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Wednesday, September 3, 2008 8:24 AM CDT
Olivia has started the 4th grade and enjoying her days. We had a bit of an adjustment but are getting back into the swing of it.
We are looking forward to Saturday seeing the Hawkeyes, compliments of Make-A-Wish. A yearly event, sounds like the weather will be perfect. Hope to see some familiar faces too.
I can't believe that Olivia will be turning 9 real soon. September 12 is the big day, she shares this day with my Mom. Pretty special to have Grandma share your birthday. Livee is deciding what she wants to do, sleepover or some other activity. She wants several kids to sleepover, we will accomodate no problem. I would prefer to simplify but we will wait and see.
Today Olivia meets a new regular pediatric doc, we have not had just an everyday doc since diagnosis. Dr. Tracy Shaw will take care of Livee now. I thought before winter we would set up an appointment so Tracy can get to know Olivia a little bit. She is in tune with Olivia's history and treatment and all the rest to this point. One more step out of the cancer zone. Ya hoo!!!!
I apologize for not updating pictures and such. I don't even have an excuse but maybe will get that done sometime.
Thanks for checking in.
Monday, August 18, 2008 7:54 AM CDT
August 18, 2005 just 3 years ago today Olivia recieved a special gift from her Dad, a 2nd chance at life without cancer. How awesome for them, they will always share this rare and unique gift. A parent match is so uncommon, possibly as high as 1 in a million chance. Obviously, what Olivia's body needed to fix her. Each day I am so thankful for my little girl.
Also today Livee is officially a fourth grader. She was very excited and took more time than normal to get ready for her day. I love seeing the transformation from not caring or giving any thought to her appearance to now seeming to want to take the time. We met her teachers last week, they are all really nice and seem ready to teach.
I need to run I am at work. Tomorrow we will be speaking on KHAK 98.1 around 5 pm, they asked to help out. It's been a while since I have done an interview, it should be interesting. I will just wing it like I always do. Listen in. Thanks for checking in on Livee.
Tuesday, August 12, 2008 9:37 PM CDT
Hey, is anybody out there? Just kidding.
We are winding down the summer and Livee is getting ready for the 4th grade. She is pretty excited, she knows who her teachers will be and is ready to see some friends that she has not seen over the summer. I say teachers because she will have two that will share the duties. I think it will be great.
This Thursday is registration and then Monday will be their first day of school August 18th. That date we also celebrate because it will be 3 years since Olivia had her transplant. David and Livee always plan something just for them. They share something very special between them, a very unique bond for life. Our Miracle Match!!
Seems like every weekend in September is already busy. Olivia is also taking piano lessons on Tuesday evenings, she really enjoys it, she takes that after my Mom. Those two have always been very close and share the same birth date, September 12th.
Need to run, thanks for checking in.
Thursday, August 7, 2008 4:07 PM CDT
CELEBRATE!!!!!! CELEBRATE !!!!!!! CELEBRATE!!!!!
We have reason to celebrate this day!!!! Three years since Olivia's new marrow from Dad and today we just found out that unless there is reason to suspect something going array Livee has had her last spinal/marrow aspiration. Wow, this is the best day ever! My baby won't have to endure the pain, the fear, the lingering pain in her back after being poked. Olivia has had around 40 of these procedures since her diagnosis February 28, 2004. She is the best, we are so proud of her. Also, a huge sigh of relief today, all of her results were normal no cancer, all numbers within the normal range. Dr. Radhi said that Olivia's labs especially her marrow looked the best he has seen it look ever. He reassured me that we are ok to just have lab work every 6 months and that is it. Olivia is completely reimmunized and now ready to start the 4th grade.
Praise God and thank Him for everyday.
All of you that still support us we wish to say thank you, we know you are out there. I know you check in on Livee's page even if you don't post. I apologize too for not posting more often, but no news is good news. The motto we cancer parents live by.
Sunday, March 23, 2008 8:01 PM CDT
Our not so Spring like Spring break is coming to an end. Olivia had an eventful week spending time at the Recreation Center with swimming, roller skating, and many other activities. Grandma was here and took Livee to her dental appointment and then we all went for her lab work on Thursday at UIHC. The dental report was good although I know the chemo and radiation have done their damage. No lasting effects from her pox shot either, that is a very good sign.
Olivia has come so far on this journey, everyday something reminds me of time spent in the hospital or something is said that makes me think back. Our lives will never be the same, it may something like filling out paperwork for school or her camp registration form, the words we must write "Diagnosis date? Diagnosis? in remission how long? everything a reminder. Yes, Olivia has overcome so many obstacles and is doing so well but the fear will never subside. I will overcome the fear and not let it win just take one day at a time. Be thankful for my blessings. On that note we had a wonderful Easter Day, we spent time with Grandma and Grandpa along with my brother and his family in Fairfield. This morning we went to church services and then the kids enjoyed an Easter egg hunt, the teenagers scattered 2,500 eggs so the little ones definitely had plenty. It was nippy but the kids didn't seem to notice.
Thursday, March 20, 2008 4:14 PM CDT
Olivia's appointment today went just fine. Her lab results were all within the normal range, including her liver functions, and most importantly her immune system. So far no reaction from her chicken pox vaccine, that's a good sign. We certainly don't want any cellulitis like the last time. Steve, the PA said there is another child that has a reaction when given shots, if Olivia would continue to have reactions from a shot in her situation that could mean something else is going on with her system but I don't think that will be the case. I think the reaction she had in October was an isolated incident. Life is good, we don't go back until June for a shot and then August she will have a spinal and marrow aspirate. We can breath now for a while. Each appointment is emotionally draining it takes a moment to come back to reality. But the best news our reality is looking good with blue skies and sunshine.
Thanks again for checking in.
Wednesday, March 19, 2008 8:11 PM CDT
An update pre UIHC visit tomorrow. Olivia will have labs drawn, and an overall check by Dr. Radhi then the chicken pox vaccine her very last vaccination. This is yet another milestone in her journey. I know we are very blessed to be where we are. Olivia has done remarkably well post transplant, a few bumps here and there but no major issues. It is truly amazing to think that a child can have cancer then a bone marrow transplant and not be on any medications at all. It has been years now since Olivia has had to take anything. I was looking her over last night before her bath and the only visible signs are 3 small scars, two on her chest from the two different central line sites and then one on her leg from a skin biopsy they did to make sure she did not have leukemic lesions. Each day a miracle, each day a blessing.
Thanks for keeping Livee in your thoughts.
Monday, March 10, 2008 2:15 PM CDT
Just to pass on Olivia is doing great. We are all ready for Spring more time outside and sunshine. Next week Olivia will have her break from school. She will be attending a program throuh the Rec Department for 3 of the days and then a couple of days with Grandma. Livee will also have a dental appointment and labs at UIHC. She should be getting her chicken pox vaccine also, that will complete all of her re-immunization shots. Yipee Yahoo, let's hope she does not have any reaction to the shot. I am sure she will be fine. Sometimes the past four years don't really seem real, I know I am a different person. I don't look at anything the same as pre diagnosis.
Thanks for caring and checking on Livee.
Thursday, February 28, 2008 7:54 AM CST
~~~~~~~~~~~~~~~~~~~ Livee's Journey ~~~~~~~~~~~~~~~~~~~
On this day 4 years ago the life of a 4 1/2 year old changed forever. Olivia was diagnosed with AML Leukemia M5, this was devestating news to hear about your child. We were planning kindergarten roundup and getting ready to start school for the first time, however there was a different plan handed down to us. He had another path for us to follow, how do we do this? What do we do? There were so many unanswered questions and concerns. The complexity of cancer especially with a child, what does all of this mean? Somehow we found the strength and know how to make it through day by day hour by hour. Faith is the reason, faith was our strength and our hope. Hope survives and because of family, friends, and countless others that touched our lives Olivia has done so well. Each day a gift.
Now also marks 2 1/2 years since Livee's bone marrow transplant. God is good. He gave us a Miracle in Olivia's Dad. Where would we be without this special gift that He bestowed upon us.
Thank you for looking in on us. Bless all of you.
Thursday, February 7, 2008 12:14 AM CST
Did anyone see the Cedar Rapids Gazette yesterday? There is a picture of Olivia in the community section.
We are still talking about Dance Marathon and what wonderful people are involved with this event. The money all stays at the Childrens Hospital, for families now and for future families. Unfortunetly, the reality is everyday a new family will hear the news that their child has cancer. As they travel down this path the Dance Marathon family will help with emotional and financial support. I believe a crucial part of staying upbeat and postive. Too many children must face this beast. Please pray for these kids and their families.
Monday, February 4, 2008 10:04 AM CST
Add on note: If you want to go to www.desmoinesregister.com/video
Lindsay Arnold the exec director speaks about DM and then I am on there also.
I am still pumped up about the whole event. Again thank you dancers.
Monday, February 4, 2008 7:55 AM CST
Dance Marathon, totally rocks!!! This amazing group of college students reached there goal and even surpassed the 1 million dollar mark. That is incredible, the energy of power hour pumped up the entire dance floor the place was jammin!!! Wow, I wish you could all experience such an uplifting positive heartwarming event.
We want to thank our morale group #12, for all of their support and kindness. Erik Nylen our morale captain was awesome. Each group and individual works so hard for the kids. The on going chant FTK, FTK For The Kids was heard through out the event. The whole reason for Dance Marathon is the kids. All of the money stays right here at UIHC to support the children and families going throught cancer treatments and even after. I am proud to be a part of such a wonderful organization. U of I can be very proud of their DM students.
More later, I am working and need to run.
Thursday, January 24, 2008 7:59 AM CST
Did anyone notice? I finally had time to update pictures. Exciting right? We have been very busy with life as we know it. That is truly a wonderful thing. Trying to stay warm and comfortable through this cold cold spell.
Livee has been very healthy not any signs of anything, thank goodness. She loves to be outside of course right now just a bit nippy for that but when it warms a bit she and the neighbor boy will be out running around in the neighborhood. Just like we used to do as kids.
We are really looking forward to the Dance Marathon #14 next weekend. The dancers and morale groups work so hard to make all of this happen and it's all for the kids. We are proud to be associated with such a wonderful group of college students and all that they do. Rock on Dancers!!!!
See everyone there!!!
Friday, January 18, 2008 2:26 PM CST
I am ready for the 3 day weekend, how about you? It will be nice to spend time with Livee. Seems like we are always rushing here or there or just the usual evening routine does not leave a lot of time to just relax.
Livee started taking Tae Kwon Do just last week and seems to really enjoy it. It's neat because you work at your own pace moving toward the next level. She met a new friend that is her age and does not live far from us.
It has been so nice to not have any doctor appointments or really even think about the hospital. We don't go back until Spring break time in March. Yipee!! Yahoo!! Olivia is 2 1/2 years post transplant now. Each day a blessing and a gift.
Honestly not a minute goes by that I don't think about cancer in one way or another. Always a prayer for those in treatment or those that have lost a loved one and those that are in remission.
Thank you for checking in our boring web page. Boring is the best way to have it. Like we cancer parents say!!
