time I was down to the wire and had to start packing, I had an overwhelming urge to read a novel, or take a nap. UGH! I wish I could help too!
Blessings to you in your new home and we sure love to see Jared looking so well!!!!!!
Donna Ludwinski <ludfarm@arvig.net>
Park Rapids, MN - Tuesday, August 8, 2006 7:46 AM CDT

Hi Jared,
What a neat looking little boy and family. I am Melissa B's great grandma and I found your web address when I checked out her web page this afternoon. She was at our home 3 times in the last two weeks, along with her baby sister. We are thrilled that both you and she are doing well! Hope you enjoy your new home. It is always a great adventure to start making new roots! I suppose you will start kindergarden this year, too. I have rambled on too much. We do wish you well and will add you to our prayer list.
Nina Pudil
Nina Pudil <pudil2831@netzero.com>
Cedar Falls, Iowa U.S.A.. - Sunday, August 6, 2006 6:11 PM CDT

Connie -

HOLY COW as I write this I wish I could help you with the cleaning and unpacking, as my kids are still asleep and I actually could! What a wild ride the new house has turned out to be -

On the bright side, you have a new home, and you will be settled before you start the new job. Congratulations!!! Hope the kids are well.

With love and prayers,

Colleen
Colleen M. Kashino <ckashino@adelphia.net>
- Sunday, August 6, 2006 6:54 AM CDT

Connie! I am crossing my figners that your move goes smoothly and your realtor gets reimbursed! So glad you got the home you wanted.

Love,
Candace
www.caringbridge.org/co/benjaminmason
Candace Mason <candacemas@aol.com>
Reno, NV 89521 - Saturday, August 5, 2006 8:52 PM CDT

hi!hope you are fine! keep smiling and take care! love and bless heini and eevi

www.caringbridge.org/visit/eevi
heini <heini.luukkonen@elisanet.fi>
tampere, finland - Saturday, August 5, 2006 12:42 AM CDT

Jared,

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
Port Orchard, wa usa - Saturday, August 5, 2006 0:36 AM CDT

Cannie and Jared

I haven't visited in awhile, but thought I would check in tonight. Wow you look great!!! Good luck with the move.

Julia and Angela's Mommy
www.caringbridge.org/visit/angelahill
Holly Hill
Winnipeg, Canada - Thursday, August 3, 2006 11:22 PM CDT

Oh my! Good luck (and congrats!) on the move! What a busy summer.

So happy to hear your wonderful little guy is enjoying a healthy summer!

I continue to pray for him.
Roxann <horsesetc@msn.com>
AUdubon, MN USA - Thursday, August 3, 2006 7:32 PM CDT

OMG Connie, Good luck with that packing!!!! So glad everything is working out one way or another--that's one good Real Estate agent you have!
Hope the move goes smoothly. Make sure everyone takes it easy in this heat. We'll be looking forward to pictures of the new house.
Love,
Jennifer Click and Carolyn & Evan Coveney <jclick@mindspring.com>
Falls Church, VA - Thursday, August 3, 2006 8:43 AM CDT

Hey Jared!
I'm glad to hear that you got the house!
With love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW

Joanne <joanne173@gmail.com>
Singapore, Singapore - Thursday, August 3, 2006 5:21 AM CDT

Jared,Mickey just stopped by to say hi and to let you know we are thinking of you.

God bless,love&hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
Port Orchard, wa usa - Monday, July 31, 2006 10:59 PM CDT

Hello Connie,
I'm keeping my fingers crossed the roof on your new house is repaired to your satisfaction. You have so much on your plate right now. I'm glad you had a great time at the beach. The kids looks great!

Love,
Candace
www.caringbridge.org/co/benjaminmason
candace mason <candacemas@aol.com>
Reno, nv usa - Monday, July 31, 2006 5:44 PM CDT

Glad to hear you all had a good weekend.
Love the beach pics. I have always hated packing
but then you get to see a lot of things you thought
were lost...and throw a lot of stuff you don't
need away. Great way to "Spring Clean" :-)

Enjoy the rest of the summer.
Hugs,
Terri
Terri Mead <dreambear_2@yahoo.com>
Taylorsville, UT USA - Monday, July 31, 2006 1:36 PM CDT

The kids look great at the beach, I am so glad to see all of you enjoying the summer and living life to the fullest! I pray the move goes smoothly and you get the roof problem taken care of. Pretty soon you will be in your new house and the kids will be off to school! Crazy how life goes by so fast right? TAKE CARE YOU ARE ALWAYS IN OUR THOUGHTS AND PRAYERS!!! HAVE A GREAT DAY! Love, The Bailey family www.caringbridge.org/visit/alexabailey

Stephanie Bailey <Bbpottstown@aol.com>
- Thursday, July 27, 2006 10:08 AM CDT

Hi Connie -

Wow - lots of wonderful news from your end. What a nice treat that your house sold so fast! Have you started packing yet?!? When I read about your changing jobs, I could barely believe what you have on your plate. I don't know how you do all you do - especially regarding all the time and effort you devote to promoting NB awareness and fundraising, yet STILL write all those tidbits about those darling kids of yours as if you spent every minute of the day with them.

