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I really love everything about you!!!!!!
Sister Dianne Lairsey
Tallahassee, Fla USA - Wednesday, March 21, 2012 8:56 AM CDT
Hello Ryan

My name is Jenna and I came across your site. U are a precious gift, and a special earthly angel. You are a courageous, strong, determined fighter. U are a brave warrior, smilen champ and an inspiration. U are a super hero, super trooper and a touch cookie. You are full of life, spunk, smiles, laughs, hugs, happiness, joy, and fight. U will be in my thoughts and prayers. I love it when people sign my guestbook. http://www.caringbridge.org/visit/champ291

Jenna <fighterchamp9@aol.com>
Kamloops, BC Canada - Sunday, January 15, 2012 4:59 PM CST
Thank you so much for sharing these beautiful pictures and ideas with us. For those who feel that have a child with special needs is a negative you show them all the positives- thank you. As a teacher (BS Elementary/Special Education (Dual Major) and soon to be Birth - Kindergarten teacher I know the value in having all students interacting, learning, sharing and struggling together in order to learn to be compassionate with one another and of each other. As adults we are all different and we need to learn to interact with one another and children are no different. May you and your children forever be blessed and may you always provide us with the opportunities to learn more.
Olenma C. Figueroa Alvarez <olenmaalvarez@yahoo.com>
Monroe, NC USA - Saturday, September 24, 2011 9:09 AM CDT
Hello, MR Ryan how are you
the russells ^Nate^ Owen Trey &Jen

Nathan's Mommy <rer3family@cox.net>
Tusla , OK USA - Friday, July 23, 2010 9:11 AM CDT
Oh, my precious Ryan, what a gift from God you are!!! I'm your 2nd cousin, and it's been YEARS since Ive seen you! I love you so very much and hope to see you again real soon!
Lanae Rogers <lanaerogers@hotmail.com>
Sierra Vista, AZ USA - Tuesday, November 17, 2009 8:00 PM CST
I'M ON THE OTHERSIDE OF A HEART RENDERING STORY,I DONT LIKE THE FEELING @ ALL! I MET LAWRENCE RICCIO NOT JUST @ OUT LOCAL PHARMACY , BUT @ THE VA IN BROOKLYN 800 POLY PLACE;HE WAS HAD THAT SANTA SPARKLE IN HIS EYES ,VERY NICE,GENTLEMENS GENTLEMAN LAST OF A RARE BREED! THEN TO BE @ THE VA GOING TO ONE OF SEVERAL CLINICS & I ALWAYS WENT TO THE CHAPEL AREA ,SPOKE WITH THE PADRE MULLIN ;& I MET LAWRENCE RICCIO HE WORKED THERE AS WELL! AFTER HE LEFT THE VA I NVR SAW HIM AGAIN UNTIL THIS PAST WEEK TOLD HIM I GO ON F/B THEN TO SEE JUST OTHER THINGS ON HIS WALL I HAD NO IDEA.AMARA RICCIO I WILL TRY & VISIT HERE EVERYTIME I SIGN ON I WILL SEND THIS TO ALL MY FRIENDS & FAMILY SOME FROM BUCKS ENGLAND ,OTHERS FM WALES U R AMONGST ANGELS & YOU WILL BE IN OUR PRAYERS EVERYDAY- GODBLESS, ANOTHER ACCIDENT SURVIVOR-ELAINE FRERICHS BARET
ELAINE BARET <baret@optonline.net>
BROOKLYN, NY 11229 - Saturday, November 14, 2009 8:04 AM CST
Gee, what
an excellent idea. Thanks.

Conner Smith <conner@bellsouth.net>
Ray,pmd, MS USA - Monday, August 24, 2009 8:33 PM CDT
Gee, what
an excellent idea. Thanks.

Conner Smith <conner@bellsouth.net>
Ray,pmd, MS USA - Monday, August 24, 2009 8:29 PM CDT
Dustin Bair
This is yo let you know Ginny and I are praying for you. I'm sure the hand of God continues to be with you.
Pastor Glenn A. Hoover

Pastor Glenn A. Hoover <glennhoo@juno.com>
Ephrata, Pa USA - Friday, August 21, 2009 7:31 AM CDT
coming back again
Elizabeth Harber <elizabethharber@live.com>
DALLAS, TX Dallas - Friday, August 14, 2009 10:10 AM CDT
coming back to Jonathan's guestbook
Elizabeth Harber <elizabethharber@live.com>
DALLAS, TX Dallas - Thursday, August 13, 2009 8:32 PM CDT
coming back to Jonathan's guestbook
Elizabeth Harber <elizabethharber@live.com>
DALLAS, TX Dallas - Thursday, August 13, 2009 8:29 PM CDT
Returing to Jonathan Brown
Elizabeth Harber <elizabethharber@live.com>
DALLAS, TX Dallas - Thursday, August 13, 2009 6:10 AM CDT
Keep trusting in Jesus big guy. Hopefully, some day when I'm taking an evening walk in Heaven, I'll bump into you, and we can walk together.
Peace little brother!