Wednesday, January 9, 2008 1:17 PM CST
We are nearing Dance Marathon 2008!! The big dance is February 1st & 2nd. They do such an awesome job and provide so much for the kids. There is nothing like it, the excitement and positive energy flowing. This will be our 4th year attending. The best part is seeing all of the families. We are in a unique class a choosen club that we did not sign up for. Each family unique and special in their own way, a story to tell or just being there can tell an unspoken story. Thank you Dance Marathon!!!!
Livee is doing so well moving along swimmingly. I am always guarded and fearful of what might be but refuse to give in to those thoughts and focus on the positive. We just love our Livee, thanks for checking in.
Thursday, January 3, 2008 2:13 PM CST
Wow, Happy 2008!!!!!
Where did the time go? I just got back to work today after the long Holidays.
Livee is doing great ready to go back to school today. I know she missed her friends. We had a wonderful Chirstmas with family and friends. Every one made it home safe and sound after all of the inclement weather and such. Santa was real nice to Olivia this year.
I apologize for no update of pictures etc but I do not have a computer at home for now. Not really a priority at this point.
Thanks for checking in on Miss Livee.
Wednesday, December 19, 2007 3:36 PM CST
Confirmation, Olivia does not have chicken pox. So she did go to school today, although she would have rather stayed home. I think she will have plenty of time off, after today she won't return to school until January 3rd.
Livee is excited for Christmas and all of the fun.
Happy Holidays, and Merry Christmas to all of you!!!
Thank you for checking in on Livee, she is the reason for the page. As always, no news is good news and boring is just fine with us.
Tuesday, December 18, 2007 3:09 PM CST
Last week (Thursday) I received an email from the school that there was a case of chicken pox, a little boy in Liv's grade. I talked to Steve our PA he said just keep an eye out and watch her. So as luck would have it yesterday (Monday) I get a call from the school Livee has red spots on her face? Livee has not had the chicken pox vaccine and won't until March '08. She did not have any fever and her skin is clear on the rest of her body. Long story short, wait and see. Today she did not go to school just as precaution, Grandma and Grandpa are hanging out with her. If nothing develops she will return to school tomorrow, the last day before her Christmas break. I hope she does have them just to get them over with then she could skip the vaccination in March. Olivia is completely reimmunized with the exception of the MMR and the Pox vaccines. That is a very good thing to have behind her. Olivia is now 28 months post-transplant. We are so fotunate and blessed.
As we approach Christmas keep those in mind that are fighting right now this cancer monster. We need to pray for these families and also those that have already lost a loved one. Cancer does not care if it's a Holiday or a Birthday or anyday, it is relentless.
Thursday, December 6, 2007 1:11 PM CST
A quick note to say Hello!!
Olivia is doing great, knock on wood but no coughs, cold or anything of that nature. Thank goodness. Everyday after school she wants to run over to her friend Max's house and play outside with him. I love it, I think being outside is the best medicine for any kid. We are all healthy and ready for a little break from work and school. We don't have any set plans for over the Holidays but will be traveling some.
Hate to cut this short but I am working and must go.
I do plan to revamp Livee's page at some point.
Thanks for looking in.
Thursday, November 29, 2007 3:01 PM CST
Ready for Santa?
Now that Thanksgiving is behind us we can focus on Christmas. I am mentally not quite there yet, maybe when I see some snow it will change.
Livee has numerous items that she has mentioned for her wish list. We will be talking with Santa to see what he thinks she should have.
Last night we were looking at all of the pictures she had taken with Santa and she said, "Mom, I am getting too old for this", she might be in the know? I told her that Santa would miss her if she didn't come out to see him. I need this years picture to add to my display. You're only young once, and these pictures are priceless.
Remember the Holidays are not always joyous for everyone, it can be a difficult time. Especially one family I am thinking about the Ruley's. Their son Doug passed a year ago on December 3rd. Pray for their family for strength and courage to help get them through.
Thank you for thinking of Olivia. Please sign in and say Hello.
Monday, November 26, 2007 7:41 AM CST
Just a quick update finally. Olivia's lab work and echo were picture perfect. All of her counts are in order and her heart is strong and healthy. So much to be thankful for. I hope you all enjoyed a safe and happy weekend. It will take a little adjusting time this morning back to reality.
We had a nice uneventful Thanksgiving with family.
Thank you for looking in and your continued support.
Tuesday, November 20, 2007 4:08 PM CST
~~~~~~~~Happy Thanksgiving Everyone~~~~~~~~~
Everyday be thankful for something big or small. Hug your children tell them how special they really are. You never know when your world can change in an instant. When I reflect back on the last couple of years it's unimaginable, but yet here we are with our healthy 8 year old Olivia. We are so thankful for each day. As the Holidays approach pray for those families that are just newly diagnosed or that have a loved one that is no longer here. Cancer is ruthless, relentless, and plain just does not care.
Olivia will have labs tomorrow and an echocardiogram, if you could squeeze in a little prayer we would be grateful.
Thanks for looking in, God Bless.
Wednesday, November 14, 2007 12:25 AM CST
We successfully talked to about 90 Dance Marathon people last night. There were 3 groups a pretty full house. Hopefully we conveyed the message as to why they raise the money and how important it is to the families. Each dollar raised helps a family to get through the cancer hell. Don't ever minimize the fact that one person can make a difference in some way or another.
Thanks for looking in on us, I am working so I need to close.
Monday, November 12, 2007 7:54 AM CST
We had a fabulous weekend helping Grandpa celebrate his birthday. Livee had fun with all of her cousins and the rest of the family.
Last week a Dance Marathon rep contacted us to give a tour/talk about what Dance Marathon does for families and how they provide support etc for the families. We will be going over there on Tuesday night. Tomorrow Livee does not have school so we have errands including a couple of appoinments for me and this and that.
I need to run work is starting. Thanks for checking in.
Friday, November 9, 2007 2:24 PM CST
Olivia had nothing but a positive report from her teacher conference yesterday. We could not be more proud of her especially considering the fact she missed kindergarten and first grade. We are very fortunate that even with the intense chemo and radiation she does not seem to have any lasting effects. We have been so blessed this way, we are thankful each day.
We are on our way to celebrate Grandpa's 80th birthday surprise party tomorrow. He is so awesome a wonderful Dad and Grandpa. Happy Birthday to my Dad!!!
Thanks for checking in Livee is doing just fine.
Friday, October 26, 2007 12:17 AM CDT
Here it is Friday already, Livee has been doing just fine. A little different than a week ago when her fever spiked. Now we get ready for the weekend and then Halloween. I am looking forward to doing whatever comes along maybe go over to the Hawkeye game for a while. Livee has a play date so we will have to see what transpires.
Thanks for looking in on us and have a great weekend.
Tuesday, October 23, 2007 2:35 PM CDT
We finally made it home last evening around 6:30 pm. Livee is doing great of course now we have the adjustment of back to the real world. No more getting everything under the sun at your beck and call. She honestly did not want to leave, imagine that after being the queen and spoiled spoiled over the weekend.
Livee will be on an oral antibiotic until Sunday 2 pills 3x a day. Today she is back at school with no limitations, however I did write a note for gym because the doctors did say trauma to the area on her arm would probably not be good. I think they want us back at UIHC on Thursday for a follow up. I really don't think it is necessary unless I would see some dramatic change. Today the kids had their school pictures taken. I wanted Livee to wear a certain top but she thought otherwise, no biggie I let her wear the one she thought best. Generally 8 year olds know everything, right? Pick your battles as they say.
Thanks for looking in on Livs. I have regrouped now and come down from this scare of a lifetime. I know it will be like this forever, the fear is just part of our lives now. I just have to realize that from time to time Livee will get the usual kid things but in her circumstance we must take extra pre-cautions and it is always better to be on the safe side.
Monday, October 22, 2007 2:27 PM CDT
As of right now were are still at UIHC but we just received Livee's discharge papers. She has been fever free since Saturday morning and the area of concern on her arm looks 10x's better. We are in the toyroom playing Clue as Livee receives her last round of antibiotics at the same time. Once that is done we are free to go. Now this so ironic but yesterday our friend Cameron's Mom (Marci)called me to say they were being admitted because Cameron had a fever. Those two will do anything to be together. They are just two rooms away. I guess if you have to in here it's pretty cool to be here with friends. Cameron and Livee are so much alike this will be just one more chapter of their future book deal.
Thanks for all of the prayers for Livee. Please say some for Cameron as well. These kids are so amazing, stronger than any super hero ever. Everything in stride for them, the conversations are sad but comical as well for example "My IV was over here but that didn't work so they had to put it over here, this finger poke hurt really bad but then the next one didn't", they help each other through the bad and the good.
Tonight we have a busy night getting settled back at home with a shower and reading her school has an auction type thing but they may not happen. Tomorrow Livee has school pictures and situated back into the mode.
I will close for now and update soon. I know Livee has a follow up appoinment on Thurs.
I left this morning before 6 am so I could get out of the ramp without paying an arm and a leg. (shhhhhhh) Then I had an appointment that was not too much fun but I made it through. (Girl Stuff) Talk to you all soon.
Saturday, October 20, 2007 9:03 AM CDT
Good morning to all,
Olivia and I are in the toy room waiting for her breakfast to arrive. The synopsis is we will be here at least through tomorrow Sunday and possibly Monday. Her arm is looking better but still red and puffy due to the vaccine. Nothing back on the culture yet but her counts are within the normal range. This is not at all cancer related, that is definitely the best news we could hear. Just a reaction to the shot, Dr DiPaulo was just in and said this is nothing but since Livee is in a different catagory they of course want to take extra pre-caution.
It is so strange to be here but I know this where we should be. I need to get going for now but will update soon.
Thanks for checking in.
Friday, October 19, 2007 7:37 PM CDT
Our day changed rather quickly, on my way home to leave for the Celebration of Life I noticed a call on my cell phone. It was David telling me that he had to pick up Olivia from school. She had a fever of 104, and the sight where she had her pnumava (shot) was red and puffy. He called over to UIHC they said to bring her in. I met Livee and Dave over here, she already had tylenol in the works and they were putting in an IV to start some anitibiotics. The good news is her fever subsided right away. She had a nap and is doing so much better with the exception of her arm being rather sore. They drew labs and cultured her blood to be sure that is all that is going on. We have not heard anything back so I am assuming that is good news. I was so scared on the way over here. The memories came flooding back the countless trips we had made across town under these same circumstances, that fear will never go away. It's been 2 years since we have been in the hospital, like we say to the staff it's great to see you but not here. I can't beleive all of the familiar faces, that's good for Livee. She is so comfortable here that none of this even fazes her. She of course loves the flat screen TV and playstation in our room. We are in room #3334 on 3JCE. I don't remember our phone number. We hopefully will be getting released tomorrow probably with an oral antibiotic of some kind. So please say a little prayer for Livee in hopes that the fever is just from the shot and that we get out of here tomorrow.
Thanks for checking in, I will update soon.
Friday, October 19, 2007 11:45 AM CDT
Today we will attend the "Celebration of Life" Iowa Marrow/Donor reunion. David will be one of the speakers, I am so glad that he will get to shine and tell his story. Livee and I will of course be attending as well. It will be nice to meet other families that have experienced transplant and see hear perspective their stories. We are so fortunate to be part of this club. Miracles can happen!!
