Mitchel James Baughman

"Miracles have happened when God's people have turned to him in prayer."
-Billy Graham


Mitchel was diagnosed with neuroblastoma cancer Stage IV on October 3, 2004. We were sent to St. Jude Children's Research Hospital in Memphis, TN on October 10 for treatment. His treatment consists of 6 cycles of chemotherapy, stem cell transplant, 3 weeks of radiation and 6 months of acutane which is a high dose of Vitamen A that helps reduce the possibility of the cancer returning. After Mitchel's transplant we did not receive the best news. His bone marrow still had neuroblastoma in it so our next journey leads us to New York for a 3F8 antibody therapy. We will be traveling soon to Memorial Sloan Kettering Hospital in New York so Mitchel can receive this treatment.

MAY 2005 - Mitchel was released to go home for some much needed rest. He also was able to take his MAKE A WISH trip to Disney World during this time.

JULY 2005 - After spending two wonderful months at home we came back to St. Jude to start the required two rounds of chemo before Mitchel can receive the 3F8 antibody treatment. He was taken off the accutane treatment after only receiving 4 rounds we did not want to take any chances of the cancer spreading from his bone marrow. Please continue lifting Mitchel up in your prayers. He is a brave little man who loves life so much.

OCTOBER 2005 - Mitchel starts the 3F8 antibody treatment at Sloan Kettering Memorial Hospital in NYC.

DECEMBER 2005 - After receiving 2 rounds of the heated double dose of 3F8 antibodies and 2 rounds of the regular dose of 3F8 antibodies all his scans show NO EVIDENCE OF DISEASE. He will continue to receive the regular dose of 3F8 antibodies until his body shows a resistance to the treatment. He is also currently taking 6 rounds of accutane during the weeks off of the 3F8 treatment. PRAISE GOD! WE HAVE WAITED A LONG TIME FOR THIS NEWS!

JULY 2006 - Mitchel had a isolated spot show up on his MIBG scan in the left clavical area, doctors where certain that he relapsed and would begin chemo after having surgery to biopsy and remove the infected lymph nodes. Surgery was a success and the new port was put into place, BUT GOD HAD A DIFFERENT PLAN! Hours after the port was put in his body started to reject it and his upper chest, neck and face started to swell, by the next day he looked like a balloon. The doctors ordered several tests to determine the cause of the swelling and admitted him into the hospital. After all these tests were done there still was no explanation, Dr's words were we don't know what happened, but the port needed to be removed. The next day after the port was removed we were called into the doctors office and it was determined that Mitchel would not be starting chemo and the pathology report showed all the lymph nodes removed from his neck were in fact ganglioneroma, dead cancer. So as I said God had another plan for our baby, he was able to continue his 3F8 antibody treament and that is where we are today in his treatment. THANK YOU JESUS!

UPDATE 12/20/2007 - Mitchel completed the 3F8 antibody protocol in October 2007, it was a long and grueling two years, he had a total of 17 3F8 antibody treatments and never reached HAMA. He is currently returning to Sloan Kettering Hospital in NYC every 3 months for a complete workup with scans and bone marrow biopsies. He is enjoying life to the fullest everyday.


NOVEMBER 2009- Doctors discovered a small tumor in Mitchel's head. He was diagnosed with relapsed neuroblastoma. He had surgery to remove it and 5 days of irenotecan chemo, 5 spot trreatments of radiation and 10 cranial/spinal ratiation. He will continue on with another round of irenotecan/tumador, 8H9 to the head, 4 rounds of 3F8 and ending with 42 days of Temudor.



"Where there is great love, there are always miracles"




*HUGS* TOTAL!
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Journal

Friday, February 19, 2010 3:49 PM CST

I just created a new website for Mitchel on Caringbridge, the difference is this updated version will send you an e-mail everytime I update his page. Please visit the following website for future updates:

http://www.caringbridge.org/visit/mitchelb

Hospital Information:

Patient Room:

HOME MOST OF THE TIME!
Receiving treatment at Sloan Kettering
New York

Links:

E-mail Author: mikmar2m@cableone.net

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.