Joshua Sinclair <roughhoodminister@hotmail.com>
Johnson City, NY USA - Tuesday, June 30, 2009 7:53 AM CDT
Hi Ryan, This was so cool looking at your web page. Thank your mom for showing it to me. You are so strong and awesome. I loved your song too.
Love Laura

Laura Steketee <lsteketee55@gmail.com>
Redmond, Or - Saturday, January 17, 2009 8:57 PM CST
You are one of my heroes Ryan!
Mrs. A* <jen.anderson@bend.k12.or.us>
Bend, OR USA - Thursday, September 11, 2008 10:47 PM CDT
Hello Ryan.
Hope you had a great summer. Lizzy and I are just looking at some of our friend's web-sites tonight.
www.our-sma-angels.com/elizabeth

Jeanna and Lizzy <red542000@aol.com>
- Friday, September 5, 2008 8:19 PM CDT
RYAN I LOVE YOUR WEBSITE SAM
Sam De Vos <devosheather@yahoo.com>
Shoreline, WA USA - Sunday, July 20, 2008 3:40 PM CDT
Hey Ryan, My name is also Ryan Andrew Brown, So we rock!! I am also a jedi knight;),star wars is deff my fav 2, you have to be the coolest Ryan i know;) anways take care Ry,,
Ryan Andrew Brown, <rabrown007@hotmail.com>
London, England - Monday, May 5, 2008 6:40 PM CDT
Happy Birthday dear Ryan! I hope you had a great day today, opening up your presents and having pizza and cake. You are growing into a handsome, courageous and fine young man.

I pray you are not getting sick. You seemed a little tired and croaky today.

We love you so much....Grandpa and Grandma Brown

"Is that better?" ha ha

Krystal
- Wednesday, March 19, 2008 10:57 PM CDT
I was just thinking about you and wanted to stop in to say hello!
Andrea Smith <kanga1102@bellsouth.net>
Piedmont, SC - Thursday, November 22, 2007 2:52 PM CST
Hey Ryan
I was looking up some info on SMA, and found you!!! Missed you at school today. Hope you will be coming back soon. We all miss your smack talk to Wicker. Hope you are practicing chess so you can show him who the real Chess Champ is.

Angelina

Angelina Mingus <kminga24@aol.com>
Bend, OR United States - Thursday, October 4, 2007 11:40 PM CDT
What a wonderful website! And what an amazing life for you, Ryan. My husband has SMA, type 2. He now holds three college degrees--2 of them masters. He works full time and loves it (most of the time...;-).) Good luck to you and God Bless!
Tia Farmer
Trumann, AR USA - Thursday, August 16, 2007 11:42 AM CDT
Hi Ryan,
My son Matthew is 9 1/2 and has had a life very similar to what your's has been. We have the same equipment and follow the same protocol. He was also diagnosed around age one with SMA type 2. He is also on Jenna's website (pictured). He loves movies and his computer and video games. (Now in 4th grade) He has a wonderful big brother. I would love to hear from you and hope you are doing well.

Cathy Minderler <dminderler@verizon.net>
Youngstown, NY USA - Sunday, July 22, 2007 9:24 AM CDT
Hi Ryan. You're a handsome guy! I bet you are such a joy to your family, and they love you very much. Great web site. ♥
Emily P
Sherwood & Bend, OR - Saturday, July 14, 2007 11:27 AM CDT
hey man i was just googling ryan browns cause hes one of my friends and i read your story. it really touched me. hope they find that cure soon. ill be praying for you.


p.s. sorry bout my friend he put that stupid comment in your guest book just forget about it (he feels guilty too!)

