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If you have trouble believing
in the miracles of life
Please never stop searching
please never give up the fight

For we have proof of miracles
that they happen everyday
She's our beautiful daughter,
our miracle's name is Sophie Jay

On June 15, 2004 we were told
all hope was gone
Although our lives were crushed
we never gave up
Sophie came back bold and strong

With natural nutritional supplements
Sophie started to improve
Getting stronger with every passing day
Now she is even going to school

Please take our advice, if you're
fighting the fight
And the tunnel seems dark and long
Keep believing in life's miracles and
singing a survivors song

Copyright ©2006 Island Princess







WELCOME TO SOPHIE'S WEBSITE !
THIS SITE WAS CREATED TO HELP
KEEP FAMILY FRIENDS AND VISITORS
UPDATED AND INFORMED ON SOPHIE'S PROGRESS


SOPHIE IS A LITTLE MIRACLE
DIAGNOSED WITH DIENCEPHALIC SYNDROME
AT 16 MONTHS OF AGE THIS RARE DISEASE IS CAUSED BY A JUVENILE PILOCYTIC ASTROCYTOMA BRAIN TUMOUR VERY DEEP IN
THE HYPOTHALAMUS AND IS INOPERABLE


SOPHIE HAD BATTLED THROUGH 18 MONTHS OF CHEMO AND OVERNIGHT NASOGASTRIC FEEDS THEN RELAPSED IN JUNE 2004 AND WAS PLACED ON PALLIATIVE CARE WITH ONLY WEEKS TO LIVE
WE DISCOVERED NATURAL NUTRITIONAL SUPPLEMENTS AND SOPHIE
STARTED TO IMPROVE RAPIDLY



SOPHIE IS NOW AT PRESCHOOL THIS YEAR AND WILL CELEBRATE HER 5TH BIRTHDAY ON 31ST MARCH !
THE TUMOUR IS STILL THERE AND HAS TAKEN HER EYESIGHT, BUT WILL NEVER TAKE HER WILL TO LIVE
SOPHIE LOVES BEING A MERMAID AND SWAM WITH THE DOLPHINS IN NOVEMBER AS HER
STARLIGHT WISH CAME TRUE


OUR ULTIMATE WISH FOR SOPHIE IS
THAT HER TUMOUR COMPLETELY
DISAPPEARS AND HER EYESIGHT ETURNS

- PRAYERS NEEDED PLEASE!


The Chosen Mothers
by Erma Bombeck

Most women become a mother by accident,
some by choice and a few by habit.
Did you ever wonder how mother's of
children with life threatening illnesses are chosen?

Somehow, I visualize God hovering over earth
selecting His instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger.......

"Armstrong, Beth, son, patron saint Matthew"
Forrest, Marjorie, daughter, patron saint Cecilia"
Rutledge, Carrie, twins, partron saint Greard."

Finally, He passes a name to an angel and says, "Give her a child with cancer." The angel is curious.
"Why this one, God? She's so happy."

"Exactly," smiles God, "Could I give a child with cancer a mother who does not know laughter?
That would be cruel."

"But, does she have patience?" asks the angel,

"I don't want her to have too much patience or she will
drown in a sea of self-pity and despair.
Once the shock and resentment
wears off, she will handle it."

"I watched her today," said God.
"She has that feeling of self-independence that is so rare and necessary in a mother. You see,
the child I'm going to give her has it's own world.
She has to make it live in her world
and that's not going to be easy."

"But Lord, I don't think she
believes in you," said the angel.
"No matter, I can fix that. This one is perfect.
She has just enough selfishness."

The angel gasps, "Selfishness? Is that a virtue?"

God nods. "If she can't separate herself from the child
occasionally, she'll never survive. Yes, here is the woman I will bless with a child less than perfect.
She doesn't realize it yet, but she is to be envied. She will never take anything her child does for
granted. She will never consider a single step
ordinary. I will permit her to see clearly the things
I see..ignorance, cruelty, prejudice....
and allow her to rise above them."

"And what about her patron saint" asks the angel,
his pen poised in mid-air.

God smiles and says..."A mirror will suffice."










ANGEL ANN
CLICK HERE







*HUGS* TOTAL!
give SOPHIE more *HUGS*

Get hugs of your own



CLICK HERE







UNDER THE SEA
COURTESY OF
DISNEY MIDIS








Journal

Sunday, November 25, 2007 9:53 PM CST

Just getting ready for the Christmas Season! Had our first Christmas outing with a Starlight Escape at Carindale Shopping Centre. We had muffins for morning tea, face painting and then got to meet Santa and have our photo taken! Then we had a $50 gift voucher to spend - each!!!

Luke liked the National Geographic store and got some flying and shooting toys (in soft foam as he likes to aim for his sister's heads!)

Stacey had to update her Bratz collection and Sophie chose Pinart where you feel the pins and can make shapes and some pool toys.

Recently we have started swimming lessons and Little Nippers - check the Nippers (junior life savers) out - www.surfersparadiseslsc.com.au
We should have our photo up soon of the whole club. They all just love the beach and Surfers Paradise is world famous!

MRI will be on 7th January 2008 and the natural therapies continue........

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Hospital Information:

Patient Room: BANKSIA OUTPATIENTS

ROYAL CHILDREN'S HOSPITAL
BRISBANE


Links:

http://www.mannapages.com/leannepisasale   glyconutrients
http://www.campquality.org.au   fun therapy
http://www.quilts4kids.com   Photo of Sophie with her quilt!


 
 

E-mail Author: naturalea@cirruscomms.com.au

 
 

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