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Hi Heather, sorry it took so long to get to your website :( I lost the paper you gave me and tonight as I was cleaning my office I found it! Hope you are doing well! Hugs
Erin (LVH nurse)
Nazareth, PA United States - Monday, June 22, 2009 8:23 PM CDT

Hi Heather!

Did I see you and your mom at Malisa's baby shower? As always, you all looked great. I realize it was an effort for you to get there, but it was fun to see you. How is Aly doing?

Know that you, Aly, your mom, and all the Mito maidens are in my thoughts daily. You have given me such a gift by getting to know you all. If any of you will be in Boston, please let me know.

With hugs and love,
Melissa
Melissa Hubbard <mthubbard@verizon.net>
East Walpole, MA - Sunday, April 12, 2009 9:31 PM CDT

heather, just wanted to let you know I'm thinking about you and hope you bounce back soon
sharon
sharon walk <sharonw1124a@aol.com>
- Saturday, January 24, 2009 1:11 PM CST

Heather I pray for you every night. Positive I never forget you can googleize Gephph to read my triumps in life.
because of you I'll strive to live longer
Jeff Petz <jeeffpetz@cox.net>
-----------------------------------------, ------------------ Obamaville - Friday, January 23, 2009 2:38 AM CST

Hi Heather,

I wanted to write to say hi and to pray that you feel better soon. Happy New Year and we'll keep praying for you.
Paul Coleman <dad2colemankidz3@aol.com>
Easthampton, MA USA - Thursday, January 1, 2009 11:37 PM CST

Prayers for your family still pour-out to your family allmost seven monthes after loozing Heather.
J.S.Davidson <jsdavidson@prayers for you.heaven>
Pau, Hawaii U.S.A. - Tuesday, December 30, 2008 7:53 AM CST

We huddle by the fire on this bitter cold night,
Enjoying hot cocoa by the warm fire light.

While the smells of a feast fill this rickety old shack,
Icy winds whistle as they dance through the cracks.
Surrounded with blankets, sweet carols we sing,
Happily awaiting what this Christmas will bring.

You won't find any presents 'neath our skimpy tree.
Ornaments are hand-made and so is our wreath.
Under limp mistletoe, mom gives dad a kiss,

Atmosphere of joy and love

Merry Christmas to all of you.
Everyone here at our house is thinking of you.
Remember Christ loves you, no matter your worth.
Revel in the illuminating joy of His birth.
Your love is the only gift He'll ever ask.

Celebrate His life and in His light you'll bask.
Holiday giving and the spread of good cheer,
Really is something we could keep up all year.
Imagine a world where it was Christmas each day,
Sounds hard to do, but it could be that way.
This is our Christmas wish for all of you tonight--
May His warmth surround you like a blanket of light.
All your wishes be granted with His blessings of love,
Sent special delivery from the Angels above.

Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Wednesday, December 24, 2008 8:44 AM CST

Hi Heather -- Thinking about you and praying you are doing better with each day. Planning to come visit you soon. Sending lots of love and hugs your way.
Sheri <sheri@ionhr.com>
New Tripoli, PA - Friday, December 5, 2008 9:11 PM CST

It's the time of year when we're reminded to give thanks.
Instead of waiting until next year to be reminded,
Let's make every day one of thanksgiving;
After all, each day is a unique gift.
So, give a hug for no reason;
Say I love you, just because;
Share a smile with a stranger;
Take the time to count your blessings;
Don't take anything or anyone for granted;
And end each day with no regrets.
Thank you, my friends and family,
For sharing, caring, laughing and crying with me.
I'm truly blessed to have each and every one of you in my life
And I am thankful you have allowed me
To be a part of yours.
May you and yours have a safe and memorable Thanksgiving.

Joanne K (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Thursday, November 27, 2008 8:21 AM CST

Hello Heather Girl,

I'm so bummed that I didn't get to meet up with you and Aly on my way home, but I totally understand how hard it is when you have stuff planned back to back two days in a row. I'm just glad you were up to doing those activities, and that you are physically able to attend the conferences you are. It was great to get to meet Malisa in person, and everything worked out well, because I think both she and I were pretty exhausted afterward with all of our talking. :-) I feel asleep in the van as we were driving away. Well I know these wishes are belated, but I hope you had a great holiday weekend!

Love,
Bonnie

Bonnie (www.caringbridge.org/az/bonniemarie) <bonniebelle@cox.net>
Mesa, Arizona USA - Tuesday, September 2, 2008 9:02 PM CDT

Hi Heather its Jo. I helped to take care of you at the Hospital LVH. I hope all is well and you are in our prayers.
Jo Laudenslager <ranjo96@yahoo.com>
Emmaus, PA USA - Monday, August 11, 2008 5:07 PM CDT

Hey Heather! You are super! Don't let those docs push you around!
Thank you so much for the late night chats!
:) Melody
Melody Holmes <sharnholmes@netscape.net>
- Friday, August 8, 2008 9:48 PM CDT

Hi Heather,

Thinking of you and hoping and praying that all went well and that you are recovering from the surgery. I hope to hear that you are home soon without any complications from the surgery or any major movement problems. I think of you often and I was wondering if you plan on going to see Dr. Cohen in Philly on August 10th? If so I hope to be there too!! Maybe we can go together, that would be fun.!! And it would give us time to catch up on things. Keeping you in my thoughts and prayers.

Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Thursday, August 7, 2008 10:20 PM CDT

Thinking of you...hope your new line is behaving and that you are recvering from the surgery. Sorry, I haven't called since my appointment with Dr. K I have been lucky to even have the energy to email! Just knwo I am thinking of you and can't wait to meet you at the end of the month!
Sheridan
www.caringbridge.org/visit/sheridanjohnston
Sheridan
- Saturday, August 2, 2008 5:19 PM CDT

Hi Heather,

I hope and pray you are safely home quickly. I'm glad Aly let us know how things are going for you until you're able.
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Tuesday, July 29, 2008 5:01 PM CDT

Hoping you are home and recovering nicely.

Sheridan
www.caringbridge.org/visit/sheridanjohnston
Sheridan
- Monday, July 28, 2008 8:34 AM CDT

Hi Aly,
Thanks for updating Heather's site. I haven't heard if she's home or not, but I am praying that things went well today and she is getting better.

Thinking of both of you...
Hugs,
Malisa <www.caringbridge.org/pa/malisa malisam@comcast.net>
- Saturday, July 26, 2008 1:54 AM CDT

Hi Heather,

I found you through Malisa. We have some similar symptoms and I just thought I'd stop by and say hello. I'm in the process of trying to get evaluated for mitochondrial disease. I have gastroparesis, small bowel dysmotility and generalized dystonia/movement disorders as well as peripheral neuropathy and fibromyalgia.

I hope you are doing as well as you can be. I have been on TPN for about 8 months and I'm doing pretty well with it. I would like to have a central line, but so far have just had PICCs.

Take care and I'd love to hear from you if you have the chance.
Peace, Jen
http://www.caringbridge.org/visit/jenelle
Jenelle Dorner <jdorner@indiana.edu>
Bloomington, IN USA - Saturday, July 12, 2008 10:18 AM CDT

Hi Heather,

I was just checking in with everyone. Throughout the years we have made so many CB friends. I found this poem and thought it was perfect.

The Power of Friends

Everyone knows of the power of friends,
The terrific result, when everything blends.
When people have friends, they don’t stand alone;
Friends always help, when you face the unknown.

Friends give you courage to face problems untold,
So the love of a friend can help make you bold.
They can help you to live a much richer life,
So your every day living will be less filled with strife.

Thanks for being my friend!
Joanne K (www.caringbrisge.org/il/annakris) <servedogmom@yahoo.com>
- Saturday, July 5, 2008 7:22 AM CDT

I have seen a few posts from you on the mito board and wanted to stop by and say HI. My son has unspecified mito myopathy. Glad you are doing better now and I hope you continue to do well.

Wendy
www.caringbridge.org/visit/colbydinwiddie

Wendy Dinwiddie
Burleson, TX USA - Monday, June 23, 2008 10:56 AM CDT

Hi Heather,
Just wanted to stop in and see if your trip to Boston went okay. If you get a chance and feel up to it let "us" (your concerned fan club) know how you are. I still haven't heard anything from NS,and I'm very frustrated with CCS! Take care..
Love, Hugs and Prayers,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Saturday, June 7, 2008 11:11 AM CDT

Hi Heather!
I havent gotten an update in a while so i was just stopping by to see if everythings ok? Ive been praying for you everynight and will continue to.
(Hugs) Amanda :-) B+
www.caringbridge.com/visit/amanda1
amanda <nimbushpfan55@hotmail.com>
troy, ny - Thursday, June 5, 2008 3:12 PM CDT

Heather, I hope you are doing okay. I owe you an e-mail and a call. I am thinking of you daily and keeping you close to my heart and in my prayers.
Kristina <kckoch76@msn.com www.caringbridge.org/ia/kristina>
- Sunday, June 1, 2008 10:59 AM CDT

Hi, my name Is Nikki. I was shown your website by Malisa. I was recently diagnosed with mito and I am trying to find more young adults with this. I look forward to getting to know more about you!
Nikki
http://www.caringbridge.org/visit/nikkialbrecht
Nikki <nikki.albrecht@gmail.com>
- Sunday, May 25, 2008 7:46 AM CDT

Hi Heather!
Ill pray for you and your Father for a safe flight. I LOVE flying,i never flew laying down but i bet it would be relaxing? Im praying for you. Have a GREAT week!
(Hugs) Amanda :-) B+
www.caringbridge.com/visit/amanda1
Amanda <nimbushpfan55@hotmail.com>
NY - Wednesday, May 21, 2008 5:36 PM CDT

Hi Heather,

I know it has been awhile since I visited your site or emailed you but please know that you were always in my thoughts and prayers. I hope your trip to Boston went well and that your Dad did fine flying in the small plane that angel Flight uses to transport us to Boston. Funny thing is that if I am with someone and they get sick and throw up I automaticly get sick and throw up myself. I know it is gross!! Please email me when you have a chance and let me know how things are going with you. What kind of Mastiff did your friend get bit by? Old English, Neo, or Bull Mastiff? Sorry that she is going through so much. You stated that the dog was just rescued by its owners, so I would imagine that it was either lost or they rescued the dog back from someone who they sold him/her to. It is very unusual for an Old Englsih Mastiff to bit anyone unless it was abused, neglected, kicked around, or maybe it is in pain and sick. Either way I hope your friend gets better soon. I know how horrible those rabie shots are, I have been through them myself back in 1991 when I was attacked by a stray cat and got bit really bad. The shots go by the weight of the person, so in my case I was happy for the first time in my life that I weighed in just under 100 lbs. Poor hubby had a lot more shots to get then me. LOL!!!

Keeping you in my thoughts and prayers my friend. We really must get togetehr this summer and hang out for an afternoon.

Love and hugs,
Ann-Marie

Ann-Marie <peetie@ptd.net>
- Saturday, May 17, 2008 8:57 PM CDT

Hi Heather,
I heard about your book through your sister Aly. Ya'll have both touched my heart and I continue to keep you in my prayers. Sadly Aly and my sistuation are similar, but seeing the grace you both display in delaing with this really makes me feel stronger too.
~Sarah
Sarah
Herndon, VA United States - Friday, May 2, 2008 10:51 AM CDT

Just stopping by to say hi. Hope your appts went well and that your flight was uneventful.
Darcie <sporklesnop@yahoo.com http://www.caringbridge.org/visit/darcie>
- Friday, May 2, 2008 7:20 AM CDT

Hi Heather!
I just wanted to stop by and let you know iam thinking about you. Im praying that you and your Dad have a smoothe flight without any misshapps. Your in my prayers.

(Hugs) Amanda :-) B+
www.caringbridge.com/visit/amanda1
Amanda <nimbushpfan55@hotmail.com>
troy, NY - Sunday, April 20, 2008 10:21 AM CDT

Hi Heather,
Good luck on your Boston trip!! You'll have to let me know how crazy it is up there with the marathon going on since Dave is hoping to run in it next year and I'll probably try to make my appt. for that week since that'll be about 7 mths since my Sept. appt. So....give me the scoop when you get back!! Hope things go well! Please know I am thinking of you!
Hugs,
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa >
- Saturday, April 19, 2008 11:42 PM CDT

Hi, I am RinaG's aunt and wanted to thank you for your entry in her site. I read your story and saw the beautiful picture of you and your sister. You look like sisters! I also like the quote from George Carlin.
I am so glad Rina has had her energy this past week, I hope for a good trip to Boston for her. I guess you live in a colder climate than us... we have daffodils, forsythia and buds are getting bigger.
Much strength and peace to you and your sister,
Corri
Corri Gottesman
Philadephia, PA USA - Sunday, April 6, 2008 2:26 PM CDT

I was reading back through some of your beginning posts. You had EBV for a year?!??! How did you get through it?!?! I've only had it for two months, and I was ready to be done six weeks ago! How did you finally get it to go away? I just can't get over that you dealt with it for so long. It just reinforces my impression of you as such a strong person. You rock!
Allison Conway <conway_allison@hotmail.com >
Dallas, TX - Friday, April 4, 2008 1:40 AM CDT

wow! No one had brought up that statistic yet! I knew there was a threat of pancreatitis right after the procedure, but didn't know it could be chronic. That definitely puts a different spin on things. Thanks for the info and say hi to Aly for me. Would you tell her I'll send her an e-mail as soon as I'm feeling up to it. Thanks.
www.caringbridge.org/visit/allie1
Allison Conway <conway_allison@hotmail.com >
Dallas, TX - Friday, April 4, 2008 0:26 AM CDT

Peace and healing,
Annie
Annie <penguini1982@yahoo.com>
Rochester, MA - Sunday, March 23, 2008 12:56 AM CDT

There could never be too many rainbows
or too many roses in spring,
There could never be too many stars in the sky
or too many robins that sing.
There could never be too much contentment
or too many dreams that come true,
There could never be too many friendships --
or too many friends like you!

Happy Easter
Happiness Always

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Saturday, March 22, 2008 6:54 PM CDT

"Each shamrock brings a wish your way
For a truly bright and lucky day."

Here’s a wish for sunshine
And a heart that’s filled with cheer,
And joys that grow like shamrocks
Through a bright and happy year!
May you find friends in abundance,
May the sun shine bright above you,
May the world be a wonderful place to live,
May you always have someone to love you.

Wishing You the Sweetest
St. Patrick's Day Blessings

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Wednesday, March 12, 2008 10:05 AM CDT

Hey Heather - my name is Michele and I saw your site on Bree's guestbook. I am from Allentown and I just want you to know I'm praying for you! I looked at your pics to see if I knew any of the locations, and they are all in Boston! Which is funny, because I now live in Boston! Small world. Hope you enjoy the upcoming weekend!
Michele Pituch <RedQT4Life@msn.com>
Boston, MA - Thursday, March 6, 2008 10:27 PM CST

Hi Heather!
WOW! You get alot of snow where you live...lol. I hope you get to make your snowman without your 2 collies ruining it again,i havent made a snowman in years!!!! I hope your central line will be ok after the surgeon fixes it in a couple weeks,ill keep an eye on your updates. Im praying for you,have a GREAT week!
(Hugs) Amanda :-)
www.caringbridge.com/visit/amanda1
Amanda <nimbushpfan55@hotmail.com>
Troy, NY - Tuesday, March 4, 2008 12:00 AM CST

Hello Heather. Its been a while since I was last on here. These old caringbridge pages you don't get updates with .
Just wanted to let you know of a website called Parent 2 Parent. These familes could answer your questions about IV lines and such . There are not just moms there but also young adults who are tube fed , TPN as well .
You can go to www.parent-2-parent.org
You will MOST DEFINITLEY get an answer there .
Hope this helps .

www.caringbridge.org/visit/margaretreed1
Tracy <spongebobswim76@verizon.net >
Corry , PA - Monday, March 3, 2008 8:59 PM CST

Hello Heather and Aly,
Happy belated birthday to Aly who means so much to you, Heather. I just finished reading Malisa's CB and am thankful that you both are home! I keep up with you, Kristin, Malisa and Bonnie who unfortunately is not doing well.
Hugs to all you Mito Maidens,

Melissa <hubbards2@comcast.net>
East Walpole, MA USA - Saturday, March 1, 2008 10:15 PM CST

Hey Heather, thanks for the note on my CB it made me smile :-). Glad things aren't to crazy for you right now and that you are getting some time to enjoy yourself. That snoman thing is so funny lol. Ps soooo jealous of your snow!...to think, if I was still at DSU I could be playing in it to ::tear:: Hope you're having a great weekend!
Darcie <sporklesnop@yahoo.com http://www.caringbridge.org/visit/darcie>
- Saturday, March 1, 2008 10:14 AM CST

Hi Heather, Just stopped by your site to see how you are doing. I don't have any info on lines but hope that you find out something helpful. I receive constant nutritional IV's but use an angio cath - no permanent lines for now! Hope that you can keep that line going - and feel well enough to enjoy the snow. (I'm in Michigan where we had 6" yesterday!) Marjette
Marjorie Cruse <marjette@comcast.net>
East Lansing, MI - Wednesday, February 27, 2008 1:38 PM CST

We'll catch up more when I'm not so sick, but I wanted to stop by and let you know that I love you!

Love,
Bonnie
Bonnie (www.caringbridge.org/az/bonniemarie) <bonniebelle@cox.net>
Mesa, Arizona USA - Thursday, February 14, 2008 6:06 PM CST

I'm sending you a Valentine's Wish
Filled with Hugs and Kisses too.
Because there is a special place
Within my heart for you.

May this Valentine's Day be filled with love, understanding, and contentmentas you journey through life with those you hold dear.

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Thursday, February 14, 2008 12:32 AM CST

Congrats Heather on keeping that line for a month now... I'll be sending your one month chip in the mail. Remember one day at a time... okay... soon you'll be toating your very own 6 month chip. lol If only it were that easy. Personally I believe the best way to keep a line is to stay AWAY from the hospital! You are doing good at that. Been thinking of you and wanted to stop in and say HI.
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Tuesday, February 12, 2008 8:35 PM CST

hi Heather, thanks for decorating the kitchen to day with bday decorations for my coming into this fun loving world tomorrow..thanks for the shiny balloons as i am too allergic like you to latex..otherwise we could blow up together and end up in the ER...just like the day of my original bday...haha. really i thank you for being my "big" but shorter wise sister who i really apprecaite even though i may be quiet alot and hidden in my room or behind a canvas painting. i can remember all our family and friend bday parties growing up, icecream cakes, paper mache' with candy, our dogs barkign to happy birthday songs and you Jay and I decorating each others rooms....i cherish all memories and more to come....yeah, i decided to stick around for awhile, who else will pester you like i can...out of sister love, i know we will never part from each other in our hearts and souls, you are my forever sister and friend...I love your room and think it rocks way you decorated it, like your aparment in Philly. I wish you all the best and so glad you are home for most of this year...love, Aly
Alyson <lysn_schwnk@yahoo.com>
- Thursday, February 7, 2008 4:57 PM CST

Hi Heather!
I just wanted to let you know i was thinking about you and my family is praying for you. I hope you have a GREAT week!
(Hugs) Amanda :-)
www.caringbridge.com/visit/amanda1
amanda <nimbushpfan55@hotmail.com>
Troy, NY - Wednesday, January 23, 2008 1:36 PM CST

Hello Heather and Aly,
The picture of all of you mito maidens at the Aquarium is priceless! I think of you all and wish we could have that time back again when you were all in Boston, except for Aly.
I pray that you all are able to return and bring Aly with you!
I hope you are back home where it's cozy and with your family.
Melissa
Melissa Hubbard <hubbards2@comcast.net>
East Walpole, MA - Monday, January 14, 2008 9:41 PM CST

Heather,

Just wanted you to know that I'm praying for you. So glad to know that you're home...I know being away from the hospital is more restful!

www.caringbridge.org/visit/sarahmariehenson
Sarah-Marie Henson
Birmingham, AL USA - Sunday, January 13, 2008 10:56 PM CST

Hi Heather!
Thankyou so much for the card and the little doggie i LOVE him! My Dad took him home for me to put on my dresser. I have to say your card is one of my favortes...hehe. Have a GREAT weekend!
(Hugs) Amanda :-)
www.caringbridge.com/visit/amanda1
amanda <nimbushpfan55@hotmail.com>
Troy, NY - Friday, January 11, 2008 6:44 PM CST

Thanks for posting an update, Aly. I was wondering if Heather came home today or not. Please tell her I am thinking of her.

Thinking of you too, Aly! You're an incredible sister and I know Heather appreciates all you do for her.
Love,
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa >
- Friday, January 11, 2008 1:40 AM CST

Glad you made it through ok. I pray you get home tomorrow and can rest enough to be back on your feet enjoying life.

Donna Thorell <iluvdizney2@comcast.net (www.caringbridge.org/ma/thorell_kids)>
- Wednesday, January 9, 2008 8:34 PM CST

Thank you for visiting us at our caringbridge site.
I hope all goes well with your new line placement. I am glad you are back on the antibiotics until then, that is really important.
Let me know when you are back in Boston seeing Dr Korson, I would love to meet up with you.
As for your new years resolution about writing more in CB guestbooks...dont worry. I think everyone knows that we all are so busy trying to stay healthy, it is hard to do too much and try to conserve energy too. You work on gaining strength and remaining healthy, and I will just know in my heart you are there for us. How is that for a deal?? Take care and best of luck, may God comfort you as you go in for that line placement.
Donna Thorell <iluvdizney2@comcast.net (www.caringbridge.org/ma/thorell_kids)>
- Sunday, January 6, 2008 1:31 PM CST

A New Year Blessing Especially for You,

May the road you walk be a smooth one,
May your troubles be few — if any,
May the days and years that lie ahead
Be healthy, happy, and many,
May you have friends in abundance,
May the sun shine bright around you.
May the world be a wonderful place to live,
And may God's love always surround you.

Hope you have a joyful new year
and many happy years ahead!

Joanne ~ www.caringbridge.org/il/annakris
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Saturday, December 29, 2007 3:07 PM CST

Hi Heather!
First of all I want to thankyou soooo much for the package you sent me. I LOVE the socks there so cute! And the ornement is hanging on my door because i want everyone to see it...hehe. The stickers i think ill either scrapbook with them or put them on my AFO's. Im not sure yet. My Mom says Thankyou very much! Im praying for you,and hope your upcoming surgery goes well. Have a Happy New Year!

(Hugs) Amanda :-)
www.caringbridge.com/visit/amanda1
amanda <nimbushpfan55@hotmail.com>
Troy, NY - Saturday, December 29, 2007 12:39 AM CST

Glad you were in/out last week and NO inpatient stay. You are doing remarkable Heather. I sure hope January's procedure goes as well too. Is that planned outpatient? You will do great, I know it. Just wanted to wish you a very Happy, Healthy, 2008. You sure deserve it!

My goal is to get to "my sights" more often and leave messages when I physically can. Sometimes it's easier to read sites but not leave messages. I hope to change that in 2008.

I wish you much love, peace and good health.

Love, gentle hugs, and mega prayers.

Jodi

http://www.caringbridge.org/visit/jodi1
Jodi
P-Town, IL - Saturday, December 29, 2007 3:22 AM CST

Warm wishes for health, peace, and love,
Annie
Annie <penguini1982@yahoo.com>
Rochester, MA - Tuesday, December 25, 2007 3:48 PM CST

Hi Heather,

I wanted to write to wish you a Merry Christmas. I'm sorry to hear that your line cracked. That does stink. Heidi and I have been thinking of you so we wanted to say hi and to wish you a Merry Christmas and a Happy New Year.
Paul Coleman <dad2colemankidz3@aol.com>
Easthampton, MA USA - Monday, December 24, 2007 7:41 PM CST

May God Be with and Bless You This Christmas
Remembering you at Christmas
With a prayer that God above
Will bless you with His precious gifts
Of faith and hope and love,
Faith to make your life serene,
Hope to keep it bright,
And most of all, God's holy love
To be your guiding light.

Merry Christmas

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Monday, December 24, 2007 2:05 PM CST

Hey Heather,
Glad to hear your line surgery is being postponed given these symptoms you are having. Hopefully this temporary line will hold out a few weeks and get you through the holidays without needing another temporary line. AND...hoping to get to spend some time with you in the next few weeks. We'll have to keep our fingers crossed!
I miss you and love you lots!
Malisa <malisam@comcast.net www.caringbridge.org/pa/malisa>
- Monday, December 17, 2007 9:52 PM CST

Hi Heather,

A small poem to let you know that I'm thinking about you today! Keep hanging tough my special friends.

A Prayer For You

I said a prayer for you today
And I know God must have heard
I felt the answer in my heart
Although he spoke no word!
I didn't ask for wealth of fame
(I knew you wouldn't mind)
I asked him to send treasures
Of a far more lasting kind!
I asked that He'd be near you
At the start of each new day
To grant you health and blessings
And friends to share your way!
I asked for happiness for you
In all things great and small
But it was for His loving care
I prayed the most of all!