Please remember others as they still battle this monster and especially those that have lost a loved one. Hope survives and someday I believe a Cure will happen.
Thanks for checking in on Livee, she did have a slight temp from her flu shot but nothing to worry about.
Wednesday, October 17, 2007 11:36 AM CDT
I apologize for not posting earlier. Thanks for stopping by. This afternoon Livee and I are going to UIHC so she can receive a flu shot, they will also be giving her another shot. I believe she will have lab work done so they can see where her numbers are pre-shot and then compare post-shot in November.
I have to cut this short I am working and need go right now.
Livee is doing great.
Thursday, September 27, 2007 1:48 PM CDT
Nothing to report, what a great feeling. Livee is doing great just being your typical 8 year old. Last night after school she was having so much fun riding her bike with the neighbor Max and another little gal from across the street, Macy. I just enjoyed watching them laugh and play, it made my night. The simplest of things can bring such joy. I am just so thankful to see her happy and healthy. Perspective has a whole new meaning, so forgive me if I seem a little weird at times. Sometimes I feel like I should wear a button that says "I am a cancer parent that's why I act so weird". Only a parent of a child that has/had cancer can understand, the perpetual roller coaster ride. Thanks for checking in, we will see some of you in a couple of weeks at Bloomsbury Farm.
Tuesday, September 18, 2007 7:53 AM CDT
Sorry for the delay just a couple of things to mention.
Thank you to all of the Dance Marathon group for a wonderful family picnic. The day was perfect and the kids had such a good time. WAY TO GO DM !!!!!!!
Livee had a wonderful birthday last week, her grandparents came up and she of course was spoiled by both. Grandma made two pumpkin pies just for Livee!!! Grandma's aren't they the best.
Thanks for checking in on Livee!!!
See some of you at Bloomsbury Farm.
Wednesday, September 12, 2007 11:30 AM CDT
~~~~~~~~~~~~~HAPPY 8TH BIRTHDAY MISS LIVEE~~~~~~~~~~~~~~~~~
~~~~~~~HAPPY BIRTHDAY TO YOU, NOW 8 AND DOING GREAT~~~~~~~
Friday, September 7, 2007 12:22 AM CDT
A busy weekend ahead. On Saturday we will be cheering on the Hawkeyes (if they have enough players left after legal troubles) Ha!!! It should be fun they have a pre-game tailgate party for the kids and families. All compliments of Make-A-Wish their annual beginning of the season game.
On Sunday Livee is celebrating her upcoming birthday with some of her girlfriends. They will be making customized flip-flops and bracelets. I hope to have the activities outside. Wednesday will be Olivia's 8th birthday!!!! We will have our own celebration that night.
Thanks for checking in on Livee!!!!
Wednesday, September 5, 2007 11:47 AM CDT
~~~~~~~SEPTEMBER IS CHILDHOOD CANCER AWARENESS MONTH~~~~~~~
This video message from youtube says it all, please visit.
www.youtube.com/watch?v=AGS4yE5v9rM
Friday, August 31, 2007 2:45 PM CDT
We are looking forward to the long weekend!! Maybe catch up on a few things. My back is doing much better although still no lifting over 20 pounds. Livee is excited because we will be visiting Grandma and Grandpa at some point.
Tuesday I attended the Livestrong Forum in Cedar Rapids with fellow cancer mom Marci!! It's interesting to hear the candidates in person. My hope is that the next President in office will make the effort to move cancer research in a forward motion and allocate funding to support it. Research means cure!!
We were honored this week by a group of local ladies. Each year they have an annual J.U.G.S. (Just Us Girls) golf tournament to support cancer awareness and reasearch. They choose us to be their special family, what that means is they come into our home and do a complete cleaning from top to bottom and then cook us a gourmet meal of our choice. They also gave a donation to Livee and our family to use however we want. Wow, what a wonderful surprise from this generous group. Thank you to everyone who spent time volunteering or helping in anyway with this event. Your generosity and kindness are unmatched.
The support we have had through this journey never ceases to amaze me. Emotionally it renews the spirit and reminds us of what is really important.
Thanks to everyone and have a safe and fun weekend.
Thursday, August 23, 2007 8:00 AM CDT
Hello- Anyone out there?
Good news, good news!!!! The results are back from Livee's last lab draw including her DNA results. It is conclusive that all shows male markers in the marrow and DNA. This is so wonderful, this is what we want. Dads marrow continues to be in charge and Livee's old marrow is gone. Bye bye you're outta here!!!!
Before transplant Dave and Livee made the analysis that his marrow and her marrow were in a boxing match and Dads would take over and beat out hers, the old stuff. I remember her asking me "Mom, after transplant will I be a boy?" when you think about that it is a perfectly logical question since her DNA is male. She would have been 5 1/2 at the time. I told her she would always be my girl.
Livee is loving 3rd grade, she has a wonderful teacher. She is enthusiastic about going in the mornings, yipee that leaves more fun time in the morning instead of me harping for her to get moving. I realize it's the first week but I am optimistic that she will not go back to her old ways. Livee is growing up, huh!
I have been nursing some pinched nerves in my back so I am restricted from lifting for a couple of weeks. That is hard to do you don't realize so many things are 20 pounds or more. I have been minding and have not broken the rules.
Thanks for checking in.
Friday, August 17, 2007 3:31 PM CDT
~~~~~~~~~~~~ LIVEE AND DAD ~~~~~~~~~~~~
Tommorow will be 2 years since Olivia received her special gift from her Dad.
Together forever, they share such a unique bond something that very few can. The chances are so rare for a parent to be a perfect match for their child and yet he was.
Wow, God is good.
Tomorrow will be a true celebration !!!!
~~~~~~~~~ Our hope, her miracle ! ~~~~~~~~~
Monday, August 13, 2007 7:57 AM CDT
Quickly because I am working. Just to let everyone know that test results were all clear. I did not hear back until Friday the final results. Also my computer at home punked out on me. So Praise God all is well!!!! More later and thanks for looking in.
Thursday, August 9, 2007 8:20 PM CDT
Livee is doing fine after her procedure. She was so brave and strong to no surprise. After so many of these she knows what she needs to do to get herself through. The results from her labs (blood work)looked good. We won't know until tomorrow the results from her spinal and marrow. I feel confident that all will be fine. The waiting is difficult but I try not to worry.
After her clinic visit today we went for lunch and then to Build-A-Bear workshop. One of the pediatric surgeons (Dr.Meehan) provides this for the kids. What a nice gesture to his patients and families. It is not every day you find a Doctor with such compassion and so in tune with the patients.
We are getting ready to call it a day. Thanks for checking in, I will post again tomorrow at some point. Tomorrow I am volunteering at an event for the American Cancer Society.
Tuesday, August 7, 2007 12:20 AM CDT
As Thursday approaches I am starting to feel the usual stress and nervousness as I do before each of Olivia's appointments. Olivia will have a spinal/marrow aspirate along with labs. They will follow up to make sure her DNA still indicates male markers. For her that is what we want to see. I am not sure if she will be getting any more immunizations or not. Minor detail I guess, of course my main focus is that she is clear and free from cancer like she has been. We are approaching the 2 year mark from her miracle transplant day August 18, 2005. We are so grateful and thankful to have come this far. Miracles happen we hope they continue to happen. Livee has so much to offer at her young age, she has taught me many lessons. We are so proud of her as she gets ready to start the 3rd grade. Please say a little extra prayer for her. Also keep our friend Cameron in mind with prayer, he is having a scan done tomorrow. The power of prayer in numbers can achieve wonders. Thanks for looking in.
Sunday, July 22, 2007 10:59 AM CDT
Here we are the middle of July already. We have been enjoying the summer mainly just hanging around home. After dealing with cancer and all of the trials and stress just doing nothing is just fine.
Livee is playing one of her PS2 games, yesterday she played in the pool with her friend Maddy. Those two are so much alike, they have their moments though. They are spoiled and have attitudes, that can pose a challenge. I do have a hard time telling Livee no, a residual from days and days in the hospital and having cancer. I am a softy but also realize she can't always have her way etc... I am getting better. As long as I don't think about everything that she has been through and visualize some of the not so fun days. It makes it easier.
We made it past July 7th, that date 2 years ago is when we found out that Livee relapsed. Certain dates will always stick in my head. I thank God each day for Livee and know we were given a miracle and Livee a chance at life.
Please continue prayers for those that have lost a child to cancer, each day can be a challenge without their loved one.
Monday, July 9, 2007 2:45 PM CDT
Hi nothing new to report. I hope everyone had a wonderful 4th of July. We enjoyed fireworks here in Iowa City and spending time in the pool. Livee is now her usual summer brown color, she is such an outdoor girl. We always use sunscreen and try to stay out of the sun during peak hours. I am thankful that she tans instead of burning. Livee is at Hoover Elementary this week enjoying their Summer program. We are planning a pool party later this month party with another family we know from UIHC. The Summer is getting away too quick.
I need to cut this off but we appreciate all of you checking in.
Monday, July 2, 2007 11:26 AM CDT
Thank you Dance Marathon for a wonderful day at Adventureland. The weather was perfect and all of help make for an even more perfect day. You deserve a pat on the back. It's all for the kids, they deserve to be treated like kings and queens and without you it would not be possible. Again thank you!!!
Thanks for checking in more later!!!
Sunday, June 24, 2007 10:52 AM CDT
Livee is doing great she seems to be fine active and full of spunk like normal. Today she is going to a birthday party of a school mate. Last week she was at Hoover for their many activities and this week she will be with her friend Maddy and her Mother. This next Saturday we go to Adventureland with the Dancer Marathon group. We are pretty excited about that.
Work has been full force ahead but is starting to slow down now until Fall. I prefer to be busy busy but the nature of our business does no provide a consistent schedule.
As always thank you for looking in on Olivia. As we say no news is good news just the way we like it.
Monday, June 18, 2007 12:23 AM CDT
Livee has returned from camp safe and sound. She chattered most of the way home until she had a little nap. Two things happened that are concerning but I will try to maintain positive thoughts. Livee had a fever on Thursday and then on the way home she had a nose bleed? She seems to be acting fine and everything checks out ok from the outside. So I am keeping a close and watchful eye on her. The worry and fears come right back, time does not take that away. I have no reason to believe things are not ok.
She started at Hoover today and was worried that she would not know anyone but she did and all is well.
I have to cut this short I am working.
Thanks for checking in and say a prayer for all of these cancer kids. They are the best.
Tuesday, June 12, 2007 7:32 AM CDT
Livee is at camp now for the week she was apprehensive but I know she will do fine. They have such a wonderful facility and so many activites planned the kids don't have time to miss us. I am sure it is much harder on the parents then on the kids. I get to email her each day too.
Thanks for checking in remember no news is good news so if I don't post for a while that is a good thing.
Friday, June 8, 2007 12:05 AM CDT
Are you ready campers? Livee goes to camp on Sunday, we take her to be there by 2pm. She is so excited to see everyone and have a week of fun.
The Summer is off to a good a start Livee has been with her friend Maddy this week and will be off and on throughout the rest of the Summer. Also she will take part in the Summer program at Hoover Elementary for another 4 weeks. Their program is filled with activities and different events for the kids to enjoy.
