WELCOME TO JARED ( and KIRSTEN) STRAYER'S CARING BRIDGE PAGE
This page has been created to keep friends and families updated on Jared's battle with Neuroblastoma.
Jared is a 8 years old "little" guy. On July 15, 2003 (one month after his 2nd birthday) Jared was diagnosed with Stage IV Neuroblastoma.
Neuroblastoma is a childhood cancer that has a high rate of relapse. Jared was n-myc amplified with unfavorable pathology.
Jared was treated at Children's Hospital of Philadelphia and Hershey Medical Center on CHP-667 (COG ANBL00P1).
He went through 5 rounds of chemotherapy, surgery, 2 stem cell transplants, radiation and 6 months of Accutane. Jared finished Accutane in 10/2004.
Jared has been NED since 12/2003.
Jared is kicking NB butt. Jared is an independant, strong willed and fun loving energetic little guy that keeps us on our toes.
We are thankful everyday at how well Jared is doing after all he has been through.
Jared and his 9 year old sister, Kirsten, are a close knit pair and can always be found together playing or "planning something".
We are thankful for both our little ones.
Please view the guest book while you are here and leave a message so we know you were here checking in on us.
Thank you for stopping by.
Connie
Jared had repeat scans (MIBG and CT of the abdomen) in March 2008 and we are thrilled that NED (No evidence of disease) status is continued. Our next and last scans will not be for an entire year, which means March of 2009.
TO DOANTE TO THE DANCE A THON YOU MAY GO TO http://www.thon.org
The dance a thon raises money for families dealing with pediatric cancer at Hershey Medical Center. If you do donate, donate in honor of our Penn State sponsering organization, LIFE house. I know they will appreciate it.
Lunch for life is an organization that raises money for Neuroblastoma research.
I thank you all for your donations to Lunch for Life You can click on the above link and see Jared's tree, how much money we have raised and who has donated.
JARED IS A FIVE YEAR EVENT FREE SURVIVOR !!!
This is a direct link to an organization that supports childhood cancer. The goal of this organization is to raise awareness and funding for pediatric cancer. The goal next year is to raise the same awareness for childhood cancer month (September) as Breast cancer gets in October. Help us reach our goal. You can also go to this site and sign a pediatric cancer petition. Please sign the petition and help our goal.
This is Dr. Grupp (Jared's oncologist who is battling Lymphoma, as he also continues to treat kids with cancer, and does research to find a cure for the same Lymphoma hw is battling). Join us to raise money for the Leukemia & Lymphoma Society in honor of this gentelman
You can either join and walk with us or make a donation if you are able. Thank you for your support and for checking in on us
Journal
Friday, October 16, 2009 7:07 PM CDT
Just a quick update:
All is going well here. School is going well for the kids. Kirsten is finding out they have lots of homework in 5th grade and Jared is doing well in 3rd grade. Life is moving right along just like it should be.
Kirsten is finishing up her soccer season and ready to start swimming. Jared was playing football but that kind of did not work out. It had nothing to do with Jared but instead had to do with the coaching and the organization. Jared is no longer playing which is a good thing. You can only beat your head against a wall so many times till you have to stop. Not real happy with the organization and how it is ran. I could go on about that but I just want to forget about it.
Next weekend on October 24, we are participating in walk at FDR Park in Philadelphia, for the Leukemia and Lymphoma Society In honor of Dr. Grupp, Jared’s oncologist who was diagnose with Lymphoma last November. If you want to join our team or make a donation you can go to the link above and do so. I look forward to honoring Dr. Grupp next week. He is a fine man and a wonderful clinician.
Mike and I are doing well and taking life one day at a time. Life is good.
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