Taylor MPS1 H/S

Welcome to Taylor's page. Taylor is 6 and has MPS1 Hurler-scheie. She was diagnosed in July of 2003. Taylor started receiving Enzyme Replacement Therapy in December of 2003. She is doing fairly well and we continue to hope for more improvement. Taylor is a very happy little girl and totally loves Scooby-Doo. I hope everyone is well and please keep all of our Mps children in your thoughts.
Please check out Taylor's Quilt made specially for her by
Quilts Of Love.com
The link is at the bottom of page.

Journal

Thursday, April 13, 2006 1:34 PM CDT

Hello everyone!!!!!!!!!!!! I hope everyone is enjoying the beautiful weather we have.


I am so sorry that it has been so long since our last update. Taylor is doing wonderful and has a lot more energy since having her trach placed. I am now a full time college student and will at some point become a Massage Therapist. Well I don't have much more to say except I hope all is well.

GOD BLESS!!!!

Links:

http://quiltsoflove.com/quilt_2004/taylor_D/taylor.html  

E-mail Author: tkarl5150@yahoo.com

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