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Monday, December 10, 2007 9:31 AM CST

Heather,

I'm sorry I didn't know that you and your mom were coming to Boston the end of October. However, I'm sure that you both wanted to spend as little time here as was necessary.

I have followed your "ups" and "downs" through your Caringbridge page. I check up on all the "mito maidens" who I know--you, Malisa, Kristina, and Bonnie.

I am happy you have Aly and your parents who obviously love you as well as all your wonderful friends.

If I can ever do anything for you or your family while you are in Boston, please do not hesitate to ask.

Fondly,
Melissa
Melissa <hubbards2@comcast.net>
East Walpole, MA USA - Sunday, November 25, 2007 7:22 PM CST

Heather,
Thank you for signing Natalie's CB site! I totally had to go back to your guestbook to refresh my memory on the question I asked - lol! So much stuff going on!!
I hope to talk to you more in the future and thank you so much for checking in on Natalie's site!!
:) Melody
www.caringbridge.org/visit/natalieholmes
Melody <sharnholmes@netscape.net>
- Sunday, November 25, 2007 6:28 AM CST

Hello Heather . What a very beautiful and strong girl you are . I found your page from another caringbridge page. Want to send you a Happy Thanksgiving . We live on the western side of PA . Its great to meet you .

www.caringbridge.org/visit/margaretreed1
Tracy <sonlightuzer4ever@yahoo.com >
Corry, PA 16407 - Saturday, November 24, 2007 7:47 PM CST

Dear Heather,
T is for the trust the pilgrims had so many years ago
H is for the harvest the settlers learnt to grow
A is for America, the land in which we live
N is for nature and beauty which she gives
K is for kindness, gentle words, thoughtful deeds
S is for smiles, the sunshine everyone needs
G is for gratitude... our blessings big and small
I is for ideas, letting wisdom grow tall
V is for voices, singing, laughing, always caring
I is for Indians, who taught them about sharing
N is for neighbors, across the street, over the sea
G is for God’s blessings at Thanksgiving and always.

Giving thanks you are home to enjoy the holiday.

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Tuesday, November 20, 2007 10:20 AM CST

Heather had her central line replaced yesterday and coimng home later today. she did well and thankful for prayers...sorry did not get to update sooner
Alyson (her sister)
Alyson <lysn_schwnk@yahoo.com>
- Friday, November 16, 2007 8:56 AM CST

Hey Heather. Thanks for your note, its a CB club we are in-what a club LOL. I get OT in school when I get there
I only had Ot 2x this year. We got lots in common
Like your pictures. Maybe some day we will be in Boston same time we go back in April-no date yet but Dr K wants us back in april and we have to see our friend "Alex"
LOL (Thats what all the GI docs here call Dr Flores)
Rina:)
RG
Cheltenham, PA USA - Thursday, November 8, 2007 6:17 AM CST

Hi Heather. This is Rina's mom, Stacy. Thanks for writing Rina on her CB site. Not only do you have things in common but we do as well-I am a speech therapist and have worked in 0-5 for almost 20 years. I love the little ones! I also am trained in SI and work closely with OT's. Glad things went well for you and were able to just stay outpatient
Stacy
S G
Cheltenham, PA 19012 - Thursday, November 8, 2007 6:13 AM CST

Congratulations on your same day procedure! I'm not really good at those either so I understand, that's awesome! I hope you continue to do just as well. I just wanted to stop by too and say thanks for sharing my site with Aly! I love meeting new people ;-)
Darcie <sporklesnop@yahoo.com http://www.caringbridge.org/visit/darcie>
- Sunday, November 4, 2007 6:35 PM CST

Hi Heather,

It was so good to get to meet you this week. It's the kind of thing that just makes dealing with all this medical stuff easier - to know I'm not the only one out there who deals with this stuff, walks around hooked up to a backpack, and to go beyond just knowing I'm not the only one but to be walking around in Boston with someone who has some of the same things as me!

I really hope that we can keep in touch and that you're recovering from your trip. And I look forward to getting to see you on your next trip to Boston!
Peace and healing, Annie <penguini1982@yahoo.com>
Newton, MA - Saturday, November 3, 2007 7:32 PM CDT

Hi Heather,

I just wanted to stop by and say hi. If I don't do anything else, I get online just to check on you and some others I've grown to love and care about. Don't EVER think no one is reading. You are in my families hearts and mind. Trusting the clinic visits in Boston were enlightening and positive. Keep the faith and keep smiling.
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Saturday, November 3, 2007 9:09 AM CDT

Hey Heather,
Hope your trip to Boston is going well. I'm thinking of you!!!
Love,
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Wednesday, October 31, 2007 4:38 PM CDT

Hi Heather,

You are such an inspiration to me. Last week I sang "Trust His Heart" in church because of certain circumstances in our lives and to hear you echo those same words in your lives challenges me that "when I don't understand, when I don't see His plan, when I can't trace His hand, TRUST HIS HEART!"

We serve an awesome God who continually reminds me of who He is through precious people like you.

May God bless you as richly as He does me through you!

Love and Prayers,

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Wednesday, October 17, 2007 10:46 AM CDT

Hi, I am a mom of one (or two) kids with mito. Malisa has been such a wonderful support to me and I found your site from hers. I was reading about you and I am wondering if you would be able to do "consult OT" over the computer? It is a way that you could use all your great knowledge from the comfort of your home! My son, almost 11, was blessed with a great early intervention team! He was dx with autism made up of sensory integration disorder and processing issues. OT was awesome for him. My daughter, Natalie, has had some sensory issues that come and go. More importantly, right now is Natalie's class at school! They are WAY overstimulated!!!! I talked to the veteran teacher about sensory stuff she could have in her classroom and she is very open to it. If you would like, or are able to, I would love your input on this. Come and visit Natalie on her website (FYI- no one on that site knows about the possibility of Stephen being affected too.)
Thank you!! Nice to meet you!!
:) Melody
www.caringbridge.org/visit/natalieholmes
Melody <sharnholmes@netscape.net>
South Bend, IN - Saturday, October 6, 2007 1:37 AM CDT

Heather,
As I mentioned in Kristina's guestbook, so much happened while I was on vacation. I'm happy to hear that you're on your way home. Hurrah! Please thank Alyson and, of course, Malisa for keeping us posted on how you're doing.
You are in my thoughts and prayers.
Hugs,
Melissa
Melissa Hubbard <hubbards2@comcast.net>
East Walpole, MA USA - Friday, October 5, 2007 10:46 PM CDT

Hi, It is 8:30PM EST Friday October 5, 2007.
Heather is on her way home from hospital in a few minutes.
Her father is there now packing up her bags. Yes, she is glad to be coming home. The Triple Lumen went in fine.
She is weak with temps between 99.9 and 100.4; but okay to come home on 2 antibiotics.

MA <dmaschwe@fast.et>
- Friday, October 5, 2007 7:31 PM CDT

HI again,
it's me, Alyson updating for Heather
sorry i didn't get on sooner but i couldn't get my body out of bed and so here's the update

Heather got her triple in ok
but now she is developing a low grade fever and having some small body movements...but both not unsual for her after any procedure

ath this point docs keeping an eye on her but hoping come home unless htings get worse but tonight. if not then tomorrow but she really needs rest.

thanks and keep you updated!

Alyson <lysn_schwnk@yahoo.com>
- Friday, October 5, 2007 11:34 AM CDT

Hi this is Aly and for some reason i can't seem to sign onto my sister's homepage so updating here....

My sister well, went in for triple lumen replacement this mornig with my dad and been there all day.

Here's the update....NOTHING was done as this temporary line was supposed be done in her room, bedside....well, decision was that it would be done in OR tomorrow morning instead.
so, still same procedure early tomrrow morning in OR no sedation but very very frustrated as spent a whole day in hospital when nothing really done.
escept does look like she may have infection so treating that...but otherwise just ready to get this done and hoping still come home by tomorrow later in day since done early enough to watch her for several hours.
no sedation so that is not issue; tests already done to check her infection status too so that's all i have for now

i will update you tomorrow and keep her and doc in prayers
thanks love
Aly, heather's sis
Alyson <lysn_schwnk@yahoo.com>
- Thursday, October 4, 2007 8:36 PM CDT

Oh Heather, it was so good to hear from you and it has meant so much to me to get your notes in my guest book! I will definitely be praying for Donna and her family, and you and Aly as you all deal with this loss. I always think of you often, in addition to the other maidens. It is so neat that we all have each other for support and each of you has meant so much to me personally. As you know, things are extremely tough for me right now, so I haven't been in contact as much as I'd like, but please know you are always in my thoughts and prayers.

All my love,
Bonnie

Bonnie Codier <bonniebelle@cox.net (www.caringbridge.org/az/bonniemarie)>
Mesa, AZ USA - Friday, September 28, 2007 7:21 PM CDT

Heather, Hi! I'm sorry to see that things are not going well for you right now. I can tell you really don't feel good right now! I'm thinking of you. You have been a great friend to me and I thank you for that. My thoughts and prayers are with you daily.
Kristina <kckoch76@msn.com www.caringbridge.org/ia/kristina>
- Sunday, September 16, 2007 8:45 PM CDT

Hi Heather,

You know...I keep meaning to tell you how much your blanket has meant to me. It is the one thing that ALWAYS goes to the hospital with me and it is the one thing I am determined to have when I am sick at home. It has brought me a whole lot of comfort over the year, especially when it makes me think of the MAKAH crew. It has been a ridiculously hard summer, medically, but I just realized how thankful I was for your blanket and how much it meant to me that you sent it. Thinking of you and all the others so much. Why can't we all just be together...please please???

Love ya,
Ashley

Ashley <ayoung00@hotmail.com>
Boston , MA - Saturday, September 15, 2007 10:26 PM CDT

Hello Heather,

I am sorry to hear you are ill. I am dealing with the same respitory stuff myself. In my last journal update I wrote a letter to the zookeeper asking him to please come and get the elephant that is sitting on my chest.

I hope that you feel better soon and can enjoy your plans. I know how often plans have to be canceled. I had to do that today. And it sucked.

At least you are at home, right? That was one heck of an inpatient stay.

Hugs and Love,

http://www.caringbridge.org/visit/jodi1
Jodi <sistomax@aol.com>
- Saturday, September 15, 2007 1:18 PM CDT

Hello Heather,
It has been hectic these last few weeks, but I check in with you and the other mito maidens weekly. I was excited to read your journal, knowing that it is not easy for you to write, but write you did -- and to Malisa as well.
You are all in my thoughts and prayers.
Hugs,
Melissa
Melissa Hubbard <hubbards2@comcast.net>
- Monday, September 10, 2007 9:44 PM CDT

Thanks for the detailed update!
Liz <eneprice@verizon.net>
Wayland, MA 01778 - Tuesday, September 4, 2007 8:13 PM CDT

Hey Heather. COngrats on the new niece. Even those little things are "accomplishments".. visiting the new babies. Hang in there.. I know how frustrating it can be to "return to baseline" or just to start to feel better... took me longer then expected too... Let us know if you ever want visitors.. M and I have talked about driving up to visit you and your sister when the four of us all feel up to it! Hang in there. I will keep you in my prayers that you can reach for that doctorates next semester. Also trying to do these online courses to move up.. frustrating.. Thinking of you.
steph
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
Phoenixville, PA - Monday, September 3, 2007 8:11 PM CDT

Heather, I'm sorry that it is taking you longer than you expected to get back to your baseline. I hope that you start to feel good and strong very soon. Take care of yourself and know that many people are praying for you.
Jackie Gallop <dunesummer@aol.com>
Cedar Park, TX - Sunday, September 2, 2007 2:32 AM CDT

Hi Heather,

What a wonderful and inspiring update! Thank you!! Missing you and hoping we ALL have a better year this year.
Ashley <ayoung00@hotmail.com>
Boston , MA - Saturday, September 1, 2007 7:49 AM CDT

Hi Heather, Congratulations on the new niece!!! Babies are such wonderful joy and newness!
Hope the root canal work is successfully over soon and so good to see you posting. Hugs and stay on the visitors side of hospitals!
God Bless,
LeeAnne and Sammi
LeeAnne <allenleeannebye@aol.com>
NJ - Tuesday, August 28, 2007 6:02 AM CDT

Hey Heather,

Congrats on your new niece! I gotta say that she is a really lucky little girl to have such a wonderful aunt!I guess as she gets older she'll appreciate it more and more!

Sorry to hear about the root canal stuff...what a pain!
Hope it goes well, and you keep strong through it all!

Hugs, Bayla

Bayla <Bay_613@verizon.net>
- Sunday, August 26, 2007 7:24 PM CDT

Hi Heather,

I just read your journal. I am so sorry that you are suffering so. You are surely a beautiful person from inside out. I am keeping you in my prayers each day. My prayer for you is total health restoration. God bless you and your family as you make this unpleasant journey. God never promised that we would not go through perilous times, but he did promise he would bring us through. Just like Shadrach, Meshack and Abednego . He was in the fire and brought them though without the smell of smoke! He will do it for you too! Keep he faith.
Joanne Kocourek ~ www.caringbridge.org/il/annakris <servedogmom@yahoo.com>
Worth, Il - Sunday, August 12, 2007 7:33 PM CDT

Hey you,
What a week you've had with that abscess!!! Seriously---I can't even imagine how much of a toll it's taking on you.

I checked out the website for Musikfest and it looks pretty cool. They have some really well known singers. Dave and I are hoping to go to the Lights of Liberty show in Philly tomorrow at Independence Hall with some friends. Hoping it doesn't wear me out. I have a big week ahead.

When you're feeling better, let me know and we'll have to make plans to get together. I miss you.

Love ya,
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Friday, August 10, 2007 7:09 PM CDT

Hi Heather,
I just had a wonderful visit with Malisa (check out her CB page!) and heard so many wonderful things about you. I therefore, decided to check out your site, and see if there was an update as to how U are doing....well what do you know...sure enough there was a VERY recent one! I guess U knew that I was coming to check it out ...lol!

I'm sorry to hear about all your teeth trouble...I know that toothaches are the worst. The dentist chair is actually my worst place in the whole world to be. I seriously would rather be having surgery than sit in a dentist chair. I'm happy though, that they we're able to find out a reason for all your pain and possibly fever.I hope U feel better soon!

I just wanted to let you know how hard it is for me to hear all that you must go through on a daily basis. It hurts me to see that such a good person must endure so much pain. I am, however, very inspired by your courage and determination to go on. I want you to know that I will always B here for you,...and i'm praying faithfully for you as well.
Warm and gentle hugs,
Bayla
Bayla <Bay_613@verizon.net>
- Thursday, August 9, 2007 11:08 AM CDT

Hope you are having better day. I got a good report from the doctor. All I have left to do is the routine colon scope. We are having very hot weather; nearly 100 degrees. Praying for you,
Janet Clark <janlee47@aol.com>
Owensboro, KY USA - Tuesday, August 7, 2007 3:06 PM CDT

Heather, I am thinking of you. I hope you are doing okay and that your temp does not continue to raise. I understand the issues with all your allergies with various meds, tapes, dressings, etc, as I deal with that as well. I hope things settle down for you soon, you certainly deserve it!
Kristina <kckoch76@msn.com www.caringbridge.org/ia/kristina>
- Sunday, August 5, 2007 10:05 PM CDT

I will be praying for your quick trip in and out of the hospital setting. I have my yearly physical tomorrow so think of me. I know you will do fine. :)
janet clark <janlee47@aol.com>
Owensboro, KY USA - Monday, July 30, 2007 9:38 PM CDT

Hi Heather,

For whatever reason you were just on my heart today...I don't know what might have been going on with you, but just know that my prayers have been especially wrapped around you. Trusting the problems with your line are resolved quickly. Hope you are able to enjoy some of the summer has to offer.

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, Il - Saturday, July 28, 2007 9:17 AM CDT

Heather,
I'm glad that you have been able to stay home and spend some time with family even though you broke your line, i hope you can keep what is left of the triple lumen and stay out of the hospital. prayers for you and your family as always. take care.
Adrienne <moonchild62579@aol.com www.caringbridge.org/va/adriennei>
Woodbridge, VA - Wednesday, July 25, 2007 6:27 AM CDT

Hi Heather! So glad to read a new update about how you're doing. I really hope this line holds out until you can get a permanent one in. I'm thinking of you and sending lots of good energy for continued improvement and minimal bumps in the road. (I'd wish for no bumps in the road but that might be a little too overly optimistic.)
Peace and healing, Annie <penguini1982@yahoo.com>
Rochester, MA - Saturday, July 21, 2007 3:59 PM CDT

Heather,
Hi! I wanted to say hi and to let you know I am thinking of you. I hope you are doing a tad better thn when we last talked. I miss you so much. You are an inspiration to me, now and always! Take care and I am keeping you in my prayers. I think of you daily!
Kristina <kckoch76@msn.com www.caringbridge.org/ia/kristina>
- Monday, July 9, 2007 11:56 PM CDT

Hi Heather,

Malisa visited Boston the week before the 4th. It was wonderful seeing her and meeting Dave. I missed you, Kristina, and Ashley and remembered last year you celebrating your birthday with them. Happy belated birthday. You came home on my birthday this year - it was such a gift. But when Malisa was visiting, she told me you had to go back to the hospital which made us all sad as there is no place like home.

You are all in my prayers and my church's prayers. I think of you often and wish I could take some of the pain away. I read all of your bridge sites weekly.

Gentle hugs to you and your sister,
Melissa
Melissa Hubbard <hubbards2@comcast.net>
East Walpole, MA USA - Monday, July 9, 2007 11:46 PM CDT

Hi Heather,

I'm so glad to see you writing and see you home! I totally understand what those long admissions are like and I have just been thinking about you and praying for you throughout the whole thing. And now that you are home that doesn't change, and I hope you are able to enjoy the holiday today. I love you so much and think of you often!

Love,
Bonnie

Bonnie Codier <bonniebelle@cox.net>
Mesa, AZ USA - Wednesday, July 4, 2007 5:32 PM CDT

Hi Heather,

It has been a long time since I signed the guest book though I check in often to read how things have been going for you. I am sorry for all of the downs and thank God for the few and small 'ups' you've had. So glad you're home. I found this and thought it appropriate for you at this time:

"I lift up my eyes to the hills, where does my help come from? My help comes from the Lord, the maker of heaven and earth." Psalm 1221:1-2

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Monday, July 2, 2007 8:22 AM CDT

Checking in and thinking of you..praying things are going well!
Hugs and prayers,
LeeAnne
LeeAnne BYe <allenleeannebye@aol.com>
NJ - Friday, June 22, 2007 7:43 PM CDT

Heather,
Just checking in. I guess you're busy running around being a free woman. LOL I don't blame you one bit. LOL
Have fun!
Sharon Acoff Frazier <mkfnfraz@bellsouth.net>
- Wednesday, June 20, 2007 12:48 AM CDT

Thanking God for your being home; thankful you have such great support!
Sh
Floyds Knobs, IN USA - Saturday, June 9, 2007 1:16 AM CDT

YAYYYYYY YOU'RE HOME!!!!!!!!!!!!!!!!!!!!!!!! I'm SOOOOOOO glad you made it and hope you are there for a wonderfully long time! I'm so excited for you!!!!!!! I hope you can get back into things slowly and just enjoy every minute of home sweet home - you deserve it after one heck of a long Club Med adventure! You're amazing, so courageous and, just an incredible person overall! And yay I'm coming up to PA in July so we will most definitely have to get together... hopefully more so in the setting of our first visit than our last! :) Love you tons and sending lots and lots of HUGS!!
Diana <Diana893@gmail.com>
Dallas, TX - Wednesday, June 6, 2007 10:24 PM CDT

Heather, I am so glad to hear you made it home and seem to doing so well after such a long time. Keep it up but dont push it. It is a long time and I am sure everything feels "very big". That was teh only way I could ever explain it... Take care, thinking of you.
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
Phoenixville, PA - Tuesday, June 5, 2007 8:59 PM CDT

Praise the Lord and GLORY HALLELUAH!! You did it! Heather I am so very glad to see you have been liberated! You and your family are wonderful, inspiring and tough! God Bless you ALL! I hope this is just the beginning of wonderful improving strength and freedom! HUGS and welcome home!
LeeAnne, Sammi and family
www.caringbridge.org/visit/byesiblings
LeeAnne <allenleeannebye@aol.com>
NJ - Tuesday, June 5, 2007 10:25 AM CDT

Woooo whoooooo!!!! You are home home HOME!!! Congrats Heather! I have been thinking about you CONSTANTLY and the blanket you made me has been with me every night...including the nights I was in the hospital. Wherever I go, the blanket goes and it reminds me of you! Love ya!
Ashley <ayoung00@hotmail.com>
Boston , MA - Monday, June 4, 2007 4:39 PM CDT

Heather,
I am SOOOOOOOOO happy you are finally at home!!! I know that you are loving it. As is Aly, your family, animals, and all. I know it must be nice the smallest things even that you missed out on. Don't worry bout the room and all, just enjoy it all. Even the mess hehe. Hope you stay home for a very long long time. Glad to hear that you are doing so well too with strength and all, just don't overdo and try and run again! Thoughts and prayers as always. take care.
Adrienne <moonchild62579@aol.com www.caringbridge.org/va/adriennei>
Woodbridge, VA - Monday, June 4, 2007 3:20 PM CDT

Heather I am so happy I am crying. I can hardly see to type so excuse the typos. I am so happy you're home! I'm so happy! Okay I've already said that before. I love your sister Aly, she really kept us updated. She invited us to her page too because we'll all miss her. She is a wonderful person and you are blessed to have a bond like you do. I am so happy you are home!
Sharon Acoff Frazier <mkfnfraz@bellsouth.net>
- Monday, June 4, 2007 8:39 AM CDT

Woohoo! Welcome home!!!! I have checked in on you regularly to see how you are doing and I have held you close in prayer. I am so glad you are home and I pray that you will stay there for a VERY VERY VERY VERY long time.
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Sunday, June 3, 2007 9:23 PM CDT

Heather, so glad to hear you are home. I am sure it feels so great and overwhelming at the same time. Take it easy. Prayers are always with you and your family
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
Phoenixville, PA - Sunday, June 3, 2007 4:32 PM CDT

Heather, Hi! I am SOOOOOO glad you are home. Now stay there! No more club med for a LONG time. I wish I could have been there for your homecoming! I am keeping you in my thoughts and prayers.
Kristina <kckoch76@msn.com www.caringbridge.org/ia/kristina>
- Sunday, June 3, 2007 0:32 AM CDT

Whoo Whooo.... Yeah.... You Made it!! Now stay there, please. Continuing to keep you in my thoughts and prayers for your continued recovery and resiliency.

Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Saturday, June 2, 2007 9:10 PM CDT

Heather I am ecstatic that you are home. Give Aly a big hug for keeping us all updated.
Sharon A. Frazier <shabosings@bellsouth.net>
- Saturday, June 2, 2007 3:21 PM CDT

Hi Heather,
We are so happy for you!!!! May it be a long, long time....and may you be free of those horrible infections!

With a smile,
Lyn
Linda Marie Codier www.caringbridge.org/az/bonniemarie <lynmarieco@cox.net>
Mesa, AZ USA - Saturday, June 2, 2007 3:29 AM CDT

Heather, I am so so so excited that you are HOME! I'm sure it will take some adjusting to settling back in, but I know you are so happy to be back in your own bed. Enjoy the weekend and the warm, well....hot, weather! Hopefully I'll talk to you soon. Love you...
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa >
- Friday, June 1, 2007 10:34 PM CDT

Yay! So glad to hear that you're finally home!! I hope it will be a very long time before you have to leave. Sending lots of good thoughts and well wishes!
Peace and healing, Annie <penguini1982@yahoo.com>
Rochester, MA - Friday, June 1, 2007 7:13 PM CDT

Hope heather is still planning on coming home on friday. I am sure that will be an amazing feeling! Enjoy.
steph
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
Phoenixville, PA - Thursday, May 31, 2007 4:11 PM CDT

Heather - Hoping and praying that you are reading this post at HOME ... it has been such a long time. Take care and I'll look forward to stopping by one afternoon once you are back on a routine. Best wishes from ALL of us.
Sue L.
Coopersburg, PA USA - Thursday, May 31, 2007 8:07 AM CDT

WOW what a time it has been,.....so glad to read the news..praying Friday goes smoothly and Heather finds that home is the best healing place of all!!!! Hang tough Aly..I want to cntinue to hear updates on you too ..OKAY?!
Hugs and prayers for all of you...Anxious for Friday for Heather!
Hugs and prayers,
LeeAnne, Sammi and family
LeeAnne <allenleeannebye@aol.com>
Northfield, NJ - Wednesday, May 30, 2007 11:55 PM CDT

That is wonderful news! I can't wait for her to get home. She will heal so much better with her family, friends, and pets around her. Hang in there Heather!
Sharon A. Frazier <shabosings@bellsouth.net>
- Saturday, May 26, 2007 10:18 PM CDT

Hi Heather,
I'm just checking in. Aly I hope you are doing better. I may have to come to Pa and bust Heather out of Club Med. I've lost track of how long it's been. I'm praying that you get out soon and the new line works.
Sharon Acoff Frazier <mkfnfraz@bellsouth.net>
- Friday, May 25, 2007 3:33 PM CDT

Happy Birthday Heather!!!!!!! This is the 12th anniversary of your 21st Birthday. LOL Hope you get out of club Med soon. God Bless
Sharon A. Frazier <shabosings@bellsouth.net>
- Tuesday, May 22, 2007 6:28 PM CDT

HAPPY BIRTHDAY, HEATHER!!!!!!! I wish I could scoop you up and take you on another limo ride with the girls...how much fun would that be to take you out on a pass for the day and take you on a limo ride?!! I think next year, we should treat ourselves to a limo ride just for the heck of it!! Anyway, wanted you to know I am sending you happy birthday vibes and hope you get to come home really soon. I love you and miss you! Here's to a great 33rd year!!!.....!
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Tuesday, May 22, 2007 1:13 AM CDT

Happy Birthday Heather:)!!!!
Love, T
Tiby <tibi19107@yahoo.com>
Phila, PA USA - Sunday, May 20, 2007 12:23 AM CDT

Hi Heather, I hope you are feeling a thousand times better than when i left you at Lehigh Valley Hospital. While I miss our late night walks and talks, I would rather you leave that place already!!!! LOL. Tako sends wet kisses.
Suzanne Jasper <zanne_825@yahoo.com>
North Miami Beach, FL USA - Thursday, May 17, 2007 9:26 AM CDT

Heather I sure hope and pray that things are getting better for you. You are in my thoughts and prayers.
Sharon A. Frazier <shabosings@bellsouth.net>
Huntsville, AL - Wednesday, May 16, 2007 10:43 AM CDT

Hope you are still doing well. Thinking of you guys.
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
Phoenixville, PA - Sunday, May 13, 2007 9:05 PM CDT

Hi Heather,
Hoping you are still doing well. I hope you get home this week so you can have an amazing birthday at home. I walked 1/4 of a mile today and am still aiming to get together with you this summer. We need to both get healthy enough to see eachother b/c I really miss you!!
Love you lots.

Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Sunday, May 13, 2007 2:13 AM CDT

Hi Heather,
I am so glad your surgery went well. Just checking in.
Sharon A. Frazier <shabosings@bellsouth.net>
- Friday, May 11, 2007 8:11 PM CDT

We are praying!!

Linda Marie Codier www.caringbridge.org/az/bonniemarie <lynmarieco@cox.net>
Mesa, AZ - Thursday, May 10, 2007 3:44 AM CDT

I hope Heather's surgery went well. I am praying for her.
Sharon Acoff Frazier <mkfnfraz@bellsouth.net>
- Wednesday, May 9, 2007 9:00 AM CDT

Checking in and praying Heather's line placement went WELL! prayers continue..
LeeAnne
LeeAnne <allenleeannebye@ol.com>
Northfield, Nj - Wednesday, May 9, 2007 8:20 AM CDT

I am so glad Heather is getting stronger. I will continue to pray that there will be no complications from the surgery. We are ready for her to come home. You all are so close that you feel what she feels. And that is beautiful. Everyone should have a sister like you.
Sharon Acoff Frazier <mkfnfraz@bellsouth.net>
- Monday, May 7, 2007 8:50 AM CDT

Thanks for the good news update Aly..now PRAYING, PRAYING, PRAYING..... So hoping she gets the break you have all been praying and waiting so long for...
Prayers for God's blessings and this huge break!
LeeAnne
LeeAnne <allenleeannebye@aol.com>
Northfield, NJ - Friday, May 4, 2007 5:49 PM CDT

What wonderful news Aly. When Heather gets out of Club Med and starts updating her own journal I think we're going to miss you so you'll have to pop in every once in a while and say hi. I am certainly praying for Heather and thank you for the update.
Sharon Acoff Frazier <mkfnfraz@bellsouth.net>
- Friday, May 4, 2007 1:12 PM CDT

Hey Aly, so glad to hear heather is up and around. I am sure it feels good to get off the floor. Please tell her we will be praying for he that the line placement goes well and that she can get out and back home to where she belongs. Hang in there
steph
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
Phoenixville, PA - Thursday, May 3, 2007 8:17 PM CDT

Thinking of all of you and sending prayers and hugs...Hang tough...God Bless,
LeeAnne
LeeAnne <allenleeannebye@aol.com>
NJ - Thursday, May 3, 2007 5:26 PM CDT

Just dropped to let Heather know I am thinking about her. And praying.
Sharon Acoff Frazier <mkfnfraz@bellsouth.net>
Huntsville, AL - Thursday, May 3, 2007 9:09 AM CDT

Hi Thinking of you. Allison would keep me updated about you all. glad to read your site. Janet, Allison's mom
Janet Clark
Owensboro, KY USA - Tuesday, May 1, 2007 8:43 PM CDT

Heather, Just wanted to drop a line to let you know that I am thinking of you and miss you. I can't believe it has been almost a year since I saw you! I am glad you are getting off the floor daily. I am thinking of you and keeping you in my prayers daily.

Kristina <kckoch76@msn.com www.caringbridge.org/ia/kristina>
- Tuesday, May 1, 2007 2:40 PM CDT

"Therefore, I live for today –
Certain of finding the sunrise,
guidance and strength for the way.
Power for each moment of weakness,
hope for each moment of pain,
comfort for every sorrow, sunshine
and joy after the rain."

Thinking of you and Aly today and everyday….
God Bless,
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Sunday, April 29, 2007 6:18 PM CDT

Just checking in and hoping things are going OK with both of you! You are in my thoughts and prayers.. Hang tough!
Hugs,
LeeAnne, Sammi and family
LeeAnne <allenleeannebye@aol.com>
Northfield, NJ - Wednesday, April 25, 2007 8:57 PM CDT

Hi Heather
My name is Jenna and I came across your site. You are an inspiration. You will be in my thoughts and prayers.
www.caringbridge.org/canada/jenna
Jenna <fighter_smiley@yahoo.ca>
Kamloops, BC Canada - Tuesday, April 24, 2007 1:50 PM CDT

Sending my prayers,and hugs to both of you Alyson..Hoping the transfusion helped Heather feel better. Wondering do they give Heather IV gammaglobuins to try to help hr fight off some of these infections? You are both in my thoughts and prayers always..
LeeAnne, Sammi and family
LeeAnne Bye
Northfield, NJ - Saturday, April 21, 2007 11:51 AM CDT

Aly and not only is God perfect but He is GOOD! It might look bleak sometimes but we are all hanging in there with prayer.
Sharon Acoff Frazier <mkfnfraz@bellsouth.net>
- Monday, April 16, 2007 12:16 AM CDT

Aly I know this is hard for you, especially since you and Heather are so close. You love her so completely it just tears you up to see her so sick. And I know there's a part of you that fears it will happen to you so you so it's hard. Sweetie that's okay to feel that way. Your love for Heather never wavers. I can feel it in your writings. You are a wonderful friend and sister to Heather. Honey we are all praying that Heather can come home so she can heal. We really do appreciate your updates but we also understand that it can be difficult. Thank you. Sending big cyber hugs to you and Heather.
Sharon Acoff Frazier <mkfnfraz@bellsouth.net>
- Thursday, April 12, 2007 9:46 AM CDT

((((((Aly))))) Hang in there..I am so sorry this is so hard. Wish there were a way to make it easier. I understand the overwhelming information..stuff hearts that love do not want to hear..Prayers and hugs for all of you..
God Bless! "just keep swimming"..
LeeAnne and Sammi
LeeAnne <allenleeannebye@aol.com>
Northfield, NJ - Monday, April 9, 2007 6:37 PM CDT

Dear Heather and Aly,

This special Easter greeting
comes across the miles today
To let you know you're thought of
In the very warmest way.
JoanneKocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Sunday, April 8, 2007 7:18 PM CDT

Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, Ky USA - Sunday, April 8, 2007 1:06 PM CDT

Peace and healing, Annie <penguini1982@yahoo.com>
Rochester, MA - Saturday, April 7, 2007 10:17 PM CDT

Hi Aly and Heather,
Although it is sooo disappointing not to have Heather at home for Easter, I hope that your family has a special day with her at the hospital. We are moving Bonnie to the new house on Saturday, so I'm imagining that Easter will be a day of recuperation. She hasn't been out of her bed for 3 or 4 weeks now, so it will be exciting to get her outside!
We think of you and your family often, and pray that God's sustaining grace will carry you through these hard times.

Lyn <lynmarieco@cox.net>
Mesa, AZ - Friday, April 6, 2007 2:54 AM CDT

I sure hope Heather gets to come home for Easter. Keep us posted.
Sharon Acoff Frazier <mkfnfraz@bellsouth.net>
- Wednesday, April 4, 2007 9:50 AM CDT

OH Alyson and Heather...PRAYING!!!!, fingers and toes crossed, holding breath...hang tough Heather. Prayers for HOME!!!
Hugs,
LeeAnne, Sammi and family
www.caringbridge.org/visit/byesiblings
LeeAnne <allenleeannebye@aol.com>
Northfield, NJ - Monday, April 2, 2007 9:22 AM CDT

Oh that is such good news Aly. I appreciate your updates. I don't know Heather )I linked to her page from someone else's) but I feel drawn to pray for her. She will heal better at home. Especially with all the love from the family. Still praying. Give Heather a hug for me.
Sharon A. Frazier <shabosings@bellsouth.net>
- Sunday, April 1, 2007 12:48 AM CDT

hey heather and ally. I hope things are on the up. You really need to get out of there! as i am sure i dont need to tellyou. I hope you can make it out by easter but if not, just know we are always praying for your whole family... hang in there.
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
Phoenixville , PA - Friday, March 30, 2007 2:08 PM CDT

Hi Heather,
I just wanted to check in with you this morning and give you a big ol' cyber hug. So here goes... {{{{Heather}}}}
I'm pulling for you.
Sharon Acoff Frazier <mkfnfraz@bellsouth.net>
- Friday, March 30, 2007 10:55 AM CDT

Heather, Just stopping by to say hi. I hope you are doing okay and get rid of that infection soon!!!!!!!!!!!
Kristina <kckoch76@msn.com www.caringbridge.org/ia/kristina>
- Sunday, March 25, 2007 7:45 PM CDT

Hi Heather,
Just wanted to say hi on here to let you know I am thinking of you. I put the picture of the two of us before my commitment ceremony on my website and it makes me miss those days when we were healthy enough to do stuff like that. I am so glad you were my maid of honor and we got to do all the fun stuff girls do before their weddings. I can't tell you enough how much I appreciate your friendship and how much I love you.

I'm counting on both of us being well enough to at least get to SEE eachother this summer. We have to have more of our "girl time"!

Hope things are better this week.....Praying for you.
Malisa <malilibear@aol.com>
- Sunday, March 25, 2007 1:15 AM CDT

Hi Heather,
Just stopping by to tell you that we are still praying for you - that you will soon be heading home. We are too well aquainted with the terribly long hospital visits....and they are not fun. We are still getting our next home ready for Bonnie. We thought we'd be moved in by now, but there was a lot of work to be done (there is still no floor, sinks, toilets, or other necessities).
We pray you get home for Easter - our best to your family too.
-Lyn
Linda Marie Codier
Mesa, AZ USA - Friday, March 23, 2007 3:08 AM CDT

Sending Heather a big ole cyber hug! {{{{{{{{{ Heather }}}}}}
Sharon Acoff Frazier <mkfnfraz@bellsouth.net>
- Thursday, March 22, 2007 12:13 AM CDT

Just checking in on Heather. Keep us posted on her condition.
Sharon Acoff Frazier <mkfnfraz@bellsouth.net>
- Tuesday, March 20, 2007 3:37 PM CDT

Hi Heather,

Happy St. Patricks Day!! Corned Beef and Cabbage and Irish Soda Bread, anyone??? Hehehe!! I married an Irishman, so I celebrate the day. Amazing isn't it, that on Valentine's Day we had an ice and snow storm and on St. Patty's Day we had a snow storm. I sure hope this is the last snow storm of the year for us. I don't have any snow boots, so I don't go out in the snow. Our dog Lucy would love it if I could go out and play and throw some snow balls at her, but no boots I told her!!! heheheeh

Thanks for the updates Aly, and I hope that you are doing well too!! Praying for the whole family.

Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Sunday, March 18, 2007 1:25 AM CDT

Just checking in on Heather. Please keep us posted. Aly, thanks so much for the updates. We really appreciate it. Please let Heather know that I am praying for her.
Sharon Acoff Frazier <mkfnfraz@bellsouth.net>
- Tuesday, March 13, 2007 1:56 PM CDT

Heather,
It just sucks that you are still in the hospital. I hope they get it right this time. You have a wonderful sister who is nice enough to keep us updated. I am praying for you.
Sharon Acoff Frazier <mkfnfraz@bellsouth.net>
- Monday, March 12, 2007 3:28 PM CDT

Hi Heather and family
I will be praying for you and sorry to hear that you are still in hospital
thinking of you all the way from Australia
http://www.caringbridge.org/ok/sammyjoe
Maria , Joe , Sammy-Joe and Christian
http://www.vp-it.com.au/sammyjoe
Maria Liistro <sammyjo2@bigpond.com.au>
Craigieburn , vic Australia - Sunday, March 11, 2007 6:51 PM CDT

Hi Heather,

Sorry to hear that you are still in the hospital and having trouble with drawing the blood back from the one line. I hope the permanent line will be better. I think about you all the time, I check your site everyday, even though I don't always leave a message you are still in my thoughts.

I am glad you had some sister time this week. It's nice to spend quality time with your sister. Alyson loves you very much and I know you love her just as much!! I am praying for you, Alyson, your parents, your doggies, and poor little Milo who went flying through the air this morning when Alyson stretched out her legs while sleeping. Poor kitty!! I can imagine how much your animals miss you. I know that when I am gone even for a short time they go crazy when I walk back in the house, like they haven't seen me in years!!! LOL!! Gotta Love them!! Unconditional love, no questions asked.

I went down to HUP this past Tuesday to see my Endo, who did a needle biopsy on my Thyroid. They believe I have Thyroid Cancer. It took them three times with the needle to get enough cells to diagnose me. The Pathologist said it is "Suspicious". I am quite sure it is cancer. I am not sure if I am ready or even able to fight another disease. I pray that God will give me the strength to do so, but I am just not sure i can do it. I am scared to death.

Thinking of you and keeping you in my prayers. I love you and miss you!! Thank you Alyson for keeping us up to date on Heather!!

Love and hugs,
Ann-Marie

P.S. Does Reid from Nutrishare have any suggestions to help keep you infection free?? I love that Home Infusion Company. They have helped me with so much lately.

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Friday, March 2, 2007 11:02 PM CST

Heather,
You, Malisa, Kristina and Ashley are in my thoughts and prayers. I wish I could take some of the pain away from each of you. Last May, when you four celebrated your birthday, was a joyous time. I wish for that again for all of you. Melissa
Melissa Hubbard <hubbards2@comcast.net>
- Friday, March 2, 2007 7:54 PM CST

Aly I read the updates on your site. I cannot beleive Heather is still in the hospital. I am certainly praying for her recovery. We all need to bombard heaven with prayers for Heather.
Sharon A. Frazier <mkfnfraz@bellsouth.net>
- Thursday, March 1, 2007 10:46 PM CST

I miss the updates! I hope things are headed in the right direction.
Jackie <dunesummer@aol.com>
Cedar Park, TX - Wednesday, February 28, 2007 10:26 PM CST

Hi Heather,

I am glad to hear that you finally got your new line placed. I hope you are feeling better. I think of you often and keep you in my prayers.

Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Sunday, February 18, 2007 8:48 PM CST

Keeping you in my thoughts and prayers. I think of you often. You have a great sister...you are lucky. I'll keep checking back!
~Katie
www.caringbridge.org/visit/alexanderlindemann

Katie Lindemann <skl304@verizon.net>
Easton, PA - Saturday, February 17, 2007 2:32 AM CST

Heather, Thinking of you as always! I hope to talk to you soon. I miss you and I miss all five of us! You, Aly, Malisa, Ashley and I. Just remember the laughter at the Aquarium and I-Max . . . Ahhhhh
Kristina <kckoch76@juno.com>
- Thursday, February 15, 2007 8:25 AM CST

Sorry you are not doing well Heather. You are in my prayers.
Allison <lilqt4u1984@aol.com>
- Sunday, February 11, 2007 12:21 AM CST

Hi Heather,

JUst stopping by to say "Hi"and to let you know that I am praying for you always. I am so sorry that you are still in Club Med. You must have got a really good deal if you are staying that long!! heheehe

I am sorry to hear that your new line is infected. I hope the antibiotics help and that you can keep this line and not need a new one. I saw Dr. H-P last week. I was sorry to hear that you missed your appt. with her due to transportation from the hospital. I want you to know that I think about you always and you are always in my prayers.

Stay strong, stay warm ( gee...it is so cold up here) and Keep the Faith!! God Bless You

Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Friday, February 9, 2007 11:39 PM CST

HI Heather, Just checking in on you. I hope you are doing ok and get out of that place soon. Hope to hear an update soon. Aly, hope you are feeling ok and get to see your sister home with you soon. Take care of each other. Prayers are always with you.
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
Phoenixville , PA - Friday, February 9, 2007 1:27 PM CST

What a "TRIP" this life is... Thinking of you Heather and Aly...sending continued prayers and cyber hugs..Hang tough..
LeeAnne
LeeAnne <allenleeannebye@aol.com>
- Thursday, February 8, 2007 5:51 PM CST

Heather, Just wanted to let you know I am thinking of you!
Kristina <kckoch76@juno.com >
- Saturday, February 3, 2007 11:28 AM CST

Praying for both of you Aly and Heather. Aly- hope you are doing as well as possible in the lovely BM department and that you are able to do some things you enjoy this semester off of school. Heather, pray for you daily that you start doing better and can get out of there sooner than later. both you and Malisa have booked way too much time in club med- wish I could give you both a vacation from there and take yall's place for awhile. Anyways, prayers for your entire family. Love and hugs. take care.
Adrienne <moonchild62579@aol.com www.caringbridge.org/va/adriennei>
Woodbridge, VA - Saturday, February 3, 2007 3:19 AM CST

Heather,

Just stopping by to say Hi and to let you know that I think of you often. I just wish I wasn't so sick myself, I could visit you once in awhile. Last time I was in the area I was sick with bronchitis and didn't want to give it to you. I emailed you last week, thought maybe you had a laptop at the hospital with you, but didn't receive anything back so I guess you don't have a laptop with you. Sorry you missed your appt. with the MDA Neuro, hopefully she will be able to squeeze you in soon. Thinking about you always and keeping you in my prayers. Hope you are home soon. And praying that your line stays where it should be.!!

Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
Palmerton, Pa. - Tuesday, January 30, 2007 7:35 PM CST

Heather, I hope this line can stay put and you can come home soon. You and your sister continue to be in our prayers. I hope you guys can spend some quality sister time together... you both need it! You both are always in our prayers.
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
Phoenixville , PA - Sunday, January 28, 2007 3:05 PM CST

Heather, I am glad that they did get a new triple in and I hope this stays in without any problems until a permanent one can be placed. I wish I could fly out to visit you and Aly! Since I can't, I hope you know you are always in my thoughts and prayers.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Friday, January 26, 2007 9:58 PM CST

Hi Heather,

Glad you got your new line. I hope that all goes well and you will be home soon. I think about you so much and wish I had the energy to visit. My doctors are now deciding what to do with me next. I am having a lot of problems and am struggling. Stay warm, the weather is below freezing up here in the Pa. Pocono's. I can't wait for warm weather again. Keeping you in my thoughts and prayers. Hope you are home soon.

Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Thursday, January 25, 2007 9:19 PM CST

Hi Heather,
I miss you!!! I hope so much that you feel better soon and move in the right direction instead of the two steps back direction! I keep thinking back to June when you came over to my condo and we got a chance to hang out together. I wish we were both healthy enough to do that again!! It was so nice spending some "girl time" with you....still makes me laugh to remember the guy in the shoe store asking what our IV tubing was!

I'm praying for you!
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Thursday, January 18, 2007 11:34 AM CST

Oh ((((Heather)))) and (((Aly)))..they say it is darkest before the dawn, so praying you see that light soon. I can imagine this must feel like forever waiting to improve enough for Heather to come home. My prayers continue for strength, patience and comfort for all of you..hang tough and keep the faith! Praying and sending cyber hugs..
God Bless,
LeeAnne, Sammi and family...
LeeAnne <allenleeannebye@aol.com>
Northfield, NJ - Friday, January 12, 2007 7:58 AM CST

Hey heather. Just wanted to let you know I think of you all the time. I really you can get out of there even for a little bit. As Leanne said, many of us know how crappy it becomes. You are so blessed to have a loving sister and family. Hope you take care of this infection soon!
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
Phoenixville , PA - Monday, January 8, 2007 7:11 PM CST

((((((Aly))))) and ((((((Heather)))))),
Praying, praying and praying that Healther gets the break she needs and begins to regain some strength and get home soon! I am so sorry Heather has had such a rough road. Anyone who has spent anytime in "club med" so relates to you Aly...Prayers for Heather and you too..God Bless and please let Heather know we are keeping her in our prayers..
HUGS and prayers,
LeeAnne, Sammi and family
www.caringbridge.org/visit/byesiblings
LeeAnne Bye <allenleeannebye@aol.com>
Northfield, NJ - Wednesday, January 3, 2007 3:57 PM CST

Aly...thanks for faithfully keeping Heathers site updated...you are a very loyal sister.

Heather just as I did with Aly's site I'm stopping in to offer you a New Years Hug...in hopes and prayers that 2007 is a better year all around!
Love and Hugs and Peace
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Monday, January 1, 2007 9:57 AM CST

I'm sorry that you are still in the hospital, but I'm praying that Jesus will be your strength and encouragement.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Sunday, December 31, 2006 9:11 PM CST

thinking of you
Robyn mom to Nicole and angel PJ
www.caringbridge.org/visit/nicole
rw
ottawa, on - Saturday, December 30, 2006 6:16 PM CST

Praying that things go smoothly during Heather's move and that no mice play around while her pcp is not around.
Jennifer from the prayer bears <sassy_girl913@yahoo.com>
Texas - Saturday, December 30, 2006 9:43 AM CST

Heather,

Doing the happy dance for you!! although my Happy dance probably looks funny to most, but at least I am trying!! hehehe I will have to show you someday exactly what it looks like!!

I am thrilled to hear that you are going into a regular room and are out of ICU. A baby step but a miracle in itself. I am not feeling real good myself but as soon as I am I will be coming to visit you. If there is anything that I can bring you please have either your Mom or sister email me or call me and I will pick it up on my way to see you. I miss you and I am sure you will be much happier in a regular room where you can have more visitors. I pray for you each and every day and hope that those tremors don't act up while your PCP is away!! God Bless you

Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, December 30, 2006 1:58 AM CST

Just checking in on Heather. Heather please hang in there and get out of Club Med soon. Praying for you
Sharon A. Frazier <shabosings@bellsouth.net>
- Friday, December 29, 2006 9:29 AM CST

woo hoo!!! doing the happy dance! I am so glad Heather is being moved out of ICU. Next step HOME!!!!! I am so happy to hear the good news. I'm keeping those prayers going.
Sharon A. Frazier <shabosings@bellsouth.net>
- Wednesday, December 27, 2006 10:19 PM CST

Heather, glad to hear you are making steps out of ICU. Ihope they take it slow so you can get our of there soon and recoup at home. Thinking of you everyday.
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
Phoenixville , PA - Wednesday, December 27, 2006 6:44 PM CST

We'll praying that your move to the floor goes smoothly and you are on your way to healing and going home.
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, ky USA - Wednesday, December 27, 2006 2:38 PM CST

Aly I wish I could give you a big hug. It's hard when someone so close to you is sick. I know you wish you could take her place or take away some of the sickness. That's all normal. Don't ever feel like you have let your sister down. Even when you are not physically there your spiritual bond is so tight Heather always feels you near her. Heather has been going through a lot lately and you and your family have been suffering through it with her. Heather couldn't have a better sister than you. I have 6 sisters and I think I would have to combine them all to get 1 Aly. Sometimes we get frustrated and discouraged and want to lose hope, but keep hoping and believing. There are a lot of people - including me - praying for Heather, you and your family. I've been to your page too so I know you have chronic illnesses too. So don't ever feel like you are not doing enough. Sometimes it just gets hard.Hang in there sweetie. Keep supporting and loving your sister.
Sharon A. Frazier <shabosings@bellsouth.net>
- Wednesday, December 27, 2006 6:32 AM CST

Peace and healing, Annie <penguini1982@yahoo.com>
Rochester, MA - Monday, December 25, 2006 3:10 PM CST

Happy Holidays Heather! You are in my thoughts and prayers.
Darcie <sporklesnop@yahoo.com http://www.caringbridge.org/visit/darcie>
- Sunday, December 24, 2006 9:46 PM CST

Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, ky USA - Sunday, December 24, 2006 8:15 PM CST

I am so heartbroken that Heather will not be coming home. How wonderful to have a sister like Aly. Aly your tribute made me cry. You are a wonderful person. Heather I hope you get to come home soon. Maybe your mom can pull some strings and get them to let your kitty come and visit. I'm keeping my fingers crossed. Sending you lots of love and cyber hugs. Hang in there sweetie.
Sharon A. Frazier <shabosings@bellsouth.net>
- Sunday, December 24, 2006 7:04 PM CST

Wishing you and your Family happy holidays...