Hey Mariah, we will return on Saturday after camp so I am sure Livee would love to get together.
Thanks for checking in on us, we appreciate the support.
Thursday, May 24, 2007 12:40 AM CDT
Big news from Livee, she learned to ride her bike without the training wheels on Tuesday night. She was so proud of herself, she said to me later that night "no big deal Mom". She sort of missed the window of opportunity being in and out of the hospital and then she was just plain scared about it. So now we can go on bike rides together. Must go, thanks for checking in on Livee. She is doing just great.
Friday, May 18, 2007 7:48 AM CDT
Hi everyone- awesome news from yesterday. Olivia had an excellent report with all numbers being in check. Her white count is the best it has been in months at 6.8 or so, she had been a bit on the low side for quite sometime. Really as long as a person is condsidered in the normal range that's all that matters. Not to high not to low is perfect. We don't go back now until August which will be 2 years post transplant for Livee. Yipee, Yahoo!!! I still get rather nervous each appointment we have, the memories come back and flow through my head none stop. I am just so thankful to have Livee and know what a miracle she is.
Thank all of you for being there and supporting us through from beginning until now.
Each journey has a path we pray with a cure that someday the path and journey can have a happy ending for everyone. Please say a prayer of comfort for those families that have lost a loved one to cancer.
Tuesday, May 15, 2007 12:27 AM CDT
Mother's Day was nice, nothing special planned just spending time with family and especially Livee. It would have been 2 years ago that Dave planted a garden for Livee and Me on Mothers Day. This year he extended with yet another beautiful flower garden. When I look out my window I can see the new beginnings, a renewal for everyone and everything. We are blessed beyond words to have Livee with us and even though sometimes we have our moments I never forget just how lucky I am. She is one awesome girl growing and changing with time. Please say a little extra prayer for Livs on Thursday she will have labs done at UIHC. Just routine follow-up, it has been wonderful to not be at any appointments etc...
Thanks for checking in on us.
Monday, April 30, 2007 4:14 PM CDT
Livee says "Thank you Dancers"!! The event at Planet X was very enjoyable for everyone. The kids had such a good time. The best part for me was watching the kids and having a chance to catch up with the adults.
One of these days I promise to take some time with this web page and do some updates. I know the pictures are outdated and all of that. We are just glad you continue to check in on Livees page, it means so much. We are not slated to go to UIHC until May 17th, just for lab work. We are so thankful that we just get to visit there every now and then. Livee has just done so well and for that we can't be thankful enough. Thanks for looking in!
Wednesday, April 25, 2007 4:10 PM CDT
Wow, have I been out of touch here, well as far as the web page and that my friends is a very good thing. We have just been living life like we should. Yipee!! Yipee!!
I have been working as much as possible any overtime that comes my way I try to work. Too bad we need money to survive. I could think of many other activities I would rather be enjoying.
Livee has her fun night at school this Friday night and then a dance marathon event on Sunday. The kids will get to enjoy going to Plant X in Cedar Rapids. I think she will be inviting one of her school friends to go along.
We don't go back to UIHC until May sometime just for labs. I can't tell you how awesome it is to not be there or even think about it. Thanks for checking in on Livee.
Monday, April 9, 2007 12:23 AM CDT
A wonderful Easter, this weekend was busy with family. On Saturday Olivia got to see her cousins Matthew and Morgan from South Carolina. Their family made a surprise visit back here to see everyone before they move to Hawaii in early Summer. Dwight (Dave's brother) and wife Jeanne will be making another journey with Dwights army career. He is a Doctor with the Army a vascular surgeon to be more precise. We all met at Daves sisters house in Central City and had a nice day with his family.
Then on Sunday some of my family came over to our house for the day. What a difference a year makes, last year we were cautious and overly protective of Livees health as she approached her 6 month mark post transplant. And now here we are "Praise God" each and every day.
Thanks for checking in, I am working must cut short.
Sunday, April 1, 2007 7:43 AM CDT
I thought I should say Hi to everyone checking in. The good news is there is nothing to report. Livee is doing great! She and I sat in the garage yesterday afternoon and watched the storm, it was kind of neat. Olivia had spent the night at a girlfriends on Friday night. I have been working this weekend including today, a project needs to be done so here we are. Not a very fun weekend but we are looking forward to next with Easter and family. We may color eggs later today it just depends on the weather etc...
Well it is time to start my exciting day at work, just until noon so that is not so bad.
Thanks for checking in, I think the next time Livee has labs will be in May.
Monday, March 19, 2007 7:51 AM CDT
Thanks for checking in today. I just wanted to say I am so happy, reason is Livee has her hair up in a pony tail for the first time in years. I know seems trivial but for me it is pretty special. She has it pulled back and then a hair band around the front, just like the big girls. Anyway I just wanted to share my little moment of joy.
We have been visiting Livs cousin in the hospital, she is recovering from hip surgery and may be released today or tomorrow.
I must get to work now. Keep prayers for all of our cancer families. The fight never ends but hope prevails.
Wednesday, March 14, 2007 12:24 AM CDT
Just a quick note to let everyone know Livee is doing fine. She still has a cough left over from her cold but seems to fine otherwise.
We visited her cousin last night at UIHC, she had hip surgery and will be there until next week. Livee and her other cousin played pool in the teen room while we were there. Also Olivia saw her friend "Bri" a camp counselor, she thought that was pretty neat. Livs is enjoying her Spring Break.
Thanks for checking in, more later.
Wednesday, March 7, 2007 12:07 AM CST
Livee is on the mend. She missed school Monday and Tuesday. Today is Daves birthday, so Livee is helping me plan for it making a card and gift and helping me shop. She keeps saying I have three things to do today, go to school, Daddy's birthday and swim lessons.
I am so glad Livee ended up with just an everyday kid type virus, I was worried since she had the fever. I think I can relax now.
We have been thinking of Cameron and wishing him only success with his stem cell transplant tomorrow. This can be the beginning of the end, the end of cancer and the beginning of a rejuvinated immune system ready to tackle the world. We pray for him to continue to get better and feel 100% soon.
Thanks for checking in on Livee, we know you are out there.
Monday, March 5, 2007 10:34 AM CST
Livee has been sick with a fever and cold. This all started on Saturday she was coughing and then the fever started, she continued with the fever until yet this morning. Hopefully she is on the mend, from talking with other parents this sounds like what their kids have had. I am watching her closely though. Big thing is making sure she is hydrated and eating. We have skated through without illness until now. Anytime she is sick the memories come flooding back but I must keep in mind she is now 19 months post transplant and when she gets ill to not panic. Keep things in perspective. I think she will be just fine, I must close as I am leaving for work. Grandma is coming to stay with Olivia.
Thanks for checking in.
Wednesday, February 28, 2007 8:49 PM CST
"3 Years Ago"
I remember vividly a sweet little girl having her first swim lesson just around the corner at Mercer Park Pool. Here she was her long long wavy hair floating a top the water as she tryed her best to please the instructor with every move. Ironically, we just got home tonight from Mercer Park only this time the little girl has shorter curly hair floating a top that water. It was 3 years ago today that little girl was told that she had AML Leukemia. That's right it was 3 years ago today that we were given the news and thrown into the world of cancer. The journey has been tough but look at Olivia now, she is and will be a "SURVIVOR". The bravery, courage, strength, and determination of this little person is unmatched. She continues to inspire and amaze us each day. God granted us a miracle, we thank Him everyday.
Thank you for friendship, support, and continued prayers as we travel this journey. It's all for Livee, keeping her strong, healthy and cancer free.
Saturday, February 17, 2007 9:28 PM CST
Today we were invited to a sledding party in Muscatine. Olivia and I joined Cameron Christiansen and his family along with some fellow Dance Marathoners. It was fun fun, thank you everyone. The drive over and back was slow due to drifting snow on the highway. We are home safe,sound and warm. We continue to pray for Cameron as he prepares for his stem cell transplant in the near future. We pray for his family as they face yet another challenge.
Today a comment was made that Livee and Cameron will marry someday now that would be quite the story. They are like two peas in a pod, the experiences they have the stories they could tell.
Last night Livee did not get her McDonalds instead she fell asleep. I know she was worn out from yesterdays procedure. Tonight we are getting ready to turn in as well.
Thanks for checking in again.
Friday, February 16, 2007 8:43 PM CST
~~~GOOD NEWS ~~~ GOOD NEWS ~~~ RESULTS CONCLUDE ALL CLEAR!!
We are so happy, this is officially 18 months post transplant for Olivia. God has blessed us in so many ways.
Livee was so brave and strong for her procedure. She decided she wanted to have everything done in the clinic. This is new for her, usually we go up to Floor #5 and she is put out. She said, Mom this time I want to have everything in the clinic so after much deciphering if this was best and what would work for her we decided to do it. So Livee had an IV with morphine (loopy med) and versed (forgetful med) she did real well. She cryed just a little when they did the extract of spinal and marrow samples. Who wouldn't this is a very painful procedure. I was so proud of her. She did end up getting sick a few times today just from no food and the med combo. She is doing fine now and had a nice nap. So now she is hungary and wants McDonalds, so it looks like Dad might be making a trip for her. She deserves a treat even if it is late. What parents do for their kids. (especially those that have been through this) We have so much to celebrate today. We don't go back to clinic for 3 months for a lab check only.
It was nice to see Kathy Whiteside today and Sue Benton, it has been a long time. No offense but from our angle we will keep it that way.
Thanks for looking in on Livee. The many prayers and continued support keep us going.
Tuesday, February 13, 2007 8:32 PM CST
Livee and I spent today together at home. School was canceled so it was fun to hang out and play. She has her valentines ready for tomorrow to hand out to the kids. It was one year ago tomorrow that Olivia had her first official visit to her class room to join in a Valentines Party. Tomorrow night Livee will have a private swimming lesson and then for the next few weeks. She really likes to swim but her lessons were cut short 3 years ago by her diagnosis. It feels so good to be in the place we are now. But the reminders are not far, for instance this Friday Livee has a spinal/marrow procedure. She is not scheduled until 4pm which means no food most of the day and keeping her busy busy. They are also including a couple more of her immunizations, which they will give when she is out.
Please keep Livee in your prayers as we approach this day. The fear is there but my game face will be ready and we will get through. Thank you for checking in.
Wednesday, February 7, 2007 3:01 PM CST
My bad, my bad, it was pointed out to me that I made a mistake on the total for Dance Marathon. It was not million but thousands instead. Thanks for pointing that out to me.
I guess it does not pay to hurry, but again for now I have to run. Sorry for the mistake.
Sunday, February 4, 2007 12:55 AM CST
~~~~~~~~~~~~~DANCERS YOU SHOULD BE PROUD~~~~~~~~~~~~~~~~~~~~
The 2007 Dance Marathon has come to a close, but will never end. These incredible students did the unimaginable and not only surpassed their goal of $750,000 but raised an unbelievable amount of $880,903,013. We are very proud to be part of this wonderful event.
