Eliah

Welcome to Eliah's Web Page. It has been provided to keep our friends, family, and faithful prayer warriors updated about his health.

Eliah is a very sweet, vibrant little boy with many health concerns. He has been a fighter from the moment of his conception, with many struggles in utero, and the fight has continued for the 12 years since his birth. He has a mitochondrial disorder, depends on a g-tube for venting/drainage and a j-tube for feeding and medications, receives infusions (for brittle bones), sees many doctors and specialists, but is the happiest little kid in spite of it all.

Journal

Monday, July 9, 2012 6:02 PM CDT

It's been a long time. No news is good news. Eliah has been busy as has the rest of the family. Eliah is playing for Miracle League again this year, Julie is in USAG team gymnastics and going 9 hours a week. Noah will be 3 this month. Caleb graduated and is currently working his dream job at Tractor Supply Co. Melody is living up the road, but is distant from us right now. Please pray for her as God leads.

Just wanting to keep you guys up on things that have been going on with Eliah. Nurses have noted memory issues...we have noticed them too. He has also had problems with dizzyness, and fatigue with increased activity...we have an appt with neurology in Sept, but think it might be good to see them sooner. They are the ones who stay up on his Mito.


He recently saw audiology and they said that he has a hearing loss (high frequency) in his left ear. We saw ENT today and they said that it was probably due to a high fever (2007) since there is no history of ear infections. Audiology will see him again in 6 months.


We also had labs last week in GI (because of frequent and bad nosebleeds and bruising) and those showed high PTT (clotting) numbers. A normal high is 36...his was over 250! They promptly did a heparinase test which essentially eliminates the heparin from his blood (from his central line), and that still came back high at 44. Today we went in for a venapuncture (blood draw from his arm) and it still came back at 44 so a referral has now been made to hematology.


We have had 4.5 good years with virtually no problems...this is just how mito goes...these problems, though many, are sort of small right now. Just wanting to keep you up to date.

Read Journal History

Hospital Information:

Children's Hospital
700 Children's Drive
Columbus, Ohio 43205-2696
(614)722-2000

Links:

E-mail Author: MamaSmith2@aol.com

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