From our Family to Yours, Special Wishes for a Joyful Christmas filled with Bright Blessings of Magical Dreams, Tender Love and Heart Warming Memories....

MERRY CHRISTMAS!!!

Happy New Year!!!
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Sunday, December 24, 2006 10:00 AM CST

Heather,
Just wanted to stop by to let you know I am thinking and praying for you alot lately. I do hope you can get out of that ICU and the hospital as soon as possible. I hate you have to spend the holidays there and hope that the new yr brings better time (less club med stays!) Merry christmas and love and hugs.
Adrienne www.caringbridge.org/va/adriennei <moonchild62579@aol.com>
Woodbridge, VA - Saturday, December 23, 2006 3:49 PM CST

Heather,

Sorry to hear that you are still in ICU. You have one fantastic sister who would move the world for you if it meant making you better. You are her soul-mate and she loves you dearly, it shows in her writing. You are lucky to have such a loving and caring sister.

I am sorry you are having such a rough time lately. I pray that your foot heals quickly and that you can come home soon. I pray for you daily but I do know that the final decision (whether you come home for Christmas or not) is up to God, for he knows what is best for you and your overall health.

You might not make it home for Christmas, but you can celebrate the Birth of Christ anywhere, yes even in the Hospital. Please know that I miss you and love you and hope that you will be home soon. As soon as you get out of ICU I will ocme and visit you.

Wishing you and your family a Merry Christmas and a Very Happy Healthy New Year!! 2007 has got to be better than 2006!! No more Club Med in 2007, okay???

Love, hugs and prayers,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, December 23, 2006 1:17 PM CST

I'm another one coming here from Jake Raborn's site. Heather, you will be in my prayers for healing, for peace & comfort. May the Christ Child shower you with His blessings.
Jo Kaufman <jkaufman@jam.rr.com>
Monroe, LA USA - Thursday, December 21, 2006 9:46 PM CST

Heather!
I sure miss you a lot!!
I'm praying that you will be home for Christmas!!
Tib
Tiby <tibi19107@yahoo.com>
Philadelphia, PA USA - Thursday, December 21, 2006 9:03 PM CST

Dear Heather,
Our family is fervently praying for you and your family. Our hearts ache for all you are going through.....and our prayer is that God will wrap all of you in His Caring Arms so that you can rest in Him. Our hope is that you can get home soon.
Love,
Lyn

www.caringbridge.org/az/bonniemarie
Linda Marie Codier <lynmarieco@cox.net>
Mesa, AZ USA - Thursday, December 21, 2006 3:40 PM CST

Heather,

My thoughts and prayers are with you. I was so hoping that you would be coming home this week. I say extra prayers that you will see big improvements and get home for christmas.
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, ky USA - Wednesday, December 20, 2006 1:52 PM CST

Dear Heather ~
I was led to you through baby Jake's website. I wanted to let you know that I am sending oodles of positive energy, lots of prayers, as well as many hugs & kisses your way in hopes of helping you through this illness. I hope you make it out of ICU and home for Christmas. If not, you still have all of your family to be there with you and a lot of guardian angels flitting about you giggling. Try to keep a smile on your face......... it warms the heart and soothes the soul and eases your discomfort.
PRAYING big time for you, sweetie.
Denise

Denise Yates
Venezuela, - Wednesday, December 20, 2006 11:29 AM CST

Hi Heather,
I got your website from Jake Owen Raborn's site that I still visit daily. Please know that I am lifting you up in prayer today and will continue to do so thru the holidays.
Kaye
West Monroe, LA - Wednesday, December 20, 2006 11:21 AM CST

We're praying that things will start going better right now, but especially in time for Christmas.

Tell Miss Sharon that you appreciate the cyber hug, but what she really needs to do is come and get you out of that place - her success rate in making things happen is not really clear, but I happen to know that doctors remember her "advice" for a long time.

www.caringbridge.org/al/mamieadams
Mamie's Daddy <george.f.adams@us.army.mil>
Huntsville, AL USA - Sunday, December 17, 2006 1:49 PM CST

Hi Heather,
I just found out from your mom that you are having a really rough day. I want you to know that if I could I would be there to hold your hand through it all and try to get your mind off of all that's happening. You are such an amazing friend to me and I wish so much that I could take away all that you're going through right now.

I am praying for you....I love you!
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Saturday, December 16, 2006 10:12 PM CST

Heather..I'm hoping you find your way home soon and with minimal pain... Please know

Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Saturday, December 16, 2006 9:34 PM CST

I got my prayers going and my fingers crossed. I am so disappointed that she has to stay in that place. Get well Heather. Sending you a great big Alabama cyber hug.
Sharon <mkfnfraz@bellsouth.net>
- Saturday, December 16, 2006 2:25 PM CST

Woo Hoo!!! Got my fingers crossed for Heather. I sure hope she gets to come home. It would really suck to be in the hospital for Christmas. I haven't written in a while because every time I read that Heather was still in the hospital I got all sad and felt it would come through in my writing. I am doing the happy dance (got that from Rachel Hansen at www.caringbridge.org/mn/rachelhansen) because I an so glad Heather is coming home. Aly you are a wonderful sister. God bless.
Sharon A. Frazier <mkfnfraz@bellsouth.net>
Huntsville, AL - Monday, December 11, 2006 10:59 PM CST

Hey,
I'm a friend of Malisa's, she mentioned you could use a little support right now. I just wanted you to knwo that you are in my thoughts and prayers as well.
Darcie <sporklesnop@yahoo.com http://www.caringbridge.org/visit/darcie>
- Monday, December 11, 2006 7:08 PM CST

Hi Heather,
I am so sorry you are dealing with yet another setback. How in the world did you manage to get an infection in your foot?!! LOL Stepping in too many puddles like you did in my hospital room in Boston last spring!? LOL

Anyway, just wanted you to know when Ashley was here this weekend, we were thinking of you a lot and wished you were here,too. Hopefully next time Ashley will have more time and will know in advance when she's coming and we can all get together. Please call me whenever you're up to it. I MISS YOU!!!
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Tuesday, December 5, 2006 1:35 PM CST

Prayers being sent!

Tiby <tibi19107@yahoo.com>
Philadelphia, PA USA - Tuesday, December 5, 2006 10:54 AM CST

Sorry to hear that Heather won't be coming home. I was so excited thinking that she was finally going to be able to go home, sleep in her own bed, be with her family and her sister. I will keep her in my prayers. Praying that God will give Heather the strength she needs to heal and get home soon.

Alyson: Thanks for the updates and I am so happy that the presentation on your sister and friend went well.

Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Sunday, December 3, 2006 1:35 AM CST

Heather, so glad to read things are looking up! You remain in my prayers to be home soon! Prayers for continued improving health and blessings of being home with those you love. God Bless!
LeeAnne, Sammi and family
www.caringbridge.org/visit/byesiblings
LeeAnne <allenleeannebye@aol.com>
Northfield , NJ - Friday, December 1, 2006 6:14 PM CST

I am so glad to hear that Heather is doing better and may be home by the weekend. She remains in my prayers for recovery from this crisis.
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, ky USA - Thursday, November 30, 2006 6:42 PM CST

Hi Heather. You are always in my prayers and I thank God each day to have gotten a chance to get to know you. You have taught me so much.

Jo Laudenslager <ranjo96@verizon.net>
Emmaus, PA USA - Monday, November 27, 2006 9:59 PM CST

Heather,
Happy Thanksgiving!!
I hope and pray that you will be going home:)
IT has been a long time in the hospital- cant wait to see you again!
Tiby <tibi19107@yahoo.com>
Phila, PA USA - Saturday, November 25, 2006 10:59 PM CST

Heather,
It was great to meet you. I really enjoyed spending the day with you that day when I was your 1:1 in the hospital. I admire your incredibly good attitude and sence of humer with all you are going through. Thank you for sharing your web site with me. You are in my prayers. Stay strong.
Virginia Vergara (4c Tech.)
Virginia Vergara <ggvergaraing@netzero.com>
Breinigsville, PA USA - Saturday, November 25, 2006 9:21 PM CST

Heather I REALLY hope you're feeling better soon! I come to PA in a month and I'm coming to see you one way or another! I HOPE it's at a restaurant again but the hospital doesn't scare me! Hehe I'm greatly looking forward to it, and hopefully Aly and Sarina will join us too! Sending lots of love and good thoughts your way! Hugs!
Diana <Diana893@gmail.com>
Dallas, TX - Thursday, November 23, 2006 9:25 PM CST

Happy Thanksgiving Heather...Aly thanks for keeping us up to date. I'm sorry you are still in ICU...and I wish that the higher powers would bend down and grace your team with the knowledge and skills necessary to make you feel better so that you can be whole again and go home and be with your family. You are in my thoughts and prayers daily...
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Thursday, November 23, 2006 9:13 PM CST

Happy Thanksgiving Heather! I'm sorry you have to celebrate inpatient; I've totally been there and while you can usually find a way to celebrate it's just not the same. So many of us are struggling right now and I'm so sad that you're included in that group. The one good thing is that we have each other for support and friendship, and that is one of the things that I am thankful for this year. This group of us mito girls has really helped me; I've often felt like giving up and alone, and while I dislike that there are others like you suffering I am grateful we have each other. I hope your day is more pleasant than most, and know that I'm thinking about you and praying for you. My mom reads me everyone's updates since I'm usually not feeling well enough to. Keep fighting!

Love and hugs,
Bonnie

We give thanks to You, O God, we give thanks! For Your wondrous works declare that Your name is near.

Bonnie Codier (www.caringbridge.org/az/bonniemarie) <bonniebelle@cox.net>
Mesa, AZ USA - Thursday, November 23, 2006 8:04 PM CST

Happy Thanksgiving!! Know that I miss you and am praying for you always. Hope you are feeling better and that your tremors are gone. Wishing you will be home soon with your family.

God Bless you...
Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Thursday, November 23, 2006 1:18 AM CST

Praying for Heather to be back in her bed around friends family and pets soon.
Jennifer from the prayer bears and ones who care <sassy_girl913@yahoo.com>
Texas - Thursday, November 23, 2006 0:05 AM CST

Peace, healing, and love to you and your family.

Annie <penguini1982@yahoo.com>
Rochester, MA - Wednesday, November 22, 2006 5:58 PM CST

Hi Aly,

Any news on Heather? How is she doing? I hope the sedation is helping to control her tremors. Will she be home for Thanksgiving? I sure hope so. Please let her know that I am thinking of her and praying for her too, as well as you and your whole family. I know it is hard to see your sister suffer so much from this disease. You two are very close and I pray that Heather will be home soon. It is nice to see sisters so close and so loving towards each other. PTL!!

I wish you and your whole family a Very Happy Thanksgiving Day.

Thanksgiving is:
A day to share with friends, family and strangers, A day to pray, A day to share, A day to show our Faith and thank the Lord for being in our lives, and a day for Blessings and to give Thanks!!

God Bless you all and Happy Thanksgiving!!
Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Wednesday, November 22, 2006 12:19 AM CST

Aly, so sorry to read Heather is still having such a tough time of it. Please let her know she is in our thoughts and prayers. Praying this rough phase will pass soon and she will be home soon to be with those she loves and enjoy the holidays! Prayers for better days soon..
LeeAnne, Sammi and family
www.caringbridge.org/visit/byesiblings
LeeAnne <allenleeannebye@aol.com>
Northfield, NJ - Tuesday, November 21, 2006 7:50 PM CST

We pray God’s blessings be with you
In abundance even more
For you have been so special to us
A blessing from the Lord
We just want for you to know
How much you mean to us
For all you’ve done, and for who you are
We appreciate so much.
Wishing your family a Happy Thanksgiving.

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
- Sunday, November 19, 2006 10:38 AM CST

Heather...I'm really sorry you are still wiggling and jiggling...I know how it can take it out of you. In my daily prayers I very often ask that your medical team is guided to finding the right course/combination for you. I hope you get to be home for Thanksgiving.
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, November 19, 2006 8:30 AM CST

Heather,

JUst stopping by to see if Aly posted a new update on you. I hope you are feeling better and getting the much needed sleep you need so those tremors stop!! i am praying that you will make it home for Thanksgiving. I know how much they want you back home so that you can celebrate Thanksgiving and I am sure that your pets miss you terribly. Keeping you in my thoughts and prayers. Knowing that God is holding you tight and taking good care of you.

Aly you are one amazing sister!! Heather is so lucky to have such a wonderful and caring sister that loves her so much and takes such good care of her. I hope she is home soon so you aren't so lonely anymore. God Bless you all

Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, November 18, 2006 0:35 AM CST

I am hoping that your symptoms begin to improve. I know it's not ideal to be stuck in club med, but I hope that you are out soon and feeling well.
Liz Price <eneprice@comcast.net>
Wayland, MA - Thursday, November 16, 2006 6:41 PM CST

Heather,

I just wanted you to know that we are praying for to be able to get the rest you need so you can get back home!
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, ky USA - Thursday, November 16, 2006 11:09 AM CST

Oh Aly I wish I could be there to scream at the weekend nurses for you all. It is so aggravating when it seems they don't keep up with the orders.I don't blame your Mom for making them give the meds properly.You have to do that sometimes. I am keeping my fingers crossed and hoping Heather makes it home for Thanksgiving.
Sharon A. Frazier <mkfnfraz@bellsouth.net>
- Sunday, November 12, 2006 5:23 PM CST

Heather,

I am checking your site everyday to find out how you are doing. Your sister Aly is doing a great job of keeping everyone up to date on your progress. I am sorry to hear that the NJ tube didn't work for you and so sorry to hear that you had to be sedated again. I hope it helps with the tremors and you will be back to a regular room soon and then home. Keeping you in my thoughts and prayers and hope that soon you are home and feeling better.

Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, November 11, 2006 0:52 AM CST

Heather, I am staying updated on you. Aly is truly one of your angels on earth. I am keeping you in my thoughts and prayers and can't wait until we can talk again! Missing you;
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Friday, November 10, 2006 2:47 PM CST

I'm beginning to not like Club Med very much because I know how much Heather didn't want to go in again. I am praying for Heather and think about her all the time. Aly your love for your sister is obvious through your writings. I am so happy that Heather's body is going to get a break from all those tremors. I've found that ICU nurses are the best. Give her a big hug for me.
Sharon A. Frazier <mkfnfraz@bellsouth.net>
- Wednesday, November 8, 2006 10:46 PM CST

Hi Heather...I thought we agreed no more extended Club Med stays!!!! I hope you are getting the rest you need to stop shaking and quaking...Take care and know that I think of you often...
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Monday, November 6, 2006 7:40 PM CST

Hey Heather,

How are you doing? Are you out of the hospital yet? I hope that your sister or your Mom can update us, we are all wondering how you are doing and what they are doing for you.

Praying for you.....
Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Monday, November 6, 2006 0:46 AM CST

Just checking in to say hi Heather...soooo "Hi Heather!" ::waving::: I hope you are feeling better today.
Sharon A. Frazier <mkfnfraz@bellsouth.net>
- Sunday, November 5, 2006 8:22 AM CST

Heather,

Sorry to hear that you are still in ClubMed. Wish there was something more I could do than pray and send you hugs. I am sorry that you missed handing out candy to the trick or treaters this Halloween, but I know you will be there next Halloween for the kids when they come knocking at your door. Thinking of you, sending gentle hugs and lots of prayers your way.

Thank you Aly for the updates.

Love and hugs,
ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Friday, November 3, 2006 1:12 AM CST

Malisa, Heather, and Kristina,
I am posting the same message in each of your guestbooks to save on energy and to let you know that even though I have been pretty "absent" lately, I am still checking up on you. I was struck by the fact that Malisa, Kristina, and Bonnie have all written this week about how much things have changed from a year ago. I have been struggling with that issue for the past month and the realization of it, and to then find all three of you writing out on your sites the exact thoughts that are going through my head, brought tears of sadness and relief to my eyes...sad that we are all in this together, and relief that I have incredible friends that understand exactly what I am going through.

What happened this past year?? Didn't someone write in the journal that 2006 was supposed to be a good year, and "no admits in 2006"? I also think of that picture of us STANDING in front of the Christmas tree and where this past year went healthwise. I owe you all calls and emails and I am trying to get back on track with my energy (and attitude), but it has been a struggle. Lots of tough changes here too. Love you all!
Ashley <ayoung00@hotmail.com>
Boston , MA - Wednesday, November 1, 2006 8:56 PM CST

Heather, I am here, thinking about you and keeping you in my thoughts and prayers. I would fly right up there just to sit with you if I could. You are in my prayers
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Wednesday, November 1, 2006 5:31 PM CST

Hang in there Heather. I wish I could be there to give you a big hug. Praying for you.
Sharon <mkfnfraz@bellsouth.net>
- Tuesday, October 31, 2006 8:08 PM CST

Heather,
Hang in there......we are praying for you to be well enough to go home asap!!! Hi to both you and Alyson (loved the pics of the two of you on her front page!).
Lyn Codier www.caringbridge.org/az/bonniemarie <lynmarieco@cox.net>
Mesa, AZ USA - Tuesday, October 31, 2006 0:19 AM CST

Hi, Heather,
You are one of the mito maidens who I keep in touch with though your caringbridge page. I know you and Malisa are having a difficult time, and you are both in my thoughts and prayers. Ashley, the fourth mito maiden emailed me several times last week and we send our love and support.
Gentle hugs,
Melissa
Melissa
Boston, MA - Monday, October 30, 2006 8:03 PM CST

Praying you get to feeling better and are home soon!
Meagan & Sophie www.caringbridge.com/ky/sophiesong <tooge01@yahoo.com>
Louisville, ky USA - Monday, October 30, 2006 6:45 PM CST

I am praying so hard for Heather. Please let her know that. Poor thing. Her body just goes through so much. Praying for you too Aly. Thanks for keeping us updated.
Sharon <mkfnfraz@bellsouth.net>
- Monday, October 30, 2006 7:48 AM CST

Heather,
I hope and pray that the movements will lessen.
Hang in there, there are many people praying and sending good wishes to you:)
Tiby <tibi19107@yahoo.com>
Phila, PA USA - Sunday, October 29, 2006 11:14 AM CST

Hi Heather,

Sorry to hear you are still in the hospital. I sure hope they find something to help with those tremors. I get them too but mine only last for 8 hours or so, nothing like what you are going through. Know that i am thinking of you and praying for you too!! Happy Halloween!! BOO BOO!!!

Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Friday, October 27, 2006 6:49 PM CDT

Hi Heather,
Just wanted to take the time to say hello while I'm here, and tell you that you've been a real pleasure to help at the hospital and a real inspiration. I love your positive attitude...don't ever lose it! See ya soon:)
Timothy Ziegler <anaphys66@rcn.com>
Easton, Pa - Thursday, October 26, 2006 8:53 AM CDT

Heather, Thinking of you now and always! Still wish I could be with you, even if I would get slapped by "The Amazing Arm" . :-) I will try to call sometime soon.
Kristina <kckoch76@juno.com www.caringbridge.org/kristina/ia>
- Wednesday, October 25, 2006 4:49 PM CDT

Hey, I am a friend of Malisa's... I wanted you to know that I will keep you in my prayers as well.
Darcie <sporklesnop@yahoo.com http://www.caringbridge.org/visit/darcie>
- Tuesday, October 24, 2006 0:01 AM CDT

Heather,

I am sorry to hear you are still in the hospital. Those tremors you get are really bad and your sister is right decorating a pumpkin would be more like Spin art. I remember how hard and fast your poor arms, legs, head and the rest of your body tremors were last year when you were in the hospital. Just know that I am keeping you in my thoughts and prayers. I hope you get better soon and get home in time for the tricker treaters!!

Love ya,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Monday, October 23, 2006 10:23 PM CDT

Heather, I hope you are doing okay. I will check in soon. I am praying for a speedy recovery and that you can get back to feeling better soon, as I know how worn out you were. I could always hear it in your voice. Aly, thanks for updating!
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Friday, October 20, 2006 11:42 AM CDT

Aly,
Thanks for the update. I sure hope they get the line put in right this time. Bummer that she had to be admitted. Give Heather a big hug for me
Sharon Frazier <mkfnfraz@bellsouth.net>
- Friday, October 20, 2006 8:54 AM CDT

Heather,

Sorry the line repair didn't go as planned. I hope the new kit arrives tomorrow(Wed). Sorry that you have to be admitted tomorrow(wed) but hopefully they will figure out what is wrong with your line. Keeping you in my thoughts and prayers. Get well soon!!

Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Wednesday, October 18, 2006 0:25 AM CDT

Sorry your line repair didn't happen and I hope the new kit comes in really fast. Sending lots of good thoughts your way!
Peace and healing, Annie <penguini1982@yahoo.com>
Rochester, MA - Friday, October 13, 2006 9:48 PM CDT

Hi Heather,

I'm one of Aly's friends. I'm another one of the co.onic inertia total colectomy chicks. I just wanted to stop by and say that I am keeping you in my prayers. Aly said you hadn't been feeling well and I hope things improve for you real soon!

Hugs,
Maura
Maura <mobeemaster@gmail.com>
- Friday, October 13, 2006 6:56 PM CDT

I can't believe they ordered the wrong kit, well, actually I can believe it. If it wasn't for the patient taking control half of the things we need to get done would NEVER get done!! Sorry you had to step up and do the doctors job, but at least now you will get the right kit.

Sorry to hear your Mom needs tubes in her ears. And that was so kind of her to cancel her surgery in order to take you to the ER to have your kit repaired, but that is what Mom's do !! :-)

Keeping you in my prayers. Hope you are feeling better!!
Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Wednesday, October 11, 2006 0:17 AM CDT

Hey Heather- It is now Sunday afternoon so I hope that you are now home with a new and working double lumen line. You have been on my mind a lot lately. I hope that this week is good for you and that your health will improve so you can be infection free. You continue to be in my prayers.
Allison <lilqt4u1984@aol.com>
- Sunday, October 8, 2006 1:28 PM CDT

Hi Heather,

Glad to hear that you found the Y tubing to help when you need to infuse 2 meds at once. I hope you are feeling better and I hope the line repair kit works. Good Luck with the repair and please try not to have to stay overnight, okay??

Keeping you in my prayers and thoughts, tell your sister I said Hi.

Hope you feel better soon!! God Bless you!!
Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, October 7, 2006 7:16 PM CDT

Heather,

I am glad that you found the Y-connector thing, and that you got the repair kit. You sure are going through a lot with these danged infections... wish you could get a break for a while.

I have been having a lot of problems recovering from a recent bout of rhabdo, trying to hang in there and claw my way out from under this metabolic fog. Labs are still a little funny, but mostly I just don't feel good. I have a lot of appointments coming up (nephrology on Monday, metabolic guy on Tuesday, PCP on the 16th, pain clinic on the 31st), so hopefully we can get something figured out. I'm waiting for insurance approval to get a biopsy in Atlanta, too.

One thing that has helped is getting D10 when I am feeling sick. We have talked about doing a port so I can do that at home, but right now we are holding off.

Reading about all of the infections you guys keep getting makes me not want to mess with central venous access at all!

Anyway, I hope your line gets fixed and things start to get back to normal for you. Sorry you are having such a rough time. Mito sucks...
Sara B (www.carepages.com My page is SarasPage)
Madison, WI USA - Saturday, October 7, 2006 6:00 PM CDT

Hi Heather,
I sure hope that your line can be fixed this weekend. I've been praying for you, and hope that a miracle comes your way and all these infections just disappear!
Amy <aandbroth@enter.net>
Coopersburg, PA USA - Saturday, October 7, 2006 9:06 AM CDT

Hi Heather,
Praying that things get better... and right now they sound so complicated!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

Joanne <joanne173@gmail.com>
Singapore, Singapore - Friday, October 6, 2006 2:20 AM CDT

Good morning Heather. Just stopping by to let you know that you are in my thoughts and prayers.
Sharon <mkfnfraz@bellsouth.net>
Huntsville, AL - Wednesday, October 4, 2006 9:33 AM CDT

Good morning Heather. I hope your new kit gets there soon. Praying for you.
Sharon <mkfnfraz@bellsouth.net>
Huntsville, AL - Tuesday, October 3, 2006 9:03 AM CDT

Hi Heather,

Sorry you are having so many difficulties with your lines. I also am experiencing symptoms when being off my TPN for a period of time. I am wondering if they are going to increase my time, I hope not. Hope your infection clears up real soon and you stay out of "Club Med"

Thanks for mentioning me on your site, that was very kind of you. You are in my thoughts and prayers. How is your sister doing?

