Eliah

Welcome to Eliah's Web Page. It has been provided to keep our friends, family, and faithful prayer warriors updated about his health.

Eliah is a very sweet, vibrant little boy with many health concerns. He has been a fighter from the moment of his conception, with many struggles in utero, and the fight has continued for the 8 years since his birth. He has a mitochondrial disorder, depends on a g-tube for venting/drainage and a j-tube for feeding and medications, receives infusions (for brittle bones) every four months, attends PT, OT, and SLP weekly, sees many doctors and specialists, but is the happiest little kid in spite of it all.

Journal

Sunday, August 17, 2008 5:52 PM CDT

With a heavy heart I write to inform you that our sweet friend Isabelle went home to be with Jesus last Wednesday, the 13th of August. She fought long and hard against mito and her little body was just so tired. Four years ago she had a multi organ (multivisceral) transplant (like Taylor) and then later received a kidney transplant as well. Please keep her big sister Maddie and her mom and dad in your prayers as their life will be so vastly different without her here. Pray that God's grace, comfort, and people would give them the support they will need to endure the days, months, and years to come.

Also, on the same note, please remember our other friends families that are living without them here on earth...Jeffrey, Kyle, Connor, Emma, and Joel...as their grief continues.

Eliah's medical news...Things medically for him have been very stable for a long while with the exception of his belly. He is still having a hard time with his belly burning and the acid doing a number on his skin, with no real relief other than baths. While he is in the water, it feels so much better for him, but he obviously can't stay in a bath all the time.

Henry is doing well. He had labs drawn and all of his clotting factors are back where they need to be. We are so thankful for this.

Fun stuff...He and Eliah have been learning to play "hide and seek" together...Eliah hides and Henry finds him...to work on his tracking skills. Eliah loves it and Henry doesn't mind the treats. We have had to cut back some on his food and treats though because Henry is losing his "waistline". :o) He doesn't like the doggy version of weight watchers. He has been doing well with pump alarms lately and his other tricks/skills training is going well.

I think that is about it for now. I will update again with any changes and try to be better about writing more frequently. I don't know if I mentioned it or not, but his infusion is scheduled for this week. We will be doing it at home.

Thanks for checking in on us and for your prayers. We love reading your notes in the guestbook...please let us know when you stop by.

Love,
Chelle

Hospital Information:

Children's Hospital
700 Children's Drive
Columbus, Ohio 43205-2696
(614)722-2000

Links:

E-mail Author: MamaSmith2@aol.com

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Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.