I should thank you now for all of your hard work. You are truly an inspiration, and I hope to be able to contribute in a way that you have demonstrated to us all, once our lives are more structured here. I have only 6 weeks before I go back to work (since Janie's dx). Very scared, I don't want to leave, but it is part of the process of moving on, and a step I have to face. Connie, you give me great hope.

With love and prayers,

Colleen
Colleen M. Kashino <ckashino@adelphia.net>
- Thursday, July 27, 2006 7:14 AM CDT

Connie....I always say "you're never lost, just somewhere you've never been before".... : ) Good luck to you with your new position at work. It will take some adjustment switching to night shift, but you are so right, you will have that little bit of freedom to work around Jared and Kirsten's schedules for school, etc. Also glad to hear that your home sold! Hope everything works out with your new home situation. Looks like the kiddos had a good time at the beach. We had our trip to Knoebels which was sooo much fun! We go with four other families and just have a blast. It amazes me that though all the kids are teens to early 20's, they still like doing this...and they all get along so well and just have so much fun. Neat to see them all turning in to wonderful young adults too. This year we made t-shirts...Meghan designed them and they really turned out neat....AND, everyone in the park, including the employees, wanted them! We got a kick out of that. We had so much fun with those shirts we washed them that night and wore them again the next day. We're already working on the design for next year! Our friends, the Kinsella's, their middle child, Kevin, started at the Merchant Marine Academy the week before our trip...this was the first year he wasn't able to join us, and his mom and dad were a little emotional. TO THE RESCUE....Kevin Borden, dad of the other family, who brought with him a lifesize face of Kevin Kinsella that he mounted on foam board. We took Kevin with us everywhere....on the roller- coaster, bumper cars, at the ticket booth, peeking out of the ladies room, and making the campfire! We took pictures of him doing all of these things (people around us thought we were NUTS!!) and we're putting together a book of the pics with funny captions to send to Kevin.... along with a shirt that we made for him. In a few weeks we'll be heading to the shore for a few days to visit with Victor's uncle, which will be nice and relaxing.

Before you know it THON 2007 will be here! Can't wait! Should be an interesting transition this year. We're looking forward to hosting the canners again. What a neat group of kids.

Have a great rest of the week. Sending hugs your way.
love, sylvia

Sylvia <smp75@msn.com>
Allentown, PA - Wednesday, July 26, 2006 4:00 PM CDT

Happy to hear you had a blast at the beach, weather considering! but you made the most of it, and that's what counts the most!

www.caringbridge.org/visit/navadaharleighzlotnicki
Lori Zlotnicki(^angel Navada's^) mom <blueyetigger@verizon.net>
- Tuesday, July 25, 2006 1:26 PM CDT

I hope you all have a fantastic time at the Beach!
I am so jealous! SLC is having a heat wave, and I am
going to melt I think! ;-)
Congrats on the house and new job. Very true that
family is first. It has to be.

Thanks for all your posts Connie. I do read them, but
lately I just can't seem to get to other's sites...
tonight is rare, as I have to wait for some paint to dry! lol

Many hugs,
Terri
www.caringbridge.org/ut/mead.auggie
Terri Mead <dreambear_2@yahoo.com>
Taylorsville, UT USA - Friday, July 21, 2006 10:55 PM CDT

Congratulations on the new job and selling your home, Connie. It sounds like your new job will be a great fit for you and your family. I'm with you - - family first!! Hope you all have a wonderful time at the beach.

Love,
Candace
www.caringbridge.org/co/benjaminmason
candace mason <candacemas@aol.com>
reno, nv usa - Friday, July 21, 2006 9:47 AM CDT

Jared & Family,We hope you have a wonderful time at the beach.

God bless,love&hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
Port Orchard, wa usa - Thursday, July 20, 2006 9:43 PM CDT

Hey Jared!
When I put my dog at the pet hotel, she refused to eat too! Maybe its common with well loved doggies huh?

With love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW

Joanne <joanne173@gmail.com>
Singapore, Singapore - Wednesday, July 19, 2006 11:36 PM CDT

Have a great time in Ocean City. My mother in law lives in Rehobeth Beach, DE...just up the road from Ocean City....we were suppose to be going up this coming weekend but it just isn't going to happen. Glad you have been having a good summer so far....you sould like us....too hot to do anything else but the pool or beach!!
Good luck with the house...hope it works out!!
Talk to you later...and I will get Nicholas' page updated one of these days....just been CRAZY busy here!
Heather Black and NICHOLAS (Neuroblastoma NED since 5/04 <heatherblack99@yahoo.com>
Bolivia, nc - Tuesday, July 18, 2006 9:09 PM CDT

Hey Wonder Mom,

Glad to see you are all having a blast this summer!
Way to go. I love the photos. It is soooo wonderful to see the joy you have as a thankful happy family!!!!

Go Jared!
Donna Ludwinski <ludfarm@arvig.net>
Park Rapids, MN - Tuesday, July 18, 2006 9:20 AM CDT

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