Love and hugs,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Monday, October 2, 2006 11:43 PM CDT

Heather I pray for you daily. {{{{{{{{{ HUGS}}}}}}}}
Sharon <mkfnfraz@bellsouth.net>
- Monday, October 2, 2006 4:46 PM CDT

Hi Heather...sorry you blew your line...been there done that...I'm curious though if you normally run vanco and tpn at the same time but from different ports I would assume they are compatible...why not run them through a double or triple port hub. I too have the issue with being off tpn for any period. Sometimes even changing bags is too long if I don't time things correctly. I've used hubs in the hospital and at home for this very reason before I had a triple lumen put in that is.
I hope you get it worked out and that the vanco will wipe this infection out totally! You are in my daily prayers!
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Monday, October 2, 2006 9:53 AM CDT

Heather I am praying that your new kit comes in real soon and be the right size and that there are no problems with it. Have a blessed day!
Sharon <mkfnfraz@bellsouth.net>
- Sunday, October 1, 2006 1:03 PM CDT

Heather,
You can roll off those medical terms like a doctor. I hope you have a good day today.
Sharon <mkfnfraz@bellsouth.net>
- Saturday, September 30, 2006 5:58 PM CDT

Heather,
Sorry bout your one lumen breaking, I know that has to be taking alot out on you and you were already going through so much. Just know I am praying for ya.
take care.
Adrienne <moonchild62579@aol.com>
Woodbridge, VA - Friday, September 29, 2006 6:41 PM CDT

Heather, Stopping by to say hi. I am finally on the computer today for a few minutes and had to stop by to say hi and to see how you were doing. I wish they could have wiggled their nose (like in Bewitched, if you ever watched that) and fixed the white port, and your infection while they were at it! Take care. I am thinking of you and keeping you in my thoughts and prayers. I miss you!
Kristina <kckoch76@juno.com>
- Friday, September 29, 2006 3:57 PM CDT

Hi Heather....just stopping by to say "hi" and "I miss you". Counting down the days unti November when you all come back here! I'm trying to think of some "trouble" we can all get in to when we are all back together :)
Ashley <ayoung00@hotmail.com>
Boston , MA - Friday, September 29, 2006 7:58 AM CDT

Thanks for the update Heather. Hang in there!
((((((((((((Huge Hug )))))))))))))
Sharon <mkfnfraz@bellsouth.net>
- Friday, September 29, 2006 7:21 AM CDT

Good morning Heather. I hope you have a good day today. Hang in there. {{{{{{{{{{{{Big Hug}}}}}}}}}}}}
Sharon <mkfnfraz@bellsouth.net>
- Thursday, September 28, 2006 7:35 AM CDT

Just checking in to say Hi Heather...so "Hi Heather!" I'm praying for you
Sharon <mkfnfraz@bellsouth.net>
- Wednesday, September 27, 2006 4:08 PM CDT

Hang in there Heather
Sharon <mkfnfraz@bellsouth.net>
Huntsville, AL - Tuesday, September 26, 2006 9:04 AM CDT

Hi Heather,

Sorry to hear that you are dealing with yet another infection. They really rot, don't they?? I heard you had to cancel your appt. with Reid. I missed him too. Poor guy came to see us and neither of us got to see him. I hope and pray that you start feeling better soon and that the antibiotics start to work quickly and kick that infection right in the butt!! hehehe

I also am not feeling well at all. My temp. is up close to 100.0 and I am also experiencing the chills, sweats, shortness of breath, etc.. I am so fatigued that I can't even walk more than a few steps without having to go back to bed. I hate this part of the disease/or infection.

Thinking of you always and keeping you in my prayers.

Love and hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Monday, September 25, 2006 9:29 PM CDT

Hi Heather,

Sharing one of my favorite verses today. Know that I'm here praying so for you right now!

Isa 40:31 But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint.

Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL - Sunday, September 24, 2006 4:25 PM CDT

Hi Heather!
I hope your infection will clear up or stay away!! Take care and hope you feel better soon!

With Love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams~
~Prayer Bears~
OWC, SOEW

Joanne <joanne173@gmail.com>
Singapore, Singapore - Friday, September 22, 2006 1:49 AM CDT

sending you a cyber hug {{{{{{{{{{heather}}}}}}}}}}}}}
Sharon <mkfnfraz@bellsouth.net>
Huntsville, AL USa - Wednesday, September 20, 2006 11:19 AM CDT

Heather,
I found your site through Mamie Adams site.
I am sorry you are not feeling well. As for the antibiotics, follow your instincts. You know your body better than anyone else. Hang in there. I'm praying for you.
Sharon <mkfnfraz@bellsouth.net>
Huntsville, AL usa - Tuesday, September 19, 2006 9:06 AM CDT

Heather,
I am so sorry you are still feeling so rough...sure wish they would get to the bottom of this..if its not an infection, time for them to put their thinking caps back on and help you feel better. Will pray you get a much needed break this week and they pull a new trick out to help you feel WORLDS better..meanwhile gentle hugs and healing thoughts.
LeeAnne and Sammi
www.caringbridge.org/visit/byesiblings
LeeAnne <allenleeannebye@aol.com>
Northfield, NJ - Monday, September 18, 2006 7:07 PM CDT

Heather, Thinking of you so much lately, but have not been feeling to hot, so have not been on the computer, as you have probably figured. I hope they can find out what is causing all of this for you and help you out soon. and by me saying soon, I mean NOW!!!!!!! :-) Thinkning of you and sending many hugs and prayers your way.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Monday, September 11, 2006 9:03 PM CDT

Hi Heather,

So glad to hear that you were out of the hospital for the whole summer!! WOW!! that is certainly something to be proud of. Family is so important and your family is a blessing. They are always right by your side. Gee, I am heading to the Mall this week, too bad we couldn't have met at the Mall the same night, that would have been fun. Please take care of yourself and slow down. I hope your clot is gone for good!! And thank you for mentioning me and asking for people to pray for me. Keeping you in my thoughts and prayers.

Love and hugs,
Ann-Marie
www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Wednesday, September 6, 2006 0:15 AM CDT

Hi Heather,

Thanks for the reply through the Yahoo Mito group.

It made my wifes day to get the responses.

Now I've got to get her on the PC more often.

Sorry your under the weather & take care.

David
David & Kathy Walsh
Grafton, MA 01519 - Monday, August 28, 2006 1:11 PM CDT

Hey Heather
I'm so sorry to hear about you feeling yucky and the infection! Praying for that to clear up!

With love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW

Joanne <joanne173@gmail.com>
Singapore, Singapore - Monday, August 28, 2006 11:36 AM CDT

Heather- so good to see an update from YOU! Wish so much that you were feeling better though. You continue to be in my thoughts and prayers. Thank you for including me in your prayers. Hope today has been better in some small way.
Allison <lilqt4u1984@aol.com>
- Thursday, August 24, 2006 11:40 AM CDT

:):)
Hope you'll get well!
T
Tiby <tibi19107@yahoo.com>
Philadelphia, PA USa - Wednesday, August 23, 2006 3:22 PM CDT

Hey Heather, glad the line placement went better then expected. I hope you are feeling better since your last update and that you arent back in the hospital.... Hope you are feeling well. I was suppose to get together with malisa last weekend, but ended up back in the hospital too after my little surgery. UGH!
stephanie www.caringbridge.org/visit/stephanie6 <stephot1@hotmail.com>
phoenixville, PA - Saturday, August 19, 2006 9:10 PM CDT

Heather,

You don't know me, but I found your site from another CB site and I've been following your site for a few weeks now. Just wanted to say you're an awesome girl and an inspiration to many. Due to having Cerebral Palsy, I'm in a power wheelchair myself, so I can somewhat relate. Say strong and remember NOTHING IS IMPOSSIBLE!!!

Stacy <stelly15us@yahoo.com>
Fond du Lac, WI - Thursday, August 17, 2006 2:51 PM CDT

I hope you're feeling better since your last journal entry. We're praying that the central line will work perfectly for a very long time.

www.caringbridge.org/al/mamieadams
Mamie's Daddy <george.f.adams@us.army.mil>
Huntsville, AL USA - Tuesday, August 15, 2006 9:35 PM CDT

Heather, Hi! I just wanted to drop in and say hi. I want you to know how much I admire you for all you have done and how well you have gotten through so many obstacles in life. Keeping you in my thoughts and prayers. Call me anytime if you need to talk!
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Tuesday, August 15, 2006 4:58 AM CDT

Hi Heather! I just ran across your site and read your story and wanted to say hello and to let you know that you will be in my prayers! I am also an OTR in the school system and my specialty is in SI! I hope you can work again soon! I know that our job is so rewarding. I really admire you! You are an encouragement to me! Hang in there!!! With love, Kris
Kristi Metz <metzk@jackson.k12.al.us>
Scottsboro, Al - Monday, August 14, 2006 9:48 AM CDT

Wow, pretty good getting out in just 24 hours. I usually bleed for the first week and require daily or 2xdaily dressing changes because of all the blood and lymph fluid. And yes, I've definitely found that with the harder the placement the more the blood and fluids.

In addition to the steroids are they giving you anything specifically for the dystonia and myoclonus post-surgery? My seizure doc came up with a novel idea which has worked wonders for me. In addition to my seizure meds he has Rxd Klonopin wafers prn at any time there is an increase in my dystonia or jerks. This stuff has been incredible and I only need to take it when needed. Of course YMMV, but it might be worth checking out.

Well, now that I've rambled I will let you know that I pray for you daily. Peace.
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, August 13, 2006 8:32 AM CDT

Heather,
Wow, big record for you! I just hope it was the best thing to do cuz you sure don't sound like you are doing well at all now. I'll pray that the symptoms you are having last very short and that you are feeling better in no time soon. You so deserve to feel better for once and not have to go through that every single line placement and hoping this is the last line placement for awhile too! Thoughts and prayers as always for you and your family.
take care.
Adrienne www.caringbridge.org/va/adriennei <moonchild62579@aol.com>
Woodbridge, VA - Saturday, August 12, 2006 2:39 AM CDT

Heather,

One day and out of the hospital, wow, that is a record for you. I hope you start to feel better as the days go by. Just remember to slow down and take it easy. Our bodies take a long time to recover from surgery. I hope your red rings around your eyes is gone and that you aren't sick to your stomach any longer. Rest and sleep as much as you can, sleep helps to heal the body. Keeping you in my thoughts and prayers!!

Love and HUgs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Wednesday, August 9, 2006 10:55 PM CDT

Heather,

I'm glad that you were able to get out of the hospital so quickly! I hope you are feeling better today and that you can manage to find a balance between overdoing it and being bored out of your skull. I have been struggling with that myself lately... do I get out and do something with my friends and risk paying for it later, or do I sit on my butt and take care of my body but get bored and grumpy?

I got a chance to read through a lot of the old posts on this page today, and it certainly sounds like you've been through a lot. One thing that shows through, though, is your strength despite all the hard stuff.

Anyway, I should get going, but I just wanted to say hi and send some words of encouragement as you recover from your procedure and the effects of the anesthesia.

-Sara

www.carepages.com (my page is SarasPage)
Sara B
Madison, WI USA - Monday, August 7, 2006 6:09 PM CDT

Heather, I am so glad you are home, but please be really careful and take it easy. I know you and know you are probably up and about quite a bit and your body isn't used to that this soon after surgery. I hope you start feeling better soon and that the dizziness and nausea go away quickly.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Monday, August 7, 2006 3:16 AM CDT

Hello Heather,
So glad that everything went well with your line placement and that you were home 24 hours after surgery, that is an accomplishment that you should be proud of. I will check in on you soon, Take Care and Feel Better.

www.caringbridge.org/pa/amandafeld/
Amanda Feld <mags11788@comcast.net>
West Chester , PA US - Sunday, August 6, 2006 1:18 PM CDT

Heather, Just dropping by to check in on you. I agree that you are NOT a "non-complicated" patient. I had to laugh when I read that, as it reminded me of the anesthesiologist who said that I was not "normal with normal reactions". Birds of a feather stick together, which could explain why we are good friends. :-)
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Sunday, July 30, 2006 3:33 AM CDT

Hi Heather from one Jefferson Alum to another! I however garduated in 1980 with my BSN, but still ya know we are Jeff "family"! I hope your AC has been fully repaired and you have gotten relief from the heat, we do not do well here either with heat and humidity, I empathize! This summer has not had too many "pleasant" comfortable days.
I check on you from time to time, Malisa is an "old" friend (smile). Hope you can get your line straightened out and enjoy some better health.
Prayers for God's blessings..
LeeAnne
www.caringbridge.org/visit/byesiblings
LeeAnne <allenleeannebye@aol.com>
Northfield, NJ - Sunday, July 23, 2006 12:26 AM CDT

Hey Heather,
Just missing you and wanted to say hi! I talked to my mom about next weekend and if we decided to do go forward with plans, she said she can help out, if needed. Looking forward to hopefully hanging out with you again soon! Now...we BOTH have to start feeling better first!
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Sunday, July 23, 2006 11:59 AM CDT

Heather, I hope the AC gets fixed soon. I worry about you and the heat! I hope that Dr K and the rest of your doctors were able to come up with a good plan for you. Thinking of you!
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Sunday, July 23, 2006 8:40 AM CDT

Heather,
I'm sorry you are having so many line related probs again, I hope that all is fixed soon enough and that you dont have any additional probs related to it all. Thoughts and prayers as always. take care.
Adrienne www.caringbridge.org/va/adriennei <moonchild62579@aol.com>
Woodbridge, VA - Monday, July 17, 2006 5:39 PM CDT

Good luck with the line!
Tiby <tibi19107@yahoo.com>
Phila, PA USA - Thursday, July 13, 2006 7:50 PM CDT

Hey Heather, it's Linda (tp)from LVH (7A). I came across your website address and thought to drop you a line. You look fabulous. I'm so happy you are out and about enjoying life (you certainly deserve it). You are such a beautiful soul and I'm glad we are friends. Continue to take care of yourself.Oh and Lisa(tp) says hello.
Linda Rodriguez,tp (LVH) <Lirodriguez318@sprintpcs.com>
- Sunday, July 9, 2006 11:31 AM CDT

Hey heather
I was up taking my anti rejection meds and was checking on CB sites. Good to see you updating again. I am sorry to hear of your troubles with infections, lines, rashes and bumps and pain. Just doesnt seem like you get a break. Malisa and I are trying to find a time to get together with our hubbys. The three of us should get together some weekend. Once I am allowed to drive a little further...still restricted because of the transplant. THey dont want the steering wheel damaging anything if I get in an accident. SO I am only doing short distances. Well, I continue to keep you and your sister in my prayers. I hope the two of you can find some answers that you need. It is good to see that you are getting out after you time in the hospital. Take care.

Stephanie <stephot1@hotmail.com>
Phoenixville, PA - Tuesday, July 4, 2006 11:16 PM CDT

Hi Heather!
I got your page from Diana! lol.. Was reading about your hip socket pain thingy and I started jumping. lol... Not literally... heh... but I'm having that too! Like right now! Mine is in both sockets and its driving me nuts cos it hurts to walk! I have NO idea whats going on with mine though. The rhumy thinks its the EDS, but I seriously doubt it. Anyway, you hang in there and feel better!

With love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW

Joanne <joanne173@gmail.com>
Singapore, Singapore - Tuesday, July 4, 2006 10:11 PM CDT

Diana <Diana893@gmail.com>
Dallas, TX - Tuesday, July 4, 2006 5:56 PM CDT

Hi Heather,
My sister has the same name. I found your site from a couple of places such as Heidi/Angel Heathers etc. I have multiple GI issues such as very bad motility that stops frrequently, crohns, obstruction disorder, IBS etc along with some non Gi stuff. I hate GI tests and the all seem to come with nasty tasting preps. Would think by now they could make stuff taste better. I just picked up some Go-Lytely aka supposed to make you go heavily but never works with "flavor paks"..rumor is tho..the flavor packs make it worse...how nice. I would love to add you and your sister to my prayer list.
www.pamsstory.org(email for password)
pam <sylteach@aol.com>
- Friday, June 30, 2006 10:44 PM CDT

Heather,
I am SO glad you were able to make it to the wedding last weekend and had a good time. Yeah for dancing, TPN and all! I am hoping this infection does respond to the antibiotics and doesn't stick around long. Thinking of you!
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Thursday, June 29, 2006 9:42 AM CDT

Heather, Just stopping in to say hi and to let you know I miss you! You are certainly an inspiration to me and many others.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Tuesday, June 27, 2006 11:40 AM CDT

Heather...I can't believe how well you are doing given where you've been in the last 3 months. You are an inspiration! Sending lots of Hugs and Prayers your way.
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, June 25, 2006 10:33 AM CDT

heather! thanks soooo much for the update! i've been praying sooo much for you! you are AMAZING!!!! honestly all you've been through, i think i would have gone off the deep end! anyhow, if you ever get frustrated or anything, please email me! :) :) FEEL BETTER! praying for NO major mito crashes anytime soon and NO resistance to vanco...and just for you to feel better in general...and get off TPN even a few hours! love ya way more than lots!
HUGS,
tara :)
Tara Jones http://www.caringbridge.org/visit/tarabara
Kensington, CA United States - Monday, June 19, 2006 12:22 AM CDT

Heather, Hi! I hope your doctors listen to you and can get this infection under control. It has certainly been brewing there for awhile. As for ideas on an immunologist . . . The one I saw for the first time last week is great. So, now you just have to come out to Iowa for immunology and then we can go onto Boston together.
:-) Could we get into a lot of trouble (fun trouble, of course) doing this or what? :-)
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Monday, June 19, 2006 7:24 AM CDT

Hi Heather! Thank you for the update. I'm glad that your appointments in Boston went well. My wife, Heidi, can relate to a lot of what you wrote down in your journal. She has issues being off TPN within 15 minutes. She's really bad. She's on it for 24 hours. Anyways, I hope your line infection gets better and you enjoy the weather. Take care.

Paul Coleman www.caringbridge.org/ma/heather <dad2colemankidz3@aol.com>
Easthampton, MA USA - Sunday, June 18, 2006 9:34 PM CDT

Hi Heather, I found your web site through Malisa's and share the same boston mito doc. Just wanted to say that I also have immune deficiency. After a poor experience with a non-mito-educated immunologist, (long story) I now see a hematologist. Since last fall I have received IGg IV's every four weeks and it has made a HUGE difference in the number of things I catch. On antibiotics about 10 times in the year before IV's, and only once in the last year. So don't overlook a hematologist if you can't find an immunologist who is knowledgeable.
Hope you find treatment just as helpful!! Best Wishes, Marjette
Marjorie Cruse <marjette@comcast.net>
East Lansing, MI USA - Sunday, June 18, 2006 8:55 PM CDT

Heather,
I havent signed guestbooks since I got back from boston but I just wanted to say it was so nice to meet you. I really hate I missed out on your bday celebration but I am so glad that you were able to celebrate it and it sounded like you really enjoyed it. Years fly by and boom, where did our youth go? I know i feel that way, i turn 27 in just over a wk. Anyways, I hope you are feeling as well as possible and my thoughts and prayers go out to you and your family. take care.
Adrienne www.caringbridge.org/va/adriennei <moonchild62579@aol.com>
woodbridge, va - Tuesday, June 13, 2006 8:51 PM CDT

Heather, Just dropped in to see how you are doing. It has been awhile since we talked. I hope you are doing okay. I am thinking of you daily and keeping you in my thoughts and prayers.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Thursday, June 8, 2006 9:11 AM CDT

Happy Belated Birthday Heather...It is great to see you have your smile back! It looks GREAT!!!!

Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Thursday, May 25, 2006 7:24 PM CDT

Heather, I am so glad you had a good birthday and were out of the hospital for it! I am glad we were able to celebrate with you in Boston. I LOVED the look on your face the whole night. Your smile was endless! My sides also hurt from laughing in the limo! Thank you so much for your friendship. It means the world to me!
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Tuesday, May 23, 2006 2:51 PM CDT

Hi Heather,
I just wanted to stop in and wish you Happy Birthday (again!). It was SO much fun surprising you on Friday night. I think my sides hurt, too, for awhile afterwards just b/c we were laughing so hard all night. It was so great to have a "girls' night out" to celebrate your birthday and I am still so happy that we pulled it off without you knowing about it! SOO much fun!! Love ya lots!
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Tuesday, May 23, 2006 12:40 AM CDT

Happy Birthday Heather!!!! I'm touched by the frienship of all of you ladies.
Anne, Zach and Sam in our hearts_ www.caringbridge.org/wi/zachsam
- Monday, May 22, 2006 9:51 PM CDT

Glad you made it up to Boston! The rain here (in MA) has just been awful but this week we finally got some sunny weather so I hope you've been able to enjoy it! I'm thinking of you and sending good, restful energy your way for the rest of your time in Boston and your trip home.
Hugs, Annie <penguini1982@yahoo.com>
Rochester, MA - Friday, May 19, 2006 12:38 AM CDT

Just a note to let you know that everyone made it to Boston, but it was an eventful 24 hours...The plane was put into the hands of Heather to fly (briefly), and then due to weather, they had to land at an unplanned airport an hour or so outside of Boston. Their pilot was trying to help them find a way to get from the airport to Boston, and after several hours of trying to figure this out, Malisa and Heather opted to hitch a ride into Boston with two random naval cadet guys (Kristina and I could have KILLED them when we heard this!). After finally getting to the hotel around 10:30pm, the wild and crazy (yeah right...I don't even think we are CAPABLE of wild and crazy!) nature of the gals earned them a noise complaint in the hotel!! They had the "security man" knocking on their door to tell them another hotel guest had complained about the noise from the room. Apparently, this all-powerful "security man" also doubles as the hotel bellhop, because about twenty minutes later, the same man appeared at their door with their request for extra towels, without the security badge on this time. Hysterical! To then add to the excitement, the fire alarm went off throughout the entire hotel at 4:45am (just a false alarm). And that was just the first twelve hours of the trip!
Ashley <ayoung00@hotmail.com>
Boston , MA - Thursday, May 18, 2006 10:45 PM CDT

Heather, I am SO glad that we both made it to Boston. It is so good to see again. Good luck with you appt. with Dr. R today. Thanks for all the laughs so far this week and I know many more are to come
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Wednesday, May 17, 2006 8:37 AM CDT

Heather,
Heard you finally escaped the hospital, I hope it stays that way for awhile. I'm looking forward to meeting you next week in Boston. I hope all is as well as possible. I'll probably talk to you somehow before Boston. Prayers and thoughts.
Adrienne www.caringbridge.org/va/adriennei <moonchild62579@aol.com>
Woodbridge, VA - Tuesday, May 9, 2006 3:34 PM CDT

Hi Heather...just stopping in to see if there is any news and to let you know I'm thinking of you and praying you will be home soon.
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
- Friday, May 5, 2006 4:33 PM CDT

Heather, Hi! I hope your temp is continuing to stay down and that you can get home soon. I am thinking of you and keeping you in my thoughts and prayers!

Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Monday, April 24, 2006 8:58 AM CDT

Hi Heather!
Lets hope and pray that a) youre going home very very soon ( like tomorrow 0 and b) those headaches go away!
:)
Tiby
Tiby <tibi19107@yahoo.com>
phila, PA USA - Sunday, April 23, 2006 8:35 PM CDT

Hey Heather,
Missing you here at home! Hope you get to come home from the hospital tomorrow and those nasty fevers stay away. Can't wait to see you in a few weeks.
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Sunday, April 23, 2006 7:50 PM CDT

Hi Heather,
I didn't realize that Chiari Malformation can go away. I guess you learn something new everyday. I'm glad yours cleared up though... Chiari can get pretty nasty if you develop symptoms. Hope you're feeling well.
www.caringbridge.org/visit/sarahthomas
Sarah Thomas <dv8806@aol.com>
Joliet, IL USA - Tuesday, April 18, 2006 5:05 PM CDT

Heather...Spring has Sprung...now it is your turn!

Love and Hugs,
Kristie <kristiep@frontiernet.net>
Mercersburg, PA USA - Tuesday, April 18, 2006 11:08 AM CDT

Diana <Diana893@gmail.com>
Dallas, TX - Saturday, April 15, 2006 7:26 PM CDT

Just wanting to wish you a Happy Day! May your Easter be joyous-filled with laughter, mirth, humor and a celebration of all life's zillion tiny, amazing gifts of unexpected beauty and intricate detail that puts us in awe of the Creator of it all. May your souls be refreshed and you hearts glad to be alive. Easter Blessings,
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL USA - Saturday, April 15, 2006 10:22 AM CDT

Peace and healing, Annie <penguini1982@yahoo.com>
Rochester, MA - Friday, April 14, 2006 7:46 PM CDT

Hi Heather,

I read this on a poster at our local Children's Hospital and thought of everyone living with the mito beast.

You have the strength to beat this,
You have the will to fight,
You have to win this battle,
You have a goal in sight.

You sometimes lose your balance,
You won't always feel your best,
You do what your doctors ask of you,
You let them do the rest.

You hold on to happy times,
You push the rest aside,
You smile and let the Lord lead you,
You know He is your guide!