Rafael Barrera <LORphreak@yahoo.com>
Napa, ca United States - Wednesday, May 2, 2007 4:00 PM CDT
just kiddin i like your home page it rocks
poop <poop1526@yahoo.com>
poop, po poop - Wednesday, May 2, 2007 3:55 PM CDT
hey ya idiot face
poop <poop1556@yahoo.com>
poop, po poop - Wednesday, May 2, 2007 3:51 PM CDT
HAPPY BIRTHDAY TO YOU, HAPPY BIRTHDAY TO YOU, HAPPY BIRTHDAY DEAR RYAN, HAPPY BIRTHDAY TO YOU!!

We love you so much and are so proud of the young man you are becoming.

God blessed us when he sent you into our family and our lives.

Love you forever,

Grandma and Grandpa

Krystal Brown <bkbrownbend@yahoo.com>
Bend, OR - Monday, March 19, 2007 5:08 PM CDT
Hi Ryan....you are getting to be quite the expert at PROBE. We need to find a new game to play with you...Grandpa and I. You have won several times now with your words nobody can guess and your good word-guessing skills.

Glad you could stay here for the weekend while Mom and Dad are off on a get-a-way. Wasn't if fun that Jorie got to stay overnight too? She did pretty well, but did say she missed Mom and Dad.

Let's see, I guess Samuel plans on a re-match of marbles. He likes to be able to beat you at something and it certainly isn't game-cube, is it?

Only one month and it will be your 11th birthday. Amazing!!

Well, buddy....time for some shut eye....Love,
Grandma and Grandpa

Krystal Brown <bkbrownbend@yahoo.com>
Bend, or - Saturday, February 24, 2007 10:54 PM CST
Hello Ryan~
I enjoyed reading your web page. It really gave me a lot of hope. I have a daughter that is two and has SMA II. I can't stand the thought of losing her. So far we have been really lucky. Feel free to e-mail me. I would love to hear from you and your mom. I'm sure she could teach me a lot. God bless and stay strong.

Brandy D. Shifflett <bdshifflett@netzero.net>
Grimesland, NC USA - Sunday, October 22, 2006 9:27 PM CDT
Well, here it is mid-October and I can see that the whole summer passed by without my even writing to you, Ryan!!!

We sure had a fun summer, didn't we? It was beautiful and sunny for days and days. I know you got your fill of playing in the cul-de-sac with your two buddies, Samuel and Josiah. I wonder if you will still be sword-fighting and lasering each other next summer?! I know you are glad that Josiah loves game cube as much as you do.

You proved yourself quite the fisherman at Shevlin Park, didn't you, reeling in those nice rainbow?

Let's see, I guess the movie of the summer had to be "Cars".

I miss the carefree days we enjoyed, but I am glad we got to spend lots of time with you and Jorie and the little boy cousins from Portland too.

You are doing so well this year in school. It doesn't seem possible that next year you will be in middle school. I am sure there are lots of memories to make in fifth grade first though.

We are blessed you have been so well this past year. God is so good!

Well, I guess that is enough for now.

Remember Grandpa and I love you more than ever!!

Grandma

Krystal Brown
Bend, OR USA - Monday, October 16, 2006 9:51 PM CDT
I AM SSOOOOOO SORRY FOR YOUR LOSS. I JUST HEARD OF JAKE RAYBORN PASSING. THERE IS ONE MORE PRECIOUS ANGEL IN HEAVEN. SAFE IN THE ARMS OF JESUS.
Jewel Stites <jewelstites@aol.com>
MONROE, LA QUACHITA - Thursday, October 5, 2006 5:24 PM CDT
Hey Ryan,

Hope you had a great summer and that the new school year goes well for you. Camden LOVES your Star Wars theme! Hope to visit with you and your family again soon.

Take care.

Kelli and Camden Bobosky
Hillsboro, OR USA - Saturday, September 2, 2006 1:45 AM CDT
Iam trying to find the entry for Jonathan Farmer---
"alphadog" as it was stated in the minneapolis newspaper.
unable to locate on your site. Can you help me? Thank you!

mary collins <mlc_rejoice@juno.com>
St. Louis Park, MN USA - Thursday, August 31, 2006 12:50 AM CDT
Hi Ryan,
I'm praying for you and your family.

Stephanie and RachelJoy <mom2rj@comcast.net>
- Wednesday, August 16, 2006 11:44 AM CDT
Hi Ryan,
I'm praying for you and your family.