On behalf of Olivia and all of her family we want to say "Thank You Dancers". Imagine what all of the money can accomplish by helping families at UIHC. Each and every day a new family is given the devestating news that their child has cancer. Even though the news is awful the experience and journey does not have to be partly because of the efforts of Dance Marathon. The doom and gloom of hospital stays are much more bearable because of games, books, videos, massages, gas and phone cards, beds, the whole bone marrow unit and so much more all because of Dance Marathon. This event is huge, I wish all of you could experience it. So I guess if you really want a cause to donate to this would be a good choice. I have their web page listed.
I promise to update Livees page with some new pictures of DM. It has been way to long since I have updated.
The other thing I want to mention is next Sunday at the Riverside Casino and Golf Resort they are having the 1st Anuual Chili Cookoff, the event starts at 1pm - 5pm all proceeds benefit the Leukemia & Lymphoma Society. It should be a lot of fun and a good way to get warm on a chili day!!! Ha !! Hope to see you there.
Thursday, February 1, 2007 10:20 PM CST
Get ready for Dance Marathon 2007, we are so excited. Our Morale group leader Sarah brought over the T-shirts that we had designed, a spin off from Olivia's Light the Night T-shirt in 2005. We changed it up a bit and added some things too. They look awesome, thank you morale group #37 we can't wait to see all of you with your shirts on Saturday. We should be arriving at DM sometime around 5:30 Friday. Olivia wants to skip school so she can come over early. I said not going to happen little lady. She was so cute tonight, when Sarah was here Livee showed her all of her things and explained in great detail about this one stuffed lion that I had when I was a little girl. She proceeded to tell Sarah about the lions neck and tail being broken and the whole story behind the lion. Here I thought Olivia never listened to me but I guess she was. Earlier tonight Livee and I went to my hair salon so my gal Ashley could put Livee's hair back for her. She washed it then styled it with some twists pulled back away from her face. It looks real cute, I thought maybe by having her hair done I would plant a seed in her head that hey this is really cool to have my hair done and out of my face. As you probably heard on the radio interview Livee does not like to comb her hair or have anyone comb it. Reminds of the days before diagnosis when Livee's hair was down the middle of her back and we would go round and round about combing it. Right Patti?
Anyway thanks for checking in on Livee. We will see all of you dancers and families tomorrow night.
Wednesday, January 31, 2007 7:59 PM CST
We are home relaxing after going to UIHC for our radio interview for the Children's Miracle Network/Dance Marathon. It went really well I think although Livee opted not to talk on air until the interview was over then she and another little girl read off the number to call.
So look out Dance Marathon we are ready to have some fun. Morale group #37 rocks, thanks for supporting Olivia and being so wonderful. I can't believe it is here already.
Livee is sleeping right now which is good for her to finally get a long nights rest. She needs to catch up every now and then. She is like the energizer bunny and will go and go and go. So I need to run for now and get some things done. Thanks for checking in and I will update soon.
Sunday, January 28, 2007 8:43 AM CST
Ok everyone, I have been busy busy and not updated in a while. For that I apologize and will try to do better. The good thing is no news is good news which means intermittent updates are good news.
I do have some very positive news to report, we received Olivia's results from her last lab tests they indicate that she have 100 % donor marrow. This is awesome news, Dads marrow continues to do it's job and provide what it should for Olivia. On another note she has recently had a cold and seems to be rebounding like she should. It's weird but if she gets something it is best to know that yes in fact she has a cold and not just a cough for no reason. If it is associated with an actual illness (cold) that is better and less worry. Each time it takes you back to original diagnosis. The fear will always be there.
Moving on, only one week until Dance Marathon 2007. It should be fun~fun~fun. Livee's dance group #37 has made up T-shirts using the same logo that we used for Light the Night in 2005. The butterfly design but they have added more info on the back. We are looking forward to seeing all of you there and of course getting to see families that we have not seen for a while too.
Prior to the event there is a radiothon being held at UIHC, I will be speaking on 100.7 The Fox @ 5:00pm Wednesday, this is all in affliation with Dance Marathon. A great intro and pre Dance event. Last year the radiothon was very successful and helped to raise even more money for the kids. So if you are so inclined please listen in.
Another event to announce is on Sunday February 11th The Leukemia & Lymphoma Society 1st annual "Chili Cookoff" @ The Riverside Casino, the event starts at 1pm until 5pm. All proceeds go directly to the Society, so come on down and join in the fun.
Thanks for checking in on Livee!! More later.
Thursday, January 11, 2007 3:43 PM CST
Finally a chance to update for you. All is well, Olivia's lab results were fine. They did draw a couple of viles to check her DNA. I did not know they were doing that but it was no problem. She is such a trooper and just goes with the flow of all of it. These kids can teach all of us a thing or two. We did accomplish a couple of things while at UIHC. We have our pre-op visit out of the way for February's procedure and the paper work is started. That means less time off work for me later. Anyway all is well.
Thanks for checking in on Livee.
Wednesday, January 10, 2007 3:29 PM CST
Livee will have routine labs done tomorrow. Say an extra prayer that all is well. It still scares me each time, we are never out of the woods but have come so far. I thank God everyday for Olivia.
She is such a 7 year old, she knows everything and has an answer for everything too. I know I let her get away with way to much. I am trying to do better, it only benefits her in the long run. I think most cancer parents do the same thing. Give them what they want they deserve it.
I wanted to let everyone know that if you are interested I can still get you an Angels calendar from the Leukemia and Lymphoma Society. They are $12.99 each and pretty awesome. The best part all proceeds go to the Society. If interested just let me know.
We are less than one month away from Dance Marathon 2007. It should be fun, we hope to see many familiar faces in the crowd. Please forgive me if I don't remember each of you, as you know there are hunderds of you to remember.
Signing off, thanks for looking in on Livee.
Friday, January 5, 2007 9:51 AM CST
Thanks for checking in with us. Livee is doing great, we are all getting back to reality after the long Holiday break.
Livee will have labs next Thursday the 11th just regular blood count check. We are pumping up for Dance Marathon which will be held February 2nd & 3rd. Our morale group is #37 (you all rock) says Livee!! It should be an awesome time.
I gotta run, at work. Talk soon.
Wednesday, December 27, 2006 1:10 PM CST
Thanks for checking in, Olivia is doing great. She has been playing with all of her new things. Yesterday she got to hang out with the neighbor boys that was after we visited my workplace to deliver a gift. Today we are picking up her cousin Tori so she can spend the night. Tomorrow we take Livees dog "Chocolate" for a day at the spa, just kidding hair and nails trimmed then Chocolate will visit the vet for her shots. She is way overdue on those. It would be so nice to never have to work again just to get all of these things done. I have been putting a few of the decorations away while I have time. We will leave the tree up for a while along with some of my favorite things. I have framed pictures of Livee with Santa from each year, I enjoy looking at those. She has changed and come so far since last year, it is amazing. We are so blessed and our gift continues. We are looking forward to another great year in 2007!!!
Please keep Cameron in your prayers he is battling a fever and some infection. Just another bump in the road. Hope he can move soon forward and have his stem cell transplant soon. Pray for healing and better days ahead.
Saturday, December 23, 2006 5:41 PM CST
HAPPY HOLIDAYS TO ALL OF YOU !!!!!!!!!
We want to wish all of you a safe and wonderful Christmas.
Livee's appointment on Thursday went well, she ended up having 3 immunizations done. We don't return until January 11th for labs and then at some point in February for a spinal/marrow. Won't worry about that now. Livee is having fun with her cousin Tori and of course loving the attention from Grandma and Grandpa too.
A time to think of those less fortunate and pray for peace and resolution around the world. Prayers for the Ruley family as they deal with the loss of Doug, prayers for Cameron that he continues to do well and the cancer is no longer there. We pray for all of the families dealing with cancer.
A time to celebrate Life and the real meaning of Christmas!!
Wednesday, December 20, 2006 10:55 AM CST
Today Livee and I are hanging out and plan to go to a movie this afternoon. We are watching her friend Maddy also, they are classmates and pretty good pals. She will be with us today and tomorrow. They have been real good playing and having fun together. I think we are taking off for Grandmas house on Friday. Dave will join us probably on Saturday, he usually hangs around to work and take care of Chocolate (Livee's dog for those that may not know). That is one downfall of having a little fluff ball around we need to make sure someone takes care of her. We can take her with us only if we are gone for a day or two.
Tomorrow we go to the clinic for Livee to get two more of her immunizations. She is not having labs or anything else done just the shots. After that is done I will take the girls to lunch.
The girls need something so I will add more later.
Monday, December 18, 2006 2:31 PM CST
Livee is pretty excited because she only has today and tomorrow left at school. I have been trying to figure out what the deal is with her and school. She is doing well and at her teacher conference she had an excellent report. However, the problem she has is conquering the fear of not being perfect or keeping up with the rest of the kids. She likes everything to be just so and that type of thing. She has mentioned she gets frustrated because she can't keep up with the others. I have done some research and know that children can have what they call late effects from the cancer treatment. Some of the things mentioned are:
1. organization
2. reading or reading comprehension
3. processing speed (may work slower)
4. visual memory (decoding letters & numbers)
5. understanding math concepts or remembering math facts
The other factors that play a role with these late effects are:
1. cancer diagnosis at an early age
2. cancer treatment involving the central nervous system
3. radiation to the total body
4. female gender-girls may be more at risk for cognitive
late effects
Livee fits in to all of these catagories, I am trying to be pro-active instead of looking back and wishing I had done something sooner. I believe since she missed kindergarten and most of 1st grade this could play a major role in her frustration too. Don't ask me why I felt compelled to share this with everyone but I guess it is my way to communicate with you my friends via Livee's page. Olivia is actually doing quite well it's probably me being paranoid. Time will help give me some answers.
I have some time away from work now starting on Wednesday. I am looking forward to spending time with Livee and catching up. I need to run for now, thanks for checking in.
Wednesday, December 13, 2006 12:22 AM CST
Things are going fine, Livee will receive two more immunizations next Thursday. Yipee !!!!! I finally managed to get some gifts wrapped and cards sent.
I wanted to share something with all of you, last weekend when were watching The Polar Express at the IMAX, Olivia was sitting next to Cameron (which in itself is an awesome sight) anyway I looked over and both Livee and Cameron were singing their little hearts out, the part when the kids in the movie are singing. It brought tears to my eyes just knowing that they are our "Miracles" for both myself and Dave also for Richard and Marci. We have the best Christmas gift ever. I thank God each and every day if not more often than that.
Just wanted to say thanks for continuing to follow Livees journey and saying those prayers for all the children dealing with the cancer beast.
Happy Holidays to all of the Dance Marathon Group especially group #37!!! You rock!!!!
Sunday, December 10, 2006 2:27 PM CST
Sorry for the delay in updating. Let's see since the last update I am happy to say Cameron's CT scan showed yet more improvement. Yeah for him!!!