In the book of Philippians 4:13 the Bible says, "I can do everything through him who gives me strength".
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL USA - Monday, April 10, 2006 1:04 PM CDT

Okay Heather...Kristina and I give up...You win and can now come home. Hoping and praying it will be soon...

Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, April 9, 2006 10:39 AM CDT

Heather,
I hate that you are still in the hospital. I sure how that you do start feeling better soon and they can do all thats possible to make that so. I'm really hoping you can go up to Boston in May cuz I'm going at the same time as you all. It would be nice to meet you. Anyways, am praying for you that things will start to improve. Take care.
Adrienne www.caringbridge.org/va/adriennei <moonchild62579@aol.com>
Woodbridge, VA - Thursday, April 6, 2006 12:53 AM CDT

Hi Heather, My prayers and thoughts are with you in your time of need. I always enjoy our conversations. Keep in Touch and Best of Luck!!!! I'll have to keep you updated on the baby, too. See ya soon!!! Chrissy S.
Chrissy S.
Danielsville, PA USA - Thursday, April 6, 2006 12:33 AM CDT

Lots of prayers for you!!
Hope that you will be coming out of the hospital soon.
Tiby <tibi19107@yahoo.com>
Phila, PA USA - Thursday, April 6, 2006 9:58 AM CDT

Heather, I am thinking of you and praying that things can be resolved soon for you. You deserve to be able to get out of that hospital and have some calm health moments. Please know you are always in my thoughts and prayers. You are a great friend!
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Tuesday, April 4, 2006 11:27 AM CDT

Hi Heather, I know I have been bad about signing guestbooks lately...I am barely having the energy for much of anything these days...but I wanted to let you know that I think about you every day. Praying that you get well soon and are able to make it to Boston with the rest of the gang in May!
Ashley <ayoung00@hotmail.com>
Boston , MA - Saturday, April 1, 2006 7:03 PM CST

Hi Heather,

God didn't promise days without pain, laughter without sorrow, sun without rain, but He did promise strength for the day, comfort for the tears, and light for the way.

We often think about you and keep you in our prayers.
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL USA - Friday, March 31, 2006 8:13 AM CST

hey heather,

praying so hard for you! you are such an inspiration to ALL of us. ONly God could create such a wonderful, strong, kind, and determined person!

sending you lots of love and hugs!
God bless,
Tara :)
Tara http://www.caringbridge.org/visit/tarabara
Kensington, CA United States - Wednesday, March 29, 2006 6:22 PM CST

Heather, Keeping you in my thoughts and prayers. We both need to get out and stay out of the hospital!!!! I have gotten out, but will have to go back later for a new line. I am taking my time with that, as I still have to run antibiotics through my PICC line
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Monday, March 27, 2006 3:37 PM CST

Heather,
Holding you up in my heart and with prayer. Get well soon!
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Saturday, March 25, 2006 10:15 AM CST

Hi all,
Just wanted to update with what I know about Heather.....

She's still inpatient. The pneumothorax in her lung (small hole) has closed up according to x-rays, although she is still having pain in that area. She is also getting sick again when her new (2 week old) line is flushed and they're looking into figuring out why this keeps happening to her.

Please keep her in your prayers.
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Wednesday, March 22, 2006 1:55 PM CST

Heather!
Praying that your lung is healing well and that soon you will be home!!!:)
Tiby
Tiby <tibi19107@yahoo.com>
Philadelphia, PA USA - Sunday, March 19, 2006 9:03 PM CST

Hope everything is going okay and this line business is sorted out once and for all! Seriously they shouldn't be the hardest part of your treatment! I don't have to tell you to keep up the positive attitude- you're awesome!
Diana <Diana893@gmail.com>
Dallas, TX - Sunday, March 19, 2006 2:42 PM CST

May the Grass be soft as heather
as it sways beneath your feet
May smiles so bright and so cheerful
light up every face that you meet...

May your heart be ever hopeful,
and filled with glad songs to be sung,
And may the years always be kindly
to keep you forever young!

May the Luck of the Irish be with you...always, forever and a day!

Love,
~*Juli*~

Juli Merhaut <crazygal8705@yahoo.com>
Canfield, Ohio USA - Friday, March 17, 2006 8:20 PM CST

Annie <penguini1982@yahoo.com>
Rochester, MA - Wednesday, March 15, 2006 6:57 PM CST

Hi everyone, this is Aly, Heather's sister. My mom just got back from the hospital. Heather is getting a small pigtail tube in tomorrow morning to help her breathe better for a few days till her puncture heals in her lung. Pleeeeeeeeeeeeeeeease pray that all goes well and painfree for my sis and that her lung does not collapse tongiht till this procedure is done. I am so tired of all this for her and want things to turn around real soon. thanks for your prayers. love,
Aly
Alyson <aaschwenk@enter.net>
- Sunday, March 12, 2006 8:25 PM CST

Just wanted to let everyone know that Heather is still inpatient. She's doing much better when flushing her line since they removed it last Tuesday. However, when they placed her new line, they punctured a small hole in her lung. So, now she's trying to get better from that. Please continue to keep her in your prayers.
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Sunday, March 12, 2006 7:26 PM CST

Hi Heather,
I'm hoping you really are home and doing well at this point. You have been through too much... I'm thinking of you and praying for you.

Love and Hugs,

Kristie <kristiep@frontiernet.net>
Mercersburg, PA USA - Sunday, March 12, 2006 10:02 AM CST

I am so happy that you are at home! It must feel great.
Liz <eneprice@comcast.net>
Wayland, MA - Saturday, March 4, 2006 6:37 PM CST

Hi Heather,

Glad to hear (per Alyson's page) that you are home from Club Med and feeling better. Think of you often.
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, Il USA - Thursday, March 2, 2006 8:17 AM CST

Diana <Diana893@gmail.com>
Dallas, TX - Tuesday, February 14, 2006 9:59 PM CST

HAPPY VALENTINE'S DAY!

<penguini1982@yahoo.com>
Rochester, MA - Tuesday, February 14, 2006 11:07 AM CST

Hi! I just talked to Heather and she wanted me to update you all. Her sister, Alyson, had surgery on Friday, which went well, but she ended up spiking a 101 degree temperature yesterday, so Heather is worried. Heather is also in a lot of pain today with her dystonia and myoclonic jerks acting up. Heather really needs sleep at this point, as she has really not been sleeping much lately. Please keep Heather and Alyson in your thoughts and prayers.
Kristina <kckoch76@juno.com>
Cedar Rapids, IA www.caringbridge.org/ia/kristina - Sunday, February 12, 2006 2:26 PM CST

Heather,
I've been praying and thinking about you. I hope you can get out of the hospital soon. Take care.
Adrienne www.caringbridge.org/va/adriennei <moonchild62579@aol.com>
woodbridge, VA - Friday, February 10, 2006 9:47 AM CST

Hi Sweetie,

I just want you to know how much I love you and to let you know that I think about you everyday and pray for you daily. I ask God everyday to please give you the strength to fight this battle that seems to be going on forever. Your strength, wisdom, and faith is so clear and I know that is what keeps you going in times of trouble. God loves you too and is gently holding you and is carrying you when things are too hard for you to handle. You are such an amazing friend. I am so sorry that you have to go through this, and I wish I could take all of the pain and suffering away for you, but I can't. They say that God only gives us what we can handle, but my friend I do believe that you have been through enough and it is time for a change!! I am asking God to take the pain from you and to make you new and whole once again. I ask God to have mercy on you.

God Bless you. If you need anything at all please let me know. If you are up to a visit call me or have your Mom call or email me. I don't want to bother you but would love to visit with you if you are up to visitors.

Love and Hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Wednesday, February 8, 2006 1:58 PM CST

Heather, Just dropping a note to let you know I am thinking of you! I hope Mr. P is keeping you company!
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Sunday, February 5, 2006 11:43 PM CST

Hi Heather,
I am here at the library getting my email. Just dropping you a line to let you know I enjoy our time together as your nurse and friend. You are a gift to this earth and fun to be with. Also, I am so glad you understand my humor. If we do not laugh about life, we waste it crying. When we fail OR our bodies fail us, God is faithful to us no matter what. Healing is as spiritual as it is physical. I believe "What doesn't kill us makes us stronger",,,I can attest to that, can you??? No Doubt! Utt, Oh, Gotta go! The computer time is limited at the library, so Never Give Up, Never Surrender! See you next weekend. If not, I will pray for your continued recovery. Have a good one! God Bless!
KAT
Katrina Hornberger RN,BSN <katrina.hornberger@lvh.com>
Allentown, PA USA - Thursday, February 2, 2006 11:53 AM CST

Hi Heather,

I am so sorry to hear that you are still in the hospital. I think you like it there!!! LOL I am sorry that I haven't left a message in your guestbook but I have checked up on you a lotand have kept you in my prayers. I also have been in the hospital due to my J tube being infected.

Praying to God and asking him to carry you through this difficult time and to guide your doctors and nurses and to help find a way to get rid of your movement disorder problems and back home quickly. Know that I pray for you daily and keep you in my thoughts.

Love and Hugs
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Tuesday, January 31, 2006 8:16 PM CST

hi heather!
just letting you know i'm praying for you and sending you big hugs! i hope you are feeling better and that you are coming home soon! you are amazing and such a fighter!
hugs and love,
tara :)
Tara http://www.caringbridge.org/visit/tarabara
Kensington, CA United States - Tuesday, January 31, 2006 4:30 PM CST

Dear Heather,

I don’t know too much about what is going on but it sounds like you have had a very scary week. I am glad that they were able to get the line in but I’m so sorry that you had to endure another complication on top of everything else. You are so strong and I will be praying that God will give you His comfort and peace. We already can tell that He is holding your life securely in His hands. Keep fighting!

Much love,
Bonnie

Bonnie (www.caringbridge.org/az/bonniemarie) <bonniebelle@cox.net>
Boston for now, MA usually AZ USA - Saturday, January 28, 2006 11:40 PM CST

hi heather!

i found your site from Malisa and wanted to come by and send you some happy wishes! you have been through so much yet you still smile! you are so strong! i am sending you big hugs and keeping you (and your sister) in my prayers! i hope you feel better ASAP and i hope you are home from the hospital feeling better sooner than later!
love way more than lots,
tara :)
Tara http://www.caringbridge.org/visit/tarabara
Kensington, CA - Saturday, January 28, 2006 11:18 AM CST

Hope you're feeling better soon! Wishing you all the best- hugs!

Diana <Diana893@gmail.com>
Dallas, TX - Wednesday, January 25, 2006 3:14 PM CST

Heather my dear...GET OUT OF THAT HOSPITAL!! Thinking and wondering about you every day. Mr. P is on his way to you and hopefully he will be carrying "get well" vibes! Hopefully having him there will remind you of all of us being together in Boston!
Ashley <ayoung00@hotmail.com>
Boston , MA - Saturday, January 21, 2006 12:42 AM CST

Hi Heather,

I got to your site from Malisa's and just wanted to let you know I'd stopped by. Sorry you're in the hospital but I hope you're getting better and soon able to go home and be in your own bed! I'll check back soon to see how you're doing.
Annie <penguini1982@yahoo.com>
Rochester, MA - Thursday, January 19, 2006 10:04 PM CST

Hi Heather,

So sorry to hear that you've been in the hospital. I've had lots of trouble with movement problems too and they are awful to go through. I do hope that these problems resolve so that you can start feeling better soon!

Stay warm, I hear it's cold down there. I'm in Boston right now at MGH and coming from 70-80 degree weather in Phoenix I've been freezing up here. Luckily they keep the hospital pretty warm. :-)

Much love,
Bonnie (www.caringbridge.org/az/bonniemarie) <bonniebelle@cox.net>
Boston (for now at least), MA (usually AZ) USA - Wednesday, January 18, 2006 10:57 PM CST

Heather, Please know I am thinking of you and keeping you in my prayers. I hope you are feeling better and are home soon. I know how good it feels to finally get in to your own bed!
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Sunday, January 15, 2006 3:14 PM CST

Hey Heather...Hope you get home soon and can put nasty lines and funky moves behind you for a while...You need a vacation! A fun one at that! I'm thinking of you and praying for you.
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Saturday, January 14, 2006 5:31 PM CST

Hi,
This Heather's sister Alyson. I just got back from visiting her at the hospital. She is not feeling too hot today. She hopes to come home Sun. or Mon. at the latest. SEeing PT when I left. Keep you posted and keep her in your prayerrs...
Alyson
Aly <aaschwenk@enter.net>
- Friday, January 13, 2006 3:29 PM CST

Heather,
I'm not sure if I have signed your guestbook before or not, but i do keep up with your site. I am friends with malisa and also have mito. I really hate to hear that your movement disorder is acting up again- I will pray you get out of the hospital soon. It sounds like you all had so much fun together in boston last month- I'm going next month for GI tests and to see a few drs and then again in May, am hoping to go the same time yall do- I dont wanna miss out of the fun lol. I'm praying that you get out of the hospital soon and feeling better. take care.
Adrienne <moonchild62579@aol.com>
Woodbridge, VA US - Monday, January 9, 2006 2:50 PM CST

I talked to Heather tonight and she's still in the hospital. Her movement disorder kicked in on Thursday after her line was placed and they're still trying to get it under better control before letting her go home. They're adjusting her IV steriod and phenobarb doses and her PCP is talking to the neurologist tomorrow. Hopefully she'll be able to get some rest tonight and will start feeling better. We love and miss you, Heather!!

Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Sunday, January 8, 2006 10:43 PM CST

GOOD LUCK TODAY!!!! Actually you're probably already done with everything so I hope it went well and you're recovering with no problems. Hope you don't have any problems with this one so you can finally be done with this recurrent line infections. Best wishes- you're in my thoughts!
Diana <Diana893@gmail.com>
Dallas , TX - Thursday, January 5, 2006 3:00 PM CST

Hiya Heather,
Happy New Year! I did the temporary line thing too to get rid of infections. With ID help I was able to keep the temp line for close to 2 months. So far so good with my new Hickman...although I've had one visiting nurse with suspect technique... I sure hope this is an answer for you. I know how hard constant infections are on you. I'm hoping this new year is a good one for you!
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Tuesday, January 3, 2006 6:05 PM CST

Ugh sorry to hear about the line infections- that's noooo fun. While surgery sucks, hopefully this will be the end of all those bugs! Hope all goes well- I'll check in again soon!
Diana <Diana893@gmail.com>
Dallas, TX - Saturday, December 31, 2005 2:19 PM CST

In these changing times, it's good to know that some things last forever: God's gifts of peace, hope and love. May your home be aglow with the warmth and love of the Holiday Season.
Merry Christmas

For the Lord is good and His love endures forever. Psalm 100:5
Joanne Kocourek (www.caringbridge.org/il/annakris) <servedogmom@yahoo.com>
Worth, IL USA - Sunday, December 25, 2005 10:28 AM CST

Track Santa!

Diana <Diana893@gmail.com>
Dallas, TX - Saturday, December 24, 2005 2:39 PM CST

Hi Heather...
Happy Holidays! Glad you all such a wonderful time in Boston! I hope you get some rest this week before Christmas. My thoughts and prayers are with you always

Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Tuesday, December 20, 2005 10:49 AM CST

Haha thats an AWESOME picture with all the matching backpacks! I'd fit right in there with you guys! Hope all the planning goes well and you stay infection free!
Diana <Diana893@gmail.com>
Dallas, TX - Sunday, December 18, 2005 1:55 PM CST

Heather, It was so good to finally meet you. I can't put into words what it was like to leave all of you. Just think of all the trouble we could get into if we all lived closer. :-) We would have great stories to tell Dr. R :-) I hope you can get some must needed rest. Talk to you soon!
Kristina <kckoch76@juno.com caringbridge.org/ia/kristina>
Cedar Rapids, , IA - Tuesday, December 13, 2005 8:29 AM CST

Wonderful to hear of an adult with Mitochondrial Disease. We had a son, Adam, who died at 4 months from an unknown mitochondrial disease. I probably have mild symptoms as does my older son. We have an adopted baby girl. She does not show signs of MD at all - I'll bookmark your site and check in.
Liz <eneprice@comcast.net>
Wayland, MA - Saturday, December 10, 2005 8:22 PM CST

Hi Heather,
It was very nice to get a chance to meet and talk to you yesterday. Savanna was so excited that she met someone else that had pumps she has been telling everyone. This was new for her outside of the inpatient setting. I hope all goes well in Boston. Our caring bridge site is: www.caringbridge.org/visit/legeytgirls. Hope to chat soon.
Joann LeGeyt <legeyt213@yahoo.com>
- Thursday, December 8, 2005 4:57 PM CST

Heather, It is so good to finally meet you. I am glad that we have had our adventures together today. Talk to you soon, as you are sitting next to me on the next computer. :-)
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Tuesday, December 6, 2005 10:22 PM CST

Hi Heather!
Wow, you are gorgeous! Miss you around TJU, and hope that you have safe travels and a fun time in Boston!
Hugs and prayers!
Teal
Teal <txw131@jefferson.edu>
Phoenixville, PA USA - Tuesday, December 6, 2005 2:01 PM CST

Hi Heather...Happy Day after T-day! Glad to see you were able to get the white port fixed. My local hospital refuses to "fix" dual lumens...weird... I hope you remain well and find great joy this holiday season!
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Friday, November 25, 2005 6:50 PM CST

Heather,
Happy Thanksgiving!!!!! I hope you have a great day. I am so glad you got your white port fixed. I was worried about that. I could really identify with a lot of your post. We will have a lot to talk about in Boston~ less than two weeks!
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Thursday, November 24, 2005 2:32 PM CST

Hi Heather,
Just checking in to say hi! I don't have much to say b/c I talk to you all the time, but I guess that just says what a great friend you are to me. I can't wait to see you in a few weeks in Boston! Girl time!!
Love ya lots!!
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Sunday, November 20, 2005 3:07 PM CST

Hey Heather! Thanks so much for signing my guestbook! I just e-mailed you so I'll keep this short, but just wanted to say hi and let you know I'm thinking of you! Hope that pesky line infection is gone soon and you're feeling well for Thanksgiving. Hope you have a great day!
Diana <dianasinger06@yahoo.com>
Dallas, TX - Saturday, November 19, 2005 1:30 AM CST

Hi Heather,
You just have no luck with those lines. Sorry to hear you are battling yet another infection. Praying for quick healing and that your line could be repaired and soon.

Amy Roth <aandbroth@enter.net>
Coopersburg, PA USA - Wednesday, November 16, 2005 10:54 AM CST

Hi Heather,
You have been on my mind lately. My computer is on the fritz and I lost everyone's email addys, mail addresses, phone numbers, etc... So when you get a chace please send your mailing address and phone number to me. I promise I won't lose it this time

Sorry to hear that you are growing another Gram + bug. I was admitted last month for a Gram + bug and a fever of 104.8 I never in my life thought I could be that sick... Your Mom is right those lines are made by MAN not GOD. I will remember this next time I run into trouble with my lines I hope you start to feel better soon and that you get your repair kit soon. Keeping you in my thoughts and prayers. God Bless You. Love and Hugs, Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Sunday, November 13, 2005 11:43 PM CST

Heather thank you for checking on Kourtney she loves getting "e mail" Sorry about the line!! I had to roll m eyes about the repair kit thing. The same thing happened to Kourt. We now have a kit at home. Have them order two. Sorry!!!
Laura and Kourtney <kourtneysmom2002@yahoo.com>
- Sunday, November 13, 2005 11:09 PM CST

Heather,
Praying that the line holds out. For the thing to baloon up obviously is not good.
Sending God's blessings to you and your family!
All the best:)
Tiby
Tiby <tibi19107@yahoo.com>
Phila, PA USA - Sunday, November 13, 2005 3:37 PM CST

Heather, I hope you are able to save this line and that they can put just a stitch or two in when you see the doctor. I am so looking forward to Boston and having the chance to finally meet you! This will be a fun time, even though we have to mix doctor appointments in too!!! :-)
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Thursday, November 10, 2005 9:21 AM CST

HI Heather,

You look absolutely beautiful. I'm so glad that you are enjoying some family time. You and your parents (and sister in MA and brother) deserve some happy moments.

Miss you in Philly,

audrey
Audrey <Engybunny@aol.com>
Philadelphia, PA USA - Monday, November 7, 2005 8:36 PM CST

Heather,
It is great to have those nice uneventful visits with family and even medical, isn't it? I'm glad you got to spend some quality time with Aly and your mom. Take care!
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Saturday, November 5, 2005 10:09 AM CST

Heather, Hi! Have you heard anymore about your last cultures? I hope you are able to get appointments in Boston and can join us in Dec. It would be great!
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Saturday, October 29, 2005 7:57 AM CDT

Hi Heather,
That is such an awesome picture of you at Font Hill!

What is it with these line infections? It has to stop before winter that is all there is to it! I hope you are feeling better soon and stay better even longer!

Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Tuesday, October 25, 2005 5:31 PM CDT

Hi Heather,

You are beautiful!!!!!! I love the picture of you and I enjoyed reading your page!
I'll keep you in my prayers, and hopefully both of us can kick the infection out of our system!

Hugs,
Bette
Bettemarie Bond <bettemarie@aol.com>
PA - Tuesday, October 18, 2005 7:39 PM CDT

Heather, I am so glad you were able to be in Malisa's wedding. I know it meant the world to her and I am sure to you too. You look so beautiful in all the pictures. Sorry to hear of the line infection. I am praying that this round of abx will kill it and it WILL NOT come back! Thinking of you.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
Cedar Rapids, IA - Tuesday, October 18, 2005 6:18 AM CDT

Hi Heather,

I have been thinking of you alot lately and I hope that everything is fine. I miss your updates, but am hoping that No news is Good news!! Update when you can. And yes, we must get together soon before the weather turns to snow and gets nasty. Thinking of you and keeping you in my prayers. Love and Hugs, Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Friday, October 14, 2005 10:00 PM CDT

Heather, I just wanted to check in on you. I hope you are doing okay. Thinking of you.
Kristina <kckoch76@juno.com>
- Wednesday, October 5, 2005 6:30 AM CDT

Hi Heather,
I miss your updates! I hope you are doing well. Just wanted you to know that I was thinking about you!

Ashley <ayoung00@hotmail.com>
Boston , MA - Friday, September 30, 2005 9:41 PM CDT

Hi Heather,
Glad to hear that you are feeling better and that you have returned to your baseline. PTL!! I am so happy that you were able to be there for Malisa at the most important time in her life. I wish I was able to be there, but I know if I canceled my surgery Malisa would have killed me!! LOL I really wanted to be there for her and to enjoy the day along with her and Dave. So you take care of yourself and I hope Dr. M was able to give you some answers to keep those nasty beasties away.!! Keeping you in my prayers and in my thoughts. Love and hugs, Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, September 24, 2005 9:16 PM CDT

Hi Heather,
I promise I'm not here to share my nasty beasties. Just wanted to stop in and wish you well and let you know I'm thinking of you! Hope you and Malisa are having a GREAT time... just don't over do it...
Love and Hugs,

Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Friday, September 16, 2005 8:09 PM CDT

Alex is waving HELLO and hopes you have a great day!

MaryBeth & Alex

MaryBeth <marybethlefevre@aol.com>
Williamstown, VT - Friday, September 16, 2005 2:08 PM CDT

Heather,
I found your site through little Heather's. I am so sad for her family. However, I am glad to see such a strong woman working through so much! Congrats to you!
God Bless,
www.thelilyfoundation.org
Sarah <SMKLCR@hotmail.com>
Fort Collins, CO USA - Thursday, September 15, 2005 4:52 PM CDT

Heather, Good luck with your appt. with Dr. M. I hope he has some ideas for you. You shouldn't have to be going through all of this. I am SO happy that you were able to get back up to baseline so quickly. I still worry about you though! Even though we have never met (yet), I feel like I know you. I am so glad that you are going to be there for and in Malisa's wedding. I know it means so much to her. Just don't you two go and overdo it or you will have me to answer too! :-)
Kristina <kckoch76@juno.com>
Cedar Rapids, IA - Tuesday, September 13, 2005 7:48 AM CDT

Alex and Carolee are riding by to say hello!

We found your site in one of our friend's guestbook. We are praying for you!
MaryBeth www.caringbridge.com/vt/alex <marybethlefevre@aol.com>
Williamstown, VT - Saturday, September 3, 2005 8:18 AM CDT

Hi Heather,
Sorry to hear that you are growing nasty bacterias again. I guess the BUGS like you a lot!!! heheheh!!!
Sorry that you weren't able to spend more time with your sister Alyson this summer before she left for grad school. But like you said" the quaility of time is more important then the quanity of time" And hopefully you will be able to visit her. Thanks for the prayers you have been sending my way. And I would love to get together as soon as I recover from my upcoming surgery. Sending you prayers and hugs. Love and Hugs, Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, September 3, 2005 0:58 AM CDT

Ok ladies...we are ALL home now, at the same time...now STAY THAT WAY!!! hee hee....The one who can stay home the longest wins a prize, got it? Anyone want to bet who ends up in the hospital first (ok, nevermind...I don't want to jinx anyone).

