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Welcome to Harlei's Page Harlei struttin her stuff with her walker
Harlei is our beautiful daughter who unfortunately was diagnosed with a brain tumor at the age of 4.(she is now 15)she is our strength and our hero!! feel free to pass this page on, b/c harlei enjoys reading her messages.
PROTECT MY DAUGHTER....
Angel, stay with my daughter through the night, wrap her in your loving wings of white. Hold her close, and never let her go. I ask you to protect her, because I love her so. Like you, she's pure of heart, you see, she will always be the greatest gift that Heaven sent me!!
"Children think we are their strength, the truth is they are ours"
"It's not how tragically we suffer but how miracously we live"
R> Brain Tumor Awareness
Harlei and Bettis resting
Harlei and Lexie in front of the 2007 Candlelighters gold ribbon tree
Harlei and Marshmallow cheering on her favorite team
Harlei's game day attire
Harlei putting her handprint on the "Hope on Wheels" car
Journal
Thursday, April 26, 2012 HAPPY BIRTHDAY HARLEI!!!!!
Today is Harlei's 15th Birthday!!! :) We are so grateful & blessed to be celebrating another birthday with our special girl!!!
Harlei has been doing well overall. Her back is bothering her a lot. We go to Hopkins Sunday-Tuesday for MRI and dr appts. We are also going to be planning surgery #18. It never gets easier. :/
Last summer we went to Florida for 9 days. It was GREAT!!!!! Harlei wants to move there. She loves the warmth and sun. I'd love to move also. I love OH because all our family lives here but the cold winters stink sometimes. The snow is nice but bitter cold isn't. Harlei started high school this year and is having a good year. She really likes spanish class which surprised me because she always hated the cartoon, Dora. LOL!!
Thanks for continuing to check in on Harlei. I know I should update more but we are so super busy. Lexie played volleyball & basketball last fall. I love going to watch her play. My favorite thing to do!!
Please continue to keep Harlei in your thoughts & prayers as she faces yet another surgery and all the complexities of it. She is very strong-willed and feisty and I know will over come this , too. It still upsetting as a parent to see her go thru everything.
Read Journal History
Hospital Information: currently home po box 305 bellaire, oh 43906 all treatments done at children's hospital of pittsburgh pittsburgh, pa and johns hopkins baltimore
Links: http://www.caringbridge.org/pa/sofiemae another CHP princess http://www.quiltsoflove.com/quilt_2004/harleiP/harlei.html this is harlei's quilt of love some very nice people made for her. when i first saw it i cried , it is so sweet. http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=codeystjohn our cute friend codey from the same town as us dx w/ neuroblastoma
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