Last Wednesday night Livee and I talked in front of a huge Dance Marathon group. This year they have a record number of Dancers that says alot for this group, it shows how much they care. We want to send a sincere thank you to them for taking the time to care and be part of this wonderful orginization. The reason for our visit is to talk with them and explain the purpose of why they dance, hopefully give them even more incentive to keep up the fantastic job. By putting a face with Livee's story and having a clearer understanding of what it's like to be a family that has gone through cancer. Without the support and time these college students share with cancer families it would for sure be even more difficult during those long stays in the hospital. Every minute they give, every dollar they collect does not go unnoticed by the families. They make a HUGE difference, what they do matters to us. I enjoy meeting with them like I told them "It's about the Kids not about cancer". An example of how they help families is on Saturday they entertained the Dance Marathon families with a day at the Science station and the movie Polar Express at the IMAX in Cedar Rapids. The kids had a visit from Santa and were treated to a gift. They also provided lunch and popcorn for the movie. Now that is an awesome thing for these kids. Thanks to all of you Dancers for saying Hi or hanging out with Livee and making her day!! Our family truly appreciates what you do for us. We can't wait for "The Big Dance" in February.
Thursday was a day of emotions, David and I went to Doug Ruleys funeral service. We saw many familiar faces there. It shows how much Doug was loved and that he certainly made an impact on everyone that knew him. Ruth and Dan are incredible people and been through so much. I hope in the days, weeks, and years ahead they will find peace somehow.
I somehow do not have many of the things done like I had planned. It's sort of like when you go on vacation you don't pack until the last minute, well for me Christmas is apparently the same. I am not ready until the last minute. Maybe I will snap out of it. My priorities are so different now. As part of my Christmas decor I have these letters in red velvet that spell out BELIEVE, as only Dave would point out that if you take the letter V and switch it with the letter E it would spell BE LIVEE. How ironic that those letters spell out the reason we Believe!!! Maybe too much Polar Express viewing or we just need to get out more, huh?
Anyway thanks for checking in. No news is good news, boring is good. (Right Marci?)
Wednesday, December 6, 2006 3:06 PM CST
I have the day off today and thought I would finish up some loose ends but that has not happened. I feel like I might be fighting a cold or something, my eyes water and itch like crazy. I refuse to get sick I don't have time right? I just need rest which also does not come easy. I keep thinking about everything instead of relaxing. I am sure I will feel better tomorrow.
Tonight we are talking to a group of Dance Marathon students at the IMU, they have been a great support system for our family and many others. I will be there unless I really start feeling worse.
Livee is at school having fun I am sure. She is such a card and so much fun. One thing about it she will always give me a run for my money. You can imagine she is so mature in some ways but yet still a 7 year old. She will mention sometimes "you know Mom I am only 7 and I missed kindergarten and only had 55 days of 1st grade", she realizes that her life was a little different than the other kids. She mentioned just the other day the month and year she was diagnosed. So you know she thinks about it but fortunately does not dwell. Cancer will always be part of her life but I am not sure how much she will retain in the future. We have always been open and explained to her the best we can anything and everything to hopefully make it easier for her. We can all learn from her if we listen and learn from what she is saying. Maybe we can make it better for others that face this rotten disease.
There is a reason for everything and a purpose behind it. That is what I am working on now to find my way.
Please pray that Cameron's CT today shows more shrinkage of the tumors or that they are gone. That would be the best case. We are thinking of the Christiansen Family and the Ruley family's today.
Monday, December 4, 2006 9:43 AM CST
I need to clarify Dougs page is under carepages, then
DougRuleythirdtimearound. Thanks
Monday, December 4, 2006 9:32 AM CST
A new star shone last night, the stars name is "Doug", another Angel was called to Heaven. The Ruley family said goodbye to their precious son Sunday morning. If you wish to send condolences to them the web is under carepages.com Doug Ruley "Thirdtimearound".
Another child taken away because of cancer, how unfair? Our hearts are with the Ruley family. God bless Ruth,Dan, Rebekah, and Dawn.
Friday, December 1, 2006 7:54 AM CST
Yesterday's reports are all good, Livee's counts are all in order. Yeah!!! Yeah!!! While we were in the clinic she received 2 immunizations and then we go back in two weeks for a couple more. This is totally an awesome thing, her body is functioning just as normal as yours or mine. I think about where we were last year at this time. We had to watch every move and heed caution to anyone or anything Livee came in contact with. I am overjoyed with her progress and that she is a healthy girl. Believe in Miracles, we have one!!!
I finished my Christmas shopping yesterday, and now need to pull out the decorations. Now that should be interesting.
I will add more later I need to start work now.
Thanks for checking in.
Wednesday, November 29, 2006 3:54 PM CST
I am mentally preparing myself for tomorrow. Olivia will have labs drawn to check counts and then more than likely a couple of her immunizations. Hopefully all will be good. We do not need any unexpected surpises ever again.
She is excited because she gets to go to school later than usual. Livee likes school and is doing well but seems to like her time away too. I will probably have her back to school by mid morning. I have the rest of the day off, so I will try to get some things accomplished.
Thanks for checking in and please squeeze in a prayer for Livee.
Sunday, November 26, 2006 9:02 PM CST
See I told you I would update soon.
I forgot to mention that Saturday Olivia was part of the Jingle Cross Rock. This event is held to raise money for the Childrens Hospital. One of the head surgeons at UIHC, Dr John Meehan is the mastermind of this event. Some of the worlds best cyclist participate right here in Iowa City. Olivia started 3 races by saying "riders ready"? then she rings the official cow bell then they're off. We were interviewed by KCRG and on the news Saturday night. You can go to KCRG.com to see the story. Livee's friend Cameron also started a couple of races. It was nice to see Cameron and his family.
See you next posting.
Sunday, November 26, 2006 7:55 PM CST
A new look to Olivia's site. The picture on the main page is her 2nd grade photo. I may be changing this site over to the carepages site. I will for sure let everyone know if I choose to do that.
We had a very nice Thanksgiving with family, the whole clan was there. There is alot to be thankful for this year. Olivia is healthy and moving on, we pray this always be the case. She will go for labs on Thursday and receive a couple of immunizations. Not fun for her but a good thing overall. I pray every day for her to continue to stay cancer free. We are happy for our friend Cameron and his family. He is responding well to treatment and also moving forward. Our hearts go out to Doug Ruley and his family as they embrace their time with Doug. We send prayers of comfort to their family.
Thanks for checking in and I promise to update soon.
Thursday, November 23, 2006 12:54 AM CST
HAPPY THANKSGIVING TO ALL OF YOU !!!!!!
We are celebrating with family on Saturday as that is what works for everyones schedule. Today we are having our own family dinner here at home. Giving thanks for the many blessings we have received. Nothing less than a miracle is what we have been given. Olivia's gift from her Dad, a second chance at life. We are so thankful for His healing and our healthy girl. We can't ask why does this have to happen but learn and become stronger people from it.
The only time I question is when the cancer has to come back again and again. Why is a family given such hope and then that hope fades away? I am speaking of the Ruley family. Doug has been so courageous for so many years, his family by his side each and every day. This is a very difficult time for them. As we celebrate with our families let's think of them with thoughts and prayers of comfort and support. May Gods embrace surround them as He opens his arms to Doug. We are thinking of you.
Monday, November 20, 2006 10:43 AM CST
Livee is doing great, we went to the hospital yesterday to see Cameron. The good news is that they get to go home today. Anytime you can be home is much better than being at UIHC. No offense anyone but I know you understand. While we were at the hospital Livee pulled out her tooth. She was so proud she said "Mom I think I need a Doctor I am bleeding" I told her she was fine. Of course last night the tooth fairy did find Livee.
Just a reminder to everyone that I have the 2007 Angels Calendars for the Leukemia & Lymphoma Society. They are priced at $12.99 with all proceeds going to the society. You can let me know or go direct to their web page @ www.lls.org/ia.littleangels, I will have them for some time. I know with the Holidays we all get busy busy. We are reminded everyday that cancer is relentless and we need to find a cure.
Our prayers of comfort are with the Ruley family.
Saturday, November 18, 2006 3:32 PM CST
I worked this morning only. I thought we would be working all day but we got everything done early. Livee has been hanging out with Dad. She is a little disappointed today because she was going to spend the night with her friend Maddy but that won't work out because Maddy is sick. Our neighbor Max was outside so Livs went out to play with him. Also I did tell Livee that we will for sure tomorrow go see Cameron at UIHC. He is there to receive more treatments. The good news is he is doing well and the tumors appeared to be smaller according to the CT scan. Great news indeed.
I have been trying to get Livee to make out her Christmas wish list for Santa. She went through the ads and marked something on just about every page. It does not seem possible that Thanksgiving is upon us and Christmas is around the corner. We truly have much to be thankful for we have a healthy child. I thank God each and everyday for her.
We also continue to send prayers of comfort and peace to Doug Ruley and his family. He is home now and has a new kitty to be by his side. He had an early Christmas with Santa coming to see him. God bless the Ruley family.
Thursday, November 16, 2006 10:16 AM CST
Wanted to send a quick update. A couple of things to report one is Livee has her next appointment on November 30th, just labs and then she will get some of her immunizations that day. She has been very busy with school and keeping up with friends and activities.
We need a special prayer request for Doug Ruley and his family. They have found that the cancer is back 100% in his marrow. They have decided to go home and spend time together as a family. Doug can enjoy his favorite thing in the world which are his kitties. We send prayers of comfort and courage to their family. God bless the Ruley family.
Monday, November 13, 2006 12:17 AM CST
Not much happening, we had a busy weekend. Olivia had company at school on Friday. Cousin Tori and Grandma came up to have lunch with Livee and spend a little time with her at school. They had a great time, then after school Livee went with them to Fairfield to spend the weekend. I had thought I was working both Saturday and Sunday turns out we did not work either. So I had some time with friends and got some things done. I try to take advantage of that kind of time to accomplish a few things anyway.
I am working now so must get a move on.
Please keep our friends Cameron and Doug in your prayers. Why does cancer have to be so relentless? Why can't we find a cure? Remember-hope survives, now and forever and the fight will never end.
Thursday, November 9, 2006 12:07 AM CST
Good news to report on Livee. The results are back concerning her immune system and lymphocytes testing. All signs show her immune system to be functioning normally. Every component is responding like it should, this means she will be immunized at her next appointment at UIHC. This is a wonderful sign and another step in the right direction. Praise God and I do everyday, I thank him and thank him for allowing Livee to remain healthy and happy.
I will add more later but am at work. Also if you are interested I do have calendars available. All proceeds go to The Leukemia and Lymphoma Society in honor of Livee! Thanks for checking in everyone.
Saturday, November 4, 2006 4:55 PM CST
I am happy to announce the new Angels calendars are here and they look awesome. Each month features a child with their own cancer story. Olivia is the month of February 2007. If you are interested here is the web address:
www.lls.org/ia.littleangels
You may either order directly on the web page or I can get one for you. They are priced at $12.99 each with all proceeds going to the Leukemia & Lymphoma Society. Just let me know!!!
I already have Livees new school picture in a frame on the wall with the rest of her pictures. They turned out real nice. I will get one posted on her page when I get access to a scanner printer. Remember I have an antique for a computer at home and am not to update from on my work computer.
Livee has a friend over and they are dancing and singing in the living room. I need to go make them some dinner but will update again soon.
Thanks for checking in and please keep our friends Cameron and Doug in your prayers.
Thursday, November 2, 2006 8:54 PM CST
Livee is doing great-she just finished her evening shower and is rather silly. Today I am excited because we have Olivia's school pictures back. This is pretty special to me since it is her first official school picture.