Kristina, how about you and I move to PA and then Heather moves in closer to Philly? That way, when we are all admitted, we can party hard!! Oh my god...how entertaining would that be? I bet we would get ourselves kicked out of the hospital for our antics if we were all there at the same time!

We can all move in with Malisa and Dave right? I am sure they wouldn't mind us crashing in their condo right as they are about to embark on married life!
Ashley <ayoung00@hotmail.com>
Boston , MA - Thursday, September 1, 2005 6:36 PM CDT

Heather, I'm glad to hear that your procedure went well, but am sorry to hear that you are getting an infection again. I will pray that the antibiotics work. Now, for us all to stay out of the hospital for awhile. That would be rather nice, right? :-) Take care.
Kristina <kckoch76@juno.com>
- Thursday, September 1, 2005 7:46 AM CDT

Heather,
I'm sooooo relieved to hear the procedure went well and at this point I'm hoping you are home and resting comfortably! Be well!
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Friday, August 26, 2005 3:16 PM CDT

HI Heather,
I hope you were able to come home today. I was talking to Malisa and she asked me if you got home, I told her that there wasn't an update on your site. I hope that you are home and resting comfortably. Keeping you in my prayers and close to my heart. Hugs and Love,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Friday, August 26, 2005 0:25 AM CDT

Hi Heather,
What GREAT news that your procedure went well and you are doing GREAT!! Now that is the kind of news we like to hear.
I hope you are home soon. It is always a good sign when we ask for food from HOME!! That hospital food will...well you know. Keeping you close to my heart and in my prayers. Love and Hugs,

Ann-Marie www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Wednesday, August 24, 2005 11:35 PM CDT

:) GET WELL SOON:)

tiby <tibi19107@yahoo.com>
philadelphia, pa us - Wednesday, August 24, 2005 9:07 PM CDT

Good luck tomorrow Heather!
Ashley <ayoung00@hotmail.com>
Boston , MA - Monday, August 22, 2005 9:41 PM CDT

Just dropping in to wish you well with your procedure tomorrow. No neat "tricks" okay...LOL Be well, rest and get home as fast as you can!!!!! Thoughts and prayers, Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Monday, August 22, 2005 7:36 PM CDT

Hi Heather,
I will be praying for you tomorrow and on Tuesday when you have your new line placed. I hope and pray that it goes well and that you don't have any reaction or Mito crash. Hope you can talk to the anethesiologist before the surgery like you did last time.
The dress for M's wedding sounds lovely. I am so excited b/c I will be there and I can't wait to see how beautiful you look in the dress.!! What an exciting time!!!
I will try to call you later in the week. I have been having those movement seizures again....ugh!! Love and Hugs

Ann-Marie www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Monday, August 22, 2005 1:08 AM CDT

Hi Heather- I will be praying for you on Tues. I totally can relate with you and the anesthesia probs and precautions that need to be made. I will be praying for the anesthesiologist as well. I'm so envious of you getting to go to M's wedding! You must take lots of pics and tell me all about it. :) The dress sounds lovely. I'm so happy for you!
Allison <lilqt4u1984@aol.com>
- Sunday, August 21, 2005 9:13 AM CDT

Hi Heather, best of luck with your latest line placement. I sure hope the anesthesiologists listen to you! My little Heather is coming home tomorrow. YAY! It's been almost 2 turbulent months. I'm hanging in there, trying to do the best I can with my new accessories. I'll give you a call some time this week, I learned a little more about my movement problems and it might be an easy enough thing to rule out for you. Take care, I'm saying a prayer for a smooth line change!
Heidi, Heather's Mom <mom2colemankidz3@aol.com; www.caringbridge.org/ma/heather>
Easthampton, MA - Sunday, August 21, 2005 7:42 AM CDT

Heather,
Glad you are still hanging in there at home! I said to Kristina recently that I felt like we are leading parallel lives and now I feel the same way with you. I am on iv levaquin and a gentamycin lock for the weird serratia I have. It seemed to make a difference after 24 hours and I hope it works for you. If the cultures are not negative next week, the port comes out....sooo hoping that DOESN'T happen!
Ashley <ayoung00@hotmail.com>
Boston , MA - Sunday, August 14, 2005 12:38 AM CDT

Hi Heather,
I'm so thankful you are home. Praise the Lord for answered prayers! I'll be praying for those antibiotics to work and for you to rest and recover quickly. I'm already praying that the new line you'll be getting will last a record long time.
Amy Roth <aandbroth@enter.net>
Coopersburg, PA USA - Saturday, August 13, 2005 2:57 PM CDT

Heather,
Glad to hear that you made it home safe and sound. I had serratia also, but apparently some really rare kind. Ok, not to jinx anyone, but do you want to take a bet on who is the next to end up back in the hospital...you, me, or Malisa (for an unplanned reason..not for anything scheduled)...hee...hee...?
Ashley <ayoung00@hotmail.com>
Boston , MA - Friday, August 12, 2005 11:58 PM CDT

i love the pictures of you and your sister. Praying the steroids make a BIG difference this time with surgery. They definately have been a lifesaver for my boys with surgery.
Anne (TPN List), Zach, Sammy in heaven
- Friday, August 12, 2005 5:35 PM CDT

hi Heather,
I stopped in to see if there was any news...other than you were being admitted... You are in my thoughts and prayers...
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Wednesday, August 10, 2005 3:46 PM CDT

Hi Heather,
Sorry to hear that you have fevers now. I hope that they resolve and that you can still get your new line in on Tuesday. Hope you are feeling better today. Keeping you in my prayers and close to my heart. Hang in there!!
Love and Hugs,

Ann-Marie www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Monday, August 8, 2005 0:22 AM CDT

Good luck with the new line!
Praying for you that it will all work out.
Lots of hugs:)
Tiby <tibi19107@yahoo.com>
Philadelphia, PA USA - Sunday, August 7, 2005 2:04 PM CDT

Ugghhh...line issues!!!!!! Hoping and praying all turns out as you want it to :o)
Love and Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, August 7, 2005 10:20 AM CDT

Heather--

Hoping that this message finds you feeling better.
Thinking of you~
Sh

www.caringbridge.org/in/oliviablinndekold
Floyds Knobs, IN - Saturday, August 6, 2005 11:47 PM CDT

HEATHER,

I hope you are able to get your new line next week and that the surgery goes smoothly. I know what you mean by insurance issues, they really drain the energy out of you, don't they? I hope you are feeling better. And thank you for all the great information you gave me about Sulfa drugs and our TPN. I greatly appreciate the time you took to tell me. Thinking of you and keeping you in my prayers and close to my heart. Let us know when you go in for your new line. Love and Hugs,

Ann-Marie www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, August 6, 2005 0:25 AM CDT

Heather, I am keeping it in my prayers that you can get your new line next week and that it all goes smooth. Insurance issues can be "fun" can't they! You are an inspiration to me. You have been through so much, but keep on going!
Kristina <kckoch76@juno.com>
- Friday, August 5, 2005 9:16 AM CDT

Heather I'm really glad you are home, but I have to say I'm really SICK of incompetence. Apparently others don't see the effect it has on our already fragile systems! UGGHH! You are truly an amazing woman. I'm crossing assorted body parts that you will be able to hold onto your line until the week of August 8th.
Hugs,
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Wednesday, July 27, 2005 7:35 PM CDT

Heather, It is so good to have an update from you! That upsets me that the hospital was giving you TPN with sulfates in it (I am sure it upsets you more):-) I am glad you are home and are continuing to feel better. Just don't overdo!
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Wednesday, July 27, 2005 10:10 AM CDT

Heather! It is so good to hear from you! I have missed reading your updates. I CAN'T BELIEVE that the hospital was giving you TPN with sulfites! God! How scary. You would think they would be more on top of things like that. Do the vitamins in your TPN give you a problem? I go into anaphylactic shock from vitamins and have never heard of anyone else with the same problem!
Ashley <ayoung@mclean.harvard.edu>
Boston, MA - Wednesday, July 27, 2005 9:33 AM CDT

Heather,
I am so very happy that you are home. I pray that the healing will continue at home with the love of your family surrounding you. Wow, 9 weeks is a very long time, and Malisa is bored and complaining b/c she is in HUP for 2 weeks!!! I think she will glady take the 2 weeks over your 9 week stay. Hospitals aren't fun. I hope and pray that you are relaxing, catching up on your rest. Now remember to be good so you don't end up back in the hospital.
Keeping you in my prayers and close to my heart. Hang in there. And I missed you!! Glad your back. Love and Hugs,

Ann-Marie www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Sunday, July 24, 2005 0:21 AM CDT

Heather, Congrats on being able to come home again. I hope the healing continues and I know it probably feels very good to be back in your own bed! My thoughts and prayers are with you
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Monday, July 18, 2005 10:07 PM CDT

Hip Hip Hooraay! May the healing continue in your own home... Best news all day :o)
Love and Hugs,
Kristie
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Saturday, July 16, 2005 5:23 PM CDT

Yea Heather!!!

I am so happy to hear that you are coming home on Friday, which means that you are now home with your family. I hope you have a peacefully nights rest and I pray that with each day you will get stronger and stronger. You have been through so much, it will take time, but with God's Love you will get through it. Keeping you and your family in my prayers. I bet your own bed with a nice warm blankie will feel so good tonight. Hugs and love,
Ann-Marie www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Friday, July 15, 2005 11:58 PM CDT

Yea heather! I'm so happy that you get to come home!
I found my way to your page via Malisa as my son, Asher, has mito.

Anne (Asher's mom) <areckling@aol.com>
Boca Raton, FL 33431 - Thursday, July 14, 2005 8:52 PM CDT

Thank God!
Its been a long road...
I am very happy:)
Tib <tibi19107@yahoo.com>
Phila, PA US - Thursday, July 14, 2005 8:44 PM CDT

YEAH Heather!!! Happy to hear you are heading home!
Ashley
Boston, MA - Thursday, July 14, 2005 5:27 PM CDT

Heather,
Just hang in there for a little bit!!
I know that you want to come home and it will happen very very soon.
I MISS YOU sooo much!!! And as you can see all your friends are missing you too.
I would pay a fortune just to hear your office:)
Praying for you, TONS of HUGS!!!
Tib <tibi19107@yahoo.com>
Philadelphia, PA USA - Sunday, July 10, 2005 10:11 PM CDT

Hi Heather,
This is GREAT news!!! I am so pleased to hear that you are now back in a regular room and that your movements have stopped. I am sure you want to come home, but be good, listen to the doctors and get a little stronger, then you can come home. I miss you very much. I was so worried about you and I prayed for you everday. Please know that I am here if you need me. Love and Hugs,
Ann-Marie www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, July 9, 2005 0:08 AM CDT

Yes, this is such great news! I'm so happy for you all and I can only imagine how relieved you must be. May the healing continue and you all be reunited at home again soon!
Love and Hugs,
Kristie
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Friday, July 8, 2005 8:22 PM CDT

Hi Heather:)
I am happy that youre out of the ICU!!!
Im praying for you and your family.
Talk to you soon:)
Lots of hugs!!!!!
T

tiby <tibi19107@yahoo.com>
Philadelphia, PA USA - Friday, July 8, 2005 7:16 PM CDT

Heather,
Hi hon! I am so sorry I haven't visited you in a while, but your family and docs thought it be best, so that you can get a lot of well deserved sleep. I want you to know, I have been thinking about you and praying for you every day. I miss you so much. You are always in my thoughts. I hope I can visit you again soon; when you are well enough and feel up to it. I am standing by, just let me know. I love you. Get well soon, and know that Jesus is with you every step of the way, and in your room with you. He never leaves you!
Julie Shook <kylejulie2003@wmconnect.com>
Emmaus, PA USA - Thursday, July 7, 2005 11:35 AM CDT

Heather,
Wanted to let you know that I am thinking of you and praying for you each and every day. I am sorry I haven't been in touch lately but I have been really sick and of course sleeping all the time. Please know that I hope that you are getting stronger and that you are starting to feel better. Love and Hugs,

Ann-Marie <peetie@ptd.net>
- Tuesday, July 5, 2005 10:39 PM CDT

we're coming to you via malisa's page too. Boy does that girl accomplish alot!!! Hope your getting a little stronger everyday. www.caringbridge.org/visit/kathrynnill
nancy nill <nln1960@yahoo.com>
commack, new york - Monday, July 4, 2005 7:15 AM CDT

Hi Heather,
Sorry I haven't been leaving more messages but i have been really sick and weak. Still waiting for my surgery. But I want to let you know that I think of you daily and pray for you too. I hope the movements continue to lessen and that the pain does too. Love and Hugs,

Ann-Marie www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Friday, July 1, 2005 4:32 PM CDT

Heather, I think of you every day and you are in my prayers. I hope that you continue to move in this direction and that the movements continue to lesson. I am having Malisa keep me updated on you!
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Monday, June 27, 2005 5:48 PM CDT

Miss ya soo much:)
Tiby <tibi19107@yahoo.com>
Phila, PA USA - Thursday, June 23, 2005 10:21 AM CDT

Heather and family,
I too learned about you from Malisa, I have mito also and just wanted to let yall know that I am praying things get better. Keep us posted if possible. Hope to get to know you when you are out. take care.
Adrienne www.caringbridge.org/va/adriennei <moonchild62579@aol.com>
woodbridge, va - Wednesday, June 22, 2005 3:54 PM CDT

Heather, I pray for you and think of you. Ally - you're a devoted wonderful sister that anyone would be proud to have. I hope better times for your family are around the corner soon.
Anne Juhlmann - TPN List
- Wednesday, June 22, 2005 3:12 PM CDT

Hi Heather,

Stopping by to say Hello My Friend. I hope you are feeling a little better. Sounds like it will be a long road back to your baseline. I hope and pray to God everyday for you, I ask that he wrap his loving arms around you and protect you from all things bad, and that he continues to guide the doctors and nurses who are caring for you and give them the support and knowledge they need to cure you of those horrible movements. I know what you are going through since I too have them, although not nearly as bad as yours(Thank You God) and I beg you Lord to please make these movements cease and never return for Heather. They are so very draining and take so much out of her. Please Bless her and stay close by her and carry her when times are too tough. I love you Heather. Hang in there. God Bless You!!! Love and Hugs,

Ann-Marie www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Wednesday, June 15, 2005 10:14 PM CDT

Hi,

I've come to your page via Malisa's. My son has mito...Just want you to know that we are thinking of you and praying for you.

Anne R (Asher's mom)
Anne (Asher's mom) <areckling@aol.com>
Boca raton, FL USA - Monday, June 13, 2005 7:15 AM CDT

Heather,
I am thinking and praying for you!
Love ya soooo much:)
T
tiby <tibi19107@yahoo.com>
Philadelphia, PA US - Saturday, June 11, 2005 4:43 PM CDT

Heather, You are in my thoughts and prayers daily. I wish I lived closer so I could sit by you. I hope you can get some rest. I will keep praying that the movements continue to lessen
Kristina <kckoch76@juno.com>
Cedar Rapids, IA - Thursday, June 9, 2005 3:06 PM CDT

Hi Heather, I'm really sorry to hear you are still struggling with movement stuff, but glad this new medication seems to be helping some. I'll keep assorted body parts crossed that you settle down and can return home for some real R&R SOON! You are in my thoughts and prayers.
Hugs,
Kristie
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Thursday, June 9, 2005 9:53 AM CDT

Heather, I have been thinking of you every day!! I told Malisa that what the two of you have gone through with things related to your central lines has seriously made me even more hesitant to get one!

I hope that things start to turn around for you soon. Malisa and I will miss you here in Boston! Think about the fun (i.e. TROUBLE) that you, me, Kristina, and Malisa could get in to if we were all in the same room together at one time...hee hee!!
Ashley <ayoung@mclean.harvard.edu>
Boston , MA - Wednesday, June 8, 2005 5:27 PM CDT

Hi Heather,

So sorry to read the update that your sister wrote. I was so hoping that you were better and home by now. I am sorry that the movements are getting worse and that you are having such a difficult time.

I pray that God will wrap his loving arms around you and comfort you and heal you from within. I pray that you get a miracle and the movements stop.

I am here for you if you need me. If you are up to another visit let me know and I will arrange to come and visit with you. And I will bring you anything you want to eat. Something special that you can't get at the hospital.

Love,Ann-Marie

AnnMarie <peetie@ptd.net>
- Wednesday, June 8, 2005 0:08 AM CDT

Good Morning,Heather it was nice sitting with you, and talking to u , you are such a brilliant young lady.hope evry thing goes well for you. I will be praying for u and asking god to hug and embrace you. Stay sweet and keep smiling. God bless u
Cicely <CNMGVM@aol.com>
Macungie, PA - Saturday, June 4, 2005 7:23 AM CDT

HI Heather,

How are things going with you? I wanted to stop by and check in on you and let you know that I am thinking of you and praying that you can come home soon. On your homepage it says that you are NOW HOME, is this right?? If so I am so happy for you and hope that you are feeling better. Hang in there. Love and Hugs,

Ann-Marie <peetie@ptd.net>
- Friday, June 3, 2005 10:49 PM CDT

Hi Heather--My daughter Olivia Blinn has pseudo obstruction; TPN, ileostomy, G and separate J tube--and is 5.

Just wanted to swing in say hello, and let you know we'll be checking in on you--hoping you get to feeling better...soon.

Blessings--
Sheila
- Thursday, June 2, 2005 11:18 PM CDT

prayin for you!
hugs, T:)
Tib <tibi19107@yahoo.com>
Phila, PA USA - Thursday, June 2, 2005 3:43 PM CDT

Heather, I just wanted you to know that I am thinking of you and praying for you. I hope the doctors can figure something out for you soon.
Kristina <kckoch76@juno.com>
- Monday, May 30, 2005 2:25 PM CDT

Hi Heather,

It was such a joy to finally meet you today. I only wish that we could have met at Starbucks and chatted over coffee instead of in the hospital. But I am still thrilled that I was feeling well enough to visit with you today. I am sorry that I missed your Birthday and that you were in Club Med for your special day.

Heather you are as sweet, kind, caring and compassionate as I knew you would be. I hope we can all get together sometime in the next month or so and hang out.!! That will be alot of fun. If you need anything at all, just give me a call and I will do whatever I can to help you. I know it must be hard right now without your Mom or sister with you, so if you need company, or just someone to listen to you call me. I can make you laugh too, just ask Malisa!! hehehe!!!

Keeping you in my thoughts and praying to God for him to lay his healing hands on your weak body and give you the miracle you so deserve. Hugs and Love,

Ann-Marie www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Friday, May 27, 2005 0:37 AM CDT

Hi Heather,
Hope you start doing better soon so you can come home! Know that I am praying for you!
Nikki <nikkinetgirl@yahoo.com>
- Thursday, May 26, 2005 9:35 PM CDT

Hi heather - Just read about you on Malisa's website and wanted to send you my good wishes. (I also have mito.)Happy birthday! You will be in my prayers! Marjette
Marjorie Cruse <marjette@comcast.net>
East Lansing, MI USA - Wednesday, May 25, 2005 8:58 PM CDT

Heather,
Sorry you didn't get out of the hospital when you expected and that you had to celebrate your Bday in the big house. At least you can stretch out the celebration a bit longer when you get home. Thinking of you and hoping you are on your road to being discharged.
Hugs,
Kristie
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Wednesday, May 25, 2005 5:28 PM CDT

Hi. Happy Birthday. I am so sorry you have to spend it in the hospital. That's never fun! Thank you for contacting me and posting to my webpage. We'll have to get in touch when you are feeling better. I will be going to the August session as well so it seems I will get to meet your sister. That is great! Take care and I hope you return home very soon.
Jess <jodoin4@peoplepc.com>
Hagerstown, MD - Wednesday, May 25, 2005 2:51 PM CDT

HI HOPE ALL IS WELL,MY DAUGHTER IS ALSO BEING TESTED FOR PSEUDO IN KANSAS CITY.HER SITE IS WWW.CARINGBRIDGE.ORG/FL/PAIGETHOMAS
JAMIE <PAGZACH@AOL.COM>
PALATKA, FL USA - Wednesday, May 25, 2005 2:35 PM CDT

Still thinking of you and praying for you....
Love ya!
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Wednesday, May 25, 2005 11:28 AM CDT

Heather, Happy Birthday!!!!! I am sorry that you are having so much trouble after the surgery and are still in the hospital for your birthday. You are in the thoughts and prayers of so many, including me!
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Sunday, May 22, 2005 8:43 AM CDT

Happy Birthday H:)!!!
Lots of hugs!!!!
Tiby <tibi19107@yahoo.com>
Philadelphia, PA USA - Saturday, May 21, 2005 3:37 PM CDT

HI Heather,
Just want you to know you are in my prayers. I hope you are feeling stronger today and are able to come home. HAPPY BIRTHDAY a day early!!!

Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Saturday, May 21, 2005 11:49 AM CDT

Good luck with the surgery!
Prayin for ya:)!

Tiby <tibi19107@yahoo.com>
Philadelphia, PA USA - Monday, May 16, 2005 8:47 PM CDT

Heather,
Just wanted to let you know you are in my thoughts and prayers as you take your adventure this week with your lines.
Hugs,
Kristie
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Sunday, May 15, 2005 10:12 AM CDT

Hi Heather,

So glad that all your docs are on the same page and
that you have a plan. I will be thinking of you and
praying for you this week as you go through the pulling
of one line and the placement of a new central line later
in the week. If I am feeling up to it, I will try to stop
by and visit with you. Sending you gentle hugs,prayers and
love your way. Love ya,

Ann-Marie
Palmerton, Pa. - Saturday, May 14, 2005 11:01 PM CDT

Heather-

You will be in my prayers this week. Praying for everything to go smoothly with the removal and placement of new central line. Happy Birthday inadvance just incase I'm in the hospital from my surgery on your day. :) Hope you are enjoying your weekend!
Allison <lilqt4u1984@aol.com>
- Saturday, May 14, 2005 4:21 PM CDT

Heather, I wanted to check in on you. I am glad that there is a plan in place for you. I will be keeping you in my thoughts and prayers this week.
Kristina <kckoch76@juno.com>
- Saturday, May 14, 2005 2:27 PM CDT

Hi Heather,
Sorry to hear you have to get a new line, but hopefully you'll feel better and hopefully the new one will last a long time. The most unusual things seem to happen to you, like all these line infections with strange bugs! I'll be praying for you next week that everything goes smoothly with getting the new line.
Amy Roth <aandbroth@enter.net>
Coopersburg, PA USA - Thursday, May 12, 2005 2:11 PM CDT

hey Heather! Thanks so much for signing my guestbook! I hope everything goes well with your line stuff-- that must be so frustrating. So this is really incredibly crazy, like seriously a small world. When I saw where you were from, omg, I just started laughing. My entire extended family lives in Allentown/Macungie and are treated at Lehigh Valley. We go up three times a year. That is just too funny! Well I hope you have a great week, and hope you get to feeling better- and SOON! :)

PS- Just wanted to tell you that I had some problems with people using my page inappropriate ways, so unfortunately I had to change it, but please come to the other one below!
Diana www.caringbridge.org/tx/diana_s
Dallas , TX - Thursday, May 12, 2005 2:02 PM CDT

Hi Heather, thanks for finding my CB site. So far so good with the second PICC. Right now the plan is for it to stay in for about 3 months and see how I tolerate the extra hydration. Then we will do a more permanent solution (probably broviac).

I hope all goes well with your line removal and replacement next week. You will be in my thoughts and prayers!

Hugs,
Kristie
Kristie <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersburg, PA USA - Thursday, May 12, 2005 10:37 AM CDT

Heather, I am sorry you are feeling so bad right now. I hope that with getting a new line that you can start on the road to feeling better and no infections for awhile! I'm keeping you in my thoughts and prayers
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Thursday, May 12, 2005 7:26 AM CDT

Hang in there Heather!:)
Better days are ahead:)
Keep smilling:):)

Tiby <tibi19107@yahoo.com>
Phila, PA US - Monday, May 9, 2005 6:55 PM CDT

Heather, I have been thinking of you. I am so glad to hear that you have found an ID doctor who is willing to be proactive. You have been suffering from line infections for way to long. I hope that this current plan works. That is great that he is willing to do phone/ e-mail appointments and be in contact with Dr. K. I'm praying that all works as planned right now. Thanks for mentioning me on your page. I know the prayers will help! Take care!
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Tuesday, May 3, 2005 5:32 AM CDT

Just wanted to say hi and let you know I'm thinking of you! Love ya!
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Monday, May 2, 2005 0:39 AM CDT

Hoping that you feel better!:)
Sending hugs and prayers:)

Tiby <tibi19107@yahoo.com>
Philadelphia, PA US - Sunday, May 1, 2005 11:58 AM CDT

Hi Heather,

So happy that you were able to hook up with Malisa's ID Doctor, Dr.M. I can tell by your journal that you feel much more comfortable having this doctor tend to your line infections. Sometimes we just have to change doctors, esp. when they don't listen to us, or have other ideas of their own that will be no use to us. Hang in there my friend. I hope the antibiotics work and you start to feel better soon. Praying for you.!!! And thank you for praying for me.
Love and Hugs, Ann-Marie

Ann-Marie <peetie@ptd.net>
- Saturday, April 30, 2005 0:46 AM CDT

Heather, I just wanted to stop by to check on you. I hope you are starting to be able to run some TPN. I am thinking of you and keeping you in my thoughts and prayers.
Kristina <kckoch76@juno.com>
- Friday, April 29, 2005 7:26 AM CDT

Heather,

Sorry that you have another line infection. I do hope and pray that the Docs find the right antibiotic to cure this infection. I worry about you with all of these infections. I heard(from your sister's site) that you were able to stay home this weekend. I am glad about that. It is so much nicer to be at home than in the hospital.

