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ANDREW COCHENOUR

Welcome to Andrew's page. Andrew is 10yrs old and is diagnosed with MPS II or Hunters Syndrome. This website was set up so that I could keep everyone informed of how my nephew is doing.

Journal

Friday, August 1, 2008 8:12 PM CDT

Ok, Ok I know that it has been a long time since the Caringbridge site has been updated. No news is good news.

Andrew has been doing great. He continues to get his ERT weekly and to get his IVIg every other week.

Andrew has been a busy boy this summer. He went to see Dr. Muenzer in Chapel Hill, NC. Dr. Muenzer was pleased to see how well Andrew is doing. He met his little friend Kraig Klenke there and was happy to see him and his mommy Kris.

In June, Andrew, his Mommy and Patrick went to Canada to the International MPS Conference. The met with some old friends and met some new ones.

Andrew will be having his walk October 18,2008 in his hometown of Clarksburg,Ohio. The local church wants to have a fish fry. People come from all over for the fish fry dinners and I must say so myself that they are delicious. :)

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Links:

http://www.mpssociety.org  
http://www.mpsforum.com  


 
 

E-mail Author: bpryor2@columbus.rr.com

 
 

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