Now as a proud parent speaking I must also tell you other news. Today the Leukemia & Lymphoma Society 2007 Angels calendars arrived. Olivia's story is featured for the month of February 2007. I have not yet seen them but will see one tomorrow. The calendars are for sale at $12.99 each with all proceeds going directly to the society. Ann Conkin the chairperson for this area said they are awesome. You can buy these directly through me or through them. I will update with more details soon. Please tell all of your friends and family about them.
Please keep them in mind for your Christmas gifts or just to have. Who doesn't need a new calendar each year? Every purchase is one step closer to them finding a cure for cancer. There is no cure, but hope.
Please let me know if you are interested and I will be more than happy to get one for you. If I run out I can always get more.
As always thank you for checking in and saying prayers for all of us affected by cancer.
Monday, October 30, 2006 10:14 AM CST
I can't believe it has taken me so long again to update. I guess time goes by quickly. Friday some of the kids in Livee's class came down with a cough and one little girl had a fever, so she was sent home. The school called me to inform me of this. Livs seems fine although she has had a little cough. I still check her forhead at least once a day to make sure she feels fine and I ask her probably 2 - 3 times everyday "how are you doing?" being paranoid goes with the territory I think.
Livee is doing fine getting excited for Halloween. She is going to be the guy from Scream, of course she likes the scary stuff no princess for her. That's ok as long as she has fun. She surprised me with cupcakes yesterday for my birthday tomorrow. I am working so I must cut this short for now. I will update soon.
Thursday, October 26, 2006 1:13 PM CDT
Sorry for the delay in updating.
We did not go to Bloomsbury Farm, which from what I hear was the right choice. Livee had a little sniffle and an occassional cough so I thought it looked like rain that direction and we decided not to go. Then on Saturday night we did go to my friends wedding, now that turned out to be a chilling experience. The reason was it was held in a barn in the Amana's. I mean a real barn so the air was moving through and it was chilly cold. Livee did go with and we made the best of it, I felt sorry for the couple because I am sure they had no idea it would be so darn cold. Anyway it was fun and we did get to see some of our friends. I need to close.
Thursday, October 19, 2006 12:44 AM CDT
Nothing much to report, that's a good thing. Livee is liking school and all of her friends. The schedule is better now she is getting to bed earlier and doing more things for herself. I must admit I am guilty of doing many things for Livee that she is more than capable of doing. You rather get used to doing everything for your child when they are in the hospital. It takes a while to undo some of those habits I guess.
Anyway we are looking forward to the weekend going to Bloomsberry Farm in Atkins. Also Saturday night we are going to a wedding, a long time friend of mine is getting married in the Amanas. Hopefully the rain will hold off until Sunday?
I need to run before I get in trouble for being on the computer to long. More later.
Monday, October 16, 2006 3:05 PM CDT
I asked Livee if she stuck her tongue out for her pictures, she just looked at me like yeah right Mom! Her hair was combed and she even had a headband in when we left home. Maybe once I get those pictures I can change the picture on her main page- about time right? Speaking of pictures etc... soon the Leukemia and Lymphoma Society will be selling these awesome calenders for next year. Each month features a child that has had one of these type of cancer. Olivia will be one of those children, however you may not even recognize her. Her picture for the calender was taken back in March I believe it was. Her hair is not even an inch long her two front teeth are sort of coming in and she has new glasses since then. I will for sure be selling the calenders when I know they are available. All of the proceeds go to support the Society. I am anxious to see them and read all of the different stories.
Livee had a friend over to play on Saturday and then a surprise visit from family on Sunday. What would we do without family? The constant support is always welcome. We still walk on that tight rope, praying we don't fall off.
Our friend Cameron is doing well, they have harvested for his future stem cell transplant. We pray that his cancer will be gone forever. Miracles happen everyday---Just look at Livee!!!!
Thursday, October 12, 2006 6:21 PM CDT
Just wanted to report that Livees appointment today went fine. All of her numbers are within the normal range. They will be checking her labs to see if her lymphocytes are doing their thing, if so she will get immunized. Because she had radiation pre-transplant anything she had previously was wiped out therefore they need to do these vaccines again. She did receive a flu shot today. Livee was ok with it no big deal. Tomorrow she has school pictures taken. I am of course excited about that since it will be her 1st official school photo and can exchange pictures with her friends. What to wear, what to wear? Just kidding, it really does not matter to me as long as she gets her hair combed.
Thanks for checking in. I will update sometime soon.
Monday, October 9, 2006 7:52 AM CDT
The weekend was great- Livee and I went to my parents to visit. We ended up going to a parade Saturday morning that thing lasted 2 hours and 15 minutes. It was awesome, of course we have lots of candy. I am thinking why buy for Halloween just use that.
Anyway Livee goes for labs this Thursday we pray all will be fine. She has done so well and skated along in the right direction. I am always optimistic but with caution or as I say guarded optimism. A person can never be too comfortable or it seems the ball drops. They will get what they need to do the testing on the lymphocytes then they can finally determine if she is ready for immunizations. Hopefully just in time for the cold and flu season.
Please keep our friends Cameron and Doug in your thoughts, these kids have endured way to much at their young age. No child should have to deal with this, so please keep the prayers coming. As always thanks for checking in on Livee.
Thursday, October 5, 2006 7:31 AM CDT
What a breath taking beautiful morning-there is nothing like a crisp sunny fall morn. Don't ask me why but today I just want to say how thankful I am for all that I have - especially Livee!
Maybe this is the turning point or something-I have been a little down lately. I think because work is slow and I have not been utilizing my potential in many ways. I think the fear bug creeps into my thoughts too. Maybe it's a pre-mid life thing Ha! Anyway I am very thankful and appreciate all of you continuing to check in on Livs.
Please say prayers for Doug and Cameron as they continue their journey forward.
Also a step in the right direction this morning too, Livee finally put on a headband to keep her hair back away from her face. She has been somewhat reluctant to do anything with her hair. So I praised the thought and said how awesome it looked, now she just needs to comb it more often. One step at a time right?
Friday, September 29, 2006 7:29 AM CDT
Last night we went to UIHC to see Cameron and Marci. They are doing well under the circumstances. Livee and I took them up a care package and of course fun things for Cameron. Olivia made Cameron an awesome poster with his name and stickers galore. Something to brighten up his room, she also made one for Conner. Marci and I talked about what's to come and shed a few tears. The road ahead will be tough but they are a strong family and Cameron has what it takes.
The kids played video games and went to the evening activity which was Bingo on the 2nd floor. It felt weird and scary to be there because of so many memories but at the same time we were there for so long it seemed ok. Believe me the only way I want to be there is as a visitor.
Livee seemed right at home, she and Cameron were sitting in the bed together playing the games. They were so darn cute together definitely two peas in a pod. Please continue praying for all of these children as they endure this rotten disease.
We are looking forward to a fun weekend, no special plans yet but am working on that. I have plenty of chores that need done but somehow those are always pushed to the back burner.
Thanks for checking in, did you check out the new pictures??
I am working on the edit part to get them down to size.
Tuesday, September 26, 2006 10:23 AM CDT
Light the Night was a success and a wonderful time. It was so nice to see so many families again. We managed to get all of the balloons filled with just a few blowing in the wind and some popping. It was fun to be part of such an awesome event. Thank you Ann Conkin for all of your work and dedication. I ended up winning the raffle for the quilt, the blocks represent families and teams from the 2005 walk. Olivia and Doug have a block since they were the honored heroes last year. I have not decided what I am going to do with the quilt but will display, donate, or pass it on to Livee. It is rather large and will need a special place.
Tomorrow will be the day Cameron returns to UIHC to start chemo treatments. Please keep their family in prayer as they begin this journey. Cameron is a very strong young man and I know he will do fine. He and Livee are good buddies, they are pretty much the same age. We will be seeing them once they return.
Thanks for checking in and don't give up on new pictures coming soon. (to a theatre near you) Ha!!
Thursday, September 21, 2006 9:48 AM CDT
Livee has been very busy with school and play. Not much to report which is always a good thing. We are looking forward to the Light the Night Walk this Saturday here in Iowa City.
Also Cameron had his surgery yesterday, it went well for him but a very long day. The next step will be intense chemotherapy to hopefully eliminate the two spots they found on his liver. Our prayers are often and loud for the long road ahead of him. He can do this. Please keep the Christiansen Family in your prayers.
I will update soon. Hopefully with some birthday pictures.
Tuesday, September 19, 2006 7:28 AM CDT
Whoops, yesterdays journal had a few errors. Must be tired from the weekend. Anyway I will slow down and pay closer attention huh?
Livee is having some trouble getting around in the mornings. Anyone that knows Livs knows she is not a morning person. We try to get to bed early but it just does not work out sometimes. So we will keep working on a better routine. Livee is so contrary and determined, it wears on me but I know God gave her that talent so she could get through all of her treatment etc... Being strong willed must have come from Dad, right? The truth is I am very much like that too. The apple never falls far from the tree as they say.
I need to make this short but please keep checking in.
Remember an extra prayer for Cameron, he will have surgery tomorrow.
Monday, September 18, 2006 3:24 PM CDT
Here we are back at work already. It seems the weekend just started. Livee had a wonderful time with her Grandparents and cousin Tori. This week at school each child has a week called "it's all about me" so this is Livee's week. They take pictures and special items they may want to share with classmates. It should be fun for them. Otherwise Livee is fine and full of spunk. I did find out they could not complete the lab work they intended to check her lymphocytes with last time. An electricity malfuntion at the VA hospital? So her next labs are scheduled for her October 12th they will use that to test from. I could take her in earlier is I felt I wanted to. Once they see what the lymphocytes are doing they can determine if she is ready to be re-immunized. We will see at that point.
Please keep Cameron and his family in your prayers, as they are going through this difficult time.
Friday, September 15, 2006 9:16 AM CDT
Livee is doing fine, she is spending this weekend with Grandma and Grandpa. They will be going to the kids day parade in Fairfield. I am fortunate enough to have a ticket to the Iowa game tomorrow. It should be fun and crowded no doubt.
Today we ask for prayers for Livee's friend Cameron. Cancer is back again, they found a couple of spots near/in his liver. He has a rough road ahead with very intense chemo, surgery and then a stem cell transplant. Our prayers are with Marci and Richard as they face this uncertain and difficult path. They have a web page set up for Cameron at www.carepages.com hope4cameron. If you want to send a message. Cameron and Livee have become pretty good buds. They had such a great time at the Iowa game September 2nd and at Livee's birthday party last Saturday. It's just so unfair to these kids to have to go through all of this. They need to just be kids and not have to deal with cancer.
Today is the last day of the Radiothon for Children's Miracle Network on KHAK 98.1 also next Saturday is the Light the Night walk here in Iowa City.
Thanks for checking in.
Tuesday, September 12, 2006 7:39 AM CDT
HAPPY BIRTHDAY LIVEE !!!!!!!!! HAPPY BIRTHDAY LIVEE !!!!!!!
Today Olivia is 7 years old. We have been celebrating since Saturday. She had her birthday party at the Circus with some of her friends. They had such a good time, I think the limo ride there and back was as big of a hit as the actual circus. I have lots of pictures to be developed sometime soon. Then on Sunday we had family over to celebrate several birthdays along with Livee's. Livee and my Mom share today as their big day and then my brother Ron and sister-in-law Kathryn celebrate theirs on September 15th. I also have another brother and sister-in-law that share July 21st as their birthdays.