Just wanted to let you know that I am thinking of you and keeping you in my prayers. Love and Hugs,

Ann-Marie <peetie@ptd.net>
- Friday, April 29, 2005 0:47 AM CDT

Praying for you:)
Hang in there!

Tib <tibi19107@yahoo.com>
Philadelphia, PA US - Saturday, April 23, 2005 10:43 PM CDT

Heather, I am so sorry to hear that things are so "icky" right now. I am so glad that you have Dr. K to correspond with. I will be keeping you in my thoughts and prayers that you don't have to go in to the hospital. I am worried about you though.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Saturday, April 23, 2005 6:50 PM CDT

Heather,
Sorry to hear you are not feeling well. Those nasty line infections always seem to get you. I am praying that things will improve over the weekend and that you don't have to be admitted. I know what it's like working with doctors who don't know you well--very difficult sometimes (well, most of the time). I'm glad you have some good doc's who are compassionate and I'll pray for wisdom for them to help you.
Amy Roth <aandbroth@enter.net>
Coopersburg, PA USA - Friday, April 22, 2005 7:30 PM CDT

Heather, I am sorry to hear that you are feeling so bad right now. I hope they find the cause for the pain soon and can allieviate it. I hope to talk to you soon, but lost your phone number. I have been losing everything lately! Take care and I hope the breathing gets easier and that the bugs leave town and stay away. :-)
Kristina <kckoch76@juno.com>
- Monday, April 18, 2005 7:42 AM CDT

Hi Heather,

Sorry to hear that you have those nasty bacteria beasties again!! I do hope that they figure it all out and get you on the right antibiotics. I am very upset that you are having that horrible rib/chest/back pain. I do hope it doesn't have anything to do with your infection, but if it does lets hope you find out real soon so the docs can start a plan to make you better. I can tell you are exhausted, you have had so much going on lately. I pray that you are finally able to get some much needed sleep. Hang in there, my friend. Love and Hugs, Ann-Marie

Ann-Marie www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, April 16, 2005 10:01 PM CDT

I found your site through Alexandria's guestbook. I'm sorry to hear that you are feeling so bad. I will keep you in my thoughts and prayers. (I love the pictures with your dogs, they are beautiful.)
Angela- -HEATHER GRACE

<angembal@yahoo.com>
Natick, MA - Saturday, April 16, 2005 5:16 PM CDT

Heather,
My prayers and thoughts are with you:)!
tiby <tibi19107@yahoo.com>
Phila, PA US - Saturday, April 16, 2005 3:39 PM CDT

Heather,
I am keeping you in my thoughts and prayers. I am hoping the pain goes away soon or that they can find a cause for it and treat it. I don't like the way your fever spiked either and I am not a doctor! I am thinking of you.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Thursday, April 14, 2005 7:28 AM CDT

Hi Heather,
Ashley & I had a brilliant thought--maybe the cause of your fever is because of the yellow puddle you stepped in in your socks when you were trying to be a good samaritan in the hospital on Tuesday night.
Have you consulted with a good ID doc who specializes in infections resulting from incontinence?
We hope you;re feeling a lot better and don't end up in the hospital too, If you do, I'll send Ashley down to visit you. She;s good at making people smile!
Ashley & Malisa <malilibear@aol.com>
Boston , MA - Saturday, April 9, 2005 3:31 PM CDT

Heather,
I am so sorry that you are also spiking temps and have a line infection. I am worried about you. I hope you can stay out of the hospital if possible, but do go in if necessary. Take care.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Saturday, April 9, 2005 8:52 AM CDT

Hi Heather,

I am sorry that you aren't feeling well.If it has to be anything, I do hope it is a virus, but you know your body best. I pray that you are back on your feet soon.

I have to agree with Ashley, what was in the AIR last week in Boston?? All 3 of you guys are now sick. This isn't good.

Feel better soon. I am praying for you and your sister Alyson. Happy to hear that she made it though the surgery and I hope she is home soon. Love,Ann-Marie

Ann-Marie www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Friday, April 8, 2005 10:36 PM CDT

Hi Heather,
Glad to hear things went well for Alyson today. Our whole family has been praying! Sorry you are not feeling well. I hope it's only a virus too, but I think you know your body best and those doctors should just listen to you! (You are always right in the end anyway!) Hope your Boston trip was eventful in good ways.
Amy Roth <aandbroth@enter.net>
Coopersburg, PA USA - Friday, April 8, 2005 8:25 PM CDT

Ok, what was in the Boston air last week?? Malisa, then you? Now, I am stuck in bed sick as well, with a cold, but don't have to worry about a line infection!! What you guys are going through is making me seriously question getting a port! I spent time with Malisa last night but feel bad that I am stuck home sick in bed tonight!! It is so great that you were here for her over the first few days! Feel better soon. It was great meeting you!!
Ashley <ayoung@mclean.harvard.edu>
Boston, MA - Friday, April 8, 2005 8:17 PM CDT

hi Heather,

Well, you should be home by now. I know your sister is having her surgery tomorrow, so when you get a chance don't forget to update all of your friends on your trip to Boston. I hope it was successful and that all the doctors had great ideas and that you now have plans in place to get better.

Keeping you in my thought and prayers. Hugs, Ann-Marie

Ann-Marie www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Friday, April 8, 2005 1:29 AM CDT

Hi Heather,
I learned of your caringbridge site through a mutual mito friend. I wish you the best of luck this week in Boston. Dr. Korson is incredible. Have faith!

Kristie Palmer <kristiep@frontiernet.net www.caringbridge.org/pa/kristie>
Mercersbrug, PA USA - Wednesday, April 6, 2005 5:52 PM CDT

Good luck in Boston:)
Praying for you:)
Tiby <tibi19107@yahoo.com>
Phila, PA US - Sunday, April 3, 2005 5:49 PM CDT

Heather, Just stopping in to say hi. I am glad the virus is gone! Sending you good thoughts for your trip to Boston this week!
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Saturday, April 2, 2005 9:22 AM CST

Just wanted to let you know we stopped by, came here thru a mutual friend with mito. Hope all goes well this week with your visit to Boston.
Rod and Donna Thorell www.caringbridge.org/ma/thorell_kids <scrod98@yahoo.com>
Carver, MA - Friday, April 1, 2005 7:43 PM CST

Heather, Happy Easter! I know you have a lot going through your mind right now with your Boston trip coming up. I will be thinking of you and keeping you in my prayers.
Kristina <kckoch76@juno.com>
- Sunday, March 27, 2005 12:30 AM CST

Hi Heather,

Just wanted to stop by and say Hi!! I am so glad that you are finally finished with the antibiotics and I am hoping that you are feeling better.

It won't be long and you will be on your way to Boston for your appt. with Dr. Korson.!! He is a great doc who is so compassionate and caring. I am sure he will be able to help you and put you on the right path to better health.

Hang in there. God Bless You. Love, Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Saturday, March 26, 2005 0:06 AM CST

hello heather--thanks for dropping by my page...i just wanted to say good luck with the doctor---i hope he will come to a conclusion of what is really going on....best to you.....and

sincerely, chris
~Chris's Page~ ( Wisconsin Angels/WI Friends of Allie) <clownfish_53@yahoo.com>
Appleton, WI - Friday, March 25, 2005 0:15 AM CST

Heather, I wanted to stop in and check on you. I am keeping you and your trip to Boston in my thoughts and prayers. I hope Dr. Korson can help you out with some answers. I know how hard it can be to balance our daily life and the medical aspect of our lives. I am keeping both you and Alyson in my prayers.
Kristina <kckoch76@juno.com www.caringbridg.org/ia/kristina>
- Sunday, March 20, 2005 12:37 AM CST

This is the first time I have been to your web page. We are also from PA and my daughter is 8 and has a mito disorder. I will check back again soon.
Denise and Miranda www.caringbridge.org/pa/miranda <denise.lappan@verizon.net>
Berwick, pa - Thursday, March 17, 2005 8:46 PM CST

Hi Heather,
Sorry to hear you have another line infection and are knocked out from having an infection and all the meds on top of that. I check your webpage daily and I pray often for both you and Alyson. You are often on my mind and both of you minister to me with your postive attitudes and how hard you fight! One of my favorite sayings is Let go and Let God! Although sometimes it's easier said than done.
Amy Roth <aandbroth@enter.net>
Coopersburg, PA USA - Wednesday, March 16, 2005 3:15 PM CST

Just breezed by your virtual window!!!
I appreciate it keeping us up to date.
Certainly helps us pray more intelligently.
May God bless your life and enrich you with His presence.
Pastor Tom <tom@calvarybfc.org>
Coopersburg, PA USA - Wednesday, March 16, 2005 11:09 AM CST

keep smilling:)
Just think, Boston is just around the corner.
Hugs and prayers for ya!
tib <tibi19107@yahoo.com>
Phil, PA US - Tuesday, March 15, 2005 10:37 PM CST

Hi Heather,

Just stopped by to see how your appt. with the MDA Neuro was, but you haven't updated about that yet. So I guess I will have to wait. I hope your feeling better now that you are getting the correct antibiotics. Wow, just 3 weeks and you are on your way to Boston, I bet you can't wait.
Thinking of you and keeping you in my prayers. Hugs,
Ann-Marie

www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Tuesday, March 15, 2005 7:09 PM CST

Hi Heather,

So glad that the ID Docs FINALLY decided that YOU DO have a line infection. It surely took them long enough to figure it out. And all this time you knew you had an infection growing in your line, I wish they would just listen to us and be done with it, we know our bodies the best.!!

I hope the antibiotics work and you start to feel better real soon. Keeping you in my thoughts and praying for you. Stay Strong!! Thanks for stopping by and leaving a message on my CB site, that was so nice of you. Love and hUgs,

Ann-Marie www.caringbridge.org/pa/annmarie <peetie@ptd.net>
- Friday, March 11, 2005 8:51 PM CST

HI HEATHER -
THANK YOU FOR SHARING EVERYTHING ON YOUR WEBSITE, WE'RE THINKING OF YOU - HANG IN THERE
your cousin, gretchen <gm021062@aol.com>
Myersville, MD USA - Friday, March 11, 2005 7:59 PM CST

HI HEATHER -
THANK YOU FOR SHARING EVERYTHING ON YOUR WEBSITE :-)
WE'RE THINKING OF YOU - HANG IN THERE -

your cousin, gretchen <gm021062@aol.com>
Myersville, md usa - Friday, March 11, 2005 7:56 PM CST

Heather, I hope that the IV antibiotics start working and kick that bug in your line. I am thinking of you.
Kristina <kckoch76@juno.com www2.caringbridge.org/ia/kristina>
- Tuesday, March 8, 2005 7:41 AM CST

Heather,
Just hang in there!
Praying for ya:)
Tiby <tibi19107@yahoo.com>
Philadelphia, PA US - Sunday, March 6, 2005 4:20 PM CST

Heather, I just wanted to drop by to check in. I hope things are going okay. Have they figured anything out with your line yet? I am keeping you in my thoughts and prayers.

Kristina <kckoch76@juno.com www2.caringbridge.org/ia/kristina>
- Sunday, March 6, 2005 8:13 AM CST

Hi Heather,
I really hope you start to feel better soon and they get your line situation figured out. It's frustrating to always have to be advocating for yourself. Maybe they should come up with some sort of protocol for when you get a certain # of positive cx. Hugs and prayers to you.
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Friday, March 4, 2005 1:00 PM CST

I noticed that we all have prominently placed quotes or “bylines” at the top of each of our sites. What struck me is that they all send out the same message…”live for today” or that every moment is precious.

I am sad that we are in our twenties and that our medical issues and having to fight for our lives has made us lose our innocence, or the feeling of being invincible that most people our age have. At the same time, I feel lucky to know how truly precious each day is and how important it is to not take each day for granted. That knowledge has changed me and made me a new person. I don’t have many around me (my age) who “get it” like you guys do. I am sorry that we have to know the fear, but grateful that we have gained the insight to appreciate each day

Here are the quotes from each site…hope it is ok that I posted them here!

Life is not measured by the number of breaths we take, but by the moments that take our breath away. - George Carlin (Heather)

Nothing is more important than TODAY! (Kristina)

"Learn as if you were going to live forever. Live as if you were going to die tomorrow" - Gandhi. (Me)
Ashley <ayoung@mclean.harvard.edu>
Boston, MA - Wednesday, February 23, 2005 4:31 PM CST

Heather,
I just wanted to check in. I am praying that your bug has not spread and that they will finally do something about it.
Kristina <kckoch76@juno.com www2.caringbridge.org/ia/kristina>
- Tuesday, February 22, 2005 7:26 AM CST

Heather!
My prayers and thoughts are with you. Lets hope this week will bring some answers. Hang in there:)
Tiby <tibi19107@yahoo.com>
Phila, PA US - Monday, February 21, 2005 9:34 PM CST

HI Heather,
Just wanted to say hi! I know I've talked to you since you posted this, but I wanted you to know you are in my prayers. Hopefully we can get together again sometime in the next few weeks! Love ya!
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Wednesday, February 16, 2005 11:32 PM CST

Heather, That is great that your new GI med is working. I hope you are able to continue to be able to eat at least small amounts. Congratulations on the arrival of your niece. I know how special those times can be.
Kristina <kckoch76@juno.com>
- Wednesday, February 16, 2005 4:23 PM CST

Heather, It sounds like things are going well for you right now. I hope they continue to stay like that. I am sure you are excited waiting the arrival of your niece or nephew. TAke care and I am thinking of you and keeping you in my prayers.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Saturday, February 12, 2005 8:27 PM CST

Hey Heather,
Thanks for spending a lot of time with me lately...shopping, talking or just hanging...I really enjoy being with you. I appreciate all you do for me and being my sister most of all. Love you. Thanks for making my b-day special.
Alyson <aaschwenk@enter.net>
- Tuesday, February 8, 2005 12:04 AM CST

Hi Heather,

So great to hear that you have NO BUGS!! Thank goodness that your cultures came back negative. I hope you start to feel better soon.

How can you learn to knit in one afternoon?? you are amazing!!, it would have taken me a year to learn to knit

Just wanted to let you know that your in my thoughts and in my prayers daily. God Bless You!! Love,

Ann-Marie McDonald <peetie@ptd.net>
Palmerton, Pa. - Sunday, February 6, 2005 1:37 AM CST

Heather, I am sorry that things are not going well right now and that you are feeling so sick. I am praying that the "bugs" cooperate and get out of your system, although I know it isn't that easy. I hope they figure out what to do so you can start feeling a little better.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
- Thursday, February 3, 2005 6:44 AM CST

HI Heather,
I am SO glad you finally have all your appts set up in Boston. I know how frustrating it is to try to coordinate all of that. I think you'll be in really good hands with all 3 docs and it'll be good that they can all communicate with eachother since they all work at Floating.

I hope that your cultures come back negative, but I also hope that they can figure out why you feel so yucky. Hope we can get together soon. Love ya!

Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Saturday, January 29, 2005 3:55 PM CST

Hi Heather,
So happy to hear that you finally got all of your appts. worked out for your Boston trip. I will be in Boston seeing Dr. K and the GI in March,bummer that our appointments don't match up, it would have been nice to meet you. Too bad because I was looking forward to getting together with you. Maybe next time.

Sometimes the Labs really mess up on the tests. I can't tell you how many times I had bloodtest ordered and when the results came back some of the tests were never done. It is very frustrating, and it makes me angry. I only have so much energy and sleep most of the day so it makes it difficult for me to re-do the bloodwork, so I understand how upset you must be also.

Hope you have a great weekend. Hugs, Ann-Marie

Ann-Marie <peetie@ptd.net>
- Friday, January 28, 2005 10:52 PM CST

Heather, I am praying that things work out and you can get your appointments in Boston all worked out. I am thinking of you.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
Cedar Rapids, IA - Thursday, January 27, 2005 8:34 PM CST

Hi Heather, I guess it would not be a good thing to freeze your TPN. Praying for your migraines and pain. Also praying for you that all your appointments you need come together for you soon. Praying for your doctors to have wisdom and creative new ideas to help you. Enjoy the snow and know I am praying for you and Alyson!
Amy Roth <aandbroth@enter.net>
Coopersburg, PA USA - Saturday, January 22, 2005 6:51 PM CST

Hey Heather: I read your last update. I am so sorry to hear about your headaches and other problems. It makes me so sad, to hear what is going on with you and Alyson. Keep being strong, and know that you are both in my prayers always. Let me know if there is anything I can do. Call me soon. I love ya! Julie :)
Julie Shook <kylejulie2003@wmconnect.com>
Emmaus, PA USA - Thursday, January 20, 2005 10:21 PM CST

Heather,
Lets pray that those headaches will go away or lessen in their intensity. Maybe Dr. Sw will have some answer or advice? At any rate, good luck today!:)
Tiby <tibi19107@yahoo.com>
Phila, PA US - Monday, January 17, 2005 10:02 AM CST

Hi Heather,
I really hope the headaches start getting better for you. I am really worried about them since you get them after flushing your line. Good luck tomorrow at your appt. with Dr Sw. I'm praying for you.
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Monday, January 17, 2005 0:07 AM CST

Heather, I think your web page is great, I love your pictures! I am glad you are finding some doctors who actually listen to you. It makes a big difference just to be heard. I am praying for you and Alyson and your whole family!
Amy Roth <aandbroth@enter.net>
Coopersburg, PA USA - Tuesday, January 11, 2005 12:44 AM CST

Hi Heather,

Glad to hear that your Mitochondrial DNA bloodwork came back negative. Sorry that there maybe problems with your urine. My 24 hour urine tests also show a possible ox phos. so we will be re-doing them too.

I really like your CB site. And I hope I can get around to starting my CB site too, that's if I can ever stop sleeping Thanks for sharing and you are in my thoughts and prayers. Good luck in the coming months and I hope you are able to get in to see Dr. K soon. Hugs,
Ann-Marie McDonald <peetie@ptd.net>
Palmerton, Pa. - Monday, January 10, 2005 9:20 PM CST

Hey Heather,
Your website is looking great. What a wonderful idea. You remain in my thoughts and prayers.
Erin <erincausa@msn.com>
Nazareth, PA - Monday, January 10, 2005 1:45 PM CST

Hi Heather! Thanks for the info on your health and the link to your website. Can I share this with the others at LVH? Some have asked about you and how you are. They know we keep in touch. You are in my thoughts and prayers. Good luck with Dr. K.
Carol Hentzel
Emmaus, PA USA - Monday, January 10, 2005 12:18 AM CST

Hi Heather! I enjoyed browsing through your website. Keep your strong positive attitude and know that you are always in my thoughts and prayers. Kate :)
Kate Kershner <skylr515@hotmail.com>
Allentown, PA USA - Sunday, January 9, 2005 6:13 PM CST

Hi Heather,
I am so glad you are starting to get more answers regarding all of your medical issues. You are such a good friend to me and I always look up to you with the way that you handle everything. I feel so privileged to be friends with you and I hope you continue to get answers. I'm praying for you.
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Sunday, January 9, 2005 1:10 AM CST

thanks for sharing your caring bridge site - it was so nice to put a face with a name.
Anne - TPN List <TPN@TPN.com>
- Saturday, January 8, 2005 11:07 PM CST

Hi Heather! You are an inspiration; I hope you don't mind if I ask my Bible study to pray for you and your family. We'd love to have you come sometime, too, if you would like! I hope your meeting with Dr K goes well. Take care, teal
Teal Benevides <txw131@jefferson.edu>
Philadelphia, PA USA - Saturday, January 8, 2005 7:06 PM CST

Hi Heather,
I was led to your site by Malisa. I think she mentioned that they once suspected a mast cell disorder with you. I have been diagnosed with one (as well as many other problems) and am now in the process of a mito evaluation with Dr. Korson. I look forward to reading your site. I have a site that is password protected. If you are interested in viewing it, feel free to email me!
Ashley <ayoung@mclean.harvard.edu>
Boston, MA - Saturday, January 8, 2005 10:38 AM CST

Hi Heather,
It has been so long since I have talked with you! My mom keeps me updated on your health and sent the info. for the website. I have been thinking and praying for you and your family. May the Lord give you continued hope, peace, and strength during this time. Love, Heather "Orange" (remember that?) Isaiah 43:1-3
Heather (Shorb) Evans <heathershorb@juno.com>
Staten Island, NY 10312 - Saturday, January 8, 2005 7:08 AM CST

Hey Heather: I am so happy you sent me your website. You did a really awesome job putting your site together. It is very imformative; thank-you! I am honored that my pic is on your website. You truly are one of my BEST friends! Malisa, was right...YOU ARE AN INSPIRATION! You are so strong, and positive. God is always with you thru all of this, and we may not understand why this is happening, but GOD does; He has a Huge plan for your life, and it will be the best and most perfect plan; remember that Heather! I love ya! Jules :) ps. you know you are always in my thoughts and prayers. :)
Julie Shook :) <kylejulie2003@wmconnect.com>
Emmaus, PA USA - Friday, January 7, 2005 10:57 PM CST

Great website. Like your photos too. I will keep you in my prayers.
Mary Ann E. Schwenk <dmaschwe@fast.net>
Coopersburg, PA - Friday, January 7, 2005 7:36 PM CST

Hi Heather,
Love your website...it's beautiful!!! Thanks for all your support, love, prayers and help too! You deserve the best babe....that means an awesome man of God too!
Your sis,

Aly <aaschwenk@enter.net>
coopersburg, pa usa - Friday, January 7, 2005 4:55 PM CST

Hi Heather,
Love your website...it's beautiful!!! Thanks for all your support, love, prayers and help too! You deserve the best babe....that means an awesome man of God too!
Your sis,
Aly
Aly <aaschwenk@enter.net>
coopersburg, pa usa - Friday, January 7, 2005 4:54 PM CST

Heather,
I was very nice meeting you during your trip to Boston. You will really like Dr K he is great. I'm happy you have a web page and I will check back soon!
Heidi
Heidi Simoes <Lexicam24@cox.net http://www.caringbridge.org/fl/alexandria>
Johnston, RI USA - Friday, January 7, 2005 4:01 PM CST

Hey Heather! Love your site and pics! I'm so glad you and Aly decided to make CB sites. I will be checking back for updates often. Praying for you and that your test results will be yeilding lots of valuable info for you. Hang tough! Hugs and prayers.
Allison <lilqt4u1984@aol.com www.caringbridge.org/ky/allison>
Owensboro, KY - Friday, January 7, 2005 10:23 AM CST

Hi Heather!
My name is Nikki, and I am a friend of Malisa and Kristina. I am 24, and have infant-onset Primary Systemic Carnitine Deficiency, which is a form of mito. I really hope that Dr. K will be able to help you find some answers so you can get better treatment. I will be thinking about you!
Nikki <nikkinetgirl@yahoo.com>
- Thursday, January 6, 2005 7:48 PM CST

Heather,
Hi! I am Malisa's friend, Kristina. I have also e-mailed your sister, Alyson, and try to keep in contact with her. I am glad that you had a good appointment in Boston. Reading your page and your background, I saw a lot of myself in the description. I am not on TPN, but many other things, such as autonomic dysfunction sound so very familiar. I started looking for a diagnosis at age 14 and was diagnosed with mito at age 18 (now 28). I am interested in getting to know you.
Kristina <kckoch76@juno.com www.caringbridge.org/ia/kristina>
Cedar Rapids, IA - Thursday, January 6, 2005 5:08 PM CST

H,
I am very happy to sign your guestbook!!
The page is very informative and inspiring:)
Glad that you placed pictures on the site.
I'm prayin for you
T
Tiby <tibi19107@yahoo.com>
Phila, PA US - Thursday, January 6, 2005 8:15 AM CST

Hi Heather,
I am so excited that I am the first one to sign your guestbook. It'll be nice to get updates on how you're doing.
You're an inspiration to me!
Malisa <malilibear@aol.com www.cari&#formative and inspiring:)
Glad that you placed pictures on the site.
I'm prayin for you
T
Tiby <tibi19107@yahoo.com>
Phila, PA US - Thursday, January 6, 2005 8:15 AM CST

Hi Heather,
I am so excited that I am the first one to sign your guestbook. It'll be nice to get updates on how you're doing.
You're an inspiration to me!
Malisa <malilibear@aol.com www.caringbridge.org/pa/malisa>
- Wednesday, January 5, 2005 11:23 PM CST

Click here to sign the guestbook.

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