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Welcome to Harlei's Page

Harlei struttin her stuff with her walker






Harlei is our beautiful daughter who unfortunately was diagnosed with a brain tumor at the age of 4.(she is now 15)she is our strength and our hero!! feel free to pass this page on, b/c harlei enjoys reading her messages.





PROTECT MY DAUGHTER....

Angel, stay with my daughter
through the night,
wrap her in your
loving wings of white.
Hold her close,
and never let her go.
I ask you to protect her,
because I love her so.
Like you, she's pure of heart,
you see, she will always be
the greatest gift that Heaven
sent me!!

"Children think we are their strength, the truth is they are ours"


"It's not how tragically we suffer but how miracously we live"


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Brain Tumor Awareness






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Harlei and Bettis resting

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Harlei and Lexie in front of the 2007 Candlelighters gold ribbon tree



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Harlei and Marshmallow cheering on her favorite team

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Harlei's game day attire


Customized Football Jersey - ImageChef.com

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Harlei putting her handprint on the "Hope on Wheels" car

Journal

Thursday, April 26, 2012

HAPPY BIRTHDAY HARLEI!!!!!

Today is Harlei's 15th Birthday!!! :) We are so grateful & blessed to be celebrating another birthday with our special girl!!!

Harlei has been doing well overall. Her back is bothering her a lot. We go to Hopkins Sunday-Tuesday for MRI and dr appts. We are also going to be planning surgery #18. It never gets easier. :/

Last summer we went to Florida for 9 days. It was GREAT!!!!! Harlei wants to move there. She loves the warmth and sun. I'd love to move also. I love OH because all our family lives here but the cold winters stink sometimes. The snow is nice but bitter cold isn't. Harlei started high school this year and is having a good year. She really likes spanish class which surprised me because she always hated the cartoon, Dora. LOL!!

Thanks for continuing to check in on Harlei. I know I should update more but we are so super busy. Lexie played volleyball & basketball last fall. I love going to watch her play. My favorite thing to do!!

Please continue to keep Harlei in your thoughts & prayers as she faces yet another surgery and all the complexities of it. She is very strong-willed and feisty and I know will over come this , too. It still upsetting as a parent to see her go thru everything.

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Hospital Information:

currently home po box 305 bellaire, oh 43906
all treatments done at children's hospital of pittsburgh
pittsburgh, pa and johns hopkins baltimore

Links:

http://www.caringbridge.org/pa/sofiemae   another CHP princess
http://www.quiltsoflove.com/quilt_2004/harleiP/harlei.html   this is harlei's quilt of love some very nice people made for her. when i first saw it i cried , it is so sweet.
http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=codeystjohn   our cute friend codey from the same town as us dx w/ neuroblastoma


 
 

E-mail Author: pfloyd326@yahoo.com

 
 

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.
 
 
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