Stephanie and RachelJoy <mom2rj@comcast.net>
- Wednesday, August 16, 2006 11:43 AM CDT
Hi Ryan! we're praying for you. Jeanna said you're having some problems. Kyle has been very sick for about a week, so we're tired too! Tyler would just flip out over your cool star wars site. that's what we're doing his room in. it's so neat! Say hi to jorie for us!
jana and kyle gundy <mjtgundy@yahoo.com>
sand springs, ok - Thursday, July 27, 2006 9:40 PM CDT
I think it's cool that you have a website because i have MD and i'm a kid and don't of many "kid" websites. :)
Laura M. <lnamart@aol.com>
Garden grove, CA - Sunday, July 2, 2006 4:52 PM CDT
ryan,
we are praying that u will be feeling better soon.
Be sure to treat yourself and mommie to something
special as soon as u feel better.
many blessings,
julia ortego and famiy

lisa and julia ortego <lovebindsus@bellsouth.net>
opelousas, LA USA - Saturday, July 1, 2006 10:10 PM CDT
Hi Ryan. Your story is an inspiration. I am the daddy of Aidan Thomas Lay (type 1) and your courage and fighting spirit is amazing. May you and your family continue to inspire others. God bless.
Jason Lay <j.lay@elitefitness.com.au>
brisbane, qld Australia - Thursday, June 29, 2006 6:49 AM CDT
Hey Ryan....I'm sorry to have to see you feeling this bad right at the start of fun summer times. You have kicked this lung stuff before and you can do it again. I'm glad you are such a fighter!!

We are praying for you to get over this soon. You know how much we love you....your Grandma and Grandpa

Krystal Brown
Bend, OR - Thursday, June 29, 2006 0:33 AM CDT
ryan,
hope you are feeling better and able to have fun
really soon.
we are praying for u to feel better fast....
we love your site,
julia ortego and josh, and christopher

lisa ortego <lovebindsus@bellsouth.net>
opelousas, LA USA - Wednesday, June 28, 2006 9:14 PM CDT
Ryan! Hey buddy - you need to get better!! We are thinking about you and praying hard so you can get back to your old self again. We love your updated Star Wars web site. Be tough, Ryan. We love you. Give your Mommy an extra strong hug from us!
Lisa and Lindsey Muszkiewicz <lmuszkie@cox.net>
- Wednesday, June 28, 2006 2:42 PM CDT
Hey Ryan! Feel better soon! We're thinking about you a lot. I'll be checking in on you again, soon.
Sue O'Neill <caseyandcolinsmom@yahoo.com>
Milton, VT - Wednesday, June 28, 2006 8:43 AM CDT
Ryan, we are praying hard for you! Get better soon so you can enjoy your summer. Hugs,
Dawn and Casey Daws <ddaws@cfl.rr.com>
Deltona, FL USA - Tuesday, June 27, 2006 6:15 PM CDT
Hey Ryan! We wanted to check out the web site and say "HI"! That's a terrific photo of you and Jorie on the home page. We hope you have a great summer. All our love to you, buddy! Lisa & Lindsey (SMA II/III) & Family
curesma4lindsey.com

Lisa Muszkiewicz
Gilbert, AZ USA - Monday, June 19, 2006 2:28 PM CDT
RachelJoy continues to slowly recover from her cardiac arrest. It's been good to finally be back home.

I'm praying that your weekend will be very blessed.



Stephanie and RachelJoy <mom2rj@comcast.net>
- Saturday, June 10, 2006 8:09 PM CDT
Hi Ryan: This is a nice update to your website. I like seeing the new pictures and the caringbridge link. (Great job, MJ...thank you!)

Well, only a few short days and you will be graduating 4th grade. Seems like only yesterday they were sprinkling fairy dust on you and your classmates, making you official first graders!

It's been a good year, health-wise for you and we have much to be thankful for.

Looking forward to a fun, lazy summer. We will be welcoming your new cousin, Luke, to the world within just a couple weeks (c'mon, Luke, we are ready for you!) Then, shortly after that we will drive to San Diego and meet some old friends at the FSMA conference.

After that, we have our first ever "Walk and Roll" fundraiser for SMA that we hope to attend together. I hope it raises lots of money toward the cure.

Oh, I forgot, I know one of the highlights of your summer is always the huge 4th of July celebration in our cul-de-sac and fireworks display practically right overhead.

So, welcome summer. We are glad to see you!

We love you Ryan....goodnight for now,

Grandma and Grandpa

Krystal Brown
Bend, OR USA - Wednesday, June 7, 2006 10:56 PM CDT
Hi Ryan,
My name is Jenna and I came across your website. I love your smile. You are in my thoughts and prayers.
www.caringbridge.org/canada/jenna

Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Friday, September 16, 2005 4:50 PM CDT

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