Tonight we will celebrate Livee at home just the three of us. We are so thankful for what we have and the fact that we can celebrate this special occassion with her.
Remember today the radiothon starts on KHAK 98.1 FM. They help The Children's Miracle Network which in turn supports all families at UIHC. When you listen to the stories you realize how important even the smallest donation can help. Thanks for checking in, and have a great day.
Friday, September 8, 2006 3:05 PM CDT
Here we are the end of the week already. This weekend is going to be busy again. Livee and some of her friends will be enjoying the Circus tomorrow. I think I am looking forward to it as much as she is. I don't recall ever seeing a real circus. I promise to have pictures posted after her Birthday etc... I am rather slow at updating as you already know. At work I am not really allowed to update pictures and that type of thing and my computer at home is rather slow and older.
I will be running around tonight getting this and that for tomorrow hopefully my list is complete.
Please tune into KHAK on your radio starting Tuesday the 12th. They will be having their 10th annual radiothon in conjunction with the Children's Miracle Network. What an excellent way to reach so many people to help with the cause. Any donation is appreciated no matter how big or small. The children benefit so much from these events. Thanks for caring and checking in. Pray for cure!!!!
"Liveestrong"
Tuesday, September 5, 2006 2:43 PM CDT
What a great day for a football game. We had a wonderful time. The best part was seeing so many of you again. Those of us that have a child that has dealt with cancer will always have a special connection an understanding. Maybe someday we can all collaborate our knowledge and experiences and write a book to help others deal. Anyway it's just great to see the kids playing and jumping around with so much energy. Thanks to all of you Dance Marathoners your support and giving of your time mean the world.
We are getting ready for Livee's birthday party this Saturday, we are going to the Circus in Cedar Rapids. It should be lots of fun. This Sunday we will celebrate with family. Livee's birthday is Tuesday September 12, she shares that special day with my Mom. My two favorite girls in the world!!!!!
More later- Thanks for checking in.
Wednesday, August 30, 2006 10:43 AM CDT
Livee is doing great, she is so exhausted when she gets home from school. I think a whole day of thinking and activity will take a little getting used to. Last night she fell asleep on the couch at 6pm and slept until 8:30. Bad timing but she really needs to keep rested so she does not get to run down. She now likes to go to the park around the corner and ride her bike in the big parking lot. That apparently will be our new hangout for now.
We are looking forward to the game on Saturday and seeing all of you Make-A-Wish families. It appears the weather will cooperate but we do live in Iowa right?
See you there!! Go Hawks!!
Sunday, August 27, 2006 8:34 PM CDT
Livee has enjoyed her first week of 2nd grade. It was so nice for her to start at the beginning of the school year with the rest of her classmates. She seems to really like it and is learning everyday. The routine is getting better too, earlier to bed makes such a difference in the mornings. I drop her off around 7:10 so I can get to work by 7:30. I try to have her pick our her clothes the night before to save time. So far she has not had any homework but I am sure we will be seeing some this week.
We will be seeing the Hawkeyes play this Saturday compliments of Make A Wish and The Iowa Alumni Foundation. The kids get to meet the players, cheerleaders, coach, and of course Herky. It should be fun and it looks like the weather is going to be great.
Thanks for checking in and keep the kids in your prayers.
Tuesday, August 22, 2006 10:17 AM CDT
Livee enjoyed her 1st day as a 2nd grader. She was so exhausted that she went to sleep at 6:30 and slept the whole night. It will take a while to adjust to the new schedule. Not much going on, I am plugging away at work. Right now I am working in a different department, which is rather nice for a change. As long as I keep busy I am good to go.
I am trying to plan Livee's birthday party having her decide for sure what, who how many etc... I think we are going to the Circus.
Thanks for checking in, my break is over. More later.
Friday, August 18, 2006 12:32 AM CDT
TODAY WE CELEBRATE!!!!!
TODAY WE GIVE THANKS!!!!!
TODAY WE KNOW PRAYERS ARE ANSWERED!!!!!!!!!
TODAY IS ONE YEAR SINCE OLIVIA'S TRANSPLANT!!!!!!!!!!!!!!!
Just thinking about where she has been and where she is now. Last night we went to her ice cream social at school it sorta hit me, the reality of everything. Knowing a year ago where Livee was and now starting 2nd grade on Monday. How awesome to speak those words and see only a bright future ahead.
Yesterday afternoon was spent at Build-A-Bear in Coral Ridge Mall. The bicycle club sponsered this event for the kids. A special thank you to Dr. Meehan and those involved for a wonderful afternoon. Each child picked from 4 bears and then named and stuffed their bear, they also provided 1 t-shirt. If you wanted to pick out other items that was up to purchase. Of course you can't just walk away without the full ensemble and then some. It was so nice to see and hear about all of you, Cameron, Doug, Dawson, Kaitlyn, and Ambrose. We see so many familiar faces, we may not know a name or an exact story but we have seen you at clinic or in passing. Kudos goes out to each parent for having the courage to carry on and putting on your brave face. We are the choosen ones to help our children win this war.
I thought Livs and I would swim today but the weather had another plan I guess. We may go to a movie or something and then tonight have a celebration when Dave gets home. This is a very special day for Dave and Livee. They have a lifetime bond no matter what. He provided the miracle to give Livee a second chance. Praise God !!!!!!!!!
Wednesday, August 16, 2006 7:35 AM CDT
Just a quick note to everyone.
Olivia had a wonderful time at Adventureland with her friend Maddy. They rode so many rides but of course liked the arcades and games so they could win the fabulous prizes. We needed a few more stuffed animals to add to the collection. It's fun to no matter what though. I was wrong on the crowd prediction, I think the leftover State Fair crowd came to Adventureland, sometimes the wait for a ride was an hour or more. We made a whole day of it and returned home around 10:30 pm. This week Livee is at Patti's with some of her playmates from the past. She loves that because she is the oldest and a helper to Patti. Tomorrow we go to Build-A-Bear compliments of the peds oncology department, the kids can build whatever they want. Then this Saturday night Livee is invited to her first official sleepover with a friend. They have plans of swimming, pizza, movies, and maybe a little sleep. Actually if they stay up late it will work to our advantage in hopes that Sunday night she will get to bed early and be ready for school on Monday. Hard to believe the summer is coming to a close already. I am so excited for Livee starting the 2nd grade and being there from the beginning of the school year along with the rest of the kids and she will have her 1st school picture taken whenever that occurs. How awesome to be able to say that. I need to get to work but will add more later. Thanks for checking in.
Friday, August 11, 2006 5:07 PM CDT
More good news to add to yesterdays report. The final results from the spinal and marrow aspirates showed no cancer cells and that the marrow cells that they did see are in fact male donor cells, exactly what we want. God answered our prayers and for that we are so thankful. When I think back to just one year ago and where we were then, just starting the transplant process and treating Livee with more chemo then radiation, and now off all meds, her hair growing as fast as it can with beautiful curls, and mostly she is healthy.
They are doing some additional testing on the blood work to check her lymphocytes. This will determine when she will be reimmunized. Not exciting to most but very exciting for us to know she is moving in this direction and achieving normalcy in her immune system.
We are headed to Adventureland tomorrow and it sounds like the weather should be great.
Thanks for checking in on Livee!!!
Thursday, August 10, 2006 12:24 AM CDT
Almost 1 year since transplant and good news to report, Livee's spinal/marrow preliminary results are good and no cancer. Only 1 white cell in the spinal fluid, (considered normal) we are so elated with this news. We won't know until later today the complete results of the marrow aspirate. We were at UIHC early around 7am prompt which is good to be the first ones. Since Livee can't eat of course before hand and being 1st assures they won't be running behind from other surgeries. We left there at 9:15 and are home just having fun, talking on the walkie talkies and making tents inside who knows what is next on the agenda.
Also we don't have another spinal until 6 months from now, that is so awesome to be able to say that. Livee has had over 30 spinals, so this is great news for her.
I know tonight we will eat at Slugger's to celebrate the news. Livee loves that place. On Saturday we are going to Adventureland, hopefully the crowd will all be at the State Fair and not Adventureland.
We are so relieved with our news today. It never gets any easier from the mental standpoint. The mind games and millions of thoughts running through your head. Just trying to sort through all of it. Each time reminds you of past visits but also makes you realize how far Livee has come since this journey began. So many blessings to be thankful for.
Monday, August 7, 2006 3:10 PM CDT
Livee is currently at Grandma's until tomorrow or Wednesday. Her summer program ended at Hoover on Friday so this week and next I have alternative daycare plans. I did take vacation days for Wednesday, Thursday, and Friday. I am starting my pre spinal/marrow worrying which Livs will have on Thursday. It's like walking on a tight rope and wondering when your going to fall off or climbing a mountain almost to the top and falling down. I try try to keep only positive thoughts but the fear once again steps in the way. I think since she had the fever last week and has been coughing an occasional cough it reminds me of the past. I will trust God to help us through this and give us guidance like he always does.
I talked with my Mom earlier and Livee was doing fine, she finally had 9 1/2 hours of sleep last night. I know she has been so busy with her friends and so active she needed to catch up. So I guess with that being said I should quit the worrying, right? Livee has been so strong and come this far we just want to keep moving forward, Cancer Free!!
Thanks for checking in and I intend to update more pictures soon. Maybe one of Livs and Lance Armstrong.
Thursday, August 3, 2006 12:24 AM CDT
Exciting news, Olivia pulled out her tooth last night. It was basically just hanging there so I gave her a piece of floss and she put around the tooth and yanked. She was so proud of herself. The tooth fairy did make a visit too.
Tuesday I stayed home with Livs she had a fever that started on Tuesday evening and continued into Wednesday morning. I tryed not to panic but did call her Doc, he said to make sure the fever does not rise and watch for any other signs. I think she has a summer cold since the humidity has been so high and she has been swimming quite often. Anyway the good news is she seems much better and nothing else is going on with her, just a regular kid cold. I even forgot that I could give her tylenol now is she gets a temp, before we had to call first then have her be seen before we could administer any tylenol. I am learning all over again how to live, and it is the best feeling in the world.
I must run and get back to work now. I did update a picture of Livs Dance reciptal, excuse the lipstick but it was a requirement.
Sunday, July 30, 2006 4:28 PM CDT
Friday we did get to hear and see Lance Armstrong. The message was flat out we need to find a cure for cancer and The Lance Armstrong Foundation is ready to meet the challenge. Sometimes I am not sure that the political arena is the answer, they have done nothing but cut budgets for research but Senators Harkin and Kerry are trying to change that. What ever it takes to find the funds and continue the research.
Livee and a couple of other children got to go to Lance's room and get an autograph and some photos. He was real accomodating and cordial of course there was security everywhere.
Yesterday and today we have been in our pool trying to stay cool. We wait until mid to late afternoon so it's not totally unbearable. Olivia is loving it and not afraid of going underwater and swimming. This is the first opportunity she has had in over 2 summers to swim and get that beautiful tan of hers. We slather her in sunscreen 50 , since she h