Kara

Kara is 18 years old and was diagnosed in 2001 (at age 10) with Chiari Malformation & Syringomyelia and later with PTC (High Intracranial Pressure) she has had both VP & LP Shunts, Brain Stem/Spinal Cord Tethering, Dysautonomia (POTS), and Essential Hand Tremors. Kara has undergone 12 brain surgeries and continues to deal with severe chronic head and spinal cord pain. Our 21 yr. old son Kyle was also diagnosed with Chiari Malformation, but is doing well.



A Love So Pure
My Father holds me in his nailed scarred hands, which I put there, but for some reason He still loves me with all his heart.
(Underoath)



Please visit our dear friend Jessica's page. We met her and her dear family in 2002, when Kara and Jessica had Chiari surgery a day apart.

www.caringbridge.org/nj/jessica

Journal

Wednesday, June 24, 2009 9:15 AM CDT

First off, I want to thank everyone so much for all of the prayers and messages that are left for me in the guestbook everyday. Lately, going through this struggle I often feel helpless or alone so it is a comfort to see all the people who truly care about my health.

My pain has continued to worsen with each day. The headaches are excruciating and my spinal cord feels like its burning and pulling. I just feel like there is never any relief and I wish for once it would just let up- its aggrivating! I'm really beginning to think over the untethering of my brain stem/spinal cord surgery that Dr. Frim suggested, but the outcome to feel better is not guaranteed.

Last night was a rough night. My mom took me to the ER due to the terrible pain and we were there until 1am! I then got home and finally went to sleep. I really could not get through any of this without the support and love from my family. My mom and dad sacrifice a lot to make sure i'm feeling better and never leave my side in the hospital.

Kara

Hospital Information:

Patient Room: www.uchicagokidshospital.org

University Of Chicago Comer Children's Hospital
5721 South Maryland Ave.
Chicago, IL 60637
1-888-UCH-0200

Links:

E-mail Author: ketch16@yahoo.com

---

 

Your gift will help millions of people stay connected with friends and loved ones during challenging times.

---

 

This page has been viewed 357080 times.

Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.